The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
DBS (Deep Brain Stimulation)
Posted by Joseph (Stockton, CA) on 06/26/2021 73 posts
★★★★★
This post pertains to Schizophrenia patients who are medication-resistant.
There is now available DBS Deep Brain Stimulation, it is safe, appears to be helping significantly, however there is an implanted device entered deep in the brain. Many patients are turned off by this, yet some want the relief of auditory hallucinations (voices) and will try anything to rid them. Medicare appears to pay the bill of $35,000. The advertisement has not been prevalent therefore I am posting.
Niacin and Vitamin C
Posted by Tay (Boulder, CO) on 06/25/2021
★★★★★
Hi, I too use the Niacin and have for decades. You need to use the Niacin that CAUSES the flush and not the flush free brands or it will not work for mental issues. We learned this the hard way with a family member's illness.
Also, it does not work unless you take the Vit. C with it at the same time.
B-3 Vitamin Therapy
Posted by Rekha (San Ramon, CA) on 04/14/2015
Could you guide me on which book to buy? Dr Hoffer has written several when I googled. Thanks.
B-3 Vitamin Therapy
Posted by Sharon (Miami, Fl.) on 08/23/2012
Hello Consium from Holland: I am doing Dr. Hoffer's B3, Niacin treatment plan with my 20 yr. old son who is autistic and developed schizophrenia in the last year. I found a doctor who follows his program and the first thing he told me was that
in his experience niacinamide was not effective in treating schizophrenia so he had me start my son on pure niacin. We started with a 250 mg. Dose increasing by one 250mg pill per day. There was a little bit of flushing as he reached higher levels but really very little.
I know this sounds crazy but my son is up to four doses a day taking a total of 13,750 mg. The doctor regularly monitors his blood to check his liver and kidneys and he is fine. Dr. Hoffer states that, "The keys to taking niacin therapy are quantity, frequency, and duration. "
Here is a link where Dr. Hoffer talks about doses. See page 193, 2nd column, 3 para down.
http://orthomolecular.org/library/jom/2008/pdf/2008-v23n04-p191.pdf
Dr. Hoffers book, "Niacin, The Real Story", says, "As there is a certain, large amount of fuel needed to launch an aircraft or a spacecraft, there is a certain, large amount of a nutrient needed to cure a sick body. With vitamin therapy speed of recovery is proportional to dosage used."
His book is really excellent and available from Amazon.com in Kindle format. Good luck.
B-3 Vitamin Therapy
Posted by Citygirl27 (Richardson, Tx, Usa) on 08/27/2012
Also, refrain from "flush free" niacin. It is useless and has no effect. The flushing is actually very good for you, super for your skin as well as your veins, among other things.
B-3 Vitamin Therapy
Posted by Rm (Sedona, AZ) on 09/07/2014
Be careful about the form of Niacin you take. Abram Hoffer recommended 1000-3000 mg but of a certain variety. Niaspan or Endura-cin are the best, immediate release is good, with time release the least desirable as it is liver toxic.
B-3 Vitamin Therapy
Posted by Anon (Usa) on 06/09/2018
Coconut oil and its variations, organic, cold processed, get the best you can find as there seems to be adulteration in the industry. Heat a spoonful of the oil on the stove and if it takes on a foul smell use another brand. There is a jar of coconut "butter" that seems best to me. It is nut butter but pureed coconut oil and flesh. Turmeric, fresh if possible (get a blender to make smoothies raw turmeric + fresh lemon juice + sweet fruit like orange to make it taste good). Raw ginger may help. Raw garlic however you can get her to take it. Kefir. Ginko and st. johns wort.
B-3 Vitamin Therapy
Posted by Rose (Md) on 11/18/2021
Thank you. Following Dr Hoffer's recommendation. I tried niacin powder on and off for more than a year. I had a severe allergic reaction. Red from head to foot, blue extremities. Skin itching unbearable, couldn't even touch my skin. Called poison control, it was that severe. But kept on trying, thinking it was the normal flushing reaction. Well after my last try my bil who is a nurse told me not to take it he said I could go into anaphylactic shock. I will now try the no flush niacinmide based on your results.
General Feedback
Posted by Faith (Forest Park, Ohio) on 12/24/2011
The ANSWER is a HIGH FAT DIET, specifically do the Gut and Psychology Diet (GAP) or the Specific Carb Diet (SCD) but add plenty of high fat foods, ESPECIALLY organic coconut oil. The illness is caused by microbes and these diets address the microbes by using meat and bone broths to introduce the minerals that we are missing in our GUTS to heal ourselves. There is a direct correlation between INTESTINAL HEALTH and BRAIN HEALTH... it is what we eat that is making us crazy and anxious and paranoid, etc.
I do want to emphasize though, ORGANIC COCONUT OIL must become a stable in the diet along with olive oil and real butter and raw milk and eggs if you can get them... Try to find a COOP in your area, it will make a world of difference in your health.
The bone broths are cooked all day, for two days in a crockpot. There are various nourishing traditions blogs by people that have plenty of recipes and information on how to make the broths and sites on the specifics of the diets so you won't have to purchase a book if you don't want to...
Please cross-reference this post with other MENTAL/PSYCHOLOGICAL disorders... and for healing of many illnesses.
Here's to a year of better health for us all!
Happy Holidays!
General Feedback
Posted by Slim (Miami Florida) on 01/01/2014
I have been trying to treat my 28 year old son, diagnosed with schizophrenia for 9 years. I have always been a naturalist and did not believe in the harmful medicines prescribed, but he has taken them on many occasions, or been shot up with needles in the Crisis unit of the hosp.
The medicines change very little with him, sometimes surprised that he is the same in 4 days he spent in Crisis unit. His hair test indicates he is not low in Zinc or high in copper. I believe I had the correct test done to show his histamine was within range.
He is talks to himself in about 3 voices, answers back too. He is very uncooperative with everything. I pay him to take the supplements, but cannot get him or afford to pay him more than 1 times a day. Any suggestions
Thanks, Beverly from Miami Florida
General Feedback
Posted by Alan (Amsterdam, Holland) on 08/03/2009
Hi, To those who hear voices, place a soundrecorder or microphone close to your head. Play back what you've recorded, and you may hear the same voices, amplification may be needed. I have discovered they're entities, I got the voices after some EVP sessions, saying exactly the same words on the pc as in my head. The world must know, don't expect answers from science, they'll never accept a supernatural explanation, people must figure this out themselves.
B-3 Vitamin Therapy
Posted by Mary (Victoria, Bc) on 05/23/2015
Patients who have thyroid problems should stay away from Seroquel. I was given Seroquel even though I have thyroid problems when I was admitted to the hospital almost a year ago. The seroquel will cause the thyroid medicine not to work as well. Google and see for yourself.
General Feedback
Posted by Lisanna (St Catharines, Canada) on 02/27/2008
I liked the bio Dawn shared with us about her awfull ordeal with SZ . It was concise simple and practical. Something a layperson could understand or even better by someone with SZ.This is actually the point of my commentary. Dawn mentions her frustration with nobody in the medical community explaining her illness to her. Personally that would terrify me more as well as make me angry. I am an acupuncturist who dated a lovely man with SZ for 15 months. He was medicated relatively stable but obviously unwell. I openly discussed his illness with him asking him more personal questions as well as medical ones. This poor man knew nothing nor did anybody apparently know anything about him. Although on meds voices was very bad making him cautious and isolated. I offered him acupuncture .The results were instant after fist treatment he experienced total silence for the first time in 18 years .Treatment lasted up to 3 to 4 days at time .(Although overjoyed initially adjusting was Hard for him )He continued also with his meds .I also made some minor adjustments to his food habits . Coffee act...he drank up to 18 cups a day. Got him down to 4 .This and the Acupuncture combined stopped the severe tremors he had. We thought they were due to meds but were stressed related. Being a cautious person I was moving slowly to broaden our natural approaches. After 9 months he was inspired and also wanted to do therapy. He changed psychiatrist. On first meeting he seemed so well that this med suggested his diagnosis was grossly overboard. He stated he would take him off meds altogether in the very near future ,and that with counseling his longer term prognosis was very good .Well so many radical' improvements in his physical and mental health including this meds hasty' comments S chose to go right off the meds . It took 3 weeks for him to have a major psychotic episode .The change was so swift he took my advice for only a short time later. By then he was refusing acupuncture claiming I was hypnotizing him hence giving me the power over him to change him so. Things got progressively worse .By Dec he'd had 2 hospitalizations. When released he got worse .The paranoia's escalated for him to a point of terror and rage directed at me .He quite brutally amputated the relationship Dec 21. He blocked my phone number .I did not see him until mid February going to visit him unannounced. I could not stand anymore worrying about him .It was disastrous he is worse. Now the heartbreaking part here is this man had a chance to get well. He was eager to try new things and learn .However me trying to teach him what I could was significantly made less effective by the fact that after more than a year of nearly daily research, I did not find a single article of information on schizophrenia addressed specifically to the actual patient. It seems the allopathic community only share indebt information with each other, and often the very good or recent findings are only available to them via subscription to the site on the condition that you are qualified by their defining standards to do so. As well the information for friends and family are superficial in content. Where is the information for the lay person who needs to learn and is not versed in so much obscure scientific jargon. Myself having a non allopathic degree in medicine still have the fundamentals. I find the recourses difficult and get by continuance cross referring and having to look terminology up. Dawn is right in stating that in her experience often this illness is stigmatized still and far too many suffering clients are treated by far and large as if they were "stupid" .There are many highly intelligent individuals out there afflicted with this tragic illness wanting recourses and finding none. I use the word tragic because the lacking availability of information on their illness and current varied modes of treatment is not shared with them .Resulting in much life long suffering. At best they are maintained whereas a broader field of presented forms of treatment often would make a significant difference in their quality of life. Not withstanding that many patients at moment are benefiting from the pharmaceutical approach, allot more investigation needs to take place on the results of altering biochemical imbalances via nutritional and other alternative methods of medicine. I find myself at moment laughing at my own influencing by the present status quo of mistakenly identifying neutrino as a form of alternative medicine. Mother Nature does shudder and rightly so. The old adage we are what we eat should become more familiar. At the onset all life on earth follows that any organism is dependent on a set of other organisms. Nature takes from nature - humans we can identify ourselves as a part of nature hence the same applies. Yes there is more to be tapped into than what most doctors generally present us with. I would like to see allot more information tailored and directed specifically to those diagnosed with schizophrenia. Easily found straightforward and comprehensive. Written clearly for the patients and the average layperson .Many of us are looking for that. We need to understand what ails us and what treatments are available to us. How they work on our bodies and the possible pros and cons. This would be a huge asset to us .As well as making it easier for us to explain to our practitioners what treatments we have followed and how they affect us. Thanks Dawn for sharing your experience and sentiments with us. I can barely imagine the suffering you went through. I, loving and standing by the side of a wonderful man, clearly suffering in great distress; confused and frustrated by this illness was hard. I cried daily and still do just witnessing the pain I did. Those of us who are personally linked and loving an individual with schizophrenia also need this information. Even after the first psychotic break of my close one, there was a window of opportunity of six weeks where he wanted to educate himself and explore something else he might immediately try. His cognition was still sufficient but his paranoia about me being heightened he did not want to take my word for anything. I would have needed to present him with the official type of information I have mentioned above. The window of opportunity is now closed. We might have been spared allot of lasting grief. There is nothing I can do and this hurts. No one in his environment, family and friends, including his medics are informed either. What will happen? In closing I would like to rally you all into expressing your questions and concerns confidently to the doctors who attend you. This is your right you are bright people that can grasp this and dismiss any ignorant attitudes. Encourage those close to you to do the same. Read the longstanding unrevised Hippocratic Oath. This is your medical community's promise to you on how they will attend to your care and in what spirit. If you are a fractioned reread the unrevised Hippocratic Oath. It is lovely and should inspire you.
Respectfully, Lisanna Garrett D.O.Ac
Orthomolecular Treatment
Posted by Barthez Francis (Toulouse - France ) on 06/27/2023
★★★★★
B-3 Vitamin Therapy
Posted by Joe A. (Stockton) on 06/13/2021
★★★★☆
What do schizophrenia people take for voices? I give B3 2,000-3,000 3x daily (no it isn't that much), but voices are present, curious what others take.
Niacin and Vitamin C
Posted by KT (Usa) on 11/25/2018
I have a Nutrition Almanac that declares all B vitamins should be taken together. A large dose of any one is reported to be therapeutically valueless or may cause a deficiency of the others. You might try a B Complex formula and magnesium.
The NA also reports individuals who consume excessive carbohydrates (refined starches and sugar) are likely to develop a vitamin B deficiency. Avoid whole grain bread and/or any wheat products and the last meal of the day should be at 5 PM, not eating anything after 6. A little warm milk before bed with a 250 mg. tab of magnesium may help sleep.
KT
Multiple Supplements
Posted by Candance (Nebraska) on 06/20/2015
★★★★★
We moved my son to Colorado and found high CBD cannabis for my son to try and it really helped him to function more normally. We first tried cannabis with high CBD with little or no THC and it worked somewhat but we ended up finding cannabis with about 16% CBD AND 9% THC works the best for him. This is in conjunction with the supplements I posted above.
Multiple Supplements
Posted by Gail M. (Pottstown, Pa.) on 06/26/2021
Studies done in 50's in a Rodale book (prevention magazine) used high niacin (not niacinamide) in divided doses to reduce flushing with high vitamin C (at least 5 grams(read Linus Pauling). Wean him off anti+ depressants slowly. Most schizophrenics smoke. Nicotine seems to help them. Best wishes.
Multiple Supplements
Posted by Joseph (Stockton, CA) on 06/26/2021 73 posts
Schizophrenia voices, using Orthomolecular medications for my son I have experimented with large doses of B3 Niacin (with the flush) 9,000mg divided dosages, coupled with 9,000mg of Vit C, coupled with other supplements and have never known of a reduction in his voices, therefore now I only give 2,000mg B3 in AM & PM.
B-3 Vitamin Therapy
Posted by Had (White River Jct, Vermont) on 08/24/2012
You should look up the difference between Niacin and niacinamide. One is manmade and one is not. I've researched this myself. Take care.
B-3 Vitamin Therapy
Posted by Kmbrown3 (Chicago, Illinois) on 12/11/2012
Hi Sharon, how is your 20 y/o son doing with the Niacin treatments... Do you see improvements? Also what were some signs that you knew he was ill? I have a family member who I suspect may be schizophrenic now and I'm very curious what steps to take to get him help. He's 20 as well. Thanks :-)
B-3 Vitamin Therapy
Posted by Clint (Rochester, Ny) on 02/05/2013
Along with niacin, I found you should double the amount of c, but you also shouldn't do more than 5000mg to be on safe side.
B-3 Vitamin Therapy
Posted by Fraise (Texas, US) on 12/14/2014
Hello, I finally found Dr Hoffer books about vitamins and schizophrenia at Barnes and Nobles for around 14 dollars. All his books are there, as opposed to Amazon selling just one book for over 100 dollars; weird.
B-3 Vitamin Therapy
Posted by Rm (Sedona, Az) on 03/18/2015
Sir- It's been awhile since your post and I hope you are doing well. If you haven't already found the work of psychiatrist Abram Hoffer, please read his book 'Niacin, the Real Story'. You may need up to 3k mg or more of niacin (regular flushing kind is best) and absolutey have to avoid wheat. Schizophrenia per Hoffer is actually pellagra dementia.
B-3 Vitamin Therapy
Posted by Desperatemom (Richmond Hill, Ontario, Canada) on 07/15/2012
Cordell, I wonder how long you were on the 2g-3g per day of Niacinamide supplement before you stop or switch to a maintenance dose. In your worse situation, did you get into a nervous breakdown ? My son has a lot of symptons similiar to yours, except he sometimes get to a nervous breakdown in a manic episode. GABA 500mg can calm him down but I want to try the B3 remedy. I appreciate if you can response and update your current situation.
B-3 Vitamin Therapy
Posted by Caridad (Miami, Fl) on 06/08/2018
I would like more information on this. My mother was diagnosed with paranoid schizophrenia about 4 years ago and she has been taking different antipsychotics which I see don't even work for her and I don't want her to continue decaying. Please help me heal her.
General Feedback
Posted by Amy (Ontario, Canada) on 11/17/2009
Based on the works of Abram Hoffer, M.D., pioneer of nutritional psychiatry, as reported in Nutritional Influences on Mental Illness by Melvyn Werbach, M.D.
The following dietary and nutritional regimen is reported to have over a 90% success rate with patients who are ill for the first time or who are suffering their second or third episode with healthy periods in between. It is reported that after two years over 90% will be well, none will be worse, and none will have tardive dyskinesia (drug-induced involuntary muscular movements). They will have to remain on the regimen many years, perhaps their entire lives.
For chronic patients - those who have failed to improve from previous treatment, including those mentally disturbed for years (although not the chronic patients seen in the back wards of mental hospitals)- about 50% will improve after 10 years. However, not all will be working.
These results are based on:
Six prospective double-blind studies. 1
Personal observations of over 4000 patients.
Studies conducted by colleagues.
Letters received from patients who were never personally seen but tried the treatment program.
DIET:
Elimination of all processed or prepared foods containing added refined sugars and probably 90% of other additives, as foods that contain added sugars usually contain other additives.
Elimination diets to remove all foods to which the patient is allergic or sensitive.
SUPPLEMENTS:
Vitamin B3 (niacin or niacinamide) 0.5 - 2 grams 3 times daily.
Vitamin B6 (for many) 250-500 mg daily.
A general B vitamin formula.
Vitamin C, 3 or more grams daily.
Zinc (gluconate or citrate) 50 mg daily.
Manganese 15-30 mg daily (if there is danger of tardive dyskinesia).
I also use omega three essential fatty acids rich in EPA and less rich in DHA. The best preparation contains three times as much EPA as it does DHA. I use four large capsules twice daily.
General Feedback
Posted by Lola (London) on 01/02/2014
Slim, check for an excess of Pyroles by ordering a urine test. It sounds like he may have pyolyria. Check out the mood cure by Julia Ross, or depression free naturally.
General Feedback
Posted by Jillery (North America) on 01/02/2014 86 posts
Check the book Nutrition Power by Dr. Walsh. My shrink suggested it to me (uses diet and supplements only). There is a chapter in there about Schizophrenia. I hope this is helpful.
General Feedback
Posted by Thehandyman1947 (Ohio) on 01/03/2014
General Feedback
Posted by Casey (Poland) on 12/06/2014
You can crush vitamin tablets.. and add to persons meals. Tomato sauce , and especially chilli dish , conceal the vitamin flavors. you can add vitamin B3 to lemonade..or fruit shakes, yogurts, Figure out the person's favourite dishes and then add
Gluten Free Diet
Posted by E (Bklyn, Ny) on 11/15/2009
schizophrenia and gluten free: I did hear from a psychologist that trying to be Gluten Free is going to be something that people will be recommended to try.
General Feedback
Posted by Schzophonic (Davie, Florida) on 09/27/2009
I did that with my brother but he not only hears the voices but everyone else does too.
General Feedback
Posted by Nivre (West Covina, Ca) on 12/18/2010
Your comments may be true, but they don't help and science is not interested in finding out.
General Feedback
Posted by Joseph (Lajolla, Ca) on 09/24/2011
A mixture of copper, gold, and magnesium to mute the "psychosis". Google "metallic ear plugs".
Gluten Free Diet
Posted by Danielle (Bratt, Vermont) on 04/16/2008
★★★★★
I myself have schizoaffective a type of schizophrenia and I am gluten free. no sugar flour and wheat. when I went back to those foods I was sick very quicly. the diet works well for me. I tend to become overweight also adn decompensate quickly under stress and with the wrong foods. without b-complex vitamins I am also in a bad spot. I try to keep up with everything. I take a b complex, fish oil, green juice and a multi. without the supps I am pretty bad off. I have hallucinations and things like that. delusions. I become very psychotic. I may add that I also need antipsychotic and mood stabilizing meds. currently I do not require an antipsychotic med. I take that where necessary.
Gluten Free Diet
Posted by Mary (Nevada City, CA) on 03/06/2006
★★★★★
This helped a young man I know of. There is research coming out on this. Many or most schizophrenics are also celiac - but they don't know it. I also have another friend who's brother was homeless in NY and later committed suicide. The family was able to stay in touch with him somewhat (a caring family) - Somehow they learned (possibly from medical records after his death, I don't know) - that he was also celiac. I am sure he did not follow the gluten free diet. It would be nearly impossible as a homeless person. A very reliable web site on the latest research is
www.celiac.com (please don't edit out the web site! It is similar to this site - it is there to help people!)
Not all celiacs are schizophrenic - in fact only very few are - but the reverse case is that all or nearly all schizophrenics may be celiac. This can cause severe vitamin and mineral deficiencies because the small intestine is damaged - so in the schizophrenic cases it must be the areas of the intestine that would take in nutrients for the brain
Gluten Free Diet
Posted by Jodi (Tampa, Florda) on 01/17/2009
★★★★★
Schizophrenia and celiac disease: I just listened to Nutrition & Behavior: A Lecture By Russell Blaylock, MD (you can buy it on his website Russellblaylock.com).
He cited a study of schizophrenics who had gluten and gliadin removed from their diet and were 100% recovered. When the gluten and gliadin were reintroduced to their diet they became schizophrenic and had to be hospitalized again.
Turpentine
Posted by Madelyn (Idaho) on 12/11/2024
Pippy, thank you for sharing your experience with helping your daughter. Thank goodness she's recovering as that must have been extremely troubling to have happened.
I downloaded the book you mentioned and it is very interesting.
I wanted to ask how you came up with the idea of rubbing turpentine on her feet. I was also wondering if you continued using just 4 drops internally in her juice when you upped the number of drops that you applied to her feet.
I hope she's well now.
Niacin, Vit C and Red Pumpkin
Posted by Elaine (Santa Clarita, Ca) on 11/05/2018
Where can you buy Red Pumpkin? I searched the internet & found no information.
Multiple Supplements
Posted by Edwards (North Carolina) on 10/21/2015
Please keep you information flowing to us that are also desperate. Thanks!
Multiple Supplements
Posted by Carol Petersen (Wisconsin) on 06/25/2021
DPP-IV can help with mast cell problems. Here is a monograph from a lab that tests for this:
https://www.greatplainslaboratory.com/dppiv
A product that has the highest level of DPP IV in the industry is Glutaxym by US Enzymes.
Contact them if you are interested.
Multiple Supplements
Posted by Gail M. (Pa) on 06/26/2021
I have studied nutrition for over 50 yrs. I have studied my Bible longer. I believe in healing. This needs Godly intervention. Jesus heals. I have prayed over many.
Multiple Supplements
Posted by Joseph A. (Stockton, Ca) on 06/25/2021 73 posts
@Pippa,
I just joined, am following Candace, I read your message regarding taking Benadryl, I wanted to inform you that Benadryl has been used for years (40's thru 60's) as a sleeping pill, take 50mg go to sleep, wake up middle of the night, take another to fall back asleep. Not habit forming, however long-term use can cause memory loss.
The same as Valiums (Benzodiazepines) they work great for weeks, however Benzos are Addictive, extremely hard to quit (can't cold turkey these, will end up in hospital) they are only for short-term 4,5 weeks, however, Drs do prescribe for years, then the tapering off comes into play being painful, dangerous, even Death can occur. Years after withdrawing from system you can have relapses. I am not familiar with your story, however, I have posted about Serpina (Indian Snakeroot) great for psychosis, calms the mind, Anxiety, insomnia, however, interacts with Antipsychotics, cold flu medicines like Benadryl. 1934 was used for hypertension, so it may lower it a little if you elect to use. Thank you. Joseph
Multiple Supplements
Posted by Joseph (Stockton, CA) on 06/25/2021 73 posts
Hi Candace, I am new and can relate to your posting. My thought is have you ever considered signing up for Go Fund me Acct? I tried once years ago but after several months not one reply, but that was then.
Remember before taking a new product you must thoroughly Google if any interaction(s) with anything he's taking now. Thank you, Joseph
Multiple Supplements
Posted by John Claydon (UK) on 06/25/2021
You can try both GABA a heaped teaspoon in water or juice twice daily also L-theanine these both work to calm the nervous sytem and are anti glutamate/anti stimulation of neurons.
High dose vitamin B3 has proved v useful in Schizophrenia or if that does not work, NADH can work. There are plenty of good CBD oils available. My company has just started marketing a v potent one I can send you free as we do not supply out of UK.
Multiple Supplements
Posted by Michael (Martinez, CA) on 05/07/2023
Thank you for your experience, Joseph.
Multiple Supplements
Posted by Batya (Israel) on 05/15/2018
Thank you. My son is 32 years old with schizophrenia since he is 16. He is now at a point where the side effects of the medications are worse than the disease. The solution of one doctor is to put him on Leponex which is a really bad medication that requires weekly blood tests for 18 weeks.
I surely want to try natural stuff before I embark on such a dangerous mission.
Multiple Supplements
Posted by Michael (California) on 05/07/2023
Try to stay on your meds. They are scientifically and statistically proven to improve your quality of life when you have schizophrenia (or any mental illness).
Check supplements with your doctor. They will say all good don't worry about supplements, but some have some good scientific research behind them, and you should always check that sort of insert-into-my-body thing out with your doctor.
Mike
Gluten Free Diet
Posted by Anonymous (South Pasadena, California) on 04/08/2009
★★★★★
Hi Everyone: I am was diagnosed with paranoid schizophrenia six years ago. At the time I believed the conspiracy theories out there that the meds for schizophrenia caused your brain to atrophy. Now, I know that studies have proven the opposite, that antipsychotics are essential to preventing or curbing the brain atrophy associated with schizophrenia as it is a degenerative brain disorder. Anyway, at the time, I tried high doses of Niacin and b-complex and magnesium, all to no avail. The only thing which took away the voices was antipsychotics. Unfortunately, they didn't take away all of the voices. As time went on, I realized that gluten made my fibromyalgia symptoms flair something terrible so I stopped eating all gluten. Around that time, the residual voices my meds weren't taking care of went away. So, now... after reading about gluten on this site I wonder if the gluten free diet helped with my voices.
BTW: I also eat large quantities of soy and estrogen has been proven to help women sz's. As I'm sure many of you know, soy is estrogenic. Now, I only hear one or two words every six months to a year and they are not nerve wracking like before. I am so grateful. Unfortunately, I get very fatigued between the sz meds and pain of fibro. Luckily, I discovered by accident really that taking 2,000 mg of B-12 and 2,000 mg of Inositol a day along with 600 mg of B-6 helps the fatigue to the point where I nap for about half of the time to no time on a good day. I will also say that for women taking antipsychotics you may find that you are producing a little breast milk. B-6 helps with this a little if you take 300-600 mg a day. Talk to a doctor first though as high doses of B-6 are linked to possible neuropothy. I will also say that if you have akathisia from the meds, (a movement disorder which causes you too pace and shake feet and fidget)... Stopping all caffeine took that away for me. Thank G-d for the meds and thank G-d for having discovered these few things which help with some of the side effects. Also, I started taking Armour a natural thyroid medication to deal with weight gain associated with the meds. I'm not necessarily advocating this though because it can lead to osteoporosis eventually if you get into the hyperthyroid range.
Hope this helps someone.
Sincerely, Anonymous
Gluten Free Diet
Posted by Anonymous (South Pasadena, California) on 04/10/2009
P.S. I was tested for celiac disease a while ago and the test was negative. So, you can't say all schizophrenics are celiacs. I do happen to have a sensitivity to gluten though, pain wise. I will also say that the gluten free diet alone isn't sufficient to keep voices at bay... I absolutely need medicine and I believe this may be the case with many if not all sz's as the medicines minimizes the brain damage the disease itself causes even if many other things can be treated naturally. In other words, in my case a gluten free diet and b vitamins couldn't cure me but the diet might have helped. All the best.
Sincerely, Annonymous
General Feedback
Posted by Vicky (India) on 01/09/2015
Hey. can you please elaborate on benefits of acupuncture in controlling voices. Did it stop completely after the session? How frequently it should be done in similar cases. Now a days dry needling is in; does it also help?
Niacin and Vitamin C
Posted by Pradeep (India ) on 11/17/2018
★★★☆☆
Schizophrenia - pls help - where are we going wrong with Niacin and VIT C
A cousin of mine based in India has been on schizophrenia medication Benzyzine last 25 years and made a miraculous recovery. Now last 18 months she has reduced her medication on her own and is on 1/4 so the symptoms have returned in a passive manner - she does no work and is not productive. I read all of Dr Hoffer's books and we tried introducing small particles around 10-20 gms in her food and drink (she catches any higher quantity). Niacin B3 did not help - he complains of rise in BP; Niacinamide did not help - she was unable to sleep - We are now trying Inositol Hexaniacinate.
With VIT C she complains of high BP
Where are we going wrong? I am seeing a LOT of Copper related issues in schizophrenia.
The above subject has grey hair and hence it looks like he has both copper toxicity and copper biounavailabilty and imbalance
Niacin B3 is NOT working and I know it will work but we are not doing something right
Could someone please help? thanks in advance
Niacin, Vit C and Red Pumpkin
Posted by Trish (Virginia ) on 11/30/2023
Where do we find red pumpkin? What amount should we give? Thanks
Multiple Supplements
Posted by Naturallygood (N Ireland) on 01/13/2016
You have done an outstanding amount of research, my son has the condition so I have done likewise. I had read about Niacin supplementation but unsure if it would affect negatively the antipsychotics he has been taking for years. Thank you for sharing your information, much appreciated.
Multiple Supplements
Posted by Leena (Arizona) on 06/27/2016
Dear Candance,
Would you you please tell us more about the current treatment for your son. Some of us really need help. Thank you so much.
Multiple Supplements
Posted by Nichole (Usa) on 12/12/2016
Hi THANK YOU for sharing your regimen and story...can you please tell me the dosage for Trehalose and what strain you found with that ratio of THC to CBD?
Multiple Supplements
Posted by Gary (Georgia) on 06/27/2021
Has your son been tested for autoimmune diseases?
For the anxiety, you might want to try red kratom. For more on kratom, go here: kratom.org
Multiple Supplements
Posted by Kelly (Laguna vista, Texas ) on 10/13/2024
Hello, I wanted to see if you have an update on your son's condition? It's almost 9 years after you posted this information I have a daughter needing help also and I wanted to see what has helped your son the most? Thank you
Multiple Supplements
Posted by Jennifer (San Diego, CA) on 10/18/2014
From a 2009 article:
Decades of research has found a relation between mental health disorders and zinc. In the 1970s Dr. Carl Pfeiffer reported that taking zinc and vitamin B6 supplements were 95% successful in managing over 400 cases of schizophrenia, according to Raymond J. Pataracchia B.Sc., N.D. People with one type of schizophrenia have a condition called pyroluria. This means they have an abnormal amount of chemicals called pyrroles in their body. About half of schizophrenics have this health problem. Pfeiffer's work has since led to thousands of people with pyroluria being successfully treated with zinc and vitamin B6 at the Institute for Optimum Nutrition in London and the Earth House, near Princeton in USA.
http://extrahappiness.com/happiness/?p=1877
Helpful Books
Posted by Leah (Philly, Pa) on 07/10/2013
Hello, I'm reading a book by Harold Foster on alternative treatments for schizophrenia. There are different forms of the illness and therefore different nutritional approaches. The main concern is that, while there are definitely genetic aspects of the disease, these can be mitigated through early nutritional support and social support. A low sugar diet, low allergy diet such as paleo (no grains, no dairy) plus a high intake of antioxidants and B3 niacin, and B12, should show improvement if not remission. See more in the full book here: http://www.hdfoster.com/sites/hdfoster.com/files/users/user10/WhatReallyCausesSchizophreniawithp54.pdf
General Feedback
Posted by Cristi Copac (Romania) on 06/08/2024
My experience. It's a contact with the spirit world. You must have gods and holy books. Example books on the astral :The Astral Plane by C.W.Leadbeater, Legends of Ancient Greece and the Bible. They can make you see spirits and hear spirits. Jesus Christ and Muhammad were schizophrenics . They heard voices and solved their issues by being prophets.
1 in my experience I found out that there is a reason for your schizo. You are wanted by the astral in some way. Most shamans became shamans by force. I have my healing spell by the candle. If you manage to find out the reason your are partially healed.
2 Prayer. I prayed to the universe 100 times per day by the candle. The spirits have your ears and your eyes, that is how they can give you visuals and audio. I prayed for clean eyes and clean ears. Be honest and a good person and don't summon demons with your mind. Some people summon demons and wonder why they have schizophrenia. Prayer is an effective tool to have.
3 Sage or frankincense. You burn it and with your imagination you give the smoke to your ears and your eyes and your head. You imagine that you heal your head . Invaded by smoke. Healing smoke.
