Cure Cystic Fibrosis Naturally

| Modified on Mar 01, 2022
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What is Cystic Fibrosis?

Cystic fibrosis, otherwise known as mucoviscidosis or CF, is a hereditary disease of the mucous glands that critically affects the lungs, as well as the pancreas, liver, and intestines. Due to an overproduction of mucus, CF can cause frequent chest infections, coughing, and shortness of breath. Other symptoms of Cystic fibrosis are salty tasting skin, poor growth or weight gain due to poor nutrient absorption through the intestines, and bowel obstruction in newborns.

Cystic fibrosis worsens over time, and management of CF is centered around controlling and limiting lung damage and the decline of other organs. Though people suffering from CF can live much better lives now than in comparison to thirty years ago, oftentimes organ transplantation (usually double lung, but sometimes pancreas or liver as well) can become necessary to their survival. Cystic fibrosis can cause infertility in both men and women; in men there is a congenital absence of the vas deferens, while in women pregnancy is made difficult due to thickened cervical mucus or disrupted ovulation due to malnutrition.

Natural Treatment for Cystic Fibrosis

The purpose of this page is to allow users to share their experience with natural treatments for CF, and we are currently open to learning more about what people are using to cope with cystic fibrosis symptoms. Currently, users have reported positive results with hydrogen peroxide and Himalayan Salt. Research also suggests that vitamin E supplements can help moderate cystic fibrosis symptoms.1 If you have a home remedy you use for cystic fibrosis, or have tried a remedy on this page, please let us know about your experience.

References:
1http://www.ncbi.nlm.nih.gov/pmc/articles/PMC372361/


The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.

Apple Cider Vinegar

Posted by Michael (Wilder, Ky) on 07/27/2010

Has anyone tried using Apple Cider Vinegar for helping some of the problems associated with cystic fibrosis?

Replied by Stacy
(Antioch, Ca)
05/15/2011

i just found this site seeking info for my husbands kidney stones and when I saw your headline treatment and cure for cf as a mother of a cf child my heart sank. I plan on getting my son started on a mild Apple Cider Vinegar regimin due to fear of kidney stones he has excesive vit a and deficient in d. Lungs are surprisingly awsome but digestive is bad many many pills to digest food must be taken. it is incredibly hard to believe he is overweight thanks to an appetite enhancer called megace which saved his life very young. He had a food tube placed but it made him very ill and by the grace of god we found a dr to remove it and that dr gave him megace after that we have been sailing very well he is not required to take it anymore due to his weight gain and we are very pleased with his lungs. I wish anyone well whom suffers or knows someone whom suffers with cf. I hope this info may help someone.

Replied by Holly
(Calgary, Alberta, Canada)
01/20/2012

Stacy, I just read your post, as I am an avid EarthClinic reader and a Mom to a beautiful child with CF. I had started an ACV reginem with my Daughter earlier in the year (2011), however, we noticed her digestive enzymes were becoming less effective. As it turns out, the vinegar was helping the enzymes release in her stomach (too early) instead of in her intestines, where they work to their full potential.

I do hope you are having no ill effect of using ACV, I thought it may be helpful to share what had happened to us. My four other healthy children take ACV with no known problems.


Curcumin

Posted by Lawmd (Atlanta, Ga) on 11/23/2013

I am an allopathic medical student doing a fellowship in integrative medicine. I thought I would share that research into treatment for cystic fibrosis has shown curcumin (found in turmeric) to help with the most common genetic mutation (deltaF508). Curcumin inhibits a calcium pump in the endoplasmic reticulum, which impairs the ability of the mutated deltaF508 protein by the calcium-dependent chaperone which would normally allow for proper folding. Experimental animal studies have shown that animals treated had a normalization of chloride transport in the gut and nasal epithelium and dramatically increased rates of survival. (pg 402, Genetics in Medicine).

I don't know what if any human research has been done and I suspect that curcumin isn't profitable enough for much additional research. I'm not recommending any dosages or that anyone try curcumin, but I think people searching for help with cystic fibrosis should have this information to do with as they see fit. I personally take tumeric daily, and if I had CF, I would definitely give it a try.

I hope this helps!

-J. Law, Atlanta, GA (MD candidate)

**Thanks to the folks who love to sue and those who hate alternative medicine, I am inclined to pass on the following advice to cover my rear.**

"Physicians should counsel patients with cystic fibrosis to refrain from rushing to the health food store to buy curcumin."- New England Journal of Medicine

My sources are cited below. There are quite a few articles that have been done on this, these are just a few.

Zeitlin, P. (2004). Can curcumin cure cystic fibrosis?. New England Journal of Medicine, 351, 606-608.

Egan, M. E., Pearson, M., Weiner, S. A., Rajendran, V., Rubin, D., Gl?ckner-Pagel, J., ... & Caplan, M. J. (2004). Curcumin, a major constituent of turmeric, corrects cystic fibrosis defects. Science, 304(5670), 600-602.

Berger, A. L., Randak, C. O., Ostedgaard, L. S., Karp, P. H., Vermeer, D. W., & Welsh, M. J. (2005). Curcumin stimulates cystic fibrosis transmembrane conductance regulator Cl–channel activity. Journal of Biological Chemistry, 280(7), 5221-5226.

Replied by Margaret
(Oceanside, Ny)
10/12/2014

Hi thank you for your input about turmeric. I have, also, heard about many benefits of it for everyone. May I ask how you use it? I'm having a hard time finding out how to add it to my daily diet. Thank you so much!!

Replied by Mmsg
(Somewhere, Europe)
10/13/2014

Margaret, I fill my own capsules (you can buy empty ones). I also put in a few grains of black pepper, since it is said to enhance absorption. And take the capsules with something oily (coconut oil?) as it works with oil.

Replied by Om
(Hope, Bc, Canada)
10/13/2014

Hello, Margaret (Oceanside NY)

There is a lot of confusion by western people on Turmeric. This taking with capsules does little. The way everybody takes it in India/Asia is with oil and other herbal spices also in milk. Western dairy is poisoned. You could use almond or coconut milk.

First of all, whatever I have studied for years while giving Introduction to Ayurveda, there never was any mention of pepper " to make it absorbable". Not one of the many books, or people I have talked to.

This is because western people are not aware that all foods/medicines according to the basic principles of Ayurveda are classified by their dry or sweet or salty or hot or cold nature. (just briefly). Food should thus be tailored for the individual dosha, especially in the young, elderly or sick.

Turmeric according to some professional opinions, is neither hot nor cold in nature. That is why it is good for any dosha. Dosha is the individual chemical predominance and mixture of the individual human body but pervades everything in creation.

To be able to do its good, this herb has an affinity to oily substances like ghee or other natural oils. It will thus not disturb the balance in individual bodies. To add pepper would be disturbing and unbalancing some dosha like the pitta (fire) dosha. Most people in the west are of the pitta dosha. So you see, there is no thing as one shirt fits all at all in Eastern Medicine.

For healing wounds, if the wound is dry, use coconut oil with turmeric . If the affected area is wet, use the dry powder.

But capsules are a western convenient thing and in my opinion, do very little.

So the idea to add pepper to turmeric is somebody's fancy?

To make best use of turmeric put a half tsp. of turmeric into a ladle adding some olive oil or coconut oil or ghee into the ladle. Hold the bottom of the ladle into hot water or soup as you do the cooking and when dissolved in the oil, pour over your veggies, soup etc. That is the best way to do it. You can also warm and dissolve the t. in the pan , then adding the food to cook but the oil will be exposed to much heat. Knowing after some study that pepper has no place in this process, it can be added individually or later during the cooking process in the food but it will not be of use to make turmeric more "absorbable".

There are books available for study and info online. Ayurveda will be the medicine of the future but the time is not yet, though soon. Space will not allow more info. but is available on search.

Namaste, Om

Replied by Aprop
(Us)
05/27/2015

"Western dairy is poisoned" is a SEVERE understatement.

Replied by Cynthia
(Usa)
11/15/2015

This is the study where the pepper and increased absorption comes from.

http://www.ncbi.nlm.nih.gov/pubmed/9619120

Replied by Nancy
(Cleveland, Ohio)
05/01/2017

Thank you. As I become more resistant to antibiotics, I continue to look for anything that may help reduce inflammation or infection.


Cystic Fibrosis Remedies

Posted by Robert (Huntington, Indiana) on 04/29/2013

Will you help me find a natural cure for cystic fibrosis?

Replied by Joy
(Battleground, Wash)
04/29/2013

Dr. Batmanghelidj wrote two things about it in his book ABC OF ASTHMA ALLEGIES & LUPUS and if you have CF, ... I encourage you to read all his books for improved overall health.

Replied by Joy
(Battleground, Wash)
04/29/2013

Adding to my post, I wondered about magnesium for CF and they warn them not to use mag and I wondered why and Carolyn Dean has some info on magnesium and Cystic Fibrosis on her magnesium site. Salt, mag and calcium and potassium all need each other to do what they do in the body.

Dr. Batman was talking about salt retention and mag association and that seems to be an important connection because salt thins out muscus secretions and CF is thick mucus I think....

I really don't know much at all , and did terrible in science and biology in school I have just been sick and looking for answers.

I wonder if someone with CF could take the epson salt and baking soda in bath 1/2 cup of each and feel some relief ? Or would it hurt them?

Hope you find every answer you need.... Love, Joy

Replied by Sparlow
(Cardiff, Uk)
04/30/2013

I'd recommend investigating the gluten link with CF. Giving up all grains can have a miraculous effect.. read Breaking the Vicious Cycle by Elaine Gottschall for the why's, wherefores and recipes.


Himalayan Salt

2 User Reviews
5 star (1) 
  50%
1 star (1) 
  50%

Posted by Anon (Hanover, Pa) on 05/06/2012
★★★★★

Himalayan Salt Brine. I am a 31yr old female with CF. I've been drinking Himalayan salt brine for 6 months now and my PFT's have improved and overall feel very good. Also I have Himalayan salt lamps placed throughout my house and use Himalayan salt on my food, not table salt. Also there is a Himalayan salt cave close to my house that I visit approx 2 times per month. Hopefully this helps someone out there.

Replied by Usmcwannabe
(Chicago, Il)
05/07/2012

Hi Anon from Hanover, Pa, I have read about Himalayan salt brine working for people with all lung ailments. I'm wondering where you get Himalayan salt brine from organic health food store, regular grocery store. Also what you do with it how much you use. Also how long it took for improvements. Because I need to "pass" a pft for the military. I'm at low 80% and the doctor said I may have borderline obstructive lung diease. I'm desperate for help.

Also have you tried Oil pulling or ACV? Thanks!

Replied by Jennifer
(Sunrise, Fl, Usa)
05/07/2012

Trader Joe's used to sell (not sure if they still do) Himalayan Pink Salt in a grinder. I'm sure you could also find some online. - Jen

Replied by Susan
(Hanover, Pa)
05/10/2012

Hello. I buy my Himalayan salt online, either from san franciso salt company or himalayan salt cart.

I make the brine myself. Using a glass jelly jar put 1 inch of himalayan salt in the bottom and fill the rest of the jar (about 3-4 inches) up with spring water, I use deer park. Let it sit for 24hrs and if there's still salt in the bottom of the jar it's ready to drink. U always want salt left in the bottom of the jar, then when your water runs low just refill the jar 1 inch of salt on the bottom and fill the rest w/ water. If you google himalayan salt brine all this info will come up.

I started out using 1 tsp a day w/ 8 oz of water. I did that for 2 wks then I bumped in up to 2 tsp w/ 8oz of spring water. I've been doing that now for almost 5 months.

U do this 1st thing in the morning before u eat or drink anything. Drink your brine w/ spring water and wait 10 minutes before eating or drinking anything else.

I noticed a difference in my breathing in about 4 wks. Now 5 months later I feel a big difference. Normally my FEV1 runs in the mid 40's% but this past winter was basically cold after cold for me so my FEV1 went down to the upper 30's%. I was around 38% for about 4 or 5 months and I couldn't get back to the 40's. So my Dr wanted me back in a month to recheck. During that month I started the salt brine, went back in 5 wks and my FEV1 was 50% my doc couldn't believe it. Up 13% in 5 wks without any antibiotics or other drugs. I actually just went back for another PFt Wednesday (2.5 months from 50%) and it went up to 51%. So I'm still higher than my usual 40's%.

Hopefully this helps. Good luck!

I've never tried the other things you've mentioned.

Replied by Kathy
(Wyoming, Pa)
11/27/2012

Hi Anon, I live nearby in Wyoming, Pa. I too use and my daugher (who has 2 girls with CF) Himalayan salt lamps. Im intrigued by where is there a salt cave nearby. Im also interested in your salt water mixture for drinking. Thank you

Replied by Mary
(Ny)
06/12/2013
★☆☆☆☆

WARNING!

I am a critical care (certified) RN with 24 years experience. During that time I have seen several patients admitted for a high alkalosis condition brought on by regular (daily) ingestion of Himalayan mineral salt or baking soda. The mineral salts have a pH around 8.4. These patients required immediate placement of a breathing tube and mechanical breathing support. The normal pH of the blood is a very narrow 7.35 to 7.45. This balance is necessary for the proper functioning of all organs (think heart! , brain!), furthermore this balance is delicately managed by the lungs and kidneys and it takes the body far longer to respond to and correct high alkolosis than it does high acidosis. Proper pH testing and monitoring should be performed while using this type of therapy.

Replied by Steve
(Cape Breton, CA)
08/11/2014

Hi... Just wondering how you mix the himalayan salt drink!

Replied by Haider
(Pakistan)
12/08/2014

Hi, I'm from Pakistan and we have world's 2nd largest Himalayan salt mines in Khewra, Pakistan. I can assist sending salt and salt lamps. My daughter is also CF and now plan to take her to Khewra and using himalayan salt.

http://en.wikipedia.org/wiki/Khewra_Salt_Mine

Replied by Jennifer
(Louisville, Ky)
01/07/2015

I would like to get in contact with you about getting salt from the mines. Thanks

Replied by Lorna
(California)
09/11/2017

Did it raise your blood pressure?


Hydrogen Peroxide

1 User Review
5 star (1) 
  100%

Posted by Susan (USA)
★★★★★

03/12/2012: Tf4624 from Usa, Wi, Usa writes: "Causes of cystic fibrosis (low O2 pressure in cells of the body leading to malfunction of ionic pumps that transport ions and water across epithelial layers)
Causes of low body oxygenation (ineffective breathing patterns) confirmed by numerous studies
Crucial lifestyle factors that leads to ineffective breathing.

What is the cause of cystic fibrosis? The cause of cystic fibrosis on a cell level is simple and clear: tissue hypoxia or low oxygen levels in body cells. This makes complete sense since ionic pumps require oxygen, and it has been known for decades that chloride and other pumps are ineffective in conditions of tissue hypoxia even in normal people (Clerici & Matthay, 2000; Karle et al, 2004; Mairbaurl et al, 1997; Mairbaurl et al, 2002).

However, there are even more specific findings. It was recently discovered that CFTR mutation gene (cystic fibrosis transmembrane conductance regulator) is controlled by levels of oxygen in body cells in a dose dependent manner (Bebök et al, 2001; Guimbellot et al, 2008; Yeger et al, 2001; Zheng et al, 2009).

These revolutionary discoveries force us to reconsider the real causes of cystic fibrosis. It is not just a genetic disease. Advance of cystic fibrosis requires low oxygen levels. Normal oxygen levels do not allow development of main symptoms of cystic fibrosis related to thick mucus and respiratory infections. What is the cause of low body oxygenation in people with cystic fibrosis?

All available medical evidence have shown presence of chronic hyperventilation in CF patients, while medical research confirmed injurious effects of alveolar hypocapnia on lung tissue. Furthermore, medical doctors from the Department of Medicine, University of Texas Health Science Center in Houston in their publication "Importance of respiratory rate as an indicator of respiratory dysfunction in patients with cystic fibrosis" observed that "Respiratory frequency was increased in the patients with cystic fibrosis compared with a group of healthy control subjects, as was minute ventilation and mean inspiratory flow. Respiratory frequency was a sensitive predictor of respiratory dysfunction" (Browning et al, 1990).

http://www.normalbreathing.com/cystic-fibrosis.php

http://www.amazon.com/dp/B00793UMNQ

Food grade 35% H2O2 Can and is the answer to disease including your issue.
H202 kills the virus/bacteria/microbe by blocking its portein, in which it need to survive.. By closing in on it it suffocates to death. Once in contact of the diseased cell it will kill it within 6 min but reverts the cell back to normal, leaving no side effects to the cell itself, based on years of experience, myself and reports from thousands of users. The program is not carved in stone and keep in mind that it can be adapted to fit individual needs. Individuals who have had transplants should not undertake an H202 program. H202 stimulates the immune system and could possibly cause a rejection of the organ.

Must keep refrigerated. Must be FOOD grade 35% H202.. Keep out of sunlight. Must be mixed in GLASS. Not plastic Recommend that you chug it at once.. Max life in glass is about 15 minutes.. After such time it will be useless once you drink it. (must Dilute.. Do NOT drink straight Min. 6 ounces or more of Distilled water MUST BE used
Day # -Number of Drops/ Times P
Day # -Number of Drops/ Times Per Day (bye a dropper bottle to keep it in.. Must be the dark Glass version)

  • 1 - 3 / 3
  • 2 - 4 / 3
  • 3 - 5 / 3
  • 4 - 6 / 3
  • 5 - 7 / 3
  • 6 - 8 / 3
  • 7 - 9 / 3
  • 8 - 10 / 3
  • 9 - 12 / 3
  • 10 - 14 / 3
  • 11 - 16 / 3
  • 12 - 18 / 3
  • 13 - 20 / 3
  • 14 - 22 / 3
  • 15 - 24 / 3
  • 16 - 25 / 3

Maintenance Dosage
Reverse the above starting at 25 drops 3 times a day till you get back to 3 drops 3 times a day.. This is your normal maintenance dosage.

This can then be reduced to between 5 and 15 drops per week based on how one feels. Those with more serious problems will often benefit from staying on 25 drops three times a day for one to three weeks, then tapering down to 25 drops two times daily until the problem is resolved (possibly as long as six months, depending on what your treating, everthing is different). Those with chronic systemic Candidiasis may need to start with 1 drop three times a day, then 2 drops three times a day before starting the above schedule. It is important that H202 be taken on an empty stomach. This is best accomplished by taking it either one hour before meals or three hours after meals. If there is food in the stomach, the reaction of H202 on any bacteria present may cause excess foaming, indigestion, and possibly even vomiting. Additionally, some animal research indicates that when H202 given orally combines with iron and small amounts of vitamin C in the stomach, hydroxyl radicals are created (J Inorg Biochem 89;35(1):55-69). The bleach-like aftertaste of H202 can be lessened by chewing one of the sugar-free cinnamon gums. Some individuals taking H202 immediately before bedtime have a difficult time getting to sleep. This is probably due to a sense of alertness triggered by an increase of oxygen at the cellular level. The oral dosage schedule is basically the same for all conditions. There are several points to keep in mind, however.

Some individuals may experience upset stomach. If this occurs it is recommended that one not stop the program, but rather remain at the current dosage level or reduce it to the previous level until the problem stops. (Some patients have been able to solve the nausea problem by taking three or four lecithin capsules at the same time they take the H202. ) During the program it's not uncommon to experience what is known as a healing crisis. As dead bacteria and toxins are released from your body it may temporarily exceed your capacity to eliminate them quickly enough. In some individuals this overload may cause fatigue, diarrhea, headaches, skin eruptions, cold or flu-like symptoms, and/or nausea. One should not discontinue using the peroxide to stop this cleansing. By continuing the program, toxins will clear the body sooner and this healing crisis will pass rather quickly.

If you are not already taking vitamin E and an acidophilus product, I recommend starting them before going on H202. Vitamin E can make more efficient use of any oxygen available and acidophilus will help re-establish the beneficial bacterial flora in the lower bowel and also help in the internal production of hydrogen peroxide.""
H2O2 USE FOR CYSTIC FIBROSIS

Replied by Michelle
(Canada)
05/29/2013

I have cystic fibrosis & have started ingesting 35% food grade HP as indicated. I am curious to know if I should also do the inhalation method & if its safe to do both at the same time? How do I dilute the 35% FGHP to 3% for inhalation? Is it recommended to use store bought 3% HP? Once diluted (35% FGHP) it is only effective for 15 mins - does this also refer to the inhalation method?

Replied by Jean
(New Park, Nh)
06/04/2013

Michelle from Canada: There's lots of info right here on Earth Clinic about the inhalation method.

https://www.earthclinic.com/remedies/hydrogen_peroxide_inhalation.html

Nasal Spray:

Mix 1 Tablespoon of 3.5% diluted hydrogen peroxide solution with 8 oz (1 C) of distilled water for use as a nasal spray. Use 2-3 squirts of this nasal spray throughout the day when you start experiencing signs of congestion. Better yet, try it daily and see if it helps ward off congestion during the cold and flu season.

http://www.educate-yourself.org/cancer/benefitsofhydrogenperozide17jul03.shtml

Replied by Allison
(Seattle, Wa, Usa)
07/05/2013

This is in repsonse to Michelle from Canada. I also have Cystic Fibrosis and I would like to know how FGHP has helped you. Have you tried it in your nebulizer yet or still taking it orally? I just got my bottle of FGHP today and I can't wait to start tomorrow!! I'm so tired of the constant antibiotics. I have an enlarged liver and I believe its from all the antibiotics that I've been on throughout the years. Just curious to hear from someone with cf.

Replied by Allison
(Seattle, Wa, Usa)
07/06/2013

I just got my blood work back from the hospital and it states that I'm positive for MRSA. I have cystic fibrosis. this is not the first time I've had it and I believe I got it from the hospital a couple years ago) I just got off 2 weeks iv meropenom (3x/day) and Tobramycin (1x/day). The blood test was BEFORE my course of antibiotics. I'm wondering if the iv meds killed the mrsa or not. I have an appt in 2 days where I can discuss this with my doctor. But what I'd like to know is if FGHP inhalation therapy kills MRSA. I just started my therapy today and have had great results. I plan on doing it and will write in to let everyone know how it's worked once a couple weeks has past.

Replied by Anon444
(Florida, US)
08/21/2014

Do you ladies have any update on how using food grade hydrogen peroxide has helped your Cystic Fibrosis?

Replied by Louis
(Newport Beach)
08/16/2016

How far apart should the doses be spaced?

Replied by Sandra
(Usa)
06/23/2021

I know this is an old post but I have some questions for you, could you please reply if you are still on Earth Clinic? Thank you so much!


Lobelia

1 User Review
1 star (1) 
  100%

Posted by DeltaF508 (Northern California) on 01/23/2008
★☆☆☆☆

THE HERB LOBELIA. I heard about this herb on this website. I have been experiencing "cystic fibrosis" ever since i was born, and this herb called "lobelia" is a bunch of bullshit. It was not cured. Apparently cystic fibrosis is a genetic disorder, and cannot be cured with somehting as simple as an herb no matter how magical anyone makes it sound. 3 spoonfuls every 8 hours and you won't be cured in any time at all. No matter what amount i took, nothing changed. My pseudomonis didn't go away, i still have weight gain issues, i still have to take enzymes whenever i eat, i still have to do 5 breathing treatments a day, and i still have to take daily antibiotics. The list goes on about what hasn't changed. It was a waste of money and time. Thanks for posting this, I hope to help other people out from my experience.


Oil of Oregano

Posted by Clegg (Dublin, Ga) on 05/25/2017

Oil of oregano (OoO) is the earth's most powerful antiseptic/antibiotic/anti-bacterial/anti-virus distillation. It then doubles-down as the earth's most powerful anti-inflammatory concoction. To cap off the trifecta of natural remedies/cures, OoO is a powerful antisthetic pain killer, 100% Wonderfully natural.

Our second-born grandson Elijah (Born 5/3/17) has been diagnosed with CF via his first "sweat" test at 2 weeks of age. He definitely bears many of the trademark symptoms and both parents were tested to be carriers. Scottish Rite/Atlanta has assigned a team and have provided strong enzymes as an immediate measure. His pancreas is not functioning properly, so cannot "milk" his food of nutrients. Even so, we do not despair.

We will counter CF's insidious attack on Elijah's life, aimed to deprive us all of the God-given vitality of a baby boy growing into a man, potentially a father himself - YES! We will fight this disease with all available resource and at any expense even to our limit.

Our primary offensive will be Oil of Oregano (OoO) - we have placed room diffusers above Elijah's station in both of the room areas he now occupies and are misting OoO mixed with other essential oils on a steady, almost non-stop basis. His older brother Ezekiel (my best buddy! ) will greatly benefit from this essential OoO misting, as will all in their home. We are BELIEVING that we will be able to report improvement in Elijah soon and, eventually, a complete delivery from the ravages of CF - both for Elijah and for his family. Prayer for his healing - and for the discovery of a cure for many more - are solicited and will be greatly appreciated.

Replied by Art
(California)
05/27/2017
2340 posts

In reply to Clegg (Dublin, Ga),

The oil of oregano is certainly powerful and I hope it is the answer for your grandson Elijah!

On a related note, I thought you might find the below case study interesting.

If you scour the CF message boards, you will find that once you get through the negative comments from people who have never used quality colloidal silver, the people who have used it orally, through a nebuliser and through a sonic vaporizer have found it quite helpful at ameliorating CF symptoms as well as improving quality of life.

Art

==================================

J R Soc Med. 2008 Jul 1; 101(Suppl 1): 51–52. doi: 10.1258/jrsm.2008.s18012PMCID: PMC2443992

Colloidal silver for lung disease in cystic fibrosis

VR Baral, AL Dewar, and GJ ConnettRegional Cystic Fibrosis Service, Southampton General Hospital, Tremona Road, Southampton, SO16 6YDCorrespondence to: Dr Gary Connett [email protected] or Dr VR Baral [email protected]Author information

Introduction

Cystic Fibrosis (CF) families commonly consider alternative or complimentary therapies of questionable value. We report the case of a 12-year-old boy with severe CF lung complications who was treated by his family with colloidal silver.

Case report

The child was diagnosed aged two (homozygous ΔF508) following investigations for faltering growth. He had extensive left lower lobe bronchiectasis and positive Pseudomonas aeruginosa cultures at diagnosis. This organism persisted despite aggressive IV antibiotics, long term nebulized colomycin, bronchoscopy and a prolonged in-patient stay. Aged three he developed pseudomembranous colitis requiring prolonged intensive care. Aged six he developed severe, steroid-dependent, relapsing allergic broncho-pulmonary aspergillosis (ABPA) and right mid-zone bronchiectasis. Atopic asthma also proved increasingly problematic, with evidence of sensitization and wheezing in relation to several aeroallergens, including house dust mite and cat. He had a significant step up in FEV1 after a trial of rhDNase (pulmozyme) and this drug was added to his treatment regime. Spirometry plateaued around 60%, with frequent deteriorations caused by wheezing episodes and infective exacerbations. Aged 10 his FEV1 deteriorated to 40% predicted with severe episodic wheeze. A Brompton referral was made to consider monthly IVIG therapy (not given) and regular IV antibiotics and aggressive ABPA treatment were recommended.

Aged 11, the patient isolated Burkholderia multivorans and Stenotrophomonas maltophilia. Pulmonary status deteriorated to an FEV1 of 24%. In March 2006, he was treated with prolonged IV and oral antibiotics, steroids and antifungals. Lung function recovered to around 40% but he remained markedly symptomatic, with persistent cough, breathlessness and wheeze after physical activity. Because of these complications he was referred for heart–lung transplant assessment.

At the same time, the family discovered websites promoting colloidal silver for CF and purchased the product from their local health food shop. They independently commenced 2.5 mL b.i.d. of the solution in July 2006. Over the next three months the patient achieved a sustained improvement in symptoms, which persisted following weaning from oral steroids, nebulized antibiotics and regular asthma medications. He has continued rhDNase treatment. FEV1 peaked at 60% (Figure 1). The family declined transplant assessment. He remained well for a year, enjoying a skiing holiday, full participation in school rugby matches and significant improvements in his golf handicap. He required only one further course of IV antibiotics until a recent deterioration coinciding with temporary interruption of colloidal silver for a month. Whereas sputum samples had consistently isolated B. multivorans before receiving silver, there had only been one further positive isolate during the year when he received it. He has remained well for a further six months after resuming colloidal sliver, with no other changes in his routine care.

Figure 1Figure 1 FEV1 over timeGo to:

Discussion

Silver is a xenobiotic absorbed from skin and mucous membranes of the gastrointestinal and urogenital tracts and lungs. It is excreted from the body in the urine and faeces. It was one of the first ‘antibiotics' in medicine and remains in use in the treatment of burns and wound care. It is also a constituent in heart valve, orthopaedic and dental prostheses. Colloidal silver use declined markedly following the discovery of penicillin and sulphonamides, reports of argyria (i.e. staining of the skin with silver sulphide and silver selenide) and questionable efficacy. Case reports have described possible nephrotoxicity and neurotoxicity, 1but these have not been substantiated by studies in animal models.2 It has been superseded by silver sulphadiazine and sustained-release dressings in wound care.

Silver is freely available via the Internet and health food shops as an oral preparation. The actual dose in preparations that are available is unregulated and there are continuing risks of agyria. A recent case report has described skin discoloration in an 11-year-old boy with CF following ingestion of colloidal silver to facilitate limit of normal. Fortunately in this case the discoloration was transient and the silver level normalized following discontinuation of therapy.3 In our case we have documented significant improvements in well-being that were temporally associated with the use of the drug. However, this is a single anecdote and caution should be used in interpreting the significance of these observations. If there was a direct clinical effect of the silver we speculate that this might have been as a result of a bactericidal action on CF pathogens, as suggested by the decreased occurrence of B. multivorans on sputum cultures. Researchers in Denmark have shown that silver is highly effective as a bactericidal agent against biofilm and planktonic models of Gram-negative organisms, including P. aeruginosa.4 Currently there is no evidence to support the use of silver products in CF but their potential benefits might be worthy of further exploration. An American study has shown benefits for silver in the treatment of Burkholderia dolosa infection in a murine model of severe lung sepsis.5 Further in vitro studies of the effects of silver on the organisms within CF sputa and a better understanding of safe dosaging are essential first steps in exploring the potential for this use of this treatment option.

Footnotes

DECLARATIONS —

Competing interests None declared

Funding None

Ethical approval Not applicable

Guarantor VRB

Contributorship All authors contributed equally

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Acknowledgements

None

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References

1. Westhofen M, Schafer H. Generalised argyrosis in man: neurological, ultra structural and x-ray micro analytical findings. Arch Otorhinolaryngol. 1986;24:260–4. [PubMed]2. Lansdown AB. Critical observations on the neurotoxicity of silver. Crit Rev Toxicol. 2007;37:237–50.[PubMed]3. Baker CD, Federico MJ, Accurso FJ. Skin discoloration following administration of colloidal silver in cystic fibrosis. Curr Opin Pedatr. 2007;19:733–5. [PubMed]4. Bjarnsholt T, Kirketerp-Moller K, Kristiansen S, et al. Silver against Pseudomonas aeruginosa biofilms. APMIS. 2007;115:921–8. [PubMed]5. Cannon CL, Capps GH, Hogue L, et al. A07: A murine model of Burkholderia dolosa pulmonary infection and treatment with a nebulised silver carbene compound. Abstracts of the International Burkholderia cepacia Working Group Meeting; April 2005; Oklahoma, USA. http://www.go.to/cepacia.

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Articles from Journal of the Royal Society of Medicine are provided here courtesy of Royal Society of Medicine Press


Salt

1 User Review
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Posted by Mary (NY, NY) on 01/20/2022
★★★★★

According to the Cystic Fibrosis Foundation, salt attracts water into the airways, which thins the mucus, making it easier to cough out. Research has shown that inhaling hypertonic saline twice a day helps people with cystic fibrosis experience fewer lung infections.

https://www.cff.org/mucus-thinners

Alternatively you can mix 1/2 teaspoon salt in 8oz hot water, stir it and drink it throughout the day.

Note: The RDA for sodium for an average adult is 1,300 mg with a tolerable upper limit (UL) intake per day of 2,300 mg. Sodium chloride (table salt) is approximately 40% sodium. One teaspoon of table salt = 2,300 mg sodium. Do not exceed one teaspoon of table salt over the course of a day.



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