The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Chewing Gum
Posted by Tracey (Houston, Tx, Usa) on 06/29/2011
★★★★☆
My twelve year old son has been dealing with tourettes syndrome since he was about five. He takes Keppra, and it helps, but the tics still come. So, he avoids certain triggers, and chews gum when the tics erupt. This immediately helps. From what I have read, gum chewing triggers something in the brain. Maybe it distracts the brain from the tics, I really don't know... But IT WORKS! FYI... his triggers are video games, bright lights, excessive sugar, and starches (rice, potates etc.).
Replied by Megan
(Freeport, Illinois)
05/15/2012
Replied by Susan
(Hermon, Maine)
05/06/2014
★★★★☆
Cold Air
Posted by Anonymous (Brush Prairie, WA) on 07/29/2006
★★★★★
Hi, I have been living with Tourette's Syndrome all my life, though the symptoms didn't really start until I was around 12 years old. One of my more notable symptoms was rapid, uncontrollable, eye blinking. I am 22 now and have recently figured out a treatment for the symptom. Whenever it starts, stick your head in a running freezer. I know this sounds crazy, but it works. It has something to do with the frosty air that comes out when you open the door. You should see relief within a few seconds of doing this. For best results, make sure the door isn't completely open(lightly rest the door on your head so more of the frosty air reaches your eyes). I really hope this helps somebody, it does me.
Replied by Farah
(Boulder, Colorado)
02/17/2008
Replied by Screename
(Plano, Tx)
11/10/2009
Replied by Gary
(Sasolburg, South Africa)
01/27/2013
★★★★★
Replied by Michael
(Ny)
06/20/2017
★★★★★
Copper Toxicity
Posted by Jon (Australia) on 02/24/2021
★★★★★
Copper Toxicity linked to Tourette's. (Low zinc & high copper)
There are many connections pointing to copper toxicity as a possible cause of Tourette's.
Someone suffering with Tourette's syndrome (involuntary motor and vocal tics) has a 50% chance of having OCD. Copper toxicity is commonly found in people with OCD, & Tourette's. People with pyroluria are more likely to have OCD and/or Tourette's… people with pyroluria have low zinc - which allows copper levels to get too high. Copper toxicity has a profound impact on mental and physical health and is becoming more common in our society because of the widespread use of copper and the lack of adequate zinc, molybdenum and other minerals in the diet that help keep it in balance.
Let's take a closer look at this issue by answering the following question from a blog visitor…
My 4 yr old grandson has recently been diagnosed with Tourette's Syndrome. He does eat healthy, is active in karate. My daughter has opted out of medication at this time. She is being told that his copper levels are extremely elevated and they have no answer to this. Our problem is that the tics are getting worse and we are at “wits end” wanting to help him. Thank you in advance. ~Teresa
Reply;
Hi Teresa, Yes, high copper is a common underlying factor in Tourette's, as well as a lot of other mental health and medical conditions. There are many steps that can be taken to reduce elevated copper, so I am at a loss as to why the treating physician would not have this knowledge. I say it is time to find another doctor. Before we get into the specifics, let me present just a little background on copper toxicity for those reading this page that may not be familiar with this issue.
Replied by Charity
(faithville, Us)
03/08/2021
Eliminate Yeast and Caffeine
Posted by Dalton S. (Valley Falls, Ks/united States) on 05/24/2012
★★★★☆
Hey.... I have had tourettes since second grade so when I was about 8.... Lucky for me I have an amazing mom who did a lot of research on the subject and found that by eating/drinking products that have yeast and caffeine in them stimulate the endorphins in the part of your body that has been chemically messed up that gave you tourettes..... Also high levels of stress are a factor that makes it worse!!! ...... We have also learnt that it is genetic... OCD, TS, and anxiety are all realated on the same strand of messed up DNA and if you have one of them then you probly already have at least one or both of the others and if you dont yet then I'm sorry but you should get ready!!!
Replied by John
(Calgary, Canada)
04/19/2013
Replied by Pooja C
(Mumbai, India)
07/17/2014
Replied by Mama To Many
(Tennessee)
07/17/2014
Replied by Mmsg
(Somewhere, Europe)
07/17/2014
General Feedback
Posted by Kat (Florida, US) on 11/07/2014
I have Tourettes. I have suffered it since I was 12. I get the eye blinking & neck movement. The tics are actually voluntary movements, just hard to control. It's like having an itch & tring not to scratch. It feels like my neck is uneven so I keep moving it to make it feel even. And the eyes the same thing.
I found that caffeine kicks in the bouts the worst. Also, bright lights, certain music beats, sugar, and stress (an argument will make the Tourettes go crazy). Luckily, it is a mild for of the disease, and over the years I have learned to control it, most of the time. I do know that when I talk about it or think about it, it's worse. When I don't think about it, it's invisible.
Sometimes it goes away for weeks or even months. Mine was gone for a month until my friend brought up the fact he hasnt seen the tics lately, then it started really bad that day. I have told him before never to bring it up if I'm not experiencing symptoms, but of course he HAD to bring it up. But there are some times that a bout comes and lasts for one or two weeks at a time. When the bouts are bad, I start talking a lot (I'm usually a quiet person), & EVERYTHING aggravates me.
I stutter at times when I talk because I get so jittery, it whacks out my nerves. When this happens, I found that drinking beer takes it away completely. After about 6 or 7 beers it alleviates greatly, & the next day, although hungover, the tourettes is much more relaxed. Sometimes a hard night of drinking takes it away for weeks. I don't like to drink, but I am willing to suffer a hangover when the bouts get really bad.
But as I said, as long as I think about it, it doesn't go away. I literally do forget about it when it's not running its course though. And maybe the alcohol makes me not think about it, and in turn causes it to stop. Or maybe it's the hops. Not sure.
But I'm going to take some advice and go buy some Baryta Carbonica right now. I also am a true believer in homeopathjic remedies. I happen to know for a fact that ESSIAC TEA cures most cancer. My friend in 3rd stage Leukemia took it for 6 months and is now Leukemia free. Read up on that stuff too. It also cured my dad of colon cancer. I take it all the time to prevent cancer. It cleans and builds the blood as well.
Replied by Maria
(Gippsland, Australia)
11/09/2014
General Feedback
Posted by Stephen (Schenectady, NY) on 12/29/2008
I just want to stress to people who are living with tourettes that with the right therapy and medication the tics can vanish and go into remission.. I had a severe case for years as I got older my tics improved and they got down to where I was LIVING A NORMAL LIFE....
I know I don't eat alot of things with high cholesterol... I don't drink alcohol and I don't do anything that does not make me happy in life...
Replied by Lisa
(Toronto)
05/18/2015
Homeopathy
Posted by Carol (Orland Park, Illinois) on 06/18/2012
★★★★★
When my daugher was 8 years old (she is 21 now) she had motor tics for about a year (shoulder shrugging) and my son who was 11 (he's 23 now) had both motor (eye squinting, blinking) and vocal (coughing) tics. I went to a homeopathic doctor who was also an M. D. And he gave them Baryta Carbonica 200CK. They each had four globules (little round balls) placed under the tongue on an empty stomach (they did not have anything to eat or drink 2 hours before and two hours after administration). The globules dissolve under the tongue in less than a minute or so. After about 4 weeks, both of them have been tic free. I still keep some of the remedy on hand just so that if the tics ever come back I'll know what to give them. The remedy can be ordered online - and it doesn't cost much.
Replied by Rad1_11
(Philadelphia, Pennsylvania)
12/14/2015
Replied by Kricky
(San Diego, California)
05/13/2016
Replied by Margaret
(Plano, Tx)
08/02/2016
Replied by Lisa
(Mckinney, Tx)
10/17/2016
Replied by Heather
(In)
01/22/2017
Magnesium
Posted by Rose (Chicago, IL) on 07/24/2021
★★★★★
Tics/Tourettes in 5y/o completely gone
My 6 yr old great niece was having over 100 tics per day. The neurologist diagnosed her with Tourettes. We started her on Magnesium Citrate made for kids (Natural Calm). We split the dose am/pm.
Within 3 days her tics had reduced to 1-3 and are now completely gone.
We have reduced the dose by half and still doing it am/pm. She had an issue with constipation going every 3-4th day. When the magnesium was started she was going 4x/day and that's why we reduced the dose by half. Now she is going 1x/day. Her mom is calling it magic powder. What a difference! Just wanted to share.
Replied by
Art (California)
07/24/2021
2326 posts
Rose
(Chicago, il)
07/25/2021
TENS Unit
Posted by mademmejo (Las Cruces, NM) on 02/20/2022 8 posts
★★★★★
TENS UNIT for movement disorders, such as tourette's syndrome and motor and vocal tics. Works instantaneously and I don't have barely any more tics. It's a godsend. A research facility in Nottingham, UK found that electrostimulation, such as the TENS machine uses, helps with movement disorders and I have to agree tremendously. They are coming out with a wrist device placed near the median nerve. You place the TENS electrodes on your median nerve and the electrostimulation travels to your brain which effects your movements. Truly a godsend. I'm so relieved. I have had motor tics for 40 years want nothing else has worked until now. The facility in Nottingham that did the study is going to release a wrist device in about two years they said. Right now people, including myself, are using TENS units to do the same thing. It's incredible. If anyone has any questions, please reply.
Replied by ms_anthrope
(dc)
05/18/2022
Replied by Lisa
(Minneapolis)
07/19/2022