★★★★★
28 years old, diagnosed with Interstitial Cystitis in March 2015. Had horrible pain, frequency, etc. Tried bladder instillations that gave little to no relief, tried a very restrictive IC diet, went to 4 different Urologists, and tested negative for Ureaplasm and for any bacteria. Finally mid-April I couldn't handle the unrelenting pain and frequency (every 15 minutes). I tested positive on two home UTI tests and went to the Minute Clinic. Nurse prescribed Macrobid for 7 days - even though the tests showed no infection. Within 24 hours - I was basically cured - mild pain - ran 12 miles, felt 95% normal - no frequency. Then within 3 days of finishing the Macrobid the pain and symptoms came back. In May called my Urologist begging for more Macrobid. Within 3 days of starting the Macrobid - 100% relief. Then I had a cystoscopy that confirmed IC diagnosis. After taking Macrobid for 10 days, I feel normal - except of the soreness from the cystoscopy/slight hydrodistension.
Macrobid cured me and the hydro helped with my bladder capacity but none of my doctors will listen to me! It has been 3 weeks so far. I have gotten away with eating cheesecake, dried cherries, bananas, etc.
Just today I was researching Mullein Root Tincture for a friend and noticed that it said it is sometimes used for Interstitial Cystitis. Mullein root is difficult to find. I have bought it from beneficial botanicals and made my own from mullein root in my yard. I have used it for my joints with success.
A dose for Mullein Root Tincture are 5-15 drops.
I also wonder if frankincense essential oil, a quality one (Hopewell oils are my favorite) would help. A drop or two applied to the abdomen has helped me before with a UTI and also with ovarian cysts.
Just a couple of things I would try myself if I were dealing with IC.
~Mama to Many~
Multiple Remedies
★★★★★
FRESH pressed lemon in water helps! Distilled water helps but is not good for you long term. Try to drink a gallon of non florinated water a day, it works but not instantly.
No alcohol or coffee :(.
Sweating out toxins in a sauna helps! As long as you drink a Lot of water and replenish with fresh pressed vegetable juice.
Everyone should have a VEGETABLE JUICER. Juice fast for a week for dramatic healing, but NO FRUIT in the juicer, spiking insulin will negate healing.
Get VITAMIN D LEVELS OVER 50, tan or take 10,000 iu of d3 a day, but get tested, and don't accept 30 as normal, it's not! Read about it w the vitamin D council.
For relief get a vaginal suppository with BORIC ACID. Its cheap, look online and read about it. Stay away from chemicals down there, boric is natural.
Stretching, either Pilates or something thorough really helps reduce the inflammation and allow the fluids kin your body release.
I just came across a FREE Ebook about treating IC naturally. It's a book by Diana Brady. It talked about the combination of Bromelain and Quercetin to treat IC. New to me, will keep you posted if anyone wants to know. Just curious. Would like to get coffee back someday!
Folks get your vitamin D tested. The vitamin D council spells it out online why its so IMPORTANT and how it correlates to health problems like this. Theres no instant cure, but get that D up and do the other things. Stay off sugars! For good and it will heal! :)
Multiple Remedies
★★★★☆
1) alkalize your body...I drink 1/4 tspn of baking soda in 4oz of water daily...sometimes 2x daily if I have more pain. I've noticed this keeps the awful urethra burning at bay most of the time. I tried the ACV w/BS and it HURT. This made me sad because alot of people report great results with ACV but my body does not like it.
2) Marshmellow Root in the liquid form (non-alchohol)...I had a flare up about a week ago and took a dropper full in 4 oz of water 4-5 times a day. The pain subsided drastically within 24 hrs. I take a maintenance dose (1-2 droppers full) a day.
3) D-mannose...I use 1/2 tspn daily in 4 oz water..just for overall urinary tract health. It's also good to take it before and after sex to keep from getting UTI's.
4) I know that we IC sufferers are supposed to stay away from alot of spicy and acidic foods (hence I cannot take Vitamin C to save my life...talk about pain!)....BUT I do enjoy my one cup of coffee every morning..the rest of the day I drink bottled water. Also, when I have acidic foods like pasta with tomato sauce or mexican I take an extra dose of BS just as a safe guard and I have to say it usually does the trick.
5) There is a product you can buy at drugstores...I haven't tried it yet but I plan on it. Basically, you take it before you eat anything acidic and it's supposed to neutralize the acids...I know we are not supposed to mention product names but if anybody wants to know you can email me.
Sorry to be long winded but I noticed there is not alot of feedback on IC....I will let everyone know if I come across any more remedies.
Take care!
★★★★★
How does DMSO work? Many, many theories but very few pertaining to viruses. It would be too simple and easy to say that DMSO best known as oxygen donor, attacks anaerobic viruses by depriving them of their anaerobic environment. This would be too easy! Too cheap!
Baking soda, I was skeptical at first about this broad range therapy. But, after reading so many,many testimonials from people not promoting themselves or selling anything, hell, I am about to write something about this cheap, simple remedy on my own research website. I will of course try it myself as I too am battling a chronic illness, a confirmed infection of the prostate.
Ted, in this regard has been benificial by taking the time a providing the chemistry to me which explains Baking soda's relationship to CO2.
Baking soda, higher urine ph, is in fact anti viral as viruses just love slightly acidic environments. Alkaline ph actually prevents viral transcription of RNA for replication. Base pair matching cannot happen at certain ph levels. Even in cancer. Whatever we believe causes cystitis one thing is for certain, once again, higher oxygen and higher ph are god sent remedies.
★★★★★
DMSO
★★★★★
Turmeric
★★★★★
Diatomaceous Earth
★★★★★
Coconut Oil
★★★★★
★★★★★
I didn't have to wait long and I tried the baking soda and within one hour the pain and frequency were gone. I have now used that on several occasions and for me it stopped the pain within the hour a simple miracle. CHEAP 1/8tsp in a very warm glass of water. Not particularly taste so now I put the 1/8 tsp in a gelatin capsule and I take it with the larage glass of warm water and golly gee, pain free within the hour. I know that everyone is different, thats for sure but this has to be a first try for everyone suffering like I was and like most things we take RX's they are costly and have all kinds of side effects, this is easy, cheap and it works great if not what have you lost. I encourage each of you to give it a try. Thanks for allowing me to tell my story, I hope it helps just one IC patient.
Cayenne
Ok. Parsley, essential oils, colostrum, cayenne... needless to say, did not really work to eradicate this infection.
I made an appointment with a Urologist. Breakthru!!!! She immediately tested me in my vaginal culture for everything, including a test for a microbe called Ureaplasma. I have never heard of this. Now, Ive been tested numerous times over the years, and everything always came out negative, but I get a call about 4 days ago from her saying I tested positive for this. She put me on zinthromax and I am taking it now. She tells me this is not an STD, but a sexually transmitted disease??? present in 70% of the human populations normal flora, (rectal, genital, and bladder tracts), but it is transmitted sexually, meaning, we are not born with this, we get it thruout the course of our sexually active lives. , and usually it does not cause problems for people, however.... There is now a compelling link between IC and this bacteria, or mycoplasma. I guess the test is expensive. Which is why most doctors will blow you off, and try to not test you , or REFUSE you and tell you tat since this is considered common flora for most people it wouldnt be considered a factor in causing, your IC. Cleveland Ohio is rated second best in the country for urology, with sum of the best urologists in the country studying and researching, IC. The first test they perform is for Ureaplasma. They say they get a 50% cure rate right there for people, once they treat it with antibiotics. However, my symptoms have improved vastly, I must go back again, and get retested. I was reading just now, online, that many people end up going back and still testing positive, and then after a three week course of doxycycline, get a complete cure. Googling it, I can hardly find any imformation at all about this, I cant believe how ignorant and reticent physicians are about testing for this, its awful, and scary. I was just reading about a gal, who had to fight to get tested and then fight to get treated for it, she saw 8 different doctors, and urologists... So be prepared to fight. There is compelling link here guys google it. I was really doomed. It scary, how a little microbe can jeopardize your whole future and life.
Cayenne
Heres what I did. A month and a half of Doxicycline, first 3 weeks, 100mg morning and evening. Still was in alot of pain, still had symptoms. She upped my dose to 200mg morning and evening. 400mg a day... 2 weeks of that. Tested for Ureaplasma. Long gone!
But I still had symptoms. Altho I was much better, able to eat what I wanted (including tea, and acidic foods) and was able to walk around, and function with my life somewhat... Still wasnt testing positive for bacteria in the Urine. Technically I did not have a UTI.
One night, I got desperate. Was thinking I was having a "flare", it became unbearable, went to the emergency room. Tears pouring down my face, lying down, couldnt even get up when the doctor came in the room, wouldnt let them put anything in my urethra, cuz I was in so much pain. Gave me a script for Macrobid, (10 day supply, 100mg every six hours)
10 days later it was gone.
Ive been reading alot lately about UTI resistant antibiotics, and the link to supermarket/storebought chicken. They say, its becoming more and more of a problem. I think thats what was wrong with me, even tho I dont know why, the bacteria wasnt showing in my urine. So, 2 rounds of Cipro, 10 days of augmentin, 3 Z packs, and a months worth of Lyme disease dosage doxi, and macrobid finally cured me.
A not about the Doxi:: at 400mg a day, ti was very harsh on my body. I threw it up half the time, cuz it was so hard on my stomach. I got a SEVERE sunburn on my feet, (cuz it made me extremely photosensitive) I was tired all the time, sleeping all the time, and I was very hungry, and I had to eat alot of food just to keep it down, so I gained 25lbs. Its been Hell. But Ive learned to never to take my health for granted again. Im not sure what just happened to me, but im aware now about antibiotic resistance becoming an increasing problem. and I hardly ever take antibiotics, I always try the natural route first.
What Im plan to do now, to make sure this never, ever, happens to me again. I plan on taking my womens probiotic every single day, and add D Mannose to the regime as well. At least 2 teaspoons a day. (moring and evening) prevents bacteria from clinging to bladder wall. Especially when Im sexually active. Its expensive. But nothing can be more life ruining than interstitial cystitus.
To not be able to eat like a normal person again. (read several cases of people being able to cure their pain, by living on a diet, exclusively, of vegetables, brown rice, and nut butters, no salt, no sugar, no fruits (acidic) and claiming remision after a few years. Some women gradually being able to add in small amounts the old foods again, they used to eat again. "cheating" by eating Cheescake and Curry and to never be able to have sex again?? How sad is that? What kind of life is that?? and Im young women. Horrible. Id rather have gotten Cancer, or Genital Herpes any day of the week.
Im gonna give full credit to God, and Jesus Christ for my remision. There were prayer circles at my Church, and friends were praying for me. I prayed every morning to be healed. Plus I was on the prayer line, my life, my very life hung on the balance.
In the past Ive been promiscuous.. And I know Im not perfect, and I pray to God to guide me on this issue. I just know to be much more careful now, next time. Its worth it to stay in a monogomous relationship.
Baking Soda
★★★★★
I learned these are common causes of flares at the IC website: Vitamin C, some B vitamins, the hormone Estrogen, acidic foods. Unfortunately, I suffered many years before I found what was helpful for my flares. Now I forget that I even have IC because I can treat it so easily. I'm hoping this will be helpful to someone.
I have had it under control for many years without any huge flareups. I just returned from a clinic that is for chronic pelvic pain. IC falls under that. I went for a problem with my pelvic floor muscles. You can find the info under The Wise-Anderson Protocal. The program came out of Stanford. The Urological Association has just come out will info on IC that suggests it is a muscle pain problem. The clinic teaches you how to do the work of healing your self. It is a long road, but pain is a great motovator. The books Dr. Wise has written are helpful, but the Trigger Point Release Therapy is amazing. Tim Sawyer is a fantastic Physical Therapist. He was taught by the original founder of Trigger Point release. Read all the info and listen to their videos. They may be very helpful. By the way there were 4 men and only two women at the clinic. I never realized that men suffered so badly from their version of IC. Good luck to all. You are not alone. There is hope.
★★★★★
Colloidal Silver
★★★★★
Zeolite and Dietary Changes
★★★★★
I was led to try zeolite for interstitial cystitis. Got a jar of it, and tried a small 'pinch' in water on an empty stomach when I first woke up. I waited an hour to eat. Within less than an hour my constant 'urgency' was gone for the first time since the home with mold in 2019. (At my worst, I got to 23 bathroom trips per day). The pain that I recognized as well as the lack of energy was improved. It even helped my IBS! (found a research study that can happen as well, but it didn't 'cure' the IBS). I have since increased the amount to around 3 pinches with water (then I have to wait a couple hours to eat). I notice I need to be consistent with taking this. I personally believe that I need to
*Also, I've been on a mold protocol diet and if I go off of it, I don't improve. Zeolite was one of the things listed to help with mold detox. Additionally, there needs to be a supplement for Candida: when my IC had gotten worse as I began trying to eat off plan and then became open to antibios since early 2023. The last UTI I refused to go to get antibios because they seemed to make everything insanely worse! I began taking GSE liquid, colloidal silver, and also corn silk tea (read about that on here). I drank that tea all day long for a week until I got the zeolite showed up. The prescription I read for mold recovery (which I have had others say they theorize their IC was caused by mold as well): a binder that works for you (turns out mine is zeolite and it's one of the top ones I find recommended); 2. rotate a Candida supplement: colloidal silver, GSE, berberine; 3. keep detox channels open; 4. make sure home is free of mold; and 5. mold protocol diet until everything is sufficiently detoxed.
So, here is the journey I went through:
First, I had chronic UTIs since 2019. I tried homeopathics for UTIs with only a little improvement. I dearly wished I'd done something (even antibios) for those at the time because I ended up with interstitial cystitis. For the next 4 years, I had chronic UTIs, constant urgency and pain. My energy levels were harmed from this as well (I thought it was my fibromyalgia).
End of 2023, I decided to try to add potatoes back in. I did okay the first time with a little bit. Afterwards, I had to go get saline and antibiotics due to a severe IC bout with dehydration.
Twice more, I tried to add in another food that wasn't on the mold protocol and had the same thing happen. I required far more antibios and it came back right away when I got hot over the summer.
Then, the miracle was in me trying the zeolite (I was always afraid of it tho I knew it was potent). So, I'm so grateful I did!
Zeolite and mold diet protocol. I got another mold exposure and it came back on strong again. Immediately, back to the zeolite and doing better. I'm gradually working up to more.
Serrapeptase
★★★★★
Pumpkin Seed Oil
★★★★★
Baking Soda for Bladder Pain
General use: Homeopathic cell minerals there are 12: Kali phos 12X Kali Sulph 6X Kali mur 12X key Calc sulph 6X all linings in all organs, glands, etc., need Calc sulph as it renders a microscopic coating on linings. It's protective.It compares to the shell of an egg that protects the albumin and yoke -it builds a microscopic coating around each cell. I use the homeopathic potencies as they penetrate the tissues due to its tiny sized pico particles. Think of it for other conditions like ulcers and allergies as sometimes the real cause is lack of Calc sulph in say, the nasal passages so it's susceptible to irritants, dust, pollen, etc. I cured my sneezing from dust that was present like when someone would vacuum now no issues. Think stomach lining and ulcers. Usually cures them. Mastic gum good too. Sore throat too. Some can't digest well and they are low in calcium sulphate as its full name is. The sulph. Kills bacteria. It truly is little understood an unsung hero. I researched it for many years. Don't be overwhelmed with so many of the cell minerals.Use in a format that fits your schedule. Bath: Dead Sea salts is best or sea salt 1/4 cup Baking soda USP half cup Epsom salts USP 1 cup Magnesium flakes 1/4 cup
Dr Howard. San Pedro, CA
Dietary Changes
★★★★★