Amino Acid Nac, Vitamin C, Spirulina
★★★★★
(Charlotte, Nc)
02/27/2013
Hi, I have a subset of vulvodynia and I am desperate to be healed. I was wondering if the pain and burning you experienced was constant and interferred with your daily activities? Or did you only have pain with sex? Thanks!
(Seattle, Wa)
03/23/2013
Epretty my vulvodynia started with just pain during sex but then later changed to constant unprovoked pain. After trying many things over many years, the one thing that suddenly stopped the constant pain was this combo.
(Houston, Tx)
04/19/2013
So you just take all three at once. Do you take it before or meal or with a meal or just when you have pain?
(Orlando, Florida)
05/23/2013
★★★★★
I tried the Amino Acid Nac, Vitamin C and Spirulina and it worked for me. I had gone to my GYN and she had told me that I was deficient in Vitamin C. When I saw this post, I guessed it had something to do with this so I tried it. Thank you so much for sharing. It has changed my life. I was getting it almost every single week or every other week. So painful! Now, if I forget to take the vitamins everyday, as soon as I feel itching, I now its coming. A couple of hours of taking the vitamins, the itching subsides. As long as I take them everyday, I have not had an episode. Thanks a million.
For all those suffering from this painful condition, try this combination. If it doesn't work, you might have a vitamin deficiency. Ask your doctor to perform blood work to see where you are deficient and try taking those vitamins.
(Seattle, Washington, Usa)
06/02/2013
SandrafromHouston, I take it on an empty stomach and besides the vulvodynia I think it also generally makes me feel better.
Bluesky, I think it's really wonderful to hear it worked for you I know two other's on the other forum I used to post on, said it worked for them also. I think many don't try it because they think its a weird combo. I dont' think it's a total cure but I think at least it seems to stop the itching and then burning and like you said if your starting to feel bad it seems to work pretty quickly. That's interesting what your doctor told you about vitamin C I will look into that. Like I said I was given it for getting rid of heavy metals so remember to take a good multi mineral while you're on it. Again, I think it's so wonderful to hear that it helps as I know this condition is hell, take care, Anna
(San Francisco, California)
06/20/2013
Hi All, I've suffered with Interstitial Cystitis for 20 years, and now the past few years with Vuvodynia and Vulvar Vestibulitis. The burning and rawness is horrible. Doctors have tried everything for a few years now. I have done EVERYTHING!!!!!! IC has been controlled with Botox injections to the Pelvic Floor Muscles, so that is tolerable. But I am on a constant no acid diet, no oxalates, so I'm wondering about the high Vitamin C content in your pills up above. I never, ever eat anything with Vitamin C and haven't for years as it aggravates my bladder and IC. Does anyone have that problem???
(Seattle, Washington, Usa)
07/02/2013
SFnative you can always just give the combo a try and see how it goes. If you have a lot of increased bladder pain then certainly stop. I know that last year I had a bladder infection and even after it was gone I still had an uncomfortable irritation that felt like it was still there and so took another round of antibiotics but the pain stayed so then I decided to start up the combo and it took it away. I know sometimes the vulvodynia can cause irritation around the urethra and make you "feel" like you have to constanly pee but it's just irritation so not sure if mine was really an IC type situation. You could also try buffered vitamin C as that is less acidic on the system. I know that some berries make my vulvodynia worse but the combo has never bothered me.
(Romania)
08/13/2013
Anna from Seattle, Washington, Usa... hello, can you please tell me if you took this combo of NAC 600mg, vitamin C 2000 mg and 3 capsules of Spirulin all at once or did you take it fractioned during the day (like 600 mg vitamin C in the morning and 1 capsule of spirulin and the same at lunch and in the evening, NAC is only 600 mg capsule so that can't be fractioned..) Thanks!
(Washington, Usa)
08/19/2013
Hi, Hellen from Romania. I take the combo all at once. The NAC 600mgs with vitamin C 2,000mgs and three sprulina tablets all together and on an empty stomach. I also take a multi mineral at a different time of the day as the NAC is good at getting rid of heavy metals like mercury and lead but it can also take zinc and copper out of the body over time... So you need to replace that. Take care, hope this helps, Anna from Seattle.
(Washington)
10/28/2013
★☆☆☆☆
I have been taking this combo almost everyday for two weeks and have not had any improvement. I know this blog (thanks to Anna for all the information) says this should help within hours, but I wondered if it could take longer the first time. It's starting to feel like the same old exercise in futility. I'm glad this combo is working for some of us with this problem, anyway. I'm considering the amitriptyline/nortriptyline route, which I've been avoiding for years.
(France)
04/15/2014
★★★★★
Thank you for finding my first breakthrough - just the the NAC I am getting virtually no symptoms - then when it got a little borderline I added the vit c and spirulina and it is great. Thank you...
(Pennsylvania)
06/02/2016
My doctor referred me to another ob-gyn group that performed vaginal laser surgery on me last week. I will go back again in 6 weeks and then 6 weeks after that. Then once a year. It is supposed to "cure" it. It is expensive - $ 500 each time but I am desperate and willing to try it. I do feel some relief after the first procedure. Will keep you all posted.
(United Kingdom)
02/17/2017
My 12 year old daughter has vulvodynia it's unbearably to watch her in so much pain. The Dr's have been useless and she has missed 4 weeks of school. I diagnosed her myself online as all the tests came back negative. Today she got prescribed antidepressants but they take time to work and school starts next week do I will see my pharmacist about these vitamin combo's for girls her age. Any advice would be appreciated.
(California)
09/20/2017
Tems, have you had your daughter tested for Lichen Sclerosus?
Also, certain birth control pills will bring it on and a switch to another pill (different progestin, estrogen) helps. Notably the YAZ brand has been causing problems for some young people and it's used for Acne as well as for birth control.
Just some things to check out if you haven't already found a diagnosis or treatment.
(Wisconsin)
06/09/2021
Take caution, as Anti depressants are over prescribed to children, it's a sad epidemic. I am responsible for my own health and refuse to allow pills to be pushed on me. I'm an advocate for finding the root cause, which the pills will never address the root cause. Diet, vitamin supplements, minerals, exercise should be our first line of research.. Avoiding starch, gluten and sugar. Edgar Casey, and Sally Fallon have readings that can help.
(Wisconsin)
06/09/2021
Take caution, as Anti depressants are over prescribed to children, it's a sad epidemic. I am responsible for my own health and refuse to allow pills to be pushed on me. I'm an advocate for finding the root cause, which the pills will never address the root cause. Diet, vitamin supplements, minerals, exercise should be our first line of research.. Avoiding starch, gluten and sugar. Edgar Casey, and Sally Fallon have readings that can help.
(Nv)
02/17/2017
I've seen some pretty amazing things happen with energy healing and EFT. There are free EFT videos on youtube to coach you through using EFT for pain (maybe not specifically vulvodina but all the EFT techniques will work the same for pain issues). Should be very helpful.
(TX)
10/09/2021
Worth a try. (I like the technique where you make a list of every negative thing you can remember and tap thru the list.) For some other condition, for a short while, I was on a low fodmap diet. While my inflammation was low, I noticed how much pain was triggered by being judgmental. I noticed with any thoughts that required judgment I would subtly and unconsciously tense muscles in or near my pelvis. Being "hateful' or just choices between things would trigger pain. Learning to keep those muscles relaxed was my breakthrough. It is now easier to recognize other triggers.
(Oh)
02/18/2017
I would look into Perrin's Creme Complete for possible topical relief. There is a Yahoo Low Oxalate Group online with very knowledgeable people and researchers who can help you with a low oxalate diet that has proven to be very beneficial for relief. They have links to a Vulvadynia Society that has specific supplements and protocols for dealing with this problem. I hope she can find some relief soon.
(Washington)
04/11/2017
Hi Tems, sorry to hear about your daughter having this awful problem. One thing I would say about these supplements is they are very liver supportive in helping your liver detox and now days with so many toxins in our environment and food maybe this is the reason it has worked for me and some other women. Also I have read NAC, vit. C and spirulina all have anti inflammatory properties along with turmeric and are also good for helping with supporting liver detoxification. I also limit my exposure to things that come in contact with the skin down there like detergents making sure they are hypoallergenic and fragrance free and I don't use soap down there just warm water also a big one for me is using toilet paper made with out using chlorine bleach so I always take my own toilet paper with me. I wonder if your daughter also has sensitive skin in general as I do and this combo helps my skin look and feel better on my face, which seemed to get more sensitive when all this stuff started for me also I was also very sensitive to chemicals in my environment as my symptoms of not just vulvodynia but sore eyes and throat would flare in places like department stores or around any type of chemical fumes. I would really give it a try as the drugs have a lot of side effects like tiredness and weight gain. Better to try the simple things and least harmful things first before you move on to more desperate measures. Also generally I would try to go organic foods and limit her exposure to toxins in her environment. One very good test I read once on whether someone has vulvodynia or just some kind of infection down there is that vulvodynia sufferers usually have other symptoms going on whereas someone with a difficult infection just has problems in the vulva, vaginal area. Just something to think about. Hope she finds relief soon.
(New York)
07/14/2017
★★★★☆
I just started feeling these symptoms the burning was out of control all my lab test kept coming back fine GYN exams too even had a sonogram everything fine. Came across your suggestions bought this combo last night and this morning I already feel the difference!!! I also use cold compresses that helps as well. I can't thank you enough for sharing I hope to continue to feel better. Seriously forever thankful!
(Appleton Wi)
07/20/2017
My 29 year old daughter is the one who is suffering from vulvodynia and has seen a number of doctors over the past year and a specialist in vulvodynia who has prescribed a diazepam and gabapentin compounded cream which really hasn't been working. She just recently started seeing a pelvic floor therapist weekly where she is having my daughter use a dilator every night to help stretch the area plus the weekly therapy sessions. I came across your blog and purchased the combo. Not sure if the spirulina I purchased is a quality product because I bought it at Walmart which is the Spring Valley brand. I started her gradually with the NAC and 1000 mg vitamin C and she is also taking B-complex because she has a lot of sensitivities and I want to make sure she can tolerate the pills. I am concerned about stomach upset and diarrhea with the Vitamin C so I will have her gradually increase the vitamin C to 2000 mg then add the spirulina to the mix. I am curious she has been taking a multi vitamin so can she continue with that for the multi mineral or should be taking something completely different then the multi vitamin. She hates taking pills so this needs to be gradual steps vs all at once. I am hoping even with the NAC and part of the Vitamin C she will show some improvement so she will be more open to taking the pills. Crossing by fingers for that to occur. I am curious to your thoughts on this.
(India)
09/07/2017
Hello I have just realized I have what I think is vulvodynia.
when I have sexual intercourse it is very painful around the back entrance of my vulva, like nerve endings are burning/
I am loooking for natural cures... homeopathic or ayurveda .
(Atlanta, Ga.)
01/26/2018
★★★★☆
After about 3 years of lots of pain, burning, and pressure, I came across your remedy and trying so many of natural products for these years I could not get anything that would really help me. I started out with a UTI and antibotics did not help, it just would come back. I was miserable all the time and in pain and hurting. Your remedy is the first one that is actually working for me. I have been on it for about a week and no more pain or burning so far. I still pee too frequently and do not know what is causing that, but just getting rid of the burning and pain has been a big help. I still do not know really what is the real problem but continue to research and hope to find out eventually so I can get my life back. Thanks so much Anna, for sharing.
(Washington State Usa)
01/27/2018
Kathy of Atlanta, that is really great to hear. I know it seems that this combo doesn't help everyone but even just a few who are suffering might get relief it makes me feel good because this is such a terrible condition to be in. Only another women with this condition can really understand what it's really like to suffer this way. By the way, the frequent peeing for me was a big issue also when I had the vulva pain but it went away and nowadays I know when I am getting worse because I start the peeing again and then I make sure I take the combo.
(Atlanta)
02/10/2018
Anna thanks for your reply and could you tell me how long you stayed on the combo? I have been on it for 3 weeks or more now and did not know how long to continue doing it. Also about how long did it take you go stop frequent peeing, as I am still doing lots of that and it keeps me up at night alot and breaking up my sleep. Thanks again.
(Canada)
02/15/2018
For Vulvodinia:
Check oxalic acid level in your body (oxalates). Had a same problem for few years and naturopath discovered very high level of Mg oxalates. Frequent urination, itchy genital area, burning, increased discharge, genital tissue was cut with crystals ... Cherry juice helps, avoid food rich with oxalic acid
(Atlanta, Ga.)
03/11/2018
Thanks for your comment Breza and the cherry did not help but I still have burning that came back recenty and constant going to the bathroom day and night. I recently got on baking soda and that has helped the burning a good bit but not the bathroom runs day and night, but still trying to find what to do for that. My PH has been checked and that is very good at this time. Thanks for your help. Kathy
(Riverside, Ca)
10/22/2018
Please give your daughter d-mannose filled up to level with the childrens Tylenol measurement scoop. Fill it up to 10ml mark and 1 capsule of 400mg solaray cranberry 3x a day. My daughter had the same thing she got better with this combo.
(Alberta)
02/03/2021
★★☆☆☆
Baking Soda Baths for Cytolytic Vaginosis
★★★★★
Cytolytic vaginosis(CV) is the current term for a condition of lactobacilli overgrowth. It is a little recognized but common cause of cyclic vulvovaginal complaints in women of reproductive age. CV is often misdiagnosed as candidiasis and most women have tried many antifungal medications both conventional and alternative, with little or no relief.
CV was first described as a clinical entity by Cibley and Cibley in 1982 and it was initially referred to as Doderlein's cytolysis (DC). They observed that the symptoms of CV were similar to Candida vaginitis, but when viewed under a microscope, there were differences.( 1,2) The name of Doderlein's was abandoned because these same authors realized that DC only refers to the Doderlein's species of lactobacilli when in fact there are approximately 80 different species of lactobacilli that have been described. CV was then proposed as the more accurate term that described the actual destruction of the epithelial cells caused by the overgrowth of lactobacilli. The experience of Cibley and Cibley was that the majority of the patients referred to them that thought they had chronic vulvovaginal candidiasis actually had CV instead.( 1)
The normal ecosystem of the vagina involves many different organisms that are involved in a system of checks and balances. No other concept in vaginal health is as important as the state of the ecosystem of the vagina. The flora that colonizes the vagina takes place in the birth canal during delivery, and the flora that is established in the newborn girl must therefore consist of the same strains as in the mother. The vaginal environment of a newborn changes during the first month, then again at prepuberty, puberty, during the reproductive years and post-menopausally. Additionally, the cyclic hormonal changes of the menstrual cycle also influence the vaginal ecosystem. It is a variable state throughout a woman's lifetime, but nothing is more key to this ecosystem than lactobacillus. The range of bacterial types isolated is immense, including Staphylococcus species, Garnerella vaginalis, Streptococcus species, Bacteriodes species, Lactobacillus species, Mobiluncus, Candida species, (most commonly Candida albicans), and more. The predominant organism isolated from the normal vagina are members of the Lactobacillus genus. One species of bacteria inhibits another and an elegant combination of pH, vaginal immunity, hormonal activity and the community of organisms that occupy the vagina interact in a manner in which bacterial overgrowth is controlled, unless the well-established mechanism of balance is thrown off by one factor or another.
Factors controlling this defense system include the health of the vaginal squamous epithelium, the dominance of Lactobacilli and the subsequent low or acid pH balance and hydrogen peroxide production, hormonal activity both over our lifetime as well as our monthly cyclic changes, pregnancy, contraceptive devices, feminine hygiene products, and vaginal sexual activity including friction, lubricants, foreign objects, and semen.
It has been proposed that lactobacilli and possibly other bacteria cause the symptoms of CV. Even though we lack full understanding about the exact mechanism of lactobacilli overgrowth, a clinical condition does exist with this overgrowth that manifests as chronic cyclic burning and itching. It appears that this is probably related to an overgrowth of lactobacilli that produces irritating acids.( 1)
Several mechanisms are possible for how Lactobacillus in normal amounts does its remarkable job of controlling the environment. A low vaginal pH is believed to be a primary mechanism controlling the composition of the vaginal micro flora. Lactic acid is produced by the metabolism of lactobacillus and although there may be other ways in which the vagina maintains its normal acidic environment, the role of lactobacilli seems evident. Lactobacilli thrive at an acidic pH of 3.5-4.5 and these values are indeed found in the normal vagina throughout the menstrual cycle.
Lactobacilli have also been shown to interfere with how pathogenic bacteria adhere and colonize the cells of the vagina.( 3) Hydrogen peroxide production is another well-recognized method of antagonism to problematic bacterial populations and there are strains of lactobacilli that produce hydrogen peroxide (H( 2)O( 2)). A lack of H( 2)O( 2) producing lactobacilli predisposes a woman to bacterial vaginosis by allowing the overgrowth of Gardnerella and other anaerobic bacteria. Lactobacilli also act directly as antibacterials( 4) and may function as an immune stimulant locally in controlling microbial levels in the vagina.
But what happens when there is too much Lactobacilli? Several species of lactobacilli ferment both glycogen and glucose to lactic acid, carbon dioxide, alcohol, formic acid, acetic acid, and hydrogen peroxide. It is these acids that cause the problem. When lactobacilli overgrow, toe many acids are produced, causing vulvar irritation and itching.
Symptoms
Symptoms of CV usually mimic those of vulvovaginal candidiasis. The most common symptom is itching, but vulvar burning, dysuria, and entry dyspareunia are often present as well. Cyclical and recurrent symptoms typically occur during the luteal phase and worsen premenstrually, increasing in intensity and severity until the onset of menses. Once the onset of menstrual flow occurs, the blood raises the vaginal pH and there is often dramatic relief of symptoms.( 1)
The physical exam is not particularly different from candida vulvovaginitis. The vulva may appear red and slightly swollen. There may be a small amount of white and slightly clumpy discharge. The vulvar tissues may be a little tender with discomfort during the speculum exam. The cervix, vagina, uterus and adnexae are normal unless there is also some other kind of co-infection. Even the pH of the vagina is normal in CV.
Diagnosis
Diagnosis of CV is improved if the clinician has a high degree of suspicion of the condition. The history and physical exam basically mimics candida vulvovaginitis. The key is in the microscopic exam: 1) false clue cells with agglutination of lactobacilli to epithelial cells; 2) few white blood cells; 3) cytolysis of epithelial cells with pale or bare nuclei/cytoplasm and poorly defined cell borders; 4) absence of yeast, trichomonas, bacterial vaginosis, or other organisms.( 1)
Repeat microscopic exams that reveal the same findings is confirmation of CV. As you know, each episode of vaginitis symptoms may be due to a different cause.
Treatment
The goal of therapy is aimed at reducing the overgrowth of lactobacilli and providing relief of symptoms. Use of antifungal agents, both conventional and alternative, should be discontinued because these agents may contribute to the recurring nature of the condition. Use of lactobacilli in the form of yogurt, supplements and suppositories should be stopped. It may also be wise to discontinue use of tampons because unimpeded menstrual flow acts much like an alkalinizing agent, raising the vaginal pH and inhibiting the overgrowth of lactobacilli.
Baking soda sitz baths offer relief by removing irritating acid secretions from contact with the vulvar tissues and also just a local soothing effect to excoriated tissue from itching. Mix 2 to 4 tablespoons of baking soda in 1 to 2 inches of warm bath water. Sit in the sitz bath twice a day for 15 to 20 minutes. Wash the tub after each use. Baking soda douches should be reserved for women whose symptoms do not respond to the sitz baths. This is because douching removes vaginal secretions and can disrupt the desired organisms in the vagina and create further problems in maintaining an ecological balance. Consider douching with baking soda once or twice a week during symptomatic phases when the sitz baths do not provide relief. Mix 1 to 2 teaspoons of baking soda in a pint of warm water and gently douche either in the bathtub or over the toilet.
Cytolytic vaginosis may coexist with candidiasis and may need to be managed by combining therapy for both. Using the local antifungal agent in the morning and the baking soda gentle douche in the evening for seven days would be an appropriate regime that may need to be repeated monthly in the premenstrual phase of the cycle.
Other recommendations may prove prudent:
Reduce dietary sugar.
Avoid soap in the genital area. Instead, wash with plain water, use pure unscented mineral oil on cotton balls as a cleanser
Wear white, all cotton underwear and launder with mild soap and hot water, rinsing thoroughly.
Avoid sexual intercourse during symptoms and initial therapy. Oral sex should also be avoided during symptomatic periods because bacteria in the partner's mouth may be irritating to the vulva.
Summary
As women and clinicians become aware of CV, women with cyclic vulvovaginitis will receive better health care and be managed more appropriately. With improved diagnosis of this condition and accurate treatment, fewer women will experience cyclic recurrences of their vaginitis. Success is especially seen when the wrong treatments are discontinued and something as simple as using menstrual pads are used instead of tampons. Treatment approaches to treat CV must be modified as necessary and practitioners must recognize the individual needs of each patient and be willing to be creative and somewhat experimental, utilizing the basic concepts and understanding of CV that we have discussed here.
References
(1.) Cibley J, Cibley J. Cytolytic vaginosis. Am J Obstet Gynecol 1991; 165: 1245-1248(supple 2).
(2.) Kaufman R, Friedrich E, Gardner H. Benign diseases of the vulva and vagina (ed 3). Chicago, III, Year Book Medical, 1989: 371-418.
(3.) Chan R, Bruce A, Reid G. Adherence of cervical, vaginal and distal urethral normal microbial flora to human uroepithelial cells and the inhibition of adherence of gram-negative uropathogens by competitive exclusion, J Urol/1984; 131: 596-601.
(4.) Andersson R, Daeschel M, Hassan H. Antibacterial activity of plantaricin SIK-83, a bacteriocin produced by Lactobacillus plantarum, Biochimie 1988; 70:381-90.
Townsend Letter for Doctors & Patients.
~~~~~~~~
By Tori Hudson
(Kc)
06/27/2017
★★★★★
I am praising God for this article and the one above by another healthcare provider. Yesterday after 1 1/2 years of on and off dealing with this I cried out to God for a healing. I told him I can't keep doing this! I immediately came out to my computer and started researching AGAIN... what can cause this burning? My gyn told me I had a yeast infection but the medication didn't help.... NOTHING helped...until last night when sat in a bathtub with some baking soda in it.... last night in a rural area of Missouri a miracle happened! I am beyond thankful for this site and for those who took the time to post responses and filled with awe at the God I love who directed me to where I needed to go to get the answers! Praise God! I hope all of my fellow sisters in womanhood can find answers to what is causing their problems. I know the pain, I know the depression, I know the missing of being intimate with my spouse. I pray that you are given the relief you so desperately seek! I felt as though I was being burned by acid...turns out I was. Who would think that my own body would be doing this to me? Heart full of gratitude!
Thank you for the scientific information and scientists that spend time researching these types of issues. I will share this info with friends. Very helpful.
(Philadelphia, PA)
06/30/2021
Parasitic infections such as trichomoniasis, amebiasis, and schistosomiasis usually involve the vagina as well as the vulva. The diagnosis can easily be made by identifying the organism on a cytologic preparation or in a biopsy specimen. A parasite treatment may help. Black walnut, wormwood, cloves, and diatomaceous earth all kill parasites. Worth looking into. Check out the symptoms of parasites...bowel issues, itching, swelling, anxiety, nausea, urinary issues, joint paint, etc etc. Everyone has parasites and this might contribute or be a direct cause of vulvodynia.
Baking Soda Douche
★★★★★
After two years of suffering, this has been such a huge relief. I do have some residual pain with sex, probably from a learned 'guarding' response of the pelvic floor muscles, and I am getting physical therapy for that and I apply lidocaine jelly before sex. Things continue to improve.
(Houston)
12/18/2016
(Dallas)
04/23/2017
Baking Soda Douche
★★★★★
However, little was I to know that I was only beginning a hell ride that would continue for months and ultimately end with me researching and finding my own resolve for this matter. Not the Physicians, 6 of whom I would end up seeing for this. Following the course of Bactrum I went back to my normal routines. I had intercourse with my husband one evening and when I woke up to urinate in the middle of the night I had burning and stinging unlike ever before. I thought to myself I must be dreaming. I was better. I had such intense burning I had difficulty falling back to sleep. I called the clinic the next day, still unable to see a physician. So I spoke to the nurse of a Doc I work with and she called and said that they would prescribe a course of Cipro for my stubborn UTI, however, I was to provide a urine sample to the lab. Lab was neg. I began the Cipro and within 2 days experienced severe itching and was given Diflucan to treat. The itching resolved, however, this awful burning feeling that I had, had not. Frustrated again I made an appointment to see a Nurse Practioner. She examined me and tested for everything under the sun. Yeast, Bacteria, STDs, etc. With no hard proof of anything to me she would give me a course of Doxycyclin. Desperate for healing I went ahead and took the script. My burning intensified to the point where I could cry. Ice was not enough to cool. I felt as if heat were eminating for my vaginal area that could burn a hole in a glacier. Later I was given Metrogel vaginal gel for what was thought to be a case of BV. Clue cells were identified in a wet prep so they said, however, the vaginal gel added insult to injury. No odor/ no unsual discharge noted. I tried every natural substance I could find to calm my horrified bottom. Raw Honey, olive oil, cornstarch and baking soda powder, vit E oil, Petroleum Jelly, KY Jelly, Desitin, Vit A oil, plain yohurt(which cooled me)... I tried it all. Also tried, Clotrimozole/betamethasone ointment, clebasol, hydrocortisone, allergy ointment, Nystatin, Monistat yeast Med... To no avail. In fact it made me worse.
Months later and still battling I see my GYN for the 3rd time. She says "I'm sorry dear you have Vulvodynia. " In my research I had seen this term & had thought that this is the Fibromyalgia of the vaginal world. A term used to label unsolved mysteries. Angered.. I did more homework. Antibiotics upset vaginal Flora & PH. Antifungals also change vaginal PH, making the area acidic. Birth Control can also influence PH. Vulvodynia symptoms clearly parallel the symptoms of Cytolytic Vaginosis. A very CURABLE problem. Practioners forget to look at the very tool that got them into medicine... CHEMISTRY. When you make an environment normally slightly acidic extremely acidic two things occur, irritation of skin, and burn like symptoms(ACID).
The Vagina is a delicately balanced Microcosum of bacteria/yeast/lactobaccilli/ and numerous others microbes. When antibiotics are presented, they wipe out an already unbalanced(in my case) world. Antifungals to prevent/correct the yeast symptoms also make the vagina very acidic still. Ultimately you have a petrie dish of disorder in a very big way. I suggest all of you think about your starting symptoms and look closely at what may have precipitated them. Antibiotics for no matter what will start the ball rolling. Cytolytic Vaginosis is basically a Chemistry lesson that our providers are just overlooking.. And for what reason I am not certain. It is extremely basic. And the cure is Baking Soda douche. 1-2tablespoons/4 cups of warm water. , bathing in a Sitz of Baking soda water is also very helpful for the external symptoms of itch and burning until symtoms resolve.. And they will.
Please all of you look up CYTOLYTIC VAGINOSIS. The symptoms, of burning, and itching, rawness do not just occur by themselves. They have been precipitated by something. They can be balanced and harmony can once again occur. Demand that your practioner do a vaginal PH. CYTOLYTIC VAGINOSIS will be in the 3.5-4.5 range. Certain Cytologic indications will also be evident on the wet prep slide. Lactobacillis will be plentiful. I encourage you to fully trust your instincts, your body is an amazing creation and the answers lie in sometimes the most basic fundamentals. Good Luck to you. I wanted to share my experience to help others prevent the nightmare the Medical Professionals whom we all go to in times of need, can create.
God Bless, Khristine
(Los Angeles, Ca)
06/08/2013
Khristine, Thank you SO MUCH for your posting. I have been going crazy trying to figure out what was going on down there. Even with all the research I've done into BV, Vulvovaginal Candidiasis and pelvic floor muscle tightness, I had never heard of Cytolitic Vaginosis. I know this is what I have because after reading a medical article titled "Cytolitic Vaginosis and Lactobacillosis" on a site for nurse-practitioners-and-physician-assistants, I identify with the fact that the symptoms go away during menstruation and that the skin around the opening of my vagina is irritated by the acidified discharge.
I don't know if the baking soda douches will help, but I will try them, and I will stop taking probiotics until the issue is resolved. I read on another health board that a woman used a pH balanced lubricant every night and treated her CV. You can find it by searching for the postings by mamacitas on a thread titled "Yeast, Lactobacillosis or Cytolytic Vaginosis???"
Anyway, good luck to everyone in their search for an answer. Sometimes I think some of us know more than our doctors - let's keep sharing what we know!
(Los Angeles, Ca)
06/08/2013
Shannon, I found this information on a pdf online about using baking soda douches for treating CV:
Mix 1-2 tablespoons of baking soda with 4 cups of warm water. A douche bag, which can be purchased at most pharmacies, is then used to infiltrate the vagina with the solution. Or, you can purchase baking soda douches over the counter at most pharmacies. Douche twice weekly for two weeks.
Alternatively, if douching would be difficult, fill empty gelatin capsules with baking soda and insert one capsule intravaginally, twice weekly for two weeks.
(Syracuse, Ny)
07/22/2015
Hello, my name is Myra and I really appreciate your article about using a baking soda douche. I've done it quite a few times and was amazed at how good I felt afterwards. My question to you is how often should I douche? I would do it everyday if I was sure I wouldn't be causing myself more harm. Thank you in advance.
(Sarver, Pa)
11/09/2015
(Minnesota)
03/07/2016
Since you are in PA it might be possible for you to go to NYC, I have a strong recommendation to go to Renew Physical Therapy for painful sex. Also you can get the book "Ending Female Pain" by Isa Herrera (available on Amazon). You may have a PT in your area also who focuses on painful sex and women's health issues, you could ask your doctor. This is probably just one part of the puzzle that you are dealing with, but for me it was a big part! Hope this is helpful.
(Pa)
02/03/2017
(Usa)
11/30/2020
I never had any burning but my pain has been sharp and raw on the lips. I'm taking Lysine and C-1000 for my symptoms and have forgotten days and paid for it deeply (oops! )
It started last year in November and hasn't gone away since, and with various levels of pain. I've tried several different things for it but only the Lysine has lessened my suffering.
Baking Soda, Perineal Massage
★★★★★
Well, its been 2 weeks since I've been off the pill and I already notice a decrease in the burning feeling on my tissues, but noticed my vaginal muscles just feel tight. The doctor told me sometimes vulvodynia occurs because of the body having pain for so long, I subliminally tightened my vaginal muscles in anticipation of every day pain. I have been finding this to be true, and have been doing the perenium massage I've read about, inserting a finger vaginally and pressing down on the pelvic floor muscles, it hurt at first, but got better with time, and its only been 4 days. I also plan to visit the physical therapist to see if there are more stretches I can do to loosen my muscles.
I hope this post helps anyone out there suffering from vulvar or vaginal pain that may have similiar problems. I was feeling quite hopeless being in daily pain for 10 months, but am hoping its finally passing. Keep trying new things, try doctors, accupuncture is wonderful, don't give up, it WILL get better.
(Annapolis, Md)
05/17/2018
(Wisconsin)
06/09/2021
Carley Rae taught me it's not called a Pelvic Floor. She has a helpful instagram page dedicated to vaginal health. She taught me there is NO PELVIC FLOOR. It's a bowl. The medical industry was wrong in calling our our body a "floor" when there is nothing floor like about it. This change of mind has helped me understand my body better. I hope it helps you to understand, too.
We all can heal the root of our disease, we just need to take out health into our own hands, research (Thank you Earth Clinic) and be prepared to try and fail until you find a solution. Staying open minded, optimistic, and empowered is key. We have the power to heal entirely, but we must get to the root of the disease. Our bodies are amazing . Look to diet and start by avoiding sugar, gluten, and starch. Edgar Casey and Sally Fallon have brilliant readings
Vitamins in pure powder form with ZERO additives.
NO TABLETS / NO PILLS : , vitamins C - push the limit, some is the same as non- you must cross the threshold for it to have an effect. I take 2,000M G daily and push to consume more. start with 1,000 MG daily
ZINC!!!, and all your B's, Magnesium Citrate, IODINE Lugols (I'm on three drops daily 3x's a week)
Amino Acids
Aluminum FREE sodium bicarbonate drink in water and topical solution
Take Fulvic Minerals
detox the liver with borax
Borax Douche
★★★★☆
So I'll see how it goes. The borax is mostly a quick fix for severe irritation and burning. I'm going to try with the coconut oil to see if that helps for a more long term solution. Thanks so much for all the feedback here! I love this site :).
(Pa)
12/06/2013
I suffered terribly with clitoral pain for 6 weeks being told it was just first a yeast infection, and then just low estrogen due to the fact that I was breastfeeding. It took many trips to the gyn, gastro-enterologist and a sigmoidoscopy (b/c I was also having some rectal symptoms) to finally be referred to the dermatologist who found by swabbing that area that I had group strep A ( like strep throat but genitally). My son had been found to have this rectally maybe 6 weeks ago when my symptoms started. I had mentioned that and they thought I was crazy to suggest it. I was so angered that I was right all this time and all it would have taken was a swab like I asked them to do. I suffered so much pain daily since it's the most sensitive spot of your body that I do believe like you wrote that maybe my now vulvodynia is a result of my body bracing for the daily pain for so long. It's getting better, however, I feel as if I might have just recently set myself back by either a probiotic or a new raw vitamin (with probiotic also in it) that I am taking. I also eat a lot of yogurt. Perhaps I am getting TOO much lactobacilli. I feel really sore around "6 and 8 oclock" but see nothing except morecervical mucus than usual. I'm thinking I'll stop the probiotic and vitamin and see. Please email me if you have any useful feedback.
Not sure this will help you and you probably already know this but:
wear cotton or NO underwear
when you wash use your fingertips and not a wash cloth
perhaps swab with a diluted betadyn solution once or twice a day to keep infection down
I used to get many vag infections and I know this is diff than the staff you get but douching with yogurt helped
Botox
★★★★★
Calcium Citrate
★★★★☆
Calcium Citrate
★★★★★
(France)
04/15/2014
★★★★☆
Castor Oil, Baking Soda
★★★★★
Organic Castor Oil is critical, not coconut oil. A holistic healer woman told me coconut oil is not the best for the vagina. I buy the castor oil by heritage in the brown glass bottle and it allowed me to soothe my vagina pain, stop itching at night. In combination with Baking soda, I dilute aluminum free sodium carbonate with distilled / or spring water, and then mix castor oil - ensure it's organic. I apply after I pee every time. This helped me alot. Castor oil can be used alone topically or inside the vagina. Wishing you wellness and strength.
(Colorado)
02/19/2023
I was diagnosed with both interstitial cystitis and vulvodynia. The doctor I went to only wanted to give drugs for it and I never thought about finding a natural solution until now. My vulva pain is only during attempted intercourse. Just touching the vulva is painful and I can't continue. I will try the castor oil and also try the supplements suggested.
Coconut Oil
★★★★☆
(Delhi)
08/04/2017
I also have vulvodynia and that pain is not permanent but its really sharp pain plz suggest me something n tell me how to use coconut oil
(Wisconsin)
06/09/2021
Not coconut oil! Use organic castor oil, it's a way better oil for the vaginal area. Something about coconut is cold and drying where castor oil is warm and truly healing. Research. Happy I was told a few months ago, as I was a vitamin E, coconut oil person, but the switch is smart.
Coconut Oil
★★★★★
(San Diego, California)
05/12/2010
Update: I am still a lot better... i have a little discomfort every now and then maybe for about 20 minutes a day but i am still for the most part pain free... still not getting my hopes up but i can't argue with an obvious improvement... hoping for the best! give your body time... i still don't expect this problem to be completely resolved for a long time... keeping my chin up, and keep yours up too.
GOOD LUCK, you CAN beat this :)
Julie, I'm so glad you found relief and figured it out too!! That's fantastic! Coconut oil is awesome, and I wanted to pass on, that coconut oil is also good for personal itch issues. Mom had a stroke and I was her caregiver...I'd mix up borax mixed in with dr bronners soap and warm water to wash her privates, then gave her a bit of coconut oil to rub on, and she just loved it! It is a mild antimicrobial as well as being good to ingest and good to cook with too!
(United Kingdom)
02/17/2017
Hello my 12 year old daughter has vulvodynia and was prescribed antidepressants today but those take weeks to work. Do you drink the coconut oil or apply it to the affected area. I am desperate to help her. I took the vulvodynia diagnosis to the Dr myself as they have left my poor girl in pain for nearly 2 months making things worse with double strength antibiotics. Any advice would be appreciated on pain relief.
Tems
(Singapore)
03/09/2017
Tems, I'm so sorry your daughter is suffering. I'm still trying to figure out how to stop my vulvodynia, but I have come up with something that provides instant, cooling relief when the pain is bad. I add a tiny amount - about the size of the head of a pin - of Tiger Balm white ointment to some coconut oil or emu oil, and rub it into the vulvar area. It should feel like a fresh, cool breeze, and lasts for a couple hours. If it burns at all, just use less Tiger Balm. This has been a life-saver for me over the past year and a half, and I hope it is helpful for your daughter. You can find Tiger Balm on Amazon.co.uk if it's not available at the chemist. Best of luck to you!
(Denison, Texas)
05/21/2017
I just read this about coconut oil helping/healing women with vulva issues. I broke down in tears, as I've been going through this for almost a year. I just took some coconut oil internally and will be applying it in my lady parts when I go to bed. Thank you, Lord.
Colloidal Oatmeal
★★★★★
But the key to stopping and treating the pain is Colloidal oatmeal! I had some luck with coconut oil, but it never "treated" it fully, at least for me. I buy Aveeno baby bath oatmeal powder. I mix it with a bit of water to form paste then apply it to the red/painful areas of my vulva. Let it sit for about 15 minutes, then soak in a bathtub with the rest of the packet of oatmeal. I apply the past in the morning and night and do the bath at night. In about 3-4 days I'm all healed! I still get flare-ups but atleast it doesn't have to ruin my whole life.
Cool Water
★★★★★
Desitin, Tea Tree Oil
★★★★★
At my worst, I also wore an estrogen patch. Also took plenty of Vit E, Vit D3, and some coconut capsules.
If this helps just one other person, glad I took the time to post.
(Birmingham, Uk)
12/10/2016
Hi, I too have suffered for that long bit more 4 years, but it doesnt matter, do you get pain all over or just opening? Because mst people have it around the vag opening, but I have it everywhere and it feels terrible like needles stinging all over burning, acheing a lot of discomfort, very desperate, because I feel that I will lose my longterm boyfriend over this, its horrible. I'm very depressed too .I'm 28 too young to not to have a healthy love life.
