L-lysine
★★★★★
L-lysine
★★★★★
(Pensacola, FL)
05/16/2024
★★★★★
Thank you so very much for posting your experience with TN and taking L-lysine. I've been suffering for a week with horrible, debilitating TN pain in my right cheek and into my mandible under my wisdom tooth. After I read your post, I realized I was having a lot of symptoms that I get with cold sores but without any actual cold sores present. I already had a bottle of L-lysine on hand in case I get a cold sore so I immediately took some and within an hour, I kid you not, ALL my symptoms are starting to dissipate rapidly. All good blessings to you, tysm!
Laser Treatment
★★★★★
(Curacao, Neth. Antilles)
02/08/2011
(Toronto, Ontario Canada)
02/13/2011
Hi Herbert,
The clinic that helped my mother is in Myrtle Beach they have a website lasermedcenter. com and they have a facebook page www.facebook.com/#! /pages/Laser-Med-Center/119990178056852
My mother is Carmela and you can view her testimony either on the facebook page or on the website. Give them a call and they will answer all of your questions about the treatment.
All the best!
Daniela
(Memphis, Tn)
08/11/2011
I suffer from TN. After going to 3 Dentist and 2 Oral Surgeons because I thought it was my teeth, I googled pain in the face only to find TN. I went to my MD and he immediatly knew what it was. I have been taking Gabapentin. Started out 300mg once a day, then 3 times a day, now 600mg 3 times a day. The pain started out in my lower teeth, then upper teeth, it moved to my check and eye. All the pain I have read about describes exactly what I feel. Pain washing my face, brushing my teeth, talking, sleeping. From the shocking pain to the burning sensation in my teeth. I just read about the Laser Med center but was curiuos as to the price. Could you give me a price range. Also, I see that you have to stay there two weeks in order to get the treatment for 30 min twice a day.... Thanks to all for sharing your treatment. I keep seeing B-12 and Omega 3, but how much. I too am willing to try most anything but surgery and more drugs.
(Las Vegas, Nevada, United States)
08/12/2011
Have you tried EFT? Very easy to learn and helps with many issues doctors can't touch with meds/surgery. Energy healers? A lot of people have found pain relief this way. You can also buy your own cold laser these days for not a lot of money. I've found laser therapy pens to be very effective for relieving many types of pain. Hope that helps.
Steve
(Seattle, Wa)
07/04/2013
Daniel: You said you had nothing to lose to try this lasermed treatment in Myrtle Beach. Well I tried a laser med treatment from the Chiropractor, just one, and for only 5 minutes, and have been much worse than before I went.
I am talking to the LaserMed treatment center in Myrtle Beach, and it is about $7000 for flight, treatment and a hotel room for the 3 weeks. A pretty expensive thing, but now I am even more afraid to try Laser treatment, since this one caused me so much more agony.
Do you have any insight to give me. I thought I would be able to wait another year for this expensive treatment, but now I am so much more progressed in pain. It has been about 8 days since I had the 5 minute treatment, only to the pain paths, not on the Trigeminal Nerve itself.
thanks
(Las Vegas, Nv)
07/04/2013
I know a few people that have had success treating trigeminal neuralgia with energy healing. All of the research I have seen on treating this condition with low level lasers indicates that many laser treatments are necessary to have any effect. The initial studies on this said 12 weeks of 2 treatments/week had the best effect. One 5min treatment will have almost no effect at all.
(Las Vegas, Nevada)
07/05/2013
As an energy healer what I do is focus the energy on the trigeminal nerves. It generally takes at least a few sessions to get the pain level down to a manageable level. There are lots of great healers listed on this site as well. But it hardly ever gets mentioned which is a big shame. So many people can be helped by this therapy alone. If there was a distance healing request page we could help a lot of people. Peace, Steve
(Quebec)
06/18/2021
(Seattle)
07/29/2013
Hi Daniela: you mentioned that your mother got treatment at the LaserMed Center in Myrtle Beach, S Carolina. How is she doing now? I am researching this to see if it is a viable option.
It is not covered by most insurances because it is considered experimental. It is about $5600 for the treatment and then add round trip plane fare and motel for 3 weeks and all the other things you need, it is quite a package for most people to pay and the time away from home as well is costly.
SO please keep us informed on how your mother is progressing. Yes, I did call them, and I got one reference to call me back. I am not sure why there can't be more people willing to share, if they have successful results, but there doesn't seem to be more.
I am wary about just seeing testimonies on their websites; just good advertising that is all. I want to hear more from the people who have nothing to gain but want to share how they actually got rid of the agony of TN just for altruistic reasons. So please keep us informed how your mother is doing.
I wonder why Neurologists haven't heard of this? They have heard of Upper Cervical Chiropractors though and it has helped people with TN and is covered by most insurances. So is this worth a try first? I don't know.
(Nevada)
07/29/2013
Laser therapy is a good treatment option for Trigeminal Neuralgia. There is lots of international research that points to the fact that it is an effective therapy for TN. Here is a research link. It's written in medical research terminology but the gist of it is that Laser Therapy works.
http://www.ncbi.nlm.nih.gov/pubmed/11197651
$5600 is an awful lot of money for the treatment plus all the expenses. For that much money you can buy your own therapy laser and have unlimited treatments. In fact you can get one for a lot less than that. Many options out there.
Peace, Steve
(Dothan, Usa)
11/17/2014
Hi, I was wondering what the laser treatment was? In or outpatient? I got TN at 22 & tried everything I could find including surgery, which spaced out the pain from every 2-3 seconds to every 20-30 seconds. So not great results but better than nothing. I'd like to know if your mom is still pain free or if it's a maintenance type of treatment? Thanks so much in advance!
(New Market, Va)
02/19/2015
I was diagnosed with Trigeminal Neuralgia in the year of 1998. Did not have any symptoms of this very painful #10 pain until after dentist sessions with trying to change my bite, which by the way, I was losing teeth, had root canals, etc. that these symptoms became very, very evident. After many visits to the medical profession, and research on my part, I decided I needed to see an Neurologist in Staunton, Va. who was associated with the University of Va, Charlottesville, VA, Neurological Dept., and learned that a blood vessel was leaning on a nerve. After x-rays showed this condition, I was recommended to be a candidate for sterostatic radio therapy that I decided to do.
Dec. 9,2000, was when I was admitted to the University of VA hospital for an overnight stay. There was no invasion of the skull. I was fitted with a helmet that was carefully centered and then wheeled into another room with an attendant behind a glass window. I then was placed in the next room and this beam was centered on the necessary position, asked the kind of music I liked with ear phones, for about an hour. Just this one treatment and released. After stopping Tegretol, Gabapentin, etc, I was slowly eliminating these medications.
I was pain free until the year of 2008. At that time minor disturbances with sinusitis aggravating the nerve on the side of my face occasionally but nothing like the #10 pain preceding the treatment. I am grateful and thankful that I am not going thru what I had been. I was 76 years old at that time. Every two years I had a contrast brain scan. Now I have been reading that B 12 is beneficial to patients, but since I am from the old school of common sense, I thought it is much better for the body to absorb the natural vitamins from our food intake. I am now eating fresh liver from a local butcher at least once a week, fresh caught fish at least once a week, fresh green vegetables to keep the bowels open and lots and lots of prayer, a necessary ingredient for daily life.
(South Africa)
04/06/2015
(Ny)
04/21/2015
Low Insulin Diet
I have been living on a low carbohydrate - keto diet in order to keep my blood sugar low, previously not connected (or so I thought) to TN. I'm, now, seeing a connection to high(er) insulin resulting in inflammation and flare ups of TN.
Now, being even more specific, Saturday I ate non gluten grains (not part of my regimen, but a treat), within 10 hours I had an episode, which is still happening today (3 days later). I'm not certain these are connected, however, I'm looking at all the aspects I can affect without drugs/surgery.
It has been researched that high insulin results in inflammation. Has anyone had experience with diet control resulting in TN remission?
If so, what are you doing and what has been your results.
Thank you, Bee
Multiple Remedies
I've recently added MSM to my daily regime because I read many positive reviews on this supplement. I have since noticed that my pain has gone up in intensity, and I started getting pain also in my knees and arms and I pant like an old dog when I do any simple physical activity (I am 33 y.o. female and used to be in good shape til ATN hit me last year). I take the powder form, 1 teaspoon in a glass of water before bedtime. Maybe it's too much? How long does it usually take before one notices any positive change?
Many thanks for your replies, Oldriska
Oldriska: You seem to be doing some good therapy. Try taking the MSM 2 or 3 times thru the day and not before retiring. Take the Amino Acid GABA (1 grm) before retiring. Try Mineral hot baths (which is good for about everything). I use Agriculture grade micronized minerals from local farmers supply co.
Multiple Remedies
Fortunately, I can pass some info about what's brought relief from this condition. There is inflamation and there is infection. Reduce acids that are causing this. Because of Ted's posts to us here , for which I'm so grateful, I've realized repeatedly that so very much of my nerve pain, neuropathy, neuritis, neuralgia, neurosis, etc. , is a direct result of too many acids in the wrong place. This procedure is one of the most difficult ones I've tried. Its the best. I call it "acid accounting". (sorry its corny, maybe someone more poetic can improve this) Simple sugars of course are a cause, but I've had to press this much further. I'm one of the folks that has to suspend or minimize the use of ACV, citrus, citric acid, and even citrates for now. I keep finding new ones, most recently stearic acid, high amounts are found in chocolate. (sorry y'all) While we need good acid in the stomach, colon, vagina, etc. , we need to find ways keep acid in the right place, stop leaking it, and flush excess acid.
One of the kidneys many jobs is to rinse excess acid, so I recommend that we treat kidneys well. (dandelion root and leaf, marshmallow root, nettles, and lots of celery. ) Another kidney function is to balance electolytes. (there are also Other endocrine and exocrine glands that help with this, but the kidneys are a master. ) Magnesium supplementation stopped the shocks and helped much of the pain and inflammation. 6yrs ago, I began with 400 to 600mgs magnesium citrate In divided doses daily. Now Ive switched to Epsom Salts, 14 to 12 tsp. Daily. (It is 39% elemental magnesium) I also recommend a high potassium diet. Try to get 8grams daily or more. That's alot of chewing. Make vegetable juices and soups. Have some fruits with care, slow the delivery of sugars with a light Saute in coconut oil and sea salt. Get a nutrition almanac and search for high potassium foods. (careful with citric acid , high in tomatoes, simmer well. )
My best results with mouth infections have been with an iodine rinse. It may need to be rather strong, 6 drops 2% lugol's in 2oz. Water swished and held , like oil pulling For 1 to 3 minutes 2 to 4 times Daily. I also still use goldenseal tincture, but iodine goes deeper to the root. Someone posted that their TN was relieved with the herb bark called "toothache tree". (zanthoxylum clava, and zanthoxylum americanum), commonly called, prickly ash. Thanks Y'all, Connie
(Slc, Ut)
01/12/2011
(North East, Md, Usa)
01/23/2011
(Bothell, WA)
05/04/2014
Like to know if anyone has gone to the LaserMed Center in Myrtle Beach, South Carolina and has had a remission of pain for a year or more, since then? Please let me know. It is a 3 week treatment for the average cases. I am planning to go soon, so I would really like to know if the $ costly fee for the treatment is worth it. It is not covered by insurance, and of course, the roundtrip plane fare costs, unless you live in the state.
(Prague)
05/19/2021
Hello Pat, we used to communicate on this site. I did get 6 1/2 years of relief from LaserMed, but last year it flared up again, and I have tried everything including the things I posted on this site... I'm on Lyrica now, but I still get flare ups. Just wondering if you did go to LaserMed and how you did with it and how you are doing? I have a home laser that I got through them... I use it, but haven't got the relief this time. Obviously, it is a lower powered laser. I live in the Czech Republic so traveling to the US is impossible now for more reasons than just Covid. Just wondering how you are doing.
(Florida)
09/19/2022
Have you tried a neuromuscular Dentist?. I'm seeing one who has had success getting rid of TN. If you balance the bite to the upper cervical you can fix it.
Oil Pulling
Gary Tovey
Peppermint + Cistus Essential Oils
★★★★☆
Peppermint Gum
★★★★★
(Ipswich, Ma)
02/23/2010
★★★★★
You know I've actually noticed this but I assumed it was because of the jaw movements rather than the pepperment. I originally chewed the gum for fresh breath. I was also spoken to for chewing gum at school.
(Chattanooga, Tennessee)
03/25/2010
★☆☆☆☆
WARNING!
(Edinburgh, Scotland)
08/16/2010
★☆☆☆☆
WARNING!
(Durham, Nc)
02/21/2011
I don't understand why the mouthwash sometimes works, but I can concur with the effects of peppermint mouthwash. At one point, this became a very simple remedy for me, but over the years seems to have become less and less effective. I was diagnosed with TN in my mid-twenties and have been under a doctor's care on and off for more than twenty years.
(Houston, Texas)
08/16/2011
I was diagnosed with TN about 2 weeks ago. I first notice the pain while putting on my make-up. Later I had pain in my teeth. Went to the dentist and he said nothing was wrong with my teeth. I went to a doctor in Mexico and I told him I had sinus infection. Well he checked me and said there was nothing wrong with my teeth or my sinus and but that he thought it had to do with my face muscle. A week later went the emergency room with the pain and I was diagnosed with TN. I know that TN does not cause paralyses but I feel my lips don't have that puffiness and a lot drier so I use a peppermint chap stick. It funny Peppermint was mention because when I put it on I don't know if it's the smell or what but it calms my pain too. Maybe I will try a peppermint tea.
Prolotherapy
★★★★★
Setting Boundaries
★★★★★
(Buchanan, MI)
04/30/2009
I've had nerve blocks, lyrica, tegretol, neuronton, marinol(marijuana relieves the pain temporarily), migraine meds+++ I'm a guinea pig for the pharmaceutical companies. I've had 6+ jaw surgeries and facial reconstruction surgery with 3 bone graphs which I think caused this pain.
I suffer terribly from trigeminal neuralgia. When I have an emotional upset, the pain elevates... intolerable, + extreme...I'm a very emotional person who has been suffering from the pain for 10+ years. I've been on every prescription possible with no relief and adverse side effects.
When I read your comment, I was very curious as to how much pain you have endured and how you can control not giving your power away. I do everything for everyone anytime and rarely receive anything in return. Sometimes, I think that I should live alone for the rest of my life because any conflict triggers the neuralgia pain. I should move to a remote place where I'm the only human.
Stress is killing me...or at least it feels like I'm dying slowly from the pain.
Please let me know some of your secrets to holding onto your power and not giving sooooo much.
I look forward to hearing from you....Pleeeeeeeeease!!!
I have an appoinment coming up with the U of M...costs $400+ and I don't feel confident about the doctors at all.
Thank You
(Pittsfield, Massachusetts, Usa)
07/19/2010
Hi, Just found your comment as well as the site. I believe I am having a mild bout of TN. But as I have had a number of patients with it, I am able to hypothesize that that is what's going on with me. I hope you are doing better. I am a psychologist who specializes in helping people with chronic pain. I suffer myself from Rheumatoid Arthritis which I was diagnosed with at age 3. Anyway I cannot stress enough the importance of meditating. It is essential for anyone under chronic stress and or chronic pain which of course is a stressor. It takes a lot of guts to deal with pain but there are some important strategies that help. My best to you and your fight. Ann
(Tampa, Fl)
07/07/2015
Spirulina
★★★★★
A few months ago, I was diagnosed with geniculate neuralgia which is similar to TGN except that a different nerve being impacted. Having seen the amazing results achieved by giving my horse spirulina, I tried it.
It substantially reduced (by ~ 80%) the intense pain and other symptoms. I am taking 10,000mg per day, 5000am and 5000pm though splitting the dose into 3 would probably be better. I take the same spirulina as my horse which is made by Springtimeinc. They test their products and stand behind them if any issues arise.
Try it!! You have nothing to lose and everything to gain!!
Supplements
★★★★★
(Hilton Head, Sc)
08/26/2010
(Bothell, Washington)
10/22/2012
Hi Bonnie and Carol: in regards to Phosphatititdyl Serine of 100 mg a day, it is researched on the web as helping with memory and cognition and is important in the cell structure esp. Of the brain. It improves the cell membranes so it might help with Trigeminal Neuralgia.
Unfortunately, with TN, it is difficult to tell what really helps unless it is used for a long period of time. This is because TN has periods of remission and unless something has been helping for almost a 7-8 months or a year, it is really hard to determine whether it is the treatment or just a natural remission of the disease. I have had remissions but usually only for a month or two.
So Carol, I am asking you again, if the Phosphatitdyl Serine is still helping you with the Trigeminal Neuralgia, before, I again, try another supplement for pain. It is so expensive, and I have pill bottles that I can't use as it is.
I have also found that joint supplements, such as Hyaronic Acid, seem to make the TN worse; why I don't know. Maybe in its attempt to make things more lubricated and flexible, my arteries and nerves are slipping around against the Trigeminal Nerve more. I am wondering is anyone has experienced this before?
Thanks, Barbara
Trigeminal Neuralgia Diet
(Vermont, USA)
10/10/2014
Hi, I am suffering from TN for 10 years...I am glad to find this site...just started tonight...not able to sleep (too much pain). It started after the removal of a meningioma tumor in september 2004....the three branches are painful. Please help me here someone...the only thing I know is the meds given by too many doctors over the years make me so sick that I cannot even get out of my house....My younger children (12 and 9) never saw me healthy....i was pregnant with my little one when they remove the tumor...My oldest daughter(18yrs) barely remember...I am so sad and depressed to have loose all these years to be just a spectator of their lives and the life of my husband. May someone can tell or suggest me where I should start with....i am sorry to complain but I am at the end of my rope...
(Hotspot, Texas)
10/10/2014
Francine, you may have a viral infection in the nerves. Dave Thomas uses colloidal silver topically and internally for viruses. You can look on here for his protocols against Bell's palsy, which seems similar to TN.
I like to use vitamin C--make up a paste with it and some vitamin E and place it over the painful area. Other good antivirals are lemon balm, olive leaf extract and lysine (1000 mg 3x per day).
I would just start taking different antivirals orally as well as experiment with some topically and see what makes the pain go away.
(Tennessee)
10/10/2014
Dear Francine,
I am sorry you have had this pain for all these years and with little ones to raise...
If I could add a couple of things to Nanowriter's great advice...
Mullein Root is suggested by a couple of herbalists for TGN. It isn't easy to find, but I found some here to use for another purpose and I think it is a good brand:
https://www.beneficialbotanicals.com/tincture-information/mullein-root.html
I would also consider adding extra virgin coconut oil to your diet, up to 3 Tablespoons a day.
Please keep us posted on what you try and how it goes. I hope you will be feeling better very soon.
~Mama to Many~
Trigeminal Neuralgia Remedies
Hi Joy, I can imagine the pain you must be going through. You should alkalize your body, it may give you some relief. You can try with ACV and sodium bi carbonate and also after 30 to 45 minutes of meals 1/4 tea spoon of sodium bi carbonate in a cup of water. You can also apply magnesium oil on the painful area. All this should give you some relief in the pain along with what ever medication you are taking. I am in Mumbai, if you have someone here, I can give some Magnesium Oil which you can try. I can be contacted on 09322887066. Good Luck. Baldev