Posted by Bfsbitch (Salt Lake City, UT) on 04/06/2014
★★★★★
Hello fellow BFS sufferers. This disease is annoying. I will testify to that. I mean you're talking to a friend and your leg is going whabam and sometimes it's in my eyelid or even my stomach this worm skin feeling nerve twitch. Well concentrating on it won't help. I've found Carbamazepine, actually the newer, safer Oxcarbamazepine which don't require blood tests and is a anti-seizure drug had some effectiveness in eliminating my eyelid twitch. It did nothing for my stomach and leg twitch. Occasionally even my whole face will seize. What helps: being a scientist yourself figuring what works: sleep, magnesium, epsom salts, no wheat.
Posted by Day (Long Beach, California) on 06/13/2012
★★★★★
I feel for everyone that has posted on this site concerning this annoying, yet non-life threatening, syndrome, disease, occurance or whatever you want to call it. I am 43 years old and have had BFS since I was 9. I remember they day it happened and where. The muscle behind my right ear twitched violently for 2 days. I told my parents and they told me it was nothing to worry about. It kept me up both nights. I'd put my finger there but it did nothing to make it stop.
Yes, it is totally annoying. You never get used to it. My muscles are twitching as I am typing this. I've been to every doctor imaginable and I've tried every pill to include magnesium, potassium, and any other pill that people claim will MAKE IT STOP! But I still got it.
I definitely think it's a neuro thing because when I wake up or when my brain wakes up I immediately have a muscle jump somewhere.
Just last night I had a dream; it was funny so I smiled. Still dreaming, when I stopped smiling the muscles around my mouth started twitching so much that (while looking at myself in the dream) it looked like I was in a wind tunnel and I could not fix my mouth to speak. I woke up and from what I swore I could here my lips moving from my gums. It was wierd. I went back to sleep but I wish it could have been caught on tape.
My muscles have been twitching everyday, somewhere on my body for 33 years. Sometime for a second, sometimes for days. There is no cure but it won't kill you; it will only irritate the hell out of you.
Sorry to be the bearer of bad news.....
