Vasculitis Remedies

Hello Beth

My sister was just diagnosed w GC Arteritis Was wondering if u found anything to augment or replace Prednisone. Also wondering if you've tried triptans for the Headaches. Best of luck, Don

I'm afraid there's no avoiding the prednisone. The risk of sudden blindness is too great. However I do think it's worth exploring what might have caused the inflammation in the first place. I did a sensitivity test (postal blood prick test, only IgG, not IgE, though if you can get access to a full allergy test as well, go for it) and although pooh poohed by the medical establishment, it did seem to help. I avoided yeast, which came up as the only positive for me, and over a few months all the aches and pains vanished. Although fit, I'd been racked with aches for the previous few years. One can never be sure what's coincidence though. Re triptans, yes, you name it, I had tried it, for chronic migraine. They rarely worked for me, or if they did, the migraine was back with a vengeance the next day, so they weren't really worth risking. However, the Cefaly device has worked wonders. Used every evening, after a few weeks the migraines reduced and went from chronic to episodic and are now treatable.

I have had 3 friends recently that have been diagnosed with Giant Cell Arteritis and/or Polymyalgia Rheumatica. They all are attributed to the COVId Vaccine and I'm just wondering if the detox protocol would help? I don't think it would hurt anyone but also would be careful about making sure there are no problems with your eyes …

Don't recommend the use of IV H202 as the body was never intended to have unleashed peroxide randomly coursing through veins. Peroxide is produced by WBC and other immune cells in an attempt to destroy foreign invaders "in a controlled" setting. Within the cell wall of WBC, macrophages, etc. where the damaging properties are confined and the rest of our body is protected. So no, don't worsen a condition by the careless use of peroxide.

JP Saleeby, MD
www.PHC365.com

The hypersensitivity could be from a damaged digestive tract. I had the same diagnosis and symptoms so I went on the GAPS diet. My lesion healed after that. Along with better stress management and excersise, I have been much better.

Dr. Joel Furhman has stated that MOST auto immune problems can be fixed with diet. In his book 'eat to live' he gives a VERY specific diet for autoimmune problems, and says people with autoimmune issue should avoid gluten. Also, please also look up the transdermal magnesium supplementation and iodine. I think diet is VASTLY under-rated in the prevention and treatment of problems in the body! More so than even supplements. "let thy food be thy medicine, and thy medicine be thy food! "

Rosza, I'm curious about the antibiotics you have taken...

I also suffer vasculitis, and when I was hospitalized for a large kidney stone and sepsis, I was given IV Cipro, from the class of Fluoroquinolone antibiotics. I developed a terrible reaction, with hives and joint pain, as well as neuropathy. When I did some research discovered there is a black box warning on the drug because of the serious side effects. There are even groups on the web dedicated to those sufferers.

Just wanted to make you aware, in case that is part of your problem.

Hope you are doing better now.

Appreciating the dialogue, as I too am a sufferer of vasculitis. It is been over eight months I've been fighting with breakouts on my inner thighs down to my legs and ankles. Very painful. I think I've had officially for outbreaks. The stars look like brown scarred skin marks on my ankles. I'm not worried about the vanity of my legs as I am the healthiness of my immune system.

I have been hospitalized for three days as for different doctors cannot identify exactly what was wrong with me. I blistered and had severe heat itching and pen needle feelings going up and down my legs. Finally four out of five doctors diagnose a type of vasculitis. After having been given terrible prednisones steroid for six weeks, I had to allow my body to detox and see an acupuncturist. The acupuncturist has put me on Tumerick and a new Immune builder herbal tablets. I also take Benadryl at night to help relieve the itching. Apple cider vinegar after a cool shower helps relieve the itch. I haven't shaved in months. Thank goodness that's okay with my boyfriend. My acupuncturist did a trigger/allergy/intolerance assessment on me. Now I need to avoid dairy, shellfish, Chocolates. We also found it has affected my adrenals, therefore am recovering with nutritional supplements for that as well. We've looked at alternative spices to help supplements such as Tumerick, cumin, Cardamom, hibiscus tea, ginger tea and Vitamin C. The initial outbreaks with severe now the reoccurrence is minor, but need to be tackled immediately.

It's been a long exhausting and depressing process but now I have embraced the opportunity to alter my diet and bring health and nutrition into it and see the results. Sad part is I cannot run like I used to as My vasculitis is also heat activated it once it is triggered. I'm trying to embrace living withthis condition and hopefully evading other outbreaks.

Hang in there; look every possible remedy, listen to other people's alternative remedies.

Also, the use of olive oil has helped reduce itch and help to heal the legs. I have to and urine tests done every two weeks to follow up on internal effects.

In peace. N

Ms. M-

I have developed breakouts similar to what you are describing (heat-induced, blisters, itching). My dermatologist prescribed me Colchicine, and it is helping a lot. It is quite expensive in the US, though, at $170 for a 30-day supply.

Hair removal creams (Nair, Veet) have been a great and more gentle option to shaving, especially living in Florida.

Hope this helps.

Hi Ms M- That was really helpful, thank you. I had a long outbreak (about 12 months long) 5 years ago but taking probiotics was my main treatment. I went 3 years without any symptoms, but have recently had a big relapse.

With the olive oil and ACV, do you just apply to the affected skin? Or drink the ACV? I am looking into a nutritionist to help with the diet side of things, because no doctor has been able to figure out a cause.

I've been reading that some food additives and allergies can be an underlying cause.

Thanks J

I am taking l-glutamine powder, 20 grams a day and it has helped my vasculitis heal very quickly. You can get it at any health food store. It will also help with your food allergies as it heals the immune system.

I also received Cipro in the hospital. I was unaware of the horrendous side effects and damages that can be caused by that drug. I urge people to NEVER take that drug. There are actually class action lawsuits against that drug. Nexium is another drug that can cause kidney damage in 90% of the people that take it. Yikes!

I too became very sick after being given Cipro. If you search on the internet you will find that Cipro has been implicated in future class action lawsuits. Scary to put your faith in the medical world, then to find your world is not compromised from taking a drug.

Rosca: Make home made water kefir from organic whole sugar or/and raw organic buckwheat flour. 60g per quart. Try eating organic produce and grassfed animal products raw. If you live in the country you can make green smoothies from non contaminated edible leaves for free. You can make green smoothies from organic baby leaves. The immune system is malfuntioning because digestion is impaired. Fixing the digestive system fixes the immune system. Live ferments are best. Raw organic and grassfed animal products are second best. You can take a digestive enzyme supplement. Watch raw food videos for some good ideas.

Rosza, you might want to try going on an all veggie and some fruit diet for a day or two.

A quick search on PubMed brings up a couple of articles about cutaneous vasculitis sometimes actually being scurvy. Try taking Vitamin C (you can get it powdered). Take all the Vit C you can without getting diarrhea.

You might have been running low and then having such a long bout with hives (maybe viral induced) depleted the rest of your Vit C. Also look into Rutin, which is found in buckwheat, to strengthen capillary walls.

Dear M2 and others thanks for your reply.

Since last 8 months am taking 1000 mg Vit C with flavonoids...I have develipoed pigmentation and spots from bleeding when I scratch. It has now reached again on my thighs while whole legs are spotted and hives come and go.

I can't drink alchol take nuts, chocolates and even lentils. Also itching around my pubic area...instead of getting better am getting worse...The situation got better 2 months agao but when I ATE SOME SPICY FOOD AND YEASTY BREAD THINKING AM WELL IT CAME BACK WORSE.

I went to herbal doctor last month He told me to mix CALENDULA, NETTLE AND .Achillea millefolium TEA. also, TAKE NATURAL SULPHUR SPRING WATER AND IN NIGHT TAKE SOME HERBAL PILLS. hE TOLD ME AT NIGHT I MUST GIVE A HOT BOTTLE MASSAGE TO MY LIVER. also TWICE A DAY DRINK A SPOON OF ISABGOL HUSK IN A GLASS OF WATER. oH BOY AM FULL OF HIVES AND SINCE LAST WEEK JUST STOPPED EVERYTHING..BECAUSE VASCULITIS SPREAD LIKE HELL AND ITCHING ALL OVER MY BACK, TRUNK AND LEGS.

I get hives with pigmentation also around my elbows around it also.

1- what is buckwheat kefir how to make it?/ how much vit c I must take, everyday?

2- I already cleaned my liver three times without much difference...just a little relief also how to tackle high TSH AND IGE LEVELS??

3- WHAT KIND OF SMOOTHIES ARE YOU TALKING ABOUT?

4- Should I try to get Quercetin and Picagenol??

5- How to stop this itching on my back and legs..driving me crazy and bring up the blood ususally after I eat something ?

Thanks ..hope someone can help..

Rosza: The problem is the immune system is overreacting because of poor digestion. Kefir has several kinds of microbes. They look like tiny pieces of cauliflower. I bought some from the ukraine. The cellular wall of the yeasts have beta-glucans that reset the immune system. The enzymes give the organs relief so they can make metabolic enzymes. The microbes repopulate the digestive system. Kefir potentiates nutrients. Buckwheat is the seed of a flour. Buckwheat has quercitin. You can make the kefir from either organic buckwheat flour or/and organic whole dried cane sugar. Do not use any metal when making the kefir. Use 60g per quart. Let ferment at room temperature away from direct sunlight for 12 hours. When bubbles rise to the surface the kefir is brewing. There are 2 kinds of grains. One is dormant. They take around 4 days to wake up. One is fully awake. You have to use organic sugar or flour because pesticides kill the microbes. If you cannot get kefir grains you might try live active bakers yeast to ferment the brew. This is not nearly as good but better than nothing. You can also buy live ferments at the store like raw apple cider vinegar. They do not have the microbes so they are not as beneficial. Medicinal mushroom extracts have beta-glucans. Activated barley has beta-glucans.

Thanks, but I looked around for water kefir grains, but could not find in tow of the bio shops. I NEVER EVER HEARD OF IT. Is Kombucha same?

Please can you send me the recipe how to make kefir grains?

Suppose I FIND WATER KEFIR GRAINS THEN HOW TO MAKE BUCKWHEAT WATER KEFIR?

I KNOW WHAT IS BUCKWHEAT AND FOUND THE SEEDS EASILY NOW PLEASE SEND ME THE PROPER RECIPE WITH THE MEASURES IN GMS I DON'T UNDERSTAND QUARTER.

HOW MANY SPOON GRAINS..HOW MANY GRAMS FLOUR AND HOW MANY LITRES OF WATER ETC...

How many glasses I should drink everyday. I am trying to find water kefir grains hope to find it---some says it is a Japan crystal mushroom is it true that water kefir grains is a Japenese mushroom?

Thanks ....

Rosza: Kefir is called Japanese water crystals, piltz in Germany, kefir di frutta in Italy, tibicos in Mexico, and graines vivantes in France. There are stories of their use in Tibet and the Caucus Mountains. Yes you can use kombucha because there are both bacteria and yeasts. The yeasts have the beta-glucans. The water must be free from chlorine and pollutants. Do not use metal. 60grams of organic whole sugar or/and organic buckwheat flour per quart. 30grams sugar and 30grams buckwheat. Whole sugar has molasses. They need nutrients. Google how to make water kefir in 2 minutes of less video. The microbes manage themselves. They stop multiplying when there is no more food to eat. If you get the dormant ones put 60grams sugar or buckwheat in a quart of water and let ferment at room temperature away from direct sunlight for 3 or four days. Taste periodically. The water should gradually change from sweet to sour. When the water becomes vinegry they are fully awake. The more you take the sooner you can get well. I take a cup 8 times per day. The microbes are not delicate. They are very hardy. They don't like metal or pollutants. They ferment from 40 degrees to 95 degrees. The lower the temperature the slower the brew.

Hi Rozca, you can find kefir grains on the big online shopping place that starts with an A. You can also google how to make kefir.

Hi Rosza: Hope u are much better now. In the last few years I've had poison ivy every summer, continually, as well as hives--an allergic itchy on my forearms--a reaction to sulfur, molasses, and apple cider vinegar (all remedies I read about here ;-), bee stings (got bit 24 times by an English hornet), and tick bites--all of which itched like CRAZY! The single best cure for ALL of these itchy things was ice. It completely stops the itching, usually for at least a few hours. I also just discovered that Tiger Balm works very well also. You have to wait about 5 or 10 minutes for it to "kick in, " but it really alleviates the itching and "cools it off" for a few hours, then you have to reapply if it comes back. Most Asian stores and all Chinese stores, I believe, sell tiger balm, but I'm sure you can get it online also. The ice works immediately. I also recently got a mysterious and extremely painful illness--intense ongoing pain in my kidney and gall bladder area. I ended up, purely by chance, at a website called Energy Arts--the teacher there and website founder is a very advanced practitioner of Thai Chi, meditation etc. I downloaded a free video there, where the guy talks you through a basic meditation, and I lay on my floor and did it--figuring I had nothing to lose--and I felt better afterwards. I did it twice a day, and got better every day. I had also already started moving more (rather than sitting at my computer for 10 hrs at a stretch) eating less, eating healthier, and drinking lots of water and lemon. (I already don't drink much caffeine, eat much gluten or sugar, or drink much alcohol.) But the meditation once in the morning and once before going to bed, actually seemed to cure me from the first session. Within a few days I was much better--the pain was just mild, and within a week, I was almost well. I still absolutely recommend using the remedies people here are suggesting--I just think that adding this simple basic meditation may really help others, as it did me. I never even needed to see a doctor or health practitioner of any kind, and it hasn't come back. But I am making sure to have much less stress in my life, and get much more sleep. ;-)

Heidi, can you describe the meditation or provide a link to it?

I am not a doctor, but I believe you may have severe systemic candidiasis. My suggestion is to find a reputable EDS (electodermal screening) practitioner in your local area. This service is typically provided by naturopaths and homeopaths. You definitely have some type of autoimmune disease in my limited opinion.

hi, Have you tried RAW SHEA BUTTER. I tried that one after massaging it to my itchy skin and my itch gone. I'd bought this for my kids who have eczema and found it is effective to me not them.

Use slippery elm.

Dear A,

Eat alkaline foods in abundance! Let food be your medicine, let medicine be your food. Ask a naturopath about chaga powder.