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Fibromyalgia Questionnaire & Results

Latest Update: 11/06/2009 

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43 QUESTIONNAIRE COMPLETED DATA FORMS FOR June 2008

06/30/2008
Name: Jackie
City: Ottawa
State/Country: Canada
Your Sex: Female
Where Were You Born? Ottawa
Where Do You Live Now? Ottawa
How Long Have You Lived There? 48 years
Your Age? 48
How many years has it been since you developed your symptoms of fibromyalgia? 20 some years
Your Age At Onset of Symptoms? approx. 28
What is Your Line of Work? Still working? PCB Design, yes still working
Medical History: healthy
Does Exercise Help? walking, stretching, running
What Were Your First Symptoms? migraines, IBS, dizzyness, fatigue,
What Are Your Current Symptoms? fatigue, sore muscles, no sleep, brain fog, ADD, weight gain
Did You Ever Have A Long Lasting Virus? yes
Any Military Service? no
Chemical or Pesticide Exposure? dental fillings
How Has Fibro Affected Your Life? It keeps me from doing certain things.
What Makes Symptoms Worse? Stress, diet
What Makes You Feel Better? meditate, healthy diet
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? 15 years
Was Your Rate of Decline Fast? no - sorry, memory loss is part of the problem
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: I've only tried natural remedies
Your Theories: a few people in my family have FBS, as well as MS, rheumatoid arthritis, lupus and wegeners granulomatosis...
Are We Missing Any Important Questions? Could this be genetic as well? or could the cause be related to the causes of MS, RA , lupus and Wegeners granulomatosis?

 

06/30/2008
Name: Diane
City: Ithaca
State/Country: NY
Your Sex: Female
Where Were You Born? Pittsfield, MA
Where Do You Live Now? Ithaca, NY
How Long Have You Lived There? 1 year
Your Age? 41
How many years has it been since you developed your symptoms of fibromyalgia? 8
Your Age At Onset of Symptoms? 33
What is Your Line of Work? Still working? Administrative Now-Part Time
Medical History: Good
Does Exercise Help? Not that I can tell; it is painful but I walk 1 mile/day.
What Were Your First Symptoms? Ankle pain, gave out, muscle pain & heart palpitations
What Are Your Current Symptoms? -Muscle pain -Joint pain -Temperature sensitive - Memory loss & cognitive problems - Visual changes - Shoulder & rib pain/problems - Dizzy spells - Ringing in ears - Heart palpitations - More frequent headaches - Occassional numbness in toes, fingers, thighs, arms -Pinching/zinging sensation left side of head - IBS & TMJ
Did You Ever Have A Long Lasting Virus? No
Any Military Service?
Chemical or Pesticide Exposure? I have many mercury fillings
How Has Fibro Affected Your Life? Limits activities, live with constant frustration & discomfort. Went to part time work to help stress which has helps serverity
What Makes Symptoms Worse? Stress Repetitive motions Night time Poor nights sleep
What Makes You Feel Better? Resting
Do Your Symptoms Include Brain Fog? Yes
How many years has it been since you developed the brain fog associated with fibromyalgia? 2-3
Was Your Rate of Decline Fast? Somewhat; yes, Zithromax
Have You Tried Avoiding Dietary Fluoride? Not yet
Remedies Tried: Nortriptylene at bedtime helps for any type of decent sleep. Neurontin
Your Theories: I have found so many: - Artificial sweetners - Mercury fillings - Flouride But, I suspect the Zithromax
Are We Missing Any Important Questions?

 

06/30/2008
Name: robert
City: North Huntingdon
State/Country: USA
Your Sex: male
Where Were You Born? Pennsylvania
Where Do You Live Now? Pennsylvan
How Long Have You Lived There? 18 years
Your Age? 55
How many years has it been since you developed your symptoms of fibromyalgia? 15
Your Age At Onset of Symptoms? 40
What is Your Line of Work? Still working? truck driver
Medical History: none
Does Exercise Help? yes
What Were Your First Symptoms?
What Are Your Current Symptoms? blurred vision sore muscles brain fog fatigue sore eyes
Did You Ever Have A Long Lasting Virus? no
Any Military Service? none
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? fatigue frustrating brain fog enery level forgetfullness
What Makes Symptoms Worse? rainy days sugar alcohol
What Makes You Feel Better? exercise warmer weather
Do Your Symptoms Include Brain Fog? yes definitely
How many years has it been since you developed the brain fog associated with fibromyalgia? 13
Was Your Rate of Decline Fast? yes
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: none really
Your Theories: feel like my body is starving of oxygen
Are We Missing Any Important Questions? no

 

06/29/2008
Name: Teri
City: Reseda
State/Country: CA
Your Sex: Female
Where Were You Born? Reseda
Where Do You Live Now? Reseda
How Long Have You Lived There? Most my life
Your Age? 45
How many years has it been since you developed your symptoms of fibromyalgia? 1
Your Age At Onset of Symptoms? 44
What is Your Line of Work? Still working? Administrative & Yes
Medical History: Born a thalidamide baby & only have 1 kidney from birth
Does Exercise Help? unknown
What Were Your First Symptoms? pain in feet & knees
What Are Your Current Symptoms? Pain from my feet to the back of my scull Mostly in the morning & Evening and worse when I'm stressed out.
Did You Ever Have A Long Lasting Virus? no
Any Military Service? no
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? yes
What Makes Symptoms Worse? stress & cold & unknown
What Makes You Feel Better? nothing
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? unknown
Was Your Rate of Decline Fast? yes & no
Have You Tried Avoiding Dietary Fluoride? don't know what that is.
Remedies Tried: Salsalate, Tramel, gabapentin, flexil, advil
Your Theories: 2 years ago I worked for a woman that should have been killed at birth. No anger here. If it's in my brain, then I need to tell my brain that it's wrong & to get over it.
Are We Missing Any Important Questions? not sure

 

06/27/2008
Name: Lisa
City: Rancho Mirage
State/Country: CA
Your Sex: Female
Where Were You Born? Akron, Oh
Where Do You Live Now? Rancho Mirage, Ca
How Long Have You Lived There? 3
Your Age? 44
How many years has it been since you developed your symptoms of fibromyalgia? 10 years
Your Age At Onset of Symptoms? 34
What is Your Line of Work? Still working? I was a graphic Designer. No longer working as much as that. Now teaching belly dance and yoga. Most of the time tired.
Medical History: sick as a child, asthma, scoliosis. Now seem to have this autoimmune condition where I catch viruses easily.
Does Exercise Help? Yoga and light exercises. Running exacerbates, dancing helps.
What Were Your First Symptoms? Stiff neck and upper back pain.
What Are Your Current Symptoms? Pain all over, fatigue, feel sick.
Did You Ever Have A Long Lasting Virus? yes
Any Military Service? none
Chemical or Pesticide Exposure? yes, rehabbed 2 houses and drank a lot of soy milk and ate soy. Developed a toxicity
How Has Fibro Affected Your Life? Almost no social or night life. Few friends, tired most of the time.
What Makes Symptoms Worse? Have to watch what I eat and sometimes, I just don't know...it doesn't matter what I do.
What Makes You Feel Better? light exercise, eating raw...
Do Your Symptoms Include Brain Fog? yes they did until i switched to raw food and started detoxing more
How many years has it been since you developed the brain fog associated with fibromyalgia? 4 years
Was Your Rate of Decline Fast? yes, wellbutrin.
Have You Tried Avoiding Dietary Fluoride? yes, now i do.
Remedies Tried: everything under the sun. the only thing that works for me is virastop from enzymedica and nadh and i'm on thyroid and try to eat the right foods and sleep. even that doesn't cure it all.
Your Theories: i believe my body is attacking all extra proteins, i wonder at times if it's REDD rather than fibromyalgia and then I wonder if it's related to mercury poisoning from my fillings. I don't know...I just want help.
Are We Missing Any Important Questions? I think soy is evil

 

06/25/2008
Name: Nicola
City: Gaborone
State/Country: Botswana
Your Sex: Female
Where Were You Born? South Africa
Where Do You Live Now? Botswana
How Long Have You Lived There? 8 years
Your Age? 38
How many years has it been since you developed your symptoms of fibromyalgia? +25
Your Age At Onset of Symptoms? 12
What is Your Line of Work? Still working? Artist, hardly ever work anymore
Medical History: tonsillectomy, appendectomy, 2 cesarean sections.
Does Exercise Help? for a few years Pilates helped but have stopped that too.
What Were Your First Symptoms? excessive bleeding and pain since first menstruating, including dioreaha, knee caps "popped out occasionally, taking months to get better and stayed week but that stopped as i got older. lower back pain .
What Are Your Current Symptoms? morning stiffness with continuous pain lower back, hips and between shoulders. weak ankles and wrists with occasional pain flare ups, menstrual pain and dioreah, brain fog, fatigue, regular insomnia,
Did You Ever Have A Long Lasting Virus? not sure, had regular tonsillitis as child though.
Any Military Service? no
Chemical or Pesticide Exposure? not sure, although I was given a fluoride tablet(supplement) every day as young child.
How Has Fibro Affected Your Life? It has brought my life to a virtual halt.
What Makes Symptoms Worse? exercise, standing or sitting in one position too long. lack of sleep, alcohol, traveling in a car. stress.
What Makes You Feel Better? lying down, or resting often, using supplements, occasional physio therapy helps but not always, painkillers help temporarily. the Atkins diet made me feel good. but not much helps actually
Do Your Symptoms Include Brain Fog? oh yes!
How many years has it been since you developed the brain fog associated with fibromyalgia? 10-20
Was Your Rate of Decline Fast? yes, about 8 years ago things got allot worse. no drugs(anti-depressants just prior to last child maybe? have no memory for sequence of events. my youngest child is 10, am worse since his birth)
Have You Tried Avoiding Dietary Fluoride? no,
Remedies Tried: physio therapy, chiropractor, birth control pills, hormone inhibitor for endometriosis, progesterone loop(mirena), acupuncture, massage, supplements for arthritis and vitamins, pilates, anti-depressants,
Your Theories: My mother and Aunt suffer similar symptoms and my sons to a lesser extent. worse in women? my mother and aunt have had muscles wither in the arms and hands due to some sort of compression in the neck? no clear diagnosis. eating according to Atkins was the best I ever felt, very little carbs but perhaps more to do with food combining ans supplements? pain worse during mentsruation, can there be endometrial leakage into abdomen? I feel as if my innards are glued together. my lower spine and hips are easily put out of alignment, although an adjustment can be terrible. As a small child, a curvature of spine was noticed and an unnoticed bout of polio was suggested, as the muscles on the right side of torso are weakened.
Are We Missing Any Important Questions? Smoking?

 

06/25/2008
Name: Karen
City: Topeka
State/Country: KS
Your Sex: female
Where Were You Born? omaha ne
Where Do You Live Now? topeka ks
How Long Have You Lived There? 2 yrs
Your Age? 55
How many years has it been since you developed your symptoms of fibromyalgia? 2 1/2
Your Age At Onset of Symptoms? 53
What is Your Line of Work? Still working? cashier. yes
Medical History: migraines,osteperosis,arthiritus, high blood pressure
Does Exercise Help? no
What Were Your First Symptoms? burning pain in the back
What Are Your Current Symptoms? burning pain all over
Did You Ever Have A Long Lasting Virus?
Any Military Service? no
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? on medication all the time
What Makes Symptoms Worse? cold and hard bed
What Makes You Feel Better? heat, hot baths and my medication
Do Your Symptoms Include Brain Fog? no
How many years has it been since you developed the brain fog associated with fibromyalgia?
Was Your Rate of Decline Fast? yes, no
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: lyrica, no help
Your Theories: just want the pain under control
Are We Missing Any Important Questions? you don't ask how much pain

 

06/24/2008
Name: Luella
City: Hartbeespoort
State/Country: South Africa
Your Sex: Female
Where Were You Born? Johannesburg
Where Do You Live Now? Hartbeespoort
How Long Have You Lived There? +-8yrs
Your Age? 59
How many years has it been since you developed your symptoms of fibromyalgia? 28
Your Age At Onset of Symptoms? 31
What is Your Line of Work? Still working? Artist self employed
Medical History: childhood allergies,(especially to sulpha drugs)possible bi-polar from age20
Does Exercise Help? swimming
What Were Your First Symptoms? severe headaches
What Are Your Current Symptoms? migrains, back,neck and shoulder pain,joint pain,(C5/6 degeneration)IBS, tinnitus,freq.urinary tract,infections,sleep dist.RLS,hairloss.sinisitus.
Did You Ever Have A Long Lasting Virus? yes,1988
Any Military Service? no
Chemical or Pesticide Exposure? not known
How Has Fibro Affected Your Life? loss of quality of life
What Makes Symptoms Worse? stress, sugar, alchohol
What Makes You Feel Better? swimming.humor
Do Your Symptoms Include Brain Fog? sometimes
How many years has it been since you developed the brain fog associated with fibromyalgia? 10/15yrs
Was Your Rate of Decline Fast? no
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: prozac,trepiline,Melatonin,N, AI,imigrain
Your Theories: seems to run in the family, myself, sister and my daughter have similar symptoms
Are We Missing Any Important Questions? hereditory factors?

 

06/22/2008
Name: Carly
City: Black Mountain
State/Country: NC
Your Sex: Female
Where Were You Born? Canada
Where Do You Live Now? Black Mountain
How Long Have You Lived There? 5 years
Your Age? 23
How many years has it been since you developed your symptoms of fibromyalgia? 3
Your Age At Onset of Symptoms? 20
What is Your Line of Work? Still working? Bookstore Manager. Yes.
Medical History:
Does Exercise Help? Sometimes, Walking and stretching
What Were Your First Symptoms? Constant pain in shoulders and neck, IBS, Fatigue, Severe Depression.
What Are Your Current Symptoms? Neck and shoulder pain, migraines, IBS, Fatigue, Restless Sleep, Depression, Joint problems, Brain fogginess.
Did You Ever Have A Long Lasting Virus? no
Any Military Service? no
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? I am constantly tired, and constantly in pain...makes me feel very antisocial, as all I can think about is sleep. I try not to let it affect my life too much.
What Makes Symptoms Worse? Lack of sleep and stress.
What Makes You Feel Better? Muscle relaxants, and the chiropractor, as well as ice.
Do Your Symptoms Include Brain Fog? YES
How many years has it been since you developed the brain fog associated with fibromyalgia? 1
Was Your Rate of Decline Fast? No
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: Lyrica, Cymbalta, Muscle relaxants, narcotics even.
Your Theories:
Are We Missing Any Important Questions?

 

06/22/2008
Name: Christine
City: La Habra
State/Country: Ca
Your Sex: female
Where Were You Born? Los Angeles
Where Do You Live Now? La Habra
How Long Have You Lived There? 30 years
Your Age? 56
How many years has it been since you developed your symptoms of fibromyalgia? 56
Your Age At Onset of Symptoms? 50
What is Your Line of Work? Still working? Consultant Yes, part time
Medical History: Migraines, multiple orthopedic surgeries
Does Exercise Help? Water Paddling around my pool
What Were Your First Symptoms? Chronic muscle pain
What Are Your Current Symptoms? Same
Did You Ever Have A Long Lasting Virus? No
Any Military Service? None
Chemical or Pesticide Exposure? No
How Has Fibro Affected Your Life? Yes
What Makes Symptoms Worse? Extreme heat,cold, stressful situations
What Makes You Feel Better? Massage, water, hot tub
Do Your Symptoms Include Brain Fog? Yes
How many years has it been since you developed the brain fog associated with fibromyalgia? 6
Was Your Rate of Decline Fast? Yes, sudden death of my husband
Have You Tried Avoiding Dietary Fluoride? No
Remedies Tried: Lyrica, muscle relaxants
Your Theories: I cannot see a time when I will not be in pain
Are We Missing Any Important Questions? NO

 

06/21/2008
Name: Jennifer
City: Taylorsville
State/Country: KY
Your Sex: Female
Where Were You Born? Louisville
Where Do You Live Now? Taylorsville
How Long Have You Lived There? 15 years
Your Age? 42
How many years has it been since you developed your symptoms of fibromyalgia? 10
Your Age At Onset of Symptoms? 32
What is Your Line of Work? Still working? No longer working pain is too intense
Medical History: Hypothyroidism, MVP
Does Exercise Help? NO
What Were Your First Symptoms? pain in arms and chest
What Are Your Current Symptoms? widespread pain throughout my body
Did You Ever Have A Long Lasting Virus? not that I remember
Any Military Service? no
Chemical or Pesticide Exposure? Yes
How Has Fibro Affected Your Life? It has completely changed my life I no longer enjoy it
What Makes Symptoms Worse? not one thing in particular
What Makes You Feel Better? nothing I have found yet
Do Your Symptoms Include Brain Fog? Yes badly
How many years has it been since you developed the brain fog associated with fibromyalgia? thinking back around 8 or 9 years ago
Was Your Rate of Decline Fast? yes very quickly antibiotics as I had had a cold
Have You Tried Avoiding Dietary Fluoride? I am not even sure what that is
Remedies Tried: Magnesium, Coq10,darvocet,percocet, tylenol,vitamin cocktails,etc
Your Theories: Just want some relief or suggestions that work
Are We Missing Any Important Questions? does anyone else in your family have this

 

06/20/2008
Name: Wendy
City: Rosamond
State/Country: California
Your Sex: female
Where Were You Born? California
Where Do You Live Now? california
How Long Have You Lived There? 6 years
Your Age? 41
How many years has it been since you developed your symptoms of fibromyalgia? 2 years
Your Age At Onset of Symptoms? 39
What is Your Line of Work? Still working? I was going to college to become a teacher. Right now I am unable to do anything
Medical History: pretty healthy. I had gastric bypass. I have an issue with B12 deficiency. I have also been diagnosed with Lupus.
Does Exercise Help? I have gone to Curves and it really has not helped. I try to go for walks but can't go far.
What Were Your First Symptoms? my right hand was in pain any time I tried to do anything with such as something simple as put on makeup.
What Are Your Current Symptoms? all over pain, especially in my hands. Sleep patterns all whacked out. I am tired and unable to finish things I start
Did You Ever Have A Long Lasting Virus? no
Any Military Service? no. My husband recently retired from the military after 24 years of service.
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? I had to withdrawal from my teaching credential classes two quarters in a row. I am also unable to work at this time
What Makes Symptoms Worse? first thing in the morning or anytime I wake up from a nap.
What Makes You Feel Better? Sometimes the pain pill Norco or sometimes I just need to wait it out.
Do Your Symptoms Include Brain Fog? very rarely
How many years has it been since you developed the brain fog associated with fibromyalgia? one year
Was Your Rate of Decline Fast? yes but I do not recall any medicines or specific drugs other than anti depressants that I was taking,
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: Norco, lyrica,hydroxychloriquine
Your Theories: My emotional well being has taken a toll. I spent four years getting a degree to become a teacher that I am unable now to fulfill because of the pain and fatigue. I have always been very active and now spend most of my time around the house. It is very frustrating
Are We Missing Any Important Questions?

 

06/20/2008
Name: Vicki
City: Byron Ctr
State/Country: USA
Your Sex: f
Where Were You Born? michigan
Where Do You Live Now? same
How Long Have You Lived There? 42
Your Age? 46
How many years has it been since you developed your symptoms of fibromyalgia? 1.3
Your Age At Onset of Symptoms? 45
What is Your Line of Work? Still working? none
Medical History: female problems
Does Exercise Help? not able, dr says wait
What Were Your First Symptoms? left shoulder pain
What Are Your Current Symptoms? pain, in both shoulders, hips, neck, back, chest, elbows, knee, arm, sleep probs, ibs, headaches, inflammations, fatigue, shortness of breath
Did You Ever Have A Long Lasting Virus? 1977, mono
Any Military Service? none
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? can't play tennis, ride bike, play with kids, pick kids up or hold them. can't pick up milk jug, have to watch how i move and how quiuckly i move, ppl can't hug me or embrace me warmly anymore, i can't take a whole flight of stairs at once, have to be very careful when dressing/undressing
What Makes Symptoms Worse? movement
What Makes You Feel Better? it doesn't hurt when i sleep, laying down
Do Your Symptoms Include Brain Fog? not that i know of, although once, i forgot this guy's name--and i talk to him all the time! embarrassing
How many years has it been since you developed the brain fog associated with fibromyalgia? not sure
Was Your Rate of Decline Fast? no, it was more progressive over the past yr, no drugs taken
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: vitamin supplements, dietary changes, avoid night shades, dairy products, eat mostly meat, fruits and veggies. i try to keep a positive attitude and surround myself with upbeat ppl too. I see humor in things frequently and stop to smell the roses as often as i can.
Your Theories:
Are We Missing Any Important Questions?

 

06/19/2008
Name: Angel
City: Phoenix
State/Country: Arizona
Your Sex: Female
Where Were You Born? July 23, 1991
Where Do You Live Now? Phoenix
How Long Have You Lived There? All my life
Your Age? 16
How many years has it been since you developed your symptoms of fibromyalgia? Probably about 6-7
Your Age At Onset of Symptoms? About 9
What is Your Line of Work? Still working? None
Medical History: Asthma
Does Exercise Help? I have done stretches on a daily basis while on the badminton team at school but it didnt seem to help.
What Were Your First Symptoms? Prolonged muscle aches after simple playground games such as tag or games involving running.
What Are Your Current Symptoms? Pain in nearly every muscle in my body. I get migraines on and off during the year. I have muscles cramps and aches in my jaw, neck, shoulders, back, spine, lower back, calves, ankles, feet, hands, fingers, and wrists. And these are typically all at the same time. I often experience what is known as fibro fog as well as a trouble getting to sleep or even staying awake no matter how much sleep I do manage to get. I often find myself falling asleep in class at school.
Did You Ever Have A Long Lasting Virus? Probably no more than the typcal virus, not that I can remember
Any Military Service? None
Chemical or Pesticide Exposure? Nope
How Has Fibro Affected Your Life? Fibro has drastically affected my life. I can't do sports aside from badminton and even that was very difficult for me. At the beginning of the season I was the 7th best person the the team putting me in the #1 spot on Junior Varsity. As the season progressed my ability to perform greatly decreased. By the end of the season I was the last person on the team out of 14-15 other girls. Even my coach realized how much Fibro was affecting my game. It was very difficult for me to hand emotionally. I loved playing but it was so painful to do it and dropping so far down on the team really hurt my already damaged self esteem. I hated that, because of my disability, that I was unable to do something I enjoyed. Not only does it affect me in sports but I even have a lot of problems in school. In one semester, I managed to either miss or was late to my first hour class 20+ times. Luckily I had an IEP or I would have lost credit for my class. I also find myself missing days of school because I am so physically drained/exhuasted/or sore. The amount of days you are allowed to miss a class is 12-13. If I hadn't had a doctors note explaining that I had Fibro, I would have lost credits. I even went through a few months of debating on whether or not I should get my GED because school was so physically and emotionally tiring because of my Fibro. I can't go for walks with my friends, I can't hang out at the mall or go places with my friends because my knees and legs get so sore after a short amount of time. I can only walk around for about 20-30 minutes before my legs start getting sore. Standing in place is even worse. I can barely stand still for more than 4-5 minutes without my leg muscles cramping up.
What Makes Symptoms Worse? Symptoms get worse if I lay in bed for too long.
What Makes You Feel Better? The only thing I've found to make me feel better so far is Ultram/Tramadol or, in the past, i have taken Vicodin, Soma, or Norco. Neurontin and Lyrica helped for a while but they both wore off after a few months and were no longer effective.
Do Your Symptoms Include Brain Fog? Yes.
How many years has it been since you developed the brain fog associated with fibromyalgia? I wouldn't be able to say. I never even knew what it was until recently. My mom and I both have Fibro on top of being ADD/ADHD and had spells of fibrofog but we just associated it with being tired or hyper or just something that everyone did. So, I am not sure when I first started experiencing it.
Was Your Rate of Decline Fast? No.
Have You Tried Avoiding Dietary Fluoride? No.
Remedies Tried: Neurontin, Lyrica, Robaxin, Ultram, Vicodin, Norco, Soma, Flexeril and a few others that I can't remember.
Your Theories: Nope
Are We Missing Any Important Questions? Not that I can think of.

 

06/18/2008
Name: Kerry
City: York
State/Country: UK
Your Sex: F
Where Were You Born? UK
Where Do You Live Now? UK
How Long Have You Lived There? 43
Your Age? 43
How many years has it been since you developed your symptoms of fibromyalgia? 3
Your Age At Onset of Symptoms? 40
What is Your Line of Work? Still working? part time office
Medical History: Asthma,many throat infections, lumpectomy, neck injury age 29, childhood allergies nervous exhaustion/depression
Does Exercise Help? no
What Were Your First Symptoms? depression/suicide attempt, sore and swollen feet/hands
What Are Your Current Symptoms? Sore feet/hands, and all over pain. Tiredness, lack of good sleep. Jerks in day and at night. Gastropesis. Blurred vision. confussion/fog. buckling when walking. Dry eye/ mouth, pain in eyes, mucus, sinus, hallucinations at night
Did You Ever Have A Long Lasting Virus? yes
Any Military Service? no
Chemical or Pesticide Exposure? lived near sprayed fields for years.
How Has Fibro Affected Your Life? yes dramatically
What Makes Symptoms Worse? stress
What Makes You Feel Better? relaxing
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? 3
Was Your Rate of Decline Fast? yes/anti emetic injection for vomiting
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: Anti inflamatories, morphine(works well) Codiene phosphate (limited value) Omeprazole, gaviscon, nortriptaline
Your Theories: Started when i had been under severe emotional, mental and physical stress for a long period
Are We Missing Any Important Questions? Ever been under a lot of stress over a long period

 

06/17/2008
Name: Alberta
City: Detroit
State/Country: US
Your Sex: female
Where Were You Born? Detroit
Where Do You Live Now? Detroit
How Long Have You Lived There? 58 yrs
Your Age? 58
How many years has it been since you developed your symptoms of fibromyalgia? 16 yrs
Your Age At Onset of Symptoms? 42
What is Your Line of Work? Still working? Clerical.No
Medical History: to personal
Does Exercise Help? I don't exercise. To much pain
What Were Your First Symptoms? Elbow
What Are Your Current Symptoms? Chest,shoulder,neck,diaherrea,stomach cramps,hips,fingers stiffness,pain,and swelling. Swollen hip.Depression,forgettness.I have a burning sensatiion in my shoulders and neck.
Did You Ever Have A Long Lasting Virus? No
Any Military Service? None
Chemical or Pesticide Exposure? No
How Has Fibro Affected Your Life? Can't plan anything. I get overwhelmed thinking about going anywhere
What Makes Symptoms Worse? Washing my hair bothers my shoulders and neck
What Makes You Feel Better? Sometimes tylenol helps if I go straight to bed.
Do Your Symptoms Include Brain Fog? No
How many years has it been since you developed the brain fog associated with fibromyalgia? NA
Was Your Rate of Decline Fast? No
Have You Tried Avoiding Dietary Fluoride? No
Remedies Tried: cymbalta
Your Theories: No
Are We Missing Any Important Questions? No

 

06/16/2008
Name: Phyllis
City: Philadelphia
State/Country: PA
Your Sex: female
Where Were You Born? USA
Where Do You Live Now? USA
How Long Have You Lived There? 58 yrs
Your Age? 58
How many years has it been since you developed your symptoms of fibromyalgia? 8
Your Age At Onset of Symptoms? 50
What is Your Line of Work? Still working? legal asst. not working
Medical History:
Does Exercise Help? can't tolerate exercise
What Were Your First Symptoms? muscle and joint pain, fatigue
What Are Your Current Symptoms? brain fog, muscle, joint pain, debilitating fatigue
Did You Ever Have A Long Lasting Virus? epstein barr
Any Military Service? none
Chemical or Pesticide Exposure? not that I'm aware of
How Has Fibro Affected Your Life? it has devastated my life; I'm not the same person my whole personality has changed
What Makes Symptoms Worse? lots of activity
What Makes You Feel Better? rest and more rest
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? 5
Was Your Rate of Decline Fast? so many things were happening at the same time I don't recall
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: lyrica, plaquenil, aspirin, ibuprophen,
Your Theories:
Are We Missing Any Important Questions?

 

06/16/2008
Name: Becky
City: Mechanicstown
State/Country: Ohio
Your Sex: female
Where Were You Born? Ohio
Where Do You Live Now? Ohio
How Long Have You Lived There? 47 years
Your Age? 47 years
How many years has it been since you developed your symptoms of fibromyalgia? 12 maybe more?
Your Age At Onset of Symptoms? 35 or around
What is Your Line of Work? Still working? medical office yes, still working
Medical History: basically good
Does Exercise Help? ?
What Were Your First Symptoms? muscle/joint pain/stiffness
What Are Your Current Symptoms? chronic fatigue, muscle pain, brain fog, memory problems, joint pain/stiffness, neck pain/stiffness, itchy/pin-prick sensations of skin
Did You Ever Have A Long Lasting Virus? EBV
Any Military Service? none
Chemical or Pesticide Exposure? ? high manganese in our water, grew up on well water
How Has Fibro Affected Your Life? yes, sometimes worse than others
What Makes Symptoms Worse? not sure
What Makes You Feel Better? high doses of antioxidants and USANA protocol for arthritis and fibro
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? 10 or so I would guess
Was Your Rate of Decline Fast? seemed to come on somewhat gradual, but not knowing what was happening it was easy to atribute it to life
Have You Tried Avoiding Dietary Fluoride? don't do fluoride
Remedies Tried: celebrex, all sorts of depression/anxiety meds, OTC pain meds, massotherapy, chiropractic care, the best thing to date is the USANA supplements along with 3 omegas with tumeric and lots of rest
Your Theories: I also have a high RA factor but not the classic sxs of rheumatoid arthritis?
Are We Missing Any Important Questions? yes, I do not like to take chemical medications, or want to be on medications to make my life tolerable at times.

 

06/15/2008
Name: katrina
City: wolverhapton
State/Country: west midlands uk
Your Sex: fem
Where Were You Born? wolverhampton
Where Do You Live Now? wolverhampton
How Long Have You Lived There? 44 yrs
Your Age? 44 yrs
How many years has it been since you developed your symptoms of fibromyalgia? 2 and a half
Your Age At Onset of Symptoms? 42
What is Your Line of Work? Still working? education
Medical History: aches and pains, feet prolems fibroids in the uterous/gastric reflux
Does Exercise Help? yes cross runner am 10 minutes daily
What Were Your First Symptoms? joint pain fatigue
What Are Your Current Symptoms? joint pain fatigue restless legs gastric reflux bladder irritation irritable bowel weight gain depression sore eyes dryness in mouth hay fever perforated ear drum
Did You Ever Have A Long Lasting Virus? no
Any Military Service? no
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? yes
What Makes Symptoms Worse? work and over doing things
What Makes You Feel Better? complete quiet, no demands and no stress being alone
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? always suffered with fatigue but not as bad as now
Was Your Rate of Decline Fast? fatigued ad then suddenly in lots of pain yes
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: citalopram solpadol ibuprofen arcoxia etoibcoxic
Your Theories: i moved house three years ago could tis be to do with wher i live
Are We Missing Any Important Questions? have you moved house? did you experience a period of severe stress just before onset? my answers to these questions would be yes yes

 

06/14/2008
Name: Fran
City: Gold Coast
State/Country: Australia
Your Sex: Female
Where Were You Born? Victoria, Australia
Where Do You Live Now? Gold Coast, Australia
How Long Have You Lived There? 16 years
Your Age? 40
How many years has it been since you developed your symptoms of fibromyalgia? 1
Your Age At Onset of Symptoms? 39
What is Your Line of Work? Still working? Admin Officer. Working part time
Medical History: Depression; Anxiety; Early Menopause
Does Exercise Help? Walking helps ease stiffness
What Were Your First Symptoms? Severe pain in shoulder and down arm, later told it was brachialgia (pain in brachial nerve)
What Are Your Current Symptoms? Fatigue, Muscle stiffness especially in the morning, confusion, mixing up words, nerve pain in wrist and shoulder
Did You Ever Have A Long Lasting Virus? Had two bad doses of influenza concurrently prior to getting fibromyalgia
Any Military Service? No
Chemical or Pesticide Exposure? No
How Has Fibro Affected Your Life? Ability to work, spend time with family and friends, pain makes me agitated and frustrated, hate the uncertainty of not knowing when or how it will flare up
What Makes Symptoms Worse? Stress; cold weather;
What Makes You Feel Better? Warmth - hot water bottles, electric blanket for bed, hot shower, compression in areas where nerve pain is severe eg sling for shoulder and wrist support for wrist pain
Do Your Symptoms Include Brain Fog? Definately. Feel like I have alsheimers some days! Mix up words, can't remember what i said or did 10 seconds ago; misplace things; forget appointments
How many years has it been since you developed the brain fog associated with fibromyalgia? 1
Was Your Rate of Decline Fast? Sort of. After 2 bouts of influenza just felt like i never recovered; then over time just got worse except no sneezing or runny nose etc. Took antibiotics and usually panadeine for pain relief.
Have You Tried Avoiding Dietary Fluoride? Not necessary - our water here is not flouridated.
Remedies Tried: Heat for aches and pains; For severe pain I take Tramadol 200mg and this usually works within 30 minutes. I am currently taking Lyrica three times a day and have just recently begun taking Modavigil for fatigue (a medication normally prescribed for narcolepsy) - this helps alot without any side effects, except is very expensive, $135 for 30 tablets and I need 2 a day to function at work
Your Theories: I believe being run down and stressed played a big part in me getting this disease. Also notice when I am stressed it flares things back up again.
Are We Missing Any Important Questions? What coping mechanisms do you use to deal with having a debilitating, painful and chronic illness?

 

06/12/2008
Name: Adele
City: Melbourne
State/Country: Australia
Your Sex: Femail
Where Were You Born? Austria
Where Do You Live Now? Victoria, Australia
How Long Have You Lived There? 54 years
Your Age? 56 years
How many years has it been since you developed your symptoms of fibromyalgia? 5 years
Your Age At Onset of Symptoms? 51 approx.
What is Your Line of Work? Still working? Real Estate - admin.
Medical History: Lung Cancer diagnosed 2000. 2 operations within 1 week. Large Colon removed Dec. 2002
Does Exercise Help? Walking
What Were Your First Symptoms? Pain
What Are Your Current Symptoms? Pain
Did You Ever Have A Long Lasting Virus? Yes,
Any Military Service? No
Chemical or Pesticide Exposure? No
How Has Fibro Affected Your Life? Yes
What Makes Symptoms Worse? When feeling run-down and fatigued - perhaps the fibromylgia are causing the symtoms
What Makes You Feel Better? Not much
Do Your Symptoms Include Brain Fog? Yes
How many years has it been since you developed the brain fog associated with fibromyalgia? ?
Was Your Rate of Decline Fast? No
Have You Tried Avoiding Dietary Fluoride? No
Remedies Tried: Cortisone - tablets and injections
Your Theories:
Are We Missing Any Important Questions?

 

06/11/2008
Name: kae
City: claremont
State/Country: ca
Your Sex: female
Where Were You Born? Madison, WI
Where Do You Live Now? Claremont, CA
How Long Have You Lived There? 52
Your Age? 63
How many years has it been since you developed your symptoms of fibromyalgia? 12
Your Age At Onset of Symptoms? 51
What is Your Line of Work? Still working? Family Court Mediator - Retired
Medical History: 0
Does Exercise Help? yes - walkingyoga
What Were Your First Symptoms? muscle pain, chronic fatigue sleeplessness, headache, IBS
What Are Your Current Symptoms? muscle pain, IBS, chronic fatigue, insomnia, headaches, sensitivities to light, sound
Did You Ever Have A Long Lasting Virus? no
Any Military Service? no
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? had to retire from work; limits some activities
What Makes Symptoms Worse? stress, bad diet, no exercise
What Makes You Feel Better? exercise, good diet, yoga, massage, chiropractor treatments, managing stress
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? 10
Was Your Rate of Decline Fast? Had good health and the symptoms all developed within about 3 months.
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: lomotil for IBS chinese herbs accupuncture, massage, chiropractor, walking, good diet
Your Theories: Extreme emotional and life situations over time brought about the symptoms and disability
Are We Missing Any Important Questions?

 

06/11/2008
Name: Kathy
City: Birmingham
State/Country: AL
Your Sex: female
Where Were You Born? Birmingham
Where Do You Live Now? Birmingham
How Long Have You Lived There? 4 years
Your Age? 47
How many years has it been since you developed your symptoms of fibromyalgia? 4 years
Your Age At Onset of Symptoms? 43
What is Your Line of Work? Still working? office/no longer able to work
Medical History: very little problems, viruses & colds
Does Exercise Help? no
What Were Your First Symptoms? extreme muscle aches & very fast onset of extreme fatique
What Are Your Current Symptoms? muscular & bone pain/lack of energy/waking up tired
Did You Ever Have A Long Lasting Virus? not more than 2 weeks
Any Military Service? none
Chemical or Pesticide Exposure? not aware of any
How Has Fibro Affected Your Life? extremely difficult to function on a normal basis. daily tasks around house is difficult or impossible on many days, even with pain meds sometimes.
What Makes Symptoms Worse? unsure
What Makes You Feel Better? I have been able to accomplish some tasks with pain medication, but without I cannot do much of anything.
Do Your Symptoms Include Brain Fog? mental focus is a problem about 5o% of the time.
How many years has it been since you developed the brain fog associated with fibromyalgia? It may have been working on me from time to time over the last several years or even before.
Was Your Rate of Decline Fast? Yes, it seemed to occur without warning. I thought I had a touch of arthitis over the last 20 yrs, but realized it was fibro. Since my diagnosis, it has worsened rapidly.
Have You Tried Avoiding Dietary Fluoride? No. I am unaware of any.
Remedies Tried: Taking many vitamin suppliments daily.
Your Theories: I wish I could feel normal & accomplish my goals. I regret that I have never been a "health nut" & maybe I would not be as in bad a shape if I had eaten better over the course of my life & excersised more regularly.
Are We Missing Any Important Questions? What caused me to get in this condition & its quick progression.

 

06/10/2008
Name: francine
City: hadley
State/Country: ma
Your Sex: female
Where Were You Born? spfld. ma
Where Do You Live Now? hadley ma
How Long Have You Lived There? 20years
Your Age? 42
How many years has it been since you developed your symptoms of fibromyalgia? 10
Your Age At Onset of Symptoms? 32
What is Your Line of Work? Still working? nursing still working part time
Medical History:
Does Exercise Help? yes walkind swimming cardio
What Were Your First Symptoms? neck upper back pain
What Are Your Current Symptoms? wide spread muscle pain ibs fatigue
Did You Ever Have A Long Lasting Virus? yes
Any Military Service? no
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? can make daily activities feel like major issues
What Makes Symptoms Worse? stress lack of proper sleep physically involved activities witch i am used to doing
What Makes You Feel Better? varies sometimes just the passing of flare up with nothing specific
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? a few years?
Was Your Rate of Decline Fast? no
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: prozac chiropratic accupunture talk therapy
Your Theories:
Are We Missing Any Important Questions?

 

06/10/2008
Name: Jo R.I.
City: Rio RAncho,
State/Country: New Mexico USA
Your Sex: female
Where Were You Born? LLano, New Mexico
Where Do You Live Now? Rio Rancho, NM
How Long Have You Lived There? six years
Your Age? 74
How many years has it been since you developed your symptoms of fibromyalgia? six years
Your Age At Onset of Symptoms? 66 there abouts
What is Your Line of Work? Still working? writer and work at computer
Medical History: eye surgery ear surgery normal medical problems associated with aging
Does Exercise Help? Gardening
What Were Your First Symptoms? pain in different parts of my body and unable to walk for long
What Are Your Current Symptoms? Same as above
Did You Ever Have A Long Lasting Virus? No
Any Military Service? none
Chemical or Pesticide Exposure? No
How Has Fibro Affected Your Life? alway in fear of going anywhere because I can't sit or walk for too long
What Makes Symptoms Worse? going to the store
What Makes You Feel Better? standing and/or sitting
Do Your Symptoms Include Brain Fog? No
How many years has it been since you developed the brain fog associated with fibromyalgia? No
Was Your Rate of Decline Fast? No, it was gradual
Have You Tried Avoiding Dietary Fluoride? Don't know what that is
Remedies Tried: flexeril
Your Theories: It's difficult going places anymore and prefer to stay home. I
Are We Missing Any Important Questions? I don't know.

 

06/09/2008
Name: Tracie
City: Hervey Bay
State/Country: Qld AU
Your Sex: female
Where Were You Born? uk
Where Do You Live Now? qld australia
How Long Have You Lived There? Australia since 1991 qld since 1999
Your Age? 35
How many years has it been since you developed your symptoms of fibromyalgia? 8
Your Age At Onset of Symptoms? 27
What is Your Line of Work? Still working? mum of 4 kids
Medical History: sinus allergies
Does Exercise Help? only if I dont push myself
What Were Your First Symptoms? I was a cyclist and one day got out on my bike after 20 mins I could no longer push on the pedals. After a year of tests and biopsies I was diagnosed.
What Are Your Current Symptoms? At the moment I am not good with lots of pain in my arms shoulders and neck, headaces,fatigue, insomnia and terrible brain freeze.
Did You Ever Have A Long Lasting Virus? not previous to fibro but since yes if I get a flu, chest infection etc it takes along time to get over.
Any Military Service? none
Chemical or Pesticide Exposure? none that I know
How Has Fibro Affected Your Life? Im limited to how long I can do any one task, even sitting still for to long. Time managment is a must, writing lists and remembering where they are is a must to get anything done.
What Makes Symptoms Worse? overdoing things, which on a good day maybe over exercising on a bad day hanging out the washing.
What Makes You Feel Better? I take magnesium which helps with muscle spasms, and codiene helps headaches but i try to limit the codiene.
Do Your Symptoms Include Brain Fog? yes, definatley, I say words that have no place in a sentance, forget what im saying mid sentance. post its of lists I have them everywhere.
How many years has it been since you developed the brain fog associated with fibromyalgia? I had it bad when I first got sick then it didnt seem to bad but the last 3-4 years its been very prevalant.
Was Your Rate of Decline Fast? yes I did, I was given indocin, codiene, cortisone, antimalaria tablets just to name a few.
Have You Tried Avoiding Dietary Fluoride? flouride is not in our water, but I do also only drink filtered water.
Remedies Tried: Ive tried hydrotheropy, the medications I mentioned before, exercise, massage.
Your Theories: sleep-I have been a bad sleeper for 17 years, I never wake feeling rested and dont believe my body has the chance to restore & repair itself. I have tried medications to help in sleep (antidepressants at low dosages) but didnt get any benefit from an induced sleep.
Are We Missing Any Important Questions? How much sleep do you get? and is it in short bursts or in one lot? ie: Im in bed for 7-8 hours a night I sleep for maybe 20mins then wake for 30.

 

06/08/2008
Name: ronnie
City: caloundra
State/Country: queensland australia
Your Sex: female
Where Were You Born? echuca
Where Do You Live Now? caloundra
How Long Have You Lived There? twenty years
Your Age? 57
How many years has it been since you developed your symptoms of fibromyalgia? 8
Your Age At Onset of Symptoms? 49
What is Your Line of Work? Still working? home duties
Medical History:
Does Exercise Help? no
What Were Your First Symptoms? head aches
What Are Your Current Symptoms? aches and pains all over pains in eyes dizziness shortness of breath heart racing nausea ring in ears blurred vision pins and needles in hands and feet and calf muscles
Did You Ever Have A Long Lasting Virus? yes
Any Military Service?
Chemical or Pesticide Exposure? not known
How Has Fibro Affected Your Life? in every way no quality of life
What Makes Symptoms Worse? stress
What Makes You Feel Better? nothing in particular just have good days and bad days
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? about 3
Was Your Rate of Decline Fast? yes no
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: pain killers paracetamol nurofen and am on lexapro
Your Theories: no
Are We Missing Any Important Questions? dont know

 

06/08/2008
Name: donna
City: birmingham
State/Country: england
Your Sex: female
Where Were You Born? birmingham
Where Do You Live Now? birmingham
How Long Have You Lived There? 36 yrs
Your Age? 36
How many years has it been since you developed your symptoms of fibromyalgia? 12 yrs
Your Age At Onset of Symptoms? 24yrs
What is Your Line of Work? Still working? not working
Medical History: nothing
Does Exercise Help? no
What Were Your First Symptoms? neck spasms, fatigue
What Are Your Current Symptoms? widespread pain, muscle spasms, headaches, irritable bowl, memory loss, confusion, shakes,
Did You Ever Have A Long Lasting Virus? only middle ear infection ??
Any Military Service? no
Chemical or Pesticide Exposure? worked in press shop pressing metals
How Has Fibro Affected Your Life? limited my activity and slowed me down, lost me friends and my social life
What Makes Symptoms Worse? stress, excercise, a fall, cold n flu, period,cold weather
What Makes You Feel Better? sun, laughing
Do Your Symptoms Include Brain Fog? definately
How many years has it been since you developed the brain fog associated with fibromyalgia? approx 9yrs
Was Your Rate of Decline Fast? no mine was slowly progressive
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: all pain killers and all anti inflammatories. nortriptyline for restfull sleep, ibuprofen gel, only morphine helps
Your Theories: its about limiting your activities day to day and know that if u overdo it one day u will suffer for 3+ days
Are We Missing Any Important Questions? yes..have u ever heard of anyone being cured or getting completely well? i havent btw

 

06/08/2008
Name: Chrissy
City: Rices Landing
State/Country: Pennsylvania
Your Sex: Female
Where Were You Born? Washington, PA
Where Do You Live Now? Rices Landing, PA
How Long Have You Lived There? 10 years
Your Age? 32
How many years has it been since you developed your symptoms of fibromyalgia? 2
Your Age At Onset of Symptoms? 30
What is Your Line of Work? Still working? Administrative, Yes
Medical History: Mitral Valve Prolapse, Gerd, Endometriosis, Sinusitis, IBS, Depression, Bulging disc C3-C4, mild scoliosis, uneven hip alignment (one leg 1-1/2 inch longer than the other), stage 1 Osteoporosis, Inter-Scapula tendinitis, Bicep-tendinitis.
Does Exercise Help? Yes temporarily. Band arm stretches, body ball workout, bridges, light weights
What Were Your First Symptoms? Inability to turn head.
What Are Your Current Symptoms? Muscle spasms, pain in and around all pressure points, ache all over, burning in muscles, muscle knots, swelling of hands and feet, tired, restless, anxious, body never fully relaxed. Sometimes extremely sensitive to loud sounds,heat,cold, and touch.
Did You Ever Have A Long Lasting Virus? Had Appendix removed at age 9; the poison was never removed by physician and the wound reopened three times.
Any Military Service? No.
Chemical or Pesticide Exposure? Second Generation Dioxin from overseas.
How Has Fibro Affected Your Life? Frequent trips to doctor, missed work days, inability to think clearly, cannot lift heavy objects, cannot do anything too strenuous.
What Makes Symptoms Worse? Doing too much housework (seriously), trying to do heavier hand weights, not taking magnesium/calcium, humidity, and cold weather.
What Makes You Feel Better? Stretching, hydrocodone is the only pain medication that almost takes away the pain, although I take over the counter drugs when out of Hydrocodone, but it does not help as much. I did get many steroid shots that really helped long-term.
Do Your Symptoms Include Brain Fog? Yes unfortunately.If I am having a very bad pain day, I will say something and I will have no clue what I just said, or I will know what I want to say but can't get it out, and I will forget basic information. Quit a few times I couldn't figure out how to turn off or on my turn signal, or windshield wipers on a car I have had for years, and I don't drive any other vehicle.
How many years has it been since you developed the brain fog associated with fibromyalgia? 6 months.
Was Your Rate of Decline Fast? No.
Have You Tried Avoiding Dietary Fluoride? I don't use fluoride toothpaste anymore.
Remedies Tried: Lyrica, Cymbalta, Feldene, Ibuprofen 800, Fexmid, Flexeril, Neurotin, Hydrocodone, Darvocet, Calcium, Magnesium, Valerian, B-6 & 12, Feverfew, and various other herbs.
Your Theories: I think there is a pain switch that we all have in our body that sits dormant until it is triggered. Once triggered it does not shut off. The pain puts me in a constant "fight or flight" mode. I am never relaxed or pain free. Sometimes I feel like I will crawl right out of my skin.
Are We Missing Any Important Questions? Family medical history. Both of my sisters have Fibro.

 

06/08/2008
Name: Jean
City: Vancouver
State/Country: WA
Your Sex: Female
Where Were You Born? Tacoma, WA
Where Do You Live Now? Vancouver, WA
How Long Have You Lived There? 13 years
Your Age? 61
How many years has it been since you developed your symptoms of fibromyalgia? 1.5
Your Age At Onset of Symptoms? 60
What is Your Line of Work? Still working? Administrative/yes
Medical History: high stress, depression, breast cancer, afib
Does Exercise Help? I gain no stamina from exercise
What Were Your First Symptoms? chest pains
What Are Your Current Symptoms? severe upper body tension and headaches.
Did You Ever Have A Long Lasting Virus? Yes
Any Military Service? NA
Chemical or Pesticide Exposure? amalgam & radiation plus many xrays, medications over time
How Has Fibro Affected Your Life? Forcing me to retire early
What Makes Symptoms Worse? Even minor stress
What Makes You Feel Better? Doing nothing
Do Your Symptoms Include Brain Fog? Yes
How many years has it been since you developed the brain fog associated with fibromyalgia? Hard to say - I probably have ADD so I can't tell but definitely the last 5 years.
Was Your Rate of Decline Fast? Yes, physical stress from going without a car for 2 months precipitated the onset of my first symptoms.
Have You Tried Avoiding Dietary Fluoride? I use filtered water but not sure if that eliminates fluoride. Take many hot baths.
Remedies Tried: Every natural product I could find for relaxation.
Your Theories: I believe my unhappy situation (depression) and high stress load over time depleted my nervous system.
Are We Missing Any Important Questions? Difficult life

 

06/08/2008
Name: Paula
City: Gulfport
State/Country: MS
Your Sex: female
Where Were You Born? mississippi
Where Do You Live Now? mississippi
How Long Have You Lived There? 43 years
Your Age? 43
How many years has it been since you developed your symptoms of fibromyalgia? 20
Your Age At Onset of Symptoms? 23
What is Your Line of Work? Still working? education, yes
Medical History: everything
Does Exercise Help? yes, dancing
What Were Your First Symptoms? tiredness
What Are Your Current Symptoms? muscle pain, extreme fatigue, brain fog, depression, irritable bowel, poor concentration, heat intolerance
Did You Ever Have A Long Lasting Virus? yes
Any Military Service? no
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? yes
What Makes Symptoms Worse? heat,lifting too much stuff, cold
What Makes You Feel Better? massages
Do Your Symptoms Include Brain Fog? Yes
How many years has it been since you developed the brain fog associated with fibromyalgia? two years
Was Your Rate of Decline Fast? no
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: naproxen, elavil, mucinex, flexiril
Your Theories: no
Are We Missing Any Important Questions? no

 

06/07/2008
Name: sarah
City: wolverhampton
State/Country: england
Your Sex: female
Where Were You Born? Wolverhampton, England
Where Do You Live Now? Wolverhampton, England
How Long Have You Lived There? 26 years
Your Age? 26
How many years has it been since you developed your symptoms of fibromyalgia? 8 years
Your Age At Onset of Symptoms? 18
What is Your Line of Work? Still working? I was a dancer and then moved to being a drug misuse counsellor when my pain began but now I am not working at all
Medical History: Depression and recurrent throat infections as a teenager. Chronic ring worm infection all over body, very difficult to treat.
Does Exercise Help? Stretching, very light, can help. Walking but not too fast. It seems to help slightly.
What Were Your First Symptoms? Fatigue and stress
What Are Your Current Symptoms? Fatigue, anxiety, muscle cramp, muscle and joint pain, nerve pain, skin sensitive (painful) to touch, cold hands and feet, concentration and memory problems, sleep disruption (seem to have difficulty with dtage 4 and 5 sleep), excessive thirst and dehydration, hot flushes and sensitive to cold - never seem to maintain a comfortable temperature. Muscle twitches and spasms. Painful clicking jaw.
Did You Ever Have A Long Lasting Virus? No
Any Military Service? None
Chemical or Pesticide Exposure? Only mercury in dental fillings
How Has Fibro Affected Your Life? I no longer work, and i have lost several jobs through time off sick. Relationship breakdown.
What Makes Symptoms Worse? Stress, lack of sleep, lack of routine, bad diet.
What Makes You Feel Better? Good sleep, good healthy diet, walking in fresh air, drinking lots of water, multivitamin supplement, panax ginseng daily seems to be helping.
Do Your Symptoms Include Brain Fog? Yes
How many years has it been since you developed the brain fog associated with fibromyalgia? 5 years
Was Your Rate of Decline Fast? My onset was fairly sudden. I was misdiagnosed with mild depression and given Seroxat. I suffered side effects from this drug and developed sever depression and attempted suicide.
Have You Tried Avoiding Dietary Fluoride? No
Remedies Tried: Panax ginseng which seems to give me more energy, multivitamin supplement, vegetarian omega 3,6 and 9 supplement. I take all three of these daily and have seen a mild improvement in energy levels.I have been on mirtazapine which helped with sleep, and also amitriptyline which again helped with sleep and also nerve pain but none of the other symptoms, and made my dehydration worse.
Your Theories: I have been treated by doctors as though the condition is psychosomatic and battled for 7 years for a diagnosis of something other than 'its all in your head'.
Are We Missing Any Important Questions? Do you beleive your diagnosis of fibromyalgia is correct?

 

06/07/2008
Name: Betty S.
City: Greenville
State/Country: SC
Your Sex: Female
Where Were You Born? Charleston, SC
Where Do You Live Now? Greenville, SC
How Long Have You Lived There? 22 years
Your Age? 47
How many years has it been since you developed your symptoms of fibromyalgia? 1999
Your Age At Onset of Symptoms? 38
What is Your Line of Work? Still working? GE Gas Turbines NO Disabled
Medical History: Fibromyalgia, Chronic Fatigue Syndrome,Arthritis,High Blood. Files in Drs. Office several inches thick
Does Exercise Help? Swimming, Yoga
What Were Your First Symptoms? Fatigue, Pain in heels,back,knees,felt like a sledge hammer to my knees. Blurred vision,jerks and tingling thru body. Muscle and joint pain thru out entire body.
What Are Your Current Symptoms? Same. But, Ive been doing liver cleanses and drinking distilled water for three months and I feel less pain in my joints.
Did You Ever Have A Long Lasting Virus? I stay sick all the time. Yes, and I have developed allergies as well.
Any Military Service? NO
Chemical or Pesticide Exposure? I shrimped, fished, and haulsaned in the Charleston waters, and landscaped for five years cutting grass and drinking tons of water out of a garden hose. Worked for GE Gas Turbines for 6 years around toner in our big printing machines.
How Has Fibro Affected Your Life? Fibro has ruined my life. I lost my husband due to my illness. I cheated my two sons out of a joyful life, instead they had to watch their healthy Mom go down rapidly. I attempted to take my life several times but had changed my mind due to the fact that my two sons needed me. I wrote a letter to my sons to be opened when I do die and it explains how I couldn't go on anymore and stating how sorry I am for ruining their lives.
What Makes Symptoms Worse? Exertion. I'm exhausted when I wake and when I retire for bed. I can barely do exercise or clean house or cook for my kids without sitting down.
What Makes You Feel Better? Sleep A hot bath or a Sauna. Pain pills or wine to numb the pain and the mind.
Do Your Symptoms Include Brain Fog? Yes. I forget a lot. I got in my car 1 day to go to a place that I visited over 100 times and sat at a highway and didn't recognize and panicked and called my husband to ask where I was. I forget my appointments. I leave on burners, running water, lock my keys in the car and the car is running. If I read I forget what I read after a few paragraphs. I forget what I ate yesterday and I forget words. I know the word is at the tip of my tongue but it doesn't come out. My sons use to laugh at me until they understood my sickness. I feel like a stranger to my family sometimes.
How many years has it been since you developed the brain fog associated with fibromyalgia? Since it began. I remember at my job at GE I would shy away from anything new because I couldn't remember the function on the computer or the printing machines.
Was Your Rate of Decline Fast? Methadone for pain. Effexor for depression. Moapril for High Blood Pressure. Tons of antibiotics for many yeast infections. Steroids.
Have You Tried Avoiding Dietary Fluoride? Water. I drink distilled water now. I try to juice with a Champion Juicer with Carrots, Spinach to boost my immune system. I eat fruits all day long.
Remedies Tried: I quit all medications except high blood pressure meds. I did liver cleanses and now I do a juicer everyday and eat fruit and stay away from tap water.
Your Theories: When I shut down my digestive system after the homemade liver cleanse I felt better and when I started juicing for three days following the cleanse I felt better. Liver cleansing to get rid of the toxins from medicines, tap water has helped tremendously. I found eating foods again made me feel worse. I felt like a new person after the liver cleanse and drinking only juices for three days following the cleanse. Eating food or water from restaurants are very bad for you. People need to get off all the meds and detox and tough it out and try not to take any drugs at all if possible and not to drink any water from tap.
Are We Missing Any Important Questions?

 

06/05/2008
Name: Cindi
City: Stratford
State/Country: CT
Your Sex: Female
Where Were You Born? Connecticut
Where Do You Live Now? Connecticut
How Long Have You Lived There? 40 years
Your Age? 45
How many years has it been since you developed your symptoms of fibromyalgia? six years
Your Age At Onset of Symptoms? 39
What is Your Line of Work? Still working? self-employed
Medical History: rosacea, uterine fibroids (hysterectomy), precancerous colon polypectomy, chronic dermatitis, sleep apnea
Does Exercise Help? N/A
What Were Your First Symptoms? chronic pain in hip, leg and feet, sleep disturbances
What Are Your Current Symptoms? sporadic pain in legs and hip
Did You Ever Have A Long Lasting Virus? Hepatitis NonA/NonB in 1985
Any Military Service? N/A
Chemical or Pesticide Exposure? Unsure
How Has Fibro Affected Your Life? Yes
What Makes Symptoms Worse? stress, not enough sleep
What Makes You Feel Better? relaxation
Do Your Symptoms Include Brain Fog? Yes
How many years has it been since you developed the brain fog associated with fibromyalgia? three - five years
Was Your Rate of Decline Fast? No
Have You Tried Avoiding Dietary Fluoride? No
Remedies Tried: Cymbalta, Lyrica, Flexeril
Your Theories: Helps somewhat
Are We Missing Any Important Questions?

 

06/05/2008
Name: bethany
City: atco
State/Country: nj, usa
Your Sex: female
Where Were You Born? mercer nj
Where Do You Live Now? atco, nj
How Long Have You Lived There? 2 years
Your Age? 42
How many years has it been since you developed your symptoms of fibromyalgia? 2.5 years
Your Age At Onset of Symptoms? 40
What is Your Line of Work? Still working? currently in retail art time
Medical History: genetis birth defect-nail patella syndrome hpv
Does Exercise Help? stretching sometimes help
What Were Your First Symptoms? chronic fatique and pain in different areas
What Are Your Current Symptoms? widespread pain-mostly back, neck,shoulders, arms, sometimes legs
Did You Ever Have A Long Lasting Virus? hpv
Any Military Service? no
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? yes
What Makes Symptoms Worse? not enough sleep, too much exercise, weather
What Makes You Feel Better? heat, painmeds, supplements when i remember to take them
Do Your Symptoms Include Brain Fog? YES!!!!!!!!!!
How many years has it been since you developed the brain fog associated with fibromyalgia? 1.5 years
Was Your Rate of Decline Fast? no, it was a slower progression
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: lyrica, darvocet, flexeril, supplements-vit c, glucosomine, condroiten, vit e, multi-vit, mobic, tylenol,
Your Theories: not really
Are We Missing Any Important Questions? no

 

06/05/2008
Name: jennifer
City: Cape-Breton Nova Scotia
State/Country: Canada
Your Sex: Female
Where Were You Born? Cape-Betron
Where Do You Live Now? Fort McMurray, AB
How Long Have You Lived There? 9 months
Your Age? 24
How many years has it been since you developed your symptoms of fibromyalgia? 1.5 years
Your Age At Onset of Symptoms? 23
What is Your Line of Work? Still working? Educational Assistant. Yes
Medical History: Total Thyroid Removal. Low Blood Calcium. IC
Does Exercise Help? No
What Were Your First Symptoms? Strong Pain in upper legs. Joints in the back of knees.
What Are Your Current Symptoms? Chronic widespread pain. Burning sensations. Skin sensitivity. Brain Fog.
Did You Ever Have A Long Lasting Virus? Yes. One month before the onset of symptoms, I became quite ill while working in a store that was being renevated. Lost sense of taste when sick.
Any Military Service? No
Chemical or Pesticide Exposure? No known
How Has Fibro Affected Your Life? Not enough time to type everything. Lack of physical capabilities is by far the worst.
What Makes Symptoms Worse? Standing for long periods of time, being "busy", stress, lack of sleep
What Makes You Feel Better? Physically nothing. Mentally, talking about it. Long deep sleep.
Do Your Symptoms Include Brain Fog? I think so.
How many years has it been since you developed the brain fog associated with fibromyalgia? I don't know.
Was Your Rate of Decline Fast? Yes. Synthroid, Calcium Supplements, Tums, Antibiotics
Have You Tried Avoiding Dietary Fluoride? No, should I?
Remedies Tried: None, planning on having a child.
Your Theories: Result of a virus. Homonal Imbalances caused by surgery.
Are We Missing Any Important Questions? Has the sympoms went into remission during pregnancy? What was the most useful source for information regarding Fibro?

 

06/04/2008
Name: Emory
City: Liberty
State/Country: Me.
Your Sex: male
Where Were You Born? Plymouth, Mass.Maine
Where Do You Live Now? Maine
How Long Have You Lived There? 25yrs
Your Age? 66
How many years has it been since you developed your symptoms of fibromyalgia? 8
Your Age At Onset of Symptoms? 58
What is Your Line of Work? Still working? carpenter
Medical History: back surgery
Does Exercise Help? some
What Were Your First Symptoms? aches upper body
What Are Your Current Symptoms? pain all over especially in hip and lower back
Did You Ever Have A Long Lasting Virus? pneumonia 2 weeks
Any Military Service? none
Chemical or Pesticide Exposure? paint thinners
How Has Fibro Affected Your Life? depression , slowed me way down on doing normal work
What Makes Symptoms Worse? just doing normal things suh as mowing lawn and projects around the home
What Makes You Feel Better? taking Lyrica 600 mgs. per day and hydrocone as needed
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? 1yr
Was Your Rate of Decline Fast? not really , but I have been tasking hydrocodone for a long period of time
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: everything you can imagine
Your Theories: yes , no one knows how to treat this problem
Are We Missing Any Important Questions? yes - how do you help me?

 

06/04/2008
Name: Ann
City: Cocoa
State/Country: Florida
Your Sex: Female
Where Were You Born? Oklahoma
Where Do You Live Now? Florida
How Long Have You Lived There? 29 years
Your Age? 51
How many years has it been since you developed your symptoms of fibromyalgia? 10
Your Age At Onset of Symptoms? 40
What is Your Line of Work? Still working? Mortgage, No
Medical History: Strep Throat, Urinary Infections, Pneumonia, Lots of Antibiotics
Does Exercise Help? No
What Were Your First Symptoms? Numbness, Tingling, Fatigue, Pain, electrical shocks,memory problems, double vision,
What Are Your Current Symptoms? Pain, Fatigue, tingling, electrical shocks, numbness, irritable bowel syndrome, insomnia, memory problems
Did You Ever Have A Long Lasting Virus? yes
Any Military Service?
Chemical or Pesticide Exposure? Benton Arkansas, Alcoa Plant, Aluminum
How Has Fibro Affected Your Life? I used to be very active, worked full time, 2 children, scuba diver, jet ski, very active, now I hardly ever leave my house. I don't have the energy and I am always in too much pain.
What Makes Symptoms Worse? Too much activity, stress, heat.
What Makes You Feel Better? Plenty of rest, good nights sleep, and every now and then I am blessed with a day without too much pain.
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? several
Was Your Rate of Decline Fast? Yes. In 1992 I got pneumonia and was on IV antibiotics for a month. I never felt like myself again after that and then in 1993 my health started to decliine. I had recurring urinary infections and was on antibiotics for a whole year. After that I started with the tingling around my mouth and my fingers and toes, numbness in arms and legs, dropping things, very tired, my legs would give out and I would fall down. The doctor sent me to a Neurologist and for years he treated me for M.S. I still have no lessions on the MRI. Then I went to a Rheumatologist two years ago and he said I have Fibromyalgia. I think it has been this all along.
Have You Tried Avoiding Dietary Fluoride? NO, never heard of this.
Remedies Tried: Vitamins, herbs, Accupuncture, Physical Therapy, Muscle relaxers, Anti Inflamatories,
Your Theories: Not yet, I am still confused with whether I have MS or Fibromyalgia. The symptoms are similar. No real cure for either.
Are We Missing Any Important Questions?

 

06/03/2008
Name: Cari
City: Redlands
State/Country: Ca
Your Sex: femaile
Where Were You Born? Toronto, Canada
Where Do You Live Now? Redlands, California
How Long Have You Lived There? 20 yrs
Your Age? 46
How many years has it been since you developed your symptoms of fibromyalgia? about a year
Your Age At Onset of Symptoms? 45
What is Your Line of Work? Still working? I work as unit secretary for a physical rehab unit.I am currently still working, but taking a lot of days off for illness
Medical History: Mono 1972 hep A 1972 crohns dz 2001 cyclic vominting syndrome 2006 mult med allergies
Does Exercise Help? swimming is the only thing i can do without pain
What Were Your First Symptoms? total body achiness
What Are Your Current Symptoms? pain all over, chronic fatigue, headaches
Did You Ever Have A Long Lasting Virus? yes, undiagnosed for a long time
Any Military Service? no
Chemical or Pesticide Exposure? 1995 exposed to pesticides
How Has Fibro Affected Your Life? I feel lazy and like a burden. I feel like I complain all the time!
What Makes Symptoms Worse? very cold weather affects pain, very hot weather affects Chronic fatigue
What Makes You Feel Better? not much
Do Your Symptoms Include Brain Fog? YES
How many years has it been since you developed the brain fog associated with fibromyalgia? 1
Was Your Rate of Decline Fast? yes, but not from meds, from eating at the County fair and ingesting an undiagnosed bacteria.
Have You Tried Avoiding Dietary Fluoride? no
Remedies Tried: Vicodin, Lyrica
Your Theories: probably related to long term auto immune disorder
Are We Missing Any Important Questions? no

 

06/02/2008
Name: claudia
City: north providence
State/Country: r.i.
Your Sex: female
Where Were You Born? providence, r.i.
Where Do You Live Now? no providence, r.i.
How Long Have You Lived There? 5 years
Your Age? 55
How many years has it been since you developed your symptoms of fibromyalgia? 7 years
Your Age At Onset of Symptoms? 48
What is Your Line of Work? Still working? no
Medical History: fine, mostly sinus and ear aches
Does Exercise Help? no
What Were Your First Symptoms? shoulder and neck aches
What Are Your Current Symptoms? all over aches varying from day to day and sooner and extreme fatigue
Did You Ever Have A Long Lasting Virus? i have been recently sick since november with a cold or flu
Any Military Service? none
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? i lost a good paying job because i can't work steady
What Makes Symptoms Worse? it doesn't matter what i do or don't do if i am going to ach i ach
What Makes You Feel Better? i take ibuprofen for the pain and it takes the edge of sometimes
Do Your Symptoms Include Brain Fog? yes
How many years has it been since you developed the brain fog associated with fibromyalgia? that has been the last 2-3 years.
Was Your Rate of Decline Fast? i was on muscle relaxers,and ambytryptaline??,bextra-it was taken off the market,
Have You Tried Avoiding Dietary Fluoride? no, not sure what that is
Remedies Tried: mentioned above
Your Theories: i need help mostly with the cfs, i can't stay awake for more than a few hours
Are We Missing Any Important Questions? i was in a car accident in 2001 and the dr's believe it is from that.

 

06/01/2008
Name: Colleen
City: Yeppoon
State/Country: Queensland, Australia
Your Sex: female
Where Were You Born? Brisbane, Queensland, Australia
Where Do You Live Now? Yeppoon, Queensland, Australia
How Long Have You Lived There? 33 years
Your Age? 56 years
How many years has it been since you developed your symptoms of fibromyalgia? 4 years
Your Age At Onset of Symptoms? 52 years
What is Your Line of Work? Still working? just retired
Medical History: Graves disease found @ 9 years of age. Partial removal @ 21years. History of depression throughout life. Lupus @ 52years, then fibromyalgia soon afterwards. History of insomnia for many years.
Does Exercise Help? Most exercise worsens my fibromyalgia except for water aerobics.
What Were Your First Symptoms? Terrible pain in lower back
What Are Your Current Symptoms? Insomnia
Did You Ever Have A Long Lasting Virus? I had the flu for two winters and my health didn't really recover
Any Military Service? no
Chemical or Pesticide Exposure? not that I know of.
How Has Fibro Affected Your Life? Yes I had to give up full time shift work and work part time. The fibro fog, insomnia and pain made it very difficult for me to work
What Makes Symptoms Worse? Exercise
What Makes You Feel Better? Acupunture
Do Your Symptoms Include Brain Fog? Yes they have.
How many years has it been since you developed the brain fog associated with fibromyalgia? A couple of years
Was Your Rate of Decline Fast? Can't remember any specific drugs
Have You Tried Avoiding Dietary Fluoride? No
Remedies Tried: Acupunture works best. I also take supplements. Most important is magnesium and MSM.
Your Theories: I believe my lupus and fibromyalgia were caused by many years of stress and lack of sleep caused by a bad marriage and shift work.
Are We Missing Any Important Questions?

 

06/01/2008
Name: Mechelle
City: Shelby Twp
State/Country: Michigan
Your Sex: Female
Where Were You Born? Mt Clemens
Where Do You Live Now? Michigan
How Long Have You Lived There? All My life
Your Age? 42
How many years has it been since you developed your symptoms of fibromyalgia? 6-7-years
Your Age At Onset of Symptoms? 35-1/2
What is Your Line of Work? Still working? Went back to work. Work in the auto field as a cleaner.
Medical History: Hashimotos? Still a controversy from endo to endo. Thyroid meds made it worse, I do not take at all. Low Sugar. Ovarian cysts, Eczema ( Allergies). Tonsils, Foot surgery, ( Bones spurs) fractured wrist and fractured tail bone.
Does Exercise Help? At First I could not exercise, This job has helped me tremendously. I walk about 4-5 miles a night now, and do physical cleaning. At First I wanted to give up. Lost about 40-pounds, Changing diet and working the midnight shift. I do take provigil, Helps with the fatigue. I still get real bad days. But most are good, With proper sleep. Brain Fog is still bad though.
What Were Your First Symptoms? Brain Fog! Hands, Hips, neck ankles, and back real sore and the tiredness was unreal.
What Are Your Current Symptoms? My hands still swell real bad in warmer weather, Tiredness, and brain fog, to body soreness on the bad days.
Did You Ever Have A Long Lasting Virus? Yes! Mono around time of symptoms popping up, Panels for cmv, parvo, etc-- came uppositive also. Plus bouts of bronchitis.
Any Military Service? No
Chemical or Pesticide Exposure? House hold cleaners, That I do not use any-more like Murphys oil soap.( Petroleum is in it) My garden is pesticide free.
How Has Fibro Affected Your Life? Yes! I am very unorganized now. I forget things, I misplace things. I cannot get my-self going like I used to. In ways I have to work 10-times harder to achieve results then most. The inability to think properly. I am tired and need my sleep. I am not as active and it can be depressing, not doing all the things you enjoy.
What Makes Symptoms Worse? Stress! Stress, and not having proper sleep.
What Makes You Feel Better? Jacuzzi', Warm Baths, Ibruprofen, My provigil ( So far it's working). and the walking at work has helped alot. But it's taken months to work up to being sed to this.
Do Your Symptoms Include Brain Fog? Yes very severe! cognitive skills are bad.
How many years has it been since you developed the brain fog associated with fibromyalgia? Since day 1. I was just diagnosed 2- years ago by a rheumotologist after seeing all kinds of Doctors for years.
Was Your Rate of Decline Fast? Flu Shot. Tenatus and a steroid for my lungs having bronchitis.
Have You Tried Avoiding Dietary Fluoride? Yes, Filtered water and bottle. Try and watch the tooth paste also. I buy the paste from the health food store.
Remedies Tried: Eleminating, wheat, Milk products, Exercise, Jacuzzi ( Water theraphy). Mineral sparkling water, staying hydrated. And staying in air conditioned areas o real humid days. Chiropractor. Also cod Liver oil works pretty good also. Can't think of everything, since I have tried so many things.
Your Theories: Hormones a must at 35 my migraines stopped and the body changed. Vacines, I never receive a flu shot ever after being sick. Also noticed I have 2-scars for the shot you receive as a youngster, ( Why two? I think it's a smallpox shot, I was a premie at 4 pounds 6-oz. Just my theory on vacines. And stress! A big one. Taking others stress on in real bad for a fibro patient, Especially if you are a sensetitive person.
Are We Missing Any Important Questions? Not sure,

 

06/01/2008
Name: Suzanne
City: Mount Pleasant
State/Country: mi
Your Sex: female
Where Were You Born? mount pleasant, michigan
Where Do You Live Now? mount pleasant, michigan
How Long Have You Lived There? 32 yrs
Your Age? 40
How many years has it been since you developed your symptoms of fibromyalgia? 5
Your Age At Onset of Symptoms? 35
What is Your Line of Work? Still working? not able to work
Medical History: stroke, hypertension
Does Exercise Help? water therapy
What Were Your First Symptoms? fatigue, muscle pain, insomnia
What Are Your Current Symptoms? exhaustion, migraines, muscle pain, stiffness, fuzzy memory
Did You Ever Have A Long Lasting Virus? no
Any Military Service? no
Chemical or Pesticide Exposure? no
How Has Fibro Affected Your Life? I miss out on much of life because the pain and fatigue is so intense that all I want to do is sleep but can't get to sleep. Between fybro migraines I seem to be in constant pain.
What Makes Symptoms Worse? cold, eating sugar,
What Makes You Feel Better? sleep, pain medication that knocks me out
Do Your Symptoms Include Brain Fog? definately
How many years has it been since you developed the brain fog associated with fibromyalgia? not sure
Was Your Rate of Decline Fast? yes, occured right after a stroke, so i dont remember the medications that I had taken during that time period
Have You Tried Avoiding Dietary Fluoride? no, it's in our tap water
Remedies Tried: tried several vitamins,
Your Theories: I can't link this to anything but the stroke I had. It seems i've got a low pain threshold
Are We Missing Any Important Questions?

 

 

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