Marshmallow Root
(Nashville, Tn)
01/15/2010
The aloe works wonders for the bladder pain. I've read it actually works to repair the lining of the bladder. Slippery Elm is supposed to do that too. I use the distilled kind of aloe juice that "tastes like spring water". Can't mention the product name. I had IC pain that got so bad last summer I thought about taking pain pills. I didn't want to do that so I went the natural remedy way. After alot of trial and error this is what works best for me:
1) I drink lots of water to keep the urine as non acidic as possible. I also take Prelief when I eat or drink anything acidic.
2) I use marshmallow root liquid- non alcohol (1 dropper full), aloe vera juice (3 oz) , MSM (4000 mg), and tumeric (1000 mg) as a daily regimen. I have some break-through pain sometimes but I keep it under control most of the time. It tends to flare up more when I get close to my cycle. I've noticed that this regimen also helps quite a bit with my IBS and asmtha too.
I've done alot of reading on IC causes and I think mine started because of systemic candida and having an acidic ph. Candida can affect all of your organ systems, which it has mine. I take coconut oil (2 tbspn), oregano oil, and ingest H202 to fight the candida (I'm seriously considering doing the H202 intravenously). I'm going to add fresh garlic to the mix. I also take 50 billion probiotics daily. My health is still not at 100% but I have come a loooong way in a year.
Good luck and God Bless!
MSM
★★★★★
MSM
★★★★☆
MSM
★★★★★
(San Diego, Ca)
07/01/2009
(Fremont, Ca)
12/07/2010
Dear Elizabeth,
I read your posting and knowing that you were looking for a form of vitamin C which is friendly to IC patients, I have been using a product called "Advan C" by NSI. This vitamin C's main ingredientce is: Advan-C mineral ascorbate complex. Together with this formula is: Calcium threonate and citrus bioflavonoid complex. I wish you can receive this e-mail and will be able to get this product. It is such a loss if you cannot take Vitamin C with the MSM. They do work together very well for IC pain. You may add 500 mg of turmeric, 3 times day. Another product is "Bladder Q" by a company called The Natural Bladder. You have to take it for 4-6 weeks to clear the flare up. But it is well worth it. Hope the above will help you relieve the pain and May God bless you. Five loaves
Multiple Remedies
★★★★★
The first thing I did though, was ACV and baking soda, and this did seem to help right away. 2 Tbs ACV, 1/4 tsp baking soda (I tried 1/2 Tbs and it was too much, I got diarreah! My bladder did feel better though), and 8 oz of water. I ran out of Stevia so put a little honey in there. It wasn't bad.
Yesterday I stopped all meds, including pain meds, and I did the extracts, the powder and the colloidal silver on an empty stomach, then ate some healthy greens and such a while later and did all the caps. Today I've done a couple rounds of extracts and caps with food, and I am still pretty much pain free! I have hope again! I still feel a little discomfort, but I am not writhing in pain anymore. I do the ACV an hour after I've done the extracts. Don't do this with food as it interferes with digestion.
I am convinced that some of the problem is that my pH was terribly out of balance, and that was a lot of the problem. But stress and sitting for too long were definite contributors. Time to change my life! I truly thought I was a goner, I was in so much pain. I'm going on a trip to Italy with my family in a little over a week and I was afraid I would not be able to go. I have hope today! So don't give up trying, folks. Try these remedies or others on this site to see what works for you, especially if you've tried antiobiotics and have no relief. Also, eat foods that make your body more alkaline, consider juicing (guess I'm going back to this good habit! ). Don't give up. You will find what works. My best to you all!
(Florida)
05/07/2018
Follow up by LynnAnn in Florida: OK, so after two days of doing extracts and healthy supplements for the bladder, the pain returned. I was so disappointed that these healthy things did not have a long-lasting effect. Back to the drawing board, since the pain was unrelenting and I simply could not stand it. Further research led me to info about the Wise-Anderson protocol, a series of stretches for bladder and pelvic pain. I pulled up the first video I saw (I did not realize it was intended for men, by the way). But whatever, I gave it a shot.
After the first round of these stretches, I was 50% better! I did the stretches four times a day for the next five days and today, I am pain free!!! No pain meds of any kind. Apparently, all the sitting I was doing at work and the stress I was going through had irritated the nerves that go from the spinal column just to the bladder. I can't believe this much pain was caused from sitting and stress. These stretches saved me!
Also, I ordered a standing desk, and now alternate between sitting and standing which is so much better! Takes some getting used to, but it is way healthier for the body.
So folks, if you have severe bladder pain, you might want to try these stretches. They certainly can't hurt. Any stretching is good for the body.
Good luck to all, and good health!
(Orange County CA)
01/09/2022
Thank you for the tip. So much of what goes in our body plays a huge part in how we feel. Pain meds either over the counter or prescription have made me and my body actually feel worse. They are a chemical donut makes sense to some of us that have sensitive bodies. Stress plays a big role, good coping skills like walking outside, praying or laughing with a loved one all help and so does a little bit of baking soda :)
(England)
05/09/2023
You sound so sensible and I would love to have your strength. I am not even sure that I have IC and living in Britain the only way that I can find out without waiting months is to go private which is very expensive. I am 82 and have been dogged by uti all my life but this is different. I was going shopping and was walking from the car park to the shops and this pain came into my lower back, lt spread up my back to my waist and then round to the front. The only way that I could explain is it was like the worst childbirth pain. My husband got me back to the car and I was in agony. It doesn't seem much different three weeks later. Pain more at the front now but although not passing a lot of urine it's slightly cloudy but not burning. How can I have a uti without strong urine? I have tried the cider vinegar and baking powder and curculio etc..no better. All this seems to have started after I was trying urology for Seborrheic keratosis. I had been doing it for 3 weeks. I have now abandoned the idea, at least for the time being. I am just in so much pain.
Multiple Remedies
★★★★★
I called my naturopathic doctor and he told me chop up parsley and put it in warmer water and sip it all day. I also I took organic coconut oil made from fresh coconuts, three times a day. My ND told me to buy some boric acid capsules ( DO NOT TAKE BY MOUTH) to be used as a suppository, since now I had a yeast infection the antibiotics gave me. I would put the boric acid capsule suppository in at night before bed I did that for 12 days I also took organic powdered sulfur, which I now realize is MSM I took it twice a day in water. I also took two tablespoons of apple cider vinegar with 1/4 tsp baking soda I glass of water daily.
I wanted to cure this thing so I just did all of these things. Anyhow, I'm cured thank you, God!
Multiple Remedies
★★★★☆
I think it's obvious on the things that u have to change forever more for this condition and overall health. I drink mostly water and natural coconut juice. Sometimes! 100% juice. Nothing else. Too many fake stuff and bad toxins. I try to eat very well not so easy but at least try to make the best choices! I do not really eat red meat. And fast food. I try nt to get stressed (killer/ acid forming). Exercise (walk, stretch, yoga) (I know for some of u u have to wait to get better to work out)
Why I am writing this. Well IC is horrible to the point were I felt subhuman and did not want to live anymore. I hope this helps another person. If it does help you I want you to pass this forward. Also, to promise to be a better /more compassinate person. Having been thru ic if you are not a better person you have learned nothing!!! Western Medicine gave me no hope and just told me to live with it. I decided to start by trying the cheapest, safest, most natural means one by one. I have tried other things and they did not help( marshmallow root pills, alovera pills, activated charcoal, etc. But I could not give up, I research and researched , and research, and research and reseached! And try! Try! Try! Tyr!!!!! I only cared about finding something!! I also want you to not give up what works for one might not work for another, but do not give up and share you findings. Love to you AND LET'S START THIS FOOD REVOLUTION, !!! Email you companies and tell them hey do not add fake color , artificial ingridients, persevatives, perservative, corn suryp. you have ic , other people have other illnesses that are horrible too! ( cron's disease, cancer, asma, )and guess what they all stem from the stuff they put in our food we have common ground here ppl! we need to join and say hey enough is enough! stop posoning our food/things!!!!!!!!! . and if you do not change we will not buy your things!!!!!!! ( purchasing power) support those that do!! health food stores etc. let's change our world by changing with in our choices ( ex. food we serve at a party). nature! nature! nature our only and true source.
thank you you ec for this site that i always utilice and try to contribute too.
ted you are inspirational and one day i would love to meet you, (i kind of want to be like you) help you. keep up your beautiful purpose <3
Multiple Remedies
★★★★★
FRESH pressed lemon in water helps! Distilled water helps but is not good for you long term. Try to drink a gallon of non florinated water a day, it works but not instantly.
No alcohol or coffee :(.
Sweating out toxins in a sauna helps! As long as you drink a Lot of water and replenish with fresh pressed vegetable juice.
Everyone should have a VEGETABLE JUICER. Juice fast for a week for dramatic healing, but NO FRUIT in the juicer, spiking insulin will negate healing.
Get VITAMIN D LEVELS OVER 50, tan or take 10,000 iu of d3 a day, but get tested, and don't accept 30 as normal, it's not! Read about it w the vitamin D council.
For relief get a vaginal suppository with BORIC ACID. Its cheap, look online and read about it. Stay away from chemicals down there, boric is natural.
Stretching, either Pilates or something thorough really helps reduce the inflammation and allow the fluids kin your body release.
I just came across a FREE Ebook about treating IC naturally. It's a book by Diana Brady. It talked about the combination of Bromelain and Quercetin to treat IC. New to me, will keep you posted if anyone wants to know. Just curious. Would like to get coffee back someday!
Folks get your vitamin D tested. The vitamin D council spells it out online why its so IMPORTANT and how it correlates to health problems like this. Theres no instant cure, but get that D up and do the other things. Stay off sugars! For good and it will heal! :)
Multiple Remedies
(Edina, Mn)
01/28/2012
1/28/212: Female age 48 IC 6 yrs, CFS 20yrs (less w/no sugar, all gone w/no gluten last yr), IBS 20yrs (gluten free last yr pretty much stopped this), Fibro 12yrs (3/4 less since off gluten) Now also on IC diet. Must be strict. Claritin helps. Fem-Dophilis (vaginally helps). Researched HGH 20 yrs ago and amino acids caused Gastro Issues, so could not take. No $ for Real HGH.
Jan 3 2012: I started HGH homeopathic "Vital HGH" and bioidentical estrogen and progesterone for my IC and other health problems. (2 squirts 3Xday of HGH)... So far the only changes are sleeping deeper and lots of dream recall, and able to fall back to sleep after peeing 4-6 times/night (I was in bed 9.5 hrs/night due to insomnia, now down to 9) . My fibro is much less. Feel less "hopeless" now because I can now take Cysta-Q (trying 2/day) when before I got really HOT at night taking it and had a stomachache, so quit (Same w/just Querctin and CystaProtec. ). Estrogen is helping the HOT at night problem also. Been on Cysta-Q for 2 wks. No real change yet. Energy is higher during the day, and can exercise more often. I feel this is a dramatic change. Lost 2 lbs of belly fat w/out trying. (I am 126 lbs now, 5'4") I will try to update again if anything changes. If it doesn't, I will not. :-)
(Edina, Mn)
02/05/2012
Update: Feb 5th: HGH: Bacterial Vaginitus is gone. This was a problem for the last 2 yrs. Daily hair falling out is less on my hairbrush. Skin looks better. Pores are getting smaller. When tried Gotu Kola and Querciten products they still cause too much insomnia due to Gotu-stomach ache and Querciten-Hot at night, so I am off them again. Must wait until I get stronger. I can eat garlic and onion now w/out bad breath. Normally spouse says it's a 24 hr problem. Now it's not even a 2 hr problem. Teeth don't feel dirty at 6PM. Less need to brush them during the day. Feel hopeful and can smile and joke again. I saw on internet that 55% of people saw renewed healing of old injuries" in people who used HGH for 15 days to 2 yrs. I need to heal adrenals and bladder. Bladder bad since 2005. Will text again if more changes.
(Edina, Mn)
07/01/2012
Update: 4 weeks ago I upped the vaginal estriol to 2mg per ml of cream. Still taking Bi-Est drops (4 drops 2x/day since Jan) Urethra is working again!! Very little "straining or sitting and waiting to go". This was an EXTREME problem. Sometimes it took 2 hrs to go!! The pain was still the same at night, but way less during the day (from a level 10 to a level 3 during the day).
I was frustrated wanting faster healing, so I stopped the Bio-identical progesterone as they were making me extremely hot at night, creating horrible insomnia. I had been struggling to take progesterone pills since January (rarely taking them), but my Dr kept saying I needed to take them or I would not be allowed to take the estrogen, by her. I looked up progesterone allergy on google and saw: http://www.onlineallergycenter.com/blogpage.htm and called Dr. Roby who said I was allergic to progesterone as I had assumed. (I remembered that I started a progesterone cream when all this IC started years ago!!! Could there be a connection??) He said to stop the progesterone, as I am obviously allergic to it and ordered the progesterone allergy drops.
On day 2 of the drops I woke up w/NO pain (2 days before my period!! ). Same w/day 3 (1 day before my period!!! ). Then I got my period (Ouch each night (up 6-8x to pee w/pain) and then 3 days later, restarted vaginal estriol, (I continued the Tri-est drops, and Dr. Roby's progesterone allergy drops through my period). Now NO pain during the day if diet is good) and pain at 1 at night if perfect diet during the day. (actually 5 total days of 0 "awaking in the AM pain). I am at 2 weeks on the progesterone allergy drops. I am at 6 months of the Bi-est and estriol vaginal cream. I recently asked my bio-identical Dr for body cream instead of Bi-est drops as I read it's better for you. And Dr. Roby's progesterone allergy drops cost me 57 bucks for 3 month's worth of drops, and a book on how they work. He called me 5 times to see how I was doing. Such a caring man!!!
Will update again soon.
(Edina, Mn)
09/24/2012
9/23/12 Update: Still on HGH and estrogens. Stopped the progesterone drops as they seemed to not work after a few weeks... I read that estroil and the estrogens take 1 yr to get 1/2 way back to healthy in the bladder. I stopped all gluten since Jan and think that greatly damages the bladder/GI system.
Estrogens: Love, Love, Love no more hot flashes, no bacterial vaginitis, and urethra is working!! Read in "Stay Young and Sexy that UTIs go down 1000% (yes! 1000 percent!!! ) w/vaginal estroil. I have had approx 5 of those, but none since starting the vaginal estroil. I will be on bioidentical hormones until I die.
HGH: I can fall asleep each night after I pee. This is the BEST thing that HGH does for me. Since I have a history of Fibro and IBS, I just want to say the HGH totally took away the fibro after 9 months!!! Just slowely went away!! (see studys on the internet on that) Also HGH homeopathic removed some under the eye wrinkles!! Energy is better too. I will be on HGH until the day I die! Love the stuff!!! But it hasn't fixed my IC. It does heal wounds though and I definatly have a wound there, so I will keep taking it in hopes that it will still work in my bladder eventually (maybe Fibro had to heal first?)
IBS is less due to no Gluten.
Am still in pain at night (and pee 6-10x per night) so got on instillations of heprin/ladocane and saline to heal faster one month ago. (Dr says it takes 6-9 months to START to notice a difference, but can be a permanent cure, for 80% of people (after 2 yrs) so what the heck, I've tried EVERYTHING else at this website). I will update again later.
(Edina, Mn)
11/25/2012
★★★★★
On HGH for 10.5 mo. I feel fabulous! Still on instillations and they worked in ONLY 3 months to the point of no pain! Still mostly on the diet, but with no pain. Drink white wine (alot of it), salty, sugary foods. Working out each day with vigor. Still up 3x night to pee, but no addn'l pain b4 my period (I have always had more insomnia b4 my period and that's the same). Sleep 8 hrs/night. Have not taken Fem-Dophilis in months, nor Claritin. Have reduced many other suppliments (too expensive). I take HGH homeopathic, instillations and estrogen(s). (I still take Vit D, E, A, acidophilis, fish oil and a few others) I will be able to start to wean off instillations soon, but I will take my time. Happy.
Multiple Remedies
I have had it under control for many years without any huge flareups. I just returned from a clinic that is for chronic pelvic pain. IC falls under that. I went for a problem with my pelvic floor muscles. You can find the info under The Wise-Anderson Protocal. The program came out of Stanford. The Urological Association has just come out will info on IC that suggests it is a muscle pain problem. The clinic teaches you how to do the work of healing your self. It is a long road, but pain is a great motovator. The books Dr. Wise has written are helpful, but the Trigger Point Release Therapy is amazing. Tim Sawyer is a fantastic Physical Therapist. He was taught by the original founder of Trigger Point release. Read all the info and listen to their videos. They may be very helpful. By the way there were 4 men and only two women at the clinic. I never realized that men suffered so badly from their version of IC. Good luck to all. You are not alone. There is hope.
(Camas, Washington)
08/04/2011
Hi! I was the other woman at the Anderson/Wise Clinic. I'm doing fantastic... On a trip to NYC. Thank you SOOOO much for recommending the Oxytrol patch. My doc gave me another version - a geletin that I put on every day. Oh my gosh... The frequent urination stopped within 48 hours. I was comfortable on the airplane and have had a wonderful trip. God bless you for suggesting it!
There are so many causes and treatments for IC that aren't being mentioned by people on this listserve. I would urge you all to read Wendy Cohen's The Better Bladder book (Amazon). Each of us is different but if you work through a list of possibilities, you can get well. Many of us have!
Kimberly in Camas, Washington
(Matawan , NJ)
11/22/2014
Hi Kimberly , I know the last time you posted was in 2011. And you mentioned the oxytrol patch really worked for you. What is your condition like now? I have IC , bladder spasms etc. I have tried everything and been to million Drs. this week has been so brutal for me. I want to try oxytrol because I know if at least my bladder could calm down I can heal. Do you have any more advice?
Multiple Remedies
★★★★☆
1) alkalize your body...I drink 1/4 tspn of baking soda in 4oz of water daily...sometimes 2x daily if I have more pain. I've noticed this keeps the awful urethra burning at bay most of the time. I tried the ACV w/BS and it HURT. This made me sad because alot of people report great results with ACV but my body does not like it.
2) Marshmellow Root in the liquid form (non-alchohol)...I had a flare up about a week ago and took a dropper full in 4 oz of water 4-5 times a day. The pain subsided drastically within 24 hrs. I take a maintenance dose (1-2 droppers full) a day.
3) D-mannose...I use 1/2 tspn daily in 4 oz water..just for overall urinary tract health. It's also good to take it before and after sex to keep from getting UTI's.
4) I know that we IC sufferers are supposed to stay away from alot of spicy and acidic foods (hence I cannot take Vitamin C to save my life...talk about pain!)....BUT I do enjoy my one cup of coffee every morning..the rest of the day I drink bottled water. Also, when I have acidic foods like pasta with tomato sauce or mexican I take an extra dose of BS just as a safe guard and I have to say it usually does the trick.
5) There is a product you can buy at drugstores...I haven't tried it yet but I plan on it. Basically, you take it before you eat anything acidic and it's supposed to neutralize the acids...I know we are not supposed to mention product names but if anybody wants to know you can email me.
Sorry to be long winded but I noticed there is not alot of feedback on IC....I will let everyone know if I come across any more remedies.
Take care!
(Federal Way, Wa)
04/29/2009
I am replying to a post by one who excused herself for being long winded. Please keep it up. It was great reading.
From a sufferer of IC
(Nashville, TN)
05/03/2009
(Royal Oak, Mi)
01/08/2010
The same thing happened to me - test after test came up negative for any bacteria. Finally one doctor, out of desperation because I kept insisting there was an issue, decided to use a scope and look. Turns out I had a massive infection. Surprised him but not me. It wasn't showing up in the urine tests because it wasn't coming out in the urine - the bacteria was actually imbedded in the lining!
Glad to hear about all these other things you have been trying. I'll put them on my list too. thanks!
(Allentown, Nj)
09/27/2016
Donna, if the bacteria was found embedded in lining, what did dr do to treat it?
(Musquodoboit Harbour, Ns Canada)
08/11/2011
(AZ)
09/18/2021
Hi that product that you can buy over the counter to take before eating problem acidic foods, is called, pre-life. Good luck to you dear as I have suffered with icy for most of my life and just in the last year I've had a terrible flare at 67 years old. But I'm trying many of the natural products and when I am being good I have less pain. I'm definitely going to try the Oxytrol patch. Take care
(Calgary, Ab, Canada)
10/05/2011
Elizabeth from Nashville, TN.. I have no clue how to e-mail you so I ask please send one e-mail to me so I can get the subject *5* product name mention by you to keep acid level in balance.
Thank you. Bless all of us and YES.. Each person has to find their own treatment since none is the same for all. I work on ACV, baking soda, lots and lots of veggies alkaline producing, very little acidic food no longer (hard this one), and a new product available taken over two days and it reduces the pain ONLY. Potassium Sodium. Only good for folks with no high blood pressure. Kidney could also be at stake taken it to often. But it does work.
Thank you for sharing it is confusing.. But I know I once have the yeast under control much already is established. I got this from to many month on antibiotic due to a bone infection which I got from a surgery. YUP. I was on heavy cocktail dosages of antibiotics for 8 month.. got through it with result now of IC.
Bless you all and Elizabeth thank you should you read this mail and letting me know about the name of product.
Multiple Supplements
★★★★★
Multiple Supplements
★★★★★
One that heats up when air touches it. Has round disks embedded in fabric that heat up. There is no medication in it. Just warmth which lasts for hours. I usually can only find the kind that goes on shoulders but I put it on my lower stomach and it's held in place with the two self stick ends and my own pants. Feels very comforting. Usually I just have to do one round of this but occasionally I've had to do two rounds in a day. This works every time and stays away until something triggers it again. Sometimes I use it right away before symptoms flare up if I know I'm going to be triggered such as after intimate relations. This works as a preventative in that situation.
Ozone
I have just redone all my ozone tubing after 5 years of deterioration and now back in business. Today, I drank a large glass of ozonated water and did my ozone ear insufflation. Later, I will breath it for 10 minutes while bubbling ozone through olive oil.
Finally back into my ozone. ==ORH===
(Virginia)
08/11/2017
★☆☆☆☆
WARNING!
Hi, I did ozone in my bladder for IC ad it made me ten times worse. Ozone will deteriorate the lining of the bladder wall. I did with Dr. S and I wish I had not. Tread lightly.
Ozone Installations
★★★★★
(Ten Mile, Tn)
02/02/2017
HI U ANNE,,,,,,,,, spent lots of time in Houston in the '70s on engineering projects. Being a hick, the interstate loop put me in the top of a tall pine tree. The women would pass me doing 90 mph and looking into the rear view mirror putting on their lipstick. I was white knuckled holding on to the steering wheel.
My dad had bladder cancer and I'm sure he would have been cured with the protocol you describe. I just got an e mail from Dr Shellenberger asking for spider vein volunteers to undergo an ozone treatment to address that problem. He has successfully cured 4 of his patients. Ozone is wonderful, but only about 16 states allow it's use. I just did an ozone ear insulflation this morning after my IFR sauna. Years ago we bought a medical Ozone generator from Longevity. It cost about $3,400 but keeps us perking. We have the equipment to do anal and vagina insulflation and suspect that you could do the protocol you did at home. You would just have to have the smarts.
Folks may think they cannot afford an Ozone Generator but my truck is 17 years old and instead of driving a new truck every 3 years I spend that money on health toys. All should too.
Thank you for your enlightening post.
======ORH=======
(Ten Mile, Tn)
02/02/2017
ANNE,,,,,,,,, since I's SJS, I failed to read your last sentence that this procedure can be expensive. No way JOSE, this procedure costs pennies and can be done at home. The problem is the protocol, and I can tell you that is not a deal because it can be done by trial and error. You just error to the safe side.
You have done all a service by telling us about this procedure, but it is not rocket science stuff. The medical folks just want to keep the details a secret so they can milk the patients for all they can. Business as usual. Not fussing at you.
=======ORH=======
(Houston)
03/22/2017
(Ten Mile, Tn)
03/23/2017
JULIE,,,,,,,, let me tell you a story. The only thing that Ozone has been FDA approved for is Interstitial Cystitis. That was many moons ago. It will cure a jullion things, but our med folks don't want that.You don't need Anne to tell you a doctor to go to. Just go on the internet and ask Google to tell you of an Ozone doctor in Houston. Talk to all and choose which one to go to. If it is expensive, then that is not the one. Ozone is dirt cheap and if the doctor is high, then they are typical doctors and will die by drowning when they see themselves in the water and fall in love with themselves and fall in and drown.
That story is not original with me, but still a true story.
I wish you well. ====ORH========
