Fibromyalgia Questionnaire & Results

Latest Update: 11/19/2009

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33 QUESTIONNAIRE COMPLETED DATA FORMS FOR April 2008

04/30/2008
Name: mary
City: paeroa
State/Country: new zealand
Your Sex: female
Where Were You Born? paeroa, new zealand
Where Do You Live Now? paeroa, new zealand
How Long Have You Lived There? 30 years
Your Age? 51
How many years has it been since you developed your symptoms of fibromyalgia? 8
Your Age At Onset of Symptoms? 43
What is Your Line of Work? Still working? part time teaching, 12 hours per week
Medical History:
Does Exercise Help? pilates helps as does walking
What Were Your First Symptoms? pain in the muscles of my arms, legs and around my ribs
What Are Your Current Symptoms? tirediness, back and muscle pains, poor memory and concentration, depression, moody, sore throat all the time, cronic sinus, no energy, lost interest in the things I used to do , trouble sleeping ,get upset very easily, muscles feel very heavy, gain weight easily
Did You Ever Have A Long Lasting Virus? not that I can recall.
Any Military Service? no service,
Chemical or Pesticide Exposure? have mecury fillings. Worked with chemicals while living on a farm 10 years
How Has Fibro Affected Your Life? I can no longer enjoy the things I used to do gardening is almost impossible carn't keep up with family and friends on outings pain stops me from doing these things
What Makes Symptoms Worse? getting over tired,citrus fruit seams to make me feel worse, wet weather worse in th winter months dampness
What Makes You Feel Better? don't no I just seam to have a good day now and then, spending time outsideon a sunny day helps sometimes
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? 6yrs
Was Your Rate of Decline Fast? yes over about 3 months no specific drugs but had been working with cattle drenches had a large amount split on my skin a few months before all this started
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: paradex and ibuprofen for a back injury this doesn't help the fibro, taking a thyroid tablet, dhea, zinc, b6, and magnesiumthese do help a little
Your Theories:
Are We Missing Any Important Questions? not that I can think of

04/30/2008
Name: Penelope
City: Perth
State/Country: Australia
Your Sex: FEMALE
Where Were You Born? SYDNEY AUSTRALIA
Where Do You Live Now? PERTH WESTERN AUSTRALIA
How Long Have You Lived There? 4 YRS
Your Age? 46
How many years has it been since you developed your symptoms of fibromyalgia? 11.5 years
Your Age At Onset of Symptoms? 35
What is Your Line of Work? Still working? Nursing/Midwifery, no not working for the last 12 months
Medical History: Chicken Pox, German Measles, Mumps, Appendicitis as a child, Dengue Fever at 15, Hepatitis A at 23, Glandular Fever late 80s/90s, Adult Asthma, depression, gastric reflux, vag. leukoplakia, chest/sinus infections, thyroiditis age 43, kidney infection age 43, adrenal fatigue age 43, IBS @ 38, protein digestion problems, inability to retain magnesium,Epstein Barr exposure, restless leg syndrome, chronic insomnia
Does Exercise Help? have been too sick and too tired to do exercise as pain levels were at 7 ish for last 7 plus years, trying to do walking now this year but haven't done much yet
What Were Your First Symptoms? I think after I had my second child i had unexplained total body pain for about 6 months, then it went away and came back 3 or 4 years later and didn't go away
What Are Your Current Symptoms? total body pain, fatigue, memory loss, lack of libido, feel mediocre most of the time not happy,low gut motility, constipation, headaches,muscle tightness and cramping
Did You Ever Have A Long Lasting Virus? ?Dengue fever, Hep A, Epstein Barr exposure
Any Military Service? None
Chemical or Pesticide Exposure? ? DDT as a child as my father was an agricultural pilot
How Has Fibro Affected Your Life? how has it NOT affected it, my marriage broke down, my next relationship broke down, I have not been able to work consistantly, i have continual financial stress, i cant make ANY plans in andance as I don't know how I will feel on a daily basis until i struggle out of bed each day, i am now a single parent again, i cant do what i would like to do with my kids who are young teens now, i feel a lot of the time i have lost the real me,i am on a Disability Pension, the positive things...my kids have lerned compassion and patience beyond their years, I am studying Nutrition then Chinese Medicine in the hope of helping others not become as sick as I did a few years ago,not been able to study as hard as i would like, have had to defer exams, miss classes, pull out of subjects...
What Makes Symptoms Worse? rain makes pain just about double, if i get chilled i get extra pain for 2 weeks...that even includes if i don't dry my hair after i wash it !!! and getting wet in the rain for les than 5 minutes, worse pain for 2 weeks, insomnia makes it all worse, eating the wrong food, not getting enough sleep and rest, staying in aircon for too long, late nights
What Makes You Feel Better? I wouldn't say anything makes me feel better as such...i just dont feel worse...i have been receiving chinese medicine treatment for the last 3 years, i am slowly healing but not somthing i see on a day to day thing...i do meditation, have done a lot of work on the 'self' spiritual stuff, energy healing etc..i try to stay around positive people, achievening things at college makes me feel better
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? i was 39 yrs old
Was Your Rate of Decline Fast? i had 3 or 4 major chest infections one after the other including asthma with prednisone use each time and strong antibiotics usualy 2 courses each time...then i got sick with one and didnt get better...pain started with CFS at the end of that winter so within 3 or 4 months i guess
Have You Tried Avoiding Dietary Fluoride? i drink and cook with filterd water and try to but natural toothpaste if i can afford it which i can most of the time
Remedies Tried: Chinese Herbal Medicine including acupuncture, moxibustion, TCM massage, chinese herbals and diet changes...this has been ongoing since July 3 years ago so July 2005
Your Theories: Chinese medicine treates the energy deficiences not symptoms...definately works with patieince dedication and persistance...along with personal changes and developement of self spiritually
Are We Missing Any Important Questions? i dont think so...perhaps past drug use

04/30/2008
Name: William
City: Tampa,
State/Country: Florida
Your Sex: Male
Where Were You Born? Charleston, WV.
Where Do You Live Now? Tampa, FL
How Long Have You Lived There? 62 years
Your Age? 83
How many years has it been since you developed your symptoms of fibromyalgia? 10
Your Age At Onset of Symptoms? 73
What is Your Line of Work? Still working? Banking- retired
Medical History: polymyalgia, dilated cardiomyopthy Macular degeneration, one eye.
Does Exercise Help? Appears to help. Treadmill 5 days per week
What Were Your First Symptoms? Shoulder and upper back soreness.
What Are Your Current Symptoms? Shoulder and upper back soreness. Hip soreness, lower back soreness periodically.
Did You Ever Have A Long Lasting Virus? No
Any Military Service? No military service.
Chemical or Pesticide Exposure? None known.
How Has Fibro Affected Your Life? Inhibited former activities such as fishing anfd being more active.
What Makes Symptoms Worse? Yard work such as using shovel and rake.
What Makes You Feel Better? Ibuprofen helps some.
Do Your Symptoms Include Brain Fog? Short term memory not good.
How many years has it been since you developed the brain fog associated with fibromyalgia? Probably 2 years.
Was Your Rate of Decline Fast? Yes. Drugs taken at the time and still taking: Wellbutrin XL 450 mg daily for depression, Coreg: 100 mg. daily, Lamictal(mood stabilizer) Lipitor, 10 mg daily, Spironolact, 12.5 mg daily, OTC: 1,000 micg vitamin B-12 daily, Preservision, 2 soft gel tabs daily, Omega-3 1,200 mg once daily, Aspirin: 325 mg once daily, Ibuprofin, 600 mg. twice daily, glucosamine 1,500 mg, once daily, Flax seed oil:1,300 mg. twice daily Lutein, 20 mg daily.
Have You Tried Avoiding Dietary Fluoride? No.
Remedies Tried: Just ibuprofen as mentioned above.
Your Theories: I think I may have polymyalgia &/or fibromyalgia. My Dr. says both are difficult to diagnose.
Are We Missing Any Important Questions? None that I know of.

04/29/2008
Name: Jennifer
City: Marina del Rey
State/Country: California
Your Sex: F
Where Were You Born? California
Where Do You Live Now? California
How Long Have You Lived There? 37 years
Your Age? 37
How many years has it been since you developed your symptoms of fibromyalgia? early teens, got really bad in 2005
Your Age At Onset of Symptoms? early teens around 14-16
What is Your Line of Work? Still working? I can't work anymore, the pain, and weakness is to great.
Medical History: My health was good except when I was growing up I just feel aches all over, I thought it was normal, that everyone was like that. I got much worse when my hives started coming in 1995, and no doctor could tell me why.
Does Exercise Help? no it only makes my joints hurt more, and I get very tired and ache all over if I walk to much.
What Were Your First Symptoms? I started getting, extreme sensative areas on body that hurt even if a feather touch me. Then the twiching, and sharp stabs, and then the all over flu like pains.
What Are Your Current Symptoms? joint hurt and stiff, muscles ache, sharp pin pains, nerve like exteme sensitive spots, tingling, flu like ache all over, muscle twitches, extreme fatigue, headaches, irritable,weight gain.
Did You Ever Have A Long Lasting Virus? No
Any Military Service? No
Chemical or Pesticide Exposure? I noticed that the worst of it all started after a week of cleaning a house with chemical cleaners, and painting. after that I have never been the same.
How Has Fibro Affected Your Life? it has changed my entire life, and not for the better. I'm sad alot, I hurt all the time, and can't do the most simplest tasks, so I feel useless, I can't work anymore which also effects my feelings of usefulness. My life is just pain and sadness.
What Makes Symptoms Worse? my symtoms get worst pre and post menstrual
What Makes You Feel Better? a warm bed, or hot bath and I also feel better after I sleep.
Do Your Symptoms Include Brain Fog? Yes
How many years has it been since you developed the brain fog associated with fibromyalgia? 10
Was Your Rate of Decline Fast? Growing up I started to ache alittle around 14, but all my symptom hit at once, after I spent a week painting and cleaning a house. I can't recall any drugs.
Have You Tried Avoiding Dietary Fluoride? I only just recently found out about flouride, so all I've done is change my toothpaste.
Remedies Tried: I take Advil when I can't take the pain anymore.
Your Theories: I found a doctor and he told me that Fibro, was because I was missing an enzyme in my kidneys that keeps my body from removing calcium phosphate from my body and my body has built up to much calcium phosphate in my muscle and joints, and that why I hurt. He put me on Guaifenisen, to help my body remove the calcium Phos. from my body, but I don't feel much better, maybe you've heard of the " Guaifenisen Protocal" by Dr. St. Amand? When I Started the protocal my body hurt all over really bad, like he said it would. But I don't think I'm getting anywhere.
Are We Missing Any Important Questions?

04/28/2008
Name: Nancy
City: Clinton
State/Country: NJ
Your Sex: Female
Where Were You Born? Trenton, NJ
Where Do You Live Now? Clinton, NJ
How Long Have You Lived There? 9 yrs
Your Age? 38
How many years has it been since you developed your symptoms of fibromyalgia? 6 yrs
Your Age At Onset of Symptoms? 32
What is Your Line of Work? Still working? Customer Service- yes
Medical History: chronic sinus infections, some broken bones
Does Exercise Help? somewhat- low impact
What Were Your First Symptoms? Severe lower back pain
What Are Your Current Symptoms? Lower & upper back pain, on & off pain in arms, legs, chronic fatigue, hard time concentrating
Did You Ever Have A Long Lasting Virus? yes- sinus infection- lasted about 3-4 mths- had sinus's drained & deviated septum repaired
Any Military Service? No
Chemical or Pesticide Exposure? No- have had alot of metal fillings in my teeth over the years- most are replaced now
How Has Fibro Affected Your Life? Difficulty getting up for work, constant pain- can't walk or stand or sit for a long period of time
What Makes Symptoms Worse? Sitting, standing in place for too long, lack of sleep, weather-cold
What Makes You Feel Better? Warmer weather, heating pads, tens unit, pain med's, excersise sometimes
Do Your Symptoms Include Brain Fog? Yes- more lacking in ability to focus or concentrate
How many years has it been since you developed the brain fog associated with fibromyalgia? 2-3 yrs
Was Your Rate of Decline Fast? Yes- moved furniture in my house & thought I pulled a muscle but the pain never went away. Xrays, mri's only showed slight herniation of disc- nothing that would cause the amt of pain I was in. Was on alot of antibiotics & steriods prior to my sinus surgery- possibly w/in that same year.
Have You Tried Avoiding Dietary Fluoride? No
Remedies Tried: Epidurals, Facet Block injections, massage, acupuncture, tens unit, physical therapy, aquatic therapy, chiroprator, meds- vicoprofen, tizanidine, elavil, trazadone, ambien, lunesta, clonazopan, flexiril, dilaudid, ultram, soma, vicoden, lyrica, cymbalta...
Your Theories: Interesting theory on this site- never seen this before. Could have some merit- did take cipro but not sure when in relation to the pain starting.
Are We Missing Any Important Questions?

04/28/2008
Name: Barb
City: St Cloud
State/Country: MN
Your Sex: Female
Where Were You Born? SD
Where Do You Live Now? MN
How Long Have You Lived There? 35 years
Your Age? 61
How many years has it been since you developed your symptoms of fibromyalgia? 18
Your Age At Onset of Symptoms? 42
What is Your Line of Work? Still working? I worked in financial institutions. I am retired.
Medical History: 2 pregnancies, gall bladder removed, cervical fusion @ 5-6.
Does Exercise Help? Yes. I work out @ Curves 3 times a week.
What Were Your First Symptoms? Shoulder blade pain. Headaches and fatigue.
What Are Your Current Symptoms? General pain and achiness. Fatigue.
Did You Ever Have A Long Lasting Virus? Not that I am aware of.
Any Military Service? No.
Chemical or Pesticide Exposure? Probably, grew up on a farm in the 50's & 60's.
How Has Fibro Affected Your Life? I can no longer play golf or tennis. I have to be very careful not to overdo/overexert myself.
What Makes Symptoms Worse? Change in weather. Cold. Doing too much physically. Stress,
What Makes You Feel Better? Rest. Massage and physical therapy.
Do Your Symptoms Include Brain Fog? Sometimes.
How many years has it been since you developed the brain fog associated with fibromyalgia? I've had it since the onset.
Was Your Rate of Decline Fast? I don't think so.
Have You Tried Avoiding Dietary Fluoride? No.
Remedies Tried: Cymbalta is working the best for me right now. I used to take Prosac.
Your Theories: What about 2nd hand smoke. I lived in it for 21 years. My mother probably smoked when she was pregnant. I have never smoked. I have a brother that also has fibromyalgia.
Are We Missing Any Important Questions? How many people have been/were exposed to 2nd hand smoke?

04/28/2008
Name: Felicia
City: Minneapolis
State/Country: USA
Your Sex: F
Where Were You Born? Minneapolis
Where Do You Live Now? Minneapolis
How Long Have You Lived There? 20 YEARS
Your Age? 24
How many years has it been since you developed your symptoms of fibromyalgia? 1
Your Age At Onset of Symptoms? 23
What is Your Line of Work? Still working? Retaail, Yes
Medical History: Depression/Anxiety/Drug abuse
Does Exercise Help? yes yoga/cardio
What Were Your First Symptoms? intollerance of meds/ migraines
What Are Your Current Symptoms? migraines/ intollerant of ALL rx meds. Asthma, seasonal allergies, food intollerance, all over body PAIN
Did You Ever Have A Long Lasting Virus? Not more than the usual cold or flu
Any Military Service? no
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? difficult to work and go to school bc of the pain
What Makes Symptoms Worse? eating bad food, drinking alcahol not being able to go to the bathroom
What Makes You Feel Better? going to the bathroom #2. excersize. sun.
Do Your Symptoms Include Brain Fog? not usually but sometimes
How many years has it been since you developed the brain fog associated with fibromyalgia? n/a
Was Your Rate of Decline Fast? yes. opiates. oxycotton, oxycodone, hydrocodone. some antibiotics-levaquin
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: pro biotics to help with stomach aches
Your Theories: im looking into Dr. Gloria Gilbere's advice about many of these'invisible illnesses' start in the intestinal tract. I may start trying a VERY high fiber diet and a serious colon cleanse.
Are We Missing Any Important Questions? dont think so

04/28/2008
Name: Patricia
City: Leicester
State/Country: United Kingdom
Your Sex: female
Where Were You Born? Leicester
Where Do You Live Now? Leicestershire
How Long Have You Lived There? 56 years
Your Age? 62
How many years has it been since you developed your symptoms of fibromyalgia? 8years maybe longer
Your Age At Onset of Symptoms? 55
What is Your Line of Work? Still working? worked for a Bank most of my life now retired. Had to take ill health retirement at 56.
Medical History: Scoliosis Bronchiectisis Heart Murmer Cancer of the cervic 1995 Total hysterectomy 1995 Gall Bladder removed 2003 Repetitive strain injury had carpal tunnel operation 2005 Hiatis Hernia 2005
Does Exercise Help? Gentle stretching A little swimming.Did do Pilates which helped but now get too sore.
What Were Your First Symptoms? Repetitive strain injury which progresses to shoulders neck and into whole body.
What Are Your Current Symptoms? Pain soreness all over my body. Swelling in different parts of bady on different days,chronic fatigue Forgetfullness Heaviness. Limbs feel heavy. Body often itches. Irritable bowel Anxiousness
Did You Ever Have A Long Lasting Virus? Throat infection 1999 allergic reaction to anti-biotic. Face swelled lips and tongue.
Any Military Service? no
Chemical or Pesticide Exposure? Only chemicals on the allotment when I was a child and amalgum fillings in teeth.Lots. Now removed.
How Has Fibro Affected Your Life? It has limited my lifestyle and changed my habits. I was a tidy person and organised and now I feel out of control.Even cleaning the house is an effort. I drop many things. I help my daughter with her family sometimes and it takes two weeks to recover.I have become anti-social because I do not like to make arrangements in case I have a bad day.The pain and tiredness makes me feel useless quite often.Most people do not understand especially because I was a good listener and ready to arrange social events but that has changed.Some people think I exaggerate my condition when in fact I play it down out of embarrassment.
What Makes Symptoms Worse? Most activities. Driving cold damp weather. Other peoples beds.Stupid and selfish people.People that think they know what is best for you and make jokes about me being dizzy ! Overdoing it.
What Makes You Feel Better? Good friends Helpful medical people.. Getting jobs done in the house. Having a good day and being able to tidy up without dropping things.Getting out of the house. Sitting in the garden when the sun is shining. Belts with heated metal in them. Just discovered them. They help the pain and are good when I have to stand for any lenght of time or want to tidy up the gardene and also good for longer car journeys..
Do Your Symptoms Include Brain Fog? Yes
How many years has it been since you developed the brain fog associated with fibromyalgia? 7 years maybe longer.
Was Your Rate of Decline Fast? The onset came after being pushed into doing too much computer input by a young supervisor who would not accept my condition even though my arms were swollen.From then on symptoms became worse spread and chronic fatigue.Do not think any connection with drugs.
Have You Tried Avoiding Dietary Fluoride? Did not know about this connection but now drink bottled water.
Remedies Tried: Remeidein (Paracetomeland codeine) Mobic (cannot take now does not mix with something else.) CQ10 (for memory and help statins work) Complan food supplement. Lignacaine infusiin. Various cortisone injections given by epidurel Vitamin supplements (multi-vitamin)
Your Theories: It helps to be organised if possible even though it is the hardest thing to do when you have constant pain. Being untidy makes me feel worse and gives stress.I write lots of things down in a large diary to help me remember things.I believe that stress has a lot to do with fibromyalgia pain.An ME sufferer told me that fibromyalgia is ME with pain.Avoid people who aggravate your condition or who do not try to understand.If you have to see these people ignore their comments. Do not over commit yourself because canceling causes more stress and pain..
Are We Missing Any Important Questions? Why are there so many theories.There must be one common reason at the bottom of this illness.

04/28/2008
Name: Marie
City: Newcastle upon Tyne
State/Country: England
Your Sex: Female
Where Were You Born? England
Where Do You Live Now? Newcastle upon tyne
How Long Have You Lived There? 46 years
Your Age? 46
How many years has it been since you developed your symptoms of fibromyalgia? 8 years
Your Age At Onset of Symptoms? 38
What is Your Line of Work? Still working? Administrator
Medical History: E-coli 16 years ago Ulcer and bug.
Does Exercise Help? No
What Were Your First Symptoms? Intense burning pain in head
What Are Your Current Symptoms? Burnng pain, nausea, joint pain, dizziness, blurred vision, hearing loss,IBS, back pain, neck pain, frequent urination.
Did You Ever Have A Long Lasting Virus? no
Any Military Service?
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? No quality of life really worried about my work.
What Makes Symptoms Worse? Anything strenuous even walking hurts.
What Makes You Feel Better? NOthing
Do Your Symptoms Include Brain Fog? Yes
How many years has it been since you developed the brain fog associated with fibromyalgia? Probably 2
Was Your Rate of Decline Fast? Been really unwell for 8 years but the last year everything is getting far worse.
Have You Tried Avoiding Dietary Fluoride? No
Remedies Tried: I'm currently taking Gapapentin for the burning pain.
Your Theories: I've just recently cut them from 3 a day to 1 as I was feeling so unwell and mentally not with it.
Are We Missing Any Important Questions? NO

04/27/2008
Name: Roni
City: Valparaiso
State/Country: Indiana
Your Sex: female
Where Were You Born? crown point indiana
Where Do You Live Now? valparaiso indiana
How Long Have You Lived There? 7 yrs
Your Age? 27
How many years has it been since you developed your symptoms of fibromyalgia? dont know
Your Age At Onset of Symptoms? dont know
What is Your Line of Work? Still working? horse training - no i cant work
Medical History: gerd, ibs, hiatal hernia, gallbladder removed 1998 everything started in 1995 when i took biaxin
Does Exercise Help? no
What Were Your First Symptoms? tirdness, nausea, insomina, jsst about everything you can think of
What Are Your Current Symptoms? nausea, tired, aches pains everything you can think of hurts
Did You Ever Have A Long Lasting Virus? umm i think so in 2004 i had group b strep pretty bad with my pregnancy she was born preemie at 29 wks
Any Military Service? no
Chemical or Pesticide Exposure? no not really but my husband is and its on his clothes
How Has Fibro Affected Your Life? i cant do anything anymore, cant plan, causes anxiety and panic attacks
What Makes Symptoms Worse? stress, public, food, life
What Makes You Feel Better? brushing my horses
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? 2
Was Your Rate of Decline Fast? i honestly dont remember but in 1995 is when i had taken that med and things have never been right since, but ive had ibs since i ws in grade school
Have You Tried Avoiding Dietary Fluoride? umm no
Remedies Tried: i am on phenergan
Your Theories: i just want to get well and have a normal life!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! i feel like im going crazy
Are We Missing Any Important Questions? no

04/26/2008
Name: stephanie
City: orlando
State/Country: fl
Your Sex: female
Where Were You Born? ny
Where Do You Live Now? LA and Orlando
How Long Have You Lived There? 5 years in LA and Orlando most of my life
Your Age? 41
How many years has it been since you developed your symptoms of fibromyalgia? 10 years
Your Age At Onset of Symptoms? 31
What is Your Line of Work? Still working? sales yes
Medical History: a dyphillobrothium latem. Had a fresh water fish tapeworm in me since 1993 found it in 1998 and took medication.
Does Exercise Help? absolutely aerobic excercise for more than 30 minutes alleviates aches
What Were Your First Symptoms? lack of sleep is why i might have gotten this. Achy Achy muscles and super duper duper tired all the time
What Are Your Current Symptoms? on and off achy muscles and tired. comes and goes
Did You Ever Have A Long Lasting Virus? not to my knowledge
Any Military Service? none
Chemical or Pesticide Exposure? not sure or not to my knowledge
How Has Fibro Affected Your Life? for the first 2 1/2 years i could not lift weights at the gym at all would be in worse pain. now symptoms are much more mild.
What Makes Symptoms Worse? lack of aerobic excercize on a regular basis
What Makes You Feel Better? sleep that is at least 8 hours same time every night bed and working out aerobics wise
Do Your Symptoms Include Brain Fog? sometimes
How many years has it been since you developed the brain fog associated with fibromyalgia? a few years
Was Your Rate of Decline Fast? yes overnight. anti biotics i believe peniciliien but think it was way to late after the fact and symptoms
Have You Tried Avoiding Dietary Fluoride? i am now going to change to a toothpaste without flouride. i drink distilled water. want to learn how to do that I do not think its healthy at all and would be curious.
Remedies Tried: i do not take medications unless i feel its fully necessary. tried liquid fasting for 2 weeks and felt great. also went to the optimum health institute vegan sprouted raw foods was wonderful
Your Theories: Alkaline bodies maintain a greater level of health with less sickness. Sleep is very important as well as healthy diets. organic meats if eating them. no breads or non sprouted living breads, no pasta
Are We Missing Any Important Questions? was there any parasites found? do you eat sushi? raw meats? what sleep paterns are kept on a regular basis? problems sleeping? when i contracted fibroM i was out all the time till the morning and loved going out to socialize i was not and still am not a drinker.

04/26/2008
Name: Alison
City: McLean
State/Country: VA, U SA
Your Sex: Female
Where Were You Born? Alabama, USA
Where Do You Live Now? McLean, VA
How Long Have You Lived There? 20 years
Your Age? 52
How many years has it been since you developed your symptoms of fibromyalgia? 20 years
Your Age At Onset of Symptoms? 32
What is Your Line of Work? Still working? Project Manager. Yes. Still Working
Medical History: Raised in military family. Lived abroad during childhood. Many vaccinations and immunizations (cholera, typhoid, typhus, yellow fever, whooping cough, tetanus, etc.) prior to overseas assignments. History of repeated strep throat during childhood and early teens, treated with various antibiotics. Acne treated with long-term erythromycin.
Does Exercise Help? Stretching. Walking. Swimming.
What Were Your First Symptoms? Pain in neck/upper trapezius region that had burning/freezing sensation.
What Are Your Current Symptoms? Some degree of constant pain in neck, shoulders, upper trapezius, lower back, hips, sometimes feet. Tingling/numbing of right hand and sometimes right toes. Extreme stiffness on arising in morning that subsides somewhat after hot shower, increased stiffness after sitting for long periods; overall pain that hinders sound sleep.
Did You Ever Have A Long Lasting Virus? Yes - many.
Any Military Service? Military dependent - 1956 - 1974.
Chemical or Pesticide Exposure? Unsure of degree, but probably (grew up on air bases and overseas in third-world countries. Many vaccinations and immunizations.
How Has Fibro Affected Your Life? Have had to learn to live with chronic, constant pain using sheer mental willpower to "push pain into the background" to get from one end of the day to the other, and to lead an active life as wife/mother/professional. Friends go out at night after work, but I have no energy or desire to join. Early on, some doctors treated me as if symptoms were all in my head. Finding medical expertise in this area, and finding helpful treatment has been elusive and hit-and-miss. After 20 years, I have more or less given up on any "cure", and simply try to manage constant pain with common-sense home remedies (stretching, ice packs, rest, etc).
What Makes Symptoms Worse? Activities that cause repetitive stress to muscle groups; wearing heels, sitting for long periods in poor seating; sitting for long periods at a computer; muscle tension caused by stress.
What Makes You Feel Better? Regular chiropractic care, daily routine that allows mobility rather than 10 hours seated at a computer in a cubicle; hot shower in morning/evening; stretching exercises; Cold pack on neck; Tempurpedic mattress pad; good night's sleep; vitamin B supplements.
Do Your Symptoms Include Brain Fog? Yes - at times.
How many years has it been since you developed the brain fog associated with fibromyalgia? 10 years, maybe.
Was Your Rate of Decline Fast? Yes. I do not recall prescription drugs given at the time, but do recall being under tremendous work stress.
Have You Tried Avoiding Dietary Fluoride? No - had never made that connection.
Remedies Tried: Prescription anti-inflammatory medications and painkillers; chiropractic care; physical therapy.
Your Theories: Fibromyalgia can improve slightly, then worsen for no obvious reason. I suspect some toxic buildup in my system contributes to symptoms, for example: many large, mercury fillings received as a child in military dental clinics; high volume of immunizations for overseas travel from age 6 mos. to 15 yrs; frequent exposure to household cleaning products,. Who knows?
Are We Missing Any Important Questions? What triggered the onset of symptoms in my early 30's? What could be the affect of early childhood immunizations for overseas travels?

04/26/2008
Name: Janet
City: John Day
State/Country: Oregon
Your Sex: female
Where Were You Born? California, but raised in Michigan
Where Do You Live Now? Oregon
How Long Have You Lived There? 12 years
Your Age? 52
How many years has it been since you developed your symptoms of fibromyalgia? 15 Years
Your Age At Onset of Symptoms? mid 30's
What is Your Line of Work? Still working? MRDD Caregiver, group homes
Medical History: 4 pregnancies, complete hysterectomy, kidney donor
Does Exercise Help? sometimes, mainly stretches
What Were Your First Symptoms? cold and noise sensitive, muscle spasms
What Are Your Current Symptoms? muscle spasms mostly, then now and then very sensitive to any fluctuation in temperature
Did You Ever Have A Long Lasting Virus? unkown
Any Military Service? none
Chemical or Pesticide Exposure? none
How Has Fibro Affected Your Life? no longer working due to severe RA
What Makes Symptoms Worse? stress, weather changes
What Makes You Feel Better? hot tub
Do Your Symptoms Include Brain Fog? possibly
How many years has it been since you developed the brain fog associated with fibromyalgia? not sure
Was Your Rate of Decline Fast? seems like it, but don't recall being on anything other than estrogen patches at that time
Have You Tried Avoiding Dietary Fluoride? yes, from toothepaste and drinking water
Remedies Tried: doctor tried me on muscle relaxers, pain killers, anti-inflamatories and anti-depression drugs, nothing worked so stopped all and tried natural remedies
Your Theories: my personal research lead me to believe fibromyalgia was due to a dietary deficiency, closely resembles B vitamins and some mineral deficiencies, had lots of luck with adding these to my treatment plan, was able to continue working for a long time after being diagnosed, then the RA suddenly went full blown
Are We Missing Any Important Questions? yes, how many people were later diagnosed with RA?

04/25/2008
Name: Margaret
City: Amarillo
State/Country: TX
Your Sex: Female
Where Were You Born? KS
Where Do You Live Now? TX
How Long Have You Lived There? 51
Your Age? 58
How many years has it been since you developed your symptoms of fibromyalgia? 15
Your Age At Onset of Symptoms? 43
What is Your Line of Work? Still working? Office, Yes
Medical History: 2 children, hysterectomy at 38
Does Exercise Help? Yes, if I feel like it. Walking, being outdoors, light weights
What Were Your First Symptoms? IBS
What Are Your Current Symptoms? Headaches,body aches,IBS,EXTREME FATIGUE,allergies and sinus weakness,the list goes on...
Did You Ever Have A Long Lasting Virus? Not that I recall
Any Military Service? No
Chemical or Pesticide Exposure? Do fillings in my teeth count? If so, yes,from early childhood
How Has Fibro Affected Your Life? Extremely. I am planning to retire soon, 2yrs earlier than hoped for.
What Makes Symptoms Worse? Weather changes, cold,stress,junk food including preservatives
What Makes You Feel Better? I credit many supplements with my ability to keep working. Healthy eating ,warmth.
Do Your Symptoms Include Brain Fog? Yes - however I believe I've had GREAT success in living with & diminishing the effects of brain fog through the use of a supplement called DMAE. It truly helps & I wish I could share that with everyone who suffers from fibro. It takes about a month to see results and improvement is gradual but definite. I take a brand called Source Naturals 351 MG once a day. I hope many others will experience the same relief I have from at least this one crippling effect of fibro.
How many years has it been since you developed the brain fog associated with fibromyalgia? At least 10 years, the onset was gradual as with many other symptoms.
Was Your Rate of Decline Fast? No. I would have first one & then another complaint of varying problems, headache, backache, neck and shoulders, IBS problems though from my 20's. No drugs other than pain relievers.
Have You Tried Avoiding Dietary Fluoride? Yes, I have eliminated toothpastes containing fluoride but probably haven't been careful enough about checking other food sources.
Remedies Tried: Long list..Prescription:Darvocet,Cyclobenzoprine,Cymbalta.Supplements: B-50 Complex,DMAE, Coral Calcium, Hyaluronic Acid w/MSM Glucosamine/Chondroitin, Co Q-10,Chromium Picolinate, Alpha Lipoic Acid, Vit C&E. Have tried a myriad of others but these are the ones I believe help and currently take.
Your Theories: I appreciate your site for sharing ideas. I know from experience that some things DO help but I haven't found anything yet that makes me feel like I've conquered fibro. I have just started OP. Will respond later with results.
Are We Missing Any Important Questions? A ranking of symptoms would be interesting. Allergies/sinuses & fatigue are my top 2. I believe the Cymbalta helps with pain but I think it may be contributing to my fatigue.

04/25/2008
Name: della
City: Burlington
State/Country: Canada
Your Sex: female
Where Were You Born? Italy
Where Do You Live Now? Canada
How Long Have You Lived There? 50 years
Your Age? 61 and 1/2
How many years has it been since you developed your symptoms of fibromyalgia? about 17 years
Your Age At Onset of Symptoms? about 46
What is Your Line of Work? Still working? office work. Now retired
Medical History: good health
Does Exercise Help? Yoga
What Were Your First Symptoms? I don/t really remember. I have been aching for so long.
What Are Your Current Symptoms? My whole body aches. Including headaches.
Did You Ever Have A Long Lasting Virus? I have had Hep A & C. Am now cured.
Any Military Service? No
Chemical or Pesticide Exposure? No
How Has Fibro Affected Your Life? Limits me from enjoying life to the fullest, since I always ache.
What Makes Symptoms Worse? Cold, damp weather
What Makes You Feel Better? Heat
Do Your Symptoms Include Brain Fog? I'm not sure, but I suppose to some degree
How many years has it been since you developed the brain fog associated with fibromyalgia? I can't say for sure
Was Your Rate of Decline Fast? No, I believe it was more gradual. I feel it sneaked up on me. I do not recall being on any kind of drugs.
Have You Tried Avoiding Dietary Fluoride? I'm not sure what you mean by dietary fluoride?
Remedies Tried: Acupancture & message therapy
Your Theories:
Are We Missing Any Important Questions?

04/24/2008
Name: Joyce
City: Sale
State/Country: Australia
Your Sex: Female
Where Were You Born? Nth Ireland
Where Do You Live Now? Australia
How Long Have You Lived There? 51 years
Your Age? 60
How many years has it been since you developed your symptoms of fibromyalgia? approx 7
Your Age At Onset of Symptoms? 53
What is Your Line of Work? Still working? not working
Medical History: No problems
Does Exercise Help? no
What Were Your First Symptoms? severe shoulder pain
What Are Your Current Symptoms? constant pain throughout my body changes from day to day
Did You Ever Have A Long Lasting Virus? no
Any Military Service? no
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? stops me from leading my usual normal life
What Makes Symptoms Worse? cold weather
What Makes You Feel Better? rest
Do Your Symptoms Include Brain Fog? no
How many years has it been since you developed the brain fog associated with fibromyalgia? N/A
Was Your Rate of Decline Fast? yes - cannot remember any
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: a number of anti-inflams, various pain killers, plaquinel, changes in diet, exercise
Your Theories: None, cannot work it out at all, it follows no pattern but affects every part of my body
Are We Missing Any Important Questions? no, I don't think so

04/24/2008
Name: Sherry
City: Meridian
State/Country: MS
Your Sex: Female
Where Were You Born? MS
Where Do You Live Now? MS
How Long Have You Lived There? 13 years
Your Age? 43
How many years has it been since you developed your symptoms of fibromyalgia? 8
Your Age At Onset of Symptoms? ???
What is Your Line of Work? Still working? Administrative
Medical History:
Does Exercise Help? No
What Were Your First Symptoms? Upper back/shoulder pain
What Are Your Current Symptoms? Pain in all four quadrants, unalbe to sleep, irritable bowel syndrome, sensitive to cold
Did You Ever Have A Long Lasting Virus?
Any Military Service? 1982 - 1992
Chemical or Pesticide Exposure? Unknown
How Has Fibro Affected Your Life? Yes
What Makes Symptoms Worse? Driving, sitting for long periods, light housework, walking stairs, lifting
What Makes You Feel Better? trigger point injections, moist heat, massage
Do Your Symptoms Include Brain Fog? Yes
How many years has it been since you developed the brain fog associated with fibromyalgia? 6 years
Was Your Rate of Decline Fast? No it was gradual
Have You Tried Avoiding Dietary Fluoride? No
Remedies Tried: Gauifensin, muscle relaxants, pain meds (narcotics and non narcotics), PT, Chiropractic manipulation, moist heat
Your Theories: No
Are We Missing Any Important Questions? No

04/23/2008
Name: Melissa
City: Springfield
State/Country: TN
Your Sex: F
Where Were You Born? Kennett, MO
Where Do You Live Now? Springfield, TN
How Long Have You Lived There? 1 month
Your Age? 29
How many years has it been since you developed your symptoms of fibromyalgia? 4
Your Age At Onset of Symptoms? 25
What is Your Line of Work? Still working? US ARMY, now disabled
Medical History: was healthy.
Does Exercise Help? I haven't been able to attempt that again.
What Were Your First Symptoms? Pain. Everywhere.
What Are Your Current Symptoms? Chronic Pain, Depression, Muscle Pain, Joint Stiffness, Complete Misery, Unable to Think or Articulate Speech As I Used To
Did You Ever Have A Long Lasting Virus? Yes
Any Military Service? 2003-2005
Chemical or Pesticide Exposure? Who knows?
How Has Fibro Affected Your Life? It completely destroyed my life and ran away with it.
What Makes Symptoms Worse? Any stress whatsoever.
What Makes You Feel Better? Numbness.
Do Your Symptoms Include Brain Fog? Yes.
How many years has it been since you developed the brain fog associated with fibromyalgia? app. 4 years
Was Your Rate of Decline Fast? Yes, 240 percocets were prescribed to me before any proper care was administered at the VA, but then, NO proper care has been obtained at the VA whatsoever. I'm without hope. The drugs that I have been prescribed are far too lengthy to recall.
Have You Tried Avoiding Dietary Fluoride? I have never heard of this.
Remedies Tried: Well, the Fibro and Fatigue center is currently about to begin destroying my finances and subsequently, my marriage nowadays.
Your Theories: I wish I didn't have to believe that all the mental and physical trauma that I have suffered through no fault of my own is to blame for this.
Are We Missing Any Important Questions? You can ask me anything. But I can't tell you a thing.

04/23/2008
Name: Angela
City: Twentynine Palms
State/Country: CA
Your Sex: Female
Where Were You Born? Arkansas
Where Do You Live Now? California
How Long Have You Lived There? 5 years
Your Age? 31
How many years has it been since you developed your symptoms of fibromyalgia? 1 year
Your Age At Onset of Symptoms? 30
What is Your Line of Work? Still working? None, homemaker.
Medical History: High blood pressure, currently taking medication for this. Taking anti-inflammation medication which has stopped working and other meds.
Does Exercise Help? Stretching, but I still hurt and stiffen up and am in agonizing pain at night time and at least all day pain at least 3-4 times a week.
What Were Your First Symptoms? Stiffening, unable to move adequately and "normal" fast.
What Are Your Current Symptoms? Pain in legs, excruciating stabbing pains, as if my nerves are shriveling up, pain in tender points all over, sometimes hair even hurts.
Did You Ever Have A Long Lasting Virus? Not that I can remember.
Any Military Service? Am a military spouse of active duty.
Chemical or Pesticide Exposure? None that am aware of.
How Has Fibro Affected Your Life? Aggressively for a year.
What Makes Symptoms Worse? Anything and everything. Overexertion, cleaning, bending.
What Makes You Feel Better? Drinking alcohol, some stretching, but pain returns, and am very irritable in legs to the point of wanting to gnaw them off.
Do Your Symptoms Include Brain Fog? Yes. I forget every two seconds, my memory is shot to hell.
How many years has it been since you developed the brain fog associated with fibromyalgia? About the same time, a year.
Was Your Rate of Decline Fast? The only meds I was on was for HBP, I use to be on Avapro and Atenolol, but due to pregnancy was switched to Aldomet and HCTZ.
Have You Tried Avoiding Dietary Fluoride? No, not that I am aware of.
Remedies Tried: Sulindac (currently on), Baclofen (for spasming), and take a Trazodone pill, on occassion for insomnia, but do not take every night as perscribed due to the droginess I sometimes have if do not get the full 8-10 hours.
Your Theories:
Are We Missing Any Important Questions?

04/23/2008
Name: pamela
City: saint john
State/Country: indiana
Your Sex: female
Where Were You Born? chicago
Where Do You Live Now? indiana
How Long Have You Lived There? 8
Your Age? 56
How many years has it been since you developed your symptoms of fibromyalgia? 5
Your Age At Onset of Symptoms? 51
What is Your Line of Work? Still working? hair dresser salon part time on floor
Medical History: thrown off horse 8 years ago just diagnosed with epstien bar.told several times i have fibro.
Does Exercise Help? sometimes
What Were Your First Symptoms? occipital headaches
What Are Your Current Symptoms? fatigue, pain
Did You Ever Have A Long Lasting Virus? epstien bar
Any Military Service? no
Chemical or Pesticide Exposure? chemicals doing hair for 25 years
How Has Fibro Affected Your Life? no the same person i was type a going going not even close now
What Makes Symptoms Worse? weather, bad food
What Makes You Feel Better? hot bath heated mattres pad warm weather
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? right away
Was Your Rate of Decline Fast? yes have stayed away from meds as much as possible
Have You Tried Avoiding Dietary Fluoride? n/a
Remedies Tried: relefen, xanax
Your Theories: no
Are We Missing Any Important Questions? no

04/23/2008
Name: Melanie
City: Post Falls
State/Country: Idaho
Your Sex: Female
Where Were You Born? New Jersey
Where Do You Live Now? Idaho
How Long Have You Lived There? 30
Your Age? 37
How many years has it been since you developed your symptoms of fibromyalgia? 29
Your Age At Onset of Symptoms? 8
What is Your Line of Work? Still working? Information Technology/ Not Working
Medical History: I've always been sickly since I was little, leading up to pain and illness through teenage years to current.
Does Exercise Help? Walking helps as long as I don't overdue it.
What Were Your First Symptoms? Pain.
What Are Your Current Symptoms? Pain, irritable, fatigue, unable to take care of personal finances, get too overwhelmed too quickly.
Did You Ever Have A Long Lasting Virus? I was always sick when I was little.
Any Military Service? None.
Chemical or Pesticide Exposure? None.
How Has Fibro Affected Your Life? Unable to take care of my home, my kids, my finances like I used to.
What Makes Symptoms Worse? Cold, unstable whether, temperatures over 90 degrees.
What Makes You Feel Better? rest, mild activity, getting support from someone.
Do Your Symptoms Include Brain Fog? ABSOLUTELY!!!! I hate it, I've always been an independent, intelligent woman, but I have been feeling just plain stupid.
How many years has it been since you developed the brain fog associated with fibromyalgia? I would say it's been the last 2-3 years.
Was Your Rate of Decline Fast? It was a gradual change, however I was having several back surgeries at the same time so it was compounded.
Have You Tried Avoiding Dietary Fluoride? no, I didn't know that I should.
Remedies Tried: Neurontin, Cymbalta, Effexor XR, Lyrica, xanax, ambien
Your Theories:
Are We Missing Any Important Questions?

04/22/2008
Name: Natalie
City: Burlington
State/Country: Ontario, Canada
Your Sex: Female
Where Were You Born? Montreal
Where Do You Live Now? Toronto
How Long Have You Lived There? 20 years
Your Age? 36
How many years has it been since you developed your symptoms of fibromyalgia? Approximately 2
Your Age At Onset of Symptoms? 34
What is Your Line of Work? Still working? Administrative. still working
Medical History:
Does Exercise Help? Yes, walking, yoga and light weights.
What Were Your First Symptoms? Pain in head, neck, shoulders, arms insomnia
What Are Your Current Symptoms? Pain in back,neck,shoulders,arms. Insomnia Brain fog Weakness in limbs
Did You Ever Have A Long Lasting Virus? Yes, but they never figured out what it was and labeled it mononucleosis
Any Military Service? No.
Chemical or Pesticide Exposure? Possibly in an office reno 2 years ago.
How Has Fibro Affected Your Life? Trying not to let it
What Makes Symptoms Worse? Dampness Cold bad diet
What Makes You Feel Better? Baths Sleep, when I can Eating well Exercise
Do Your Symptoms Include Brain Fog? YES!!!!!!
How many years has it been since you developed the brain fog associated with fibromyalgia? Longer than I probably realised. 2 years or more
Was Your Rate of Decline Fast? I had migraines first and took Amerge.
Have You Tried Avoiding Dietary Fluoride? Yes. Toothpaste and tap water
Remedies Tried: Celexa Imovane Wellbutrin Sauna Massage Therapy Chiropractic Vitamin Supplements
Your Theories: I agree that it could have been the exposure after the office reno. Also, my mom and her twin both have it, so I believe that there are some genetics involved
Are We Missing Any Important Questions?

04/20/2008
Name: Lori
City: Fort Worth
State/Country: Texas
Your Sex: Female
Where Were You Born? Fort Worth
Where Do You Live Now? Fort Worth
How Long Have You Lived There? 19 years
Your Age? 48
How many years has it been since you developed your symptoms of fibromyalgia? 10 years
Your Age At Onset of Symptoms? 38
What is Your Line of Work? Still working? artist full time
Medical History: I was hit by a car at age 8, broken arm and leg, appendectomy age 16, pregnancy ages 17 and 18, gall bladder out age 24, prengancy age 35, mononucleosis age 37, pregnancy age 42, knee surgery ages 45 and 46, hand surgery ages 46 and 48.
Does Exercise Help? walking, light weight training
What Were Your First Symptoms? lack of sleep due to muscle pain in legs
What Are Your Current Symptoms? general pain, headaches, fatigue, exhaustion, some depression
Did You Ever Have A Long Lasting Virus? mononucleosis age 37, after which I found I was CMV positive when I donated blood
Any Military Service? military wife 15 years 1975-1990
Chemical or Pesticide Exposure? exposure to dry cleaning chemicals in drinking water while stationed at Camp Lejeune, North Carolina 1979-1982
How Has Fibro Affected Your Life? I am usually too tired or sore to participate in activities I enjoy, I am irritable from lack of sleep, I have gained weight due to inactivity
What Makes Symptoms Worse? stress
What Makes You Feel Better? relaxation, Elavil
Do Your Symptoms Include Brain Fog? before I began treatment with Elavil I had much brain fog
How many years has it been since you developed the brain fog associated with fibromyalgia? within two years of developing Fibromyalgia I was experiencing brain fog
Was Your Rate of Decline Fast? I was in full blown fibromyalgia within 8 months of having mononucleosis. I do not remember taking any drugs during that time or prior
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: hot baths to soak the muscles and relax will help short term, exercise and dietary changes along with 25mg Elavil daily has helped most. I also try to keep stress to a minimum
Your Theories: I don't have a clue why I suffer with this
Are We Missing Any Important Questions? ?

04/18/2008
Name: tomi
City: salem
State/Country: oregon
Your Sex: female
Where Were You Born? salem
Where Do You Live Now? salem
How Long Have You Lived There? 8 years
Your Age? 47
How many years has it been since you developed your symptoms of fibromyalgia? 8
Your Age At Onset of Symptoms? 39
What is Your Line of Work? Still working? self employed
Medical History:
Does Exercise Help? weight lifting
What Were Your First Symptoms? pain in tissues following kick boxing classes
What Are Your Current Symptoms? pain in back, hips, legs, arms, insomnia, intermittent eye sight problems, foggy thought, night mares.
Did You Ever Have A Long Lasting Virus? no
Any Military Service? no
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? can no longer hold down a full time job. I've gained 60 pounds. I forget things all the time.
What Makes Symptoms Worse? stress, cold weather, over exersion.
What Makes You Feel Better? rest, sound sleep
Do Your Symptoms Include Brain Fog? absolutely
How many years has it been since you developed the brain fog associated with fibromyalgia? I had it today
Was Your Rate of Decline Fast? over the course of about a year. no drugs associated. Divorce.
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: ultram, lots of stuff
Your Theories: it sucks
Are We Missing Any Important Questions? no

04/18/2008
Name: Jennifer
City: Memphis
State/Country: TN
Your Sex: Female
Where Were You Born? Memphis, TN
Where Do You Live Now? Memphis, TN
How Long Have You Lived There? 28 yrs
Your Age? 36
How many years has it been since you developed your symptoms of fibromyalgia? 20
Your Age At Onset of Symptoms? 16
What is Your Line of Work? Still working? Computer support specialist
Medical History: Hypothyroid, Diabetes (started as Insulin Resistance), Depression, ADHD, High Cholesterol, PCOS, Vitamins B & D deficient, Insomnia, GERD, I'm sure I'm forgetting something!
Does Exercise Help? Every time I try I overdo it and can barely move for weeks
What Were Your First Symptoms? Aching/pain in knees, ankles, and hips
What Are Your Current Symptoms? Problems mostly in arms, shoulders, neck..burning and twitching in muscles, pain all over, fatigue, some fibro fog, mostly pain and fatigue. I still suffer from insomnia also.
Did You Ever Have A Long Lasting Virus? Not that I remember
Any Military Service? No
Chemical or Pesticide Exposure? No
How Has Fibro Affected Your Life? I can't do the things a 36 yr old should be able to. I can't go anywhere without making sure there's someone to sit when (not if) I get tired. I feel like a failure when I can't help around the house or help my family with things people twice my age are doing. I sometimes can't think straight because of the pain so it's hard to concentrate on my job at times.
What Makes Symptoms Worse? A friend of my mom's noticed that she felt worse or better based on the barometric pressure. We've checked in with each other on occassion when we're feeling bad and it seems that our bad days and good days seem to be similar, so there might be some truth in that. I also notice that stress is a big factor in how I feel.
What Makes You Feel Better? It depends on the symptoms I'm having at the time. As long as I can stand the touch, massage relaxes my muscles. Hot tubs feel good too. I'm not sure if you want meds here or not, but Neurontin helps the burning in my muscles and Ultram helps the twitching (surprisingly doesn't do much for the pain, though).
Do Your Symptoms Include Brain Fog? Yes
How many years has it been since you developed the brain fog associated with fibromyalgia? I never really knew it was related to FMS until about 5-6 yrs ago, but I'm guessing it's been around 10 yrs or so.
Was Your Rate of Decline Fast? Now that I think about it, it wasn't a medication that was added but one that was taken away. I was on Prozac for 10 yrs when it started affecting me negatively. I had to be taken off of it and during that time I began having more problems with my FMS. It hasn't gotten better since then, either. I've heard that the Ultram could have caused the problems with the Prozac because I had recently increased my dosage when the Prozac stopped working.
Have You Tried Avoiding Dietary Fluoride? No
Remedies Tried: Oh boy...if I can remember! Let's see...Celebrex, Vioxx, Oxycontin, Lyrica, Skelaxin, Cymbalta, Darvocet, Flexeril, and I'm sure there are others I've forgotten. I'm currently taking Ultram, Zanaflex, Neurontin, and I recently started taking Elavil.
Your Theories: I think there might be something to the barometric pressure theory, but I'm not sure.
Are We Missing Any Important Questions? Not that I can think of. :)

04/18/2008
Name: Aislinn
City: Dublin
State/Country: Ireland
Your Sex: female
Where Were You Born? Ireland
Where Do You Live Now? Dublin
How Long Have You Lived There? All my life
Your Age? 23
How many years has it been since you developed your symptoms of fibromyalgia? 2 years
Your Age At Onset of Symptoms? 21
What is Your Line of Work? Still working? not working
Medical History: glandular fever
Does Exercise Help? no
What Were Your First Symptoms? a large bruise on my inner knee
What Are Your Current Symptoms? pain all over, fatigue, constipation, depression, bad memory
Did You Ever Have A Long Lasting Virus? yes
Any Military Service? no
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? my life evolves around it!
What Makes Symptoms Worse? alcohol, stress
What Makes You Feel Better? holidays in warm countries
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? on and off over 2years
Was Your Rate of Decline Fast? yes. the "morning after pill"
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: accupuncture, reflexolgoy, chinese herbs, diets, homeopathy, pain killers- diphene/zydol, lyrica
Your Theories: Lyrica has been the only thing that has helped me especially with my energy
Are We Missing Any Important Questions? What has helped you the most?

04/17/2008
Name: Jon
City: La Crosse
State/Country: WI
Your Sex: Male
Where Were You Born? Warren, Michigan
Where Do You Live Now? La Crosse, WI
How Long Have You Lived There? 5 years
Your Age? 43
How many years has it been since you developed your symptoms of fibromyalgia? 18
Your Age At Onset of Symptoms? 25
What is Your Line of Work? Still working? Teacher , Yes
Medical History: None
Does Exercise Help? Feel better, but tire, musce aches.
What Were Your First Symptoms? rapid heartbeat, stomach, jaundice, panic attacks, sleep problems, chronc pain, painful naps
What Are Your Current Symptoms? Same
Did You Ever Have A Long Lasting Virus? unsure if Mono or Non-a-B Hepatitis
Any Military Service? NO
Chemical or Pesticide Exposure? solvents summers 19 and 20 years old
How Has Fibro Affected Your Life? worries, tend not to travel away as much - panic attacks
What Makes Symptoms Worse? symptoms are prevelant, don't necesssarily get much worse
What Makes You Feel Better? while excerising,
Do Your Symptoms Include Brain Fog? hard to tell. As a teacher,you're constantly talking and thinking, outside that realm, I tend to shut down.
How many years has it been since you developed the brain fog associated with fibromyalgia?
Was Your Rate of Decline Fast? Hyothyroidism - .150 micro Synthroid
Have You Tried Avoiding Dietary Fluoride? No
Remedies Tried: L-Lysine Limit Caffeine
Your Theories: I grew up between to Nuclear Power plants in Michigan. A doctor thought that might have done a number on my Thyroid.
Are We Missing Any Important Questions?

04/16/2008

Name: lorna
City: stranraer
State/Country: uk

Your Sex: female
Where Were You Born? scotland
Where Do You Live Now? germany
How Long Have You Lived There? 4 years
Your Age? 40
How many years has it been since you developed your symptoms of fibromyalgia? 13
Your Age At Onset of Symptoms? 27
What is Your Line of Work? Still working? not working
Medical History: depression,sleep disorders,varicose veins, headaches, migranes, imflamed tendons,bornchitis,stuffy nose
Does Exercise Help? no
What Were Your First Symptoms? muscle pain and extreme tiredness
What Are Your Current Symptoms? tendonitis, retrocapellar, excess tiredness, headaches, numb toe on left foot
Did You Ever Have A Long Lasting Virus? yes had helicobacter pylori
Any Military Service? no
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? trouble climbing stairs,wake up in the night with muscle pain,sleeping in the day
What Makes Symptoms Worse? sitting down to long and sleeping
What Makes You Feel Better? pain killers and moving around
Do Your Symptoms Include Brain Fog? not really
How many years has it been since you developed the brain fog associated with fibromyalgia?
Was Your Rate of Decline Fast? no
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: diclofenac, diclofenac gel, paracetamol,
Your Theories: no
Are We Missing Any Important Questions? no

04/16/2008
Name: Judith
City: Hawkesbury
State/Country: Canada
Your Sex: Female
Where Were You Born? Ontario
Where Do You Live Now? Ontario
How Long Have You Lived There? life
Your Age? 57
How many years has it been since you developed your symptoms of fibromyalgia? 8
Your Age At Onset of Symptoms? 49
What is Your Line of Work? Still working? Retail No longer working
Medical History: healthy
Does Exercise Help? yoga, very slow stretching
What Were Your First Symptoms? severe aching all over body fatique, brain fog
What Are Your Current Symptoms? pain is greatly reduced but muscles are still tight still have some fatique
Did You Ever Have A Long Lasting Virus? mono
Any Military Service? no
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? limits everything that I can do
What Makes Symptoms Worse? pain medication too much exercise too quickly
What Makes You Feel Better? Co Enzyme Q10
Do Your Symptoms Include Brain Fog? not as much as before
How many years has it been since you developed the brain fog associated with fibromyalgia? 8 years
Was Your Rate of Decline Fast? yes pain medication for a fall, tylenol 3
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: guaifenesin, pine bark extract, vitamins Co Enzyme Q10
Your Theories: I had a severe reaction to taking statins which was so like severe fibromyalgia that I didn't realize what it was Taking the Co Enzyme Co10 helped so much that I just continued taking 200 mg {good Q10 in an oil base} a day since and my fibromyalgia and brain fog are 90% gone
Are We Missing Any Important Questions? Yes How many people are on statins

04/16/2008
Name: Edith
City: Naguabo
State/Country: Puerto Rico
Your Sex: F
Where Were You Born? NYC
Where Do You Live Now? Puerto Rico
How Long Have You Lived There? 5 years
Your Age? 52
How many years has it been since you developed your symptoms of fibromyalgia? 17
Your Age At Onset of Symptoms? 35
What is Your Line of Work? Still working? Social Work Administration / NO
Medical History: Good health
Does Exercise Help? No
What Were Your First Symptoms? Pain in each joint of the body.
What Are Your Current Symptoms? Generalized pain, with added pain in neck, lower back, chest, legs. IBS. Frequent UTI-like symptoms. Brain fog. Fatigue. 24 hrs per day / 7 days per week.
Did You Ever Have A Long Lasting Virus? I have the herpes virus that produces mouth sores.
Any Military Service? No
Chemical or Pesticide Exposure? Not known
How Has Fibro Affected Your Life? YES
What Makes Symptoms Worse? Any excertion (house cleaning, more than a few hours of any type of work, etc.)
What Makes You Feel Better? Rest
Do Your Symptoms Include Brain Fog? YES
How many years has it been since you developed the brain fog associated with fibromyalgia? Hard to say, maybe 6 years or so.
Was Your Rate of Decline Fast? No. For many years, the pain was cyclical, with many months per year pain free. It became steady seven years ago.
Have You Tried Avoiding Dietary Fluoride? No
Remedies Tried: I take Lyrica, and this has been the only med that has helped. I have tried all the other pain meds. I am now taking undenatured whey, NAC, L-lysine, calcium, magnesius, malic acid, mucinex -- pain has not decreased.
Your Theories: What keeps me happy in spite of the constant pain is my faith in God.
Are We Missing Any Important Questions?

04/15/2008
Name: Julie
City: NW
State/Country: Ohio
Your Sex: female
Where Were You Born? Coldwater
Where Do You Live Now? Ohio
How Long Have You Lived There? 13 years
Your Age? 35
How many years has it been since you developed your symptoms of fibromyalgia? 1 year
Your Age At Onset of Symptoms? 34
What is Your Line of Work? Still working? clinical tech not working anymore
Medical History: ASD - heart
Does Exercise Help? no, too weak and hurts too much
What Were Your First Symptoms? overwhelming fatigue, chest wall syndrome
What Are Your Current Symptoms? overwhelming fatigue, widespread pain that changes, lack of concentration, brain fog
Did You Ever Have A Long Lasting Virus? not a long lasting one, but a really bad one at the onset
Any Military Service? none
Chemical or Pesticide Exposure? worked as a toll attendant
How Has Fibro Affected Your Life? oh yes, I am not very functional anymore
What Makes Symptoms Worse? everything
What Makes You Feel Better? Lyrica, Cymbalta, rest
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? 1 year
Was Your Rate of Decline Fast? yes,
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: Lyrica, Zoloft, Cymbalta, Neurontin, Effexor,
Your Theories: I want my life back
Are We Missing Any Important Questions?

04/15/2008
Name: candy
City: dewey
State/Country: Arizona
Your Sex: female
Where Were You Born? Connecticut
Where Do You Live Now? Arizona
How Long Have You Lived There? 36 years
Your Age? 60
How many years has it been since you developed your symptoms of fibromyalgia? over 20
Your Age At Onset of Symptoms? about 29
What is Your Line of Work? Still working? retired
Medical History: gall stones
Does Exercise Help? some, walking
What Were Your First Symptoms? acid rflux and headaches
What Are Your Current Symptoms? headaches, fatigue, insomina, fogy brain, itchy skin, bowel problems, gas, heartburn, acid reflux. blurry eyes, achy and painful joints and muscles, stiffness, weight problems bloating and it goes on
Did You Ever Have A Long Lasting Virus? yes, mono
Any Military Service? no
Chemical or Pesticide Exposure? not that I am aware of
How Has Fibro Affected Your Life? yes, had to quit my job, falling asleep, couldn't concentrate
What Makes Symptoms Worse? fatigue and food
What Makes You Feel Better? a good nights sleep, on those rare occasions
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? about 6
Was Your Rate of Decline Fast? not sure now
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: Everythng I can, alot of supplements
Your Theories: I have found that guaifensin has helped reliev the pain
Are We Missing Any Important Questions? no

04/13/2008
Name: Dana
City: dunsmuir
State/Country: ca
Your Sex: f
Where Were You Born? florence co
Where Do You Live Now? dunsmuir,ca
How Long Have You Lived There? 37 yrs
Your Age? 50
How many years has it been since you developed your symptoms of fibromyalgia? 15 +
Your Age At Onset of Symptoms? 35
What is Your Line of Work? Still working? assit manager herbal produts office/sales
Medical History: 2 children tonsils removed allergies
Does Exercise Help? i'm sure it does just hurts alot nextday
What Were Your First Symptoms? long last illnesses repetative illneess incredible fatigue pain not just in joints
What Are Your Current Symptoms? Bad brain fog unrelenting pain extreme fatigue terrible insomnia weight gain lots awful communication skills,ccan't keep thoughts,bad stomach/bowel problems
Did You Ever Have A Long Lasting Virus? yes 2wk in high school-mono
Any Military Service?
Chemical or Pesticide Exposure? metham sodium- Train wreck the stuff spilled in the river 2 blocks from my house
How Has Fibro Affected Your Life? It has totally changed it. I stay home while the world moves on. Shut out
What Makes Symptoms Worse? stress, doing to much, not watching what I eat
What Makes You Feel Better? hot baths,watsu,massage anyone who believes in you
Do Your Symptoms Include Brain Fog? yes some times I just can't remember words.
How many years has it been since you developed the brain fog associated with fibromyalgia? 7
Was Your Rate of Decline Fast? yes / no
Have You Tried Avoiding Dietary Fluoride? I eat 90% organic and don't use toothpaste wit fluoride. Don't drink green tea thats affected by water treat withit
Remedies Tried: So many herbals Docs gave me so many anti depressants,elavil,zoloft,prosax,wellbutrin a bunch more
Your Theories: Detox...eat clean foods.. let go of all the baggage,find the right combo of supplements to keep you optimal. Pray ect
Are We Missing Any Important Questions?

Archived Case Studies...
March 13 - April 12, 2008
February 21 - March 11, 2008
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January 13 - January 31, 2008
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January, 2007 - February 12, 2007
August, 2006 - January, 2007
August 22, 2006
June - August 6, 2006
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November, 2005
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