The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Serrapeptase
Posted by Gord235 (Vancouver, British Columbia) on 10/03/2017
Serrapeptase For Peripheral Neuropathy
Serrapeptase is a relatively new treatment utilising an enzyme to remove non-living cells. This has a dramatic effect on reducing pain and inflammation. It has been used successfully in Europe for thirty years but is just becoming known in North America.
I have started with 120,000 SU (2 capsules) - twice a day and plan to gradually increase the dosage after watching several clips on youtube. I would be interested in hearing about any experiences by members who have tried it.
Multiple Supplements
Posted by Gord235 (Vancouver, British Columbia) on 09/26/2017
I would just like to add a note since my previous post. Although I have experienced much improvement following the protocol previously mentioned I am still looking for something better as I still experience some flareups. I've spent a lot of time watching Youtube in search of the 100% cure but it seems to be elusive. I tried baking soda and ACV but it didn't seem to make a difference. Then I heard that cassian cinnamon would do the trick, then it was benfotiamine that was declared to be the holly grail. In conclusion I think that the best we can do is to stick to the most popular cures mentioned on this site. I am currently holding out hope that ALA will deliver on it's promise to promote nerve healing in the long term. Best wishes to everyone.
Multiple Supplements
Posted by Gord235 (Vancouver, British Columbia) on 09/07/2017
★★★★★
Hi Everyone. I'm new to this community and also new to posting online so I'll be brief and to the point. First; thank you to all who have contributed to this site. Peripheral Neuropathy can quite daunting.
Next; after considering several options I settled on the following protocol: B12 5,000 mcg/day, Acetyl-L-Carnitine 750mg/day, R+Alpha Lipoic Acid 100 mg/day, Calcium Magnesium D3 333/167 mg/day 2:1 Ratio, Enhanced Absorption. This combination worked fast and very well for me, eliminating 90% of my pain.
Fortunately, I am one with a B12 deficiency brought about by a series of diets including Paleo, Vegan, Starch-based and finally Low Carb, Moderate Protein. I am now back on track thanks to members like Al and Art who have shared their experiences here. I hope this information is helpful to those who are new to the site and trying to find their way. There are several causes for Peripheral Neuropathy and not everyone is B12 deficient but it should be worthwhile to try to determine if you are by trying this simple plan. Hopefully you are one of the lucky ones.
All the best,
Gord
Magnesium
Posted by Jan (Australia) on 07/21/2017
Do not take magnesium oxide; absorption is terrible and magnesium citrate in large doses causes diarrohea/leaching your body minderals. Take Magnesium orotate and calcium orotate. Also foods high in magnesium and calcium - leafy greens also organic cocao. Your diet should be as organic as possible with lots of vegs and fruits though it will still take some time for your body to correct itself. Good luck
Borax
Posted by Mary (Usa) on 06/08/2017
Do you take high blood pressure meds, or statins, or diet soda, a diabetic?
Why are you still taking your meds if you feel it is causing the problem?
I am a health researcher I find the leading cause of your problem is the above, in that order.
Borax
Posted by Lily (Kelowna, Bc) on 06/07/2017
Vitamin B 12 is best absorbed into the body by injection or sublingually, regular B12 pills are not easy for the body to assimilate. My advice is B12 AND MAGNESIUM . Magnesium in powder form dissolved in water is good . Magnesium is best absorbed through our skin, so add a gel magnesium rubbed on your feet . This has been most helpful to me. The neurologist told me about magnesium. I hope this helps you.
Medications
Posted by Juanita (Michigan) on 04/17/2017
I have epilepsy and take Keppra, Lamictal, and Klonapin to control the three types of seizures. I also have restless leg syndrome and polysensorymotor neuropathy. The only thing that helps me is Neurontin, an anti-seizure medication. I just make sure I leave a three hour gap prior to taking my next combination dosage of Kkeppra, Lamictal, and Klonapin. When the pain is mild I take 400 mg at bedtime and when it is severe I take 1,200 mg. Check with your neurologist. My primary care came up with taking Neurotin while my neurologist wanted me to take Mirapex. Mirapex would last four then symptoms were back. Then suddenly augmentation occurs in which Mirapex no longer works then have to go to Requip and then Mirapex then Requip again and it is a never ending cycle. Neurontin has been a life saver for me for fibromyalgia, restless leg syndrome, and neuropathy. It doesn't help me with epilepsy but it helps me with everything else. Depending on the brand or generic version it can make you tired so I get the brand only so I know what to expect. Now I have a good night sleep. No pain, burning, tremors, etc.
Medications
Posted by Deborah (Rochester Ny) on 02/03/2017
Connect with each other on FB and instant message each other things like email addresses phone # etc. I have been reading this thread and have some homeopathy and and finding the info helpful. Mine is in my feet only and its just numbness and warmth. I find mine flairs up 30 minutes after I eat carbs that may have GMO or Glyphosate. its is always 30 min after. Chocolate which can be full of carbs does not make it flair up so I find it is more grains that do. I have used B12 sublingual but maybe it is not enough. My neuropathy has gotten better not so uncomfortable but not all gone yet. Thanks for the info.
Sending healing and Blessings, Deborah
Benfotiamine, ALA and RLA
Posted by Rick (Chicago) on 06/12/2016
★★★★★
Benfotiamine helped, but did not cure my Peripheral Neuropathy, which was due to knee replacement surgery where the nerves are traumatized. PN was bad after surgery and slowly improved (I took a large vitamin stack). After ~12 months learned about benfotiamine and tried it. A little better. Then I called the company and the founder (a scientist) answered and explained how sometimes large doses were necessary at least to start with, and that toxicity was almost impossible. 1800mg a day helped - to an extent, then leveled off. I now take Drs. Best Benfotiamine 300 1x and alpha lipoic acid 300 + benfotiamine 150 8x. My neurologist approves of these supplements.
BTW, I once used r-lipoic acid to cure my loss of taste (taste only, not smell) from taking an anti-fungal rx (never again). EENT specialist gave me prednisone which helped nothing but gave me road rage and fluid retention. Google led me to ALA and RLA studies. Cured in days. EENT doctor refused to even look at the published research articles. It was a pleasure to tell him "Your services are no longer required."
Evening Primrose Oil
Posted by Bob (Rosedale, Md) on 05/07/2016
Hello,
I too suffer from nerve issues in my feet. Hurts like hell at night, the rest of the time it is numb and feels like electric flowing around my feet. Calcium and magnesium helped me. The pain and numbness is there but manageable. Reflexology every other week really helps to as well as a good deep tissue massage once a month or so.
Take care,
Bob R
Alpha-Lipoic Acid
Posted by Robert Henry (Ten Mile, Tn) on 04/25/2016
PERIPHERAL NEUROPATHY :
HI U GOOD FOLKS DOIN,,,,,,,, life is interesting these days and old age is at the heart of it all. Today, I got an IV using Alpha Lipoic Acid to help in my leg nerve problems. My doctor recommended one for 4 weeks and see where we are.
We had quite a diverse group in the room today. All had been down the Allopathic Medical route and that was a dead end, so they chose to pay their own way and possibly live to see another year. One 84 year old was consumed with a fungus, another was a mechanic that washed too many greasy auto parts in lead gasoline. One had gotten the mucus from his wife via their grandkids...... he was doing a Hydrogen Peroxide IV and was coming back tomorrow.
My best buddy is doing EDTA Chelation after I had begged him to do this for 5 years. Think his heart scared his mule. These folks use their insurance until they see a dead end and then they start to pay their own way to stay alive.
That is the way it is with most folks on EC. They obey their MD until they begin to see the Grim Reaper out the side of their eye and then they begin to research and find all the helpful folks on EC. Amazin how that works.
========ORH======
Gingko Biloba
Posted by Ellen (Long Island) on 10/21/2015
Great info. Do you or does anyone have experienced having a flair-up on their feet when: drinking soda (either diet or regular), wine, or Honest Iced tea! If so, do you know if it's the phosphoric component, or why? Please advise. Ellen
Supplements, Saturated Fats
Posted by Damaris (Miami, Fl) on 07/27/2015
★☆☆☆☆
Bill, please let me know if you continue taking add Alpha Lipoic Acid(300 mgs twice a day at meals) Selenium(200mcg twice a day at meals) and acetyl Carnitine (500 mgs twice a day at meals) to your protocol. Adding a teaspoon of granulated lecithin(not the oil) twice a day before meals and taking B50 vitamins every day might also help you here. How do you feel now because your comment was in 2014.
Supplements, Saturated Fats
Posted by Damaris (Miami, Fl) on 07/26/2015
Good afternoon, everyone and first of all Thank God for all those who have shared their experiences. My name is Damaris I was diagnosed with peripheral neuropathy 2 years ago the cause is unknown. For about three months I've been taking a vitamin that contains B1 & B12 AND R-Alpha lipoid acid. But I still feel in both feet numbness, tingling almost daily.
Also I reach that that capsaicin cream is really good to treat pain and discomfort anybody has tried?? Fernando please let me know if you continue taking add Alpha Lipoic Acid(300 mgs twice a day at meals) Selenium(200mcg twice a day at meals) and acetyl Carnitine (500 mgs twice a day at meals) to your protocol. Adding a teaspoon of granulated lecithin(not the oil) twice a day before meals and taking B50 vitamins every day might also help you here. How do you feel now because your comment was in 2014. Again thank everybody for all comments and Blessing.
Electromyography for Peripheral Neuropathy
Posted by Brian (Lewis Center, Ohio) on 06/24/2015
I had an emg for my PN and it was not anything that I expected it to be. Did not hurt as the needle is so small. Confirmed the neuropathy but couldn't find the cause. I am searching for relief for my feet and I am tired of spending money for something that does not work.
Magnesium
Posted by Rick (Usa) on 06/24/2015
I have always used generic Vicks Vapo Rub for muscle cramps. It has never failed to work for me and it is an inexpensive remedy which works immediately.
Coconut Oil
Posted by Roxicross (Uk) on 06/11/2015
★★★★☆
I have been using coconut oil on nerve pain due to diabetes, I also suffer from peripheral neruopathy in lower leg. Applying pure coconut oil has really made my skin smooth, it used to be blotchy, red and scaly. My doctor gave me couple of creams but that did not help at all, so I tried coconut oil and it has worked, it also helps me with burning in the sole of my foot, it does not go away but it certainly helps with burning. I prefer the oil instead of popping pills which do more harm than good.
Gingko Biloba
Posted by Hilary (Oregon) on 05/20/2015
Diane, I came here to browse but saw your post and have to reply. I was able to turn around rapidly progressing PR in both my legs and arms caused by antibiotics about three years ago. It required extreme diligence. I cannot list everything I did, but the general areas were:
1. Absolute anti-inflammatory diet--but including raw eggs for the fatty acids in the egg yolks.
2. I kept my feet warm all the time. I kept my feet on a hot pad when I sat and worked. I wore socks with a sewn-on pocket at the toes, and inserted hand warmers. These stay warm about 10 hours. You can find these socks and warmers online. Any time I allowed my feet to get cold, I noticed a regression in the NP.
3. I took all the supplements recommended on this site, except ALA, as I was cautious regarding heavy metals and heeded the warnings of Cutler.
4. Metal detox. I did a few rounds of the Cutler protocol, and it was powerful, but products based on seaweed and modified citrus pectin are ideal as well. This is important as the metals inflame the nerves in our extremities.
5. Rebuilder. This is a machine like a tens machine, but it is supposed to have a pulse that stimulates the nerves. I used this religiously and it helped a lot.
6. Comfortable shoes. In my case, I found that flat and wide shoes were best. Any shoe that constricted even slightly, or slanted forward so that more pressure was one my toes, were catastrophic.
7. Swimming. The rhythmic motion and circulation helps, I was surprised by how much.
8. Visualization. I would mentally circle down through my legs and send my mind into the areas that were numb, encouraging them to come back online. I did this each day, especially before sleep.
I did many more things. One thing I learned on this site is the very basic combination of B6, methyl B12, and fish oil to help the nerves re-myelinate. Everything else is on top of that. If you can afford nothing else, at least do this.
Today, my NP is about 95% better. Don't give up, do the research and be diligent.
Gingko Biloba
Posted by Diane (Sherborn, Ma.) on 03/22/2015
HI Bill, I was on your magnesium oil on body for peripheral neuropathy and it worked for a couple of days then stopped. I'm still doing that therapy and today am on day 13..I have hep-c and PN. I feel my PN was caused by Cipro but I had cold extremities previously from Atenolol. (drugs have not been good to me)I take many supplements for both conditions and just included your magnesium oil treatment..I had been getting phlebotomies to lower my liver enzymes. I find when my ferritin level lowers, so does my liver enzymes...I stopped the phlebotomy last month and just did Lugols exclusively at 50 mgs/day and occasionally went to 150 mgs/day...According to Stephanie Buist there is not problem going that high...I found that my ferritin went from 28 to 18 with no phlebotomy and I made it a point to eat a lot of red meat when it was it 28, yet it still went down...I feel 18 is about as low as I should go and maybe even not that low...My neuropathy just got horrendous...Is this because of the lowered ferritin.? Does ferritin carry oxygen? Should I lay off Lugols for a few days or weeks? I am freezing from my knees to my feet 24/7. 3-7 AM is absolutely terrible....The neuropathy has also recently gone to my forearms and hands. Recently started taking Cats Claw for pain, Nucleotide inosine to build myelin sheath and inositol hexanicotinate to open capillaries per Dr. Atkins. Your advice has been invaluable to me.Please advise...Thank you very much.
Meso Platinum
Posted by Betsy (San Diego, CA) on 02/25/2015
Opinion from Bill or Ted requested...
A health care person told me that Meso platinum would heal the myelin sheath for my peripheral neuropathy. He said it cured a quadriplegic by taking 1/2 bottle per day and it took over a year. I just was taking one teaspoon/day..I tried it and it seemed like it was making neuropathy worse...Have you ever heard of Meso platinum healing the myelin sheath? Thank you. Was hesitant to put this possible cure on the site for obvious reasons. It might be taken off the market tomorrow.
Medications
Posted by Janice (Sydney, AU) on 01/16/2015
I have had monthly B12 injections for over 30 years, with pernicious anaemia.
When I was unable to get the injections I required, I relied on Dr D's patches, sublingual tablets and sprays for 8 months. Ended up with severe irreversible peripheral neuropathy. The patches and sprays helped, but now I take daily Methylcobalamin injections. If you suspect B12 is a cause of your problem, I strongly recommend you check out b12.org or pernicious anaemia society.
My progress is slow, but definitely some improvement after 18 months.
Magnesium
Posted by Bonnie (Ravenna, Ohio) on 09/03/2014
★★★★★
I had such painful cramps in my feet and legs it would wake me up at night-I remembered I had magnesium oil and the gel--put some on the bottom and top of my feet and on my legs. Also started taking Boswellia/Turmeric combo and Magnesium Malate-drank a small glass of water with 1/2 tsp. baking soda---have no more cramps--my feet are warmer, less pain when I walk too. Now gave my old dog boswellia/turmeric---she's going up and down stairs with no problem. Hope this helps. Bonnie
Coconut Oil and Chinese Herbs
Posted by Faith (Oregon) on 04/03/2014
★★★★★
Fluttering heart can be caused from hormonal imbalance , endocrinology issues, parasites , allergic reactions to food, ( I would stop wheat for sure ) pollen, plants, pets, hidden mold etc. oh yeah, tea bag, coffee bags or filters might have chemicals. This sent a friend to the ER; took? months to figure it out, vitamin deficiencies, viral bacterial infection. and just stress, caffeine or course hidden dental infections. I had PVC; the cardiologist gave me something Metrophale something I was so sick - migraine sick vomiting.? Ditched the cardiologist and found a great Chinese Medicine doctor First week of taking Chinese herbs I felt so much better , and then I also started taking organic virgin coconut oil harvested from FRESH coconuts. This is key so there are no mycotoxins. I now feel dramatically better.
Electromyography for Peripheral Neuropathy
Posted by Ray (New York) on 02/27/2014
★★★★★
I had that test done its painful but it tells you how much nerve damage has been done to the nerves. My left leg has worse damage than my right but it hurts. I will never have it done again but try it once to see what your results tell your doctor.
Supplements, Saturated Fats
Posted by Bill (San Fernando, Philippines) on 01/21/2014
Hi Betsy...I would perhaps add Alpha Lipoic Acid(300 mgs twice a day at meals) Selenium(200mcg twice a day at meals) and acetyl Carnitine (500 mgs twice a day at meals) to your protocol. Adding a teaspoon of granulated lecithin(not the oil) twice a day before meals and taking B50 vitamins every day might also help you here.
I would also continue with your serrapeptase and MSM remedies as these will also be beneficial. I now cook all my own food in coconut oil(saturated fat) because I've been very impressed with its anti-pathogenic effects and it has also helped me to lose weight.
Unfortunately, since the neuropathy you have is most likely to be caused by the Hep C, then it might also benefit you to follow Oscar's simple BHT remedy against Hep C. Your low BP problems may also be as a result of your liver problems.
Supplements, Saturated Fats
Posted by Betsy (San Diego) on 01/21/2014
HI Bill, I have peripheral neuropathy and have tried everyting to no avail and I do mean everything...I also have hepatitis-c which is under control...It has been suggested to me to take B-1 100 mgs 5 times a day...along with Serrapeptase 1000 mgs 5 times a day... along with MSM 20,000-40,000 unit five times a day and eat saturated fats, which kind of caught me off guard as I have always read that it's not good for you...My cholesterol is 135 which is low and maybe they have a point...It has also been suggested that I eat no high glycemic fruit which I'm already am doing... First time post although I have been on this site before...Respect your opinion and don't want to make any mistakes..Thank you and bless you 1,000 times...
Supplements, Transdermal Magnesium, Turmeric
Posted by Lily (Kelowna,bc) on 10/31/2013
I have been taking alpha lipoic acid, acetyl-L-carnitine, sublingual liquid Vit. B12 and omega 3's for about 10 months. I found the combination helped lots but I still had symptoms. My neurologist told me to add MAGNESIUM . After lots of research I bought a transdermal gel magnesium that I apply to my feet and lower legs morning and night.That helped more. Magnesium is best absorbed through the skin. I also take a dose or two of the effervscent magnesium each day. NOW I have added turmeric capsules 3 times daily and wow lots of relief .I have been adding turmeric powder to as many foods as are suitable too. Research says that if you eat something with black pepper when you take the turmeric it boosts the power of the turmeric.
Magnesium
Posted by Lily (Kelowna,bc) on 10/31/2013
Buy magnesium oil in the gel type and rub it on your feet and legs. Magnesium is absorbed well transdermally and no loose bowels . Wonderful stuff. You can also buy it as a spray but I find that I like the gel better.
Magnesium
Posted by Prioris (Fl) on 10/14/2013
Magnesium glycinate will not cause diarrhea. Also it is easier for the body to absorb.
Magnesium
Posted by Yogi (Ohio) on 10/11/2013
My doctor suggest 400 mg of Magnesium Oxide and Calcium to prevent leg cramps -diarrhea can be a result of the magnesium.
Medications
Posted by Tinydancer (Ohio, Usa) on 09/05/2013
Thank you Tom..... Any advice is welcomed and appreciated. Namaste
Medications
Posted by Dave (Fountain Inn, Sc) on 09/05/2013
To Tiny Dancer:
On neuropathy, google "Calcium AEP diabetes" and "acetyl l carnitine diabetic neuropathy" and you should find what these substances do to help the condition. Especially Cal AEP works wonders for the pain you're experiencing. You may not have diabetic neuropathy but it helps on the cellular level restore electrical interaction and helps maintain cellular health. Also google an article "calcium aep nutrition review" and you'll be amazed at the many other things Cal aep can do.
Medications
Posted by Tinydancer (Ohio, Usa) on 09/04/2013
Karen,
My condition is neuropathy.... It is not gone, only contained as long as I keep my body supplied with the B12. I feel like I will always have it unless I learn something new about it. As long as I am on the medications that I am on then it will always cause my B12 to be low. I do not have Raynaud's disease. The treatment is entirely different and my condition does not have any thing to do with the temperature and the color of my extremities have remained the same. I know that my lower half was starting to show signs of neuropathy when I got involved with the B12 patches... So I was able to avert that dagger. And I feel like if this was not neuropathy then the B12 would not be working for me.
I do believe there is a lot of information about interferon in "Can it Be B12". I have been running back and forth to the hospital (sister-in law) and have not had a chance to look up information in my book. I believe that man has limited knowledge about what is going on with our body's. Most of what they say is guessing. I think sometimes that if man has not seen or witness something for themselves then they don't think that it is possible. When my doctor could not tell me what was going on with my pain then she just dropped the ball. I had no other choice but to find my own answers. The Creator will be the only one that would be able to say whether or not you can be cured..... Put your faith in him. That is what I did.
Namaste
Medications
Posted by Karen (Tampa, Fl) on 09/04/2013
Thanks again for your time and information. I have spent about $15,000.00 on supplements over the last 2 years with no resolution for my Peripheral Neuropathy... Do or DID you have neuropathy?... It sounds like you had it in your hands maybe it was reynauds syndrome?
In any event I have the B-12 coming and the book you recommended is coming from the library and am hoping for a cure... This is something that my very poor (2) neurologists have told me CANNOT happen. Even if it were true they shouldn't tell someone that. Of course they want to keep me on drugs as there is no profit in recommending supplements. I have seen many people over the last 2 years who have overcome neuropathy with various supplements. I do believe it's a lack vitamin or minerals... I had stage 4 chirrosis in July of 2011 and the same time my neuropath surfaced... I believe my because of the chirosis my liver was not producing some vitamin or mineral or fatty acid and the neuropathy came on...
And by the way there are many supplements that are very questionable with regard ot their effectiveness. There are as many cooks in the alternative world as there are in the medical profession, which in my mind if packed with liars and frauds...
They told me that IF I didn't take interferron and have a biopsy I would die... I didn't take interferron (thank God and lloyd wright) but I had a biopsy and my liver enzymes went for being in the 30's to being in the mid 300's... I could go on and one... But again thatnk you for your time.. And by the way I just started taking fentenyl 4 days ago... It's the only drug I am on.. I haven't been on any drugs for many mnay years... The last time was for food poisoning...
Medications
Posted by Tinydancer (Ohio, Usa) on 09/04/2013
Karen,
Don't bother your friend. That would probably open him up for a lot of spam mail. Earth Clinic is fine for corresponding. I get the same amount of patches that you ordered. It doesn't take long.... They ship them right away. I'm happy that you ordered the book from your library..... A lot of information in that book. I am praying that you find relief with this. Almost everyone that I have recommended these to and they actually used them, found some relief. I can't tell you how much money I spent on B12 supplements and shots trying to find something that worked. I chewed pills, I put them under my tongue, I had expensive drops that I put down my throat and I got numerous shots..... To no avail. It is always darkest before the dawn.... hang in there.
Medications
Posted by Karen (Tampa,fl.) on 09/04/2013
Hello Tinydancer, I already ordered the B-12 patches with the "essential 10 vitamins. I ordered the 5 pack then they give you 2 free packs with it... I also ordered "Could it be B-12?" from my library...
I would like to correspond with you directly also... Maybe I could find a person that would let me use their e mail address and they would forwad it to me.. Get a middle man??? Don't know what else to do.. Any suggestions? Thank you for your much needed help and your time.
Medications
Posted by Karen (Tampa, Fl) on 09/04/2013
Hello again Tiny dancer, The only drug I'm taking is fentenyl opatches (50) and I just started taking then 4 days ago... I was up until 5:00A.M. and getting shocks and stabbings everywhere.. I had the patches from the drug store and had to put one on.. It is helping with the shooting pains, but I wonder how bad it's eff3ecting my liver and liver enzymes? My Dr. said I would be OK, but of course I don't trust dr's. Too many bad experiences which could fill up a book between me and my family... 4 Death close experiences for me... I have a friend who owns a health club and writes for fitness magazines... Maybe I could give you his e mail address and he could forward it to me then it's kind of muffled.. Do you think this would work on your end?... If so I'll contact him...
Medications
Posted by Tinydancer (Ohio, Usa) on 09/03/2013
Karen,
Sorry for the delay in responding..... Been away for a minute. I use the B12 patches only. You don't want to overdo it on the other B's. I wanted to ask you what medications do you take?
I will look in my "Can It Be B12" book and see if it addresses anything about your issues. Only do this if you feel comfortable enough to share that information with me. I wish there was a way that we could send each other our email addresses without them being visible to the world and we would not have to wait until it appears on EC. But right now this is the best that we have.
I used about 5 patches a day for probably the first 2 1/2 weeks, after I knew 5 patches was the magic number for me. I felt so sure that it would work because of the webinar that I saw and I was not going to be defeated again like with the pills and shots. After that I was able to taper down to 3 patches/day for another 2-3 weeks and I just kept eliminating until I found the amount that worked for me. I was following my own guidelines and flying by the seat of my pants but it finally worked. Your condition sounds so much more serious than mine. I feel like I would have ended up like you if I had not found out about the patches when I did. My sister-inlaw and I met for lunch one day and I was shocked at how she was walking..... Kind of stumbling and unsteady. Now she knows why..... She said that she thought that it just was old age creeping up on her. She is getting daily B12 shots in the hospital and she is walking better already. I'm surprised that she was not in severe pain but she said that she wasn't. I think that it affects everyone differently. Gotta run but when I get back I'm going to look up Hep C in my B12 book and see what it says. Take care.
Namaste
Medications
Posted by Karen (Tampa,fl.) on 09/03/2013
Hello again Tinydancer, Are you using the B-12 patches with the 10 vitamins or the plain B-12 patches? Don't want to make a mistake. Thank you much.
Medications
Posted by Karen (Tampa,fl.) on 09/02/2013
Hello again Tinydancer, Can you give me a guestimate of how many patches you went through in a week? So I can order a similar amount... I only ordered a small amount but it would appear I am going to need much more... They come from Canada and I don't know how long it takes to get here. I'm also guessing that no one gave you this protocol... You just experimented and found what worked for you... Did you have any side effects when you were up to 5 patches a day??? I'm a bit concerned as I have hepatitis-c... On another note I absolutely had to put on a fentenyl patch last night (# 50) I was in such pain I couldn't sleep. Today I have laryngitis from yelling so much when the stabbings and shocks hit all night long-every 5 mnutes... Thank you and much blessings sent to you. I need to get out of the hell that I'm in...
Medications
Posted by Tinydancer (Ohio, Usa) on 09/01/2013
Karen from Tampa: When I started with the vitamin B12 patches, I started with one and the next day I would put on two fresh ones and the next day 3 fresh ones and so on. I would not wait 5 days, you want to find relief as fast as you can. I have had as many as (5) 5000mcg patches on at once. I wore 5 patches (fresh ones) every day for weeks and then I was able to reduce the amount of patches. Now I wear two patches for 24 hours and I don't apply any more for about 4-5 days. There are times when I will get a tingling feeling in my hands and I go back to 2 patches daily. The tingling always comes first with me and if I ignore it the pain comes next.
On a personal note: I have been telling my brother and sister-inlaw about B12 supplementing for a long time and it fell on deaf ears. My sister-inlaw is now in the hospital for respirator problems and the doctor was discussing her lab results with her. Her doctor told her that her B12 was so low that she is surprised that she was still able to stand. B12 makes a difference in our lives. You're in my prayers Karen.
Namaste
Medications
Posted by Karen (Tampa) on 09/01/2013
Karen from Tampa to Tinydancer... You have worn 3 or 4 patches at a time.. Do you wear them for a week or just one day... I ordered some and the directions says to put one on for just 24 hours then take it off and put anohter one on in 5 days.. Is that how you do it? I thought you wore it for a week, then took it off and put on another one. Thank you for reading and your feedback. I can't thank you enough..
Medications
Posted by Karen (Tampa,fl.) on 09/01/2013
Tinydancer, Should I start by taking one 5000 mcg B-12 patch and after 5 days if nothing happens add one which would mean I am now wearing 2 patches... Then continue to add patches until how many patches, or until I get relief. How would you know if it were not working? What was the final count of your patch wear. Just trying to get an idea of what to do. Thank you so much for the blessing. I am in deep doo and have this neuropathy all over my body pain 24/7 everywhere... I dread going to bed at night... I cannot move a millimeter because I get cramps.. I have to sleep directly on my back with my hands beside me..
Medications
Posted by Tinydancer (Ohio, Usa) on 08/31/2013
Karen from Tampa: I feel so bad that you are going through that endless pain. When it would wake me up in the early morning hours I would just sit and rock and cry..... Nobody knows how bad it hurts unless they have experienced it. I thought that I was going to have to go through life like that. When I would leave the house, people would ask what was wrong with me because I had so many patches on me. I had them everywhere..... I laugh now to think about how I must have looked to people. But when I woke up naturally one morning and realized that I had slept through the night without pain, I knew I was on the right track. Keep adding patches until you start feeling some relief. I pray that help is on your way. Did you know that a lot of MS patients have been misdiagnosed and actually are vitamin B12 deficient? That's what I've read at least. Lack of vitamin B12 can have you curled up in the fetal position..... But until I asked no doctor had ever checked my B12 levels. I am asking God to surround you in his light and asking that your healing will be swift.
Namaste
Medications
Posted by Karen (Tampa, Fl) on 08/31/2013
I will order B-12 patches today from Dr. D.... I eat 99% organic and have tried many different types of magnesium. Mag malate, chloride, citrate, glycinate and still have horrendous cramps..... Thanks for telling me about your test results with B-12. My dr said the same hing. I was "high and do not have a problem with low B-12"... From what I know it's water suoluable and can't hurt you regardless. I will let you know how I make out... I wake up every morning screaming in pain with multiple cramps all over my calves from a dead sleep ay 5:00AM...... My neuropathy is creepin up my thighs and I occasionally have cramps in my leg biceps... I have poly neuropathy... Which means I have it in my arms as well... I had cramps in my forearsm the other morning, but they're not nearly as painfull as calf cramps which are crippling... Thank you so much for your time and information. You are a saint...
Medications
Posted by Tinydancer (Ohio, Usa) on 08/30/2013
Karen from Tampa: By the time that I went to the doctor I had already been to a hand therapist and had taken B12 in pill form and did not have any results. I even got B12 shots that cost me 38.00 a piece and it did not help me. I had purchased the book "Could it be B12" and I had all the key things in my life that could cause a body to be low in B12. I had my doctor check my B12 and the results came back that my B12 was high and not deficient, but I had already supplemented with the pills. From what I have read is that the blood can show that the B12 range is normal while there is deficiency in the cells. I happen to see a webinar for B12 patches and I ordered some that day. I was desperate...... The pain was so intense and I could feel the tingling starting in my feet. I found that this worked for me and I hope it helps you. I know that everyone will not get the same results, don't give up and also pay attention to the magnesium in your diet. Do you eat enough foods that have magnesium or should you supplement?
And yes, I get my patches from Dr D....
Namaste
Medications
Posted by Karen (Tampa,fl.) on 08/30/2013
Helllo again Tinydancer from Ohio, I checked out the B-12 on line and found one from a Dr. D----. Is that your brand? Also did you find your B-12 deficiency by experimenting or did a dr tell you that you were deficient? My Dr says I have too much B-6 and B12... But I've also been told their tests don't accurately tell the story. Thx again.
Medications
Posted by Karen (Tampa,fl.) on 08/30/2013
Tinydancer, Is it at all possible to give me the brand name of the patches you use? I have spent a lot of money making mistakes with supplements that either didn't work or were overhyped to sell and they failed... I don't know how to do this but I'll even give you my e mail address. I know people have posted brand names sometimes. I think they would be OK with it. But do keep in contact.. I would eat rocks to get rid of my cramps.. I do not have a life for the last 2 years.. It's 24/7 pain.. Thank you for reading.
Medications
Posted by Timh (Ky, Usa) on 08/30/2013 2048 posts
Investigating the benefits of the amino acid Serine, says that myelin is comprised of much Serine. Serine is a non-essential amino synthesized from the essential amino Glycine in the human body. Supplementing Serine would likely provide some relief w/ neuropathy considering it's derivative Phosphatidylserine, is also one of the most beneficial nutropic (brain & nervous system) substances.
Medications
Posted by Tinydancer (Ohio, Usa) on 08/29/2013
Karen, Google "Vitamin B12 Patches" and there will be a lot of internet sites that sell them. I get the ones that are offered by a Dr. I am praying that this helps you because I know how painful and hopeless you can feel with that pain and nothing seems to work. I will buy the patches before I buy food.... that is how much they have helped me. Namaste
Medications
Posted by Karen (Tampa, Fl) on 08/29/2013
Are the B-12 patches something a Dr prescribes or something you can get over the internet? Thank you again for the quick response.
Medications
Posted by Tinydancer (Ohio, Usa) on 08/28/2013
Karen from Tampa: The amount of B12 patches that I use are 5000 mcg. I had to start off using several a day at first. At one time I was using 3 or more a day.... Just depends on the day. I guess my stores of B12 built up and I was able to reduce the amount after a while. The pain in my hands would wake me up out of my sleep in the wee hours of the morning. I had almost no energy, and I thought it was from sleep deprivation, but now I know that it was the low B12 in my body.
You are welcome and I hope that this helps you.
Medications
Posted by Karen (Tampa, FL) on 08/28/2013
What do you mean by "One was not near enough." Did you use several patches or did you use the patches for an extended period of time?... And what sttrength patches did you use? Thank you for the response.
Medications
Posted by Tinydancer (Ohio, Usa) on 08/28/2013
Karen, I had the horrible pain that you speak of and mine was from B12 deficiency. The pills and shots did not work for me..... But the b12 patches worked. I had to make adjustments until I found the amount that worked. One was not near enough but now I have lowered my dose and have rid myself of the pain. When I feel the numbness come back I increase my patches. Good Luck!
Medications
Posted by Karen (Tampa, FL) on 08/25/2013
Does anyone have any first hand experience with Keppra, a medication used for epilepsy? I have hepatitis c and horrible peripheral neuropathy with HORRENDOUS pain. I have tried tumeric 3 heaping teaspoons a day and nothing... My dr and my pharmacist both said this will not bother my liver... I have tried 101 things for my neuropathy and it's still there. I can hardly walk and the shooting, stabbing, electrical shocks are 24/7 and I do mean all night long... I also have neuropathy in my arsm and torso with someimes stabbing pains in my chest or sides... I didn't ever think life could be this bad... The last 3 weeks I have gotten about 3 hours sleep each night...
MSM
Posted by Rsw (Uniontown, Oh) on 08/16/2013
Nina, full spectrum means all the parts of the mushroom, not just some of the mushroom. Full-Spectrum (Primordia, Mycelia, Fruiting Bodies & Extracellular Compounds). I imagine that way, you will benefit from everything that the mushroom has to offer and not miss out on any of the individual component attributes. Generally, the seller will say if the product is full spectrum. Best wishes!
MSM
Posted by Nina (Massachusetts) on 08/16/2013
RSW from Uniontown, OH. Thank you much for the response. Would you elaborate with regard to what you mean by, "Full spectrum product" for Lion's Mane?
MSM
Posted by Rsw (Uniontown, Oh) on 08/14/2013
Nina, recent studies have shown Lion's Mane mushroom as being beneficial in restoring nerves and Myelin sheath. It is helpful with MS symptoms so I am wondering if it would help with repairing the nerves in neuropathy? It may be an avenue to investigate. I imagine you would want a full spectrum product, and I have recently learned that kits can be purchased to grow your own mushrooms. Full spectrum, multi-mushroom products can also be found online. Best wishes.
MSM
Posted by Nina (Massachusetts) on 08/14/2013
Steve from Las Vegas. I am using magnesium oil and R-lipoic acid, and acetyl L carnitine, fish oil, sunflower lecithin and many other supplements but I am not improving. I will try the nerve regeneration suggestion... Every doctor I speak to tell me there's no cure... Then I see many people curing themselves with supplements...
MSM
Posted by Steve (Las Vegas) on 08/14/2013
Check out the benefits of magnesium oil for neuropathy. You rub it into the areas of pain and it helps to relieve the pain.
MSM
Posted by Steve (Las Vegas) on 08/14/2013
MSM should be somewhat helpful. I believe there are also some good nerve rejuvenation tonics out there like Dr Schulze's. You should be able to find some good nerve rejuvenation tonics on google as well.
MSM
Posted by Nina (Massachusetts) on 08/13/2013
Will MSM help with peripheral neuropathy pain. I have it in my feet, calves, thighs and arms and hands and even get electrical shots in my torso in the middle of the night and on my fingers. I even got one in my eye. It seems to be getting worse.. Thank you for reading...
Alpha-Lipoic Acid
Posted by Stephanie (Ma) on 07/27/2013
★★★★★
In Germany the treatment for peripheral neuropathy is IV alpha lipoic Acid. It's even covered by insurance. Has anybody used this therapy with success? And if so what doesage in mg did you use. Thank you VM.
Medication Side Effects
Posted by Diane (Framingham,ma.) on 07/27/2013
I have hepatitis c and peripheral neuropathy... My neuropathy is very painful with many different types of pain. I have tried everything- believe me... My doctor said I should try fentanyl patches.. They don't bother the liver and will remove much pain.. Does anybody have any experience in this? I just don't want my liver enzymes to go up through the roof. thank you for reading.
Magnesium
Posted by Karen (Tampa, Fl) on 07/23/2013
Bill from Philippines. Looking for a suggestion on which magnesium to take for peripheral neuropathy. I have been taking magnesium malate (280 mgs 3/day) and magnesium chloride (520 mgs 3/day) together with no results with my horrendous calf cramping 2 years worth and counting... I just started taking magnesium citrate 200mg 2/day and think it is giving me diarrhea. I still take the mag malate.
I don't take any calcium. Should I?? and and if so what kind... I'm so confused about forms of different vitamins to take. There are so many... Thank you. I've also been through acupuncture (twice) and physical therapy and got nowhere... Except lost a lot of money. I get cramps 24/7 all over my calves and feet and now my leg biceps.
Electromyography for Peripheral Neuropathy
Posted by Cheryl (Ft. Lauderdale, Fl.) on 07/13/2013
I had it done and refused to complete the test. It is extremely painful.
Borax
Posted by Karen (Good Ole Usa ) on 07/05/2013
Paula,Dr. David Brownstein writes a book Vitamin B12 for Health. He put all of his patients on B12 supplements even if their blood tests revealed within normal ranges. He found in all his years in the practice that the levels that they state may not be the levels our bodies really need. All in all, all of his patients showed remarkable improvements.
Dr. David Brownstein has not taken on new patients in well over 4 years or more. I called to get in there and asked if his partners would accept me. They too are overwhelmed with patients. The receptionist gave me the name of a website that will direct you to doctors that will test your levels and get you back onto the right path. They test for hormones, digestive issues, and vitamin and mineral absorption levels. The bottom line to any health issue is... are you absorbing your nutrients and do you have inflammation going on in your body.
View this webpage --- acam.org for finding a doctor like Dr. David Brownstein recommends. I am forever grateful I found this book and this webpage. I have already went for my first appointment and am awaiting my test results to get my health back onto the right track. Currently my feet are showing signs of neuropathy... And it is so painful!!!!! Blessings to all of you who try to find the cure... and who wish to use natural stuff.
Gingko Biloba
Posted by Mary (Regina, Saskchewan) on 06/28/2013
Hi Bill, many thanks for your in-depth response. Are there any hard and fast rules as regards using ALA, I read an article that said to increase vitamin c and drink lots of water. Any other considerations? Also wondering if you know of anything to regenerate nerves say for sensory nerve damage, I bought helichrysum to apply topically but it just made the tingling hyperactive
Thank you again.
Gingko Biloba
Posted by Diane (Framingham, Ma) on 06/26/2013
Hi Bill, Thank you for the reply. I recently bought 2 bottles of R-lipoic acid. Is it as good as ALA? Also is Acetyl-L carnitine the same as L-carnatine? Thank you again.
Gingko Biloba
Posted by Timh (Louisville, Ky, Usa) on 06/26/2013 2048 posts
Thanks for the info Bill. I started ALA more than a decade ago at 30 mg daily. At that time I got upset stomach or irritations and was limited to that amount. After improvements in digestion, I took a whopping 300 mg 2x tonight with only little irritation. For supplements or drugs that cause irritation I usually take with a bite of food, but to my surprise the ALA is best on an empty stomach, and a few more drinks of liquid seem to help. Lately I pre-dose with 500 mg Vit-C, then 3 gms MSM, then 200 mg ALA for maximum effect.
If I might back up a bit on the facts of ALA, it is, as Bill states, an antioxidant, BUT it is first a metabolic antioxidant, that is, ALA is a key nutrient, and sometimes referred to as a coenzyme, in cellular respiration and energy production.
As an addendum to the health advantages of ALA, I would also recommend supplementing Co-E1 NADH. NADH is the end product of the Niacin vitamin. At one time, I experienced quite profound effects in recovery w/ as little as 5mg daily. Fast forward a few yrs and NADH is available in 20 mg doses. Like ALA, NADH benefits are numerous and worthy of consideration for everyone seeking health and vitality. Here's a link to one of the major proponents of NADH touting the virtues of this coenzyme: http://www.nadh-priceinfo.com/nadh_doctor_birkmayer_interview.cfm
Gingko Biloba
Posted by Bill (San Fernando, Philippines) on 06/25/2013
Hi Mary.... I can't really see a problem with taking ALA with mercury fillings. Personally, I think the arguments for not taking ALA verge on the ridiculous. Here are my arguments pro-ALA supplementation:
If you don't take ALA then the mercury in your fillings will still vaporize and still go down your throat and be stored as a heavy metal in your body anyway.
Is that beneficial to the body?
If you take ALA then, yes, its certainly possible that the mercury could be redistrubuted throughout your body but some of it will also be removed and excreted.
What about the other benefits of ALA?
- ALA is a super-antioxidant that is both water soluble and fat souble -- this means it can act in both fat and aqueous mediums as an anti-oxidant throughout the body. ALA, as an antioxidant, leaves vitamins like Vitamin C and Vitamn E at the post -- these two only act as anti-oxidants in aqueous and fat mediums respectively.
- ALA regenerates used up Vitamin A, C, D, E in the liver and also regenerates used up glutathione and CoQ10.
- The reduced ALA form -- dihydrolipoic acid or DHLA -- also has benefcial action in the body -- mainly used to regenerate used up vitamins.
- Both ALA and DHLA also act to extinguish a large range of dangerous free radicals in the body -- hydroxyl radicals, superoxide radicals, hypochlorous acid, peroxyl radical and singlet oxygen. Hence ALA's anti-aging effect.
- ALA is found in high amounts in young people. These levels reduce considerably at old age. The body needs ALA for anti-aging.
- ALA is a magnificent poison detoxer of the body, particularly useful against deadly fungal afloitoxins and mycotoxins and particularly useful against poisonous mushrooms.
- ALA heals neuropathy problems and helps to heal the liver and pancreas due to its anti-oxidant action.
- ALA chelates heavy metals from fat deposits and from aqueous mediums such as blood and tissue.
- Supplementing ALA discourages cancer forming in the body.
- ALA removes and reduces sugar in the blood. Very helpful for diabetes and other chronic problems.
- Dr Berkson has been using ALA, Selenium and Milk Thistle for many years to help cure Hepatitis C, liver cancers and pancreatic cancers.
Source: The ALA Breakthrough by Dr B Berkson.
I think, perhaps, supplementing ALA has clinched it here since supplementing mercury -- by way of fillings -- will do nothing but extreme harm for the body over time.
And if you want to ensure protection against re-absorbtion of mercury then just supplement Chlorella and eat raw cilantro two or three times a week as a salad. This protocol rapidly removes mercury and other heavy metals from the body (without danger of re-distribution or re-absorption) and also protects against re-absorption of heavy metals from the colon.
Gingko Biloba
Posted by Mary (USA) on 06/25/2013
Hi, I was wondering does Bill have an opinion on the use of ALA with mercury fillings. There seems to be a lot of conflicting articles on the net but I would really like to get his opinion. I know other users have asked this question. I am guessing it is safe to use ALA with medication? Thankyou Bill in advance.
Gingko Biloba
Posted by Bill (San Fernando, Philippines) on 06/24/2013
Hi Diane... Gingko Biloba, cayenne and tumeric will certainly help to open up the blood vessels.
But the strategy that I would use for your Hep C as well as your neuropathy problems would be a combination of Magnesium supplementation (250 mgs twice a day), Alpha Lipoic acid(300 mgs twice a day), Milk Thistle (1000 mgs) twice a day and selenium (200 mcgs twice a day). These supplements should be taken at lunch and dinnertime. These strategies will help to repair the nerves and help to clear the blood of toxins caused by an insufficient liver due to the Hep C. See the Berkson Triple Anti-oxidant Liver Protocol given at this link. Dr Berkson has been highly successful with this combination protocol -- to help cure diseases like Hep C, pancreatic cancer and liver cancer. ALA does much more than just heal nerves. If you want to read about the wide beneficial effects of Alpha Lipoic Acid -- you could do no better than read Dr Berkson's book -- The Alpha Lipoic Acid Breakthrough.
I would also advise that you take B50 complex once a day with higher dose niacin(not niacinamide) at 500 mgs twice a day at mealtimes. The higher dose niacin (flush form) opens up the blood vessels(causing the niacin flush), thereby helping to transport essential nutrients efficiently to all areas the body where they are most needed -- to the nerves at the peripherals of your body -- ie the head, hands and feet. From the research -- taking higher dose niacin in this manner also increases immune system strength by a factor of 2000.
I would also include organic Chanca Piedra in your protocols -- 500 mgs twice a day or just drink the tea form if you can get it. This will further help to purify the blood by reducing excess levels of toxins, lipids, sugars and also helps to lower blood pressure. From the research, Chanca Pedra also kills the Hep B virus which can also be involved (undetected) with and greatly aggravate Hep C infections.
Fish Oil
Posted by Karren (Tampa, Fl) on 06/24/2013
Bill from Phillipines or anyone who knows... I have hep-c and peripheral neuroapthy which I believe was caused by the hep-c.. I read where most people are taking fish oil for P.N. Is Salmon oil just as good and what about the vitamin A I'll be injesting with the oil? I heard that it can be detrimental to my compromised liver... If I decide to take it, what dose whould I consume? Thanks for reading.
Electromyography for Peripheral Neuropathy
Posted by Timh (Louisville, Ky, Usa) on 06/21/2013 2048 posts
Joanne: I have had this procedure twice. It's not nearly as dangerous as other invasive procedures like biopsies or surgery. The pain is not-so-bad, somewhat tolerable; but it sure feels good when it's over. No near or long-term side effects.
