Electromagnetic Frequencies, Cold Weather
Finally, if you have lupus and Raynaud's and live somewhere where it is cold, Raynaud's is closely linked to low thyroid function on exposure to cold weather. Raynaud's has been successfully managed by treating the thyroid. City tapwater has caused most of the lupus symptoms for me...its the pipes and the water that flows through them.
(Lowell, Ma.)
01/10/2012
The floride used to kill bacteria is actually harming you. Good Luck
General Feedback
★★★★★
Holistic Approach
(Middletown, Usa)
04/24/2013
Instead of Plaquenil, what did she do?
Hydrogen Peroxide
★★★★★
Hope this helps others...
Kokila
(White Plains, Ny)
07/13/2015
Hello...I tried the HP 35% food grade once and after the 2nd day...(only 3 drops) I was light headed and dizzy. I would like to try this again. Would you be so kind and advise where you bought your HP 35% FG, as I am sure it is a reputable site.
Thank you and Best of health to you!
Hydroxychloroquine
★★★★★
Intravenous Immunoglobulin (IVIg)
★★★★★
I had the butterfly patch, I also had hair falling out where my hair was parted, a patch on the back of my arm round that looked like my butterfly a cross my nose and under my eyes and another one on the back of my calf that was the same size as the one on my arm.
I also had severe pain in my joints and getting out of bed was extremely difficult as my day progress movement became easier.. I was spilling protein in my urine around +2'.
My doctor told me I wouldn't be able to take birth control any more so 2 months after taking me off of them I became pregnant 2 months later. While I was pregnant, my doctor explained to me that having my baby was very risky, I felt wonderful pregnant and if I had it my way I wanted to be pregnant forever... I had complications during my 6th month and was in the hospital for a week. I had my baby 2 days before my due date and she and I were healthy.
Right after giving birth the put me on prednisone and several other medications. I've been in and out of the hospital several times. I also was on dialysis for 6 1/2 yrs then I received a kidney from my sister. During the work up, they cross match you with the donor, then after they're done working up the smoothest cross match both of you again and I didn't match. They asked if I would like to be in a study called IVIg STUDY (Intravenous Immunoglobulin). I agreed. YOU get 4 treatments and you know after the first one if it's working,
I was blessed and it worked. The last treatment is done when the transplant itself is being performed. It's been 15 yrs, 4/11/00 and my kidney, function is still working and my labs are well as expected.
I have developed other problems through the years, DVT GERD, COPD, HYPERTENSION, CHRONIC PAIN IN MY LOWER EXTREMITIES. There are more pills I take, just more then I want to explain.
If you would like to ask questions feel free to ask. I did clot almost every other treatment on dialysis. I take roughly 30 pills a day now.
(Burbank, Ca)
01/08/2016
I was diagnosed with Graves disease 18 years ago. My thyroid was removed with radioactive iodine treatment. I was put on synthroid and have been on it since. Was never 100 per cent healthy again. Recently started getting sick. I was diagnosed with Lupus yesterday. After spending hours reading on this wonderful site, I feel I have hope. Thank you to everyone!
LDN Plus Immune Supplements
★★★★☆
Borax, ACV, Colostrum, D3, Taurine, Selenium, magnesium, Vit C, Lecithin, Ubiquinol, fermented fish oil, B complex, inhaled peroxide, etc...have all helped me to make this disease bearable.
When ever you go DRs and they say...there is no cure for this...I start asking myself...then why should I take the drugs? At the risk of damaging other parts of my body. My alternative med. Dr.said, You can take the drugs but it will kill you faster than the disease. He was right. I had to have some Depomedrol in my ear for hearing loss, I developed all sorts of side effects. That was enough for me. I found that using the information from this website and other natural forums have proven invaluable to me. Am I cured...no but is my quality of life good...yes and I have had this for 7 years. I feel blessed to have found this site and recommend to my other AI sufferers also. WE who have these diseases know from experience what is helping and by sharing can possibly help others. God Bless all of you who contribute to this site. It's an invaluable resource.
Lupus Caused by Medication
★★★★★
Yes lupus can also be caused by all the dangerous medication we take. I agree, I nearly died because of it.
If medication is the cause, detoxification will work for you. One extra bit of information about detoxification is that my list of detox medicine I use is short, but effective. Here is my own list of things that if I would detox I would take:
Detoxification of harmful chemicals, I would use: MSM (allow removal of toxic chemical out of cells), disodium EDTA (removes heavy metal), sodium thiosulfate (detox chlorine), indole 3 carbinol (detoxes Dioxin TCDD and pseudoestrogen), borax (removes fluoride), citric acid+baking soda (removes free radical metals and reduce inflammation, while maintains stable pH), and creatine monohydrate (removes formaldehyde). Intestinal detoxification, no need to mention here, other websites has good info. Usually a simple way to induce a major loose stool is baking soda + sea salt at one half teaspoon each. Do not go anywhere for the next 3 hours! If dose is too low, just double it. To restore liver function, just tumeric or curcumin and milk thristle. To restore immune function & support, just try seaweed, kelp as a good iodine source, and take echinacea to increase body immune system. Taking some secretogens to increase human growth hormones such as L-glutamine (2 grams) or possibly niacin + aspirin (taken 30 minutes before to prevent flushing) and L-glycine will help restore and rebuild cellular functions. And since most of people who has been sick for a long time, adrenal exhaustion is quite common. Taking licorice extract and DHEA, all components of adrenal glands will really help. Just my own short list of supplements that will detoxify. You mentioned the use of Hempseed oil, Pumpkinseed oil and Hemp Tea. Those you mentioned are good, but in some countries, hemp is illegal. I would like to get it myself, but it is illegal here also.
Lupus Nephritis
(Quezon City, Philippines)
01/09/2013
Good day! We read about the posts, comments, and questions about SLE.
My daughter was hospitalized and shown symptoms of SLE like hair loss since her elemenatry days and continous at present at her age 21. And the doctor test the ANA and the result shown positive. Her face have a a butterfly rash together her shoulder and her back. I'm very worried about her because I don't have any idea what kind of disease is this. I just want to ask help on how we can cure her. Hope that you can give suggestions of medicines that she need to take. Thank you and hope that you response as soon as possible. Were still in the hospital right now. Thank you and God Bless
(Tustin, Ca. Usa)
01/09/2013
In reply to Angel from Quezon City, Philippines: The following new abstract shows that supplementing with 2000 iu of vitamin D a day can reduce symptoms and inflammatory markers of SLE:
http://www.ncbi.nlm.nih.gov/pubmed/23204220
That is important, but what is more important than the dose of vitamin D is taking enough vitamin D to get your vitamin D serum level (25 OH D serum level) well into the reference range of 30ng/ml to 100 ng/ml. Some people require more vitamin D than others to achieve a specific 25 OH D level, or to say that a little differently some people simply require more vitamin d than others so it is the actual serum levels that are more important than just saying to take a specific amount of vitamin D.
This next abstract tested vitamin D at large weekly and monthly doses. The test started out at 100, 000 iu of vitamin D per week for 4 weeks and then was followed up with 100, 000 iu of vitamin D each month for 6 months. So roughly 1, 000, 000 iu of vitamin d was given over a 7 month period if I understood it correctly or roughly about , 4, 600iu per day over the 7 month period. Again, a reduction in inflammatory cytokines and markers of SLE were found and improvement seen, adding some confirmation to the finding of the first study above. One significant difference with this second study at the higher dosing than the 2, 000 iu per day in the first study, was that there were no observed SLE flares during the 6 month follow up period and that seems pretty significant to me!
http://www.ncbi.nlm.nih.gov/pubmed/23075451
Man normally makes vitamin D from full sun exposure on a daily basis when your shadow is shorter than you are tall and could never naturally produce 100, 000 iu of vitamin d in one day, so this is not a natural amount for the body to handle in such a short period of time. Mainly this kind of dosing is used in these studies to help with study medication adherence and possibly to speed the buildup of 25 OH D in the serum which can generally take about 2 months. I think daily supplementing or daily full sun exposure is more natural to the human body and is possibly easier for the body to handle.
Best wishes!
Art
(Uniontown, Oh)
01/10/2013
Low dose naltrexone is effective for systemic lupus. A doctor cited in the book "Honest Medicine" asked his two aunts who had lupus if they would like to try LDN. They did and in a month they were both much better. LDN is not a cure but will moderate the immune system so that many autoimmune diseases can become a non-issue as long as the LDN is taken at very low doses daily. MS will not progress in most cases, Parkinson's can be helped, Crohn's has over a 67% remission rate, many bowel and cystitis problems improve. It has No side effects. Please see www.ldninfo.org for more information. It is also very inexpensive! It can also be beneficial for cancer, along with other treatment strategies. (It is not a stand alone treatment for cancer) It can be taken with any other drugs except opiate based medicines.
(MI)
09/29/2021
@RSW:
LDN absolutely has side effects. I couldn't tolerate staying on it. It gave me horrific nightmares and insomnia.
(Australia)
03/12/2014
(OH)
09/30/2021
I'm sorry to hear that you had a bad experience with LDN. Research shows that some people will have vivid dreams, but almost everyone says they enjoyed these, and they don't last more than less a week or so. I, too, have found it difficult to sleep taking it at night, so like most people suggest, I take it in the morning. I hope you can find something that gives you some relief soon. Best wishes.
Lupus Theories
Treatment of Lupus with Sodium Iodide:
http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=2298920
Mega-Iodine Supplementation info:
http://www.vrp.com/articles.aspx?page=LIST&ProdID=1781&qid=&zTYPE=2 (Gets rid of Bromine, Mercury, Lead, Aluminum) (kills fungus as well)
Aspergillus Mastoiditis in a Patient with Systemic Lupus Erythematosus: A Case Report http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1150873
Aspergillus can be a devastating fungus if it gets a foothold in humans. Ergot is a particularly nasty mycotoxin.
Note: I don't have Lupus or know of anybody being cured, like this one case study from 100 years ago. I would suggest taking Ted's advice, first. However, an Iodine supplement like Lugols or Iodoral may not be a bad additional supplement.
(Seneca, Sc)
12/21/2012
The National Institute of Arthritis and Musculoskeletal and Skin Diseases published a paper in 2005 asserting a likely link with the Epstein-Barr Virus in triggering Lupus. Molecular Mimicry resulted from the anti bodies produced by the immune system with some people (predisposed?) to create the antibody and in the creation of the antibody which was to kill the EB Virus, the antibody attacked a protein in the body instead: hence molecular mimicry. The article is on line and can be accessed by googling the National Institute above with search words "virus" and "lupus."
The first course of treatment then would recommend ridding the body of the virus to make the anitbodies stop their search and destroy mission... Accidentally shooting their own. Get rid of the trigger. Get rid of the virus. The article did not comment on how to treat. This is my own consideration.
So consider the colloidal silver solution consumed twice daily at a tablespoon each dose. Do this for a two month treatment and closely monitor to determine a change in symptoms. If better, keep up the protocol for up to a year. Yes a year. I take CS every day for the past 10 years. If one takes a properly diluted liquid no argyria results. Again the NIAMS only discussed the viral trigger. It did not suggest a treatment. The treatment suggestion is mine, not the Institute.
Lupus Theories
★★★★★
Margaret's Lupus Remedies
★★★★★
First, you must stop drinking alcohol and smoking. It hinders all other things you are doing to improve your health.
Next, change your diet. Start including salmon, fruits, vegetables and green leafy salads. Drink lots of water. And finally add these supplements: vitamin E-100 IUs, Panothenic Acid -500 mgs and Manganese- 50mgs. Take these daily. I also took a strong multi-vitamin called "Stress tabs."
Although I can't get a doctor to say I am "cured." I have gotten them to use the words: "in remission."
My medical doctor said there is now research that vitamin E negatively affects the heart but temporarily it should be fine. (right?)
My Lupus disease was severe with rheumatoid arthritis, hair loss, blood clotting and severe fatigue. Now, you would never know I was ever sick. I am healthier than most women I know my age and younger.
Thank you for this website...you have changed my life for the better.
(Toronto, On)
08/09/2011
Hi Margaret. I am responding to a posting you submitted to Earth Clinic regarding lupus remedies.
Can you tell me how long it took before your lupus disappeared? For the stress tabs -what brand and what dosage mgs per day? Also, what made you take these supplements.
(Fort Wayne, Indiana)
08/13/2011
★★★★★
Just wanted to share my story on lupus. In Dec of 2010 I went to see a intergrated doctor. Found my gluten numbers really high along with antibodies for lupus. Went gluten free and in only 2 months my lupus antibodies were gone! Just had a follow up visit and my antibodies are still gone. I say go gluten free. I also had my Vit D checked along with b12 and iron. If you live near a intergrated doctor I would recommend going. Good luck to all out there, Sherry
(Lafayette, In)
11/19/2011
(Vass, North Carolina)
04/10/2012
(Las Vegas, Nv Usa)
11/29/2012
to margaret: my wife has lupus and it's in her brain. Our doctor told us in 2005 that he had 2 other patients that had lupus in their brain and they both died within 2 years of diagnosis. I read a book by a Dr.Strand from colorado, and he had a list of vitamins and supplements to take. My wife takes a multi-vitamin, vitamins e and b complex, and c. She also takes grape seed extract, co-q10, fish oil, and l_glutathione. This may (2013) will be 8 years since she was diagnosed with lupus. also and the big thing for us is, as we are both christians, there have been a lot of friends and family praying for us. david
MMS
Is there a danger if I take the MMS while I am on Plaquenil?
I am trying to remedy my Lupus by being on a candida diet, (since I have found this site) & I am doing the Borax thing along with the baking soda also. I have bought some probiotics, liquid, from the health food store, but noticed there is sugar in it, I am holding off on taking it.
(Regina, Sk)
01/21/2011
Bobbie:
Have you looked on Jim Humble's site yet for things?:
He now calls MMS "Master Mineral Solution" to try to answer his critics and detractors who say, among other things, that he is peddling snake oil!
Some links on his site are not active, but the 1000, 2000, & 3000 protocols even have videos up on You-tube.
An excellent search site for videos is www.zapom.com, which will find vids from every site on the net including the main ones like GoogleVid, Youtube, etc. Here is the example search for MMS:
http://zapom.com/mms mineral miracle supplement
There are many books on lupus, this one from 2004 with all high reviews, a rarity:
Also, there are many articles in a good search that show studies even within NIH that show a correlation of very low Vitamin D levels and lupus.
(Jamestown, Pa)
01/31/2011
MSM
★★★★☆
(Canada)
01/15/2016
Do you take the 3 tablespoons of MSM just once a day? Can it be divided into more frequent doses?
Multiple Remedies
★★★☆☆
We are using a natural path where she is on many protocols such as magnesium, Galactose, mannose, Vitamin D, Mineral waters etc. we were hoping with the help of natural path and regular treatment we will be able to save her not to flare up. But it seems not happening. Her blood test results haven't shown any lupus or ANCA yet but we could she because it happened same when she was diagnosed and hospitalized. My husband and I can't sleep and very worried about her. However, very sure that there must be some solution for her kidneys and disease. Looking for ways to revive it and keep her safe from dialysis as much as possible.re
Dr is asking to give her IV steroid that might help her stopping the flare up and in kidneys as well.
Any Help or similar situations anyone have deal and were able to solve will be appreciated.
(La)
10/30/2017
Hi,
My prayers are with you and hope your daughter gets well really soon. I know it must be really difficult for your daughter and your family and as a parent you are doing your best.
My 11 year old daughter has been diagnosed with Lupus/Crohns last year. Doctors cannot pinpoint whether it is crohns or lupus since she had all the symptoms related to crohns and lupus both.
We started her on SCD (Specific Carbohydrate Diet) this year since Feb 2018. She has weaned off all her medication since Feb 2018 except proguanil which is given to Malaria patients. However this medication has shown good benefits with Lupus also.
Since Mar 2018 we are doing her blood test every 2 months and she is 100 % normal. All her results are coming as normal. I think the major benefit is because of SCD diet. You can google this to know more about SCD. I'm not sure whether it will help your daughter or please look into that.
Hope your daughter get well soon. Take care.
Shell: Need to find the root cause of Kidney disease. You need to do some medical history especially vaccines.
Basically there is a major toxicity issue going on here, which is why she is responding so poorly to conventional and alternative treatments. To help detox her body, in addition to her current ND regimen, add a very high quality multivitamin/mineral with added nutrients like green foods, digestive enzymes, etc. To eradicate infection in the gut, Oil of Oregano softgels plus Milled Flax Seed 2x daily with meals. Eat lots of Pineapple (ether fresh whole or canned) to help digestion and reduce inflammation) To help the Kidneys particularly, in addition to the Mannose, take a minimal dose of Dr Christopher's herbal "Kidney/Bladder" formula, and slowly increase to recommended dose for children or adults. Before retiring, take either Bentonite Clay or Activated Charcoal to remove toxins from the body.
Clean up the diet as much as possible. Very little or no processed sugars or food additives, and add healthy fats like Fish, Evening Primrose, and Borage Oil will help. Clean up house of organic or inorganic material. All chemical fragrances, perfumes, etc, must go. Replace air filter with something of high quality like a permanent washable filter or HEPA filter, or purchase a whole house indoor Air Purifier; also purify all water. Organic only household & body products can be found at most health-food stores, one online store I highly recommend is Mike Adam's (The Health Ranger) Natural News & Foods. Find healthy here . Hemp/CBD Oil will improve most any disease condition.
(Tn)
10/30/2017
Dear Shell,
I am so sorry - I am sure it is hard to sleep when you see your daughter suffer so much.
The thing that come to mind as I read your post that I would be considering if this were my daughter would be charcoal poultices over the kidney area at night.
Here is an interesting study about the use of charcoal in kidney disease and its ability to decrease creatinine levels. Now, the specific kidney disease, age of patient and way of administering charcoal are different in this study, but it does make me thing that charcoal would be something to consider. Especially since external poultices should not come with interactions with any medications.
And here is a story about a child with vasculitis on the brain with suspected lupus that was healed with charcoal. (Look about 1/5 of the way down the page.)
Some other things to consider would be nettle tea as a blood purifier; we have seen it do some wonderful things for children in our house. But I would make sure with the doctor that that was okay.
Please do keep us posted. I am praying for her!
~Mama to Many~
(In)
10/30/2017
Shell I have not had experience with these issues. For our family we use Teds information as he has been spot on through the years.
Here is his extensive information from Earth Clinic. The first email is his most recent re lupus. Janet
(California)
10/17/2022
Have you read the book Goodbye Lupus? The raw vegan diet with chia seeds for calories/fats/protein and omega 3 put one medical doctor's lupus into remission after having it for 12 years. She was on a kidney transplant list. Last name Goldner. It may work, I hope and pray it does work.
