Table of Contents
Hidradenitis Suppurativa Remedies
Hidradenitis is a chronic disease of the apocrine glands (sweat glands found on certain parts of the body) and hair follicles. These glands become plugged or clogged. The condition causes chronic scarring and pus formation in the underarm, groin and/or inner thigh areas. In women it can also occur under the breasts. Hidradenitis begins with a red, tender swelling in the groin or armpit. Over time the lesions enlarge and burst open at the surface, draining clear to yellow fluid.
The poorly understood disease is under-reported by those who suffer from it. However, there is some research suggesting changes in diet, warm compresses and baths, and zinc gluconate supplements can relieve symptoms, bring about remission, and/or minimize recurrence.
DISCLAIMER
Our readers offer information and opinions on Earth Clinic, not as a substitute for professional medical prevention, diagnosis, or treatment. Please consult with your physician, pharmacist, or health care provider before taking any home remedies or supplements or following any treatment suggested by anyone on this site. Only your health care provider, personal physician, or pharmacist can provide you with advice on what is safe and effective for your unique needs or diagnose your particular medical history.
POPULAR REMEDIES:
| TURMERIC | 27 YEAS |
| ANTIBACTERIAL SOAP | 6 YEAS |
| GENERAL FEEDBACK | 6 YEAS |
TED'S REMEDIES
Ratings:
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04/19/2010: Ted from Bangkok, Thailand: "Hidradenitis Suppurativa.
There is two possible remedies, the first one if it works, it works quickly, but whether it works or not you just have to try it. The second one works by deactivating the proteins and stops the spread.
The first remedy is the easiest and responds rather quickly: A solution of magnesium chloride, 70% with 30% water, is applied to the area for about 30 minutes. If it reduces the redness and some swelling then this remedy is workable and can be used for the next couple of days, if a severe one you can use it for a month. The formula needs to modify, and will improve if just get more clients like this.
The second remedy deactivates the protein: the formula is 1/2 teaspoon of tannic acid in 1/4 cup of warm water plus 20 drops of DMSO. Apply to the effected area. Whatever the protein (or autoimmunity) it will deactivate them in a matter of minutes. Still the complete application needs to be applied for at least a week until it's gone. It's not a perfect remedy, but it does work and it needs some improvement. This is the two best remedy I can think of and it can be used together also. I think it is viral since it responds to magnesium. Of course there may be many types of this disease and the cause can be other things too.
It should be noted that I have just one client and the redness and swelling, especially redness disappeared in less then five minutes. It spread throughout the body and bleeds pus with particular area such as scrotum, and folding part of the arm and thighs. Frequency of application is critical. Try about doing it 10 times in first 5-10 minutes.
Do it until it has reduced, and repeat as necessary.
Note: this peculiar condition doesn't respond to antibiotics and steroids. As a result, I suspect it is viral in nature. This is why I used the antiviral magnesium chloride, and tannic acid as a second choice. I wasn't lucky enough to test the lysine as the client was already showing improvement in the condition in a matter of 30 minutes. Lysine would have been my third choice.
The client basically got HS while swimming in khlongs here in Thailand. The infection spread throughout his body quickly but it is concentrated where there is the most sweat, as in pubic areas, behind his knees, in his front part of the elbow, and arm pits. Magnesium idea came from the idea I had when I had a severe conjunctivitis or "red eye" as it is called in Thailand where infections also come from khlongs in Thailand (water canal) also. I suspect they are similar. The idea for magnesium chloride to treat red eye is a simple one: magnesium chloride are antiviral in nature, but you need a fairly concentrated solution on skin application, but possibly a 5%-10% solution in eye application.
General improvement throughout the body was improved in 30 minutes, and local areas after application took the redness out in about 5 minutes. The reason why throughout the body was longer was that he didn't apply them at the same time, particular his back and neck area. I think we can use 5 minute benchmark for local area when gauging its effectiveness. The cause for this condition might be other things and may require different remedy. Hydrogen peroxide 3% solution applied to skin area also worked, but to a limited extent, not as dramatic as the magnesium chloride, however, but it did reduce some itching and some pus actually came out also. We can use towel as abrasive agent, and I also MADE the magnesium chloride solution stronger, BY ADDING ABOUT 10-20 DROPS OF DMSO, in a 10 cc magnesium chloride solution to increase its penetrative properties. Too much DMSO may sting the skin and always clean affected area before application of magnesium chloride and DMSO. If magnesium chloride is applied alone, then cleaning the effected area maybe less critical, but cleaning is still done by using plain water, or a tannic solution as a cleaning agent before application of DMSO and magnesium chloride is how I would approach this."
06/01/2010: Linda from Anon, USA replies: "Hello Ted,Thank you for your information on hidradenitis suppurativa at the Eath Clinic web site. I am going to start with the magnesium chloride bath salts. I have had hidradenitis suppurativa for five years, and am a 60 year old female. Am worried about applying the magnesium chloride directly to the skin since the "wounds" are so open and in my groin area.
Sincerely,
Linda"
06/01/2010: Ted from Bangkok, Thailand replies: "Dear Linda,A weaker solution of magnesium chloride may cause less pain, such as a 5% magnesium chloride solution. Actually it can be as high as 10% and has minimum sting. The most painless of all remedy is a tannic acid solution which will denature any bacteria, viruses and other unknown organism on contact. To give some penetrating powers to reach the bacteria, a DMSO solution is added. For example, if I were to prepare a 100 cc of water, I will need roughly 1 teaspoon of tannic acid plus 1/2 teaspoon of DMSO. The local application with perhaps a cotton bud, or application directly to the area should dry up the wounds painlessly. Magnesium chloride is a bit more painful, but once the wounds dry up, the the magnesium chloride may be applied with minimum pain. As you know,tannic acid denatures proteins and converts them into leather, so when you apply to flesh wounds it basically cause the active organism to be dead on contact, by denaturing. So this is about the best broad spectrum contact antibiotic and antiviral there is, a simple tannic acid solution.
Ted"
06/03/2010: Linda from Shasta, Ca, United States replies: "Hello Ted,Glad you are doing well in Thailand. I have been using black tea bags as a compress on my skin for two days now. This is for the tannic acid, until I can find the tannic acid powder. Do I purchase it from a compounding pharamcy, or do you know of another source? When I find the tannic acid powder, I will use 1/2 teaspon in 1/4 cup warm water and then use that as a compress for 30 minutes.
I also want to try the magnesium chloride, and am I correct that I can buy that from an aquarium supply store? I am thinking this is safe to add to bath water and soak because fish swim in it! Do I have that correct?
Thanking you again,
Linda"
[YEA] 08/12/2010: Jonathan from Saint Louis, Missouri replies: "I have suffered from HS for over twenty years. My last major outbreak (boils the size of golf balls and bigger) was over five years ago when I started using tea tree oil topically. Within a few days, the boil drained (easily, with no squeezing or lancing) and finally went away. I have maintained an outbreak-free life with the usual antibiotics. I have always wondered if the tea tree oil actually worked or if it was just coincidence. Well, this week, a small boil appeared (about the size of a kernel of corn). I immediately applied tea tree oil and continued for three or four days. The boil never grew larger and drained easily today. I used tea tree oil minimally on the site of inflammation after showers. After the boil drains, I continue to minimally apply tea tree oil to the site to help dry the lesion. Works for me."
08/15/2010: Jessica from Birmingham, England replies: "Hi im 24 in the morning and have suffered with hs and the embrassment of hs since I was about 16/17 I stopped swimming, stopped wearing certain clothes etc. The doctor referred me to a dermo who put me on long term antibiotics which did work long term but had other side effects. Anti bacterial gel stings but does work. I just found this website and will try the baby powder and tea tree oil. Does anyone know if I can get dial soap in the uk ? And if I use turmeric powder in warm water how much ? thanks x"
10/03/2010: Andrea from Lahaina, Hi replies: "I have had HS for almost 20 years. I have outbreaks under my armpits, breasts and between my thighs. I started taking AZO Yeast Supplements about two years ago because I started getting Thrush on my tongue. I thought it was due to Wellbutrin, which I was taking at the time. Miracles beyond miracles my HS started to clear up. I was taking one pill a day for the thrush and now I take two pills daily without fail. If I forget a day I immediately get a breakout, then I take 4 pills, then almost overnight I start to heal. I just ordered 10 boxes of Azo Yeast pills on Vitacost.com. They are inexpensive and I will take them the rest of my life. I am convinced that HS is related to an overproduction of yeast."
10/05/2010: Maria from Gippsland, Australia replies: "Hi there, after reading this post from Andrea I googled vitacost.com to check out their low cost supplements. My attention was drawn to the amount of pages devoted to vitacost.com scams. I think people should look for themselves before ordering from this company. One site I looked at was: http://www.1.epinions.com/content_370138320516/show_~allcom
Forewarned is forearmed I believe."
10/05/2010: Mark from Haiku, , Hawaii replies: "Andrea in Lahaina...... Is there any chance we can talk or meet in regards to HS and the difficulties of having it in Hawaii, (health care, heat, humidity etc)I am on Maui too. Please contact me, recent diagnosis
Markinhaiku@aol.com
Aloha Mark"
10/23/2010: Andromeda from San Diego, Ca replies: "Dear Ted
Thank you for your awesome contributions. I would like to try the tannic acid solution with dmso. Is it ok to use a wine tannin powder? If so how much would you add to warm water to get a strong enough solution similar to that of the acid? Thank you"
11/29/2010: Kuudere from Norwalk, Ca, U.s.a replies: "Hi Ted,
I was wondering why the doctors here in the U. S. Resort to surgery to "fix" HS? You stated that you suspect HS is viral in nature... Therefore, can it not be cured otherwise? Taking out the sweat glands seems like getting rid of the symptoms and not really curing the underlying reasons?
I have been HS for the past 2 plus years and am fed up enough to consider going for full graft surgeries. Has anyone had them done in their armpits? Can you please talk abt your experience and if the boils ever came back? Maybe to a different area? I feel so frustrated at not being able to have full mobility of my arms! Please advice. Thank you!"
12/01/2010: Emily from Sanfran, Ca replies: "Hello kuudre, yes I had the surgery done. I got this horrible disease after I had a a child. While being stationed in arizona. That was 8 yrs ago. I still get them. Not worth the pain, i wouldnt suggest it. Accutaine didn't work, face has cleared thou: sorry im doing this on playstation, but im going to try the other possible remedy s. Lets hope som. This holds u back from allot of stuff in life. Eone finds a cure"
12/07/2010: Kuudere from Norwalk, Ca, U.s.a replies: "Thanks Emily! Did u have full graft surgeries? I've read that those usually have good long term results. I was considering Accutane too but it has so many side effects! Yes, HS is horrid but don't let it get to you! I've been trying turmeric and it really does help a lot! I think drinking Aloe Vera (1/2 a glass) and ACV BS in water throughout the day helps a lot too! Btw, have u considered homeopathy? I don't quite know the stuff my homeopath doctor gave me but it helped considerably and I'm still on that stuff. I think alternative medicine is probably the best way to go with this disease. Thanks again Emily! And good luck finding something that works for you! =)"
12/07/2010: Emily from San Fran Bay Area , Ca replies: "Hello Emily here again - well as far as homeopathic, no. I've tried the following : aldara 5% which is for warts.. I was desperate :), providone iodone I dipped a cotton ball in iodine and then taped it to the affected area. I didn't keep up with it due I was scared of being poisoned, colloidal silver. Didn't keep up with this either. I was again.. scared of being poisoned and I lavish the skin with plenty of the product by absorbing it in a cotton ball that stays very wet. The best product I bought from otc, I don't have the bottle due to I bought a large volume and now after 5 years have ran out. It's in a light turquiose/ green color bottle and the liquid is pink and its medical grade because I always see it at the doc office they've scrubbed my areas down before they lance it. And they wipe it off. Its like 10 buks for a 7-8 ounce bottle at walgreens or riteaid stores. But I had found it for about 50-60 bucks for a gallon of it. So I had bought that online. Which I'm seeking to track down as I type. I've also tried Epsom salt bath, doenst help. Good diet, doesnt help. Exercise makes it worse due to sweat even if you take a shower right after working out. And thats about it besides the surgery.Now skin grafts no that's not what they did. The doc cut a diamond shaped patch of skin out of my arm pit and just sewd it up. It looks like a hak job. But it's probably one of the worst places to have surgery. That was the only location I had the surgery, healing took about a good 2 months and with all kinds of puss oozing. It did get infected also. The scares are the worst. I never lift my arms it looks horrific, if you want pics I'll be more than happy to send them. Basically the topical antibacterial pink stuff seems to be the best. They go away really quick after it opens up and I put the cotton ball with the pink stuff on there. Recently they started forming different. Now when they pop the meat from inside my body seems to want to come out and it will look like a bloody red nipple because its a piece of tissue. Its weird. Not like before. Ohhh and the first one I ever noticed was like size of a softball in my armpit socket. And the VA doc didn't know what it was. So they poked it and took a sample with a big needle. Well I kinda wish I never did that. Because I think that's what started this whole mess. Kinda like cancer. When u poke at it and start cutting it away it seems to spread. Well that's what I belive happened.. Im just scared im going to pass it on to my off spring, so im very careful how I wash our clothes and contact. Oh to my knowledge, it's the sweat glands that get clogged and the doc said he took some of the glands out that had ruptured. Dont know how true it is. Oh Ive heard of radiation on the outside of the skin my sister was telling me but I guess it leaves u with black skin. Ive considered the professional wart freezing stuff, maybe that will freeze them and the liquid on the inside and kill it. Im willing to go thru that pain but will it be safe for me and practice for the doc.. I havnt asked my dermatologist to do it I think he'll laugh at me.
So thats about it.. I like this web site thanks for everyone who made this possible. We need one with pictures of ppl on it because im sure there's people out there that are living a lonely life because of this and maybe if they could associate with others that have the disease then it would make like allot happier. Thanks all and ill keep in touch as I look for a cure for us!!"
12/07/2010: Emily from Moved To Sacramento Ca, Ca replies: "Does ANYONE ELSE feel like this when they have a large outbreak? Like weighed down like you can feel a virus coming on? When ever these things come I get really drained and feel like im getting sick. Then once they pop in a matter of hours you feel relieved."
12/10/2010: Kuudere from Norwalk, Ca, U.s.a replies: "Hi Emily! Thanks for replying! I am so so sorry to hear your going through an outbreak. This disease really does make you feel very lonely but just hang in there! I have not tried to the pink stuff you're talking abt but I'll list everything that has helped me in hopes that you'll find some relief soon!1. Turmeric: 1/2 tsp morning and nite in warm water. It tastes gross but it provides relief almost immediately.
2. Rose water: It has anti-bacterial properties n is cooling to the skin. I use this to clean the infected area/wounds abt twice a day. It has a nice smell to it too and I've noticed that it has helped to lighten the scarred skin somewhat.
3. Dettol: Its a antiseptic liquid disinfectant (kinda similar to Betadine) and I use abt 1-2 capfuls in a big bucket of warm water and take shower with this stuff every morning. It leaves a faint smell afterwards but its not bad and keeps infections at bay!
4. Apple Cider Vinegar (4 tbsp) Baking Soda (1/2 tbsp) 1/2 sliced lime in a large bottle (or 8 glasses of water): just drink this water thru-out the day. It keeps the body alkalized n minimizes the severity of outbreaks. Just keep the area as dry as possible and air it out as much as possible. I hope at least one of these things work for you! I'll be praying for u. Stay strong! =)"
12/10/2010: Marlene from Boston, Ma, Usa replies: "Emily is talking about Hibiclens. It's a surgical wash that is ok to use on wounds. No stinging and it is antibacterial. This wash also takes away the smell/deoderizes the area. Emily in response to your question: YES after a recent bad flare-up of HS I had a total feeling of malaise and thought that I was really getting sick. But, at the same time I knew it was just the painful cyst getting to me. I could barely read my son a book I was so miserable the night before the drain. For two or three days I was in bad shape and then when the cyst drained (on its own, easily after applying hot cloths) I felt SO MUCH better all over my body."
12/15/2010: Emily from Sacramento , Ca replies: "YES, THANKS IT IS HIBICLENS!!! IM GLAD TO HEAR SOME ONE FEELS THE WAY I DO UNTIL ITS DRAINED.. ON ANOTHER NOTE I WAS WONDERING WHAT THEY LOOK LIKE UNDER THE SKIN. NOW MOST OF THESE FEEL LIKE THERE DEE- MEANING WHEN YOU TRY TO FEEL THE AREA, IF YOU KINDA DIG YOUR FINGERS AROUND IT AND FEEL ITS PRETTY DEEP. SO LETS SAY ITS AN OVAL CYST AND YOU CUT A BIG C ON THE SURFACE OF THE SKIN AROUND THE CYST AND PULL SKIN FLAP BACK, I WONDER WHAT WILL YOU SEE. OF COURSE YOU WANT TO DO THIS WITHOUT POPPING IT. WILL THERE BE A SACK? IF SO THE SACK HAS TO SOMEHOW BE CONNECTED TO SOME SORT OF BLOOD SUPPLY RIGHT ??? BECAUSE IM THINKING ITS NOT & THATS WHY ANTIBIOTICS CANT GET TO IT AND KILL THE BACTERIA INSIDE THE SACK -OR MAYBE ITS BECAUSE THEY FLARE SO QUICKLY IF YOU EVEN START ATTEMPTING TO SQUEEZE THE AREA AND THE ANTIBIOTICS OBVIOUSLY DONT HAVE TIME TO MAKE ITS WAY IN.. NOT UNLESS YOUR ON THEM 24/7... ANYHOW.. ANYONE EVER CUT AROUND THE SACK AND PULLED THE SKIN BACK TO SEE IF THERE IS A SACK YOU CAN SEE?"
12/22/2010: Bren from Allentown, Pennsylvania Usa replies: "Hi I have HS. I have a small outbreak right now (near the pubic bone) and it is draining. I have to cover it with a band aid so I can go to work. Any tips for me?
Thanks. Metalic_sunrise(at)yahoo(dot)com"
03/24/2011: Gerald from Sacramento, Ca replies: "Hi everyone, I have been dealing with HS since I was about 16 (I'm 26 now), and I have Stage 3. It's manageable at times but currently there's some areas in groin area that are becoming more inflamed and pink-ish/raw looking. I'm going to try the AZO that Andrea suggested and hopefully that will help. I just started a blog that lists other things I've tried for HS. Feel free to read and comment.
04/17/2011: Mapuha from Brooklyn, New York replies: "Ted, for the magnesium chloride, is it a 70% magnesium chloride strength solution or is it a solution made with regular magnesium chloride liquid and water 7:3?"
05/07/2011: Renee from Kona, Hi replies: "I have a HS right now on the side of my leg near the groin area. It got to be about as big as a half dollar and raised or swollen out. I can hardly walk and can barely sit down. I went to an urgent care here, (which was expensive) because I didn't know what it was. The doctor made a small incision (1/2") and pulled it out. It looked about as big as a dime and was white or cream in color. It has been a week and I am still bruised badly. I wish I had of known these remedies and I wouldn't have gone to the doctor. Live and learn. I hate that anyone has to go through this, it is so painful."
06/03/2011: Karen from Orlando, Fl replies: "Hi. I'm not sure if I have HS. Maybe someone could tell me if this sounds familiar. I have been to the doctor once for a bump in my groin area. It was the size of a nickle and was painful. She took a swab, said it was just pus, gave me an antibiotic and sent me on my way. I don't remember when they started. In high school I was on the swim team and I think it started when I was working as a lifeguard. One of the worst lumps I had was a little bigger than a golf ball in my armpit. It hurt so bad I could barely move my arm. I've never had one that big again, but now I'm getting ones that won't heal and the clear liquid that drains from it stinks! The openings are tiny, but they keep draining. I have them in both armpits, in my groin area, and near my rectum. Since my doctor dismissed me the first time, I have just dealt with it for the past 5 years. But now I am really breaking out. I have a lot of small scars in my armpits and several hard pencil eraser sized lumps under my skin. My boyfriend is very understanding and helps me apply bandaids, but I'm beginning to feel disgusting. Especially because of the smell that the pus gives off. I have done some research on this and have seen the pictures of people that have massive amounts of tissue exposed. Can a mild case of HS turn into something that serious or is this something different? Is HS something that researchers and doctors are looking into?"
06/06/2011: Beckyrooonio from Brady, Texas, U.s.a. replies: "KAREN IN ORLANDO... I'M BECKY IN TEXAS AND YES IT DOES SOUND LIKE H. S. BUT YOU SHOULD SEE A DERMATOLOGIST AND GET AN ACTUAL DIAGNOSIS ON PAPER."
06/06/2011: Capcity from Bronx, Ny replies: "IF this AZO Yeast works as well as Ms. Andrea claims I SEND HER BIG, TIGHT HUGZ from NYC! I purchased it & started w/ 2 tablets today (6/6/11) - as soon as I discovered her method. GOD, I hope this works for me, too! Thanx in advance because the theory makes TOTAL sense! I've noticed I have terrible outbreaks when I've eaten too much bread or pasta... We shall see (I am SO optimistic that FINALLY I will see these monsters diminish)! I look forward to wearing bathing suits again!"10/03/2010: Andrea from Lahaina, Hi replies: "I have had HS for almost 20 years. I have outbreaks under my armpits, breasts and between my thighs. I started taking AZO Yeast Supplements about two years ago because I started getting Thrush on my tongue. I thought it was due to Wellbutrin, which I was taking at the time. Miracles beyond miracles my HS started to clear up. I was taking one pill a day for the thrush and now I take two pills daily without fail. If I forget a day I immediately get a breakout, then I take 4 pills, then almost overnight I start to heal. I just ordered 10 boxes of Azo Yeast pills on Vitacost.com. They are inexpensive and I will take them the rest of my life. I am convinced that HS is related to an overproduction of yeast.""
07/02/2011: Allie from Winters, Texas replies: "I just discovered this condition a few hours ago, because I have an outbreak right now that is particularly bothersome. Im 17 but ive been getting them for years, I almost always have them under my arms and they are very annoying. My mom doesnt think much of them because she said she used to get them when she was younger but then it stopped when she got older. And my aunt gets them sometimes as well. But everything ive read about this so far seems so head on. I really want to know what I can do to make these things go away.. At least for a little while, and with no surgery. Im just tired of the scars!"
07/07/2011: Joyce from Henderson, Tn Usa replies: "my twelve year old was diagnosed yesterday and the dr wants me to see a general surgeon tomorrow. I am concerned that opening up her armpit seems so extreme. It isnt draining, but we have kept hot compresses every hour on the hour for 24 hrs now. It seems to have softened. Also with epsom salt. I am so saddened by what I have learned of hs in this one day. diet makes good sense to me. Yeast is a huge culprit of many health issues. I have had another one of my children soak her feet in tea water to control sweat and stinky feet. caffiene also dries skin out. Has anyone tried, or know of these things being effective in treatment? also, is surgery effective or does it exasperate the problem?"
07/08/2011: Mmsg from Somewhere, Europe replies: "read up on this site about turmeric."
[BETTER BUT NOT CURED] 07/29/2011: Ace from Vancouver, Bc/canada replies: "One thing that has really helped me - and my HS was really bad about 4-5 months ago - is laser hair removal - my groin area was especially very ugly with HS - and now with the hair removal, it has improved a lot - just a few infections here and there, but nowhere near as bad as it used 2 b!"
08/12/2011: Danielle from Chicago, Il replies: "First off, thank you to everyone who has posted and shared here- words cannot express how relieved/hopeful I feel after stumbling upon this site! I am a 30 year old female who has suffered from this (in silence and ignorance) for about 10 years. I was too embarrassed to go to the gyno before (I only have them on my groin) and now I have no health insurance. I felt like I had an STD or something even though I knew I didn't, so I haven't been sexually active in about 5 years because of it. When a cyst appeared, I would sterilize a needle and poke at least one hole in it... Never a good idea, I know. The holes would bleed, sometimes a lot, but I could never get the pus out right away even though I would push the needle far into the sac. But then later, usually when I was sleeping, sitting, or taking a shower, the holes I made would produce a thick yellowy substance and I would be soooo happy. (It feels weird to be happy when you feel warm goo on the side of your underwear or running down your leg, but I knew that meant the severe pain I felt would be decreased substantially after some of the pus drained and my skin would no longer be stretched to its limit. ) They usually went away after that, although I had some stubborn ones that I had to poke a bunch of times, and some left scars. And they kept coming back in different places around my groin. I thought they were caused by ingrown hairs when I shaved my bikini line. I also have hyperhydrosis which means my hands and underarms drip sweat, and sometimes my socks and panties feel like they've been dipped in water, which probably either causes or exasturbates this condition.Right now, I have two cysts (groin and inner leg in crease) that seem to be connected and WILL NOT GO AWAY! I've had them for about 4 months and they will bust open (I've stopped poking myself with needles), drain, start to feel better, but then they'll fill right back up and the whole thing starts over again. I have been beside myself on what to do about it and would sit in a bucket of acid and endure the pain if I knew it would make them go away... But finding this site gives me so much hope as now I,
A: know what I have and know I'm not the only one who suffers with it.
B: Found so many things I can try to get rid of them, all better than a bucket of acid, I might add.
And C: Just feel less like a freak. I was wondering, though, if HS is hereditary because I recently found out both my dad and my 10 year old niece suffer from it. Also my niece takes "bleach baths" for 10 minutes every other day and that keeps her outbreak-free. Has anyone else had any luck with that? I'm definetely going to try the tea tree oil, tumeric, burdock root, colloidal silver, apple cider vinegar, and antibacterial liquid soap (like Dial). Is there any danger in mixing certain things or trying too many things together? Any help would be appreciated. AGAIN, THANX TO EVERYONE WHO POSTED AND SORRY MINE RAN ON SO LONG!"
08/22/2011: Freedom45 from Lenoir, North Carolina replies: "I love this site it is soooo helpful"
09/20/2011: Lisa from Portsmouth, Uk replies: "Hello all glad I've come across this site and to read about that Im not alone. I've had HS for 21yrs now and I'm 33 and trying not to let it rule my life. I get between 10 and 21 a wk. I've had my glands removed 9 times. I'm in every wk having the more painful ones removed. I've been on humria infliximab antibiotics for 20yrs- none of it works. I'm now trying an acne drug for the past 5 months and no its not working. I get them under my arms, boobs, belly, groin, bum, down my legs and coming down the lower arm. I feel for any one that has this. I so no what your all going through but hearing there is no cure makes me feel what is the point. I've tried to be strong all the yrs barely being able to walk some days and still trying to work as well as look after my family."
09/21/2011: Jasmine from Columbus, Georgia replies: "I dont know where to begin. Just when I thought I was all alone with this detestable disease, I find that their are others suffering as well. I cant tell you all how appreciative and thankful I am for you all sharing your stories with me and every1 else. It has given me confidence to share mine. I'm a 23 yr old student suffering with HS. I've had this skin disease since the age of 14. I just found out what the disease was about a yr and a half ago. I have them everywhere. From my inner thighs, both under arms, stomach, and around my groin. I've been to countless doctors. I've taken so many antibotics that my body is now immune to them. The smell is absolutely stifling. I try to go out but people in my neighborhood, know me as the girl that "smells. " I literally spend my nites alone crying. I dont date, I barely have a social life. Guys want to take me out, and I refuse to go because I dont want people to smell that horrible stench on me. I bathed and shower @ least 3 times a day. The 1's under my arm smell and the leak the most. I have about 4 to7 boils under both arms. I put hot rags under my arms all day everyday. When they do bust, they drain and smell so bad, that I literally will not go anywhere for several days at a time. It smells as though something is dead. It brings tears to my eyes because I just want to be some what normal. I want to be able to wear certain things. Hold my arms up with out having this horrible smell. Go out with groups of people without being self conscious.I'm so happy to have found this site. It gives me hope, faith, and confidence that I will be able to find something that works for me. This site makes me feel accepted. I'm not the only person going through this tragedy on a daily bases. You all are my inspiration. Thank you all so much, you dnt know how much your stories means to me."
09/24/2011: Z from Coastal, Ca replies: "Never use deodorant. Chlorophyll concentrate gets rid of body odor. I take 1 gel cap (100mg) morning and night."
09/25/2011: Pinetree from Waukesha, Wi replies: "Hey could someone help me. I think I might have HS but I am not sure. I have been getting these pimple/cyst like things for years I get them on my inner thighs, under my armpits sometimes not all the time and on my ass too. Some I have notice are from where clothes have rubbed against them. I am too afraid to tell my doc about it but my obgyn knows I get these pimples and just says they are rashes but idk. But right now I have a huge one on my thigh that it hurts too much to walk. They also sometimes itch alot so I think that is from heeling. I try to pop them and when I do pop them only blood and pus come out of them and then they go down a bit but come back. I have been getting this since I was 9 years old ( when I started to get my period) so if anyone can help that would be good."
10/06/2011: Kory from Champlain, Ny Usa replies: "Hi everyone. I'm Kory, age 26. From what I can tell I have HS when I was 11yrs old I was told I had hair folical disease where my skin was too thick and my hair to thin to grow out and created ingrown hairs. I have them going down my side lower part of armpit, inner thighs and upper groin area, mid chest, upper and mid back, and on my both my butt cheeks. They get big red and almost black in middle. They left alot of scarring and always leak alot of blood and black coagulated blood with hairs in it. I just want it to stop already. I want to be able to swim with my shirt off without have to walk with my arms pinned to the side, id like to show my body to my partner without having to try and maneuver myslf into positions so they cant see the scarring. I hate I cant wear white shirts because of the blood stains. I just want something that truely works =/"
10/27/2011: Sarah from Port St Lucie, Fl replies: "Prevention rather than curing the problem:I have struggled with HS for about 10 years now and like many people I didn't tell anyone for quite awhile. Finally I went to the doctor and was dx with HS. He gave me an antibiotic and topical gel to use during flare-ups (I'd say I have a mild case, no tracts or oozing lesions).
The antibiotics and gel work ok but I'm left with a scar and its painful during the healing process so I've been experimenting with ways to avoid getting them all together. By no means an I 100% cured but I will say that a change in my diet made a HUGE difference. I don't know if eatting healthier lessened the flare-ups or if eatting healthier caused me to lose weight which helped with the flare-ups but either way I only have one or two a year and I can almost always look back and say "ok I had a flare-up but I've been eating a lot of processed crap lately". I do not eat super healthy or organic foods, I just stay away from fast food and processed/refined carb type foods as much as possible. I may take a month or two for all that built-up stuff to get out of your body but I'd highly reccommend this change to anyone suffering from this disease!
If you are wondering some of the biggest changes I've made are I drink mostly water and only minimal amounts of soda and I buy a lot more fresh fruits and veggies rather than canned, frozen, or boxed foods. I didn't make any drastic changes but I try to limit the amount of preservatives or highly refinded carbs I eat.
Has anyone had any success with changing their diet?"
11/03/2011: Horse2rein from Port Charlotte, Florida, Usa replies: "I have suffered with this for 30 years. I have tried just about every"remedy" out there. As of late, the only thing I have found to work is taking zinc, antibacterial soap and (of all things) rubbing hand sanitizer in the areas most affected and frequent. For some reason, the hand sanitizer dries them up within a few days, and whatever you do, DON'T squeeze them. It usually takes a couple of weeks for the existing ones to go away, but if you religiously use the hand sanitizer, when they DO come back, they are small like a pimple and virtually painless. Hope this helps..."
11/22/2011: Mary from Marystow, Newfoundland replies: "Thanks so much, alot of information here and alot of things I have not tried, which I will be trying. I have had this problem now for many years. I always have a couple and at times have had over 20. First my doctor prescribed antibiotics, I keep telling him no if I have two I'll end up with more than what I had at the time. During my pregnancy, I never had the one, which surprised me. I was thinking it was a hormonal problem. After I had my child, slowly I was getting them back again."
12/05/2011: Tabby from Hillsborough, Nc replies: "Thank God I found this website! I have been suffering from HS for 23 years now. I got my first one when I was pregnant. I have tried everything under the sun with exception of the surgery (I did get a consult and the surgeon could not guarantee they would not return). I have horrible scar tissue under my arms, breast, butt, and groin area. It's terribly embarrassing. I shower several times a day when I have open wounds, which is nearly every day. I usually have at least 4 at a time, I have had up to 20. When I was being treated at the wound clinic at the local hospital here, I was told to quit smoking and that would help. I quit and it did help, and very quickly. They calmed down but I still get them. I have one under my arm right now that is very painful. I'm grateful to see all the suggestions on here. I'm going to try the zinc first and see what happens with that. I'm wondering if anyone has a problem with the area actually healing... I've had a few that have been open for months. They almost heal and then open back up and drain before they can heal completely. Thanks for anymore suggestions! Best to everyone."
12/07/2011: Kelly from Huntingdon, Pennsylvania replies: "I'm so glad/relieved to come across this website! I'm now 18 and have been suffering HS for 6 years (only in my groin area). I have always felt embarrassed to talk to any gynecologist about it because it is such a rare condition that anyone seems to have seldom knowledge about. Also it has made me very self-conscious with my sex life because I was always afraid that my partner would automatically think I had an STD or something and I would never be able to maintain a stable relationship because of it. I have tried antibiotics and washes but they still come back and leave ugly scars. I go through boxes of band-aides because the pain sometimes is so unbearable when my underwear rubs the cysts and I can barely walk.Anyways I wanted to say thank you for sharing your tips and stories it has made me realize I'm not the only one! I used to say to my mom that it was just "my luck" that I had some mystery disease that no one had answers too so thank you everyone! You've really helped me and made me feel better and finally be able to open up about this condition we share(:"
12/10/2011: Tad from Green Bay, Wi replies: "Goodiness, I don't even know where to start. I've have been recently dx with this disease but I have been dealing with this pain, sadiness, embarassment for over a year. Actually my dermatologist said there is nothing more he can do for me; I cried because nothing has changed in a year. I have a bad case that keeps get worse. I am happen to finally break down and search the net for treatment and I came along this site. I am so happy there are things I can try but I don't know where to start. I have this HS everywhere that skin touchs skin, well in my opioion ie groin, behind ears, under breast, under my stomach. I do realize I would benefit from weight loss but everytime I try to work out I am in so much pain, doctor also said there was nothing for pain that would help."
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TOP REMEDIES SUMMARY
09/06/2010: Yasmin from London, Uk: "Hi - I have been a mis-dagnosed Hidradenitis Suppurativa sufferer for over 10 yrs old and I am now 33 yrs old. I am so grateful that I found this site - I had almost given up and thought I will just stay single, as I can't imagine getting undressed in front of someone new... But now I have some hope, and that's what makes the world go round! I cannot offer any more tips, but I consolidated all / most of the ideas I saw on the forum for my own benefit, and have posted it below as I thought it might help someone else... Note these are not my suggestions but just a single posting with all of the suggestions with the most positive feedback.....
Things to consider eliminating from your diet:
Wheat / flour / gluten / dairy / caffeine / cigarettes
Daily:
3 times a day:
Turmeric mixture (the fat is important for absorpotion, as it water temperature)
1 tsp of turmeric; 1/16 of a tsp of black pepper; 1/2 to 1 tsp of coconut oil in 8 oz hot soup; broth or water (when an infection is severe it must be taken 4 times a day and it does miracles in two to three days)
Also:
Apple Cider vinegar - 2 tea-spoon full in glass of water (sip slowly throughout the day - also good for weight loss)
Omega Oils - Follow dose
Burdock Root (tablets) - Follow dose
Once a day
Bring 1 tsp of black onion seeds to a boil in one glass of water keep it boiling until the white part of the seed shows, let cool off and drink it
Topical: Tea tree oil, Epsom bath salts, Witch Hazel, Iodine, antibacterial soap (bar not liquid)
Less common Suggestions:
- Bacitracin Ointment to be taken up / in the nose twice a day
- Bee Propolis (a wood supplement)
Note: Make sure you get a bacterial swab to ensure it is HS and not MRSA as there are similar symptoms"
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ANTIBACTERIAL SOAP
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[BETTER BUT NOT CURED] 05/23/2009: Cherie from Brockton, Ma: "I have had HS for 10yrs now. I've had surgeries which have helped it subside in certain areas. I have read on here that some people use dial soap and it didnt work...you need to use the DIAL LIQUID ANTIBACTERIAL Soap/bodywash. I use it and it helps a lot. I also found that using Gold Bond Baby powder triple action relief is a huge helper when irritation occurs. As for flair-ups...I just deal with them..it's painful but I do what I was taught to do; keep the area clean, dry and use Bacitracin ointment and I stay strong. Thats all I know how to do!"
Replies[BETTER BUT NOT CURED] 05/24/2009: Wossta from Jackson, MS replies: "Hi, i have been dealing with HS since I was nine years old, I am now 33. I have went to doctors after doctors, and I have had my sweat glands removed from my left arm pit and my left breast in which I have not had an outbreak in those areas since, but the cyst, boils, or legions have gotten worse in the right breast and arm pit and there now coming in my buttock area. I think my case is the worse because I have dealt with the disease for 24 years, and did not have a clue about what I had until about five years ago, and I have tried everything under the sun. After my surgery the doctor told me to use dail soap (antibacterial only) and hibiclens which is an antiseptic/antimicrobial skin cleanser that you can purchase from Walgreens. It cuts down of the spread of bateria in the infected area. I can honestly say prayer and hibiclens has made it more managable for me. Another helpful hint is when using hibiclens the order is not noticable."
08/07/2009: Contessa from Jackson, Ms replies: "My question is for Wossta from Jackson, MS. I have your same exact problem but I have yet to find the right doctor here in Jackson. I have had HS since I was about 11yrs. old although it was no diagnosed until I was 21! Now over the past 5 yrs. my condition has gotten so much worse that I have lost my ability to function in my everyday life. Please email me the names of any doctors that you have been to that were able to help you. Also, any medicines that have had a positive effect on your condition. I need any and all help from anyone. Doctors seem to minimize the effect this has on my life and the server pain I experience daily with no relief. Just one abscess after the next all in different areas."
09/02/2009: Btw from Seattle, Wa replies: "I have used the crystal before and it works great, however there are two forms I have come across one in a more classic shape and the other in a ball, I recomend the actuall deorderant and not the ball as the ball can become rigid and very painfull to inflamed skin."
02/06/2010: Atlanta Girl from Atlanta, Georgia replies: "I've had Hidradenitis Suppurativa most of my life. However, I have NEVER had body odor, even though I do NOT use deoderant. When I had my sweat glands under my arms removed as a teenager, I began using baby powder to absorb the sweat and it worked very well. Now I use a body powder that you can get at any drugstore and I have no problem with body odor even though I go to the gym and workout."
EC: Warning!
From: http://en.wikipedia.org/wiki/Talc
Several studies have established preliminary links between talc and pulmonary issues,[6] lung cancer,[7][8] skin cancer and ovarian cancer.[9] This is a major concern considering talc's widespread commercial and household use. In 1993, a US National Toxicology Program report found that cosmetic grade talc caused tumours in rats (animal testing) forced to inhale talc for 6 hours a day, five days a week over at least 113 weeks, even though it contained no asbestos-like fibres.[7] Scientists have been aware of the toxicity of talc since the late 1960s, and in 1971 researchers found particles of talc embedded in 75% of the ovarian tumors studied.[10] However, the U.S. Food and Drug Administration (FDA) considers non-asbestiform talc, that is, talc which does not contain potentially carcinogenic asbestiform amphibole fibers, to be generally recognized as safe (GRAS) for use in cosmetics. [11]
04/19/2010: J from St Thomas, Ontario replies: "Please describe the surgery. My new Dr has booked it and I am so freaked out, no clue how long I will be off work, I've been off a total of 4 weeks now."
09/29/2010: Jmbd from East Greenwich, Rhode Island replies: "To: Cherie from Brocton, MA
Hello, I was so glad I found your post; you live very close to me. I live in Rhode Island and I also suffer from the emotional and psychical symptoms of HS. I have been to countless doctors and bounced from one specialist to the next as my symptoms just keep getting worst. I would be very thankful for any information you would be willing to share with me regarding your personal struggles and medical experiences with this condition: diagnosis, doctors, medicines you have tried and if the weather affects your HS? I wish you the best."
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[YEA] 02/05/2009: Ashley from San Diego, CA: "I have seen two doctors in the last two weeks in regards to my HS. I learned two things from these people. The first is that Dial soap is actually bad for the area. Dial is a detergent based soap which actually breaks down the skin and weakens its defense power. The both suggested Lever 2000 which is moisturizer based. I have actually seen a huge difference in my affected areas since I switched to the Lever 2000. I have also been struggling with the odor that has been associated with my HS and had seen somewhere something about a crystal deodorant. I did find the product and began using it. I asked both doctors their thought and both were rather excited to hear about the product and said that it may actually aid in the healing process as well. The crystal deodorant is a stick of mineral salts that is dampened for use. I found it available at both the grocery store and Wal-Green Pharmacy.
Good luck and hope this helps."
[YEA] 03/24/2009: Sonia from Christchurch, New Zealand replies: "I have had severe problems with HS and a couple of years ago required surgery to mend the lesions in my arm pits. I have since gotten onto using an antibacterial soap along with an antiseptic tea tree oil cream and had very few problems since. This has usually been when I have not kept up this routine. This indicates that it must be working. It is better by far than the countless antibiotics I was having prior.
At times I feel I smell of eucalyptus leaves (an Australian plant favoured by koalas) but it is well worth it and it smells much better than the putrid smell of a HS wound."
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[YEA] 10/14/2008: Danielle from Fair Oaks, Ca: "a few months back i was on here and started taking turmeric spice in warm water, after a couple of weeks i was feeling better and had less "hurts" but one morning i got sick and couldnt take the turmeric since then. my hurts have gotten bad again so i decided i would take the pills, just started today! this time i will be taking 2 pills 2x's a day. and washing with plain old dial soap. after reading about the dial soap i did realize my HS got worse when i started using more body washes and not dial bar soap. i hope everyone that has this problem finds this website, and i would never wish this on anyone! the pain is unimaginable at times, as u all know! good luck to everyone! email me if anyone has any questions, or just plain support. bye!"
Replies[NAY] 01/11/2009: Penny from Portage, WI replies: "Antibacterial soap: Liquid vs. bar. I am so thankful I read this! I have been so frustrated lately, as things have gotten worse. After reading this, I am wondering if it is not just a coincidence that things started getting worse at the same time that I started using Dial liquid soap! I am getting the bar tomorrow!"
[NAY] 03/13/2009: Shantavia from Miami, Florida replies: "Thank you for having this up there. I realized after about a month of using dial soap on and off that it has made my HS worst as well. I began to get more than one break out under my arm. I am going back to my regular soap and going to use colloidal silver to make it better."
[BETTER BUT NOT CURED] 05/19/2009: Brandy from Troy, Mi replies: "I use Cetaphil Antibacterial soap. It is a bit more expensive than the Dial, but it works well for me. My issue is that washing twice a day makes my skin uncomfortably dry and itchy. Is it safe to use moisturizer on the affected areas? I have Cetaphil moisturizer - it is supposed to be pretty basic with no added perfumes or such. I just started taking Zinc Gluconate and Vitamin E to see what that will do to help. I have had success with taking Yaz birth control - the affected area is still spreading and infected, but I have not had any huge lesions in a long time and very few that break open and leak. I am also going to start taking Turmeric to see how that helps."
02/02/2012: Paulette from Rockton, Il replies: "Brandy, Have you seen any info on YAZ birth control and complications it causes. Check this out.Paula"
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[YEA] 09/06/2008: Serena from Bronx, New York : "hi I am a 23 year old female i have been with HS for 7 years. As alot of people on here has done, I have also been to alot of doctor and as most know that there is no cure. I was diagnoise with it about 2 months ago. My doctor told me to use dial bar soap and ever since, my lump have became smaller and less painful. I have not tryed the apple cider vinigar, baking soda, or Epsom salt, but I'm going to try it. thank you for your useful advise"
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[YEA] 03/27/2008: Brian from Tampa, Florida: "Ailment: HIDRADENITIS SUPPURTIVA Remedy: ANTIBACTERIAL SOAP!
Ive been reading all the wonderful remedies and suggestions here on your site when i came across a section dedicated to HIDRADENITIS SUPPURTIVA and I just had to share my story as well.
I have a congenital birth defect that caused me to be born missing my left foot, I received my prosthesis by my first b-day. I grew up with NO problems with my leg what so ever and never considered myself to have any limitations. That is until i was in my very early 20's and began getting (what i thought at the time were) cists on my stump. This issue became worse and worse with each passing year and after doctors Lansing two or three of them I couldn't handle the recovery of each one anymore so I started dealing with them myself as they would appear. Nothing I did would work other then forcing my leg on, no matter how swollen I was and forcing them to break so that the horrible pain would go away. You see as anyone with HIDRADENITIS SUPPURTIVA knows the pain is unbearable so imagine having to walk on it. Most people who have HIDRADENITIS SUPPURTIVA suffer these sores in their armpits, groin, and under their breasts. I had never had any sores in any of those places. Only on my leg. Then as my leg got worse I began to get them under my arms as well.
After suffering through the pain for a few years I finally realized this issue I was having was way bigger then I could handle myself and truly feared doing more damage to my leg so I finally began seeing doctors to get answers. Honestly, this was a total waist of my time and my money!! I went to over 10 doctors, 5 dermatologists and NONE of them had any idea what was causing my sores. After being told that I would have to have the remainder of my leg removed, told that it was my hygiene problem and that I wasn't bathing properly, being told to stop wearing any prosthetics and be bound to a wheel chair for the rest of my life & even being told that I was too vain and needed to get over myself and realize that there was no need to wear a prosthetic I finally gave up on doctors once again and went back to dealing with the pain myself.
At that point in my life I was getting anywhere for 4 – 5 sores on my leg per week and had lost two jobs due to the inability to wear my prosthesis. I was just about ready to give into the doctor (dermatologist) who wanted me to have my leg amputated when I met a friend of a friend who asked me what was wrong with my leg that I wasn't able to put it on. After talking to her for only a few minutes and her begging me to see my sores she shockingly lifted her shirt and showed me the scars under her arms and explained HIDRADENITIS SUPPURTIVA to me. She had been diagnosed 5 years before after having two surgeries to remove her sweat glands.
I literally began to cry!! Finally I knew what was wrong with me....after 10 doctors and 5 dermatologists there was someone who knew what the hell it was. WOW! The next day I made an appointment at the dermatologists who wanted me to have my leg amputated and told him of HIDRADENITIS SUPPURTIVA. He and 4 other dermatologists after him had never heard of it and didn't have any answers as to how to treat this condition. Finally I found this amazing dermatologists who did know and I am now happy to say that 6 years later I have only had 2 sores and those failed in comparison to the size or pain of those in the past. The only remedy I have used in the past 6 years is ANTIBACTERIAL SOAP!!! Not the liquid or body washes the only one that works is the good ole fashion antibacterial bar soap. It is truly a miracle worker where my sores are concerned and I swear by it. I have even gone on vacations and didn't have ___ soap and immediately after only one day of not showering using ____ I have gotten a sore.
I hope in some small way this story helps someone else out there cause I know how hard it was going through day by day in pain and no one having the answers to help!! Good Luck!!"
Replies[YEA] 07/28/2008: Sara from Corpus Christi, Texas replies: "Tired of seeing the derm doctor for H.S. so I tried the dial soap (gold bar) and tea tree oil. Incredibly, within a couple of days, the lesions had decreased in size and pain. I also tried hot baths in epsom salts. A week and a half later, I feel like myself which I had not felt like in at least a year. Thank you all for your wonderful information. I am so thankful!"
12/15/2008: Zulfikar Panjwani from Atlanta, Georgia replies: "Hi Brian, I read your story here and many others I have had this problem since the age of 15. I am now 33 and still used to keep getting these cysts in my underarms and tail bone. When I read remedies on earth clinic I right away started with Dial Soap and Turmeric Pills. few days later I noticed that the boils did come back but much smaller and less painful. Now i have stopped using Dial soap but still take Turmeric Pills 2 X 1 daily as a routine. Being from India we always believed that Turmeric has antiseptic properties and I know now for sure it does.
...Just 2 capsules 2 times a day for a months and then 2 just before you sleep. Hope this helps."
12/23/2011: Laddeeraven from N Billerica, Ma replies: "I have not had very good luck with antibacterial soaps. They seem to inflame my cysts. They are all pretty raw and large. I have had better luck with an 8% peroxide cream wash and Physoderm.I had lovely skin until I turned 20. I had terrible acne on my face and back. A year or so later the HS started. It wasn't bad in the beginning, but that changed fast. As long as they drained I was ok it was when the scare tissue was too tough for them o break thru that I had to make trips to the ER to have them lanced and wicked. I'm 55 and overweight (lost 72 pounds in the past year) and they are worse then ever. My arm pits are not too bad but my groin area is a nightmare.
As a result of an infected cyst in my 20's I was hospitalized with a whopping 106.5 temp. While in an ice bath they started IV penicillin, which I had orally without incident so it came as a big surprise when I had renal shut down.
My kidney function did return but my doctor dropped the ball and in 2002 when I got cellulitis for the fifth or with time from the HS it was found that my kidney function was only 40%. So much for my doc keeping an eye on things.
Now it seems my kidneys are not sending the hormone to my bone marrow telling it to make red blood cells. The HS causes and abundance of white blood cells. I am so anemic it has become dangerous.
My cysts generally leak a clear fluid or bleed copious amount of bright red blood. It's a nightmare going anyplace. Hard chairs hurt, I leave stains, I can't wear anything but black and it's pretty impossible to bandage he to the location.
I have been to some of he best dermatologists in Boston but nada! I find I do better hen the doctors treating it. Awhile back they injected the worst ones with a steroid and or a few days I was in heaven. They were nearly nonexistent but then came back with a vengeance. I was talked into trying it 2 more times and it was the biggest mistake of my life. Everyone injected is so much worse that I long for the days before they experimented on me. I've done Embrel (sp?) some IV thing for RA that gave me a bizarre side effect. Every joint felt like it had gout.
So if we don't get the blood thing under control HS may be the cause of my demise. It's such a horrible disease that's so hard to explain to anyone that doesn't have it or love someone that does.
I'm open to suggestions."
12/23/2011: Debbie from Melbourne, Australia replies: "Go to the "ailments" section of this website and type in "H" and then key down until you find your ailment. Many people have cured their Hidradenitis Suppurativa. Read what they did ..."
02/02/2012: Paulette from Rockton, Il replies: "Hi Brian, My daughter just told me about her condition which she has been hiding for 9 months. She also has cellulitus. She has an appointment with a dermatologist Monday. But we are going to try these remedies!Brian, I am amazed at your courage. My prayers are with you. We have family in Tampa, maybe someday we will meet you.
Paulette"
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ANTIBACTERIAL SOAP, IODINE
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[YEA] 07/25/2009: Karen from Nashville, TN: "Here's what I have done to completely stop my Hidradenitis now for nearly a month and just for the record, I have had boils in different stages at all times. Some newly forming all the way to healing purple ones and in between. I have NONE now and my scars are actually getting a chance to heal. Morning and evening, I take a body brush and brush under my arms in a circular pattern all over, then reverse the pattern and do it again, both sides. Then I wash with antibacterial bar soap, dry them then swab my armpits all over with Iodine. I use a q-tip to do that. I use the old brown stuff and so far it hasn't stained my clothes. After I put it on, I get in front of a fan and let it dry, which doesn't take long for Iodine, then put my natural deodorant on. I'm thinking I can go back to regular deodorant now cause my natural one isn't so good on me. I get BO regardless by the end of the day. I was desperate and thinking it was my deodorant, but now I don't think that was causing it because I was still breaking out after I switched. You have to be diligient and don't forget. I have forgotten the morning or afternoon swabbing and was ok but I forgot to do it a whole day and started breaking out again. I read somewhere that researchers think it's caused by sweat glands becoming blocked and the dry brushing loosens it all up. I use a natural fiber brush. I would think any stiff brush would do.
I figured after that the iodine would kill any bacteria waiting to get in. That's what surgeons swab you with before they make their incision. Lot of people are allergic to it though and I'm not sure what the alternative would be if you are allergic. If it stops working, I will come back and let everyone know, but so far it's worked for about a month now. I hope it brings relief to others like it has for me. If you're allergic to iodine, google search to see what the alternative to iodine is. I'm sure you'll find it somewhere on the internet."
Replies[YEA] 04/14/2010: Diana from Milwaukee, Usa replies: "This works for me too, I'm just coming off of one of the worst breakout's in years. I'm sick of dermatologists saying part of it is being over weight, i recently gained about 30 pounds due to my thyroid and menopause. I asked this last dermatologist, why have i had this for years, when i was rail thin ??? and i just lost 10 pounds !!!!All the stuff i've been on over the years and it came down to the strongest anti bacterial soap i could find, good exfoliation, Iodone and making my grandmothers oatmeal pack, i just did this and the next day the "bumps" were flat and the inflammation was gone. get a large container of plain oatmeal, baking soda and sea salt. and generous amounts, boil like you would to eat it,put the salt and baking soda in so it boils, add oatmeal, cook until you can't see the water anymore then mash with a potato masher.apply when temperature is comfortable to you, leave on for 20 - 30 minutes. use an old sheet to lie on, remove with an old bath towel then rinse off. this works even better if you take a baking soda bath first or wash area with hot water and baking soda. you can save the remaning oat meal and just reheat it. then apply your iodine."
09/14/2010: Mili from Dallas, Tx replies: "Can u tell me which iodine solution are you referring to? Is it a tincture iodine or povidone iodine? thanks in advance.."
11/09/2010: Hollis Holloway from Sunrise, Fl replies: "A friend of mine recently shared with me his challenge with HS. Since this is a disease that is associated with immune system deficiency according to medical experts in association with skin inflammation. Inflammation is researched to be a major contributor to major diseases like, Arthritis, heart disease, auto- immune diseases and a host of others. The best way to address these health issues to optimize the immune system naturally by raising intracellular glutathione. Glutathione is manufactured in every cell. Healthy cells equal healthy organs( our skin is a organ) equals healthy tissues. Healthy tissues equals healthy organs. Glutathione according to Dr. Jimmy Gutman(leading researcher in Glutathione and the immune system) is the body's most powerful protector. In his book 'Glutathione-- Your Body's Most Powerful Protector' page 11- part 1 "Without Glutathione your body would have little resistance to bacteria, viruses or cancers"
Raising Glutathione will definitely eliminate inflammation... Guaranteed. There is a unique whey protein called Immunocal that is clinically proven to raise Glutathione without zero side effects. I am putting my friend on this product because what I have researched and know about the science behind the product."
05/24/2011: Sathees from Montreal, Qc/canada replies: "hi ive been reading ur thread and im highly seem like u have a valid theory. Just wanted to knoe if u had any updates on ur frnd using Immunocal. Im sathees and ive been suffering with hs for 7 yrs and would like to knoe any updates with ur frnd.tnks
sincerly, sathees"
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ANTIBACTERIAL SOAP, TURMERIC
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[YEA] 10/26/2011: Shygirl from Halifax, Ns: "I would just like to thank all of you out there for your courage and helpful remedies. I am a 26 yo female and like most of you I have suffered with this condition for many years. I suffered with this on my buttocks and inner thigh areas and I had so many areas that would drain all the time I was so embarrassed about it, it took a while to see medical attention. I finally was reffered to a plastic surgeon who would open each area ( about 13) and try to get to the base of the problem then use two different antibiotics on packing gauze to fill the lesions. As you can imagine this was very painful and the gauze had to be changed daily with similar appts happening every 4-6 weeks, yikes! After reading alot of the posts I decided to try taking Turmeric capsules ( or curcumin capsules, as I learned curcumin is the medinicinal ingredient in Tumeric) and only using anti bacterial soaps. I started last week taking 3 capsules per day and washing the areas 1-2 times daily, if you can believe it I am down to one area that is not healed, there is only drainage from one area (limited). I am so pleased how fast this has worked, and I am sooooooooooooooooooooo Thankful to all of you for finally helping me overcome this!!!! XO"
Replies01/03/2012: Jenny from San Antonio, Texas replies: "Shygirl, I have had HS for about 3 years now and am having trouble finding anything that works... I'm about to resort to surgery. Is the turmeric and antibacterial soap still working for you? What kind of soap are you using? I've found that eliminating dairy helps a little bit. Any other tips you have found?Thanks,
JB"
[BETTER BUT NOT CURED] 02/01/2012: Mich from Milpitas, Ca. replies: "I have had HS for a little over 2 yrs. and I have used an antibacterial soap and tumeric daily.... It does seem to help a lot.... I hope you find what works for you"
02/20/2012: Ace from Vancouver, Bc replies: "Go to a naturopath and get a FOOD ALLERGY TEST!!!"
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ANTIBACTERIAL SOAP, WEIGHT LOSS
02/12/2011: Tracy from Fort Collins, Colorado: "I have kept HS at bay for 8 years now with the following: 1. Wash with Lever 2000 original (Dial does not work for me). 2. Apply hand sanitizer with Aloe Vera "Germ-X" after every shower, and any time you feel sweaty. 3. I wear "Under Armour" compression shorts almost every day as they keep my groin area dry and prevent my thighs from rubbing. After your used to this, it feels comfortable and I feel undressed without them. 4. I think losing weight helped. If you Google images of HS, all the images are of overweight folks, so there is obviously a weight connections."
Replies02/13/2011: Sara from The Beach, Canada replies: "While I'm sure weight can be a contribiting factor, I have had HS since puberty and have no weight issue, but my father had HS all his life too."
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ANTIBIOTIC OINTMENT IN THE NOSE
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[YEA] 06/01/2010: Lynn from St. Paul, Minnesota: "Finall found something that made my hidradenitis go away completely! I have had hidradenitis my whole life but sometimes I went years without a breakout. 9 months ago I got a bump in my groin area that just wouldn't go away. Every day I had to drain it and you all know the frusteration. I visited many websites and read everyone's suggestions but nothing worked for me. A couple of weeks ago I visited the doctor's office and he suggested I try Bacitracin Ointment in my nose twice a day. I just dab a little on a Q-tip and swirl it in my nose. I can't believe after 10 days my bump is completely gone!!!! He believes HS can be caused by a staph or strep infection that lives in your nose. Maybe I've had this my whole life, I don't know but it worked for me. Bacitracin is an over the counter ointment so no need to visit the doctor. I hope this continues to work for me and if it worked for me maybe it will for you too. Good luck everyone!"
Replies09/21/2010: Candy from Houston, Tx replies: "Hi, Lynn!! I am so glad you found such a simple effective way to take care of your problem. The strep in the nose makes a lot of sense to me. I recently (2 months ago) was very sick with something I had never had before. I believe it was strep. My throat felt like I had swallowed glass and gargled with lava. It put me in bed for a week and then took another month before I felt like a human being again. I did take about 6 days worth of penicillin (an old prescription my boyfriend never finished). Bad idea! I only get sick about once every 10 or 12 years, so when I do it is intense, but the aftermath of taking the penicillin was even worse. I got rash on my underarms (along with other icky stomach and female problems) that burned like hell and itched like the devil! It has taken a month for it to subside only to find that I have 2 small cyst-type things left. My mother has had numerous (too many to count she says) surgeries to remove lumps from underneath her arm and groin area and my first thought was now I have it! I stopped using the crystal deodorant because it burns anyway on the tender skin and I started using coconut oil letting it sink in for a few minutes and then covering the area in corn starch and sometimes a nice smelling all natural no talc powder for babies. Seems to be working to keep it soothed. I am also going to try the antibiotic ointment in the nose as I can definitely see the strep connection. I will report back and let everyone know how this works for me."
06/06/2011: Claudia from Chicago, Illinois replies: "Hello, I was wondering if the oinment really worked for you."
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ANTIOXIDANTS, VEGETARIAN DIET, HERBS
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[YEA] 09/14/2008: Kim from Savannah, Georgia: "I went to a naturopath after suffering from H.S. for the last 20 years (since 6th grade) I found taking a trustworthy brand of antioxidants twice a day with food helped tremendously. I also take Echinacea and Goldenseal and eat a primarily vegetarian and organic diet. More than anything I believe a 12/12 probiotic supplement taken daily to be the most helpful for my HS. Do avoid smoking cigarettes or anything for best results. I plan on taking the turmeric and trying the tea tree oil. I experience the pain and embarrassment of this disease every day whether it's because of the scars or an outbreak. Good luck to all."
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APPLE CIDER VINEGAR AND BAKING SODA, EPSOM SALTS
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[YEA] 04/15/2008: Vicki from Apple Valley, MN: "I have suffered with Hidradenitis Suppurativa for about 10yrs the doctors constantly cut, drain and pack the absesses and they have also had me on 3 different antibotics daily. well I got a severe reaction to them and decided to try a more natural path and it is working I take the acv/ bs dring daily also soak in the bathtub 2x per day with 1 cup epsom salt and 3 drops tea tree oil one day then the next I use 1 cup of powderd dreft with the 3 drops of tea tree oil I also eat tons of garlic and take lot's of vitamins"
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APPLE CIDER VINEGAR, TURMERIC, MANUKA HONEY
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[BETTER BUT NOT CURED] 04/13/2010: Susan from Argyll, Scotland: "Hidradentitis Suppurativa
Hi, firstly can I say thank God for this site! I had a hysterectomy 5 years ago and have had HS for the last 3/4 years. Through your site I am now realising that I may have had this disease for longer but before my hysterectomy I was on the contraceptive pill Diannette which I see from some previous posts has helped with HS.
I started off on the cures for boils as this was what I thought they were and went with the turmeric and garlic as I get severe outbreaks on my groin and buttock area. Neither of these worked for me unfortunately.
On reading through this wonderful site I now realise that I have HS and have been trying to treat it for the last 6 months as I was due to go back in for surgery and after having this done previously to no avail realised that I should start looking at alternatives.
At present I am on ACV with mother and Manuka Honey twice daily, shower daily with non scented soap and apply dressings with tea tree oil cream to affected areas to keep covered and stop spreading any further.
I haven't had a new outbreak for about 6 weeks (which is the longest in a while) but the problem that I have is that 1 of them is still leaking and there are 2 big holes at the area and the others just aren't going away. I am a very patient person (as you have to be with this) but wondered if anyone could provide any other things that I could try.
Thanking all of you for your help"
Replies04/14/2010: Dolly from Cairo, Egypt replies: "Hi Susan, I too was diagnosed with HS in 2008 and I know how devastating it is. What you are doing now is fine, but pls. go back to using Turmeric as follows: 1 tea spoon turmeric some black pepper 1 table spoon of oil some fresh lemon juice (1 table spoon) stir and add water and drink - from time to time add 1 spoon of powder ginger this is to be taken from 2 to 3 times daily. Lemon alkalizes your body and is a good antioxidant and does kill the strong smell and taste of turmeric for those who can't stand it.
Also add 50mg of zinc supplement to your daily diet, some people take metformin which helps.
Stay away from sugar and caffeine, sugar is a terrible trigger and try to cut off fats and white wheat from your diet.You might find this hard at the beginning, but you will get used to it. Try to see a doctor re. those holes so he can clean it to stop this leakage and start healing - always dry youself up very very well after showers.
We do all we can, HS doesn't really go away but we try to contain it as possible we can, good luck.
Dolly"
[YEA] 05/10/2011: Margaret from Toronto, Ontario, Canada replies: "TURMERIC REALLY WORKS!!!I drink it dissolved in warm water once a day when I have an outbreak - and the boil literally shrinks within hours - it's amazing. 1/2 tsp in 1/4 cup of warm water, but you can play with the dose.
I also no longer sit in a chair at work - I sit on an exercise ball which constricts my groin area less - which has made a HUGE difference - my exercise ball deflated and I sat in a chair for a month and they came back - I bought a new ball, they were gone in a week.
PhisoHex also works if you use it consistently but you shouldn;t use it longterm.
I notice when I eat a lot of sugar, it makes it worse. Good luck."
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AVOID BUBBLE BATHS
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[SIDE EFFECTS] 07/04/2009: Sherry from Central City, Ky: "I used to get boils in the groin area and just could not figure out why. I finally figured out what was causing this ailment after years and years of wondering. I had for years used bubble bath and I used many different ones throughout the years. Once I ran out and forgot to get some and again kept forgetting to pick some up. I didn't get any boils for a while. I bought some more bubble bath and I again got boils. I finally realized that whatever ingredient was in these bubble baths was causing my problem and I stopped using it altogether thank goodness. I am now boil free. So if you think that products are not harmful something as simple as bubble bath, think again. I won't use it ever again. I am a bath person as I like to soak and relax in a tub and I loved my bubbles.. but have learned to live without them."
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BACH FLOWER REMEDIES
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[YEA] 11/03/2007: Sylvie from Ottawa, Canada: "I have suffered from HS for 30 yrs and have tried all doctors have to offer alternative remedies for relief. Bach (origional flower remedies)Rescue Remedy in spray or liquid..on boils and absesses 4-5 times daily. When caught early it resorbs/when in full "bloom" it helps drain and heal. I find myself craving Indian and Morocan food lately..will try the Tumeric remedy."
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BEE PROPOLIS
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[BETTER BUT NOT CURED] 07/25/2009: Leeya from London, UK: "good news for everyone who are suffering with this disease. my daughter was suffering with this disease for the last 2yrs , i have tried everything u name it and one day in my home i found a herbal antibiotic. actually my uncle use this herbal antibiotic for general purpose and asked me to try this one. you can't believe it the very next day i saw the difference. boils which were open were like going to be disappear soon.
i am writing you the details of this antibiotic but would like to say one thing. this medicine effects on my daughter very quickly probably she is very young and respond immediately to this medicine. but as more adults are suffering with this.. i have a feeling its will take slightly more time probably it will take a month or more . but please try it. she takes one tablet everyday for the last 4 months. i dont know how long i am going to give this medicine but certainly not going to stop soon. at least she is not a victim of Hidradenitis Suppurativa anymore.
the name of the _____ is bee propolis. its a wood supplement. if you couldn't able to find it feel free to contact me."
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BLACK ONION SEEDS
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[YEA] 02/14/2008: Ash from Bolton, Lancashire, UK: "my daughter is 9yrs old, she is suffering from painfull boils and swollen lumph in a groin area for the last 2 yrs . dermatologist has told us two months ago that she has Hidradenitis Suppurativa and there is no cure for this disease. she is on anitbioitc but believe me it doesnt help.
few weeks ago i read in a book about " black onion seeds" Tiny and black seeds of the nigella plant. in hindi and urdu it calls [kalonji] if you search on the google you will find more information about it. easily can buy from asian shops or buy online.
believe me her boils and swollen lymp nearly gone now.there is no new boil appear for the last few week. and i also give her turmeric powder as well it helps for wounds definately.
1: half tea spoone of "black onion seeds" with water everyday. before breakfast would be better.
2: turmeric powder,half tea spoone with water any time in a day.
3: drink atleast 8 glass of water.
4: try to eat healthy food and fruits instead of oil or fried food.
i m reffering this email to Charlene from Hope Mills, NC.
please believe on "black onion seeds" and try it ..it should work.atleast try 1 or 2 months.
i would be greatfull if i get a feed back.
i saw my daughter how she suffers and i can understand how much people r in pain ..please try black onion seeds..
thank u very much"
10/25/2009: Blr from Moreno Valley, Ca replies: "More info on the black onion seed please. How do you take it, hot or cold water? do you grind it up? At this time I will try anything please help. I have a very bad case. Thanks"
10/26/2009: Dolly from Cairo, Egypt replies: "Hi, i read the post about "Black onion seed" you use it by getting 1 tsp to a boil in one glass of water keep it boiling until the white part of the seed shows, let cool off and drink it, its very simple you can add honey for taste. There are some people who prepare a lot to last a whole week, its best done fresh in my opinion - I have not used it yet, but I was told its very good for HS and it helps stopping the boils from occurring.
I use turmeric and sometimes add burdock root powder with it- 1 tsp turmeric 1/2 tsp cinnamon 1 tsp honey sometimes I add 1/2 tsp of burdock root and sometimes I use a few drops of olive oil.I use this without the burdock root daily 2 or 3 times a day. I also use another mixture, 1 lemon with turmeric without the cinnamon and honey - lemon kills the taste and strong smell of turmeric and helps boost the immune system.
You can find the Black Onion Seed, in any middle eastern, Lebanese, herb shop.
I hope this helps someone out there, good luck.
Dolly"
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BLEACH BATH, CLINDAMYCIN, PREDNISONSE
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[BETTER BUT NOT CURED] 05/29/2009: Jo from Lafayette, LA: "I've only had HS for about a year now. After having about 3 lesions lanced and seeing so many different doctors, the dermatologist that I went to diagnosed me right away. He put me on an antibiotic(Doryx) and I started using Hibiclens. The antibiotic helps a lot since I was getting these lesions (boils) quite often. Instead of using the Hibiclens, I now soak for 15 to 20 minutes in a tub of water as hot as you can stand it with 2/3 of a cup of Clorox bleach once a week---more often when I have a flair up. The bleach helps to kill bacteria. I also use Clindamycin lotion after my bath at night. The HS affects my perivaginal region. When I do have a flair up my doctor puts me on Prednisone for a couple of days which softens the lesion and helps it to go away---much better and a lot less painful than having them lanced and less scarring. It's not a complete cure for HS but it sure makes it easier to deal with. Hope this helps!"
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BURDOCK ROOT
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[YEA] 03/21/2009: Michelle from Chicago, IL: "Hidradenitis Suppurativa cure:
one thing that can cure your Hidradenitis Suppurativa is Burdock root. Take Burdock root for 3 months ( 3 times daily) and then stop for 3 months, then repeat... you will not have any problems anymore. Eat lots of read meat ( Burdock may lower iron), lots of fatty fish, limit dairy (once again because of iron absorption) and fruit + vegies. WORK OUT A LOT
Laugh a lot
live well
Michelle "
03/24/2009: Tonya from Dallas, Tx replies: "Is Burddock root in a pill that I can buy from the store?"
04/07/2009: Geralyn from Milwaukee, Wisconsin,USA replies: "I know that Burdock Root comes in capsule form. I have bought it at the health food store. Hope this helps.
Have a great day"
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CALCIUM BENTONITE CLAY, EPSOM SALT BATHS
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[BETTER BUT NOT CURED] 11/18/2009: Claire from Brisbane, Australia: "HS: In my experience calcium bentonite clay compress draws out inflammation, soothes and accelerates healing process. Combine with epsom salt baths."
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COLLOIDAL SILVER
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[NAY] 02/17/2009: Linda from Fremont, Michigan: "I have been diagnosed with HS and am greatful for all the comments out here--I will try the dial soap and tumeric, These sores are very painful ---I am currently changing my diet and dropping caffeine. Right now I could drink a whole pot of coffee--lol. Thanks for your help. I have tried colloidal silver, but nothing changed. Thanks Linda"
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[YEA] 11/25/2008: Carolina from Sto Dgo, Dom Rep: "Hello, First of all, I want apologize for my English but I want give you my opinion.
I'm 32 years old and I'm suffering HS for 10 years, I had read and try every antibiotic, and some natural remedies, but my worse situation now is, My husband is starting with the problem in his testicles after he started to drink ACV to lose weight? and I feel terrible and I don't knew the HS could be contagious.
every month before my period I have the ball, I'm using with good result a silver gel, the name is "colloidal silver" help me a lot to calm and restructure the skin and the ball gone after 3 days.
I hope you can try the colloidal silver.
I have try a lot remedies but the ball coming 3 or 4 months later.
I'm feel crazy because if I'm depress, sad, worry, angry even excited or happy the ball coming up, I'm can't stand my hormonal disorder.
Please try the colloidal silver maybe can help you.
Carol"
RepliesEC: "the ball" = large, recurring boil
02/11/2009: Sarah from Brisbane, Australia replies: "Hi - just reading the above comment on your husband getting cysts similar to HS.
I've been an HS sufferer for many years now but this message rang an alarm bell as my husband is a testicular cancer survivor. PLEASE get the doctor to check his cysts to make sure it is not testicular cancer.
The doctor will be able to see right away if the cyst is a tumour or not.
HS is NOT contagious and his problem is unrelated so please don't feel guilty that you have given him something - you haven't.
I can't stress enough how common testicular cancer is in men or the necessity to have any lumps in the area checked. TS is a VERY fast cancer, but also one of the most survivable if you catch it fast."
04/18/2009: Beanie from Ontario, California replies: "In respnse to the lady that has HS and her husband now has it too...I have suffered with HS for 14 years, and i had to diagnose it myself (then my doctor said "oh you are right...UGH). anyway, I recently learned that a friend of mine suffers from what sounded to be a similar condition; however, her doctors did something that mine have NEVER done, which is to culture the bacteria. Turns out that she actually has community-acquired MRSA, which IS contagious. Oddly, my husband had a lesion on his inner thigh a few months ago and "suggested" that I was contagious (jokingly, of course). Now I'm wondering if maybe my problem is CA-MRSA, not HS, and am going to have my dr. culture my wound next time I have a flare-up that becomes severe enough to need his attention. Anyway, just thought that in addition to prior comments, this might be a good thing to have checked out as well in case it is something contagious such as MRSA, since their presentations can sometimes look similar."
09/15/2009: Kerry from Queensland, Australia replies: "I agree with you i was diagnosed with HS about 6yrs ago i have suffered with this for 10yrs i recently moved home and went to a new doctor about something unrelated (i gave up going to doctors about my HS along time ago) anyway i asked my new dc if the present condition could be related to my HS this dr took a swab and sent it away to be cultered the results have just come back today and i actually have MRSA! I'm happy and angry at the same time, that no other dr has ever done this when they have very similar symptoms im just hoping and praying now that the antibiotics i have recived today will put an end to this misery."
10/05/2009: Kate from Pensacola, Florida replies: "I have been diagnosed with both MRSA and HS. The symptoms of the lesions are slightly different, so stopping treatment for one because you think all symptoms are caused by the other might make things worse. When I have had MRSA lesions, they occur anywhere (mostly my legs or face). If they do open or drain, the drainage is thick with a greenish tint, and sometimes you can see the infection beneath the skin. When the wound is completely cleaned of bacteria, there is a definite hole where the infection was. With the HS, the lesions are boils. Just wanted to let you know that it is possible to have both (as I do)so don't neglect your HS remedies if you have a flare-up of MRSA. The MRSA antibiotics don't help with the HS at all, or at least they didn't for me. And I wanted to say thanks for all the suggestions, I've never found a better place for info about HS."
09/14/2011: Bb from Hood River, Oregon replies: "I just wanted to say that HS is NOT contagious. I have had HS for 36 years and I was married for 19 years and my husband never once had anything, my doctor also assured me that you can not pass HS so your husband had a different issue going on."
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COLLOIDAL SILVER, ZINC, APPLE CIDER VINEGAR
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[YEA] 12/26/2011: Jennifer from Philadelphia, Pa: "I have had HS for about 4 years now. Sadly, most doctors are not aware of the skin disease, and I have been diagnosed with Boils, Cysts, ingrown hairs, and was told to wear loose clothing, don't shave; everything they told me not to do- didn't work.
I only get them in my groin area- and it is the worst pain you could imagine. I am not overweight, nor have I ever been; as many say that is a big cause. I have never smoked. I have tried so many things including antibiotics on several occassions, topical antiobiotic creams, eating healthy, etc.
I have been taking Colloidal Silver for the past 7 months, and have seen a drastic difference. I don't get flares anymore (as long as I take it) but I know I am not cured becuase I can still feel the sacs under the skin and my skin is discolored. I had a wound that didn't heal for 4 months! That was when I started the Colloidal Silver. (My mom had told me about it). If I forget to take it, I am reminded when I start to get a flare up.
I also take Zinc supplements, and Apple Cider Vinegar tablets. I read on one of the forums that Oils (such as Omega) helps, as the oil glands are blocked because it is hardened. To me, this makes the most sense. I am going to try to include Oils in my supplements. We are all different, and every person's body reacts differently- which it's so hard because what works for one, may not work for another. You just have to keep trying different remedies, until you find what works best. I'm not sure which of the supplements I am taking are actually helping the most (of if all are) but I'm not stopping since it's working!"
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COLONICS
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[BETTER BUT NOT CURED] 05/12/2008: Jerika from Detroit, MI: "HIDRADENITIS SUPPURATIVA: HELLO EVERYONE, I'M BACK WITH MORE SUGGESTIONS ON HOW TO HELP THIS ANNOYING PAINFUL SKIN DISEASE. I'VE DECIDED TO TRY A COLONIC, I REALIZE THAT WITH OUR FIBERLESS, AND NUTRIENT LACKING DIETS THAT OUR IMMUNE SYSTEMS AND INTERNAL HEALTH COULD BE CONTRIBUTING TO THIS DISORDER. THE BUILDUP OF TOXINS OVER THE YEARS FROM NOT FULLY EXPELLING FECAL MATERIAL COULD BE CAUSING OUR IMMUNE SYSTEMS NOT TO PROPERLY PERFORM, THEREFORE ALLOWING SKIN DISORDERS SUCH AS ACNE, HS, ANEMIA FROM MALABSORPTION OF NUTRIENTS, FATIGUE, INSOMNIA, AND SO MANY OTHER HEALTH PROBLEMS.
A HEALTHY DIET FREE FROM REFINED SUGARS, AND PROCESSED FOODS, AND PLENTY OF WATER COULD ONLY HELP THIS DISORDER. I'M GUILTY OF TERRIBLE EATING HABITS AND SMOKING WHICH COULD ONLY BE CONTRIBUTING TO THIS PROBLEM. I STRONGLY BELIEVE THAT A COLONIC WHICH IS LIKE AN INTENSE ENEMA RIDS OUR BODY OF OLD FECAL MATERIAL, PARASITES, AND TOXINS THAT HAVE BUILT UP IN THE COLON OVER THE YEARS FROM UNHEALTHY EATING HABITS, I THINK THAT COLONICS AND A DRASTIC CHANGE IN EATING HABITS CAN DRASTICALLY MAKE A DIFFERENCE IN THE SEVERITY OF HS.
I THINK THAT ANTIBIOTICS AND SURGERY ARE ONLY A BANDAID TO THE TRUE CAUSE OF HS. GETTING TO THE ROOT OF THE PROBLEM IS THE ONLY WAY TO PINPOINT THE CAUSE OF HS. I WIL TRY THE COLONIC AND MAKE HEALTHY DIET CHOICES AND LET YOU KNOW THE OUTCOME AS SOON AS I SEE RESULTS. I HOPE THAT SOMEONE SUFFERING WITH HS AS I HAVE OVER THE YEARS WILL READ THIS AND GIVE OTHERS IDEAS ON WHAT WORKED FOR THEM, TAKE CARE AND GOD BLESS."
Replies07/09/2011: Renee from Atlanta, Ga replies: "Jerilyn,I encouraged my daughter who has HS to try colonics. She went to her first session today. Also I am working with her to change her eating habits by eating healthy foods (excluding sugars and foods with refined carbs), drinking lots of water daily (with immune system drops in it), taking Vitamin A and drinking a blood cleaning tea that includes a variety of herbs (we purchased from a natural store). I'll let you know how it works. She needs a friend who has HS who she can talk with and develop a good relationship. I do anything that I can to keep her working on the issue daily so that she doesn't get too depressed. Sometimes we both get in slump about it, but working together, neither of us ever gives up. Her two children (two and five years of age) keep her focused too. Would you be willing to be her friend?
Renee"
09/06/2011: Gina from Dallas, Tx replies: "Renee, I am going through the same thing with my daughter. May thoughts and prayers are with you and any parent that has to watch their children suffer with this condition. I am so tired of the dermatologists, surgeries and giving the Humira shots. I am going all nature, this entire house is going vegan and we are all going to get colonics. I am keeping you in my prayers and everyone on this site. We are going to beat this thing."
12/01/2011: Renee from Medford, Or replies: "I would love to have someone to talk with about hs I was just diagnosed with it. I have had it for many many years and was misdiagnosed and had one obgyn say in front of my then husband oh my god what are those? I have never seen anything like it? And totally embarrassed me to the point I never told anyone about them, my husband when divorcing said to hurt me and it did very much said who will want that lumpy pussy! So I lived in shame, fear disgrace, pain, itching etc. for many years.Then I started going thru menopause and they have got worse and huge very very painful and itch like crazy (no one talks about the itching so I'm still not sure I have this, does anyone itch, I can scratch thru clothing in a night and be raw the next day? Does anyone else itch this bad?) So anyway going thru menopause they have gotten worse to the point I went to a Dr.again was put on antibiotics to no avail. Go figure I thought I had it figured out and it would go away, no more lumps, itching and embarrassment. But that didn't happen, and they are getting bigger and I guess connecting underneath the skin. I am in so much pain.
I moved to another state and had to again go to another doc and be embarrassed again and show her what I call my monsters. She said I have hs, now that I have been diagnosed with it. And don't have insurance anymore she is saying cause of the severity of mine and them tunneling together I need to have them surgically removed, when I had insurance no one knew or embarrassed me, now someone knows what it is and of course I don't have insurance.
I have lived in shame and have come to the conclusion I will live alone or with my monsters lol. I don't know what to do. I really sometimes like now don't want to live anymore! I have so many of them all over my pelvic area and one on each inner thigh. I scratch myself to death it's a scratch you can't get to, I squeeze or like pinch and twist and turn to try and relieve the itch. I hate my life. I have tried lots of things that have been suggested here and by my doc. In fact, she is the one who referred me to this site. I told her it took everything (mainly pain and itching) for me to even talk to you about it. I'm not going to talk to anyone else I'm embarrassed enough, but obviously here I am telling my story about the monsters that live on me! I wish I could get them cut out and try and have a life again. Right now they are inflamed and very painful, at times I almost want to cut them out myself but there are too many and I wouldn't know what to do. I don't know why I'm posting this but I am now. I just hope I have the guts to press send.
Help me, please god, someone I don't want to be in this pain and I don't want to die alone but if this is the way the rest of my life is going to be like I really want out. My doc. said she is going to talk to this other doc. to see if maybe she can do something, I'm guessing maybe she will take them out on a pro Bono type deal. It would be more like plastic surgery because I have so many. I wish I had a mom that was loving and understanding. I have lived with these for years and never told her cause she is, I guess a prude and talking about anything to do with sex or sexual parts she does not want to hear. Sorry I'm rambling but this is my shot to get it out there.
Anyway since the divorce and not being able to get a job blah blah blah I had to move in with her. I had a flare up before I moved here and I finally told here cause it was a bad one and they thought it could be related to the 6 lbs tumor on my ovaries that were removed but maybe some was left I guess they thought it could be, but I don't have insurance and went to the er and they gave me strong antibiotic that should help and I prayed it would. They went down but are still there. So when I moved into her home recently and I am having another flare up, and seen the doc up here and I had hs and a bad case of it, my mom said to me I thought you had this taken care of before you moved up here? I said well I was put on antibiotics and they went down but they didn't go away. So then she said to me so you moved up here knowing you had this debilitating disease so I am stuck taking care you. First of all I just found out what I had and she was the one who told me to go to this doc. And she thinks I did this to her on purpose. It's not like I don't have enough to deal with but hearing your mom say that I deliberately set her up to have to deal with me. Not this oh I'm sorry honey, no kind words I just don't want this life anymore okay now I'm crying and like my mom says playing the victim, cause she didn't understand what I had so I let her read about it thinking she would be more supportive but she thinks I moved in with her to purposely, I guess, leach of her. Okay I'm going to hit send I hope I didn't waste anyone's time but if I was going to write I want to get it all out, if it doesn't make sense it's cause I just kept writing feelings as I was feeling them. Thanks and if you all could pray for me I would so appreciate it, I'm praying the doc. will operate for free, so please help and pray with me thanks."
12/01/2011: Debbie from Melbourne, Australia replies: "Many people have had great results taking tumeric for this problem. I would read the section under ailments on this site and see what people who have had success have done. Tumeric seems the most popular.I would also look at your diet.. Obviously your body is in a toxic state, you need to detox it. The toxins are getting out of your body through the skin. If I were you I would go on a fresh green juice detox for a week to clear everything out (maybe on a regular basis). No processed foods, or sodas. You could also add chlorella and spirulina to the green juices. I would also add colloidal minerals and drink plenty of water to flush everything out.
Antibiotics usually cause a yeast problem in the body so you probably have that as well.. so I would stay away from sugars that may be feeding the yeast.
As they say you are what you eat, so you need to look at what you are eating."
12/02/2011: Timh from Louisville, Usa replies: "Renee, if you presently seem to not have ANY cure for this disease, you can simply fortify your entire body and mind with the many protocols and therapies offered by especially alternative medicine most of which are found on this site. Good diet, supplements (esp. Zinc), exercise, positive thinking etc. and you will improve. Have you detoxed? Oil Pulled? Cold Showers? Your immune system is proly very low, especially in antibodies. No topical salves or ointments work whatsoever? Inflammation could be aiding the "monsters". What about natural antibiotics like Silver, H2O2, MMS (bath), Iodine? Sauna? I witnessed an old school therapist use a heat-lamp on skin conditions (mostly bed sores) in a nursing home with very good results. Now we have far and near infared lamps for skin and other conditions.Good luck and don't give up."
12/03/2011: Liz from Caledonia, Mi replies: "Renee,First of all, I am sending you a huge hug. Please don't give up, I just know there has to be a solution to help you! Keep researching ideas on EC and keep asking questions and try to keep a positive outlook.
I don't have any idea if this would help - but while I was reading your post, a quote by Bill Munro popped in my head. "Hydrogen Peroxide is the most over looked chemical used by man. New uses of it are coming to light every day. Bad bugs be they, in your garden or your body, they cannot live in an oxygen rich environment."
I'm wondering if soaking in baths with hydrogen peroxide in it might help at all? Maybe do some researching on EC on hydrogen peroxide. I personally would soak once or twice a day for as long as I could stand it. I don't think it could hurt anything and it might help a lot! Best wishes to you!!"
12/04/2011: Dolly from Cairo, Egypt replies: "Please try to use Turmeric from 3 to 5 times daily in the first week and then decrease the number to 3 times daily this is a forever treatment, 50 mg of zinc daily forever 1 tablet of iodine. Use only sulphur soap on the infected areas, no cream, perfume or anything allowed to come in contact with the infected areas. Try to always keep your body alkalinized, drink at least 2 juiced lemons/limes per day.The Turmeric drink method:
I teaspoon turmeric 1 table spoon olive oil or coconut oil mix together until the turmeric disolves add a pinch of black pepper half a lemon and stirthis mixture add water and drink.
The other way is to add the same amount of turmeric 1 teaspoon of cinnamon 1 teaspoon of honey a pinch of black pepper water or warm milk and drink.
Eliminate totally sugar and caffeine (at least for the first month) be stress free as much as you can.
Wear cotton underwear only and wash at least 3 times daily with sulphur soap.
If you have sinus tracts you must go to the doctor to drain/clean the infected areas first (surgery).
Stay in a cool place and avoid humid and hot places as much as you can.
Turmeric treatment will not help if your wounds/boils and tunnels are not cleaned first.
I hope this helps, good luck to you.
Dolly"
02/24/2012: Meg from Pittsburgh, Pa replies: "I have just been diagnosed with this as of yesterday. I have just recently discovered I was pregnant and changed my obgyn. When I initially had these symptoms at about age 16/17 I was told by my old obgyn these were ingrown hairs, but I wanted testing for all stds anyway. Everything came back negative so I trusted in my doctor.I am now 21 it has progressed and continued to become worse, I was very ashamed but trusted in the experienced obgyn I had. I spent hundreds of hours looking for information that could better explain what was going on, with the scarring and everything. This is something that had NEVER come up. I wish there was more awareness for this disease, and I definitely want to share what happened to me to help others. When I was diagnosed with this yesterday, I could not get enough information. Everything I was told matched it to a T. I couldn't believe that I had never gotten another opinion and am pretty angry at myself for not doing so. I just wish I had this obgyn from the start. I feel very dismayed now that it's gone on for so long without anything being done- and that it could be genetic? and just finding out about this when I'm pregnant it really upsets me. Do'nt know where to start I already know hot baths can calm it that's the only relief I have had since age 16. I do start to feel sick when it's coming about and when it's gone, feel much better. Hopefully I can find what works for me, and good luck to all of you. I do feel better knowing than just wondering what it could be. Just wish I would have known sooner."
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