Cerebellar Hypoplasia
(Thousand Oaks, Ca, Usa)
06/26/2012
Hi Mindy, I know this may not be what you were expecting but since you said any advice would be helpful, I thought I might at least throw this out here. Could I suggest you look into stem cell therapy. I have been coming on EC for a pretty long time so many people are familiar with me. I had major hip issues due to all my years as a dancer. Basically, I had stage 4 osteoarthritis and after 7 years of searching for an alternative to hip replacements and dealing with a lot of pain, I found out about stem cell therapy. It worked! I can walk again. I can't say that I am 100% since I still have some pain but I can walk again, stand and sit easily, etc.
Well, in my research and also talking with the doctors at the center I went to, I found they are having great success with spinal injuries, brain disorders, autism, etc. The doctors told me they especially have very good success with nerve issues, damage, etc. It's not something they tell us about here in this country but it's being done in other parts of the world! In Germany, Spain, China, South America...The strides they are making in this field are absolutely amazing! It would be worth at least looking into if it can give your son quality of life improvement. On the site of the center where I had my stem cell therapy done they even have quite a bit of amazing footage of people on their recovery. If you have any further questions or would like leads, let me know. My heart goes out to you as I have had five of my own children and as a parent, we only want the best for them.
I wish you the very best on your path, Lisa
(Pembroke, Ontario)
06/27/2012
Lisa - I have seen you mention and recommend stem cell therapy several times. While I know you're intentions are good, stem cell therapy isn't something that is easily attainable for the overwhelming majority of people. Not only is the treatment itself very costly, (not covered by insurance) but in most cases, in addition to the expense of the therapy itself, patients are also required to travel outside of the U. S. for the treatments, which adds another huge expense to the therapy.
I'm happy for your success in treating your pain and happy that stem cell therapy was an option that you could afford, but the suggestion that it's an option for everyone isn't very realistic since not everyone could drop $5-10K on travel and treatment.
(Vancouver, Bc)
06/27/2012
Hi Lisa, could you please tell me where did you get the cell therapy. Thank you kindly.
(Thousand Oaks, Ca, Usa)
06/27/2012
Hi Gideon, I felt compelled to write this to you because of your chastising remarks. I would like to say first, I have not recommended this "several times". Actually, only this once.
I did write here to EC when I had my treatment and its success. I strongly believe people needed to know that this actually works and IS out there. We are not told much about it here in the U. S. and upon mentioning it to friends, acquaintances, etc. many have replied they didn't know it was being done or they didn't even know about it! I also have replied to readers here who have requested information because they wanted to pursue this option. Other than that, no, I have not actually recommended it on here until now.
My reasoning for this was, I don't know this person's circumstances, only that she has a 9 year old son whom, I'm sure, she desperately would like to help and find answers for. I know I would and I felt the same for my hips.
Quite frankly, I did not know that stem cell therapy was being done either until a woman wrote about it here on EC and said she had been cured of fibromyalgia with stem cell therapy. It was enough for me to sit up and take notice, then google it on the internet and the rest is history. I am more than aware that it is costly but so is medication, visiting drs. , buying supplements, and on and on. I know, I've done it. When all is said and done, I've definitely spent more than it cost me for my treatment over the course of the 7 years I was searching for an answer to my hip pain!
At least this mom now knows this does exist. It is real and it is an option. That hope alone is worth it. After all, he is only 9, perhaps down the road, it will even become a more viable option. I have a friend who has cheered me on, hoping it would work for me. When it did, she felt so inspired because her daughter who is 13 is deaf and currently, they are working on restoring hearing through stem cells. Her hope is that in her daughter's lifetime it may one day become an option for her! I have had 5 friends follow my lead and none of them are rich! Perhaps it's just values and where we choose to use our money. I work hard and save my money but this was worth trying, knowing I was taking somewhat of a gamble since I didn't know anyone first hand who had had it done. I wanted my life back.
That said, I wish you the best and I hope everyone understands my intentions were to let others know this does exist and it does work since it's not really being given as an option here. The best to everyone in their quest for health, Lisa
(Thousand Oaks, Ca, Usa)
06/27/2012
Hi G.A. , I would be happy to tell you that information. It was in Ecuador and the place is called American Stem Cell and Anti-Aging Center or ASCAAC. You can find them if you google it and also on facebook. They have a center in Trinidad and the Grand Cayman Islands. If you have any other questions, feel free to ask! The best to you, Lisa
(Calgary, Alberta, Canada)
06/27/2012
Hi G. A. From Vancouver - I'm not Lisa (although thank you, Lisa, for telling us how well it worked for you) but there is a Canadian Web site called Stem Cell Network that is hosted by the University of Ottawa. There is an FAQ (Frequently Asked Questions) section that is quite informative.
http://www.stemcellnetwork.ca/
Here's a little blurb for those interested in more information about this not-for-profit organization:
The Network now partners with 145 organizations, including 41 universities, 36 companies, seven government departments and agencies, 43 health charities/not-for-profit organizations, and 18 international stem cell organizations.
They may be able to point you in the right direction.
Good luck! Bess
(Van Nuys, Ca)
08/01/2012
Lisa of Thousand Oaks... I live in the L.A. Area. I'd love more info on the place you got your treatment. After years of pain, being offered antidepressants and Botox, and realizing why people hired Dr. Kevorkian, I 'gave in' and allowed docs to remove 2 muscles in neck and 2 top ribs. Needless to say, I have never been the same and regret having had the surgery. I see an osteopath next week in hopes of sleep filled nights and then some. Peace and well wishes - thanks for sharing.
(Thousand Oaks, Ca, Usa)
08/02/2012
Hi Sunrose, Looks like we're neighbors! I'm sorry to hear you have experienced so much pain. I would be happy to share my information. The place I went to can be found at this website:
http://www.stemcelltreatment.org/
If you feel you would like to talk to my Dr. let me know. I can give you a number so you can speak to him personally. If you give earth clinic your email, I can ask them for it if you don't want to be posting that publicly. Hope this helps, Lisa
(Seattle, Wa)
08/04/2012
(Old Glory, Texas)
06/30/2024
Hi Mindy,
When I was reading your letter, it made me think of inflammation, which I think is behind many unknown health problems. For instance, SPS, what Celine Dion has, I had 25 years ago and EPO (Evening of Primrose Oil), capsules cured it within a week. Can't hurt, might help type of thing.
Jean Baugh
(Chicago)
07/01/2024
Cerebellar Ataxia could be caused by Paraneoplastic Syndrome (PNS), depends on the antibodies.
Celine Dion SPS could be a manifestation of PNS.
Check LDN research Trust site for conditions for which LDN - low dosage naltrexone, could be beneficial. SPS is listed.
Lastly, eye doctors seem to know more about PNS (eyes symptoms are usually present) and are able to diagnose it by ordering appropriate tests than neurologists.
Fibromyalgia
(Fountain Inn, Sc)
02/12/2014
(Lufklin, Tx)
02/12/2014
Hi, Sunflower Girl! The Lisa that you referred to went to Ecuador to have her stem cell treatment. She is now doing very well. In fact, she is a dance teacher and has resumed her full teaching load. My friend also went for treatment, but he went to Jamaica. He was a severe diabetic...on oral medication as well as insulin. He no longer is diabetic and does not take any diabetes meds. Like Lisa, he suffered from arthritis in his hips and knees and used a walker or cane to walk. Now, he needs neither and is able to walk on his own. If you go online, you will find many stem cell treatment centers, but you have to be careful, because some of them are not for real, they only want your money. If you would like more information about the one my friend went to, please email me and I will be happy to share with you. As for Lisa, I haven't seen her on earthclinic for a while, so I don't know about her particular situation.
(Fenton, Michigan)
11/04/2023
I was bedridden from 1999-2006 (7 yrs) w/Fibro. It was many types of excruciating pain-searing joint pain, burning, aching, weak muscles, horrific brain fog, depression, exhaustion, constipation, ligament-tendon hyper mobility and so much more. I slept over 20-23 hrs a day with unrefreshed sleep. I felt like a zombie. researched everything w/the little energy I had. I took RENEW LIFE PARAGONE DETOX for 2months, (KILLS parasites and Candida, rids body of toxins! I also stopped ALL WHEAT products-cakes cookies, wheat pastas, baked goods, sweet stuff, fried, fast, junk food (chips, ice cream and ESP. SODA (we call it pop in MI). I went off dairy 100% except for butter. Only ate organic chicken, turkey,, fish and a ton of green, leafy veggies.. I also take Vit D3-K2, Pre and probiotics, and multi-vit and the PAIN LEFT COMPLETELY. I cut out beef for 6months and added it in sparingly. I've been able to use coconut and olive oil, honey, stevia, monk fruit, and organic oat milk as subs for sugar. Eliminate ALL hydrogenized oils and NO high fructose corn syrup. GO ORGANIC.
Try: Stem cell therapy AFTER, NATTOKINASE, SERRAPEPTASE (if you have no heart valve replacements, mesh, stints, other implanted medical devices)., epsom salt & magnesium (NOT Citrate) potassium and calcium powder baths, oxalaye removal (lemon juice and alkaline water drink w/1/2 tsp. baking soda, walking, Intermittent fasting red light therapy, and massage by an unvaxxed person. Use protocols to help your body if you've been vaccinated and please look up “shedding”-shedding of SARS-COV virus from vaccines.
Please look up ADVERSE REACTIONS TO THE VACCINES!!! I use earth clinic for every ailment and try to stay off meds as much as possible!!
Hips
★★★★★
I started ballet dancing at age 8. I danced my entire life with various companies in various cities and after I retired from the stage, I continued dancing in small studios. This continued until I was in my early 60's.
A ligament in my left hip let go from years and years of dancing and stretching. It caused my pelvis to tilt and it took my spine with it. The pain was excruciating and since I had no idea what had happened I spent several days going to chiropractors and doctors trying to get an answer. Finally, an MRI revealed the extent of the damage. The doctor who ordered it said I'd need a hip replacement and two back surgeries to correct the damage. I knew there had to be a better way and thank God, I found it in stem cell therapy.
I was blessed that there was an excellent doctor in a nearby larger city. He injected my left hip with mesenchymal stem cells and even though there was improvement, I was still in pain. So he then injected my spine as well. After weeks in bed, suffering immense pain, not being able to stand or walk or sit (I could only lay flat), I got up and walked in 8 days. Eight. No pain, no loss of function or flexibility. I was healed.
No, insurance will not cover stem cell therapy but I ask you - What is your quality of life worth? I would gladly have paid 3 times what I did for what I regained. My physical well-being, quality of life and yes, even my dancing were completely back to normal.
That was nearly 10 years ago. I continue to be healthy, physically active and am still doing barre exercises. I take no Rx drugs, I have no ailments and none of my joints or back hurt. I will be 70 in a few days.
I pray this information reaches someone it can help. It was nothing short of a miracle recovery. I tell everyone who will listen, and those who have chosen the same path I did have experienced the same healing.
(Vancouver Bc Canada)
02/24/2024
(South USA)
02/25/2024
Joints
★★★★★
Anyway, my last discovery was from here on Earth Clinic. A woman wrote in saying that she no longer suffered from fibromyalgia and it was because she had stem cell therapy. Someone else commented on how amazing that was but she never responded. I definitely took notice of that not realizing that stem cell therapy was even available. I was under the belief that it was still in the research stages. Then, two days later I was reading a book that was written by a woman whom I have great respect for and have heard her speak 3 times. In her first chapter she says that one of the most exciting fields right now is stem cells. That's when a bell went off in me and I was on it!
I immediately went to the internet to research and upon doing so, found a couple of centers where they were offering it. I wrote and one responded right away. The Dr. offered to call me and talk. He explained everything about it to me. It was a whirlwind of events and within 3 weeks I was off to have the procedure done. Within 3 days after the stem cell therapy I was walking normal again! My pain was dramatically reduced and 4 days later I was ziplining through the rainforest for an hour and a half with my husband and two youngest kids! Absolutely amazing!
I am now back to teaching and it's been 10 days since. I called the dr. yesterday to say that each day there is improvement and the Dr. reassured me that the stem cells will continue to do their work for 6 months and I would continue to see improvements, not only in my hips but, throughout my body! Needless to say, I am ecstatic to have my body back. I look forward to adventures once again! What a miracle and gift to humankind! Life is awesome! Best of life to everyone...
(Cambridge, Ma)
03/31/2012
Wow! That is quite the success story. I'm so happy for you. What I wouldn't give...
I would love to know more about the procedure itself when you have time to elaborate. I would rather hear it from someone here, than read testimonals online, since I know they can be manipulated.
What exactly was involved, and what was the cost? If it was something that insurance would cover, I would be all OVER it!
Good for you, Lisa. What a wonderful, wonderful gift. :)
(New York)
03/31/2012
(Queens, Ny)
03/31/2012
Lisa.... So happy to hear about this great improvement in your health. Amazing story.... Do you think this type of therapy can help people with autoimmune diseases like myself. I am hypothyroid and it seems that no matter what I do differently nothing seems to help. Please advice. At this point, I am ready to do almost anything to regain my health. Thank you so much. Enjoy your newfound health. God Bless.
(Thousand Oaks, Ca, Usa)
03/31/2012
Hi everyone who responded to my post about my stem cell treatment. First, thank you for your good wishes.
Lauren- yes it can help people with autoimmune diseases. They are getting amazing results for so many things it would be hard to go through the list of what can be treated. Basically, stem cells rebuild, heal and regenerate the body. I truly understand what you mean by trying everything and nothing seems to work. Basically, I was at a point of "why not?" I've tried everything else.
Kelly- The procedure was done by extracting stem cells from my own blood which are then put through a process to activate them, re-introduced into my blood stream and some are kept to inject directly into the "problematic" area which, in my case, were my hips. I also requested my knees since they felt as if they were in the early stages of going in the same direction. Depending on what exactly is the individual's issue, they will tailor where to use the stem cells. The doctor explained to me that the stem cells will continue to do the repair work for six months. I will continue to see improvement. As for the testimonials, well, at the center I went to, they video you and have you give a little testimony the third day after your treatment and they say to just be honest regarding your results and how you feel. I know the video up on the website of the center I went to is just how mine was done so, I don't believe anything was manipulated.
Anyway, I'm just so excited to be out of pain! The best to everyone! May life treat you well.
(Cambridge, Ma)
04/01/2012
Hi Lisa - Thank you for your reply. I was referring to testimonals I'd read prior to your post via a Google search in my 'pain relief travels'.
Since I've no clue where you had your procedure done, I could only go by what others had written of procedures they had done elsewhere (results that I couldn't verify the integrity of, since I know results can be manipulated), so I was very interested in hearing your first-hand experience - one that I know, without question, is verified.
You said that the Dr. told you that you would continue to notice improvements over the next six months (how wonderful to know that as good as you're feeling, that it's going to get even better! ) :) But, does that mean you will have to repeat the procedure at some point after those six months for continued relief, or was the procedure a one-time thing?
What about the cost? Was it ridiculously expensive? To me, there is no price I wouldn't pay for relief, but unfortunately, I am not in a position to pay big bucks out of pocket anytime soon, so I was curious as to what the price range was.
I have great insurance coverage and wish (understatement) they would cover this type treatment. And, since I live in metro-Boston - a virtual medical mecca, I'm sure there are doctors here that perform the procedure.
Congrats again on your success with the treatment! :)
(Los Angeles, Ca)
04/01/2012
To Lisa from Thousand Oaks: I'm so excited for your fast recouvery. I also have hip issues and am at my wits end. Have attempted all available treatments without success. I live approx. 12 miles from 1000 Oaks and would be very intersted in knowing where you had the stem cell proceedure done. Pls email me at cgstuff20(at)gmail(dot)com.
Clarity
(London, Uk)
03/07/2013
Kidney Disease
(Thousand Oaks, Ca, Usa)
08/13/2012
(Lufkin, Tx Usa)
09/25/2012
I wanted to send an update about my friend who had stem cell therapy. His procedure was done at the beginning of September, and he has already experienced tremendous pain relief and improvement in his range of movement. Before the procedure, he could walk only a few steps with a walker, but now he can walk with the assistance of a cane only. His kidney function has also improved. Not only that, but his mental attitude has changed a lot. Now, he is so optimistic about the future and is making travel plans for later in the year. I can't say enough good things about stem cell therapy and the encouragement from Lisa from Thousand Oaks. It is really a terrific remedy!
(Mount Pleasant, Tx)
10/03/2012
Pain
★★★★★
(Uniontown, Oh)
09/26/2012
Hi Lisa, So happy to hear that you are having such success with the stem cell therapy. I hope the researchers continue to study this so it can be offered to all the people who would benefit.
I saw your post on making young coconut kefir and wondered if you could be more specific so I can make some? As I understand it, I buy it at a health food store and mix 1/4 C. with (how much?) coconut water and wait (how long?).
Thank you for any information you may know. I have learned so much from your posts.
(Thousand Oaks, Ca, Usa)
09/26/2012
Hi Rsw, I am going to give you a few links on making young coconut kefir. These are from Donna Gate's site whom I first learned about coconut kefir from. She actually created it.
http://bodyecology.com/articles/mcoconutkefir.php#.UGPI_U3A8d0
http://bodyecology.com/articles/secrets-for-making-perfect-young-coconut-kefir.php#.UGPJV03A8d0
I myself do some shortcuts. I buy the raw bottled coconut water from Whole Foods or another local health food store and then I buy a coconut kefir from WF as well. I then, in a separate container, put in a good amount of the raw coconut water and about an 1/8 cup of the coconut kefir and leave it on the counter overnight. This turns all of it into coconut kefir.
I hope this makes sense to you. The second link I gave you will tell you all the benefits of young coconut kefir. FYI, you can just buy it at WF but it's pricey which is why I do it my way.
Best to you... Thanks for your good wishes, Lisa
(Uniontown, Oh)
09/27/2012
Hi Lisa, I've checked with the 5 health food stores from here to Cleveland, including Whole Foods, and no one has the young coconut keifer. I found and bought coconut water with lactobacillus plantarum 299v, which is mentioned on the link you provided. It comes in a quart and is cloudy. It says to drink 1 cup a day. Do you think I could mix it with coconut water or just drink it, as is? I also have some Bubbies saurkraut, or is that completely different? Thank you for your advice. I am nor familiar with kefir, as you can tell. I also hope this can help others who may be interested in this.
(Thousand Oaks, Ca, Usa)
09/27/2012
Hi Rsw, Did you mean on the Body Ecology website? Here's a link to learn more on lactobacillus plantarum:
http://bodyecology.com/articles/new-study-reveals-lactobacillus-plantarum.php#.UGTA8U3A8d0
That should work just fine. Just drink it as is. And yes, Bubbies sauerkraut and pickles will provide you with probiotics as well. Drink the juice as well! It will contain different strains of probiotics. I try to vary my fermented foods so as to get various good bacteria. If you look at good yogurts in the health food store, you will see different strains of bacterias in them. I just bought one over the weekend that had 4 different strains.
You might also enjoy fermenting your own foods. It's super easy to do. You can basically ferment almost anything. Here's a website that teaches you all about it:
http://www.culturesforhealth.com/how-to-videos
This is where I bought my first kefir grains. I learned how to make cultured veggies from Donna Gates, this site and also Sandor Katz who wrote "Wild Fermentation". He's brilliant on this subject:
http://www.wildfermentation.com/
I hope this helps. It is a whole world unto itself! If you have any more questions, I will do my best to answer them. Lisa
(Uniontown, Oh)
09/27/2012
(Thousand Oaks, Ca, Usa)
09/28/2012
Hi Rsw, I'm so glad you found the video helpful. Which kefir are you going to make? The coconut kefir or milk kefir? And did you see the kefir grains which you can get on cultures for health? Let me know how it goes!
I also wanted to give you a link to a very amazing website that tells you all sorts of interesting information regarding kefir and its benefits:
http://users.sa.chariot.net.au/~dna/kefirpage.html
I find it fascinating and have learned so much about it. Here you will find a list of all the microflora found in kefir:
http://users.sa.chariot.net.au/~dna/kefirpage.html#microflora
Best of health to you, Lisa
(Uniontown, Oh)
09/29/2012
Hi Lisa, I think I will try the water kefir grains because I have never liked milk very much. I read that putting the grains in coconut water will eventually make them mushy and disintegrate, so I'll wait until I have extra (which doesn't seem to take long) and then do that. I'll post how it's going after I have used it for a while. Thanks again!
Stem Cell Capsules
Pamlidford: Mesenchymal Stem Cells is used predominantly for replication of damaged tissues where other therapies proved fruitless. I would recommend trying other natural remedies (as found here on E.C.) first. Many cases of arthritis is caused by infection, which causes inflammation, which causes cell damage and the inability to proper repair. So do remedies that beat the infection as well as inflammation. Zinc & Vit-A will be necessary taken orally for the skin. Comfrey Leaves applied directly over the injury will promote new healthy cells.
Once you have progressed in beating the inflammation and pathogens, try Growth Hormone Therapy (HGH or sometimes referred to as IGF-1). Some practitioners have noted much greater response combining Stem Cell & HGH. Omega 3 fats like Fish, Krill, and Flax Oil will be top priority on your regimen as they both reduce inflammation and have remarkable and little known growth factors. Chlorella also has natural growth factors. Magnet therapy is powerful inflammatory. A common refrigerator magnet will work on the skin but a much stronger magnet will be necessary to penetrate the joints.
(Nebraska)
08/05/2017
Stem Cell Doctors
(Thousand Oaks, Ca, Usa)
04/03/2012
Hi Lauren, I know it can be a bit overwhelming. To be honest, I was really at the end of my rope in terms of finding answers to my hip pain. I actually was in stage 4 osteoarthritis. Still, hip replacements was never my choice. It had been 7 years of a search and it all seemed to end in disappointment. Still, on the bright side, I have learned a tremendous amount on my quest!
The first thing I did was start reading about the treatments, then I started looking at the various centers, then I began writing and inquiring. No one responded except for one Dr. He emailed me first asking what exactly was my issue and then asked if he could call me because his answers would be too extensive to have to type. I was excited that he was willing to call me. When he did, I had a battery of questions for him of which he answered patiently with analogies, humor, intelligence and a true sense of caring. He was extremely knowledgeable and said he'd been doing stem cell work for over 20 years and spoke all over the world on this subject.
I also went on their website and watched the videos of the different people that had been treated for various reasons and read testimonies. One of which described, almost to a tee, my same situation regarding her hips. That was very reassuring- she was seeing results and had met someone at the center while she was there who had been treated for the same thing and they had seen results. So, as a whole, that's what made me choose the place I went to. If you want, you can google American Stem Cell and Anti-Aging Center and you should find it. I spoke to the doctor just the other day to tell him I was pleased with my progress and voiced my concerns. He informed me that last week, they opened a brand new state of the art facility in Trinidad that he was very excited about. I went to the center in Ecuador.
Anyway, I hope I have answered your questions. If not, feel free to ask away! Wishing you the best...
