Acupuncture
★★★★★
(Chicago, Il)
10/05/2014
Hi Ladyliza (Los Angeles, CA), I am 45 year old male. I just started having a constant twitch in my left pinky finger. I am right handed. I am panicked about the possibility of PD or ALS. I wen to chiropractor a few days ago and it "could" be nerve issues. I am not convinced of the nerve answer since, the pinky has been twitching at rest consistently throughout the entire day and night. I do notice when I do an activity, I don't notice the twitching as much, but I am not sure if that is just due to me not paying attention. I was wondering if you or people with PD or ALS have had the pinky twitch like I described. I am healthy and a realist, so I wish I could accept the nerve thing, but reading about Michael J Fox article about his left pinky twitching and then he got PD, has me very nervous. I am very active and have 2 young children, so any feedback on what I should do prior to going to the Dr would be appreciated. Thank you, Andy
Acupuncture, Detox Herbal Remedies
★★★★★
After 4 treatments, I can now FAST WALK a block without the walker.
I also added Calcium Edonite Clay to detox from a plant-sourced Vit C which contains "ESSENTIAL TRACE ELEMENTS"--unlike my usual fastidiousness in Research, I 'paid no mind' to what the TRACE ELEMENTS are! I progressed rapidly with ~ 4 months use: TRACE MINERAL ELEMENTS, aka: UDOMS ARE DEADLY FOR P.D. PATIENTS!! ANCIENT HEAVY METALS washed up from the sea!!! Just what P.D. does NOT WANT! Within 3 days of detox (metals, pollutants, herbicides & Pesticides, fluoride from tap water treatment, etc).
Note: I called the Nat'l Parkinsons Foundation: rep said she had never heard of any detox!!
(Mount Vernon NY)
06/25/2022
Jason,
If you haven't already, you might consider looking into vitamin B1/Thiamine at high dose. It doesn't work for every PwP, but it is helpful for the majority, but it can be difficult to pinpoint the correct dose. It can be a process of trial and error.
I can make another recommendation or two, but you didn't give much info in terms of her symptoms. It would be helpful to know that information. Btw, she is quite young to be diagnosed with PD as the most predictive factor for PD is age. What method did her neurologist use to diagnose her?
At just 3 pills of levodopa per day, I am going to guess that her symptoms are very mild at this point.
Art
(Florida)
07/21/2022
Why not try mucuna pruriens & amino acids. Acupuncture. And have a “functional medicine”doctor do testing like the doctors don't test.stool samples. 6(they send the labs away ) ususalluY you have to pay out of pocket. Maybe do an oxygen breath test. Hyperbaric oxygen chamber.
(Texas)
04/03/2024
After reading lots of posts here about a possible connection between fungus and PD, a logical option to me would be to try berberine. When I looked to see if there were current studies related to berberine and PD, I found several and each seemed to have positive results. I take 2 Berberine Plus tablets daily (1200 Berberine HCl/10 mg Royal Jelly). I started taking it because of a fatty liver and the possible link to small intestinal bacterial overgrowth (sibo). The studies that I found linked Berberine to higher amounts of dopamine. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9164284/ https://www.nature.com/articles/s41392-020-00456-5
(Philadelphia, PA)
10/04/2024
Please expand and detail your comment. What are UDOMS????? Within 3 days detox - then what? The thoughts were never finished. What detox?
EC: While "UDOMS" is not a standard scientific term, it seems to be the user's shorthand for undesirable minerals or elements (perhaps referring to Unwanted Deadly Old Minerals/Substances or something similar). The comment is cautioning that these trace elements, possibly including heavy metals like lead, mercury, or other pollutants found in certain detox clays or supplements, are harmful for those with Parkinson's disease.
AEP
★★★★★
(Arcadia, Ca)
09/21/2020
(CT)
09/22/2020
Hi Mary,
Found this for you: AEP is Calcium AEP (Cal 2-AEP), a unique type of calcium that helps nourish nerves and cell membranes.*
Here's one product on Amazon.
https://www.amazon.com/Calcium-Nerves-Membranes-Capsule-Capsules/dp/B003VLENHQ
(Arcadia, CA)
02/05/2023
Benserazide for Medication Rashes
After many efforts to find solutions, my sister solved the allergy by having her take Benserazide / Levodopa a.k.a. Madopar [sold in Europe], which cleared up the rashes while preserving the long-term benefits of a parkinson's medication.
Sometimes a slightly different take on a conventional approach can make a huge difference.
CBD
★★★★★
CBD, which I have been associated with and studied as a medical professional for decades (and owner inceptor of 2 CBD stores) is covered in National Institutes of Heal and Pub Med studies that weakly show its effectiveness against Parkinsons and all spasmodic disorders. Why do you think that people flocked to Colorado to use CBD a dedade ago when it was only used here? Why do you think Sanjay Gupta MD cried when he saw seizures disappear in minutes with his own eyes and apologized profusely for ever maligining CBD? In our stores we have a ledger that people weigh in with to describe their personal results and it is incredible what CBD does for pain, inflammation and relaxation right down to the nervous system which is why seizures and Parkinsons commonly stop forever. Supposedly, 47% of children have stopped all seizures in one day and forever. Why in the world do people think that CBD is marijuana? It cannot get you high and has almost zero thc which is another great and innocent healer. In our stores we have people with Parkinsons with resting tremors so bad they need an attendant to function and one week later they roll into the store to get some more CBD completely functional and independent. Look, I am a combat injured Marine from Viet Nam who got the high medical degree in therapeutic science OTR at 50 years old. I do not lie. Just study a bit and you will be astonished.... try CBD vs Parkinsons....CBD vs seizures... CBD vs cancer .. CBD vs pain, inflammation, depression like that. Just study. I am only asking that people get rid of old habits and look at these realities and truths. I never prescribe anything. I only ask people to study and heal as they wish.
Cholesterol
(Texas)
12/17/2018
Hello Max58j. I am beginning to show signs of PD more and more at age 62. I have never had high cholesterol, but my grandmother and mother both had PD. They also did not have high cholesterol. I always thought there was a genetic link, but after reading on here, it was a vitamin/supplement that we needed (perhaps).
Coconut Oil
★★★★★
(China)
03/25/2016
The reference to Dr. Mary Newport's video is very vague as there is nothing in the youtube listing regarding Parkinson's, and many videos by Dr. Mary Newport, all about Alzheimers.
CoQ10
Drug Free
Fungal Infection Link
★★★★★
I recently submitted a link to a new research paper suggesting that Alzheimer's disease might be associated with fungus. Existing research and other writings already support the association of Parkinson's disease with fungus, see below.
http://www.ncbi.nlm.nih.gov/pubmed/17051898
Acetaldehyde is a toxin produced by fungus. The abstract for the above-linked study from 2006 states that, "In the presence of acetaldehyde, dopamine is converted into salsolinol, a neurotoxin involved in apoptosis of dopaminergic neurons."
In other words, fungus produces a toxin which combines with dopamine to make a neurotoxin, which then causes the dopamine-making neurons to self-destruct (apoptosis is programmed cell death). The loss of most of the dopamine-making neurons in the brain's substantia nigra causes dopamine levels to drop drastically, causing parkinsonian symptoms.
http://www.jns-journal.com/article/S0022-510X(13)00865-4/abstract
Fungal volatile organic compounds: Biogenic toxins as etiological agents for Parkinson's disease
Parkinsonism secondary to bilateral striatal fungal abscesses
The book, Road to Recovery by Richard Rodgers, discusses the author's belief that Parkinson's is caused by a fungal infection. This topic is addressed on page 106. You can read that page by following the above Google Books link.
http://www.ncbi.nlm.nih.gov/pubmed/17051898
Chronic polysystemic candidiasis as a possible contributor to onset of idiopathic Parkinson's disease.
http://www.vrp.com/digestive-health/a-health-destroying-toxin-we-cant-avoid-and-must-detoxify
A Health-Destroying Toxin We Can't Avoid And Must Detoxify
Article is written by a Clinical Laboratory Scientist--see paragraph titled Detrimental Effects.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3689266/
Acetaldehyde and parkinsonism: role of CYP450 2E1
In the paragraph titled Acetaldehyde and Parkinson's Disease, they don't mention the fact that acetaldehyde can be produced by fungus; they relate it to alcohol consumption, which is another reason for acetaldehyde to be present in the body.
http://www.ojs.ukw.edu.pl/index.php/johs/article/view/2015;5(3):68-78
Fungal infection possible pathogenic role in Parkinson disease and parkinsonism
This 2015 journal article published in Poland by researchers at Odessa National Medical University in Ukraine is written in the Russian language, but the abstract is translated into English.
https://www.google.com/patents/US6652866
Method for treating diseases of fungal, yeast, and prion protein etiology
This veterinarian believes that many neurodegenerative disorders are caused by fungi. He has developed a method of treating symptoms of the disorders by administering anti-fungal fatty acids, as explained in his patent application.
(Montana)
11/05/2015
Thank you SO much for posting this! I also believe that yeast has so much to do with it. I have had a systemic yeast infection for years. One of the symptoms that I feel is related to this, also, is hair loss that I am experiencing. Parkinson's is in my family, so I may have gotten it anyway, but I believe that other precipitating factors (yeast and others) brought on what may not have manifested had they not been there.
(Larnaca, Cyprus)
11/06/2015
Hi, Zebu:
I hope my post added a bit of information to the other posts on this page; several people have said Parkinson's can have a fungal etiology, so I just chased down studies to support that.
I don't know what you are doing already to try to relieve your medical conditions (Parkinson's and candida infection). But, if you haven't already, you could eliminate wheat and processed sugar from your diet. Regarding your hair loss, regular use of a dandruff shampoo with vigorous scalp massage may help; those shampoos eliminate dandruff through their antifungal action, and massage promotes circulation to the scalp so that the hair follicles are better nourished and oxygenated. Gentle hair-pulling once a day works similar to massage; just wrap a bunch of hair around your fingers and gentle pull it for a few seconds, and work your way around your scalp until all hair has been pulled. My husband's late father renewed his hair growth in his 70s through hair-pulling. A simple, cheap sulfur supplement like MSM (an anti-inflammatory champ! ) can thicken your hair (and nails) and is antifungal as well. Eggs are another source of sulfur and protein to feed the hair.
Thanks for your reply! Best wishes.
Hydrogen Peroxide
Thanks
(Brantford, Ontario)
12/30/2011
★★★★★
fg hydrogen peroxide to 3% have done too many good to me. i been using it for the last 16 months. i have cured edema, bronchitis, skin cancer, curb niel, easy breathing. all that happened by hydrogen peroxide.
now the way how to use it soak a cotton swab in %3 hydrogen peroxide and smell it with breath 6 times. 4 times a day. by the same cotton swab clean your ear. for skin cancer soak the wound 10 to 12 times a day.
Lyme Disease Connection
★★★★★
Thanks,
Susan
Magnesium, Sea Minerals
★★★★★
May we suggest you read two articles https://betweentwopines.wordpress.com/2012/05/21/magnesium-chloride/ If the URL does not transmit, please look up"Father Jose Chorr magnesium chloride two pines". Also http://www.naturesapproved.com/PDFDocs/k/KXKLL0RMMTL59MR3VAJ033PEXR47DKP6.PDF If the URL does not transmit, please look up "Health from the Ocean Deep Acres USA". We recommend your mother use liquid sea minerals, such as Aussie Trace Minerals http://seamineral.com/ (order in your state, Colo.; also available from other web sites); rather than the powder that Father Chorr used. The powder in the U.S. at least, appears to be sourced from the Great Salt Lake, which apparently may contain heavy metals.
Let your mother drink 1 teaspoon liquid sea minerals in a glass of water twice a day, beginning with once a day, as Father Chorr suggested, and increasing after a few days. If the stools are too loose, decrease to 1/2 tsp. once a day and increase more gradually.
Let your mother avoid eating meat; the most success with Parkinson's is with the vegetarian (no eggs) or vegan diet. Just be sure to include at least 2 tablespoons freshly ground flax seed every day in the diet for Omega 3 essential fatty acids, and drink extra water. We wish you and mother all success.
Magnetic Field Therapy
Thanks,
Abigail
(Denver, Co, Usa)
05/10/2010
There currently is a research study underway at a private facility here in Denver to attempt to determine the effectiveness or magnetic therapy.The participant goes in for approximately 1 hour per day, 3 days per week, if I recall correctly.
(Amsterdam, Nh)
07/09/2012
★☆☆☆☆
WARNING!
We have had this experience with Parkinson and Multiwave oscillation. Very diappointing because the symptoms became rapidly worse after treatments! I think the patient I work with might have responded much better if he would detox from the many years of chemical drugs in his body before treatment. The oscillation might stir up too many toxins. We are now on the way to start up a very slow delicate detox process. Magnesium therapy seems to help some. We are studying vitamin D3 as a possibility. I would love to hear from others on this subject!
Malassezia Yeast Connection
★★★★★
Consider the following points:
(a) Malassezia is an unusual yeast in that it is lipophilic (meaning it feeds on lipids rather than sugars/starches like candida). AND it seeks melanin & infects melanocytes. The dopaminergic neurons in the brain -- the area affected by PD -- contains high levels of neuromelanin. Neuromelanin in turn has an affinity for lipids and for iron, both of which favor the growth of this yeast. Note: because it feeds on lipids rather than sugars, it will NOT grow in the usual fungal cultures performed in hospitals (they use sugar/starches in the medium, no lipids). So it is "under the radar" in the sense that there seems to be little testing ever done for it.
(b) Malassezia is known to infect melanocytes in the skin... and I suspect it is involved in causing skin cancer. If so, this would explain the higher rate of skin cancer found in Parkinson's. Also, because it is in the skin (IN, not only "on"), it could hypothetically be pushed into the bloodstream or spinal fluid by medical procedures like injections or spinal taps.
(c) L-DOPA is a precursor to MELANIN, so it makes sense that Malassezia might take it up ... thereby reducing the amount available for normal brain functioning. Low L-DOPA is a key feature of PD.
(d) Acetaldehyde -- produced by yeast -- converts dopamine into a neurotoxin called salsalinol ... which may cause the eventual aptosis of dopaminergic neurons. It also promotes increased iron content and the release of iron, both of which would favor fungal growth.
(e) Malassezia is extremely common and extremely slow-growing. It may be that people have it for decades or a lifetime. I speculate that risk factors for developing PD might include: prolonged use of antibiotics (esp. intravenous) or steroids/immunosuppressants, depleted flora from any other source including packaged foods which contain additives or may be irradiated to remove flora, accumulative lifetime exposure to UV radiation, including sunlight, medical procedures like CT scans et al; eating a lot of oleic acid (vegetable oils including olive oil are the primary culprit here, but also animal fats), high cholesterol/triglycerides, PRN lipid therapy, taking Vit D or iron, use of certain psych meds like antipsychotics that increase lipids. Meds that cause photosensitivity (= less resistance to UV radiation) might be another area of concern.
If my hypothesis is correct, there are definite implications for prevention steps and maybe also treatment. Some possibilities that come to mind are increasing dietary sulfur (antifungal), increasing "good" flora, avoidance of risk factors including dietary veg. oil/animal fat, etc. Based on my reading, buckwheat also contains an antifungal compound. Whether such steps would have an effect, I don't know. More research is clearly needed.
(Northeast, US)
12/10/2014
★★★★★
Just wanted to add: if there are other yeasts that have similar characteristics (melanin-seeking, slow growing, lipophilic), they could also be potential causes. It may not be exclusively Malassezia that can cause Parkinson's.
Some ways that Malassezia or other fungi could potentially get into the brain are:
- medical procedures/treatments, such as surgery w/ anesthesia, CT scans of the head (radiation can affect the blood brain barrier temporarily), use of IV drugs (legal or illegal) esp. IV antibiotics or IV lipids;
- spinal tap: if Malassezia is present in (not just on) the skin, a tap could theoretically push yeast into the CSF;
- presence of other infections known to have the ability to cross the blood brain barrier, such as Lyme disease
