The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Methylcobalamin
Posted by Connie (Slc, Ut) on 09/23/2011
★★★★★
Hi Warjov ; In addition to the brilliant suggestions made here to you, I hope to add another. There is a Dr. Neubrander, drneubrander. Com, who has been working with kids along the spectrum for decades. He uses a wide variety of therapies, and if you go to the website, you can choose from 150 videos of parents that describe their results, with an achingly poignant honesty. Dr. Neubrander reports that 94% of his patients respond in a positive way, some dramatically, to subcutaneous injections of methylcobalamin, a type of vitamin B12, at approx. 1mg. Given every 3 days. (some children need it more often.) He's written very specific directions about this protocol that may be followed by other doctors, should they be curious. It may be worth a search.
Methylcobalamin
Posted by Prema (Melbourne, Australia) on 05/31/2013
Hi Debbie, I have a 5 year old autistic child and I am keen to try biomedicine for him. Can you tell me which biomedical doctor are you seeing for your son? Thanks.
Ted's Protocol
Posted by Guzi (Austin, Tx) on 05/01/2011
Hello, I've started doing Ted's protocol for Autism for my 4 year old daughter. Just wanted to get feedback on someone that has tried. What to expect and what results did you get.
Thanks
Chronic Bacterial Infections
Posted by Angie Fenton (Mount Juliet, Tn, Usa) on 04/21/2011
Has anyone else heard of Donna Gates? She found some interesting conclusions similar to what you were talking about. She is the founder of the Body Ecology diet. I have been following her for about a year now. I tried young coconut kefir and cold pressed flax seed oil on my son for about 2 weeks and saw tremendous results! It's expensive so if you can find the instructions on her site to make the coconut kefir, then I recomend doing that. If anyone else has any information on Autism cures please post!
Chronic Bacterial Infections
Posted by Debbie (Melbourne, Australia) on 04/22/2011
Angie, my son is 4, has developmental delays including speech. I had great success with Vitamin C. It can chelate the heavy metals including flouride from the body. He went from singing one or two words in a song to singing the whole song (trying anyway) after about 2-3 weeks of having Vitamin C every day... About 3-4 grams per day). His speech also seems improved.
Also cilantro (corriander), garlic, tumeric all chelate heavy metals from the body so all our food has them in it.
I am also trying Evening Primrose Oil & Cod Liver Oil both have had great results in getting EFA into them... good speech results good concentration.
He also has a probiotics and digestive enzymes every day which helps digestion.
We went GFCF as from yesterday to see if that helps him. He has always had digestive issues and I think it is related. I have heard of Donna Gates.... We are looking at her diet and the GAPS diets from Dr. Natasha McBride as well.
He had a blood test recently which showed high folate and high B12 levels .... anyone know what that means? I did read it may mean high level of bacteria in stomach but need to investigate further.
Chronic Bacterial Infections
Posted by Angie Fenton (Mount Juliet, Tn, Usa) on 07/06/2011
Debbie-
The GAPS diet sounds amazing. I went to Natasha Campbell-McBride's web site and spent a good couple of hours reading and taking notes. We're introducing the diet to our son right now.
Thank you for your comments and for listing the things you've tried. I'll be asking his Dr. If we can do some tests to check vitamin B levels and high peptide levels. A friend told me the same thing so I'm really wanting to do this.
I don't understand the science behind it all. I am searching for more information on why bad bacteria causes such an imbalance. I do understand that foods that are low on the glycemic index are the best since bad carbohydrates convert into sugar and sugar is bad for autism.
I have so much to learn and would love to hear any other ideas or information anyone has to offer.
Looking forward to hearing how your sons progress is going.
Chronic Bacterial Infections
Posted by Brittney (Hermitage, Tn) on 08/17/2011
Hi Angie, my son is 6 years old (PPD-NOS, ADHD diagnosis along with developmental delay and speech delay). We just started the GFCF diet and supplementation. We are going to have heavy metal test and yeast test in October. We are seeing a new DAN! Doctor in Cool Springs. Very excited and praying for recovery as so many people have had success with the biomedical approach. Thanks for the info regarding Vitamin C and coconut kefir. I will definitely look into those as well.
Chronic Bacterial Infections
Posted by Warvoj (Lexington, Ky, Usa) on 09/22/2011
Hello Debbie from Melbourne:
I saw where you are using garlic, turmeric and cilantro. I'm using that with my son. He's 9 with aspergers. I'm also adding raw cheese (both cow & goat). I can't buy raw milk in my state because it's illegal, so I'm settling for the cheese. I have notice some changes for the better, which makes me think that he may have some heavy metals in his blood.
I would like to get a blood test for him, but most doctors really don't know what to look for and will order a regular blood test, which won't tell me anything. Does anyone know what I need to tell them to look for in the blood test?
In Yeshua's arms,
Warvoj
Chronic Bacterial Infections
Posted by Debbie (Melbourne, Australia ) on 09/23/2011
Hi Warvoj, have you read the book Gut & Psychology Syndrome by Dr. Natasha McBride. She cured her son of autism by following a special diet. I have still to read it but it may be worthwhile for you to read it to see what she says about blood tests. She is also a neurologist.
Also I am reading "Excitotoxins, the Taste that Kills" by Dr. Russell Blaylock who says that MSG and Aspartame are responsible for many disorders and learning problems (they cause cell death). There are some foods you can take that are "glutamate blockers" and tumeric is one of them. Also people are in danger if their magnesium levels are low. Everyone should read this book. I first few pages are enough to scare the daylights out of you.
Vitamin C also chelates heavy metals. Also there are some good youtube videos if you google "gaps diet" or Natasha McBride where there are some real cases of kids totally turning around and they have some valuable information.
I am still having problems with my son, his speech is still very delayed. He is a bit better but way below what it should be for a 4 1/2 year old. I am going to take him to the mineral baths to get some minerals into his body and I have just bought some iodine (important for IQ) and magnesium chloride to put in the bath water to get his magnesium levels up.
Chronic Bacterial Infections
Posted by Annmarie (Chicago, Il) on 10/20/2011
I notice that wholistic doctors are able to test for such metals and toxins. You would need to google and find one in your area.
Chronic Bacterial Infections
Posted by Susan (San Antonio, Texas) on 11/07/2011
I ran across this website thanks to my father and it is such a wonderful resource! I just wanted to reach out to all of you asking questions about autism. I host a weekly Internet radio talk show about autism called The Mother Cub Show where I interview many of the experts (including people like Donna Gates). I am also the mother to an 8 year old son with autism who is making tremendous progress every day! GAPs diet, flax oil, coconut kefir, probiotics & enzymes are key! Please check out website (www.mothercub.com) for blogs and archived shows. Best of luck to all
Chronic Bacterial Infections
Posted by Angie (Mount Juliet, Tn) on 11/07/2011
That's so awesome, I'm checking it out right now! Thanks so much Susan.
Angie
Chronic Bacterial Infections
Posted by Susan (San Antonio, Texas) on 11/09/2011
Debbie - how do you give the iodine? Do you use Lugol's in a drink or do you put it on topically? I've been reading a lot about it lately and am very curious. Thanks, Susan
Chronic Bacterial Infections
Posted by Debbie (Melbourne, Australia ) on 11/10/2011
Here is an excellent article on autism and magnesium. I give my son magnesium chloride baths as well as epsom salt baths regularly. This is called transdermal magnesium (through the skin) and is better absorbed than in supplement form. I have also just ordered magnesium citrate in powder form as well to give him (and myself). That type of magnesium was recommended in a book I was reading on magnesium.
My son definitely had lots of antibiotics in his first year (being a 26 week prem) and other medications which would have caused the gut problems.
http://lampoflife1.blogspot.com/2010/09/autism-and-magnesium.html
A good website on transdermal magnesium is magnesiumforlife.com
Also a good way to get magnesium into you transdermally is to swim in the ocean. If you live near the ocean swim/paddle in the water at least 30 minutes each time.
Chronic Bacterial Infections
Posted by Jacqueline (Punta Gorda, Fl ) on 12/01/2021
Where can you get oxygen treatment or what exactly is it titled under? I'm in Florida and am interested in finding this treatment for my family.
Chronic Bacterial Infections
Posted by Tea (New Zealand) on 05/23/2015
I wonder if ozone will help then as a bath and drinking, I got a pink and white ozone machine for $20 with free shipping to new zealand and I got in room plug in ozone generators and you smell the oxygen in the room. Asians use ozone to clean all their fruits and veges of pestesides..... can't remember now originally why I got on here to post a comment as got distracted by the oxygen thing....
Chronic Bacterial Infections
Posted by Tea (New Zealand) on 05/23/2015
Ah senior moment now I remember, my parents buy 25kg magnesium salts from the dead sea as farmers use it for salt lick and is cheapest to buy from farming shops, in New zealand its marketed under the name of prill and they bath in it three times a week as dad researched it is much better to take transdermally as can't OD either.......it is a safe way to take it and a safe product and can put 2 litres of the salts in a bath for adults, , , , , , but would have to reasearch dose for kids as dad didnt bath my kids in it saying something along the lines of it can leach something else from you (maybe calcium??????) it has feed mum and dad of osteo arthritis and gives them energy etc but have not tried on my autistic kids, I'm doing coconut keifer at the moment.
Chronic Bacterial Infections
Posted by Renee (Louisiana) on 02/02/2017
If anyone is interested, in Marrero, Louisiana there is a doctor who runs a hyperbaric oxygen therapy center - Dr. Paul Harch.
http://www.hbot.com
Dietary Changes, Cod Liver Oil
Posted by Bj (Killeen, Tx) on 02/08/2011
@Christie from Charlotte, NC. Do you put the cod liver oil in her food or just in a spoon?
Magnesium
Posted by Earth Clinic (USA) on 02/18/2010
Rhodiola
Posted by Cobb (Anderson, Sc) on 06/29/2010
Where do I get this herb?
Rhodiola
Posted by Christie (Charlotte, Nc, Usa) on 02/02/2011
I just want to tell you that I so apprecite your post. I cried when I read it. My daughter is 5 now and was diagnosed with autism when she was 3. My journey with autism sounds remarkably similar to yours... I also gained 65 lbs in depression weight, or perhaps it's frustration weight. I have battled with her teachers, consulted with three different DAN! Doctors, and cried myself to sleep so many times. I am curious to give rhodiola a try. Bless you and your son. All will be well. :-)
Hyperbaric Oxygen Therapy
Posted by Alfred (Perth, Western Australie, Australie) on 12/15/2011
My son aged 7 was diagnosed with autism at age 5. One of the side effects of his autism is that he eats a very limited selection of food. He eats no meat, potatoes for vegetables, apples, bananas, watermelon, strawberries, avaovados and pears for fruit. Cheese once a month, a small amount of yoghurt, no milk and chocolate everything. When he has a lack of appetite he only eats chocolate or starves. He has to be given a tonic every day to encourage him to eat just one small meal a day. For this reason it is very difficult to put him on an elimination diet. We have tried the failsafe diet, but he starved himself for 3 weeks. In the end he was screaming from hunger, but would still only eat his preferences. Does anyone have some advice as to how to break through this problem? The most nutritious food he ever gets in is avocado toast (not every day) or potato chips (hot) not every day either. Does anyone know whether there is a Hyperbaric Oxygen therapy centre in Perth, Australia.
Alfred
Hyperbaric Oxygen Therapy
Posted by Timh (Louisville, Usa) on 12/17/2011 2048 posts
Alfred, A Multi B-Vitamin alone at least once a day creates powerful hunger drive. But it is kinda stupid to use only vitamins when they need minerals as cofactors for enzyme production (which may be a major problem with this boy). Enzymes create and maintain the body's energy or metabolism, so any vit/min deficiency will reduce E. Find a good High potency with foods plus. At least 2 daily. If he is uncomfortable with pills, try some
VitaminWater or any other nutritional "drink" or "fortified" foods or drink. When I was an adolescent, I got good lasting energy from the fortified cereal
Total.
Also the vitamin-like nutrient DimethylGlycine (DMG) boost energy production as well as immunity and has been used successfully in the treatment of Autism for many decades. It may be necessary to have a health care professional monitor the DMG for dosage purposes but otherwise DMG is quite safe with anything under 2 grms daily; I traditionally use 500 mg daily.
Hope this helps and good luck.
Hyperbaric Oxygen Therapy
Posted by Lucia (Coral Gables, Fl) on 01/23/2012
To Alfred from Perth, here is a chocolate flavored smoothie that your child may like. It's much better than chocolate and packs much needed nutrients:
1 banana
1 apple
honey to taste
1/2 cup of chocolate soymilk (I use Silk brand) & 1/2 cup of unsweetened regular soymilk
Blend everything with a little bit of ice. It tastes just like a chocolate ice cream smoothy!! Hope he likes!
Supplements and Indian Herbs
Posted by Carolyn (Milford, Ct) on 01/28/2011
Hi Ted... If you have a moment, I would like to discuss with you the 85% incidence rate of pyroluria/kryptopyrrole/mauve factor in autistic individuals. Your intutive recommendations for anxiety and other psychiatric disorders, as well as for hair loss, all tie into the "big picture". My questions have to do with the order of treatment, as heavy metal toxicity, autoimmune disorders and gastrointestinal problems all feed off of each other.
Please also note that the treatment for pyroluria automatically results in metal purging (most notably copper). Your input would be invaluable, to both my son and the millions of autistic children in the world today.
Supplements and Indian Herbs
Posted by Foreward (Billings, Mt) on 11/10/2011
It should be made clear however that piracetam is very much not a natural substance, and is as much a drug as related racetams such as keppra, and further departures down the racetam family tree like tylenol. Piracetam is, as far as we know, a pretty safe drug - I myself have consumed upward of 10g of piracetam in a single setting with nothing except maybe some very mild stimulant effect - but for those interested in exclusively natural solutions, piracetam is NOT it.
Supplements and Indian Herbs
Posted by Starry118 (Raleigh, Nc) on 04/19/2012
Piracetam increases communication across the corpus callosum (between the left and right hemispheres of the brain) and has been shown to be effective in treating a range of neurological disorders.
From Wikipedia:
There is very little data on piracetam's effect on healthy people, with most studies focusing on people with seizures, dementia, concussions, or other neurological problems. However, a two week regimen of piracetam was found to enhance verbal memory in healthy college students in a double-blind, placebo-controlled study.
Article cont'd.
Supplements and Indian Herbs
Posted by Sweet Thing (Henderson, Nv) on 12/06/2011
Hi, my son is ADHD and asperger's too. Could you tell me how yr daughter has changed?
Fish Oil and Evening Primrose Oil
Posted by Cindy (Norfolk, Va) on 02/23/2017
Hi - I have a 23 yr. old son who has grown up with high functioning autism. I understand that Vit. D and Fish Oil would benefit him. Can anyone tell me the recommended dosage for each? Thank you.
Fish Oil and Evening Primrose Oil
Posted by Christine (United Kingdom ) on 06/19/2017
Thanks for your information. My son has autism severe learning disabilities, and has terrible meltdowns He has Fish oils, but now going to try the evening primrose oil.
The Mercury Autism Connection
Posted by Tanya (Phoenix, AZ) on 06/09/2008
★☆☆☆☆
Although some children with autism may have high levels of merucry no such thing has ever been proven. Even more importantly, my own children have autism and neither one of them had a shot with mercury in it. For them, it is clearly genetic as their father and his father are clearly on the spectrum. In addition, we have tried all of the diets, supplements ect and found no help. Therapies helped. I believe there are "autisms" just like there are "cancers." They may have features in common (think lung cancer vs. skin cancer)but the treatments and outcomes can be totally different. So children with autism need to be looked at individually and not as a cohesive group.
The Mercury Autism Connection
Posted by Hopeful (Pasadena, Ca/usa) on 06/04/2011
Thank you for the information about vitamin B3. My brother is Schizophrenic, and yes nicotine is a must for him. Also, he too suffers from toe nail fungal infection. I will look into getting some b3 for him.
The Mercury Autism Connection
Posted by Hopeful (Pasadena, Ca/usa) on 06/04/2011
Thank you for posting all of these rays of hope. My 3 year old son was diagnosed with high functioning autism 6 months ago. It has been such a new world for us that has led us to feel overwhelmed and hopeless.
I heard about the gluten/casein free diet, and didn't understand how this could help Autism. In addition, the vitamins/minerals make sense. This site has helped me understand more and given me hope and motivation to do it. I am willing to try anything that is not prescription drug for my son's well being. Thanks!
The Mercury Autism Connection
Posted by Sheila (San Diego, Ca, Usa) on 06/04/2011
Hi Hopeful in Pasadena,
You may want want to visit the autism-related Yahoo groups online, particularly the Autism Bio Medical Discussion (abmd) group. There are parents and ASD adults posting on that 'board about diet changes, medicated therapies, as well as natural ones.
I'm a member of the abmd group as well as several others, a couple specific to CA, and I do not use prescription drugs to help my son. He is high functioning and his symptoms are considered 'mild' by the psychiatrist who diagnosed it.
HTH, Sheila
The Mercury Autism Connection
Posted by Gavin (Manganui, Northland, New Zealand) on 06/04/2011
Perhaps if B3 cant get to the brain due to some chemical abnormality in the digestive system.. The need to ingest the nicotine through cigarette smoke, might be some cell survival response. It might be worth finding the type of B3 they administered in the trial. If you google B3 and Schizophrenia you might find it.
The Mercury Autism Connection
Posted by Kaz (Sydney, Australia) on 07/16/2011
Im just wondering there has been a big push to link autism with vacinations but discovered some information on the net on various studies where there was a suggestion that children born through IVF are more likely to suffer autism, gastro intestinal disorders, childhood allergies, increased sickness and hospital stays and developmental delays compared to children concieved naturally. Seeing the comments regarding milk and dairy allergies and then improvements in children when reduced, and comments made about gastro problems. Has the autism and IVF link been made by autism charities or a study done to see how many children who have autism or autism spector disorders where born through ivf?
The Mercury Autism Connection
Posted by Francisca (Michelbach-le-bas, Alsace, France) on 07/16/2011
Kaz, according to a Dutch research babies born from IVF have 50% more chance of birth deffects. They have also discovered recently that babies born from frozen embrios are heavier and bigger than other babies. I don't agree with these ways of procriation but well, I suppose everybody has to know for themselves! I don't agree with a lot of things in this world, which doesn't mean people shouldn't do them! Other problems with IVF is that we are creating a generation of infertile people. They now know that boys born from infertile fathers have a lot of chance of being infertile themselves. And the first IVF baby in Britain is a girl who needed IVF herself in order to have her child. I am not sure whether we are solving problems or making more problems..... Just think that it used to be greatly the survival of the fittest, now is everybody's survival but won't we end up creating a very weak society? And it is not only IVF........ I find it rather worrying!
The Mercury Autism Connection
Posted by Maria (Gippsland, Australia) on 07/16/2011
Hi Kaz, There is not a lot of evidence re studies done on this subject, but it is now a big business so I don't think we will see many independent studies done on this. There are many IVF children being treated by natural therapists so I suspect there are more problems than we will ever know about. I started to take more notice after a relatives (IVF) child was diagnosed with autism. There are a lot more mild (for want of a better description) cases of autism but parents have found success with very early intervention. In Australia there is (or was, I'm not sure if it is still available) help of about $12k for continuing therapies but only for young children. This is because the earlier the intervention the better the results. Unfortunately my relative found out about this after their child was just past the cut off age. If people do go ahead with IVF they need to take as best care as they possibly can with their diet, supplements etc. Plus extra care for their baby/child particularly their gut health. There is a fantastic book called 'The NATURAL WAY TO BETTER BABIES by Francesca Naish' it is nothing short of fantastic. She also has other books and she is in Sydney.
A very simple way to get the answer would be if there was a study done where the Dr that diagnosed the child with autism answered the questions was the child was vaccinated, IVF or not vaccinated. We would then see if there were true links. A very simple study to do but one I don't think will ever happen. All the best, Maria
The Mercury Autism Connection
Posted by Smoitra (Kolkata, India) on 01/26/2012
@Shiva.. Can you please tell me what probiotics you are giving to your son... I am searching for probiotics in India.. It will be very helpful.. Also please let me know what anti fungal medicine you are using... Thank you for your help.
The Mercury Autism Connection
Posted by Autismspeaks1020 (Houston, Texas, United States) on 04/12/2012
We've been talking about the relationship between diet and children with
autism and ADD. It is entirely possible that a specific diet could help a child with these diseases (for lack of a better term), but it definitely won't compeltely cure them. I'm studying neuropsychology, and I hope to help find some help for the parents of children with autism in the future, but for now diet will only help so much.
Excerpt From Karyn Seroussi's Book
Posted by Salma (Birmingham, UK) on 12/06/2007
Dear Karyn Seroussi I am very excited to read all about your son's progress. I am starting my son's dairy & gluten free diet from today. I will let you know if hopfully I see any progress. I would be thankful to my sister who told about your letter & you for describing us your experience
Excerpt From Karyn Seroussi's Book
Posted by Chris (Chico, California) on 05/18/2023
Hi Karyn, that was an amazing story and one with a happy ending, something we could use more of. I am seeing a girl that has a 4 yr old boy such a sweet little guy and she thinks he is showing signs of Autism. I am trying to read all I can and offer advice and support for her and Felix. I would do anything to be able to help him get well. Where can I get a copy of your book for his mom? Thank you so much. Chris
