Green Coffee Bean Extract Caused IC
★★★★★
I had been taking the green coffee bean extract to lose weight, but used it far longer than what is recommended. According to a recent Dr. Oz (big promoter of this supplement) comment, the green coffee bean extract capsules are only to be used as a "jump start" to losing weight - especially fat around the waistline. I did not know this until after I had been taking it for two years! A friend told me about the Dr. Oz comment which was made during a TV segment.
I noticed that the green coffee bean extract label contains 50% chlorogenic acid (200 mg). I was taking one capsule twice a day, so I was ingesting 400 mg of this acid each day!
When my gyno suggested that I either lessen or eliminate acidic foods, it occurred to me that this supplement was probably worsening my urinary tract problems!
Since stopping the green coffee bean extract (over 2 months now) I haven't been completely cured of IC, but the pain and frequent urination has been greatly reduced! Therefore, I think that the extract was a big part of my particular problem with IC.
I hope that this additional information will be helpful to those who may have been taking green coffee bean extract and have been suffering with interstitial cystitis.
Homeopathy
★★★★★
Hydrogen Peroxide Douche
★★★★★
I'm currently trying oregano mixed with coconut oil (so I can mold it into a suppository and it wont sting). My doc says the herbals are better for vaginal problems because antibiotics kill off the lactobacillus/bifidobacterium, allowing infectious bacteria to return stronger. Whats interesting is I tested negative for group B strep while pregnant with my son 3 years ago.
Also, I noticed while using the antibiotics, kefir or any other cultured milk was the only product that seemed to truly have live and active bacteria. If I drank this, my stomach was fine. But with probiotic capsules, regular yogurt, my stomach was NOT happy! I hope this helps someone!! I'll keep you guys updated!
Hydrogen Peroxide, Iodine, Organic Food
★★★★★
I started having IC symptoms over a year ago, and was diagnosed earlier this year. I tried prescription antibiotics, antifungals with minimal results. I am convinced now that IC is an infection of the bladder by microscopic parasites (schistosomes - look up Hulda Clark and IC) and fungus, because antiparasitic herbs, salts, iodine, peroxide, antifungal herbs, and other antimicrobial treatments have kept my symptoms completely gone for many months.
I started on one drop of 35% food grade h2o2 x3 daily to 25 drops. I stayed on the max dose for 3 months. I am now on a maintenance dose of 5. I also consumed about 300-500mg of iodine thoroughly mixed in 1/2 gallon fresh homemade wheatgrass juice daily. I was on this range for about 3 months also. I am now on a maintenance dose of 50-100mg daily. Other changes I made this past year was to switch to all organic, down to my condiments, personal care products, etc. I also moved out to the country here in MT, where water and air is fresher and cleaner. I regularly douche with a mixture of equal parts peroxide and acv, with a tbsp of borax per cup of liquid mixture.
IC is a complex illness, and it takes commitment to major fundamental changes in one's life to see significant changes for the better.
Thanks
(Anaheim Hills, Ca)
12/15/2009
My daughter has suffered with IC for two years. She lost out on going away to college this year because of her constant pain and flair ups. I went to at least 8 different doctors and many hospital stays for pain control. I took her to my good old family doctor for a flu bug and told him about her problems. He ran allergy tests and found she is highly allergic to Yeast. She has Candida which is an over growth of yeast through out her whole body and it is inflaming her bladder. Look up yeast connection and women. Your answer is there!
(Tampa, Fl)
03/13/2010
(Chandler, Az)
05/02/2010
Iodine - CAUTION!!! - SHELLFISH Allergy
If you are allergic to shellfish you may also have an allergic reaction to iodine.
Proceed with caution - consult your physician before using iodine.
Be Well
IC Caused By Bladder Stone
★★★★★
LDN
★★★★★
https://www.ldnresearchtrust.org/video-categories/interstitial-cystitis
Find the site at www.ldninfo.org and join the Yahoo Group at the top part of the page. It has over 13,000 members who take LDN, and they are very helpful in answering any questions you may have. Best wishes to feel better!
Lemon Water
★★★★★
For the interstitial Cystitus which can be very painful, try drinking lemon water for the initial pain and then later it will get rid of it. Make the lemon water as strong as possible, say 4 wedges squeezed into a glass of water making it tart. NO SUGAR!! I told a friend about this and she said when her father had bladder cancer he was told by the doctor to use this for pain. If you drink the juice of 1 lemon in an 8oz glass of water when you first get up with no food or coffee for 30 minutes there after, you can dissolve gallstones. It takes about a year consistently. You also need to take some digestive enzymes to aide in digestion. Then also take some Red Rice Yeast and CoQ10 to bring down cholesterol, which causes gall stones. Tumeric can be used for getting rid of melonomas ans this is substantiated by science on the Texas Anderson College Cancer Research Center site. I have used it and it has stopped the growth of some facial and arm skin cancers with amazing results. I wonder if you could make a paste of it and put it on the cancers...Hmmmm?
Lemon Water, Marshmallow, Cantharis
★★★★★
My girlfriend has been suffering from IC for over 15 years now. Had gotten to the point where she was in the hospital every 4 weeks getting a cystoscopy with hydrodistention. I did a TON of research and found some treatments (NOT A CURE but helped)
The simplest way we found and best tasting way to do alkaline water is pour 8 cups of water into a jug, cut up a lemon into 8 pieces and let sit at room temperature for 12 hours (do NOT squeeze the lemons). Drink it throughout the day. It helps ALOT to get your alkalinity UP
The second one has had the best results with her and her friend that has had IC for 20 years, is a mix of two herbal remedies: A marshmallow root tea (as many as you want during the day. I get her the already bagged version that also contains the marshmallow leaves. Tastes actually pretty good. and I even take 2 cups of water, pour in 3 tea bags cut open and a half a peppermint tea bag and let sit in the fridge for 12 hours, take it out and strain it and serve cold. She says its delicious.). Then we add CANTHARIS. (please read up on these before you use them) She finally emptied her bladder, first pee in the morning, first time going to the bathroom that day.
This has not happened in 15 years for her. This is just food for thought, I am not a doctor I just want her to lead as close to a normal life as possible and keep her out of the hospital. And help anyone out that I can that feels there is no answers for you pain.
Fyi I am now researching MONURIL (made of FOSFOMYCIN) so if any improvements come of that I will let you know. If you use any of this and it works keep going, if it doesn't try mixing some stuff up but please remember to always consult a doctor when introducing anything as it could counter react your meds.
And for IC suffers please always remember "To the world you may be just one person, but to one person you may be the world."
NEVER GIVE UP!!!!!!!
Lugol's Iodine + DMSO
★★★★★
Thought I had a UTI…. I never ever take antibiotics or any other drugs. I had tried all kinds of things - wasn't getting better.
Finally went with antibiotics. Took one round didn't fix it. Thought I needed to take another round, started taking it, looked into my symptoms - read everything I could and came across this recipe.
I did this once in the entire thing was over!
Bada bing - Bada boom!
2 tablespoons distilled water
10 drops iodine (crow's Iodine 2%)
10 drops DMSO.
(All available on Amazon)
Took a glass eye dropper and lying horizontally applied this vaginally, held it in there like 10 minutes did it again, until all of the solution was gone.
And that was that. 👍😃
Feeling cautious a week later… I did it one more round - just to play it safe.
I have never experienced it again, nor had I ever experienced it before.
If you're suffering with this - I highly recommend giving this a try FIRST.
Best Wishes!
Lyme Disease Caused IC
★★★★★
I hope that other IC patients can read this post and find their health back again like I did. Evelyn
(Walworth, Ny)
10/23/2012
Evelyn, My daughter is 19 years old and has had IC for about 2 years now. As you know she has been having an extreamly difficult time. I would love to get in contact with that nurse in Washington DC, could you give me her name and an email or number where I can get a hold of her. Thanks, Janine
(Los Angeles, Ca)
04/13/2013
(Georgia)
10/24/2015
Her name is Ruth Kriz, and she is the nurse practitioner in Virginia that treats IC patients and is curing them. Here is her website. She treats patients from all over the world vie skype of telephone if you're not local. http://ruthkriz.com/
Macrobid
★★★★★
28 years old, diagnosed with Interstitial Cystitis in March 2015. Had horrible pain, frequency, etc. Tried bladder instillations that gave little to no relief, tried a very restrictive IC diet, went to 4 different Urologists, and tested negative for Ureaplasm and for any bacteria. Finally mid-April I couldn't handle the unrelenting pain and frequency (every 15 minutes). I tested positive on two home UTI tests and went to the Minute Clinic. Nurse prescribed Macrobid for 7 days - even though the tests showed no infection. Within 24 hours - I was basically cured - mild pain - ran 12 miles, felt 95% normal - no frequency. Then within 3 days of finishing the Macrobid the pain and symptoms came back. In May called my Urologist begging for more Macrobid. Within 3 days of starting the Macrobid - 100% relief. Then I had a cystoscopy that confirmed IC diagnosis. After taking Macrobid for 10 days, I feel normal - except of the soreness from the cystoscopy/slight hydrodistension.
Macrobid cured me and the hydro helped with my bladder capacity but none of my doctors will listen to me! It has been 3 weeks so far. I have gotten away with eating cheesecake, dried cherries, bananas, etc.
(Boston)
10/08/2015
You need to do a broth culture, but not any. The one that "brews" for 10 days. There are only a couple of labs in the country that do that. I always used United Medical Laboratories in West Virginia (I believe). Be careful with Macrobid. You likely have one of the bigger guns infections (enterecoccus), and macrobid only makes them stronger.
Look up Dr Paul Fugazzoto, but with interstitial cystitis in the search or you will get some dentist. He died a few years ago, but before that had a chance to help many-many women figure out they had a bacterial infection that simply didn't show up on a regular urine test. He passed on the culture method he used to the lab, but I believe it was actually used at the very beginning of urinanalysis, and then we switched to the simple test that showed no bacteria in your urine.
(United States)
11/11/2017
★★★★☆
Same. I've been suffering from this horrible condition since 2012. Occasionally my urine culture comes back positive, but not always. One time I was prescribed Macrobid/Nitrofurantoin for a mild UTI and it made my IC symptoms disappear for a couple of months. It was amazing! A few months later my symptoms came back, but I tested negative for a UTI and a bunch of other stuff. At some point I got so sick of my IC symptoms and asked to try this antibiotic again even though I tested negative for UTI. Within a few days my symptoms were gone! So yeah, this medication definitely works but then the symptoms always seem to come back within 2-6 months, so it doesn't seem to be a long term solution.
Does anyone know why this medication works for IC? Most of the doctors I've seen can't explain it. Some of them were actually pretty surprised when I told them it makes my symptoms go away.
(Tn)
11/11/2017
Dear Jen,
Just today I was researching Mullein Root Tincture for a friend and noticed that it said it is sometimes used for Interstitial Cystitis. Mullein root is difficult to find. I have bought it from beneficial botanicals and made my own from mullein root in my yard. I have used it for my joints with success.
A dose for Mullein Root Tincture are 5-15 drops.
I also wonder if frankincense essential oil, a quality one (Hopewell oils are my favorite) would help. A drop or two applied to the abdomen has helped me before with a UTI and also with ovarian cysts.
Just a couple of things I would try myself if I were dealing with IC.
~Mama to Many~
Magnesium Oil (Transdermal Method)
★★★★★
(North America)
05/29/2021
Magnesium oil [magnesium chloride] is also antibacterial along with being a muscle relaxer
Marshmallow Root
★★★★★
After taking it for about two months, I no longer had any burning whatsoever! It was great! Life was great! I thought it was because I was being really restrictive on my diet and thought that the marshmallow root wasn't doing anything -- so I stopped taking it. About two days after my last marshmallow root capsule my bladder started burning again, even though I was still being restrictive with my diet. I eat really bland foods; rice, mashed potatoes, yams, vegies, eggs, etc. and still my bladder was burning? The marshmallow root WAS doing good for my bladder and I, like an idiot, stopped taking it. I have immediately reordered my marshmallow root. I was taking a brand that had 960mg in each capsule and I was taking two a day and my bladder felt NORMAL.
I will never again be without my marshmallow root.
Marshmallow Root
★★★★★
(MD)
06/04/2022
Marshmallow Root
★★★★★
I have been so lost, confused, depressed and in a whole lotta pain until I read about this miracle drug and tried it. I am 47 and have been through two operations for endo. I developed severe pain in my lower stomach and pelvis area and went to urinate constantly. Although drs always told me I had ic and endo, I never was told what to take for relief. Couldn't sleep for a complete night without having to pee. Back pain got worse and I ended up going to my obgyn again. He looked at me and said that when I have had enough pain I'll agree to have a hysterectomy that he recommends. Sent me home with birth control pills. Why don't drs tell u about these possible drugs that can actually help? Seems like there just out for themselves. I came home and started searching on the internet for help. And there I saw marshmellow root and the reviews. I decided I was gonna try it and after two days, my pain has drop tremendously and the swelling has went down a lot. I also have ibs and it seems to help with that too. I gave up my diet soda which I'm sure that has a lot to do with the irratation. But I am willing to try just about anything to feel like me again. So far I'm so impressed with the marshmellow root capsule. I hope this gets out there to someone who is at the end of there rope like I was. Give this a try, u have nothing to lose. I only paid ten dollars for 100 capsules and so far, it has been worth every penny. God bless.
