Natural Remedies for Autoimmune Diseases

The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Dental Health Link to Autoimmune Disease
Posted by Beth (London) on 02/20/2019
★★★★★

Inflammatory and Autoimmune Disorders: I've seen a good body of anecdotal evidence to link these in some cases to gum disease. Doctors rarely think to check oral hygiene. If you have any bleeding of the gums, gum shrinkage, abscess or severe tooth sensitivity (which may indicate a cracked root) see a dentist and get these fixed. It won't instantly cure inflammatory problems but may remove one source of ongoing inflammation. Since toxins from gum bacteria are now known to cross the blood brain barrier, it may also reduce your chances of dementia.


Antiphospholipid Syndrome Remedies
Posted by Emanr (Nyc) on 06/22/2014

Hi. I have a very different blood clotting disorder. I have Anti-phosphilipid syndrome due to my Lupus. Its been an issue for 14 years. I've been on 3 different blood thinners. Coumadin was to up and down, Arixtra wasn't always working right and I got a clot in my eye. So they changed me to Lovenox. But because I was so stressed out last year, my meds didn't work and they had to amputate both my legs because of clots in my feet.

Although the lovenox works well, it's very expensive. I've been thinking about trying to do it naturally with the molasses and cayenne pepper, but I don't know if its too dangerous because of how erratic my health has been. My lupus is my worse enemy most of the time.

I've also been looking into getting a blood monitoring machine but those are very expensive. I think it might be worth it to try. Or go to bellevue a few times a week, which is also expensive and annoying. Also, the insurance company is giving me hell because its so expensive.

What do you think? Should I try the natural way and see how it works out, while my docs watch or stay with the meds?

Thanks.

Antiphospholipid Syndrome Remedies
Posted by James222 (New Hampshire, US) on 11/23/2014

Hi, I was sorry to read of your illness, you might want to target your research towards Hawthorne, you can get it in tincture form and add it to 8oz of water, as with ANYTHING new best to start small and go slow, by that I mean start with a small does to see how you react.

Good Luck, James


Antiphospholipid Syndrome Remedies
Posted by Claudia (Nc) on 08/11/2016

I'm sorry about your illness. I have suffered from immune System disease since some time ago. First it attacked my thyroid, right now my skin and joints. I love to search about natural medicine so, I have learned a few things and as far as I know cumin, turmeric and ginger are blood thinners. There is something you have to be careful about and it is that some veggies are doing the opposite and interfere with your blood thinner medicine. Some of those are broccoli, kale, spinach. You can search at those as anticoagulant antagonist. Doctors do not give notice of those and it is very important.


Autoimmune Paleo Protocol
Posted by Lou (Tyler, TX) on 11/04/2021

I read that arugula is very good at eliminating candida. I was eating it regularly a few years ago and my waistline was very slim. I looked it up and I found out that it is anti candida and also anti cancer as well. I plan to make some arugula smoothies soon.


Autoimmune Paleo Protocol
Posted by Valleygirl (Chicago, Illinois) on 11/01/2017

Hello. I suffer from many different ailments all autoimmune related. When I was just 5 years old (i am in my 40's now) I contracted Henoch Scholein Purpura...another autoimmune disease. Then a year after the HSP, I contracted allergies and asthma. As an adult, no MD EVER thought to look back on those autoimmune issues. Instead, they pumped me up full of prescription narcotics and antidepressants. I have severe pain and inflammation and sometimes couldn't get up out of bed. I get various rashes often, I suffer from sinus polyps, joint pain, kidney stones and infections, and major digestive issues. All of that coupled with the heavy prescription drugs and regular use of ibuprofen, everything came to a head. Of course, I was diagnosed incorrectly numerous times and given so many prescriptions, that I just took it into my own hands. I thought, I am a smart girl, I have a masters degree, I can figure this out. And I did! I tried the Autoimmune Paleo Protocol. It's not easy. It sucks big time, honestly. There is a lot of information on line and in your local library about the AIP. The most important thing is that all of your food is organic, and in cases of meat, grass fed or pasteurized. So while you go through this Autoimmune Paleo Protocol, you will find immediately what works and doesn't work FOR YOU. I wholeheartedly believe that food is personal. Each person is different. I also took it a step further and visited a naturopath doctor. She did food intolerance testing on me, and that helped as well. I am not cured. But, I do live a MUCH better, less painful, more productive life. I also do not see any doctors, ever. That, again, is my choice, and yours may be different, and it may work for you! That is great, but they don't work for me. I have found that grains are the devil. Anytime I eat any type of grain, I am in pain. That would be the importance of getting grass fed meat. I use all organic everything. I make all my own soaps, shampoos, and cleaners. I use essential oils. My life has changed drastically. I don't go out to eat much, and I don't drink alcohol at all anymore. Like I said, this can really suck. Considering, though, what I used to feel like, this is all worth it. I don't take any prescription drugs either. I use turmeric for my menstrual cramps, and don't even take ibuprofen. This website is amazing and I feel blessed to have found it. Thank you to all who contribute.


Viral Link to Autoimmunity
Posted by Dave (Fountain Inn, Sc) on 02/07/2014

To Mama to Many,

Oh yes...bacteria too. And fungus. My theory is not that all disease is caused by b/v/f (bacteria, virus and fungus) but that bvf may be triggers or underlying supports to disease and that if we eliminate the bvf triggers and supports then it would be much easier to overcome the disease.

As an example, without "good oils" the cells of the body cannot be properly constructed; so I take Evening Primrose Oil, (and use other good oils) and have for 30 years. That might help forestall numerous degenerative diseases that aren't directly related to bvf. But so many cousins to myelin sheath problems are "oil" related.

Just think of the incredible movie (real life) "Lorenzo's Oil"....That movie should be confirmation that Myelin Sheath breakdown caused by improper oil usage (genetic in the boys of Lorenzo's movie) is crucial to proper oil usage. When the world started using hydrogenated oils in margarine before and especially during WW II, we saw a spike beginning with MS and other cell styled myelin generated problems. Now just consider this; if you have a compromised cellular system AND throw in a bit of heavy metal (typically mercury) AND add a virus...you have MS. And if you get a different virus and have a weakened cellular system, we might have ALS, Parkinson's, weakened arterial systems as the b/v/f attack a "weak" cellular system.

The b/v/f can better attack "poor" structures. So a "holistic" approach is truly multi layered...whole foods, lots of vegetables, a lot raw; oils like we used for hundreds of years before the modern world got "smart" and methods that have been used for thousands of years to kill pathogens (silver)...although the Ancient Greeks did not know about pathogens...only that when they used silver coated surfaces, they seemed to not get sick so often and die from illnesses so often as others not using the silver.

Folk medicine is really not just one or two things but hundreds of composite information passed down by those who lived before us. We stand on the shoulders of Giants.

And Ms Mary, I am proud to say you are one of those Giants because we all see how steeped you are in that world of herbal medicine...so vital for the BIG picture. So is Ted, of course and the brilliant Bill, and Oscar and Mike and Prioris and Timh and Robert Henry and Mmsg...oh, I've left out ten others I just love to read.

Well, my point is that you asked a follow up question about the relationship of not just virus to auto immune disease ( and much disease in general) but also bacteria and I just took off by propounding the broad picture and how we are all learning the relationships.

A profoundly exciting journey, enriched daily by the many who with enlightened minds seek to help others overcome and improve their lives.


Viral Link to Autoimmunity
Posted by Bill (San Fernando, Philippines) on 04/08/2014

Interesting discussion this one. For a long time, I've wondered why certain diseases — especially concerning viruses — are so hard to address. My own conclusions were that viruses, as well as other types of pathogens like bacteria and fungus, can sometimes evade both the immune system and antimicrobials by hiding in certain regions of the body. This might explain why conditions linked to the Epstein-Barr virus, HPV, the Herpes virus, and Candida can be so persistent. In my research, I found that pathogens may hide in the following regions of the body:

  • Ears: The Eustachian tube connects the throat to the ear for pressure equalization. It's interesting how the first signs of cold/flu often start with a sore throat. The outer ear may also serve as a reservoir for microbes.
  • Teeth (root canals): Some microbes may be difficult to address in this area.
  • Synovial Fluids: Found along the backbone and joints, this region can be challenging for some antimicrobials to penetrate.
  • Lower Intestines (caecum, colon area): Even when taking antimicrobials orally, these substances may not fully reach the lower intestine, which can sometimes allow harmful microbes to thrive.
  • Biofilms: Dense fibrin structures that can shield both fungus and bacteria.

I don't believe that viruses alone are the sole cause of autoimmune problems. They can certainly contribute, but autoimmune issues are likely more complex. Research has shown that mycoplasma, a type of bacteria, is often found at sites of arthritis and other chronic conditions. Borax is reported to address mycoplasma, which may explain its effects on arthritis. Mycoplasma is a type of cell-wall-deficient (CWD) nanobacteria. Additionally, some researchers suggest that fungal infections may play a role in chronic health conditions.

I personally believe that many pathogens are pleomorphic — meaning they can change form based on the health state of the body. Early researchers observed that bacteria could transform into viruses and even fungi under certain conditions. For example, Rife's research explored pleomorphism in cancer and other diseases.


Guillain Barre Syndrome
Posted by Bananka (Bali, Indonesia) on 03/09/2012

Thank you Had from White River Jct, Vermont. I have not had the tests, but currently, with more and more research, I am changing my diet for the better. Much much much less sugar intake, almost zero. I eat fruits for breakfast, and a whole lotta veggies for lunch and dinner; aiming for much more than other accompanying foods, like potatoes and rice, etc. Also am basically off milk products.

I do oil pulling sometimes in the morning, and drink warm water with lemon for the liver tonic. So hopefully that will help with the metal toxins, which I'm sure we all have to some extent :)

Overall, I am feeling much better, although physically can only see tiny changes in my smile.

Fingers crossed, I'm going to beat it :D


Dietary Changes
Posted by Bcaru (Bristol, Ct) on 02/18/2016

It's also important that the cows are grass fed, and they they don't get injected with steroids, or other things such as antibiotics. I read a book by Dr Bragg and he pointed out that humans do not need milk. Humans are the only creature on earth that continue to drink milk after we're weaned and that continuosly drinks milk from other animals. Milk has no good purpose in the health of humans. If you must drink milk, there are better forms from plants. Coconut, hemp, and others. Stay away from soy though. Good luck.


Dietary Changes
Posted by Had (White River Jct, Vermont) on 03/08/2012

There is a cheap book out as well, 101 uses for vinegar (something close to that). It is the BEST thing I've found for cleaning w/o killing yourself w/poison fumes from cleaning products. Laundry, floors, countertops, bathrooms. Is anti-bacterial/viral and deoterizer, smell dissapates fast and leaves behind brand new 'shine', like you just put in new counter/floor etc.... I picked up book, it's smallish, for $2 on a 'let's see what it says?' , I bought more and sent them out to friends who where interested in cleaner/healthier living or had health problems, they are shocked at how completely it cleans just about everything in your house and more, I am told my house always smells 'clean and fresh'.


Dietary Changes
Posted by Dawn (Nevada) on 05/11/2016
★☆☆☆☆

I have been following the Paleo diet for nearly three years now and was diagnosed with an auto immune disease two and a half years ago. Unfortunately I have not found this diet to be helpful in alleviating my symptoms (although on the bright side I've lost 45 pounds)


Borax
Posted by K'c (Chicago) on 06/15/2018

I was wondering would this borax and magnesium work for RA? If so what are the proper doses of each? Thank you.


LDN
Posted by Jeff (New Zealand) on 02/19/2017
★★★★★

Look up LDN. I have PMR and was on Prednisone but had a few side effects and found LDN. I have been on it about 6 week and has seemed to have helped no longer on prednisone. LDN is a bit of an eye opener and has helped many with autoimmune problems.


Scleroderma
Posted by Seth (Cinebar, Wa.) on 06/11/2016
★★★★★

Ultraviolet Blood Irradiation or UBI therapy. My naturopath says he has amazing results with this therapy for his scleroderma patients. I asked because my aunt has scleroderma. I wanted to share. The earlier you start the better.

Antiphospholipid Syndrome Remedies
Posted by Janice (Ca) on 11/14/2016

I have anitiphospholipid syndrome. Diagnosed 13 yrs ago. I just take a baby aspirin every night. That's what was recommended and haven't had any issues.


Scleroderma
Posted by Joel (Philadelphia) on 03/30/2021 17 posts

Regarding the cancer,

Https://www.cancure.org/12-links-page/43-artemesia

"Additionally, Dr. Rowen stated that he adds cod liver oil (for its omega-S and vitamin D) and conjugated linoleic acid (CLA) to this therapy. He says that, with the exception of patients very near death, taking artemisinin or derivatives have stabilized, improved, or remitted every cancer patient he has followed. Medical literature also seems to suggest that oxygenating the system might make the products effective."

You have to avoid any food with iron when taking artemisinin. Pre-load iron beforehand.


Viral Link to Autoimmunity
Posted by Johanneinsc (Sumter, Sc) on 04/07/2014

I am 49 years old and was diagnosed with baseline 'Connective Tissue Disease' today (via phone call). I have an appointment later this week to get more details from my Rheumatologist, but have been having unexplained issues for a few years. I'm sure this sounds very familiar to all of you, it's just all pretty new for me. I have had Raynauds for 6 years. 4 years ago, I had a 'torn tendon' in my inner hip joint, which was insanely painful. It never showed up in an MRI, it was just what my GP Dr. assumed it was. In December I began having pain in my left bicep that was similar to the 'hip' pain. It got worse, and my GP did MRI's on my neck, bicep and then shoulder, suspecting frozen shoulder. All MRI's showed nothing, though the pain is horrific when I move suddenly, etc.

With this diagnosis, I am wondering if the two unexplained injuries are actually connected? I had no incident, either time, to explain what happened. Now with the Rh Dr's diagnosis, I have to wonder if it's due to weakened tendons, etc. I have been gluten free-ish for a 1.5 years, and I've changed to as organic a diet as I can, especially with meat and eggs. We recently bought a Vitamix to be able to get more vegetables in our diet. I started changing to natural cleaning solutions and hair/skin products. Even with all of this, I guess it's time to get serious about it, and permanently get rid of the things that are possibly making me sick.

With all of that being said, reading everyone's experiences and suggestions is helping me to not feel alone, and not so afraid. I do appreciate you all sharing with everyone! In regards to Autoimmune being related to viruses, I had Mononucleosis when I was 14 years old. I was out of school for 3 months. I was pretty sick, and I never got back the energy that I had before that. I swear I was never the same. I was on the track team in Jr. High before that, and it halted all athletic stuff for me. I have practiced Martial Arts off and on over the years, last time being 6 years ago, but it was never easy, especially when it came to endurance. My heart is healthy, I don't get sick often, lungs are good, don't drink or smoke. I have always wondered if mono was 'lurking' in my system somewhere, and could never get a straight answer from a Dr.about it. I actually decided to google it and see if there was a link to autoimmune, and it appears that there may be. Anyways, just a thought in reading your comments here on a possible viral link. I wonder how many of you with autoimmune diseases had mono at some time in your lives? Just curious!

Thank you so much again, and prayers for all to be healed and healthy again (me included! ) Johanneinsc


Supplements
Posted by Mike (Denver, Colorado) on 09/18/2013

Deb: 70% of the immune system is the digestive system. When people eat regular food the microbes become weak from lack of nutrition and free radical damage. This causes miscommunication among the various components. This is the root cause of all autoimmune disorders. The 26 beneficial microbes, 3 varieties, of home made water kefir, change sugar into vinegar with special electrons that is beyond this simple country bumkins understanding. Cellular biologists can tell you. This cures autoimmune diseases. You can get info, instructions, many favorable reviews, and grains online. Bone up on lots of spirulina and chia seeds to accelerate the healing process.


Pemphigus Foliaceus Remedies
Posted by Kumari (West Indies) on 02/26/2016

Diagnosed and being treated for Pemphigus Foliaceus since 2014, please share any information regarding the use of alternative medicine, prednisone poses more threats than cure!


Steroids
Posted by Cora (California) on 04/29/2016

I just got a Biopsy yesterday. The biopsy is being sent in for Pemphigus (skin disease presenting as watery blisters.) I have been off and on sick for about 3.5 years. I get large open sores on my legs and arms. They start out as little dots and then open and eat my flesh. I have been to the ER several times and they ask if I am a Heroin user (no, I am not). I have had a tons of blood work, all my levels are great. So I gave up and continued to get these sores and deal with it. I also would suffer from fatigue, bone and muscle aches and chills. People thought I was over reacting. I have been reading on the causes and notice there was a few articles on Vaccines for adults that had a link to lupus, MS and other autoimmune diseases.

This being said, I thought back to when this issue started. It started not too long after I started working at a California UC Hospital. In order to work there you must be up to date with Vaccines. I had MMR, TDP, TB tests and I want to say there was one more. I never get the Flu shot and I never take antibiotics. I'm started to wonder if this could be a contributing factor to my scenario......


Guillain Barre Syndrome
Posted by Bananka (Bali, Indonesia) on 01/31/2012

One afternoon, two months after I had my first baby, I suddenly could not move my lower lip and chin was numb. The next morning I woke up, looked in mirror, and shrieked to find that my whole face was frozen. My mouth drooped, eyes only close halfways, couldn't move anything. I could open my mouth a bit, but eating and drinking was a messy struggle.

After tests, the doctor(s) vaguely concluded it was GBS, Guillane Barre Syndrome.

No one can tell me for sure what brought this on. One very reasonable theory is utter-exhaustion. I thought I was just still exhausted from giving birth, first time mama, but now looking back I know I was insanely exhausted, because I couldn't even stay alert long enough to read a few lines of books or messages on phone.

A few weeks before it happened, I noticed that there was no position comfortable enough for me to sleep in. Even laying my head on soft pillow, I felt like my ears were constantly folded causing pain, but they weren't! I could still walk, but slowly because my whole being was in pain. I could not bend my neck down far enough to be able to see toes/tummy/whatever. My blood pressure went up to 180/90 . I was advised to stop breastfeeding to ease on exhaustion and to take blood pressure medicine. But all it did was just adding more anxiety, and it didn't do anything for the blood pressure. So I went with my gut feeling to stop on the meds, and resume breastfeeding, although by this time my baby was already partially on formula.

The birth of my baby was awesome. But healing was very slow. My nipples were not only sore, they were cracked, and now are somewhat deformed. But I persisted on exclusively breastfeeding my baby.

I went through accupuncture for about 4 sessions, but did very little for the GBS at the time, and the trip to the accupuncturist was very exhausting itself, plus we couldn't afford the fees any longer. The medications from the doctors were none, because there weren't any known meds for it except for a "preventative" course of immunoglobulin (ImG) before the GBS went worse (because it could cause death if paralysis goes to lungs). By this time, after all the tests, it looked like the GBS was on the steady and not worsening, so we decided to not take the ImG course (couldn't afford it anyway; insanely expensive). I tried what they called "tantric" massage. I tried homeopathy (worked a little). I tried Craniosacral Theraphy (helped a bit). A bit of everything over the two years, but could not be consistent for several reasons (baby, time, cost).

It is now almost 3 years since the onset of the GBS. I am very thankful that I am still here, had a 2nd baby, breastfeeding well (both), active again. But the left side of my face is recovering very, very slowly. I can probably say that the right side is about 90% healed. I can smile (right half), raise right eyebrow, wiggle right nostril. Left side not so much. It still hurts when I press on my face. When I smile, my forehead crunches, making me look like I'm unsure of or questioning or even mad at something/someone. It is quite funny tho, especially when 2 years ago the whole face was still "frozen", I would be saying something in a happy voice but my face was bland/uninterested/mad, also because my eyes were always on the scary stare mode.

I have always been known to be a "smiley" person. I am more of an easygoing, happy person. I am thankful for a whole lot of things in my life. But I do tend to be an introvert sometimes when it comes to hurtful feelings. This might be one of the mental causes for my condition.

Even though I am about 90% healed on right side, I must admit I am still a bit worried about not being able to recover fully. My biggest concern is that I want my kids to know their mother's smile. And it's not a comfortable condition, because it's like my face is on constant 'pull'. Also, when I sleep, mostly in breastfeeding position, my hands fall asleep, too.

I wonder if there is any definite cure for my condition. I have started ACV 2tsp with BS 1/4tsp, and tall glass of water remedy, initially for food poisoning and flu symptoms. It is my 5th day on, so tomorrow off for 2 days. It definitely helped for the poisoning and flu, plus I do notice my face is clearer and almost glowing again. Because for 2 years my face was sagging for the lack of muscle activity, so skin was also "grey".

But I am so hoping I could smile my old smile again. Please help with any advice :)

Om Shanti,

Bananka

Dietary Changes
Posted by Mactwo (Beatty, Oregon) on 03/01/2015

Auto-Immune Disease is another name for Vitamin Deficiency Disease and makes the immune system is incapable of defending us from parasites, diseases and toxins.

Most spices are very nutritional and many are medicinal. Makes very interesting research.

Quote, Dr F R Klenner, " white blood cell without adequate vitamin 'C' is like soldiers without bullets". dez...


Avoid High Histamine Levels
Posted by Beloved (CA) on 03/04/2022

I read the link about histamines and I do a few of the things in this list to avoid. One was taking Benadryl, exercising too much, and vitamin deficiency. Thanks


Borax and Liposomal Glutathione
Posted by Sherry (Phoenix AZ) on 11/05/2019

This is too much borax, dose should be 1/8 teaspoon or less. I wet my finger touch borax and put in my mouth. Be careful with a cleanse, I did one with herbs from rose mountain herbs, a great company, that also called for iodine drops in it and it caused my thyroid to crash. Never will I do a cleanse again. I felt like I was dying. One year later my thyroid is all over the place. Any autoimmune is caused from a leaky gut, (stomach issues) and take a lot of work to heal. No sugar or artificial sweeteners, no grains, gluten, fruit, only vegetables, meat, good fats. No more bloating, slowing healing. The answer is diet. Not easy but you can do this.


Borax and Liposomal Glutathione
on 11/07/2019

Thank you for replying Sherry. I only took a “teaspoon” of the liter mix, not a teaspoon of borax.


Borax and Liposomal Glutathione
Posted by Frances (New London, NC) on 10/10/2022

Maybe try soaking in Borax for a few minutes instead of ingesting, this may be easier on your stomach.


Airborne Pathogens and Idiopathic Diseases
Posted by Dee (Arizona) on 12/09/2022

Thank you for this post. It was very enlightening. Are you still well in 2022? Again, thank you for this long post, your astute insights and intelligence.


Borax
Posted by trish (us) on 07/28/2022

cgcsforum.org has lots of info on this.


Turmeric
Posted by Mmsg (Somewhere, Europe) on 11/15/2016

Tom, turmeric also needs oil for it to work. And in general, you might try adding more good fats to her diet: avocado, virgin olive oil, organic coconut oil (the ones that smell like coconut! ).


Guillain Barre Syndrome
Posted by Dave (Fountain Inn, Sc) on 05/26/2014

I think Guillain Barre is caused by a previous viral infection. At least that is one cause.

Google, "guillain barre viral infection" and you'll find some sites that relate virus and guillain barre. That means in theory if one were to take the virus killer Colloidal Silver that the underlying cause of the illness might be eliminated.

You can read on EC's remedies site about CS. There are two articles there and I'd recommend both, especially by the guy named Dave.


Guillain Barre Syndrome
Posted by Gavin (Northland) on 05/26/2014

Basically It comes on after an infection like a cold or flue. Then the body attacks itself, and causes the sheath around the nerves to break down, this leaves the electrical signals unable to activate muscles, because of this most cant move a muscle, sometimes cant even blink. It Peaks after a couple of weeks, then the myelin sheath around the nerves, starts to repair itself, so the electrical signal from the brain can work again. With physiotherapy most recover completely. It affects 1 in a hundred thousand but its causes are not really well understood.


Viral Link to Autoimmunity
Posted by Prioris (Fl, Usa) on 02/05/2014

Juvenile Rheumatoid Arthritis connects with vaccine injuries


Viral Link to Autoimmunity
Posted by Mama To Many (Tennessee, Usa) on 02/05/2014

Dear Mmsg,

We started using a number of herbs for her that were indicated for asthma and/or for JRA - cat's claw, olive leaf, mullein, and feverfew. We also have used nettles, Vitamin D, Folic Acid, B-12, and magnesium. This was a couple of years ago, so I may not be remembering everything. She also eats a pretty healthy diet - mostly whole foods. She is actually still using most of these things. Only later did I learn about the possible viral link and realize that many of the things we have used, that have been very helpful, are also useful for viruses.

Dear Prioris,

My daughter has actually not had any vaccines. My oldest had a vaccine reaction so we discontinued vaccinating in our family. I have often wondered if there was an environmental factor to what may be weakened immunity in her. I have just never pinpointed anything. We have moved a few times. She did spend much of her life in a house surrounded by fields owned by farmers who used tons of chemicals on them. It was disturbing to see little planes flying and spraying chemicals across the street into the fields.

~Mama to Many~


Viral Link to Autoimmunity
Posted by Prioris (Fl, Usa) on 02/05/2014

It doesn't surprise me. For instance, all autism isn't vaccine related. There are about 1 in 15000 who have non vaccine related autism.

i can't find any references to amish and juvenile arthritis either.

http://thebovine.wordpress.com/2011/03/06/why-is-autism-so-rare-among-the-amish/

I assume you tried Borax for JRA. I would also look at various diets e.g. paleo, gluten free, some food allergy etc. I would include coconut oil also because it kills many infections.

I think the cause has to be in the food but like RA, the microbe has to be killed also even if the diet is correct.

P.S. One more thought. The chemicals sprayed on the farmers fields around the house may have created allergies to things. Maybe experiment with saunas to excrete the possible toxin contamination with the child.


Viral Link to Autoimmunity
Posted by Mama To Many (Tennessee, Usa) on 02/07/2014

Dear Mmsg,

Yes, in the instance with my daughter, it seemed that it did take a number of things to help her feel well again. When using natural medicine, I just keep trying different things until something works! (And that is usually what doctors are doing, too.)

When I am suggesting things to others, I try to include many things since not everything is available everywhere. Sometimes the solution is right in the house, but not every house has the same stuff around. Also, some things are more expensive than others and I want to make sure there are inexpensive options if at all possible. I would hate for someone not to be able to get better because the solution is too expensive.

I love that with natural medicine, sometimes one thing will take care of it. It just isn't always the first thing tried.

~Mama to Many~


Viral Link to Autoimmunity
Posted by Timh (Ky) on 02/08/2014 2048 posts

Dave: Thanks so much for your persevering spirit, and commitment to fostering health here on E.C, and including the main supporting cast in the same endeavor.

Personally the Autoimmune problem is clarifying very much towards the severity of my condition. After watching Dr Noel Rose introduction to autoimmune disease I fit the category with 3 disorders. First, evidence of Chronic Active hepatitis as was relieved by antiviral herbs particularly Licorice Root. Second, an acute case of hemolytic anemia that was miraculously reversed w/ Morphine (in the event of extreme pain). Third, and only very recently manifest is Rheumatoid Arthritis. The 2 yr episode of Hypothyroid seems to finally be reversed.

After watching Dr Rose's intro http://www.youtube.com/watch?v=bjTBZObWuPY it appears obvious that any factors which compromise the detox system starts a chain reaction that also includes the endocrine system and finally the immune. The lower incidence of autoimmunity in the temperate climates as apposed to cold climate may reflect how important it is for the detox system when the body/skin has a regular sweating as the hot & humid environment promotes this. Clean air, food, and water are very important in the battle of prevention in autoimmunity. Once the body's detox system is compromised, thus begins the parasite & pathogen chronic phase as the immunity becomes seemingly helpless in it's response (or lack of). If one can avoid organ damage, remain properly detoxified, the prognoses appears good, otherwise the treatment options from most MD's is treating the symptoms while avoiding the cause. There is ongoing research into immune modulating natural substances including Colostrum. Opiates & Cannabinoids may prove very effective if the intoxication issues can be minimized. Low Dose Naltrexone (LDN) is certainly very effective.


Viral Link to Autoimmunity
Posted by Dave (Fountain Inn, Sc) on 04/08/2014

Hello Johnanneinsc,

Thanks for the question re the link to possible Mono and auto immune...

No question you're on to the cause; and likely will get worse. In fact, worsening will manifest in some organ being invaded and likely viral meningitis or other disease; like onset MS symptoms ... or the myriad myelin sheath disorders...attacks on the spine (ALS) type issues; viral infections of heart/pancreas/intestines and possible viral meningitis (you see those victim areas as typical viral targets).

And yes, your Mono was the cause.

Quick way to test this dismal hypothesis. Sorrow can turn to joy in a matter of days!

Just drink a boat load (not really that much) of Colloidal Silver. If me that's what I'd do. I make my own. And as precaution against marauding viruses/ bacteria/fungus attacks drink a few tablespoons four or five days a week.

But for one who has had a major hit from a virus...there are HEAVY odds that the virus (in any number of combinations) are still working in the system to reassert in what is usually what is called an "autoimmune"...or a "mystery" disease.

I've seen it again and again.

Here's usually what happens: One suspects (as you have) a viral connect to the symptoms. One's energy level especially has been severely impaired since the disease "invasion"...years earlier. "Never really the same since" being a common complaint. One then gets onto an anti viral. (My weapon of choice is Colloidal Silver. I read about MMS and so called "zapper" but can't attest to their effectiveness. One day I may try MMS.) But once on quantity levels of CS at HIGH ppm levels...IN A FEW WEEKS .... sometimes five days....Energy starts returning.

And that becomes the evidence that perhaps the CS is killing the viral infection and the immune system is being relieved of the infection. LOTS more to this whole thing (virus as trigger event vs. ongoing cause; is it virus or fungus; lingering tissue damage, such as nerve, which is caused by the infection). And so there becomes a few additional "helps" that can help overcome the effects of infection even as/or after the infection has been killed.

Well, all the above is my viral theory of the cause of "some" disease/ or trigger of some diseases.

And, as always my disclaimer: I am and have no medical training and all my "theory" discussion is not a diagnosis for any person's problems and not a medical recommendation for anyone. I always try to say "if this were me here's what I'd consider"; and with "the advice of one's health care professional" also...of course!

I see you live in Sumter. Want to take a quick spin to Fountain Inn and pick up one of my home made concentrates and get a free demo? No charge. I give away. Email EC staff and they will give you my email. (All with the advice of your Health Care professional, of course.)


Viral Link to Autoimmunity
Posted by Timh (Ky, Usa) on 04/09/2014 2048 posts

Dave: I think it was Walter Beck that proclaimed that using both Colloidal Silver & Zapping, in sufficient quantity would, in a matter of wks or months, kill ALL pathogens in the body.

I am zapping at maximum and am drinking 1 cup C.S. daily and am slowly making progress. It's been several days that I haven't taken 6 drop MMS dose and am beginning to think it impossible to kill all these pathogens without MMS. Jim Humble nicknamed MMS the Tasmanian Devil as it systematically destroys almost every known pathogen.


Viral Link to Autoimmunity
Posted by Dave (Fountain Inn, Sc) on 04/09/2014

Hello there Timh

How are you doing these days?

Re...Bob Beck...there is even a youtube video of him making full strength CS using what I call the "fast" method. Exactly how I was taught. And in that video he drinks it undiluted!!! I was NOT taught that.

But, he died too young...only 77 from heart failure. Which is a lesson to us all. The "machine" is multifaceted. We have to keep all the parts in proper working order. I noticed in progressive videos of Bob, he wasn't looking vigorous. I asked myself; what is Bob doing wrong...something is absent in his nutrition program and I suspected lack of cardio because his face was looking "leathery" and bleached, as if not enough circulation was present.

So; viruses and fungi and bacterial infestation did not kill Bob...oh too soon...but I believe lack of cardio nutrients likely did.

Pay attention to ALL the parts. All the issues must be addressed. That's why a whole foods approach with a broad array of nutrients is what I think is best. I'm trying to cover all the bases.


Viral Link to Autoimmunity
Posted by Bill (San Fernando, Philippines) on 04/09/2014

Hi Dave...Much thanks for your post which I enjoyed reading for sure.

Just to perhaps extend my explanation a bit. I regularly use protocols which I affectionately refer to as protecting my "Caves and Orifices," which entails doing the following:

Ears: Regularly wash out with either Hydrogen Peroxide or a few drops of Lugol's Iodine (LI) in water a few times a week.

Nose: I forgot to mention this one as a hiding place (think sinusitis or rhinitis that never goes away). The nose is a prime area for fungal build-up. Use a dropper to wash out the nose with either 1% Hydrogen Peroxide (HP) or drops of Lugol's Iodine and water to help manage fungal and bacterial build-up. You can also use a neti pot with sea salt.

Teeth (root canals and gums): Use a few drops of gum turpentine in the mouth several times daily to help support gum and tooth root health. Turpentine is strongly absorbed by the gums. Or you can use a teaspoon of 50% DMSO (as Hulda Clark recommends) with a few drops of Lugol's Iodine. Hold and swish it in the mouth for a few minutes before spitting it out to allow absorption into the gums/roots. In all cases, the absorption and anti-pathogen effect helps to reduce inflammation, pain, and infection in the gum and root regions. Use 3% Hydrogen Peroxide as your regular mouthwash — it can also help whiten teeth.

Synovial Regions: Use DMSO and anti-pathogens (such as clove oil, Lugol's Iodine, borax) locally and topically to drive out hiding viruses, etc., into the blood. A strong and capable immune system should handle the rest.

Lower Intestines (caecum, colon): Use laxatives and enemas to help clear this region.

Biofilms: Gum turpentine and protease enzymes are among the few remedies that can break down biofilms.

Like you, I wonder if there is a single universal solution out there. The closest I have ever come to such a remedy in my own research is THC — the direct whole extract from the cannabis plant. Rick Simpson from Nova Scotia is the guru here. This plant extract has reportedly been used to support conditions ranging from arthritis, diabetes, heart disease, and MS to many forms of cancer, and no one knows why and no one cares. THC is probably one of the most powerful and safe anti-inflammatory and painkilling substances in existence today. I have also read that THC helps adjust body homeostasis back to healthy levels — I know of no single natural remedy that can do this. Rick Simpson comes from a simple farming community in Nova Scotia. These people are not in the habit of lying.

Unfortunately, THC or medicinal cannabis is against the law and unobtainable — unless, of course, you are lucky enough to live in Denver, Colorado...


Viral Link to Autoimmunity
Posted by Mike62 (Denver, CO) on 04/09/2014

Bill: Vertebrates have survived 5 mass extinctions and thrived in between because they have a communication system that encourages the tissues to cooperate with each other. 2mg/day cannabinoids, raw or cooked, activate the system. I buy one ounce cherry flavored 1500mg CBD oil from a company who makes theirs from the flowers of organic Canadian hemp. 750 days for $93. Black pepper and oregano have a special terpene that also activates the system. I am not sure of the dose.


Viral Link to Autoimmunity
Posted by Linda (Calif, Us) on 07/03/2015

I am so pleased to find this site! Great information/ideas shared here. About 4 years ago I was finally diagnosed with autoimmune and then helped by my DO. No thanks to the 6 MDs (you know the story). I had psoriatic tendonitis, psoriasis, pre diabetic, GI problems, sleep problems, urinary issues, mind fuzz and general fatigue. After eliminating foods, taking supplements and probiotics, I got noticeably better. My present (?) hurdle appears to be the systemic Candida infection which I am still working on that trips the arthritis. My next question was why? My father's family live long but not well, so part may just be genetics. My theory is that we have very good immune systems that are actually trying to protect us from invaders. Something trips our system, virus, chemicals, foods, vaccines. But by trying to do this we end up attacking ourselves with resultant auto-immune symptoms. However, I chanced upon info that many of us got polio vaccines in the late 1950s-early 1960s contaminated with a retro virus called Simian Virus 40 that was not sterilized out. (Look up Merck/polio/SV40) The CDC finally admitted it but says it is harmless. Research also shows that many people who never got the vaccine carry parts of SV40. They believe it was spread (by urine) and would indirectly protect the non-vaccinated from polio. Traces of this virus is showing up in a variety of cancers:certain brain, lung, bone, non-hodgkins lymphoma and they are researching others. There is even research on making a SV40 vaccine, gee wonder why. I take no meds, but do avoid wheat, sugars, and those listed on my food allergy panel. I take a wide variety of sups and can tell when I am neglecting myself. Be strong and know we are the tip of the epidemic, at least we are sharing and trying to help ourselves even though "established practitioners" want to feed us pharmaceuticals and make us feel it is our fault.


Viral Link to Autoimmunity
Posted by Marsh57 (Colorado) on 08/15/2018

Thanks Mama. Just received word an hour ago that the pediatrician and allergist want to send him to Children's Hospital for tests (to rule out rare disease). He started stuttering a couple weeks ago. Can there be anything else? My sister has European friend - her grandson has many of the same symptoms but much, much worse. A mom's support group abroad believe the Apraxia s ymptoms are is caused by Pitocin (induces labor). It supposedly causes postpartum depression too, which his mother seems to have had (after both kids) and still not the same. Heavens... so incredibly overwhelming, frightening and heart breaking.


Supplements
Posted by Rebecca (Mn) on 07/10/2018

Superb post.. thank you.

Rebecca


Supplements
Posted by Frances (Cabarlah, Australia) on 06/30/2016

Further to Mike's comment: two months ago I consulted a naturopath (the 3rd) after 2 GP's and 2 dermatologists for the GA. This naturapath told me that GA is autoimmune and that 80% of all autoimmune disease is due to leaky gut. I am also hypothyroid. So, after bowel cleanse and eliminating all gluten, & rice, corn, dairy, sugar, I am taking a probiotic as well as a powdered drink to heal the digestive tract. It may be a slow process, but I haven't been well for 50 years.


LDN and Medicinal Mushrooms
Posted by Rsw (Oh) on 02/18/2016

Hi Karen,

The company that was used by the person with MS for the Lion's Mane is here:

http://mushroommatrix.com/store/mi/nrg-matrix-ingredients

This product is offered on many other health store sites as well as this one. Best wishes.


Dysautonomia Remedies
Posted by Leya (Slc, Ut) on 06/27/2013

Hi, I have been diagnosed with Dysautonomia (I suppose not officially, since it was an alternative doctor who diagnosed me). I have been suffering from a variety of symptoms, from profuse excessive sweating (hands, feet and underarms), facial flushing and inability to regulate temperature, to feeling weak, fatigued and highly sensitive to any sort of stressor-- Even something like having to speak to someone at the grocery store can cause all sorts of symptoms. I live in fear every day that what I eat in the morning will exacerbate my symptoms at night when I want to leave the house. This means I have an almost perfect diet-- lots of fruits and vegetables, a few whole grains, no sugar, no dairy or gluten (because of allergies), no instant yeast, and plenty of legumes and beans. I can barely exercise, I can't go out in the sun, and I have a plethora of allergies because when the autonomic nervous system is dysfunctioning the body can't digest, assimilate or have a good immune response to certain allergens.

So, what I'd like to ask is that you add a section having to do with Dysautonomia. I haven't been able to find a medical alternative place of discussion to find out what will help this.

A few things I've found that have helped with Dysautonomia for me are brain exercises (I sweat more on my right side, so doing left brain exercises like sodoku have helped a great deal), a good diet, stretching, aerobic exercise and meditation/visualization.


Pemphigus Foliaceus Remedies
Posted by Jan (Busselton, Western Australia) on 02/13/2013

Pemphigus Foliaceus: Can anyone with this autoimmune disease share their experience with drugs and/or alternative remedies - success or otherwise? It seems to be such a rare disease that anecdotal information is hard to find.

Pemphigus Foliaceus Remedies
Posted by Melissa (Medford, Oregon) on 05/23/2016

My mom, who was diagnosed with the condition in June of 2015, is working with a doctor who's prescribing low-dose naltrexone while weaning her off of the prednisone she was place on during her hospital stay.

She takes 4 mgs at bedtime daily. I read that she has to take it between the hours of 9:00 PM and 3 AM (it works in conjunction with serotonin), but she hasn't been doing that as she often gets to bed around 2:00 AM. We're working on her getting to bed earlier as she hasn't been noticing any changes with it controlling pustules and itching. Timing is everything, I guess.

It's a S-L-O-W acting drug as we're told it could take a long time before it finally works.

Her doctor said she's working with another patient who is taking low-dose naltrexone, and it's taken 4 years for it to finally calm her patient's immune system down.

A lot of doctors don't like prescribing it, because they see it as only being implicated for substance abuse patients withdrawing from the effects of alcohol. As a result, most insurance co.'s won't cover it because it's not FDA approved.

However, there have been studies done that show its effectiveness in patients with pemphigus foliaceus. I'd recommend searching for "naltrexone and autoimmune diseases" or "pemphigus foliaceus" in Google to find the specific studies. They're out there!

I hope this helps and good luck!


Gmo Food
Posted by Linda (San Francisco, Ca, Usa) on 10/18/2012

Dear EC Folks, The information in this movie could explain many Leaky Gut / High CRP test results, please watch and forward as you see fit.

Please forward before this one gets pulled out of availability. The *entire movie* "Genetic Roulette" is at this link, free for the watching... Right now. It starts and stops a little so you may have to re-start it a few times (you can move the cursor up to where you were) but my understanding is it's also on Youtube.. Right now.

Anyone who has an autoimmune condition or deals with autism in any form, or who seeks to understand the issues with GMO foods should watch this ASAP.

http://geneticroulettemovie.com/

Its beyond time to wake up.

Namaste, Linda
PS: I have found what may be a better link, also to the entire movie, on Youtube. Here it is: http://www.youtube.com/watch?v=wnlTYFKBg18

Guillain Barre Syndrome
Posted by Tea (Keystone Heights, Fl) on 03/20/2012

I too had GBS after giving birth to my second son. It was an immune response due to a bad cold or flu I had in my 6 month. I was giving high doses of steroids and made a slow come back, it took about 2 years before I could run again (it effected my lower extremities hard). Then 20 years later almost to the date I came down with GBS again after the family had a weekend case of stomach flu. This time I took the IVIG and it reversed it immediately. I had nerve test taken and have 60% nerve damage all over my body. I think this might be what is wrong with your face muscles. My Doctor told me the nerve damage is permanent but I have with a whole food plant based diet and vitamins that support the nervous system gotten better but it has taken me 5 years this time to get back to as good as I think it will get.


General Feedback
Posted by Carrissa (Wisconsin, US) on 10/08/2014

That's exactly what birth control does. It makes the body think it's pregnant and lowers immune function. That's why so many women get autoimmune diseases.


Dietary Changes
Posted by Carla (Easton, Pa) on 05/22/2011

Dear Trudy,

This information that you have provided will truly be helpful to me. May I ask what ACV Stands for. Also, would it be possible for you to share some of you household and body cleansing mixtures please? Your mentioned homemade soap. I m so interested. This illness is so new to me. I sm so glad that I stumbled across you message. Have a great day and I look forward to the news that you have been healed. I believe that you are on your way. I look forward to that same.


Dietary Changes
Posted by Had (White River Junction, Vermont) on 03/08/2012

If this would help, drink RAW milk, what makes milk so bad is the paster/homig.--It kills the milk, so all the benificial bacteria etc... Becomes toxic. Also, look on Natural News. Com, the commercial milk industry is gross, beyond belief. Indepentant testing of the milk turned up, blood, pus, fecal matter, toxins, pharmacuticals, hormones and much more in the milk from the grocery store. So get on real Raw milk from a farm that goes organically. And if you eat any other type of dairy(yogurt, cheese etc) again, go RAW only, you will all of a sudden NOT react to milk and your digestion will also improve as well as your immune system. I am all for the coconut milk/oils, as I use/like these as well. For supplimentation you may want to look as Serrapeptase, that is a digestive emzyme from silk worms that eats inflammation, dead tissue, scar tissue, etc.... (www.serrapaptase.info) So if you stop eating what makes you sick, and this enzyme clears out the damage so your body can heal. You also mentioned wheat free, a good book on why is 'Wheat Belly', I don't take everything the man writes as gold (he put in use of splenda, ??? and using a microwave to cook, ??? I know! ) but, it gives you a through heads up on what to avoid, the badness of 'Gluten Free' foods and listing of what is great to eat all the time, occationally, and don't eat it. I hope this helps, Good Health to you.


High Intracellular Calcium Levels for Myosititis
Posted by Barry M. (Australia) on 03/08/2020
★★★★★

I don't know whether you will be interested in this but I was able to work with a fellow myositis sufferer and his wife in working out how the disease operates. The medical community is focused on the autoimmune reaction however we believe that this is secondary to the real issue. The fellow sufferer has multiple RYR gene defects leading to significantly raised intracellular calcium levels. It took ages but I correlated this with the ACTN3 XX gene variant which responds to high intracellular calcium levels by forcing creatinine kinase from muscle cells. There is much more to this picture however we believe that these are the most significant points.

If you want to know more about our research feel free to contact me though I already have it posted on an obscure natural treatment thread on the myositis TMA forum.

High Intracellular Calcium Levels for Myosititis
Posted by Claudia (Sheboygan, Wisconsin ) on 04/23/2020

Barry, I have been diagnosed with scleroderma/myositis within the last several months. My hands and fingers are very are very clenched, making it very difficult to do any daily activities. My rheumatologist has me on prednisone temporarily and CellCept to start easing symptoms. I can hardly walk across the room without losing my breath and straightening arms legs shoulders neck etc. is very difficult because of The myositis. I had not heard anything about a genetic component to any of this and would therefore be interested in hearing what you have to say about it. I have also looked into various kinds of stem cell therapy, but it's difficult to find any medical institution that wants to do anything with stem cells.

Thank you. Claudia from Sheboygan, Wisconsin


High Intracellular Calcium Levels for Myosititis
Posted by ML (Massachusetts) on 04/11/2021

I would love to find out more for a family member, how can I contact you?


High Intracellular Calcium Levels for Myosititis
Posted by Anna Russell (Sydney ) on 05/15/2021

Hi Barry, I was wondering if I can contact you and talk to you about natural remedies for myositis?


High Intracellular Calcium Levels for Myosititis
Posted by Gil (Greater Pittsburgh, PA) on 05/17/2021

Hi Barry,

I couldn't find your post on any TMA forum. I am very much interested in your research.

In February of this year, I was hit with a viral infection that started out as a sore throat quickly followed by terribly achy legs for 3 weeks. I tested negative for COVID, but I don't know the reliability of that test. I have had mild leg muscle aches almost every day since that time. But worse than that is I have a super easy tendency to upper extremity muscle strain, tendon and ligament tears where I'll injure myself just lifting/washing pots and pans or doing anything repetitively like rolling dough.

I plan to have some bloodwork done, including a creatine kinase level and am considering getting a muscle biopsy done. Hopefully, starting today, I will work on lowering the inflammatory foods in my diet. I already take fish oil, cod liver oil and turmeric as well as a multimineral, B complex, and vitamins C, D and E amongst other supplements.

Your recommendations would be super appreciated.


High Intracellular Calcium Levels for Myosititis
Posted by Jan K ( Florida) on 05/05/2022

Your information was very helpful. My husband has IBM, became sick after a bout with pneumonia from cleaning out a moldy freezer. Has had it for 10 years with severe muscle wasting. Would love to be able to contact you about your research.


Borax and Liposomal Glutathione
Posted by Uncertain from LA (LA) on 11/04/2019
★★★★☆

Borax/liver enzymes/autoimmune/causes/remedies/blood oxygen/liposomal glutathione -

Recently I started taking liposomal glutathione and have been feeling much better. I recommend this. - I have mild autoimmune issues. I have been taking the “maintenance dose” of borax, only one to two teaspoons of the concentrate a day. It has given me some results I am happy about.

I only take OTC supplements at this point. My doctor has not prescribed me any meds at this point. - Recently my “alt” test is slightly high, 36. I have stopped the borax and the curcumin I have been taking wondering if they are part of the problem. Could or should I switch to boron or fructoborate tablets? I have taken curcumin but not much, only when I felt some pain or neuropathy. - I am having stomach issues and wondered if my stomach issues were also related to the borax or curcumin?

If so, what do you do about it? - There is blue coloring under my fingernails near the lunula. I understand this is sign of low blood oxygen. Could this raise enzymes? Would sleeping with oxygen help me with low blood oxygen? - Autoimmune issues seem to have multiple causes. They could be from fungus, bacteria, viruses or triggered by something like a drug. Borax works against fungus. If you cannot take borax what would be the next best options to take? What would be the best thing to fight viruses and bacteria? Were my physician to give me prescription drugs can you take the boron or borax with them? Is it possible to treat the autoimmune antibodies? I thought about a cleanse but I don't want to damage my organs. What would be a gentle option that works even if it takes longer?

Borax and Liposomal Glutathione
Posted by Anon (Anon) on 11/07/2019

Hi! :D

Your condition is a bit vague, but I suspect a general recommendation could do you a world of good:

Aloe vera Turmeric fresh raw Bok choy Cabbage Fennel Pineapple Beets Ginger fresh raw Lemon juice fresh Colloidal silver Activated charcoal Psyllium husk Oxygenated magnesium bowel cleanser Diatomaceous earth *food grade* Ashwaganda Ginseng Goldenseal Green tea Look into these. I would start with the aloe, turmeric, bok choy, and ginger. Make a smoothie or juice from them for example. It should be quite soothing.

Consider taking vitamin e in generous doses, too. Maybe get some sun. You might want to avoid acetaminophen and nsaids for a while. https://articles.mercola.com/sites/articles/archive/2014/03/26/acetaminophen-overdose.aspx And consider going grainfree and organic to avoid noxious chemicals.


Borax
Posted by Ashley (Alberta) on 07/07/2023

Hey, how is this going so far?? My friend has an autoimmune disease and I really want her to try it but there isn't much research done so I don't want to cause more harm


Borax
Posted by Jacqueline (El Paso TX) on 01/04/2024 24 posts

Hi Lee, I appreciate your sharing and am ever to try it, but I want to get it right. Would you please elaborate your remedy especially regarding the magnesium part: " I started the oral Borax at the “maintenance" dose (5.5 grams (1.25 tsp) in a litre of water, then 1 tsp of the solution twice a day with magnesium)...." What kind of magnesium are you using and how many milligrams do you take,? Do you mix it into the tsp solution?... Do I understand correctly that you take a tsp from that same litre of water with borax and add this magnesium in powder form maybe? (I'm assuming a powder form because 1 tsp seems like such a small amount to swallow a capsule or tablet).


Turmeric
Posted by Tom (Los Angeles, California) on 11/14/2016

Hi,

This earthclinic.com has been a wonderful site for me and am a regular reader since last 10 years. I am sure all your feedback and comments have helped tremendous people with their conditions including me. I am a big fan of this website.

I wanted to know if anyone can share the benefits of using Turmeric for Auto Immune Diseases like Crohn's, IBD or Lupus. I have read on earth clinic and multiple other sides the benefits of turmeric.

I have been giving turmeric to my 10 year old DD who has been diagnosed with some Auto Immune Disease but doctors are not 100% sure whether it is Crohn's, Lupus, IBD or Arthritis. I take 1 teaspoon of turmeric powder and put some black pepper in it and feed her with water. She gulps it down easily but haven't noticed any benefit in her health so far. On the request of doctor we have been doing blood test every 2 weeks but her

Her diet has been pretty healthy and mostly vegetarian food. She is not eating any sugar, no wheat, no soy, no milk and no potatoes . She eats lot of homemade yogurt, all vegetables, fruits, rice and some pulses.

She has been loosing weight and we are very much concerned. I would really appreciate if someone can throw more light on turmeric and how to use it and has it benefitted someone with these conditions. She is on prescribed medications since last 6 months but we haven't seen much progress in her. Overall she does not have any issues related to Crohns or Lupus or IBD or Arthritis . She is not gaining any weight or height.

I would really appreciate for your help and reply. Thank you.

Please help.

Turmeric
Posted by Tom (Los Angeles) on 11/15/2016

Thanks Mmsg. I will add good fats to her diet.


Scleroderma
Posted by Becky (Ca) on 03/12/2018 31 posts

Please update us on the Ultraviolet Blood Irradiation for Scleroderma.


Autoimmune Paleo Protocol
Posted by Joan Hargens (Rosemount, Mn) on 09/06/2017

What is with the rashes? I have had them show up sporatically on feet and legs. No dr whether functional or medical could tell me the cause. I have Hashimotos. Raynaurds, and Sjogrens. Just found out that I have Candida and SIBO. 7 years on the journey.


Guillain Barre Syndrome
Posted by Janet (Raton, Nm) on 05/26/2014

I have a friend whose sister has Guillain-Barre syndrome. The most info I can find is Julie Liu, who is selling a book. Are there anymore websites that cover this topic in a wholistic manner?

EC: Hi Janet, There are a few comments on our autoimmune page here: https://www.earthclinic.com/cures/autoimmune-disease-natural-treatment.html#GBS

Viral Link to Autoimmunity
Posted by Mama To Many (Tennessee, Usa) on 02/04/2014

Dear Dave,

I have often considered your theory on the link between autoimmune diseases and viruses. I have seen you helping many make these connections in specific situations. And I think I am seeing patterns in my own family. Looking back, I realized that my daughter suddenly had symptoms of Juvenile Rheumatoid Arthritis right after having Hand Foot and Mouth Disease. This same child suddenly developed asthma right on the heels of mono. She is doing great, by the way and symptom free of both at this time. I have learned from you the importance of treating suspected viruses for a long time.

Anyway, this leads me to my question. Do you have any thoughts on why autoimmune diseases seem to have exploded in frequency? If there is a viral link, which seems quite plausible, was my grandparent's generation just much healthier and able to fight off viruses, or did they suffer the same way and the problems were undiagnosed?

I appreciate your thoughts.

~Mama to Many~

Viral Link to Autoimmunity
Posted by Mmsg (Somewhere, Europe) on 02/05/2014

Mama to Many, what have you used as your antiviral?


Viral Link to Autoimmunity
Posted by Dave (Fountain Inn, Sc) on 02/06/2014

Hello Mama to Many,

So very sorry for taking so long in reply; I've been consumed with a trial (I mean court) that took me away for a few days.

I've wondered the very question you asked; First you make the point that I observe often...the relation to viral infection and auto immune disease. And what is going on as there seems to be more frequency in virus today than at other times.

Here is my theory...multi part.

1. Food today has less nutritive value and hence the body cannot fight off viruses as easily as years ago.

2. Has genetically modified foods driven the rate of viral mutation?

3. Has reporting increased the information of how much infection is going on...which years ago might not have been as well reported so there is the appearance of "more" virus when in fact, the rate may be close to the same. After all, one of the most deadly infections in history was in 1918 with the killer ... airborne .... flue virus.

4. Have vaccines increase the virus influx?

5. Has an unknown factor increased the mutation rate of viruses?

So these are just a few observations but I am more and more convinced that a predatory set up virus prepares the body for possible triggering of disease of every type.

This is why for fifteen years I take a swallow of colloidal silver to rid my body of "at large" viruses...4 or 5 days a week and I make sure to let the CS swish in my mouth for ten or fifteen seconds.

It is so good to hear from you Ms. Mary. You are such an inspiration to me so again, forgive my delay in response.

Your student,

Dave


Viral Link to Autoimmunity
Posted by Prioris (Fl, Usa) on 02/06/2014

One more idea regarding JRA. I'd throw the dice on a Radionics practitioner who is medical intuitive especially if I thought the cause was possible chemically related. You may not have to travel to their location either. I'd call them up to get more information. Radionics is a scientifically proven field. Worth a shot. This could find the underlying cause. You can report back on your experience also.

Here are some examples I googled:

http://www.informationenergymedicine-association.com/#usa

http://www.donnastarita.com/energy.html


Viral Link to Autoimmunity
Posted by Mmsg (Somewhere, Europe) on 02/07/2014

Thanks Mama to Many. So it's a multi-faceted approach. Generally, I see you recommending many different ideas, which probably works best!


Viral Link to Autoimmunity
Posted by Mmsg (Somewhere, Europe) on 02/07/2014

Thanks Mama to Many. So it's a multi-faceted approach. Generally, I see you recommending many different ideas, which probably works best!


Viral Link to Autoimmunity
Posted by Prioris (Fl, Usa) on 02/07/2014

Also look into Radionic's practitioner who is a medical intuitive. If you read into history of Radionic's, there are actual scientific studies done to validate it. It may be able to pinpoint some environmental factor that is causing it. From what I understand, diagnosis can be done remotely so no travel. It's something to consider.


Viral Link to Autoimmunity
Posted by Mama To Many (Tennessee, Usa) on 02/07/2014

Dear Prioris,

Thanks for the ideas and feedback! I have not tired the things you suggest. My daughter has been symptom free of JRA for about a year and a half so we didn't try anything else. But it is encouraging to know how many options there are for healing in the event of a flare up.

Seeing you mention vaccines and the Amish within two sentences made me remember something I just read in, "Backyard Pharmacy." Rachel Weaver, the author, mentions that in testing some Amish (who have not been vaccinated) they found some to have an immunity to tetanus, likely just from their farm work. I found that fascinating!

~Mama to Many~


Viral Link to Autoimmunity
Posted by Mama To Many (Tennessee, Usa) on 02/07/2014

Dear Dave,

Thanks so much for taking time to write out your thoughts! (And no need to apologize for "a delay in response." - the cyberworld has trained us to expect replies and answers way too fast! )

Anyway, your multi-part theory does make sense. It is helpful to me as I am pondering and studying sickness and healing and such.

Reading your post has made me think of another question, if you don't mind me troubling you with it... What about bacteria? If hidden viruses are the cause of autoimmune problems, might hidden bacteria also be? (Or perhaps that is what you have implied all along.) It seems I hear of people diagnosed with all sorts of problems (often auto-immune) and it turns out they have Lyme Disease. I suppose that when using colloidal silver it would attack either a virus or bacteria, perhaps it wouldn't matter which one was lurking in the body causing trouble if the solution were the same.

Thanks for helping me to connect the dots here! (And take your time in responding! )

~Mama to Many~


Viral Link to Autoimmunity
Posted by Mama To Many (Tennessee, Usa) on 02/08/2014

Dear Dave,

Thanks so much for your response. It is really helping with the "big picture." What you are saying makes a lot of sense! Thanks again for taking time to share your expertise!

Dear Timh,

It is always helpful to hear other's experiences! Thanks so much for the input. I think I am going to have to re-evaluate my perspective on sweat. I really hate to sweat, but can see its use.

You all have a super day!

~Mama to Many~


Viral Link to Autoimmunity
Posted by Debbie (New York ) on 07/18/2024

Hello … I'm replying to ur post because I also was just diagnosed with RNG (tissue disease) I have not had any of the problems that u have incurred.. my heart goes out to u and hope u find some remedies that will take ur pain away ..


Viral Link to Autoimmunity
Posted by Rsw (Uniontown, Oh) on 04/08/2014

Interesting observation from both of you. I have a couple of autoimmune diseases (Lichen Planus and Sicca Syndrome) and hypothyroidism, at least one I believe was caused by statin drugs. However I had a serious case of mono in college and also somehow got Severe Hep A in the '80's, for which I was hospitalized and told it was the highest liver numbers that anyone in the MD group had ever seen, and it could go either way because it was out of their hands and my blood was not clotting. Fortunately, by the grace of God, no other member of my family caught it and I recovered. It was thought to come from eating out somewhere where with improperly managed food or staff, but again, no one else in my family caught it and we always went out together. The autoimmunes and thyroid didn't start until about ten years go, but I never thought of any relationship between the two. Thanks for some food for thought.


Viral Link to Autoimmunity
Posted by Dave (Fountain Inn, Sc) on 04/08/2014

To Rsw...Hello,

Re; the autoimmune diseases;

Thank you for the comments of a possible viral connect to the multiple problems you mention. Also remember this; you mention statin drugs might also cause problems X, or y but if there exists a systemic viral infection then even if the link to the disease is not direct (think of shingles to chicken pox)...if the viral infection is system wide, then the immune system can be so impacted such that one can't fight off problems that arise because of an impaired immune system....SO...even if the virus is not THE cause, the damage of persistent infection can impair the immune system and the weakened system just can't fight off the new problem. I'm referring now to statin drug side effects. Just a theory...an extension of the "viral cause" theory.

But it all means this: If correct, then the focus of much of "our" thinking (the alternative community) should be always on the alert to the virus/fungus instigator. And thus, finding anti virals and fungals. And my thinking is not stuck on Colloidal Silver but I often speak of Echinacea and we should keep open minds on MMS; H2O2 and anything that can rid the body of infectious "bugs."


Viral Link to Autoimmunity
Posted by Timh (Ky, Usa) on 04/09/2014 2048 posts

*correction* Bob Beck


Viral Link to Autoimmunity
Posted by Dave (Fountain Inn, Sc) on 04/09/2014

Greetings Bill from the Philippines;

Re you VERY enlightening post...Lots of insights on "vulnerable locations" in your post....where the little devils hide out and where is their "base of operations."

The Eustachian Tube is a key...often a stubborn upper infection can be traced there and in fact regular medicine recognized the Eustachian Tube as a key source for "secondary infections" which are not killed by antibiotics. Why? Not much blood gets there and so the bacteria (and viruses) hide out there only to re-infect the system again.

Suppose we could devise a "super" killer...a combo of CS, MMS, DMSO (there are a lot of good broad based anti virals that could go in a mix.

Question about that and you mention the most insidious of them all...that Walter Last calls (and you mentioned) the nano bacteria...the "pleomorphic microbes" which may cause ... who knows what, since they morph into something new. Probably they are susceptible to assault when they are in the changing mode.

Susceptible like coated viruses...susceptible when they are multiplying. That means the virus killer / microbe killer etc must be in a constant "flush" mode for many months. One dose won't do it...of anything.

Not for the killers we're talking about.

But back to your "master list" of targets for the invaders...you are SO right in the likely sites. I think of this as like a bee hive...I mean by way of analogy. The microbes "localize" in a home...an organ or "place" and multiply from there in explosive moments of opportunity...perhaps when the immune system is impaired; or even when their victim is depressed. Then they fire out their offspring to invade elsewhere in the body; when they "sense" immune weakness.

And there you have it...attacking in a myriad set of methods. The most vulnerable you listed.

I'm in search mode for the "super" cleanse...a combo? As much of a proponent of CS as I am, I think it has its weaknesses. Which is why I often mention other anti microbes like Echinacea. Oh, for a lab and some funding.


Viral Link to Autoimmunity
Posted by Dave (Fountain Inn, Sc) on 04/09/2014

Hello again Bill,

My "microbe" killing regimen is not as extensive as yours. I keep drinking CS daily (five days a week at least) and occasional Echinacea in water. I do use CS in sinus and ears. In sinus nearly every day as I think just as you; the sinus is where so much microbe action takes place.

On the THC; I watched a Rick Simpson report about a year ago. It was fascinating.

Here is something interesting: I watched on "LINK" TV an Ayurveda guru who mixed a baked substance that he added to the POISON mercury. And then orally consumed the combination. Yes, he knew mercury would poison, but he pointed out that mercury was the most effective microbe killer and that the "addition" kept the mercury from staying in the system, and like CS, would just be washed out after a few days. Ever since I saw that (LINK repeated the show on Indian Ayurveda three times, and I watched all three times)...ever since I saw that I knew that amazing substances were available if...IF...we only had access to the right methods. So my point is that the search for new mechanisms is one that should be seen as wide open. That is why I'm willing to consider MMS, for instance.

But your use of Turpentine is something I need to give more consideration to. And the Boron is also a new addition after reading about it on EC. H202 is something that I use occasionally.

So your approach is more eclectic than mine. Likely better as you are painting with a broader brush.


Viral Link to Autoimmunity
Posted by Timh (Ky, Usa) on 04/10/2014 2048 posts

Dave: Thanks for your concern and I am making slow progress from near dead for 2 yrs. Lately I only post here on my "good days", but I always find enough energy and focus to read the post.

I will second your observation on Beck, but what I noticed was his general stature and mobility. I would venture to guess Beck was, by birth, somewhat delicate.

Yes, the cardio system is definitely a victim of time and stress. I take several measures of prevention in this area as my heart has been major stressed especially by Hypertension and Ascaris hyperinfestation. I still have occasional "bouts" but most times I am pain free.

I cook half-gallon batches of C.S. in about 1 hr time. It is only of late that I can actually notice improvements from C.S. as yrs past the toxicity was simply too severe.

On the MMS. If you are a fan of lemonade, you can simply add drops of Sodium Chlorite and presto, you have MMS. There is a slight taste of Chlorine but tolerable. As little as two drops daily will culminate in major improvements for the immune system. And if I might add, MMS is probably the best home remedy for Bee, Snake, Scorpion, and Spider bites & stings; a must item in the first-aid kit while in the bush or outback. I had a 6 drop dose tonight w/ a very little nausea. This is currently my max drop level.

I also take 1 dose each of Lipo C and Lipo Borax daily.


Viral Link to Autoimmunity
Posted by Dave (Fountin Inn, Sc) on 04/10/2014

Hello Timh:

About Ascaris

You mention being hit by the parasite, and I read that it hits the digestive enzymes especially. The "Ascaris carboxypeptidase inhibitor" (wow)... is part of the parasite's defense mechanism...so that means that the enzyme pepsin (and two others) would be deficient as the worm emits the "inhibitor" stopping the human digestive enzyme from working. I'm sure you could lecture to me about all this. And, I'm sure you've tried (lately my favorite digestive help) ... Papaya. Its enzyme, Papain, is very similar to Pepsin...or so I've read. So I wonder if consuming Papaya could help overcome the parasite's inhibitor action. Even if you are rid of the parasite, the action of the inhibitor may still be at work.

Let me know how you've dealt with the digestion issue. Thanks. I know you've gone through much agony. You are just hero for not giving up.


Viral Link to Autoimmunity
Posted by Timh (Ky, Usa) on 04/11/2014 2048 posts

Dave: I take a Digestive enzyme supplement w/ my main meal and eat Pineapple regularly. I think the enzyme inhibition you mentioned must be from mature Ascaris found in the digestive tract; but the most insidious problems arise from the eggs, larvae, and juveniles.

I will quote some of Hulda Clark's observation to help clarify.

"When you kill the Ascaris worms by zapping or herbal tincture, they are mortally wounded. They are dying, but the eggs inside them are not. They were sheltered. Within a day these trapped eggs begin to leave the dying worms. Soon hordes of eggs are dispersing in your body again. And in another 24 hrs they begin to hatch into larvae. {I believe this event is evidences by the heart pain which I have experienced}.

The eggs, even if unfertilized, may do more harm than the worms. Ascaris eggs bring three very important pathogens that spread throughout the body: Rhizobium leguminosarum, Mycobacterium avium/intracellulare, and the common cold virus Adinovirus. {I believe that most of the warm-blooded (wild) animals infected w/ Ascaris, eventually die of these infections}.

The primitive metabolism used by Ascaris (and other parasites) is called the Gloxylate cycle. The gloxylate cycle commanders our Krebs cycle.

Another thing that Ascaris does is destroy all the Vit-C in the organ by oxidizing it (removing the hydrogen atom)."


Viral Link to Autoimmunity
Posted by Johanneinsc (Sumter, Sc) on 04/11/2014

Thanks Dave for your response.. I have heard about CS before, just was unsure about it's safety. I am learning a lot on this thread! Thank you for your insight, I will be trying it very soon!


Viral Link to Autoimmunity
Posted by Jan (London, Ontario) on 04/13/2014

This thread has been very helpful. I have seen some success with the turps with my Oral Lichen Planus.

My ongoing struggle is shortness of breath.

I am on a no sugar diet and low carbs, and am Celiac.

I am thinking the virus must be in my blood and therefore affecting the lungs. Any thoughts?


Viral Link to Autoimmunity
Posted by Dave (Fountain Inn, Sc) on 04/13/2014

Hi Jan from London:

Re virus in lungs...

It is very likely in lungs. Here's a way to know: Breathe in DEEPLY and if you feel a "tickle" and you have to cough then you know it's there.

Get a nebulizer and use the CS in base. You'll want to breathe deeply from nebulizer for five minutes three times daily for a week or until you can do that deep breath test and not feel a tickle. I've seen others using H2O2 but haven't done so myself. I've seen others recommending DMSO in the mix but would do that only with very small amounts at a time. I am just not sure of the reaction in the lungs to DMSO...and I'm a BIG proponent of DMSO but won't recommend something I haven't tried.

Earth Clinic has a lot of posts about DMSO mixed with other liquids in a nebulizer.


Viral Link to Autoimmunity
Posted by Dave (Fountain Inn, Sc) on 04/15/2014

Jan from London, Canada; About your hunch the virus is in your blood and also lungs... I wrote you about how to attack it in lungs but failed to mention this: If it is systemic in you (in your blood as you put it) then you need to kill it system wide. I do that by drinking a quarter cup of colloidal silver twice daily for a full month or longer. And even up to six months if symptoms are evident. Otherwise, a virus can cause further problems even years later if allowed to lay dormant...think the shingles virus as an example.


Viral Link to Autoimmunity
Posted by Deborah (Nj) on 05/08/2015

Hi Dave, do you mix the Colloidal Silver with water or just drink 1/4 cup straight?


Viral Link to Autoimmunity
Posted by Dave (Fountain Inn, Sc) on 05/09/2015

Hi Deborah,

In answer to your question about how to drink CS...

I make my own and dilute to about 30 to 40 parts per million. I drink that as is, without more dilution.


Viral Link to Autoimmunity
Posted by Marsh57 (Denver) on 08/10/2018

Dear Mama, Bill, Timh and Other Healers, Our little boy who just turned 3 years old has been running a temperature & sore throat every month like clockwork for about a year. Last September he had 10 crowns because of cavities. His diet mainly consists of carbs, won't eat much else as textures seem to upset him. He has a few apraxia symptoms (adding omegas and probiotics have helped speech). A month ago his pediatrician ran blood tests - he has Mono and Immunoglobulin A is low. We're looking for natural remedies as I'm scared to death the doctors will soon want to pump him with prednisone and steroids. Any recommendations appreciated.


Supplements
Posted by Deb (Ohio) on 09/18/2013

I read with interest all the posts on autoimmune diseases and was greatly encouraged to see that others with autoimmune disorders are following what I have taken years to discover.. The paleo diet, dairy/gluten/free, no chemicals and pesticides and eating organic, etc. I have had H-Pylori twice and the leaky gut syndrome and am trying to rebuild the gut lining. I am wondering if anyone has more knowledge than I do as far as supplements go. I take Standard Process supplements and have been told that echinacea and other immune boosting supplements are vital but have read that taking those is bad for autoimmune sufferers by rheumatologists as it makes the disorders more active. I have Hashimoto's, RA and have now tested positive to Scleroderma, am a little nervous about taking echinacea, does anyone have any ideas? Boost or not boost the immune system?

Deb

Supplements
Posted by Mama To Many (Tennessee, Usa) on 09/18/2013

Hi Deb,

I will be looking forward to hearing what others say about whether or not to boost the immune system when you have autoimmune problems. I do not have an answer, but will share an anecdote.

I have ITP (idopathic thrombocytopenia) which means I have a low platelet count with no diagnosed cause. So, I think it is considered autoimmune. It generally does not cause me a problem unless I am pregnant and then the numbers fall and OB's get concerned and send me to specialists... But I have had 9 births and no complications with bleeding after (which is always the concern.) Anyway, a midwife told me long ago to avoid echinacea and garlic and such when pregnant because of concern of them lowering my platelets (by strengthening my immune system and fueling the autoimmune.) So, I have always avoided echinacea in prengnancy and garlic in the last trimester. Now, I love garlic and think it is really good for you. So, last pregnancy I just had all the garlic I wanted. So, when my platelets got checked when I was in labor, they were at an all time low for me (64k.) It wasn't terribly much lower than normal (usually in the 70s or low 80s) and I didn't have an bleeding complications, praise the Lord.

So, I am torn. It appears that immune boosting herbs were not helpful to my autoimmune condition and may have been harmful. But, I still use garlic and would use a lot if I needed the antibiotic or antiviral properties of it.

Wish I had a better answer and maybe someone else will!

~Mama to Many~


Supplements
Posted by Mama To Many (Tennessee, Usa) on 09/19/2013

Kt, thanks for the encouraging story of your progress towards health! I don't take extra calcium, though I do use Blackstrap Molasses. It is amazing how many hidden sources of trouble there are in our food. I keep learning and keep tweaking what we eat.... it really is a learning process.

Carleen, thanks for the great list!

~Mama to Many~


Supplements
Posted by KT (Usa) on 09/19/2013

Mama to Many, my comment about the calcium was directed to "Sa" because of her post and my response to her about "stones". You then posted that possibility.

Anyway, the MRI's on my brain reveal two areas of "signal abnormality" and I wanted to explain this is why I am so piecemeal. I try to be thorough when I post but I always leave important things out. I cannot always sit here for extended lengths of time.

Please be aware that the vitamin/supplement capsules contain 11 to 13 mg of MSG. Even after a vaginal breech delivery twenty-nine years ago I never had a problem with prolapse until I ingested the gelatin capsules. Once I learned this and stopped the prolapse subsided. The problem is our genetically modified food. Once in awhile I would get bound up again, more so after I had eaten beef. Then I learned the cattle have been eating GMO grasses and grain and it is getting worse. I was a big red-meat eater until this. I started eating more chicken but they are eating this too so I started to experience incontinence. I can only eat two or three ounces at a time but I add lots of yellow onion and garlic.

I screened one chicken farm about how they fed their chickens, what they fed them and if they were outside because the eggs were abnormally huge. Long story short... I hard-boiled one egg and it gave me terrible indigestion. I called them to see if they were feeding them any soy and I was informed that they get their specially blended grain from the Amish and it contained soy.

I do not always maintain a good connection here so if you ask something and I don't get back to you, it's because I don't have a connection. Verizon sent me a new modem but it has to be "configured" and cannot be done from this computer. It does not run Windows or Mac.


Supplements
Posted by Dave (Fountain Inn, Sc) on 09/20/2013

Hello Mama to Many: Concerning your ITP condition, there is a clear link to viral infection on the short lived ITP. That fact is on numerous sites about ITP, eg Mayo Clinic. The temporary ITP are defined as lasting six months or less. And the chronic are longer than six months. Those that are six months and longer (chronic) are not spoken of in terms of being caused by a virus.

Why not? There is no reason given for the arbitrary distinction.

This is my take on it: All ITP may be initiated by viral infection... a special virus that impacts the platlets and ultimately damage bone marrow and spleen.

So you are on the right track in trying to attack the problem with the anti viral echinacea but echinacea might have some other effects as you point out.

So....if I had ITP I'd consider trying colloidal silver. You can test effectiveness by the platelete count which you are already doing. Remember, that a long term condition with viruses might mean the virus could be killed with CS but the damage could be done and it might take the body years to rebuild damaged organs...spleen/ bone marrow. Long term use of CS is called for if indeed chronic ITP is virally caused, but you can monitor the count as I said above as you consume the CS. I've written a lot about CS on Earth Clinic and presume you know the simple protocal.

Best to you and your family.

Dave


Supplements
Posted by KT (Usa) on 09/20/2013

Hi Mama, it's me again. I thought I had posted that I do take BSM. I prefer to take it in warm milk but because of what dairy cows are being fed, especially in winter to keep producing milk, I had to stop getting whole, unpasteurized milk to 2%. Sometimes I dilute that with a little water. I limit my intake of butter (without salt) and cheese. I only get the monterey jack now because I read that aged cheese had been linked to arthritis. We used to eat a lot of sharp and extra sharp but when we stopped so did our "arthritis". Wheat bread is another evil that had been known to cause schizo- behavior in the 50's and seemed to contribute to more joint pain. Now, the moodiness is labeled bipolar. It just sounds better. It's hard to label any one thing as causing any ailment but if you pay attention to the small amounts combined from different sources it really does become clear.

At my age, I should be displaying acceptable age-related ailments. If I watch what I eat and how I eat it, I don't. I could give you more proof of how I learned what I have learned but because of the complications from surgeries, I cannot be idle for long periods. I am full of adhesions.

Both of my babies were breech. One was caesarean. The way I was cut and sewn up for the other one has killed the nerve cells that are needed to prompt evacuation. Stool collects and I have to make periodic special efforts to evacuate so it does not sit and ferment. My grandmother died from colon cancer at a younger age than I am. I have learned that I must take the BSM first in the AM. I also OP with CO. Look up intussusception. With all due respect, physicians are not acknowledging this. "Constipation" is an acceptable ailment. I was given a diagnosis of IBS many years ago but further research has provided this understanding (intussusception) and I'm learning how to deal with it. I know I am a candidate for a colostomy but I do not want to spend the rest of my life like that. I use sea salt that is labeled "Real" from the health food store.


Supplements
Posted by Mama To Many (Tennessee, Usa) on 09/20/2013

Hi Dave,

Thanks for taking time to share this information! I have never considered a viral link for my ITP, but what you say does sound reasonable. I had looked up natural treatment for ITP years ago and found nothing. I have recently reread the ITP page here on EC, and am encouraged that there are things to try to heal it. (I had previously considered it to be something you just live with. )

Last spring I had been taking Ashwaganda to see if it would help my ITP (had heard anecdotally that it might. ) My platelet reading was 111k, which is really good for me. Normal is considered 150K-400K. (Though, when I was first diagnosed, normal began at 125K. So, if I ever get there, I may call it cured! ) Ashwaganda does have anti-viral properties. (But at the time, I had never considered a viral link. ) Of course, it is hard to know if other things are affecting my numbers. I have been consuming Extra Virgin Coconut Oil for a while now, too, and it is a great anti-viral, so that may be helping.

Thanks again for sharing this information and giving me a possible solution to my ITP!

~Mama to Many~


Supplements
Posted by KT (Usa) on 09/21/2013

Mama, in a nutshell, what I was trying to say was that there is no "one-size-fits-all" remedy. Because sources of hidden MSG have been around for so long and because it crosses the placenta, it was reported (in 1983) to cause "endocrine dysfunction". Why in the world this was not emphasized indicates how much power the food industry has. Should there be any question about what contributes to the increase of obesity or road rage? Being genetically modified to resist drought and disease makes GMO's harder to assimilate. MSG can be shown to contribute to anything from asthma to vision problems. Never in the history of the world has so much food become available and no one is concerned about how some things should not be ingested together. An example is milk and cheese. Certain neurotransmitters are in conflict with each other and this affects moods. I don't know if I've been a member of EC long enough to provide the name of a book written by a board-certified neurosurgeon that covers this. We are commanded to "test everything, hold on to the good and avoid evil". This MD also provided information that I embraced but it contributed to my diagnosis of PVC (premature ventricular contractions). Once I stopped taking what was causing it, they stopped. I explained this in another post but some are still promoting the culprit. Maybe it works temporarily for them but I am small enough to be fine-tuned into what affects me. Sometimes erosion isn't detected until too late to do anything about it.

We have grown up being desensitized to what is happening to our food and it is making many of us sick. People are looking for cures or quick fixes instead of eliminating the possible cause and letting our body develop the immunity it needs. I have always felt antibacterial anything was not only killing the bad bacteria but the good that fights the bad. Then I learned of a study that supported this. I think we have become a germphobic society and more harm is being done than is recognized. I truly hope you find an answer to what you are looking for. 1 Peter 1:6-9


LDN and Medicinal Mushrooms
Posted by Karen (Usa) on 02/18/2016

What company makes those mushrooms? All your post says is M----- Mushrooms. Thank you.


Pemphigus Foliaceus Remedies
Posted by Jan (Busselton, Western Australia) on 06/30/2017

I weaned myself off prednisolone a few years ago, but do take Dapsone which I have found has the least "nasties" amongst all the other drugs available for this condition. Dapsone only keeps my pf "under control" (I still have lesions but not as bad as they could be) and I reckon that with all the other drugs available with horrible side effects that it's a case of the cure being worse than the disease! So far, after quite a few years on Dapsone I'm not experiencing any side effects at all. I am going to do a trial run of Apple Cider Vinegar on a couple of lesions to see if it cleans them up.


Gmo Food
Posted by Andreea (Grimsby, On< Canada) on 10/19/2012

Thank you. I've watched it - it is very informative and powerfull. Everyone should watch, learn and take action. I found this info in regards to GMO products in Canadian grocery stores

http://gmoguide.greenpeace.ca/shoppers_guide.pdf

The information comes from GreenPeace. Andreea


Gmo Food
Posted by C (Cochrane, Wi) on 10/20/2012

thank you so much for posting this--i just watched it and highly recomend everyone who can to watch it because we are all being affected! Denial does not protect you: http://www.youtube.com/watch?v=wnlTYFKBg18


Steroids
Posted by Jan (Busselton, Western Australia) on 09/09/2012

I have had pemphigus foliaceus (auto imune disease) since 1996 and am on dapsone 100mg plus 5mg prednisolone (daily) - would like to get rid of the prednisolone and replace it with Lypronol. Any thoughts?

Steroids
Posted by Hoke (Oakland, Ca) on 12/08/2012

Hi Jan from Busselton, please try these powerful herbs as prednisone replacements... Reishi, chaga, agaricus mushrooms. And american ginseng and aswhagandha. Good luck!


Steroids
Posted by Jennifer (San Francisco, Ca) on 08/27/2013

I have pemphigus vulgaris which is similar to pemphigus foliaceus. I did a quick review on Hoke's herbal recommendations. They seem very powerful indeed, but I have a question. Some reviewers on Amazon mentioned that Reishi mushrooms can prevent open cuts from bleeding. I am concerned since pemphigus causes blisters in the mouth that can eaily bleed. Is there another extract that you would recommend or do the other herbs recommend have a similar effect?


Steroids
Posted by Melisssa (Medford, Or) on 06/25/2017

Jan,

I'm curious did you have any symptoms of high blood sugars while taking these meds?

My mom now has diabetes from all the prednisone usage due to her pemphigus foliaceus, and her doctor is trying to wean her off of it.

Are the drugs you're using very expensive?

Looking for alternatives in Oregon,

~Melissa


Steroids
Posted by Jan (Busselton, Western Australia) on 07/02/2017

To Melissa of Medford - yes, my blood sugars were up just above the threshold for Diabetes II and crept up a moderate amount while on Predenisolone but not to the extent of having to take medication for Diabetes (just made sure I watched my diet - low GI foods etc.). In the interim I learnt a lot Googling Prednisolone and decided to wean myself off it, UNDER MEDICAL SUPERVISION and hey presto my blood sugar levels dropped like a bomb to a safe level, to almost non-diabetic if that's possible! It doesn't take long to wean off Prednisolone but I stress it must be done, otherwise your body won't know how to make it's own insulin and that means trouble.

Dapsone costs AUS$103.00 for 100 tablets, however I do get them for very little (about AU$6.00 on our national health scheme.)

If you do Google Dapsone and its side effects, don't get frightened off because to my mind the alternative drugs that are on offer I consider to be worse than the disease itself. All drugs have side effects, you just have to weigh up the pros and cons.

If you want to chat further away from here, I can give you my email address. All the best and good luck.


Steroids
Posted by Ozgur (Turkey) on 09/11/2017

Hi

Your response is important to me because my mom has a Pemphigus Vulgaris and using 8 mg prednol and 150 mg immuran daily.

Ganoderma lucidum is a option to cure this ill? If it reinforces the immun system, it could empower the illness also. I need a solution that modulates the immune system to discreminate antigens.


Guillain Barre Syndrome
Posted by Had (White River Jct, Vermont) on 03/08/2012

Have you been checked for heavy/light metals and toxins??? Also processed foods, fake sugar, wheat, commercial Dairy, etc.... do you eat these? for a good alternative doctor, look for someone who does applied kinesiology and nutrition and wellness. They deal with muscle testing and good eating, vit/min, suppl etc... I've had very good success with that. Also, research, research, research, I go to my consultant (Dr. Type)and turn her on to new therapies to add to when others don't work for some patients. Also the price for this is not so much.



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