Posted by Eva (England) on 04/28/2020
★★★★★
I was diagnosed with Interstitial Cystitis 10 years ago after many unsuccessful rounds of antibiotics for a UTI. At my worst, I was house bound and could not leave the house. I was searching for another remedy and realised that I had never written down what helped me recover and so thought I would pass this along to anyone else who needs help. Supplements I used: Marshmallow Leaf Tea Cornsilk Tea Iron (I was anaemic) Probiotics D-Mannose I went on to an acid free diet and ate lots of lettuce and cucumber, which helped. I also used exercises from Amy Steins - Heal Pelvic Pain. It was slow at first, but I gradually began to improve. I went back to my normal life and diet eventually, although would limit foods like oranges and coffee. If I get ill or run down it flares slightly, but I can quickly get it back on track. I live normally and for the most part do not give it a second thought, so if you are struggling- remember it is not forever. I would also have bad days in the beginning by trying to do too much, but when I rested I would feel better than before. Good luck!
Posted by Julie (Oregon) on 04/24/2020
★★★★★
After much trial and error here is what tamps down a flare up of IC for me every time. Hope it works for others as well. Here is what I take: Grapefruit seed extract: 2caps. ( I think this works as an antibiotic.) UVA Ursi: 2 caps Prelief: 2 caps (I order from amazon but hear Walgreens carries it). D-Mannose: 2 caps ( I now buy this in bulk from bulk supplements on amazon. Way cheaper. Take a Tlb.) AZO 2 tablets. ( for the pain and urinary urgency) Aspirin, ibuprophen or Tylenol ( for the pain). I either lie down with a heating pad or I buy from dollar store a stick on heating pad.
One that heats up when air touches it. Has round disks embedded in fabric that heat up. There is no medication in it. Just warmth which lasts for hours. I usually can only find the kind that goes on shoulders but I put it on my lower stomach and it's held in place with the two self stick ends and my own pants. Feels very comforting. Usually I just have to do one round of this but occasionally I've had to do two rounds in a day. This works every time and stays away until something triggers it again. Sometimes I use it right away before symptoms flare up if I know I'm going to be triggered such as after intimate relations. This works as a preventative in that situation.
