The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Selsun Blue
Posted by Rich (Boca Raton, Fl) on 03/29/2009
I was told by someone with Celiac Disease that they used to get rashes break out under their eyes (due to the Celiac). He experimented with Prescription Strength (2.5% Selenium Sulfide) Selsun Blue. He no longer gets these rashes (but he also avoids Gluten). So Selsun Blue MAY help with the rashes associated with this disease. I heard from another person that this remedy cures Tinea Versicolor as well.
Multiple Remedies
Posted by Moira (Oregon) on 06/03/2014
Yes I would also like to know where you bought or got your L glutamine. I was taking that for a friend who does NAET type work trying to help me with my fibro and arthritis problems which seem intimately connected with my celiac problems. Going gluten free hasn't been enough. I just saw another guy who is hawking doing the SCD diet say that celiacs need to stay away from all sugar, soy, bad oils - canola, soy, sunflower, safflower, et al - and all grains which includes the gluten free ones. Also saw stay away from potatoes except maybe sweet potatoes.
I've done numerous NAET type treatments but seem to be getting worse instead of better. I took BioKult for awhile and that seemed to help but I have slacked off in recent months and that hasn't helped me. Taking coconut oil does. I have been looking at adding coconut water into the mix to help alkalize the diet. Someone also suggested drinking either lemon or pineapple juice but the lemon water with stevia seems like it would be the way to go as I have seen this as a 'cancer' alkalizing thing online as well. The glutamine was when I was doing heavy metal detox. Thanks.
Multiple Remedies
Posted by Dave (Fountain Inn, Sc) on 06/04/2014
Hello Moira,
Re: Celiac;
Perhaps the reason that going gluten free is not enough is that lectin proteins even in the smallest amounts can bind carbs in the gut. That then continues the problem. Also if damage is already done to the villi then again, the absorption is difficult.
If you are getting a carb source to which you are sensitive (white potatoes/ nightshades in general), then the carb/lectin issue would be blocking absorption even though you've cut out your detrimental carbs from wheat/oats etc.
So...solution...IF that is the problem and with ciliac prone people, the LECTIC issue is a key. Glutamine is one of the things that can neutralize the Lectin.
Google Lectin and numerous sites will explain the Lectin/carb binding issue. Why won't the villi absorb the carbs? Because the lectin is binding to the carbs and won't let the villi take up the sticky enlarged molecule. So lectin is acting like a poison.
Lectin can even cause some forms of food poisoning.
Look for products with glutamine in them. Vitamin Research has a product called Lectin Lock that does, but look for other anti Lectin products. (I'm not endorsing a brand. But there are four or five substances that can "bind" lectin, before it "binds" carbs causing deficiency in the absorption process.)
You're on the right track looking at Glutamine.
What enzymes are you taking?
General Feedback
Posted by Debbie (Saskatoon, SK Canada) on 03/05/2009
My brother has celiacs and we went to Dreams Resort and Spa in the Dominican Republic. The guest services manager was very helpful! She said that they would cook whatever was needed for any allergy. If you have any problems, contact the hotel guest services manager: Kerry Consentino
Gte de Servicios al Cliente/Guest Services Manager
Dreams La Romana Resorts & Spa
Tel.: (809) 221-8880, Ext. 3001
Fax: (809) 221-8881
[email protected]I hope this helps!! There is a great website as well with helpful information on traveling with celiacs: http://www.celiactravel.com/restaurant-cards.html
Dietary Recommendations
Posted by Luis (Miami, Ok, US) on 09/30/2012
Thank you for sharing your information. my girlfriend has really bad break outs on her elbows, knees, and even her rear. we have been trying to avoid gluten but it is really hard sometimes.
Dietary Recommendations
Posted by Andre (Boise, Idaho) on 06/28/2013
Kerry from Perth, Australia had written..."Note: Gluten is not the "Route" cause. Ask the question why can my intestines not tolerate specific foods. Is the answer a deficiency in the diet reducing the health of the intestines?"
- THIS IS WRONG.
Celiacs is when the body attacks the gluten in the body and as a result attacks the small intestine in the process causing a number of different symptoms. This is like any other allergy. Someone who is allergic to peanuts is going to have an allergic reaction to peanuts no matter what they eat.
Acid Reflux and Celiac Disease Link
Posted by Robin (Alamogordo, New Mexico, USA) on 03/28/2008
★★★★★
If you have reflux, get tested for celiac disease.
Aloe Vera
Posted by Catalyst Yogi (Naramata, Bc Canada) on 02/18/2010
Greetings, It's been 5 days after eating the dreaded commercial pizza and I am still feeling bloated etc. I have discovered the best remedy for me to helps soothe my inflamed intestines has been Aloa Vera. I feel I am well on my way to healing....
peace to ALL
Aloe Vera
Posted by Nora (Greer, Sc) on 02/04/2018
Thank you so much for your information. I was diagnosed with Celiac Disease about 3 or 4 months ago and I'm having a nightmare of a time trying to find my happy place! I also have Celiac DH which causes rashes fantastic right!!? And reading what you posted gave me some light.
Enzymes, Cat's Claw (Herb), Probiotics
Posted by Chris (Denver, CO) on 12/03/2006
★★★★★
I've had celiac disease since I was 2, but at the time the doctors thought I would grow out of it once I'm 7. I ate"normally" for about 12 years and a host of problems began. My intestinal biopsy showed scarring. My chiropractor (this is 20 years later) suggested to take extremely strong enzymes to handle the scarring and improve my nutrient intake, a cat's claw supplement and pro-biotics. (There are several really strong "systemic enzymes" to be found on the Internet). Note: I'm also sticking to the gluten-free diet. On the enzymes, I'm following one website that said to increase the amount by a capsule until I feel they are working. I've been taking anywhere between 5 and 15 enzyme capsules a day for about 3 months now and feel great! Also my nails look better and my hair has started to grow back (alopecia).
Dietary Changes
Posted by Chris (Florida) on 09/09/2019
P.S. The diet is called Specific Carbohydrate Diet (SCD)
Garlic
Posted by Mahnoor (Islamabad) on 02/22/2018
Did you really CURE the disease with garlic? What else did you do? What to do if kids as young as 6 and 9 seem to have the disease?
Garlic
Posted by Matt (London) on 06/01/2018
How long does take and how much should I take per day?
Garlic
Posted by n (germany) on 03/16/2021
Hi could you please, tell us more? What symptoms did you have, did you chew it or without chewing, swallow with water? For how many days? Did you get tested? Thank you
Where to Buy - Canada
Posted by Ed2010 (Canada) on 04/07/2014
Where to Buy - Canada
Posted by Nicole (Bakersfield ) on 08/27/2021
Does this bread cure celiac disease?
General Feedback
Posted by Tony (Tn, Usa) on 02/04/2014
Ipec
Posted by Liaura (Jerusalem, Israel) on 02/02/2013
★★★★★
I know someone who has successfully treated a celliac patient with a method called IPEC which has been developped in Israel and the US. I think you can be treated from distance as well (skype). I have used the method for various ailments and for me it has worked wonderfully. I believe it is not only a matter of method but of practitioner. Best wishes for a better health.
Wheat Varieties
Posted by Meime (Osaka, Japan) on 10/13/2012
Hi.. I beleive you about that different organic wheat varieties do not cause flare ups.. As when my husband got me some bread made by a different wheat type.. I had no reactions.... though I cannot remember that name now..~!!
Wheat Varieties
Posted by Tammy (Moose Jaw, Saskatchewan) on 02/23/2013
Hi. I do believe I have gluten allergy. Anyone in Sask know of good places to buy gluten-free products?
Wheat Varieties
Posted by Ed2010 (Oakville, Canada) on 02/23/2013
hi Tammy, you can contact Al from Alvena, Sk., Canada above... his email address is posted. It is better to try for cure, than to relieve the symptoms. He is also from SK. Good Health
Wheat Varieties
Posted by Nicole (Bakersfield ) on 08/21/2021
I know this post was years back or if this is even going to get back to you, but can you know anything else about the red fife wheat. As I am also suffering from celiac.
Multiple Remedies
Posted by Anon (Anon) on 09/13/2012
When I eat wheat I get a stomach ache, and gradually a headache. Drinking half a carton of heavy whipping cream makes the pain go away.
So does psyllium fiber supplement mixed in water (1 or 2 teaspoons in a large glass of water). Psyllium also works if I feel fatigued and foggy headed after I eat something.
Sometimes eating fresh ginger, maybe an inch cube, makes the headache go away.
Gluten Sensitivity
Posted by Mahim (Delhi, India) on 08/10/2012
I was tested for Celiac and Gluten. My blood test came out ok but whenever I eat any Gluten products I have some physical problems. Please give me your feedback what to use for gluten sensitivity. This is a wonderful website I found. Thanks to all wonderful people who is posting here and helping each other.
Gluten Sensitivity
Posted by Lisa (Thousand Oaks, Ca, Usa) on 08/10/2012
Hi Mahim, Although your blood came out "okay", the fact that you have a reaction to gluten products should be evidence enough that they are not good for you. Many people, more than realize it, are gluten sensitive. It can cause chronic inflammation in those who have this sensitivity. I have had several friends who had chronic problems that plagued them and then upon going gluten- free, all problems cleared up! Some immediately began to lose unwanted weight, others, their skin cleared up, stomach pain disappeared. It can be at the root of many issues. The best thing for this is to steer clear of gluten. Hope this helps, Lisa
Gluten Sensitivity
Posted by Prioris (Fl) on 02/07/2014
Those are reasonable ingredients for store bought bread. What I recommend with the pasta is make your own. First couple times you do it, it seems difficult but once you get the hang of it, it starts becoming easy. The manual machine that I have costs around $35. You have complete control of what you put in pasta and what you make it out of. Plus it tastes better than store bought. You can also make your own bread. This may allow you to find out what doesn't and doesn't effect you. The most simple pasta is just flour and eggs.
Gluten Sensitivity
Posted by Man (Sojouring America) on 02/08/2014
Thank you Prioris and Mama and Mike.
I appreciate the responses. I did not eat any grains last night and I feel fine. Eggs, scrambled, boiled, and I ate homemade sauerkraut and raw cabbage. None of that negativity mental state last night.
Gluten Sensitivity
Posted by Mama To Many (Tennessee, Usa) on 02/09/2014
Dear Prioris,
Thanks for the tip on improving shelf life of bread. I have not heard of doing that and will give it a try!
~Mama to Many~
Gluten Sensitivity
Posted by John H (Pa) on 09/18/2015
In regards to stale home-made bread: Lightly toasting a slice of stale bread will make it fresh again. Try it, you will be surprised in the difference.
General Feedback
Posted by Kristal (Redondo Beach, California, Usa) on 11/23/2011
I have recently learned that I have a gluten sensitivity and my husband has celiac disease (cd). I don't know if I have cd yet, but I plan on getting tested. I have recently read that gluten intolerance has been linked to over 200 diseases. I have GERD and get sick very easily. My husband is anemic and has chronic fatigue and ringing in his ears. It can cause many other issues like weight gain or loss, migraines, infertility, irritiable bowel syndrome. If ACV is not helping all your issues, I recommend getting tested for gluten sensitivity/intolerance. Your regular doctor can do a blood test, a holistic chiropractor can do a resistence test, or you can send a stool sample to enterolab.com (the most expensive option). Enterolab can also test for the gene for celiac disease.
General Feedback
Posted by Popa Tom (Arlington, Texas, USA) on 11/27/2011
kristil & hubby,
virgin coconut oil, [3.5tblspns daily, min. ] for cd,
coconut flour is gluten free.
good health & God bless
Gluten Sensitivity
Posted by Lisa (Coto De Caza, Ca) on 10/21/2009
I'm gluten sensitive also and have noticed that since I've been very strict off gluten, I am now more sensitive to accidental ingestion. HOWEVER, it didn't give me a autoimmune disease or anything else (probably since I already have Chronic Fatigue syndrome, mercury toxicity and other problems). Ingesting gluten on a regular basis may actually lower your immune since gluten can degrade the villi in your intestine. This causes nutrients from your food to NOT be absorbed.
I have heard that some people have gluten problems that affect the brain. I can't remember the name, but they have serious problems. For some, gluten cannot be broken down and will cause an opiod (sp) effect like those with autism. For some, it is in the gut.
Going gluten free has made my overall/ everyday health a lot better. Ingesting gluten gives me a stomach ache and fatigue the next day. Ingesting small amounts just makes me a little sick everyday instead of sick every once in a while.
Multiple Remedies
Posted by Allan (San Fernando., Trinidad) on 05/18/2013
Hi Susan, I have lost a whole lot of weight from some GI problem. I am now doing some tests to determine what it is. I need to to put back on the weight. What is the brand of L-Glutamine that you were using?
General Feedback
Posted by Dawn (Santa Ana, California) on 01/19/2009
I have a friend with 'wheat gluten intolerance" or Celiac Disease. He is getting married and would like to take his bride-to-be to a tropical paradise but is having a problem finding somewhere that can accommodate his dietary needs. Any suggestions?
Dietary Recommendations
Posted by Marjorie (Payneville, KY) on 12/09/2008
Under Dietary Suggestions # 1 from Autralia 9/2/08, the remedy that talks about butter, cream,ayurvedic remedy of a mix of ghee + ginger powder + some brown sugar & fat of grass feed sheep, etc. I would love the detailed remedy for gluten intolerence-- Marjorie
Aloe Vera
Posted by Eileen (Monroe, NY) on 11/16/2007
★★★★★
Aloe vera been using for 3 weeks now to heal from celiac disease - helped soothe and along with diet I'm seeing improvement
Aloe Vera
Posted by Somi (Doha, Qatar) on 02/14/2013
I have celiac disease, I heard ALOE VERA is best to treat this disease.. I want to know how to use it, should I take juice of ALOE or aloe gel? and how long I should take it to recover?
Enzymes, Cat's Claw (Herb), Probiotics
Posted by Christina (Bergen, Ny) on 11/27/2009
Where did you purchase the "systemic enzymes" that helped the growth of your hair. My husband has alopecia and would be interested in trying these enzymes. thanks.
Christina
Enzymes, Cat's Claw (Herb), Probiotics
Posted by Patty (Jackson, Ms) on 08/28/2011
PLEASE GIVE THE WEBSITE FOR THE ENZYMES
Enzymes, Cat's Claw (Herb), Probiotics
Posted by Kathy (Waukesha, Wi) on 01/21/2012
The best systemic enzymes on the market are sold at www.docsprefer.com by Dr. William Wong. I can't live without them.
Enzymes, Cat's Claw (Herb), Probiotics
Posted by Linda (Portland, Or) on 09/11/2013
Would you mind sharing the brand of enzyme product you are finding so helpful?
Paprika Spice
Posted by David Miles (Tegcuigalpa, Honduras) on 09/26/2010
Has the papkira spice added to your food eliminated the gluten problem?
