Pulmonary Fibrosis - Editor's Choice

In August of 2021 I went to the emergency room requesting assistance because I had a lack of energy, great difficulty with breathing and just felt bad. I was told to take a seat and I would be seen as quickly as possible.

The next thing I realize I am waking up in a hospital bed and two months had gone by. I had the Delta version of COVID along with pneumonia (which I have had several times in my life). While I recovered quickly from COVID, the lung damage done by pneumonia had caused excessive lung damage and I wasn't able to breathe on my own.

During the initial stay, I was given a tracheotomy to assist in breathing, placed into a medically induced coma to assist in breathing (supposedly I was told because of my age {62} I might not come out of it) and had a gastric tube inserted to provide needed nutrients along with being placed on a ventilator.

My family had been forewarned if I did make it thru and woke up, I could end up being a vegetable because they had no way of knowing if my brain had become oxygen starved while being in the emergency room and not in an actual intensive care unit. At one point in time, the Dr.in charge called my family and told them if they didn't do something desperate, I would be dead in a few hours. My former wife called in a priest who administered last rights and my family started the funeral process on my behalf. Being the royal pain I have always been, I survived and eventually recovered enough to be brought out of the coma.

Spent 2.5 months in the hospital and another month in Rehab having to learn how to walk again. Went home the second week of November.

Had a Pulmonary visit in January of 2022 where I was informed I had Pulmonary Fibrosis and given time, it would take my life. I was also informed I had excessive lung scarring due to the aggressive pneumonia and there was no cure for the scarring and it would get worse as time went by.

I had a laundry list of medications including twice a day steroid inhalers, twice a day Nebulizer treatments, numerous meds and I don't remember any longer what else there was.

I was forced to go on Social Security because I had difficulty just getting up the staircase to my apartment. This sucked!

Stayed with the meds routine and ended up back in the hospital at the end of May 2022 for a week. I was pumped full of steroids and sent on my way. My next Pulmonary appointment wasn't until the first full week of September.

Felt great! .....for about 6 weeks then the congestion started returning and I felt none of the assorted drugs were truly doing any good by the way I felt so I decided it was time to go to plan B.

First hit up this website then started researching medical studies (outside the US) and saw a pattern developing surrounding Hydrogen Peroxide diluted with distilled water and given Nebulizer treatments several times a day.

So I bought a bottle of 12% FOOD GRADE (not that stuff for external use) Hydrogen Peroxide and a gallon of distilled water. Did some basic math and determined I needed to dilute it to 1.5% (to start) and around 4-5 cc's at a time in the Nebulizer. Started doing this twice a day and coughed constantly while using the Nebulizer. The gunk in my lungs were not happy to see this stuff and let me know!

After 3 days of this I could breathe again and I could feel the congestion breaking up! By the middle of August, I felt sooo much better that I could go out for walks again (really short ones).

Kept up with this twice a day until the end of August. Starting in September, I cut back to once a day and increased the dilution ratio to 2%. I was now also increasing my walking distance an it was up to a mile now. Went to my Pulmonologist appointment, explaining what I was doing and got a look like I had just fell off a turnip truck! The Dr.had no idea what I was talking about and couldn't condone it . He suggested I stop this and return to the drugs that weren't doing me any good. Don't hold your breath!

By the end of September I was walking 2 miles a day and had cut back the Nebulizer treatments to once a week having increased the diluted ratio to 3%

In October, cut back to once every two weeks, holding at 3% and increasing my walking to 3 miles a day. By November I was walking 3 miles both morning and evening. Had to stop this because my knees were giving me grief and cut back to walking only once a day.

In December I went in for a Cat Scan of my chest prior to my upcoming office visit with the Pulmonologist in January. By the end of December, I was at 3.5 miles a day in walking forgot more often than not about the Nebulizer treatments.

January 2023 rolls around and I head to my appointment. Met with the Dr.and he had a strange look upon his face. This had me concerned. I asked him if he looked over the Cat Scan results and he said he had (while gently shaking his head). The Dr.told me there was no lung scarring in the lower portions of my lungs and only a small amount up top!

After the Dr.and one of his residents had left the examination room and closed the door I could hear him telling somebody, " I have no idea how he became so dramatically better in only a year". I told him how but, its not part of Western Medicine.

https://www.earthclinic.com/cures/melatonin-for-copd.html

Here are links to studies of melatonin and IPF :

https://pubmed.ncbi.nlm.nih.gov/29567077/

https://pubmed.ncbi.nlm.nih.gov/30445883/

https://pubmed.ncbi.nlm.nih.gov/26122220/

https://pubmed.ncbi.nlm.nih.gov/16313495/

Melatonin is not a one trick pony and has shown efficacy in multiple health issues, yet doctors seem to mainly prescribe it as a sleep aid! If melatonin could become a patented prescription drug, it would be a blockbuster drug for what ever drug company held such a patent!

Art

I am still doing amazingly well. Blood oxygenation varies between 97-99 and I was diagnosed nearly 4 and 1/2 years ago. I have found doctors for a lot of IPF patients. They report back to me that their oxygenation is better and there are no reports of additional fibrous tissue on subsequent CT scans. Pretty darned remarkable! I have not heard back from anyone that didn't get better in at least some way. Some of them, the results have been dramatic, some of them the results were more subtle but at least there was some improvement in one way or another.

Due to the numbers of IPF patients that have stayed in contact, and all the consistent positive changes we have started a study. If interested in the study go to ipflaserstudy.com and check it out. Make no mistake, I nor anyone else claims this to be a cure, because the laser treatment does not appear to remove the fibrous tissue on subsequent CT scans. However, it does appear to arrest the progression of the disease. I would also suggest to IPF patients to join the forum for IPF patients.

Go to PulmonaryFibrosisNews.com It is a forum with caring, loving and supportive people and can be very helpful to you. If you would like to find a laser provider near you go to Klaserusa.com. At the top of the page click on Medical Patient. Then on the far right at the top of the page click on Find a Medical Provider. God Bless everyone dealing with this terrible disease.

Just know there is hope.....

Dr Hall

The laser reduces inflammation with a photochemical process. When treating musculoskeletal problems it heals tissue faster and with less scar tissue. It could be that it is keeping more scarring from taking place, but it is not actually removing it. I still have a cough, but much less frequent and severe. I'm still working and playing hard though looking at retirement fairly soon. I'm 64. The dose with the laser I use is 10 watts, 4 minutes on the front of the chest and 4 on the back for a total of 4800 joules. I started with twice a week for the first month and then went to one treatment per week. I know this is working for me and I feel like I got my future back. If I don't get worse than I am, I can live very healthy for a very long time. My goal is 20 more years. If this post helps anyone else with this horrible disease I will be thrilled. It's wonderful to have hope. Dr Hall

Many here have tried hydrogen peroxide for this condition. Hydrogen peroxide is wonderful stuff but it is only a part of the solution and not a total cure.

Ignore the tissue fibrosis and you will not recover.

There is a component in the blood called fibrin. This is the substance which creates a blood clot when you cut yourself. Without fibrin a simple cut could be fatal.

In pulmonary fibrosis, the lung tissue is under constant attack from a mycoplasma infection and the response from the body is to deposit huge amounts of fibrin in the lungs. This fibrin decreases the available air space and you slowly suffocate.

That's it until you find the answer.

The infection can be reduced by drugs like doxycycline, hydrogen peroxide spray mist inhaled, nano silver mist inhaled, dmso plus crushed garlic inhaled, or gallium nitrate used orally at less than 1% strength. In addition other techniques such as eboo, uvbi, blood electrification, gcmaf, and eating lots of coconut oil all support driving a mycoplasma infection down

But this is still not the answer as none of these things address the tissue fibrosis.

To actually recover much needed airspace there is but one way in the universe to do that effectively. Nothing else works to dissolve tissue fibrosis except systemic enzymes. The strongest one called serrapeptase.

Most types of enzymes even digestive enzymes can help control pain and inflammation but it requires serrapeptase to actually clear the lungs up where fibrin deposits are blocking air space. other enzymes wont touch it.

More enzyme use = greater fibrin removal from the lungs. Less enzyme use =you keep the disease.

Biofilm a thick gummy mucus that coats the lungs drastically reduces airspace. Biofilm typically harbors more than 500 species of bacteria mold yeast fungus and virus plus heavy metals and toxins. We can use hydrogen peroxide to eliminate biofilm but enzymes can do a really good job of that plus break down the fibrin that fills the alveoli air sacs. Serrapeptase also interferes with viral and bacterial growth in a manner very similar to that of antibiotics. When people fail to get well it is often because they have a flaw in their treatment program. Not understanding the role of systemic enzymes in pulmonary fibrosis = no cure.

I was diagnosed with IPF in 2008. Incurable disease, unknown cause, no cure and regrettably not much interest from the medical community. I can think of many possible causes: dust, fungus, pollution, second hand smoke (I'm a lifelong non-smoker) or heredity. Actually again nobody except victims pay much attention to why it occurs. I always figure: figure out the cause; figure out the cure ( ah well...). Anyway I've developed several methods to keep myself alive, the best one of course is unpleasant: Taking a worthy expectorant and after loosening the gunk (fibrin, mucus) in the lungs cough it out; this can be exhausting, particularly in the am after it builds up.

Sharing is all we can do, it's such a battle one day at a time. Diagnosed with IPF for 7.5 years and still only 64, it's been grueling for my family. Keep fighting the good fight folks and "live".

My husband was diagnosed with UIP (Usual Interstitial Pneumonia) in February 2015. Before that for about 2 years he was losing weight and becoming forgetful. After many doctors visits during nothing could be found wrong with him we ended up with this diagnosis. He went onto medication for 1 month and became so ill that within 2 weeks he could not even write. This is a man who previously weighed 82 kg's down to 69 kg's but still very active. My husband made the decision that he was not going to use this medication ever again as it made him so ill. He got this illness due to dust in his workplace.

I started looking for natural remedies and found the Food Grade Hydrogen Peroxide information. I bought it at 35% volume. (This can turn your skin white and lightly irritated - wash with lots of water - but rather use gloves). I diluted the 35% down to 3 % with distilled water and bought nasal spray containers (threw out the medication and washed the bottles and sprays well). Then I started him with the sprays, inhaling through the mouth into the lungs, up to 10 times a day, and within 3 days his coughing was nearly gone and his chest better.

Then I started him drinking the 35% at 1 drop 3 times a day in a glass of distilled water and worked up to 15 drops 3 times a day but he started feeling nauseous and we went down to 12 drops again. I would also put 5 ml of the 35% into a humidifier (fill it with water) and put it close to his side of the bed during the night. All of this was good but I wanted more. I also started feeding him 3 meals a day with lots of nice things to entice him to eat more and gave him two protein and bulk shakes a day. Then I started looking for a medical doctor who works with Hydrogen Peroxide and believe it or not I found her. She is excellent. She was very impressed that my husband was already using Food Grade Hydrogen Peroxide and she gave him a very good physical but then did something that I have never seen any medical doctor do before. She took a drop of his blood (through his finger like a diabetic would do to measure his sugar) - put it under a microscope and showed us that his wonderful body had started producing a lot of red blood cells which could grab every drop of oxygen that came in to transport it where needed BUT unfortunately the red blood cells were sticking to each other and this could cause either blood cloths or strokes - so she immediately put him on a protocol which included magnesium and b vitamins and 2% FGHP intravenously.

My husband started picking up weight and he has painted the house outside, the roof and works hard in the garden. His breathing is fast 22 breaths per minute (I timed him with a stopwatch during the night while he was sleeping a couple of times). (Ha ha I bet you think that I am mad but I am not just anxiety filled stressed and very very concerned about this wonderful man who I have been married to for nearly 40 years). Unfortunately, they have now told us that he has honeycombing of the lungs which is fatal and they (the doctors) see this as end stage. My husband is still working in the garden - very hard - putting in sprayers and sawing off tree limbs very high in the trees etc.

Our wonderful doctor has told us that she cannot cure him but that we will handle everything as it happens. In the meantime, he picked up weight to 74.7 kg (during a holiday while he was not working so hard and eating very well as I was around him the whole day with food and shakes). He does drink serrapeptase and vit c and alkalizer and MSM powder and as soon as the serrapeptase is up we will start with quercetin bromelain. In the meantime, we have had a discussion where my husband chooses quality of life over quantity and instead of crying (although I am very stressed), we enjoy every day that we have.

I hope that this gives some of you with pulmonary fibrosis new hope and or at least something to follow-up on. I myself have a problem with my chest feeling very tight at times and the 3% spray really really helps. God bless you all.

If there is anyone that can give me the name of the gout medication to use I will also let my husband give it a try or if anyone knows of anything that will stop or even turn around the honeycombing it will be very much appreciated.

Blessings, Audrey

A little over five (5) years.. February 2008 I came to the point that my chest started to cave in... You could hear my breathing down the street... I thought I was in the pathway of Going Home to meet my Jesus... Amen...! But something told me to start searching the Net for some type of solution that could either help "me" or just say goodbye...

It was about 3 days after I started taking Hydrogen Peroxide 35% Food Grade... that my lungs started to become normal once again... My breathing was starting to open up once again... My throat and face started to feel much better... About 4 months later I stopped, and I believe approximately 30 days later the latter was returning... so I immediately started taking Hydrogen Peroxide 35% Food Grade...

Since then, I have been wonderment to many people including my Doctors... They at first told me to stop taking H.P. 35% Food Grade, that it wasn't any good for me. I asked them if they had the same disease as mine would you at least try something that might help... Each one at different time shut-up... Now they are asking me how I feel. I tell them all... I'm still here doing all I can to strengthen my ability to stay in the condition until I get better then I am today... The last doctor I talked with, he told me that I had about another 3 to 4 years left... I just turned 70. And I feel good... Amen!

If there is any information that could be helpful, please don't hesitate to contact me...

Jimmy