Aloe Vera Juice and Probiotics
★★★★★
(Florida, US)
10/05/2014
You should try the highly concentrated active ingredient of Aloe Vera called AMP. See what happens.
(Toronto, On)
11/14/2014
Sue, would you be able to tell me the brand of Aloe Vera Juice which you used for your lupus?
Apple Cider Vinegar
★★★★★
Apple Cider Vinegar
★★★★☆
Apple Cider Vinegar
★★★★★
Artemisinin
★★★★★
(Algeria)
07/20/2022
(Campbell River, BC Canada)
06/01/2023
Karilee,
The following study suggests that melatonin and vitamin D may be helpful for SLE:
Here is a relevant quote :
' Low levels of melatonin and 25-hydroxyvitamin D3 may be a factor in the unbalanced immune system of SLE. • Supplementation of melatonin and 25-hydroxyvitamin D3 may be recommended for women patients with SLE.'
The following study goes a step further in showing that the vitamin D receptor is down regulated in SLE :
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9894746/
A basic way to increase vitamin D receptor is to take vitamin D as discussed here:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4008591/
Here is a relevant quote :
' We found that activated CD4+ T cells have the capacity to convert the inactive 25(OH)D3 to the active 1, 25(OH)2D3 that subsequently up-regulates VDR protein expression approximately 2-fold. '
Given this method of action of vitamin D to increase VDR, results will take a while as your vitamin D level increases with supplementation.
The following review suggests that Artemisinin may also be beneficial for SLE :
Here is a relevant quote from the review :
' Both clinical and animal studies suggest that artemisinins have potential beneficial effects for SLE. The beneficial effects associated with artemisinin treatment include improving symptoms, reducing level of antibodies and proteinuria, ameliorating renal damage, and diminishing the dosage of prednisone use. Animal studies suggest that mechanisms of action of artemisinins may include regulating T cell subsets, inhibiting activation of B cells and production of inflammatory cytokines, as well as blocking the NF-κB signal transduction pathway, thus playing a role in anti-inflammation and immunomodulation. '
Art
B3, Gluten, Blackstrap Molasses
★★★★★
I should mention, if you do use blackstrap molasses to "blacken your hair," be careful that you do not develop a vitamin B3 deficiency, WHICH IS known as pellagra, which apparently is important for the diet for those with Lupus.
For the man who treated Lupus on a gluten free diet...take heed, that this goes right back to a probable involvement of strep as this is the main bacteria that feeds on B-vitamins, as it is essential for them to live. This is especially true if you eat corn poducts because corn alone can induce pellagra if the corn has not been fortified(i.e.canned corn or corn on the cob, corn chips, or unfortunately for all its good intentions..organic corn producers that do not fortify their processed foods. If you have Lupus and you're going luten free and eating unfortified corn, you're inching closer to pellagra.This one instance where eating a wholesome food (corn) will give you disease (pellagra) if eaten in large quantities and it is not fortified.
(Niagara Falls , Canada)
08/02/2007
re: Corn and Pellegra Email Posted by Rhonda -- Traveller's Tales Italy (edited by Anne Calcagno) has a very moving and detailed account by an American botanist of how the importation of maize (corn) from Mexico to Italy after the discovery of the new world led to pellagra among the Italian peasantry. Unlike the southwest Indians who ground the corn and processed it with ash (calcium bicarbonate "lime" and other mineral salts to release the nutrients, in Italy the corn was simply ground in a standard way to make corn flour. It was then used for polenta, which became a staple of the peasant diet and led to pellagra . This is a stunning piece of social history that will be of interest to many people. "Sagra di Polenta" is the name of the chapter. The author is Gary Paul Nabhan.
(Solana Beach, Ca)
02/16/2011
I just Wikied "Pelegra, " and briefly read the beginning of the history section and this is what it said:
The traditional food preparation method of corn (maize), nixtamalization, by native New Worldcultivators who had domesticated corn required treatment of the grain with lime, an alkali. It has now been shown that the lime treatment makes niacin nutritionally available and reduces the chance of developing pellagra. [4] When corn cultivation was adopted worldwide, this preparation method was not accepted because the benefit was not understood. The original cultivators, often heavily dependent on corn, did not suffer from pellagra. Pellagra became common only when corn became a staple that was eaten without the traditional treatment.
Baking Soda
★★★★☆
(Kailua, Hi)
04/18/2018
Just be sure to use baking soda that is "aluminum free". You can find this at health food stores.
EC: All baking soda (aka sodium bicarbonate) is aluminum free. This was a marketing ploy from one company in particular to spread false information on the internet about baking soda.
It is baking POWDER that contains aluminum.
Baking Soda, Borax
★★★★★
The best remedy that I am aware against the lupus after a lot of trial and error is the simple baking soda and borax remedy. That's the major starting point. A baking soda remedy assuming a teen of 15 years old, for example is still 1/2 tablespoon twice a day or sometimes they take 1 tablespoon of baking soda dissolved in a glass of water. The alkalization is the primary approach in reducing the reactivity of the body's immune system. A significant improvement is also seen with the supplements of borax, the dose is still 1/4 teaspoon per liter of water for a male, but a smaller dose of 1/8 for a female. For some reason woman requires half the dose of men. It's taken usually for baking soda, 5 or 6 days out of a week and for borax it's taken 4 or 5 days out of a week. These two I found significant improvement, but not all will go away. As a result, certain bacterial colonies, and perhaps fungus still exists and an addition of both xylitol and a more interesting erythritol supplements is taken to reduce the lupus. This is also significant too. Certain leptin rich foods seems to worsen the lupus and hence, lentils, and beans are reduced. The most significant factor in causing the lupus is the beef, steaks, meats and oily products. Increasing vegetarian diets helps. In most cases I have seen, medications are reduced to a fraction of what they were originally taken such as 1/8 or 1/16 of the original dose. But the reason why they didn't completely discontinue was the lack of availablity of xylitol, erythritol or mannose in that certain location, thus limiting the cure. What the erythritol and xylitol and other polyol sugar does (provided that the body is already properly alkalized FIRST for a couple of weeks 2 or 3 weeks-, along with borax), then the dose for xylitol might be 1/2 teaspoon 3 or 4 times a day. The downside of xylitol is its limited ability to get into the bloodstream, however, I have seen improvement of the body's vital organs (such as kidneys in lupus) through observing the reduction of swelling,from the use of erythritol, but a much more limited extent the xylitol in reduction of lupus. The benefits of erythritol is it prevents mycoplasma from attachment to healthy cells that cause a so called antibody response from attacking the body's own organs. The erythritol has a major benefit over other polyol sugar because of it's ability to go into the bloodstream much more and it's high bioavailability, while most polyol sugar has limited absorption. Hence it makes erythritol more effective approach in lupus, provided that the body is already properly alkalized and some borax remedy has already been applied.
The reason why I am keeping it as simple as possible is to reduce the rheumatic pain, and pain is a big issue in lupus and hence borax, baking soda, and erythritol is the updated version of remedy as being the most important ones to start in the use against lupus. I am sure other things also help reduce this that is worth trying, in particular is the magnesium supplements 250-500 mg./day in form of magnesium citrate, WITHOUT calcium. The other thing is vitamin B complex, that can be taken twice or three times a week. Zinc is used, but very limited extent, such as once or twice a month, which increases the body's immune system, along with some ocassional iodine from kelp.
One other MAJOR approach besides borax, baking soda and erythritol that many people with lupus seems to have problems is the heavy metals. Therefore the fourth element to add after those three were instituted for 4 weeks is the chlorella and spirulina supplements. Most people with heavy metal exposure is one other thing that seems to cause lupus.
I am sure I haven't quite completely cured the lupus, but people who did use the remedy were already happy that just taking that seems to give them a normal life. There are others that may help but those mentioned here should resolve most of the problems, including the bone pain. As a final note, the Global Cooling of 2008 and 2009 is likely to cause worsening of lupus because of lack of sun exposure. Sometimes an ocassional 20,000 i.u. vitamin D3 or vitamin D2 also helps increase the body's immune system also, but I believe it's taken together with magnesium and boron (borax) to maintain a balance of magnesium/calcium. Vitamin D tends to increase blood calcium and hence, magnesium is also taken to help maintain the balance of magnesium/calcium.
Ted"
12/29/2008: Ted writes again, "Dear Kellie: Erythritol dose may be taken at a larger dose then xylitol since it doesn't have a laxative effect. Hence 1/2 - 2 teaspoon dissolve in a 1/2 glass of water taken a couple of times a day is also possible and may reduce pain. I tend to always start on the low end before going onto the larger dose and 1/2 teaspoon is taken a couple of times a day is a good starting dose for most people whose body weight is between 100-120 pounds. So an initial dose may also decided too. I believe a larger dose will significantly reduce the bone pain because of its effect in preventing a mycoplasma from attaching to the bones that eats the bones away, causing a pain.
The other fungus, that generates mycotoxin, that may cause other symptoms such as aflatoxin, is lessened or neutralized with a BHT 1500 mg supplement for adult dose, so a younger person half the weight may take between 500-750 mg based on weight.
I hope this information helps. Lupus is a rarity in Thailand, but those who do have it, dies pretty quick because of poor understanding of lupus, at least where I live anyway.
Ted
Bentonite Clay, Ted's Remedies
★★★★★
My name is Therese and I am from Australia, Sydney, and I want to tell you my experience curing (sucking out) my Skin Lupus.
I am 53 years of age and I have had to deal with my skin Lupus for the pass 30 years. Always following Doctors and Specialists advise and directions "that Lupus can not be cured just controlled". All this medications made my skin Lupus very strong and healthy as I become to protect the Lupus and adjust my life style, making the Lupus very comfortable in my environment. So strong and comfortable I made the Lupus it showed up all over my body, especially on the top part of my body and very intense on arms, back and scalp. Wow what a monster I created.
Becoming very depressed and confused I started seeking my own help. I found you on the internet and read about you helping many skin Lupus suffers. I kept reading and realised I maybe able to cure myself.
I started with the Bentonite Clay Powder mixed with water (plastic bowl no metal allowed and all jewellery to be removed from body) using my hands to create a paste which I then placed all over my body including my head, face and sole of my feet. I left the clay on my skin for about 1hour until it started turning to powder or I could not bear the itch no longer I would then lye in a bath for about 1hour. What a itch I created. Had trouble locating the Urea Cream 40%. Started controlling itch with Oil of Cloves (about 10 drops to 1litre of water). Burning feeling for about 15minutes then what a relief, skin felt free for the first time in many years. After about 10 days I stopped using the Oil of Cloves and I used creams for Mature Aged Skin containing Shea Butter to help with itchiness and dryness until my Urea arrive. (Urea 40% costed $50 for 75mg difficultly with shipping to Australia).
I also started taking my supplements one week after I commenced the clay procedure, my supplements are: MSM 3grams daily, Lecithin Granules 10grams daily, Echinacea & Vitamin C 4 Capsules each containing 722mg and 200mg of Vitamin C daily, Citric Acid 10grams with Bio-Carb Soda 1gram mix in water twice daily to drink and Licorice Root Extract 250mg Licorice Root Extract and 225mg of Raw Licorice Powder daily.
I had to learn to identify the Lupus which I was drawing out of my body. Little black dots as small as a pin hole was what I had to look for as this is the sign Lupus coming to surface of the skin. Not in clutters but spread out enough to be identified. Especially notifiable when cream was placed on skin you can see the Lupus on surface. Two to three days later the black dot would be gone.
After 12 days into my treatment and 7 clay treatments I managed to start bringing out the Lupus to the surface (started sucking out) I also managed to bring a lump the size of my palm up my back (right side) and placed itself on the bottom of my neck. I kept monitoring the lump I could not touch the lump as it very hot and sore. The whole time I presumed this lump was part of the Lupus I am trying to suck out.
24 days into my treatment I started getting the Lupus and itch under control. My lump was not getting any smaller and my ears have had a bad discharge for the past 10 days. I went to see my GP (Doctor) and told him of my treatment (my Doctor being African related to my treatment) and discovered I had been trying to handle two seperate issues. The Lupus and the massive infection I brought out of me. The Doctor immediately placed me on "Cephalexin" 500mg 3 times daily to clear up infection. Also had my ears swipe, blood test and ultra sound done on lump that day.
30 days in my treatment my ears have almost cleared up and my lump is much smaller. My Lupus I feel is very close to being all sucked out and my skin is healing well. Still awaiting my Urea cream 40% to arrive. I am looking at keeping my supplements going for another 2months to help my white blood cells to open up and function correctly.
I am due to see my Doctor tomorrow to follow up the result of the lump and monitor the infection which I now have under control. In 2 months time I will be having a blood test to see if the Lupus is still showing in my blood system.
Thank you so much for being on the internet and helping cure my Lupus.
Therese from Australia.
(Cabarlah, Qld.)
05/04/2023
Biochemic Tissue Salts, Sea Salt, Epsom Salt, Clay
★★★★★
She was to take one drop per 8 or 10 oz. glass of water or of any watery solution, such as tea or juice. Within an hour of taking two drops in a bottle of spring water the swelling and soreness in her wrist was healed and the soreness in her shoulder was also healed. As the pain and discomfort would apparently come back to her in about 24 hours or more and sometimes in different areas of her body, she therefore went to see a doctor earlier today. I first searched some of my books and the best answer seemed to be in Dr. H. R. Clark's "Cure for All Diseases" She found that Lupus is apparently a Fluke or Flatworm disease that can be cured with a parasite and liver cleansing formulas plus with her electronic zapping machines which shake the Fluke worms or their eggs to death.
I have complete sets of Schuessler's salts. They don't work well or don't work at all as I would wish. It is also quite difficult to apply them in specific conditions due to different brands, formulas, and other things. If the conditions is one of skin's lupus, a simple sea salt should do also. However, it turns out sodium perborate monohydrate (or sodium perborate for short) works a lot better hands down. This is actually the same medication I used for dog mange. I also have doubts about using sodium fluoride as part of a Schuessler salts due to its toxicitiy.
Black Seed Oil
(Algeria)
05/27/2021
★★★★★
About Black Seed Oil -
I have been living in countries where black seed oil is used quite a bit. They say it is good for everything but death. I take it for general health - a teaspoon first thing in the morning about 5 times per month. I used to take it daily but the local folks said I should take breaks and not take it daily for eternity. I'm not sure why. But try it - 5 mornings, then take a break for a week. See if it makes a difference. It has an acquired taste. I bought some from Amazon once and the flavor was very harsh. I had a hard time taking it. But the oil I've gotten here in Algeria was from Saudi Arabia - Camel brand. It's not too bad tasting. I think it's a good idea to take it with honey and water. Maybe even with juice from half a lemon.
Borax
★★★★☆
BETTER BUT WITH SIDE EFFECTS
(Edmond OK 73013)
12/24/2022
(AZ)
10/14/2024
Aren't these side effects, Hercheimer effect? I believe they will go away after a while, lasts different for everyone but I've heard it will go away, supposedly it's the parasites being affected and they are not happy, until they are gone then this should go away.
Coconut Oil
★★★★☆
I was diagnosed in March of 2008 as having lupus (SLE). I took myself off the toxic meds I had been put on in Sept of 2008. Since taking coconut oil and other coconut products, my swelling has subsided and I am doing much better. Of course, it may be just a remission, but I truly believe in the power of coconut. That's my two cents...
A lupus may be helped in addition to coconut oil, is the borax remedy which reduces inflammation, such as 1/8 teaspoon per liter of drinking water. 4 or 5 drops of bloodroot tincture in a cup of warm water three times a day. In addition, lugol's solutions is added to the drinking up, at 3 drops, plus SSKI at 3 drops, twice a day. Vitamin C 1000 mg a day so that the body can utilize the iodine is needed. Those are some extra things I believe will help, especially the borax, alkalization (1/4 teaspoon of baking soda plus 1/4 teaspoon of potassium bicarbonate twice a day empty stomach in cup of warm water), and the iodine, which reduces autoimmunity. I am currently looking into the use of humic acid to reduce autoimmunity. The dose is to use humic acid powder (known commonly as sodium humate) at 1/8 teaspoon a day taken at least twice a day. One final push that I found helpful was taking plenty of tumeric powder or curcumin. There's no upper limit on taking that, so I may start with a teaspoon twice or three times a day.
Detoxing
★★★★☆
(Houston, Texas)
10/10/2010
Hello - thanks for this thread on lupus, what a find. This is a little off topic of SLE but you all seem so informed maybe you can help a suspected DLE victim. I developed round lesions years back followed by sudden weight and hair loss and increased photosensitivity to both outdoor and indoor light - mostly indoor uv. I was tested for lupus but came back negative. Mostly my battle is extreme fatigue and photosensitivity right now so much so that I can hardly work on my computer at work without my face feeling like it's in an oven. If I turn the monitor down to almost black and use a uv protection screen it's ok but God help me if I have to attend an hour long meeting under full blown florecents - my skin goes crazy. On top of that my vision is starting to go as well. Just a few months ago I started getting leg pains for no reasonable explanation. If I dont' have lupus I don't know what else it could be. I seem to fit all the symptoms of at least some form of lupus. Like I said mosly it's the extreme photosensitivity that bothers me the most, which I can usually tame for about a 1/2 hour with vitamin e or b-12 sublingual. But just found out my b-12 has sucralose - which may explain why the remedy is only short lived and the photosensitivity comes back a 1/2 hour later.
My question is this (sorry so long winded). Will this ACV, baking soda, borax treatment work on photosensivity or should I try something else to cure that. Unfortunately sunscreens do not work and I have tried them all they actually tend to burn my skin worse. P. S. - to help in the diagnosis I did have bready implants the silicon type for four years but removed them years ago. Please help!!
To the person with the photosensitivity problem, it looks like your body is highly depleted of vitamin b12. Please note that your body does not absorb vitamin b12 and vitamin d3 unless you have magnesium and your body does not absorb magnesium unless you have potassium. So you will have to take b12, magnesium and potassium in order to conquer a b12 deficiency. Hope this helps.
(Canberra A.c.t., Australia)
10/14/2010
I also was extremely photosensitive, hives and all. Its spring in oz now I am able to garden(with hat ) maybe its the baking soda? I also bath with it and use to clean. No soap. It actually brought up my lupus rash like a road map after using bs as face scrub. Of course I think that selenium and chlorella no caffeine(much) also helping and bio mag.
(Winter Springs, Florida)
04/22/2013
The post asked about h2o2. This site gives an inhaler method and quantities to use. I didn't notice that it sold anything. https://www.earthclinic.com/remedies/hydrogen_peroxide_inhalation.html
(Arizona)
06/28/2020
Check out EMFs. Caused from WiFi, cell phones etc. check out the DNRS system.
Discoid Lupus
★★★★★
At first I put the Bentonite Clay all over my body fanned it dry & washed it off, three times. A few days later, I applied the clay only on the affected areas. I also have been applying Virgin Coconut Oil on my lesions.
Bless Ted, I have suffered significantly over the years and for the first time I believe that my lesions will heal. Prior to taking Ted suggestions from different post the lesion on my cheek felt hard and inflamed, the inflammation on the lesion on my nose is reducing and changing in colour.
I went to Holland & Barratt today, the sales assistant recognized me from my last visit, when I share my experiences with her, she admitted that she was surprised as the last time she saw me the lesion was looking much pinker.
I am in the process of purchasing Potassium Bicarbonate to add to alkalizing and DMSO for old scar.
Will keep you posted on my success, Chantelle
