The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Trigeminal Neuralgia Remedies
Posted by Ms Joy Arora (New Delhi, India) on 08/10/2013
I am in acute pain from trigeminal neuralgia-treatment. No benefits from allopathic since 10 days.
Laser Treatment
Posted by Steve (Nevada) on 07/29/2013
Laser therapy is a good treatment option for Trigeminal Neuralgia. There is lots of international research that points to the fact that it is an effective therapy for TN. Here is a research link. It's written in medical research terminology but the gist of it is that Laser Therapy works.
http://www.ncbi.nlm.nih.gov/pubmed/11197651
$5600 is an awful lot of money for the treatment plus all the expenses. For that much money you can buy your own therapy laser and have unlimited treatments. In fact you can get one for a lot less than that. Many options out there.
Peace, Steve
Laser Treatment
Posted by Pain In Seattle (Seattle) on 07/29/2013
Hi Daniela: you mentioned that your mother got treatment at the LaserMed Center in Myrtle Beach, S Carolina. How is she doing now? I am researching this to see if it is a viable option.
It is not covered by most insurances because it is considered experimental. It is about $5600 for the treatment and then add round trip plane fare and motel for 3 weeks and all the other things you need, it is quite a package for most people to pay and the time away from home as well is costly.
SO please keep us informed on how your mother is progressing. Yes, I did call them, and I got one reference to call me back. I am not sure why there can't be more people willing to share, if they have successful results, but there doesn't seem to be more.
I am wary about just seeing testimonies on their websites; just good advertising that is all. I want to hear more from the people who have nothing to gain but want to share how they actually got rid of the agony of TN just for altruistic reasons. So please keep us informed how your mother is doing.
I wonder why Neurologists haven't heard of this? They have heard of Upper Cervical Chiropractors though and it has helped people with TN and is covered by most insurances. So is this worth a try first? I don't know.
Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Louwrence (Rustenburg) on 07/26/2013
Pain in Seatle, Please look up on the net Sharry Edwards (Bioacoustics) plus Bob Beck Protocol & maybe that is what you need to treat your condition.
Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Pain In Seattle (Washington) on 07/26/2013
★★★★☆
Hi. Bless you Donna for sharing with us the information about Cell Salts and how they helped you.
I am only 2 wks into the Upper Cervical chiropractor and about 10 days using the cell salts. For some days I have no shocks, for other days, I have 2-3 tiny shocks a day. Big improvement over the agony of episodes that wanted me to end it all sometimes.
Most of the time I go to the upper cervical chiropractor, I don't even need adjustments--unless I have been exposed to something that causes a subluxation of my "atlas" bone in the neck. I can see how I will be symptom free almost every day, very soon.
I strongly recommend the cell salts and the upper cervical chiropractor. It takes an average of 3 months for most people to respond with a 90% symptom free time, with the upper cervical chiropractor, so needing some help with pain (in my case) is advisory. The cell salts help greatly with this.
I also wanted to add something about the LaserMed center in south Carolina. It works with healing the Trigeminal Nerve and has something to do with the DNA in the nerve. I have closely followed the research of doctors all over the world, coming to Florida to do research on TN and they are also thinking it has something to do with the DNA in the nerve; why do some people have such pain and others do not? They believe they will have a cure in less than 8 years.
BUT until then, Upper Cervical Chiropractor has shown to be an overwhelming success with people who have TN. (90% of the time. ) But you do have to go and get checked every 3 -6 months after you are symptom free to make sure no new subluxations that can fray those nerves, occur.
Coconut Oil, FIsh Oil, Magnesium, Cell Salts
Posted by Pain In Seattle (Seattle, Wa) on 07/17/2013
Dear Donna: I kept searching for the cell salts that you mentioned in your blog.
Since the laser treatment at a regular chiropractor, my condition has worsened about 80% or so; it has been 3 weeks and I seem to have it triggered by long noxious odors like bleach, burned gasoline, insecticides, etc. Well each time it gives me episode of horrible pain that lasts for 15 hours or so. This time I also found the cell salts that I ordered in my cupboard (Last night) and tried it. After 30 minutes, the pain went away. I had to do it again, 2 hours later, but then the pain went away. I slept and until the pain came back, took it again, as the company clearly explains to, and the pain went away. I have not had any pain now for 13 hours and if I get the smaller shocks, (as I have been even with the Tegretol for the past wks) I will take it again, but if not, I will assume that my body is healing and balancing itself. One of your cell salts mentions how it heals and balances inflamed tissue, which I think is what happened at the regular Chiropractor, With this K-Laser treatment.
Let me clarify, this K-Laser is about $4000, and my naturopath mentions that they teach the awareness of it for back aches or muscle pain.
Your mixture was nothing short of miraculous for me and the company obviously is very, very generous with their information. I have learned alot and will always have these cell salts on hand. thank you so much. I am early in the use of them, but I will keep this group informed. I am still going to continue to try the upper cervical chiropractor too.
Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Pain In Seattle (Seattle, Wa) on 07/17/2013
Hi Donna: please continue to check back and let us know how you are with your trigeminal neuralgia (TN). I am researching the Laser Med treatment center in S. Carolina but also have ordered the Cell Salts too. I have also been going to an upper cervical chiropractor only recently. So far my pain has been increasing, with the chiropractor but it has been only 2 adjustments. Just took the cell salts. Can't believe the pain and I am on 600 mg of Tegretol. Must go to another Neurologist too.
Well anyway, I know that remissions of trigeminal neuralgia can make one think that certain remedies work and others don't so it is hard. I tried some Biogetica.com homeopathic stuff for TN and it worked for 2 years but now does not. So I pray your cell salts help me, itleast so I can try the Upper Cervical Chiropractor long enough to give it a fair try.
Going across the country, blindly, to the LaserMed Center is a hard decision. With the treatment costing $5600 and plane fare and hotel fare and everything else, we are looking at $7000 or more for the 3 weeks treatment. And it could be something that only works for a short time. So I am still deliberating on this. I have had trigeminal neuralgia for 5 1/2 years but the first couple of years things seemed to work so much better than now.
So don't forget, keep us informed about the LaserMed Surgery.
My warning, though, don't go to a chiropractor for their LaserMed treatments. After I tried one, stupidly, it has caused me much more pain and now I am in this situation. The LaserMed center told me these kind of treatments at the chiropractor, using the Laser on only the pain paths, can cause more pain. Well of course, my personal experience tells me that now. I wish someone had warned me. LaserMed in S. Carolina, I believe, works on a different principle.
Laser Treatment
Posted by Steve (Las Vegas, Nevada) on 07/05/2013
As an energy healer what I do is focus the energy on the trigeminal nerves. It generally takes at least a few sessions to get the pain level down to a manageable level. There are lots of great healers listed on this site as well. But it hardly ever gets mentioned which is a big shame. So many people can be helped by this therapy alone. If there was a distance healing request page we could help a lot of people. Peace, Steve
Laser Treatment
Posted by Imelda (USA) on 07/05/2013
Hi Steve, do you have any details on the energy healing?
Laser Treatment
Posted by Steve (Las Vegas, Nv) on 07/04/2013
I know a few people that have had success treating trigeminal neuralgia with energy healing. All of the research I have seen on treating this condition with low level lasers indicates that many laser treatments are necessary to have any effect. The initial studies on this said 12 weeks of 2 treatments/week had the best effect. One 5min treatment will have almost no effect at all.
Laser Treatment
Posted by Pat In Seattle (Seattle, Wa) on 07/04/2013
Daniel: You said you had nothing to lose to try this lasermed treatment in Myrtle Beach. Well I tried a laser med treatment from the Chiropractor, just one, and for only 5 minutes, and have been much worse than before I went.
I am talking to the LaserMed treatment center in Myrtle Beach, and it is about $7000 for flight, treatment and a hotel room for the 3 weeks. A pretty expensive thing, but now I am even more afraid to try Laser treatment, since this one caused me so much more agony.
Do you have any insight to give me. I thought I would be able to wait another year for this expensive treatment, but now I am so much more progressed in pain. It has been about 8 days since I had the 5 minute treatment, only to the pain paths, not on the Trigeminal Nerve itself.
thanks
Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Donna (Anchorage, Ak) on 07/01/2013
To In Pain in Seattle, I am sorry, I have been travelling and haven't looked for awhile. I am still completely pain free 4 months after the laser therapy so I now believe it really did help. In answer to the cell salts, go ahead and take the 30C. There is a homeopathic mixture called nerve fix all one word.... It has the ingredients I use plus a few more. I haven't tried it, but since I am pain free now I am not even using the salts. There are some interesting articles on B12 and B1 for TN. I still take my oils, magnesium and B12. I will try to look at this site more often...
B12
Posted by Susan (Seattle, Wa) on 06/26/2013
Please Wes, tell me how long did the pain free or remission of severe pain last from the laser treatments? Your entry is in Feb 2012. We hear nothing of you since. We need to know. How long have you had TN too?
B12
Posted by Susan (Seattle, Wa) on 06/21/2013
For Trish: Ratio should be the same for each; one cc of B12 and one cc of B1. B1 is the painful injection. My doctor gives me some lydocaine to help dull the pain. Another course of action would be to get just the B12 injection and take a good B1 complex vitamin. Get the B12s twice a week, and take the B1 vitamin orally everyday.
I have also noticed my shocks get worse from Splenda. So I did some research; yes, Splenda can cause seizures in people who have never had seizures before. Very strange.
So watch your diet; it is important.
Diet
Posted by Patti (Seattle, Wa) on 06/05/2013
Hi JsMom from NC: you said your mom was diabetic and a high fat diet is not an answer. I have heard that low fat diets help some people with Trigeminal Neuralgia too. They must be under 10 mg of fat a day for it to work, and it takes about a month to tell if it will work for you. Many have received relief from this diet. I am guessing that the fat in your diet may make the blood vessels slip more against the trigeminal nerve.
Well anyway, someone did a complete research study on this and contacted people to try this diet. Not everyone benefitted from it but many did. Worth a try. It least it is good for your heart.
B12, Omega 3, Facial Tissue Stimulation
Posted by Daisy (Greenville, Pa) on 05/19/2013
I also have Type 1 TN but for the past couple of years, when I have the shock-like pains in my right temple, it almost always seems to be connected with having a lot of pain in my right hip and thigh (I also have fibromyalgia). Sometimes a chiropractic adjustment will completely relieve the pain, but other times it doesn't help at all. Has anyone else experienced this?
B12, Omega 3, Facial Tissue Stimulation
Posted by Nan (Jakarta, Indonesia) on 05/17/2013
oh my god, yea, me too! I'm 18 but I think I have this terrible symptom.. how could teenager get this symptom? First time this disease came is when I have wrong sleeping position. ah :(
B12
Posted by Trish (Europe, Eu) on 05/08/2013
In what ratio?
B12
Posted by Pain In Seattle (Seattle, Wa) on 05/08/2013
B12 must be accompanied by B1. European studies showed that B12 injections and mixed with B1 injections (each cc mixed in a injection) help to relieve Trigeminal Neuralgia. It takes a few weeks until all symptoms show a large decline. Don't be fooled; B12 isn't as effective as the total mix.
Colliodal Silver, DMSO
Posted by Dave (Fountain Inn, SC) on 04/05/2013
The liquid, composed of colloidal silver and DMSO, is used to soak a white paper towel. Press against the hurting area of face. Use a few tablespoons of colloidal silver and add about twenty drops of DMSO. Hold on surface of hurting area: that, in theory, is where the nerves are infected by the viral infection. If the TN is of long duration, there may be nerve damage but at least the virus will be killed and it should not spread down neck or worse, up into the brain.
Apply the mixture of colloidal silver and DMSO to a white paper towel to the surface of the skin where you are hurting. The silver will kill the virus and the DMSO will carry it to the into the skin. Be careful not to let the liquid in the towel to get into eyes. Apply every third day. If the TN has been present for a long time then the nerves may be damaged but at least the silver solution will kill the virus/fungus and should go no further...down the neck or worse, up to the brain. Apply every third day for at least a month. If you suspect virus has gone to brain, I would apply same poultice of silver solution and DMSO to base of skull... base of neck and again, the DMSO will carry the silver to brain to kill the virus there.
Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by In Pain In Seattle (Seattle, Wa) on 03/25/2013
In response to person that mentioned cell salts: I could find the cell salts at the local super supplement stores but it did not come in 12x only 6c or 30c. Since you are experienced using this I wonder if you could give me more advice or refer me to a book or something?
Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by In Pain (Seattle, Wa) on 03/23/2013
Hello: where do you get the cell salts and the Magnesium that helped you? Thank you so much.
Coconut Oil, Fish Oil, Magnesium, Cell Salts
Posted by Donna (Anchorage, Ak) on 03/14/2013
★★★★★
I have been following this subject for nearly a year, when my Trigeminal Neuralgia (TN) began. I was only on Gabapentin for 2 weeks before I really got help with homeopathy. It was temporary, but it started me on my course of natural methods for fighting/living with this condition. I am virtually pain free now (though I am still nervous about it coming back). I attribute my help to 3-4 things that I do daily. I take 3 T of coconut oil a day plus 2 t. Fish oil - but I think the important thing is to get enough 'good' fats in our diet. (I ate low-fat for years... Thinking I was helping my body, but I now know we need good fat). I take 600-1000 mg of magnesium a day. I have discovered Magnesium with SRT, which is timed release and doesn't cause the problems with loose bowels. And I take sublingual B12, 10, 000 mcg daily. But what has really helped me the most is Cell Salts. They are homeopathic in nature, and it simply works. (For me, at least). I take Cell Salts, 12X strength and I take this mixture once a day for 10 days. The basic rule is to take them until your symptoms stop, and then don't take them again until they start again. My formula is: 2 Kali Phos, 2 Mag Phos, 2 Calc Phos and 2 Fer Phos - I take all 8 tablets first thing in the morning - you should not eat or drink anything within 30 minutes before and 30 minutes after any homeopathic remedy. I also visited a laser center in South Carolina. I think it helped, but I am sure my regime has helped me more. It's worth a try... I constantly research this, as I don't want to take the hopeless medical route and I have met people who have had the surgery and it didn't help.... I hope this helps someone.
B12, Omega 3, Facial Tissue Stimulation
Posted by Chris (Sammamish, Wa) on 02/16/2013
Can you tell me specifically what kind of facial stimulation you did... E.G., Scenar. Also, can you be more specific on B12?
Colliodal Silver, DMSO
Posted by Tailend (Chennai, India) on 01/01/2013
Myself, aged 76 suffering from TN read an item about treating with colloidal silver and DMSO. Is it possible to get detailed procedure about this from illustrator. God bless.
Alkaline Diet, Peppermint Oil
Posted by Marianne (Livermore, Ca) on 12/19/2012
Where exactly do you apply this poultice??
Alkaline Diet, Peppermint Oil
Posted by Dave (Fountain Inn, Sc) on 12/08/2012
There is an interesting scientific paper in "Medical Hypothesis" 2002 Nov, 59 (5): Issue: "Are latent immediate-early genes of herpes-simplex virus-1 essential in causing trigeminal neuralgia. " Source: Biology Department, Medical University Syracuse NY. "Abstract: The etiology and pathogenesis of major trigeminal neuralgia remain largely unknown, but are believed to result from an irritative lesion near the semilunar ganglion. We suggest that its primary cause is a single, active DNA sequence in the persistent but non-integrated genome of latent herpes simplex virus type 1 commonly observed in a few infected A-delta nerve fibers in the cheek. Facial pain occurs as a result of herpes virus reactivation and when supplies of neurotrophins controlling normal transport functions of axolemmal ion chanels become depleted."
The paper gives a theory as to causation althought not a remedy. My suggestion is as follows which will kill viruses of all kinds.
A person who is seeing cases of mono, ear infections, sinus infections, cluster headaches, migraines and Bells Palsy might see this type of TN infection also. I gave my own personal experience in the Earth Clinic Bells Palsy thread. I futher hypothesize that hormonal issues may be a triger to the viral activation which might explain why females are more often effectd than males.
A possible attack on the TN virus is to use a topical application of fifty drops of colloidal silver and add ten drops of DMSO to make it penetrate through the skin into the nerve. Apply as a poltice with a white paper towel and let it sit for fifteen minutes. Press against the paper towel to be sure the liquid absorbs into the skin. Be sure to use a white paper towel and do not have any other substances on your fingers. (The DMSO is a carrier, solvent and penetrant. ) Do this procedure at least six times over a two day period. In theory, the silver will kill the virus. Same procedure for Bells Palsey. Shingles too. God bless.
Multiple Remedies
Posted by Timh (Louisville, Ky, Usa) on 11/27/2012 2048 posts
Oldriska: You seem to be doing some good therapy. Try taking the MSM 2 or 3 times thru the day and not before retiring. Take the Amino Acid GABA (1 grm) before retiring. Try Mineral hot baths (which is good for about everything). I use Agriculture grade micronized minerals from local farmers supply co.
Multiple Remedies
Posted by Oldriska (Prague, Czech Republic) on 11/27/2012
Hi everyone, I suffer from atypical trigeminal neuralgia, for which I take Lyrica, antidepressants, sublingual B12 and magnesium.
I've recently added MSM to my daily regime because I read many positive reviews on this supplement. I have since noticed that my pain has gone up in intensity, and I started getting pain also in my knees and arms and I pant like an old dog when I do any simple physical activity (I am 33 y.o. female and used to be in good shape til ATN hit me last year). I take the powder form, 1 teaspoon in a glass of water before bedtime. Maybe it's too much? How long does it usually take before one notices any positive change?
Many thanks for your replies, Oldriska
Supplements
Posted by Barabara (Bothell, Washington) on 10/22/2012
Hi Bonnie and Carol: in regards to Phosphatititdyl Serine of 100 mg a day, it is researched on the web as helping with memory and cognition and is important in the cell structure esp. Of the brain. It improves the cell membranes so it might help with Trigeminal Neuralgia.
Unfortunately, with TN, it is difficult to tell what really helps unless it is used for a long period of time. This is because TN has periods of remission and unless something has been helping for almost a 7-8 months or a year, it is really hard to determine whether it is the treatment or just a natural remission of the disease. I have had remissions but usually only for a month or two.
So Carol, I am asking you again, if the Phosphatitdyl Serine is still helping you with the Trigeminal Neuralgia, before, I again, try another supplement for pain. It is so expensive, and I have pill bottles that I can't use as it is.
I have also found that joint supplements, such as Hyaronic Acid, seem to make the TN worse; why I don't know. Maybe in its attempt to make things more lubricated and flexible, my arteries and nerves are slipping around against the Trigeminal Nerve more. I am wondering is anyone has experienced this before?
Thanks, Barbara
B12
Posted by P (Seattle, Washington) on 08/23/2012
★★★★★
Hi again; this is P from Bothell. I have found that taking Glutamine helped me heal faster from the gluten allergy and the malabsorption problem and also prayer (bigtime) and now I seem to be able to go with just one B12 injection about every 6 days or once a week for maintenanance (of no symptoms. ) this is considered (I believe) a therapeutic injection, on my insurance but would like insurance companies to know that this is for pain control. Still have out of pocket expenses (such as co-insurance, about $10. 50 an injection) but it is worth it if it controls the pain. B12 (hydrocobalamine) is FDA approved and B1 complex given together in one injection is what I have been recieving. All B12 has to convert to methocobalamine to be absorbed by the body. Stay away from cyanacobalamine-it is not the same thing... And has cyanide in it. Few traditional doctors know this it seems.
Hope this news helps someone. I did try the biogetical herbs but after 6 months they didn't help anymore. The B12 seems to be working...... So far... so good.
My advice to T. Smalls is get the B12 and B1 injections (in one injectable)for Trigeminal Neuralgia or go to a certified homeopathic doctor who can prescribe an individual treatment plan for you, if the Biogetical herbs stop working.
General Feedback
Posted by Zoe (Harrison, Ar) on 08/13/2012
I just wanted to update my previous post on 7/3/2011 that I am still pain free from using the Omura protocol (an all-natural treatment) prescribed by Dr. Allen Sprinkle in Arlington, Texas. I used the Omura protocol for about 6 months continuously and now just take a fish oil capsule maybe 10 times a year if I'm under a lot of stress. (see previous post for Dr. Sprinkle's contact information) In my previous post I described how my pain started after a dental surgery to my jawbone. I can still be reached at batz(at)windstream.net and I can also be reached at zoetrail(at)gmail.com. I have received several inquiries from this post on earth clinic and sincerely hope that anyone who suffers from this pain will find help here. I am so grateful that Shelley Wilson of a TNA support group in Dallas Texas told me of her successful treatment by Dr. Sprinkle and led me to him. Dr. Sprinkle was able to determine (where other western medical doctors couldn't) that my trigeminal nerves were infected with the chickenpox virus and prescribed a specific fish oil, cilantro tincture, and an acupuncture roller. If you have ever had the chickenpox as a child it will lie dormant on the nerve root and may come back in adulthood as shingles when triggered by stress, etc.
In my case the surgery to my jawbone activated this virus and it travelled internally (I didn't have any external shingle sores) deep into my jawbone and ear. The pain was beyond anything I had ever experienced. Again, I am more than willing to answer any questions and I hope for anyone suffering with this disease that you find relief here. God Bless :)
Alkaline Diet, Peppermint Oil
Posted by Sue (Minneapolis, Mn) on 07/11/2012
If you were able to rub oil on your face I assume your pain was minimal. I could not touch my face much less talk, brush my teeth or eat when inflicted.
General Feedback
Posted by Maria (Sydney, Nsw) on 05/29/2012
To Diana, from Las Vegas, Nedada" could you please disclose the website and the laser treatment for trigeminal neuralgia?" Thanks.. Maria from Sydney.
Diet
Posted by Jsmom (Ahoskie, Nc) on 05/29/2012
My mom has TN. She started out with diabetic neuralgia, got shingles and the neuralgia moved into the trigeminal nerves. She doesn't have excruciating pain any longer, but has almost constant burning in her head and that side of her face. She had to stop the seizure meds as she is 83 and could not handle them. She is still taking Gavapentin, but it doesn't help. Obviously with her being diabetic, a high fat diet is not such a good idea. She already takes fish oil daily. How much B12 should she take. Is there anything else that anyone has found helpful???
Alkaline Diet, Peppermint Oil
Posted by Rosali (Mumbai, India) on 05/07/2012
Peppermint oil gives you instant relief but you will have to address the cause of trigeminal neuralgia for complete relief. Here the problem lies in the nerves. One will have to decrease their sensitivity and also help them in strengthening and calming. One can try Biogetica essentials kit with HMYLN myelin sheath sarcode formula to relax the nerves and to improve their motility.
Homeopathy
Posted by P From Tacoma (Tacoma, Wa) on 04/10/2012
Dear T. Smalls, I have been on the Biogetica.com herbs for about 2 weeks. Pain has gotten worse with pain meds --up to over 1200 mg of Trileptal and sometimes still get really bad pain attacks. Small shocks during the day. How long do I have to wait until the Biogetica.com homeopathic pellets work? How long did it take for yours to work? do the herbs they have help it?
Homeopathy
Posted by P (Tacoma, Wa) on 03/21/2012
Hi. Yes I have just started Biogetica.com again, with the homeopathy for Trigeminal Neuralgia (OM 13 and Trigeminal Neuralgia CM the Ayruvedic herb combination) The herbs are something new for me. Maybe they make the homeopathic pellets work faster. I am also on 900 mg of Trileptal right now for pain until the Homeopathy kicks in. My question is how long did it take for the pellets to start working for you? This is the first time the trileptal at this dose really doesn't relieve the shocks so I need someone to tell me how long I need to wait. Thank you.
Also I found that B12 injections, took me about 2 months before they started to work to reduce pain. It allowed me to reduce Trileptal to 225 mg instead of 900 mg. (but couldn't get off the pain meds without more symptoms but only tried B12 for 2 1/2 months) I found the injections hard to continue- (cost and inconvenience) so I am transitioning from that to homeopathy now-unless I can't wait and the pain gets too bad.
Homeopathy
Posted by Tony (Spokane, WA) on 03/11/2012
How long were you on the homeopathic remedy before you noticed the pain was gone? did you ever go back on the Trileptal?
Homeopathy
Posted by T.smalls (New Haven, Ct) on 02/20/2012
Hello, I owe it to God and everyone who suffers from TN to share my story. I started suffering from TN in a very mild was about two years ago. I would notice a small zap periodically when I brushed my teeth. Three dentist all said there was nothing wrong with my teeth and because it would go away quickly, I didn't look further into the pain. However, 1 year later as I was going through a nasty seperation and divorce, the electric shocking pain became a whole lot worst radiating from my L jaw to my ear. It went from jabs to 3-4 minutes of high voltage shock. I would shake for 30-40 minutes after an episode. I finally went to the ER and was given gatapatin, and perks to no relief. I then saw a Neurologist who put me on a high dose of Tegratol, to little relief, and many side effect (mood swings, depression, loss of memory) I then had surgery to sever the nerve ending which was bumping an artery. The pain went away.... For 2 months and came back 100 times worst. I woke up screaming in the middle of the night as my face was being electricuted from within. I was then places on a high dose of Trileptal, to little relief. Then I became pregnant and my Neurologist basically said I can't do anything for you stop the Trileptal due to the pregnancy...
This is when I found Biogetica through an angel on an Online TN support group site. I immediately ordered the TN relief kit and have now been pain free for 2 months straight and counting. I am so thankful for Biogetica. These homeopathic herbs work wonders. I would suggest you look into it and give it a try.
B12
Posted by Wes (Charleston, Sc) on 02/13/2012
I have tried and had success with the Laser Med Center. It has reduced my pain by about 80-90%. I have had no "episodes", but I have had cycles where I still feel "twinges". They come and go, but they are nothing like the pain I used to have.
DMSO
Posted by Jasonmchicago (Chicago, Il ) on 02/05/2012
Has anyone tried the DMSO nasal spray for Trigeminal Neuralgia. I assume this is diluted... If so by how much and by what? distilled water? EC, if you know what the original author meant, pls let us know. Thanks so much.
B12
Posted by P (Bothell, Usa) on 01/29/2012
Sheila: Hi. I figured that I had a malabsorption problem because it usually accompanies a gluten allergy. My Vitamin D levels were only on the small side of average (after a blood test at the doctor) and that is after taking 5000 mg a day of Vitamin D. I also tested for thyroid antigens of TPO and TGO and they were really off the normal amount. I am not sure if you have Classic Trigeminal Neuralgia or not, but vitamin B12 injections take some time to work; about 8-12 injections over a period of a few weeks-and then they do work for the above disorder. Taking oral vitamin B didn't work for me, as it might for others who do not have my disorder. (classic TN)It is important to be diagnosed with the correct disorder so you know what will be effective or not.
My best advice to you is see if your doctor is willing to give you the B12 (methocarbo--with the B1 complex- 1cc of each) it least twice a week, and don't go off the antiseizure meds until you see a real reduction in symptoms. B12 injections are now covered by my insurance company (Regence of Washington) Some neurologists are also prescribing oral B12 but the oral kind is not potent enough for me. (ho hum.... ) MS patients also are being prescribed B12 injections. It helps the pain and disorder of the nerves.
Another way to help the pain is to try homeopathic remedies. We get a lot of our prescription drugs from India in the US. (such as glenmark mfg. ) I have used their kit for Trigeminal Neuralgia. It can take 1-2 months to work though, but gradually you will see a reduction in symptoms and can get off your anti-seizure meds completely in about 2 months or so.
Hope this helps. I know my neurologist advises surgery for everyone but I will wait as long as I can.
Upper Cervical Chiropractics
Posted by P (Seattle, Wa) on 01/03/2012
★★★☆☆BETTER BUT WITH SIDE EFFECTS
Just wanted to warn people: after my 4th adjustment from the cervical chiropractor, I had about 14 shocks in a 3 hr period following. I think I irritated my nerves more and sometimes things have to get worse before they get better--but I don't want to continue. For some people, this manipulation may work, but be aware that it can be painful at first, for Trigeminal Neuralgia.
B12
Posted by Debbie (Melbourne, Australia ) on 12/31/2011
Sheila, you can get a hair mineral analysis done. That should tell you whether you are lacking in minerals.
Do you drink much diet soda or sugar free foods? Artificial sweetners? Chewing gum. Processed foods? Energy drinks?
Ringing in ears is a major symptom of aspartame poisoning. There are other major problems associated with aspartame consumption. I am just throwing it out there for your consideration and to rule that out if you do not consume those.
B12
Posted by Sheila C (Brunswick, Ga) on 12/31/2011
Can someone tell me how you figure out if you have a malabsorption problem. My condition sounds somewhat different than some of the posts I have read here. I am in pain everyday. I'm not sure how you really confirm the diagnoisis? I am going downhill fast. I am trying to get into mayo, they gave me an appointment 2 months from now. I am barely functioning. I also had numerous dental procedures. I have horrible ringing in my ears.
Of course the neurologist I have seen has put me on multiple anti-seizure meds, none of them work well, but when I stop, I have one major attack after the other. I am so worried about losing my job after 23 years. This is terrifying! I went from being perfectly healthy to having so many ailments, I have no idea which ones are related. I would honestly welcome surgery at this point. How do you figure out how much of the B12 you should take? Is there anyone that has actually tried the laser med center?
Vitamin B Depleted by Flax Seed Connection
Posted by N (Tel Aviv, Israel) on 12/24/2011
I'm a 34 yo guy from Israel, suffering 'just' a year and 8 months... after a tooth filling at the lower left molar tooth.
I suffer from constant pain all day and night... It's not a life worth living. I was a healthy guy.
And although I went to tens of doctors (took neurological medicine etc. ) - still don't have a solid diagnose. I feel that saying "atypical facial pain" - is like saying - "we don't really know - we don't really care". I still feel there's something dental that's wrong in my mouth.
Also - my jaw bone at this side of the face changed during this year. It got more "pointy". Or "boney". and by touch it feels like a very small bone grew in the angle of the mandible
Anyone had that? (a slight change in thier bones?)
Don't know what it means - and what to do with the pains...:(
libcard2000(at)yahoo.com
Upper Cervical Chiropractics
Posted by P (Seattle, Wa) on 12/22/2011
★★★★★
Hello:
I was trying the oral B12 B complex (the active forms) but after awhile, the shocks started coming back quite alot. I am back on injections for now, which seem to help completely. But I have also found that going to a upper cervical chiropractor may help many people with TN. It helped me immediately.
The upper cervical chiropractors are highly skilled in the spine and neck regions. A slight adjustment (hardly noticeable) puts your neck straight and then the spine follows. This allows the nerves to work properly and must have moved my nerves off the wrong portion on the skull where the Trigeminal Nerve lies. All I know is that it stopped the shocks. I have to be careful what I do to my neck now, and I follow the doctor's advice. I will still take the B vitamins, but because of a malapsorption problem, my body just doesn't assimilate it as well as it could. It maybe a year before my body heals from the gluten I have been giving it. I am very gluten intolerant and that can cause your body to have problems storing and activating nutrients.
Look up NUCCA, which stands for National Upper Cervical Chiropractors Assocation and see if you can find a referral list for one in your home area. Then don't wait, but go. It is the best decision I ever made. There is no painful period afterwards, either, as you hear there is from osteopathics. Just relief... Some people may take more than one adjustment for total relief... but I think it works great for this affliction.
B12
Posted by Lou (Tyler, Tx) on 12/16/2011
I think I have a malabsorption problem too. Have you read about Mastic Gum? It come from Chios, Greece. It has been known to cure a lot of digestive problems, which can be the source of many ailments. I took it a few weeks ago and now I am so "regular. " IBS symptoms gone!
