The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Nattokinase or Serrapeptase
Posted by Madearthmama (Northwest Indiana, US) on 02/17/2015
What about nattokinase or serrapeptase for dissolving the fibrin in neurofibromatosis? I heard those were good enzymes to dissolve the fibrin as well. Has anyone used those? I read and personally believe in the success of nattokinase in dissolving fibroids...what would the possibility be they could also dissolve the fibrin in these tumors also?
General Feedback
Posted by Kitty (Gold Coast Australia) on 02/13/2015
Hi Yvonne,
I was only diagnosed by accident when my mother went for a medical to go oversees, when I was 17yrs old I had the cal spots and freckles under my arms. I had a couple of neurofibromas around 20 yrs old. But nothing much else.
I was unwell last year, Glandular fever, and also became absolutely addicted to sugar, I have over come that and in the last few months have started on a whole food diet. However I am now 53 yrs old and noticed that in the last year I have suddenly broken out in small neurofibromas every where. I mean 100s of them. So I truly believe this is in correlation to my poor diet! When I was waking up and eating chocolate for breakfast!
I also found they were so itchy I would scratch my skin raw, however since changing my diet, I have found that this has settled right down but the spots remain. If I had realised what I know now I would have been a lot more determined to give up the sugar! And eat a whole food diet.
I have have started on the bee propolis Bio 100 and have made my own propolis cream from the tincture in the last few days and I am praying that since they are only small I will be able to shrink them. I haven't found any recent posts about the success of the propolis Bio 100 or cream, so if anyone has any positive testimonies please let me know.
Supplements and Dietary Considerations
Posted by Brenda (New Mexico, US) on 11/29/2014
Hello Sarahshope, I would love to talk to you about your daughters glioma. My daughter just got diagnosed with one at age 15... she has Neurofibromatosis type I, so far a mild case until this. I started the vit. D3 and the curcumin; what is alpha lipoid acid? I would love to contact you personally to discuss everything! I am researching like mad but get inundated with information. Also need advice on how to get teenager to take it seriously! Thanks so much.
Neurofibromatosis Tumor Remedies
Posted by Isuri (Srilanka) on 06/11/2014
Neurofibromatosis Tumor Remedies
Posted by Prioris (Fl, Usa) on 12/23/2013
Here is a link for some ideas: http://www.naturalneurofibromatosis.com/50-natural-treatment-ideas-for-nf.html
I'd look into enzyme therapy. Enzymes are supposed to dissolve tumors. One enzyme that has been used for last century for cancer for instance is pancreatin. The idea is that by taking them with food and empty stomach, this enables the more potent and preferred pancreatic enzyme that your body produces to do its work against tumors in your body and dissolve them. Just an idea.
Neurofibromatosis Tumor Remedies
Posted by Teresa (Omaha, Nebraska) on 12/23/2013
Please help me and tell me what would be the best natural treatment to get rid of tumors on skin and in the body from Neurofibromatosis. I have a big one on my arm and about 10 little ones.
Neurofibromatosis Tumor Remedies
Posted by Cathie (New Mexico) on 09/18/2013
I have a couple of children who have nf (heridetary). How can I help them now at this young age (5 & 6)? Is there any cure for them? Thank you for your time. Cathie
Supplements
Posted by Teresa (Omaha, Nebraska) on 07/17/2013
I have Neurofibromatosis and from this I have brown spots all over my body and some neurofibromas on my body and from this disorder I also have tumors in my body. What would be the best herb or vitamin to take to shrink these tumors or make them disapear especially on my body?
Aloe Vera Barbadensia
Posted by Susan (Liv, Ca) on 07/08/2013
★★★★★
I have long history NF2 with this my mom, her dad, my brother, and now my two boys. So I HAVE AMAZING News please read this.
All tumors are created from a over-acidic body. Raise the alkaline.
My two boys have been diagnosed with brain tumors and they my oldest has tumors on the outside as well. I heard about drinking Aloe Vera barbadensia using the whole leaf, honey, and whiskey. My friend's grandfather had prostate cancer and used this for three months and he was healed. So my kids have been drinking it and one shrunk already all gone and the others are shrinking. It is a true Miracle. I can't believe that this is working.
I look up the aloe and it is 8.6 PH which is what you want to have to fight off this demon. I want to help everyone and anyone from this. I bought a book Aloe isn't medicine and yet it cures! For 20 dollars it tells you how to prepare it and what kind of reactions you will have while these toxins come out of your body its so amazing. Their body broke out in boils for 24 hours then they went away. They never felt sick just tired. I believe it is the body repairing itself.
It has been shown by so many scientists that Aloe Vera barbadensia helps so many diseases including cancer and tumors. If you have a loved one and you want to help them do research help your self and save your own life. I seem my mom suffer my brother have surgery and gamma knite. This was not for my children. God Bless I hope you will do the research. Oh look up McDaniel H. Reg M.D. On youtube. He talks about this on his videos.
One more thing: No Milk, No Meat, No Caffeine and less sugar. More Greens.
Neurofibromatosis Tumor Remedies
Posted by Teresa Larsen (Omaha, Nebraska Usa) on 05/15/2013
I was wondering what is the best remedy to user for Neurofibromatosis? There are so many different remedies to use and I don't know what to do.
Supplements and Dietary Considerations
Posted by Sarahshope (Michigan) on 04/20/2013
My daughter has NF1 and has had her left eye removed due to an optic glioma. She also has a brain stem glioma. She has one plexi on her shoulder which is being watched.
Vitamin D is very good. She takes 2000 mg, a day, plus curcumin and alpha lipoic acid. On her last MRI, April 10, 2013 the optic glioma on her good eye was gone!!!
This is a rare happening, but it does happen. I find a lot of negativity here. Being pro active and knowledgable about your own condition and seeking answers yourself is the best way to handle your problems with NF. Do NOT count on the medical community for all the answers. Research and research.......
General Feedback
Posted by Teresa (Omaha, Ne, United States) on 03/19/2013
I have Neurofibromatosis and from this I have brown spots all over my body and I am getting small tumors on my body. I have read all the information on your website about this and there is so much to remember What I want to know what would be the best thing to take to get rid of there tumors inside and outside of my body. Please help me. I have been looking for an answer. Teresa
Supplements and Dietary Considerations
Posted by Louwrence (Rustenburg, North West, South Africa) on 03/09/2013
Hi Opo, Sun does not cause skin cancer, it is caused by what you put in your mouth like hydrogenated oils & only then the sun becomes a problem. The sun is your friend not your enemy, that is why it is worshiped, your whole life here on earth depends on the sun.
Supplements and Dietary Considerations
Posted by Opo_tahu (Somerset, Ky) on 03/08/2013
We that have NF is also prone to have a vitamin D deficiency as well... I read this and had my levels checked and was low on D, All my B levels..
Kinda odd here we have a lower D level but yet the sun can cause these tumors to pop out??? Hmmmm
General Feedback
Posted by Kyle P. (Philly) on 01/06/2013
I also have NF1, im a 20 year old male. My condition has gotten worse since I was younger... Maybe cause I picked up a few nasty habbits like drinking and smoking. I work on my feet everyday and it takes a toll on my body. My flexibility is bad and I'm in pain a lot 24/7 meds don't always help.
Supplements
Posted by Jen (Northern California, Ca) on 12/24/2012
I have NF too. A Dr. told me that "Red Meeker" is known to shrink tumors. I can't find it at any stores though. I'm going to try to get it online. Thanks for the A, C, & E vitamin info. I had no idea.
Bee Propolis
Posted by Tonya (Greenville, Nc) on 08/30/2012
My daughter also has NF1... I want to help her so bad, she is 9 years old. I wish there was a cure for this!
Ted's Remedies
Posted by Patricia (Montreal, Canada) on 08/24/2007
I am 22 and have membranous glomerulonephritis. I have had it for 6 years. I have been on TONS of different medication and nothing has worked. Recently I decided to go off all of my medication, since it wasn't working anyways I figured whats the point of me being on it then. I see a naturpath and homoepath and am very into natural health. My protien levels in my urine are the problem, I am now at around 3 mg protein a day in my urine. Over the past few years I have gotten better and better with other symptoms (water retention) and the oil pulling which I started about a month ago has really helped my energy. I am now able to work part time. A couple of years ago and I was taking 2 naps a day. It is just the darn protein! I had severe stress in my life before I got this, for sure this was the cause. Do you have any advice to get my protein in my urine down? Thanks! I love your website!"
Ted from Bangkok, Thailand replies: "Patricia: My own experience of high protein in urine is due to infection usually of bacterial origin, and indicates bacterial colonies or that the body is having an infection. Therefore zinc gluconate 50 mg/week, magnesium citrate 250 mg 5 days out of a week would increase the body's defenses against these bacteria, thus reducing the high protein in the kidneys.
Also whenever urine pH is acid, which means the pH of urine is below 6.5 (usually infections exists whenever urine pH is about 5.5, which is quite low). In which case raising the body's alkalinity would increase the immunity and reduce bacteria colonies. In which case a Apple cider vinegar 2 tablespoon plus 1/4 teaspoon of baking soda in 1/2 glass of water, taken twice a day, once in the morning and once before sleeping should help. Lime (lemon) of 8 teaspoon (or 2 tablespoons) plus 1/2 teaspoon of baking soda in 1/2 glass of water taken twice a day could also help too. But this is often done on alternate days.
Adding 1/4 teaspoon of sea salt in one liter of drinking water will raise the salinity of the urine somewhat so that the antibiotic effect of some salt, would reduce the bacteria thus reducing the protein buildup in the urine.
My own experience with "cloudy urine" usually from weaknesses can also lead to protein buildup in which case it helped me a lot to take vitamin B complex for a couple of days. The urine will often clear up and reduces the protein buildup from my own experience."
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8/24/2007: Ted adds: "One more thing, the membranous glomerulonephritis may be related to heavy metal toxicity which is why oil pulling works, although a proper oil pulling should be done between brushing of teeth, I believe taking some granulated lecithin would also reduce excess fatty liver and reducing the liver's congestion while the addition of one drop of close oil in one liter of water does help too but its mechanism is more in killing the bacterium in the liver is usually how the clove oil works in reducing the excess urinary proteins too."
EC: *** Ted's Remedies Reader Feedback here. ***
Bee Propolis
Posted by Sarah (Greenville, Il) on 10/26/2011
Where do you get bee propolis?
Supplements and Dietary Considerations
Posted by Carly (Seattle, Wa - Usa) on 09/30/2011
★☆☆☆☆WARNING!
A word of caution on evergreens.... Please be careful to make sure it is a pine tree, as some varieties of evergreens are not meant for human consumption.
Also - whenever I do yard work trimming up my evergreen trees and shrubs I get raised red bumps on my arms where the plant material has brushed up against them, so I am pretty sure I have allergies to them. (I consider it an allergy prick test at home) ;) so I personally wouldn't drink Pine needle tea because of allergy concerns.
Just a couple of thoughts. :-)
Supplements and Dietary Considerations
Posted by Ynnis (Fayetteville, Nc) on 09/29/2011
If you really want a good dose of Vitamin C, there is nothing better than to pick the younger shoots of pine tree needles, and brew them with your favorite tea or alone. Take as many as you like. Those needles have more Viatmin C than any other source of Vitamin C. The tea will taste lemony... And good!!! Instead of sugar, add honey and cinnamon. You cannot drink anything more healthier than that!!!
Supplements
Posted by Zachary (Denver, Co, Usa) on 10/02/2010
Ive read that coloidial silver helps.
General Feedback
Posted by Ncope (Harlingen, Tx) on 08/24/2010
To Yvonne from TX. If you are 51 years old and do not have any signs except the speckling on the surface of the skin, I don't think you need to worry. Most people start developing tumors by the time they reach puberty and it progresses from there. If you had a bad case, by 51 you would likely be covered in tumors. My mom has it really bad and I don't remember her other than being covered in tumors.
General Feedback
Posted by Yvonne (Spring, Tx, Usa) on 06/09/2010
I am 51 years old and have had the odd freckling in my arm pits, back, shoulders, and torso since very early in my life. My parents took me to a USAF pedi dermatologist and later to a pediatrician. All I remember was being told I have cafe'ole' spots. No other doctor has ever expressed any concern until I went to a dermatologist recently about an unrelated matter. He has suggested that I have NF1. Other than the speckling on the surface of the skin I have no other markers or history, signs or symptoms. Should I be concerned?
Bee Propolis
Posted by Goughey (Queensland, Australia) on 01/27/2010
★★★★☆
My son as neurofibromatosis (NF1) and he has recently started taking bee propolis, we feel that since taking the product his immunity has been much better.
Supplements
Posted by Tia (Spooner, Wi) on 01/08/2010
★★★★☆
NF1
I have noticed since taking Vitamin C, E, and B that my tumor growths have shrunk. I dont know if it is just me who notices or feels it but I feel it is. Does anyone else know anything else I could take?
Bee Propolis
Posted by Michael (Sabinal, Texas) on 07/31/2009
Supplements and Dietary Considerations
Posted by Gregory (Quezon City, Philippine) on 06/02/2008
★★★★★
I have read an article on the web, the remedy in NF1 [Neurofibromatosis -- brain tumor ] , that Vit.E (400 IU) + Vit. C (500-1000mg) with rose hip and citrus bioflavonoid complex supplement; plus dieting by avoiding meat product, especially highly preservative food and sugar will slow down the tumor growth. I have try it over a year and a half. The result is satisfactory.
I wondering from Ted if there another way to reduce the tumor? Also if i can combine cesium chloride+Vit.B complex+ Vit.C+Vit.E and baking soda solution at a same time?Will there be side effect? Thanks...
