Prostate Cancer Testing, Treatment, Exploitation and Dangers

Part 2 Men beware!

Updated on December 13,2017

Fried nuts, two-: Prostate radiotherapy (EBRT/SBRT) can sometimes result in a 5% to 30% temporary or permanent drop in testosterone levels, excluding hormone therapy. This drop is determined by the testicular radiation dose (treatment equipment and planning) [19,20]. A below normal drop in testosterone can result in fatigue, depression, sexual dysfunction and other symptoms. Always ask for a printout of testicle dose and constraints before and after prostate radiotherapy to insure your testicles are not over radiated, also include the CT scan exposures. Have your testosterone levels tested before and months after EBRT treatment.

Chemotherapy can be extremely toxic and sometimes deadly: Any cancer patient (man or woman) who are being offered chemotherapy should be particularly cautious. Without genomic testing or proof of the effectiveness of the specific drug being used on the exact cancer type being treated, chemotherapy can often be more toxic to the patient then to the cancer. Chemotherapy may be extremely expensive, profitable for some doctors (if dispensed by the doctor and not by a third party) and can be misused or overused, often for profit. The “chemotherapy concession": A doctor may purchase a quantity of chemo drugs for $10,000 and charge a patient $20,000. A doctor can also receive a percent kickback from the drug company for prescribing the drug. What is the motive for some doctors to perform Genomic testing and giving a patient a different and more effective treatment at an unknown or no profit versus a guaranteed profit with a probable worthless or harmful treatment? This is a well documented and common practice. 75% to 90% of oncologists would refuse chemotherapy if they had cancer. Chemotherapy fails upwards of 93 and 98% percent per some studies. One Michigan oncologist who committed fraud and gave $35 million in needless chemotherapy (for profit) to patients, some who did not even have cancer is now in jail for 45 years. He was running his own in-house pharmacy. The nursing staff was indifferent and the state regulatory agency initially cleared him of any wrongdoing (a cover up). Many or most chemo drugs are considered a biohazard.

Long term care consists of regular PSA testing for years. Long term care for side effects is often lacking or exploitive or ineffective. Often complaints of side effects are disregarded by nurses, doctors and sometimes referred out to other doctors. The patient is sometimes left to figure out what to do about his side effects with the resources available to him. Long term side effects (devastation) often consist of fatigue, bowel or urinary problems, sexual dysfunction, depression, isolation and sometimes suicide. Patients with complaints of chronic fatigue are often told to exercise, get plenty of sleep, pace your self and eat a healthy diet; this advice is of limited help for chronic fatigue. Often treatments for long term side effects are embarrassing, degrading, unavailable, nonexistent, costly, not effective, not offered or bothersome. Billions of dollars are profited from ED drug and other ED products, catheters, pads and diapers, drugs for depression or pain or insomnia or incontinence, additional treatments and surgeries for side effects. Also treatments for the multiple and bizarre side effects from hormone ADT therapy (chemical castration) is sometimes required.

Men, ageing, exploitation and elder abuse: If any man lives long enough it is very likely he will have a prostate problem, low testosterones or some form of sexual dysfunction. In my opinion modern medicine often has been exploitive, abusive and has provided substandard care for older men in general due to all of the explanation given in this text. I believe much of the attitudes toward older Americans need improvement and they are sometimes viewed as being subhuman and exploitable by various groups and individuals. If documented cases of unnecessary surgery and radiotherapy or blind biopsies on children by doctors for profit were released, the vast majority of Americans would be outraged and this practice would quickly end. However for older men it dose not seems to be of great concern! As defined by some or all state laws, exploitation of elderly men by overprescribing treatment for profit is a crime or an offence of various guidelines and regulations. It is extremely unlikely any doctor will ever be prosecuted or has a medical license suspended for this common and extensively documented abuse or crime. It is well documented that all forms abuse do occur to the elderly and disabled in nursing homes and other facilities including neglect, theft, starvation, torture, harassment, sexual assault, etc. Elderly are being exploited in many ways. One patient after recovering from a brain injury testified that he was repeatedly abused, slapped and hit, forced to drink boiling hot tea by multiple caregivers and sexually assaulted by one female caregiver. I personally know of an elderly lady that is living in an expensive assisted living home that has had all of her possessions (radio, clothes, underwear, shoes, bed sheets) repeatedly stolen and replaced by her family. Scams for profit: Guardian scam; If you are declared incompetent by strangers, they can become your guardian (Guardianships and Conservatorships). You can be forced to move into a nursing home and your property can be sold and your assets can be seized by them. In other words-they can steal your assets and incarcerate you. Some people are becoming very wealthy by using this exploitation method. Make sure you have an estate trust, executor, etc [24].

Drug company rip Off!, no bathtub included: More exploitation of men! Almost all prostate cancer treatments usually result a high percentage of erectile dysfunction. Often claims of prompt effective treatment for ED or other side effects if they occur after treatment are often misleading. Statistics for ED percentages from treatment are usually quoted after treatment with Viagra, Muse or other ED treatments, therefore most statistics are very misleading. ED rated at 5 years may be as high as 50% to 80% or higher for most treatments. ED rated at 15 years may be as high as 90% or higher for most treatments. For cryotherapy, ED rates are extremely high. The cost for ED drugs like Levitra, Cialis, Viagra and Muse are deliberately kept very expensive by drug companies, about $11 to $60 per 1 pill or dose. At these prices Lilly could consider including a free bathtub featured in its advertisements for Cialis. The cost of a 30 day supply of Cialis is usually well over $340 and the cost of an inexpensive bathtub is about $200. Generic PDE5I ED drugs in Canada and other parts of the world sell for about $0.50 to $2 a pill. Many insurance companies will not pay for ED drugs or treatment. Less expensive generic drugs are usually unavailable in the US. Some ED drugs should have already become available in a generic (in the USA) form for about $1 a pill. This is further exploitation by the drug companies of men in general. Men are also exploited by counterfeit mail order ED drug sales. ED drugs are not always effective and may have side effects. ED treatments can also be embarrassing, not offered, not practical, painful, expensive/not covered by insurance. Men will often not seek treatment because or these reasons. You can get safe inexpensive quality generic and brand name drugs from Canada. Just get a prescription from your doctor and make sure the pharmacy is CIPA licensed. Generic or bran name Cialis, Viagra for about $0.50 to $3 a pill and other drugs. Go to https://www.cipa.com/certified-safe-online-pharmacies/ for a list of trusted CIPA Canadian pharmacies. Stop getting ripped off by American drug companies.

The numbers game, you lose: More exaggerations and lies. A doctor may state a patients chances of ED is about 35% with EBRT radiotherapy (or some other treatment). A patient may think, 35% is not too bad and if I do get ED I can always take Viagra. What a doctor may not tell a patient is that the ED rate is 35% at 1 or 2 years for a patient under 65 years old and with an ED drug treatment option. For a patient over 4 years, over 65 years old and no ED drugs the ED rate may be about 75% or higher. After age 70 your chances of ED is over 85% or higher[8] Obviously, a man is more likely to refuse treatment at a 75% ED rate verses a 35% ED rate. Some side effects may not be disclosed at all. If side effects (low libido, chronic fatigue, depression, increased suicide risk, etc) are not disclosed, no percentages will usually need to be quoted. Results are often worse for a surgery option, the main difference in ED results between surgery and radiotherapy is; with surgery ED will start out bad and may or may not get better with time, however with radiotherapy ED will get worse over time. With both treatments together or with ADT hormones also you're in real trouble with ED percentages. Cure rates are often quoted at the 5 years mark for most treatments. 5 years is not a magic number, anyone can have a treatment failure before or after 5 years. A cure rate for a treatment at 5 years may be quoted at 85%; however the cure rate at 7 to 10 years may be only 70% and 50%. The 85% at 5 year rate was quoted to me. I was never told about my 50% at 10 year cure rate. Always ask what is the “biochemical recurrence" (AKA rising PSA or treatment failure) rate for well beyond 5 years with your computer software simulation and Partin tables. Ask your urologist or radiation oncologist for a 10-year cure Rate. If the physician is unable to provide one, consider finding another doctor. Studies and clinical trials results, side effects percentage claims, etc can be biased. Watch out for terms like “age adjusted" or ambiguous or excluded facts as given in the above examples. ED rates for radiotherapy are usually quoted at under 1 or 2 years and for surgery over 1 or 2 year to give the appearance of a more positive result. I have read and have been given some extremely exaggerated claims (mostly lies) concerning cure rated, side effects, etc.

The walking dead; after a blind biopsy and conventional treatment: Patients are often left impotent, incontinent, fatigued, exploited, embarrassed, demoralized, depressed and sometimes feminized/castrated or suicidal. Loss of libido estimated at about 45%. Excluding hormone therapy, lower libido is almost never disclosed as a treatment side effect and sometimes it is completely denied as a side effect. After testing and treatment your life may be very deferent. Prostate cancer patients are often elderly and exploited for profit [1,5,9,10,25]. Aftercare for long term side effects is frequently ineffective, expensive, not offered, degrading or nonexistent. Prostate cancer patients are seldom told about chronic fatigue, depression, loss of libido and the true risk of side effects are usually understated. Modern medicine often fails, victimizes and exploits prostate cancer patients.

Often few good choices exist for treatment: A prostate cancer patient treatment choice often ends up being the least worst choice or the choice with the side effects a patient thinks he can tolerate. If a patient has intermediate or high risk prostate cancer and dose not have advanced age he may need treatment. He should consider genomic testing and look into other advanced treatments if available. Also he should try and avoid hormone therapy if possible because of the multiple side effects especially if the cancer is organ confined. If laser or other advanced treatments are not available a 5 day SBRT radiation treatment may be considered (In my opinion SBRT could be the least worst of the bad choices, still a poor option). SBRT seems to be fast, least invasive or traumatic. ED and fatigue is still a high long term risk. Radiation with hormone therapy has a higher risk of ED and long term fatigue. However, I now believe conventional prostate cancer testing and treatment is a big mistake for most men.

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My story (my dilemma): I was referred to an urologist by my family doctor after a high PSA test. I will refer to the urologist as Doctor “A"; he used old and dangerous testing technology (18 core blind biopsies), his nurse seemed to have a mental defect exhibiting arrogant, rude, strange, abusive behavior and was intent on inflicting psychological harm to me. Shortly after my Dr. “A" visits ended, his nurse was no longer employed at his office and no person in that office would refer to her employment or her existence. I now believe this nurse was high because of drug abuse being common among nurses (easy access to drugs). I was diagnosed with prostate cancer by Dr. “A". I refused his surgery and hormone therapy recommendation because of the imminent side effects and his unprofessional nurse behavior, so Dr. “A" referred me to Dr “T". Dr. “T" was outside of my insurance network; however his office manager stated she was willing to work with my insurance, offered me a doctor consultation and would accept any insurance payment as a full payment. When I arrived in his office the waiting room was empty. Dr “T" also had a large staff. Dr. “T" used older conventional technology, offered me overtreatment, hormone therapy, bone scan (unnecessary procedures and testes). One week after my consultation with Dr. “T" I received an $850 bill, in conflict with what was agreed upon with his office manager. After a recommendation from a friend, I called clinic “O" and met with the nurse. She offered me treatments with a verbal guarantee of “no side effects from the radiation". However this nurse could not answer any of my basic questions, lacked any credibility and sounded like an unscrupulous used car salesmen. Most of these office visits caused me multiple problems with offices workers processing paperwork for tests, insurance forms and billing, etc. Two of these doctors offered me an unnecessary bone scan. Two of these doctors recommended unnecessary hormone therapy ADT (overtreatment) for my organ confined cancer. After I absolutely and utterly refused hormone therapy, both doctors admitted it probably would not help me in my final outcome because of the computer estimate run on me with my organ confined cancer, PSA, biopsy report, etc. Having no advance treatments (laser, etc) available to me at that time, I decided on SBRT treatment with Dr. “K", he could answer my questions and had new equipment. Before my treatment could start I was referred to “W" lab for an MRI. “W" lab had a trainee assisting and it took over 2 hours to complete my MRI. 2 days later after receiving a copy of my MRI report, I examined the MRI report; it had my name and some other patient history information. I wasted 2 more days verifying it was the correct MRI of me and not some other prostate patient MRI before my treatment could start. I did receive treatment from Dr. “K". I did have a relatively fast and noninvasive treatment (SBRT), resulting in several months of fatigue, a large PSA bounce 18 mothers later and some other short term side effects. At this time I am doing okay, however I'm not sure what the future will bring? I also no longer trust modern medicine, doctors, nurses, etc. Modern medicine seems to be more of a gamble then a science. I have wasted hundreds of hours and thousands of dollars. I feel modern medicine has abused and failed me (and others) due to the lack of guidelines and regulation, still approved obsolete technology, better unapproved treatments, exploitation, greed, apathy and incompetence. Hindsight is 20/20. I was never offered Genomic testing. If I could do it over again, I would also consider no PSA testing and treatment or traveling for advanced treatments from a competent provider if practical and available. I believe if I did take the two doctors recommendations and received unnecessary hormone therapy in addition to the radiotherapy my quality of life (QOL) would have been severely impacted for years or permanently and could possibly have resulting in my early death. I did seem to have a lot of bad luck in picking providers or is this just the new standard in medical care?

“Do no harm", unless you can make a lot of money and get away with it: I was harmed physically and verbally by Dr. “A" 18 core blind biopsy and verbally abused by his nurse. I was potentially exploited and financially harmed ($850) by Dr. “T" and offered unnecessary testing and overtreatment. Clinic “O" nurse attempted to misinform and deceive me about the treatment outcome of “no long term side effects". I was harmed by “W" lab by mistakes and incompetence. I did also have numerous other billing and paperwork problems probably due to mistakes and apathy. A few of the office staff were incapable of completing some very simple tasks like filling out lab work request or insurance forms. At least 40% (probably substantially more, 50% to 60%) of the health care workers I came into contact with did or attempted to do some form of harm to me or provide substandard care, attempted excessive testing and treatment, mistakes, billing overcharges, blind biopsy, false statements, deception, misinformation, apathy and abusive behavior­­­, as explained in this text. I have also observed several medical facilities do not require workers to wear name tags and when asked for a name most will give a first name only; this may also be a factor in health care workers not acting in an ethical manner. To me, it seems that this prostate cancer nightmare maze was intended for maximum physical, psychological, financial harm and to be of questionable benefit and maximum profit for doctors. My prostate cancer experience has been one of the worst events that has happened to me in my lifetime. Also seeking testing and treatment is one of the biggest mistakes I have ever made. I specifically blame modern medicine for not protecting patients from predatory doctors, substandard technology and a lack of regulations that would protect patients. I would have been much better off going to a Voodoo or witch doctor. I would have saved thousands of dollars, time, had no side effects, no paperwork, more confidentiality and privacy. Also I probably would have received better advice. I could have received a nice amulet or a good luck charm to protect against sorcery or magic (PSA testing and treatment) and evil medicine men (predatory doctors).

My treatment choice: I feel LDR Brachytherapy and hormone therapy (AKA chemical castration) seemed to be completely degrading, disturbing and bizarre. Hormone therapy would not have been an effective treatment for me. Surgery and Brachytherapy are to invasive. Surgery has an imminent danger of incontinence and ED. 9 week EBRT radiotherapy was just too long and laborious. Because castration (orchiectomy), ADT therapy (chemical castration), surgery, Chemotherapy, LDR Brachytherapy and blind biopsies are what I consider “Frankenstein medicine" (outdated, harmful, strange, bizarre, brutal, twisted, degrading or a perverted nightmare) I would avoid all of them. Unfortunately, I was deceived and misguided into having a blind biopsy. I do not believe other conventional treatments like radiotherapy are good or great choices either, just not as horrific. The choice I made was a 5 day SBRT radiotherapy. A 5 day SBRT also has numerous drawbacks and side effects, about the same as a 9 week EBRT radiotherapy. I also had no advanced treatment options available to me. As I have stated above, If I could do it over again I would also consider either no PSA testing and treatment or traveling for advanced treatments from a competent provider if practical and available. I am now sure I made the wrong choice by receiving conventional testing and treatment. With prostate cancer, the testing or treatment is often worse then the disease. I am not implying anyone should make the same choices as I did. I am only giving the motives for my decisions. I was also the victim of profit motivated and substandard providers. 3 years later I now believe my prostate cancer testing and treatment greatly accelerated my ageing (through the stress, testing, treatments and physically from the radiation and was also a financial burden). Per a new SBRT studies my 4+3 Gleason score is considered “unfavorable" [7]. I now have about a 50% chance of a treatment failure in 8 to 10 years. My previous long term cure rate was originally quoted at 85% before my treatment started. I am also sure prostate cancer testing and treatment is mostly smoke and mirrors (lies). The man who invented the PSA test, Dr. Richard Ablin now calls it "the Great Prostate Mistake, Hoax and a Profit-Driven Public Health Disaster"[1]. When asked: “How did you live so long?" A 99 year old woman stated “stay away from doctors and don't take anything they prescribe for you". With some exceptions, I now believe this advice to be mostly true.

Always protect yourself: With prostate cancer the common standard in medical care seems to be substandard. Do not let the sterile, friendly and professional environment of a doctor's office detour you from protecting yourself from overtreatment or any unnecessary life changing tests and treatments. If you are concerned about misuse or privacy issues, refuse to fill out EPIC questioners and limit the information given to relevant information only. If you have a high PSA or prostate cancer, educate yourself. A patient should be extremely skeptical if exaggerated claims are made about minimal long term side effects from conventional treatments or blind biopsies, exaggerated cure rates or the need for immediate treatment. Also claims of effective prompt treatments for side effects. Bring someone educated or astute with you to your consultations and appointments. Insist on Genomic or advanced testing if you have prostate cancer. Avoid doctors that are mostly profit motivated. Do not submit to a prostate blind biopsy. Get a second or third opinion if you are being offered treatment with low risk prostate cancer. Learn about all your treatment options, testing and side effects. Verify everything you are told. Under the HIPAA law you are entitle to a copy of all your medical records and bills. Always ask the name of the person assisting you. Get a copy and keep a file of your test results, biopsy report, Gleason score, PSA, MRI report, treatment plan, bills, insurance payouts, etc. Carefully monitor your PSA. Expect a temporary increase (for weeks or months) in PSA after some procedures. Verify the accuracy of paperwork. If treatment is necessary talk to your doctor in advance about side effect management, chronic fatigue, ED, etc. Doctors that provide treatments often have computer software to predict the outcome using test results and different treatment options. Ask to see your computer predicted cure rate outcome with your treatment options if available. This may give you some insight to your options, cure rate and also to avoid overtreatment. Always ask what is the “biochemical recurrence" (AKA rising PSA or treatment failure) rate for well beyond 5 years, 5 years is not a magic number. For help contact a good prostate cancer support group without a conflict of interest. A wise man once told me “you need to learn to think like your doctors (nurses or other providers)". What are the motives of your providers?

A medical holocaust: Multiple studies have verified more deaths and harm caused from prostate cancer testing and treatment then from prostate cancer itself. Medical mistakes are the third leading cause of deaths in the USA, over 251,000 deaths a year or over one million four thousand (1,004,000) deaths in 4 years. More then suicide, firearms and motor vehicle accidents combined [13]. These statistics do not include many more people that have had their lives destroyed or shortened by modern medicine or a reduction in QOL (quality of life). Per the FDA, 106,000 deaths per year (Over one million people in 10 years) from prescription drugs. Very often men are not told about all of the true risks and side effects or they are downplayed for both a blind biopsy and treatments. I personally know of 2 patients killed from medical mistakes, one got hepatitis from a colonoscopy and the other death from an upset ER nurse forcing a tube down his throat causing lethal damage.

No national guidelines: Strict guidelines for cancer testing and treatment need to be created and enforced because of the extensive and documented abuses of prostate cancer patients: 1. Blind biopsies should be banned. 2. Strict standards and gridlines for testing and treatment need to be created. 3. Full mandatory industry standard disclosure need to be created for tests and treatment to include realistic risk factors. 4. Newer testing and treatments need to be created and approved. 5. Dignity, privacy and confidentiality need to be standardized and enforced in addition to the HIPAA laws. 6. Mandatory aftercare needs to be available, standardized and regulated. 7. The cost for drugs needs to be regulated to end financial exploitation by drug companies. 8. Medical workers should be identifiable and be required to wear name tags with first, last names and job title. 9. A new standard “Ethical Code of Conduct" needs to be created and enforced to end patient exploitation and abuse. 10. Genomic or genetic testing should be required before any patient is sent for treatment to avoid overtreatment and insure the correct treatment. 11. A truthful and accurate standardized educational book or PDF needs to be created and distributed to all high PSA and prostate cancer patients. 12. Ban for profit ADT therapy and the “chemotherapy concession". 13. A database needs to be created to track and ban dangerous or incompetent health care workers to break the cycle of abuse. It is unlikely any of the above recommendations will be implemented unless prostate cancer affected a larger percent of the population or enough prominent people are affected. Prostate cancer patients must protect themselves as the only alternative!

Clarification: This text may anger and upset some people for various reasons. The intent of this document is not to imply all doctors are dishonest or to condemn all medical providers. The intent is to educate men of the consequences and dangers that may await them so they can take appropriate action and to inform patients of real world, typical or worst case scenarios. I have also tried to include most scenarios a prostate cancer patient should be cautious of. Would some health care providers harm a patient for profit or by accident or some other reason? Yes, absolutely! Shockingly, for me it was will over 40% (probably 50% to 60%) that intended to do me some form of harm or provided substandard care as explained in my story. Are some other doctors and nurses exceptional? Yes! I have also had excellent doctors and nurses, however this may not protect you or I from the bad ones.

Disclaimer: I have no conflict of interest. I do not represent any support group or other organizations. I am not a doctor. I do not prevent, treat, diagnose, cure or advise on medical matters. The information in this document is for educational purposes only. If you need treatment or medical advice, consult a competent and trustworthy medical doctor.

Anyone may copy, email or distribute parts of or this entire document without changing or modifying it.

I have been extensively criticized by some for creating this document and its blunt content. In order to insure my privacy and avoid any potential reprisals, further abuse or exploitation, I will remain Anonymous.

Part 2 of "Men beware!"

Fried nuts, two-: Prostate radiotherapy (EBRT) can sometimes result in a 5% to 30% temporary or permanent drop in testosterone levels, excluding hormone therapy. This drop is determined by the testicular radiation dose (treatment equipment and planning) [19,20]. A below normal drop in testosterone can result in fatigue, depression, sexual dysfunction and other symptoms. Always ask for a printout of testicle dose and constraints before and after prostate radiotherapy to insure your testicles are not over radiated, also include the CT scan exposures. Have your testosterone levels tested before and months after EBRT prostate treatment.

Chemotherapy can be extremely toxic and sometimes deadly: Any cancer patient (man or woman) who are being offered chemotherapy should be particularly cautious. Without genomic testing or proof of the effectiveness of the specific chemo drug being used on the exact cancer type being treated, chemotherapy can often be more toxic to the patient then to the cancer. Chemotherapy may be extremely expensive, profitable for some doctors (if dispensed by the doctor and not by a third party) and can be misused or overused, often for profit. The “chemotherapy concession”: A doctor may purchase a quantity of chemo drugs for $10,000 and charge a patient $20,000. A doctor can also receive a percent kickback from the drug company for prescribing the drug. What is the motive for some doctors to perform Genomic testing and giving a patient a different and more effective treatment at an unknown or no profit versus a guaranteed profit with a probable worthless or harmful treatment? This is a well documented and common practice. Per some studies: 75% of physicians in the world would refuse chemotherapy if they had cancer and Chemotherapy fails upwards of 93% percent. One Michigan oncologist who committed fraud and gave $35 million in needless chemotherapy (for profit) to patients, some who did not even have cancer is now in jail for 45 years. He was running his own in-house pharmacy. The nursing staff was indifferent and the state regulatory agency initially cleared him of any wrongdoing (a cover up). Many or most chemo drugs are considered a biohazard.

Long term care consists of regular PSA testing for years. Long term care for side effects is often lacking or exploitive or ineffective. Long term side effects often consist of fatigue, bowel or urinary problems, sexual dysfunction, depression, isolation and sometimes suicide. Patients with complaints of chronic fatigue are often told to exercise, get plenty of sleep, pace your self and eat a healthy diet; this advice is of limited help for chronic fatigue. Often treatments for long term side effects are embarrassing, degrading, unavailable, nonexistent, costly, not effective, not offered or bothersome. Billions of dollars are profited from ED drug and other ED products, catheters, pads and diapers, drugs for depression or pain or insomnia or incontinence, additional treatments and surgeries for side effects. Also treatments for the multiple and bizarre side effects from hormone ADT therapy (chemical castration) is sometimes required.

Men, ageing, exploitation and elder abuse: If any man lives long enough it is very likely he will have a prostate problem, low testosterones or some form of sexual dysfunction. In my opinion modern medicine often has been exploitive, abusive and has provided substandard care for older men in general due to all of the explanation given in this text. I believe much of the attitudes toward older Americans need improvement and they are sometimes viewed as being subhuman and exploitable by various groups and individuals. If documented cases of unnecessary surgery and radiotherapy or blind biopsies on children by doctors for profit were released, the vast majority of Americans would be outraged and this practice would quickly end. However for older men it dose not seems to be of great concern! It is well documented that all forms abuse do occur to the elderly and disabled in nursing homes and other facilities including neglect, theft, starvation, torture, harassment, sexual assault, etc. Elderly are being exploited in many ways. One patient after recovering from a brain injury testified that he was repeatedly abused, slapped and hit, forced to drink boiling hot tea by multiple caregivers and sexually assaulted by one female caregiver. I personally know of an elderly lady that is living in an expensive assisted living home that has had all of her possessions (radio, clothes, underwear, shoes, bed sheets) repeatedly stolen and replaced by her family. Scams for profit: Guardian scam, if you are declared incompetent by strangers, they can become your guardian (Guardianships and Conservatorships). You can be forced to move into a nursing home and your property can be sold and your assets can be seized by them. In other words-they can steal your assets and incarcerate you. Some people are becoming very wealthy by using this exploitation method. Make sure you have an estate trust, executor, etc [24].

Drug company rip off!: No bathtub included. More exploitation of men! Almost all prostate cancer treatments usually result a high percentage of erectile dysfunction. Often claims of prompt effective treatment for ED or other side effects if they occur after treatment are often misleading. Statistics for ED percentages from treatment are usually quoted after treatment with Viagra, Muse or other ED treatments, therefore most statistics are very misleading. ED rated at 5 years may be as high as 50% to 80% or higher for most treatments. ED rated at 15 years may be as high as 90% or higher for most treatments. For cryotherapy, ED rates are extremely high. The cost for ED drugs like Levitra, Cialis, Viagra and Muse are deliberately kept very expensive by drug companies, about $11 to $60 per 1 pill or dose. At these prices Lilly could consider including a free bathtub featured in its advertisements for Cialis. The cost of a 30 5MG Cialis is usually well over $330 and the cost of an inexpensive bathtub is about $200. Generic PDE5I ED drugs in Canada and other parts of the world sell for about $0.50 to $2 a pill. Some ED drugs should have already become available in a generic in the USA form for about $1 a pill. 2 ED creams have been developed however they have not been approved for use in the USA and may never be approved. Men are also exploited by counterfeit mail order ED drug sales. ED treatments can also be embarrassing, not offered, not practical, expensive/not covered by insurance. Men will often not seek treatment because or these reasons. You can get safe, inexpensive quality generic and brand name drugs from Canada. Just get a prescription from your doctor and make sure the pharmacy is CIPA licensed. Generic and sometimes bran name Cialis, Viagra for about $0.50 to $3 a pill and other drugs too. Go to www.cipa.com/certified-safe-online-pharmacies/ for a list of trusted CIPA Canadian pharmacies. Stop getting ripped off by American drug companies.

The numbers game, you lose: More exaggerations and lies. A doctor may state a patients chances of ED is about 35% with EBRT radiotherapy (or some other treatment). A patient may think, 35% is not too bad and if I do get ED I can always take Viagra. What a doctor may not tell a patient is that the ED rate is 35% at 1 or 2 years for a patient under 65 years old and with an ED drug treatment option. For a patient over 4 years, over 65 years old and no ED drugs the ED rate may be about 75% or higher. After age 70 your chances of ED is over 85% or higher[8]. Obviously, a man is more likely to refuse treatment at a 75% ED rate verses a 35% ED rate. Some side effects may not be disclosed at all. If side effects (low libido, chronic fatigue, depression, increased suicide risk, etc) are not disclosed, no percentages will usually need to be quoted. Results are often worse for a surgery option. With both treatments together or with ADT hormones also you're in real trouble with ED percentages. Cure rates are often quoted at the 5 years mark for most treatments. 5 years is not a magic number, anyone can have a treatment failure before or after 5 years. A cure rate for a treatment at 5 years may be quoted at 85%; however the cure rate at 10 years may be only 50%. The 85% at 5 year rate was quoted to me. I was never told about my 50% at 10 year cure rate. For an estimate of your cure rate go to https://prostatecancerfree.org/ and input your treatment (remember an intermediate Gleason 7 4+3 is about the same as a high risk Gleason 8). Always ask what is the “biochemical recurrence” (AKA rising PSA or treatment failure) rate for well beyond 5 years with your computer software simulation and Partin tables. Ask your urologist or radiation oncologist for a 10-year cure Rate. If the physician is unable to provide one, consider finding another doctor. Studies, side effects percentage claims, etc can be biased. Watch out for terms like “age adjusted” or ambiguous or excluded facts as given in the above examples. I have read and have been given some extremely exaggerated claims (mostly lies) concerning cure rated, side effects, etc.

Walking dead: After a blind biopsy and conventional treatment patients are often left impotent, incontinent, fatigued, exploited, embarrassed, angry/upset/frustrated, isolated, devastated, demoralized, depressed, with ruined relationships, lost libido, possibly feminized/castrated or suicidal. And sometimes literally dead. Loss of libido estimated at about 45%, excluding hormone therapy. Lower libido is almost never disclosed and sometimes it is completely denied as a side effect. After testing and treatment your life may be very deferent. Prostate cancer patients are often elderly and exploited for profit [1,5,9,10,25]. Aftercare for long term side effects is frequently ineffective, expensive, not offered, degrading or nonexistent. Prostate cancer patients are seldom told about chronic fatigue, depression, loss of libido and the true risk of side effects are usually understated. Modern medicine often fails, victimizes and exploits prostate cancer patients.

Often few good choices exist for treatment: A prostate cancer patient treatment choice often ends up being the least worst choice or the choice with the side effects a patient thinks he can tolerate. If a patient has intermediate or high risk prostate cancer and dose not have advanced age he may need treatment. He should consider genomic testing and look into other newer treatments if available. Also he should try and avoid hormone therapy if possible because of the multiple side effects especially if the cancer is organ confined. If laser or other newer treatments are not available a 5 day SBRT radiation treatment may be considered (In my opinion SBRT could be the least worst of the bad choices, still a poor option). SBRT seems to be fast, least invasive. ED and fatigue is still a high long term risk. Radiation with hormone therapy has a very higher risk of ED and long term fatigue. However, I now believe conventional prostate cancer testing and treatment is a big mistake for most men.

My story (my dilemma): My doctor had a 16 and 17 year old high school intern that reside in the neighborhood (with full access to all records) working in his office for the summer, when I went to see him. I consider this to be a privacy and confidentiality issue/violation. My doctor referred me out to his urologist friend because of a high PSA test. I will refer to the urologist as Doctor “A”; he used old and dangerous testing technology (18 core blind biopsies), his nurse seemed to have a mental defect exhibiting arrogant, rude, strange, abusive behavior and was intent on inflicting psychological harm to me. Shortly after my Dr. “A” visits ended, his nurse was no longer employed at his office and no person in that office would refer to her employment or her existence. I now believe this nurse was under the influence because of drug abuse being common among nurses (easy access to drugs). I was diagnosed with prostate cancer by Dr. “A”. I refused his surgery and hormone therapy recommendation because of the imminent side effects and his unprofessional nurse behavior, so Dr. “A” referred me to Dr “T”. Dr. “T” was outside of my insurance network; however his office manager stated she was willing to work with my insurance, offered me a doctor consultation and would accept any insurance payment as a full payment. When I arrived in his office the waiting room was empty and Dr. “T” had a large staff. Dr. “T” used older conventional technology, offered me overtreatment, hormone therapy, bone scan (unnecessary procedures and testes). One week after my consultation with Dr. “T” I received an $850 bill, in conflict with what was agreed upon with his office manager. After a recommendation from an acquaintance, I called clinic “O” and met with the nurse. She offered me treatments with a verbal guarantee of “no side effects from the SBRT radiation”. However this nurse could not answer any of my basic questions, lacked any credibility and sounded like an unscrupulous used car salesmen. Most of these office visits caused me multiple problems with offices workers processing paperwork for tests, insurance forms and billing, etc. Two of these doctors offered me an unnecessary bone scan. Two of these doctors recommended unnecessary hormone therapy ADT (overtreatment) for my organ confined cancer. After I absolutely and utterly refused hormone therapy, both doctors admitted it probably would not help me in my final outcome because of the computer estimate run on me with my organ confined cancer. Having no newer treatments (laser, etc) available to me at that time, I decided on SBRT treatment with Dr. “K”, he could answer my questions and had new equipment. Before my treatment could start I was referred to “W” lab for an MRI. “W” lab had a trainee assisting and it took over 3 hours to complete my MRI. 2 days later after receiving my MRI report, I examined it and it had my name and some other patient history information. I wasted 2 stressful days verifying it was the correct MRI of me and not some other prostate patients MRI before my treatment could start. I did receive treatment from Dr. “K”. I did have a relatively fast and noninvasive treatment (SBRT), resulting in several months of fatigue, a large PSA bounce 18 mothers later. I feel this entire ordeal aged me and I'm not sure what the future will bring? I also no longer trust modern medicine, doctors, nurses, etc. Modern medicine seems to be more of a gamble then a science. I have wasted hundreds of hours and thousands of dollars. I feel modern medicine has abused and failed me (and others) due to the lack of guidelines and regulation, still approved obsolete technology, better unapproved treatments, exploitation, greed, apathy and incompetence. Hindsight is 20/20. I was never offered Genomic testing. If I could do it over again, I would also consider no PSA testing and treatment or traveling for newer treatments from a competent provider if practical and available. I believe if I did take the two doctors recommendations and received unnecessary hormone therapy in addition to the radiotherapy my quality of life (QOL) would have been severely impacted for years or permanently and could possibly have resulting in my early death. I was initially offered over testing and treatment and substandard care. Now I am mostly ignored after my treatment. I sometimes have to make several requests just to obtain a PSA lab request form and other care is lacking!

“Do no harm”, unless you can make a lot of money and get away with it: I was harmed physically and verbally by Dr. “A” 18 core blind biopsy and verbally abused by his nurse. I was potentially exploited and financially harmed ($850) by Dr. “T” and offered unnecessary testing and overtreatment. Clinic “O” nurse attempted to misinform and deceive me about the treatment outcome of “no long term side effects”. I was harmed by “W” lab by mistakes and incompetence. I did also have numerous other billing and paperwork problems probably due to mistakes and apathy. A few of the office staff were incapable of completing some very simple tasks like filling out lab work request or insurance forms. At least 40% (probably substantially more, 50% to 60%) of the health care workers I came into contact with did or attempted to do some form of harm to me or provide substandard care, attempted excessive testing and treatment, mistakes, billing overcharges, blind biopsy, false statements, deception, misinformation, apathy and abusive behavior¬¬¬, as explained in this text. I have also observed several medical facilities do not require workers to wear name tags and when asked for a name most will give a first name only; this may also be a factor in health care workers not acting in an ethical manner. To me, it seems that this prostate cancer nightmare maze was intended for maximum physical, psychological, financial harm and to be of questionable benefit and maximum profit for doctors. My prostate cancer experience has been one of the worst events that has happened to me in my lifetime. Also seeking testing and treatment is one of the biggest mistakes I have ever made. I specifically hold responsible modern medicine for not protecting patients from predatory doctors, substandard technology and a lack of regulations that would protect patients. I would have probably been better off going to a Voodoo or witch doctor. I would have saved thousands of dollars, time, had no side effects, no paperwork, more confidentiality and privacy. Also I probably would have received better advice. I could have received a nice amulet or a good luck charm to protect against sorcery and magic (PSA testing and treatment) and evil medicine men (predatory doctors).

My treatment choice: Because castration (orchiectomy), ADT therapy (chemical castration), surgery, Chemotherapy, LDR Brachytherapy and blind biopsies are what I consider “Frankenstein medicine” (often outdated, butchery, harmful, strange, bizarre, brutal, twisted, degrading or a perverted nightmare) I would avoid all of them. Unfortunately, I was deceived and misguided into having a blind biopsy. I do not believe other conventional treatments like radiotherapy are good or great choices either, just not as horrific. The choice I made was a 5 day SBRT radiotherapy. A 5 day SBRT also has numerous drawbacks and side effects, about the same as a 9 week EBRT radiotherapy. I also had no newer treatment options available to me. As I have stated above, If I could do it over again I would also consider either no PSA testing and treatment or traveling for newer treatments from a competent provider if practical and available. I am now sure I made the wrong choice by receiving conventional testing and treatment. With prostate cancer, the testing or treatment is often worse then the disease. I was also the victim of profit motivated and substandard providers. 3 years later I now believe my prostate cancer testing and treatment greatly accelerated my ageing (through the stress, testing, treatments and physically from the radiation and was also a financial burden costing me thousands of dollars. Per a new SBRT studies my intermediate Gleason 7,4+3 score is now considered “unfavorable” [7]. I now have about a 50% chance of a treatment failure in 8 to 10 years. My previous long term cure rate was originally quoted at 85% before my treatment started. I am also sure prostate cancer testing and treatment is mostly smoke and mirrors (lies). The man who invented the PSA test, Dr. Richard Ablin now calls it "the Great Prostate Mistake, Hoax and a Profit-Driven Public Health Disaster”[1]. When asked: “How did you live so long?” A 99 year old woman stated “stay away from doctors and don't take anything they prescribe for you”. With some exceptions, I now believe this advice to be mostly true.

Always protect yourself: With prostate cancer the common standard in medical care seems to be substandard. Do not let the sterile, friendly and professional environment of a doctor's office detour you from protecting yourself from overtreatment or any unnecessary life changing tests and treatments. If you are concerned about misuse or privacy issues, refuse to fill out EPIC questioners and limit the information given to relevant information only. If you have a high PSA or prostate cancer, educate yourself. A patient should be extremely skeptical if exaggerated claims are made about minimal long term side effects from conventional treatments or blind biopsies, exaggerated cure rates or the need for immediate treatment. Also claims of effective prompt treatments for side effects. Bring someone educated or astute with you to your consultations and appointments. Insist on Genomic or newer testing if you have prostate cancer. Avoid doctors that are mostly profit motivated. Do not submit to a prostate blind biopsy. Get a second or third opinion if you are being offered treatment with low risk prostate cancer. Learn about all your treatment options, testing and side effects. Verify everything you are told. Under the HIPAA law you are entitle to a copy of all your medical records and bills. Always ask the name of the person assisting you. Get a copy and keep a file of your test results, biopsy report, Gleason score, PSA, MRI report, treatment plan, bills, insurance payouts, etc. Carefully monitor your PSA. Expect a temporary increase (for weeks or months) in PSA after some procedures. Verify the accuracy of paperwork. If treatment is necessary talk to your doctor in advance about side effect management, chronic fatigue, ED, etc. Doctors that provide treatments often have computer software to predict the outcome using test results and different treatment options. Ask to see your computer predicted cure rate outcome with your treatment options if available. This may give you some insight to your options, cure rate and also to avoid overtreatment. Always ask what is the “biochemical recurrence” (AKA rising PSA or treatment failure) rate for well beyond 5 years, 5 years is not a magic number. For help contact a good prostate cancer support group without a conflict of interest. A wise man once told me “you need to learn to think like your doctors (nurses or other providers)”. What are the motives of your providers?

A medical holocaust: Multiple studies have verified more deaths and harm caused from prostate cancer testing and treatment then from prostate cancer itself. Medical mistakes are the third leading cause of deaths in the USA, over 251,000 deaths a year or over one million four thousand (1,004,000) deaths in 4 years. More then suicide, firearms and motor vehicle accidents combined [13]. These statistics do not include many more people that have had their lives shortened by modern medicine or a reduction in QOL (quality of life). Per the FDA, 106,000 deaths per year (Over one million people in 10 years) from prescription drugs. I personally know of 2 patients killed from medical mistakes, one got hepatitis from a colonoscopy and the other death from an upset ER nurse forcing a tube down his throat causing lethal damage.

No national guidelines: Strict guidelines for cancer testing and treatment need to be created and enforced because of the extensive and documented abuses of prostate cancer patients: 1. Blind biopsies should be banned. 2. Strict gridlines for testing and treatment need to be created. 3. Full mandatory industry standard disclosure need to be created for tests and treatment to include realistic risk factors. 4. Newer testing and treatments need to be created and approved. 5. Dignity, privacy and confidentiality need to be standardized and enforced in addition to the HIPAA laws. 6. Mandatory aftercare needs to be available, standardized and regulated. 7. The cost for drugs needs to be regulated to end financial exploitation by drug companies. 8. Medical workers should be identifiable and be required to wear name tags with first, last names and job title. 9. A new standard “Ethical Code of Conduct” needs to be created and enforced to end patient exploitation and abuse. 10. Genomic or genetic testing should be required before any patient is sent for treatment to avoid overtreatment and insure the correct treatment. 11. A truthful and accurate standardized educational book or PDF needs to be created and distributed to all high PSA and prostate cancer patients. 12. Ban for profit ADT therapy and the “chemotherapy concession”. 13. A database needs to be created to track and ban dangerous or incompetent health care workers to break the cycle of abuse. It is unlikely any of the above recommendations will be implemented unless prostate cancer affected a larger percent of the population or enough prominent people are affected. Prostate cancer patients must protect themselves as the only alternative!

Clarification: This document has angered and upset some people for various reasons. The intent of this document is not to imply all doctors are dishonest or to condemn all medical providers. The intent is to educate men of the consequences and dangers that may await them so they can take appropriate action and to inform patients of real world, typical or worst case scenarios. Also to obtain the best testing and treatments available. I have tried to include most scenarios a prostate cancer patient should be cautious of. Would some health care providers harm a patient for profit or by accident or some other reason? Yes, absolutely! Shockingly, for me it was will over 40% (probably 50% to 60%) that intended to do me some form of harm or provided substandard care as explained in my story. Are some other doctors and nurses exceptional? Yes! I have had excellent doctors and nurses, however this may not protect you or I from the bad ones.

Disclaimer: I have no conflict of interest. I have no affiliation with any group or other organizations. I am not a doctor. I do not prevent, treat, diagnose, cure or advise on medical matters. The information in this document is for educational purposes only. If you need treatment or medical advice, consult a competent and trustworthy medical doctor.

I have been extensively criticized by some for creating this document and its blunt content. In order to insure my privacy and avoid any potential reprisals, further abuse or exploitation, I will remain Anonymous.

Anyone may copy, email, distribute or post parts of or this entire document without changing or modifying it. Non profit distribution only.

I'll start by saying that I'm not trying to debunk you or say you are wrong. I don't know, I'm looking for truth. But I have deep concerns and many questions about this article. My father was just diagnosed with PC and I want as much information as possible.

You make some very sweeping generalizations in this post, as well as some very ambitious conclusions. I worked in medical records in college and none of this was part of my experience. Studies and questionnaires are designed to get as much info as possible towards treatment. Personally identifying information isn't part of that at the study level. I do agree that they will never call you for it any more than your banks call for passwords, but saying studies are bad is misleading. How do we learn more without broad studies?

That aside, since I'm sure you'll say just because the clinic I worked in was caring and respectful doesn't mean they all are, I'd like some links to the studies you refer to that bring you to your conclusions that oncologists and prostate physicians are apparently out to kill their patients for profits. I want to see where you get your data and evaluate it myself. I'm not trying to give you trouble. I'm scared for my dad and trying to educate myself about all sides.

As to your point about bankrupting patients, that is reflective of the US system of for profit medicine not prostate or oncology medicine. If you want to change that part of medicine demand universal health care. Unnecessary and ineffective strategies would go away almost overnight.

JJ,,,,,, ORH here, and I now on the trail your are talking about. I do think you need the test, but it is what you do with that test that matters. My PSA was 2 up until about 3 years ago and I was putting Testosterone pellets in my fanny every 4 months, giving me a Testosterone level of about 900 or my youth. Then my PSA jumped to 6 and scared my mule. My Anti-aging doctor wanted me to have a biopsy done and I refused. I just stopped the pellets and went on the dog dewormer and my PSA slowly went down to 4. I am now back on my pellets, but am aware the my prostate is enlarged. I am addressing that with my hi dollar PEMF device. I just did a PEMF session and took my blood pressure at the end. My Systolic is normally about 130 to 140..... it was 110. That tells me that the PEMF session enlarged or relaxed my blood vessels. Ron L Hubbard had this down to a science, when he gave his LSD buddies Nician and put them in a sauna. Tom Crews did the same thing with the first responders following 9/11 and the doctors did not know whether to Sheet or go blind. To detox you have to dilate your blood vessel so the toxins can flow through your capillaries and out of your body. Our Medical Mofia knows this, but there is no money to be made. My deal is to read, and neighbor you read. Good post and wish you well.

====ORH====

How long do you stay on dog dewormer?

PETER, ORH here, stayed on dog dewormer about 5 months, until I could do a full pee stream. Just did my prostate PEMF session and took my Systolic before and after. Reading went from 137 to 121 in 20 minutes. May be wrong, but think the device is giving me better blood flow into my groin area. Use it every night to get to sleep. Lots of medical toys out there to play with. Buy them instead of a new truck. My Lariat is 20 years old and a replacement cost of $66,000. Can buy lots of health toys for that kind of money.

==ORH==