Multiple Remedies
I found the closest, most trusted homeopath I could get to - now disabled & in a wheelchair due to pain. She was my first angel & I started on the road less traveled. I still don't believe that if anyone else had heard this prognosis they wouldn't have looked elsewhere for help. My journey began with alkalinizing & purifying all water, a liver detox and immune support. This truly was the only time I had feelings of what I used to be. I was capable of so little, I'm not sure how I got through with so little home support. Now, friends & family jumped on the "crazy" bandwagon. As they kept themselves busy, I improved. With the support of a pain interventionist, I can now walk 50 feet with a cane, food shop holding on to the cart & cook 5 nights/wk, the decent food my family needs too.
This year I found a second angel to build on the routine, I wanted to feel better & knew I could with support. Then I found you, found the first true hope & healing in all these years.... Now, if I can organize this plan, I will be very busy. I continue ph Balance, through clean, ionized water mixed with baking soda & ACV, candida support, dairy free probiotics & enzymes with meals, immune modulation with colostrum & peptides, neurological support with B vitamins & Antioxidants & free radical scavengers. I continue liver support & use DMSO for pain & inflammation. I have seen a glimpse of how good I will feel, as I have also had to move slowly due to Herxheimer reaction. I read as much as I can & see that many recommend following a celiac diet & new suggestions for vitamins & amino acids for energy & acupuncture for ongoing pain. I really needed to thank all of you for taking the time to post & care. I have never felt this level of hope. I know I have a long way to go, positivity seems to make all the difference. I only hope as I improve I can inspire someone as you all did for me & continue to pay it Forward... Thanks again~~~~~~~
(Uniontown, Oh)
09/19/2012
Dr. Gluck (a Harvard educated expert on LDN) had two aunts with lupus. He asked them if they wanted to try Low dose naltrexone. They did, and in a month they were both doing well. Lupus is an autoimmune disease that responds very well to LDN, a harmless, no side effect FDA approved drug. See www.ldninfo.org or read Julia Schopick's best seller, "Honest Medicine. ". Be well.
Multiple Remedies
★★★★★
The problem with all of these therapies is that Lupus, all by itself, can go into remission. In fact it almost always has dormancy phases. How do we know in our hearts that our alternative regime is why "our Lupus got better." Time, in this instance, will be our friend. Over time we will see for sure if our alternative protocols are effectively battling this bizarre disease.
One thing that is for certain. Lupus is not a case of our bodies attacking ourselves and then suddenly stopping. Besides being inconsistent with all laws of biology, independant laboratory studies have confirmed that in more than one autoimmune disease, the immune markers and antibodies that are over produced are exactly identicle to those found in severe viral infection. Beta Interferon, antibody proteins, other cytokines are no different in severe viral infections as autoimmune. Ok! Why? Why should we overlook the obvious link here?
Then, when seeing that Tulane has in fact isolated a Type A retrovirus in several autoimmune diseases we should should really move past this now outdated notion that our bodies are committing suicide. This leads us back to the anaerobic disease model. Viruses hate oxygen! Almost every alternative protocol in this forum actually boosts the immune system and exploits the respiratory mechanism of anaerbic organisms.
Sarcoidosis, is not a virus, was/is called autoimmune and has been proven to be cause by a rare bacterium. (Anaerobic). Ask yourself why an infection can be mistaken for an autoimmune? Answer,...Autoimmunes are infections.
Black strap molasses is very high in potassium. Potassium readily will enter cells and alter the Ph. Higher ph is in fact anti viral. Black strap Molasses also contains iron, improving our hemoglobin production, increasing oxygen delivery. Apple cider vinegar contains very concentrated and potent polyphenols. Apple skin extract itself is high in these compounds but the fermentation process actually produces even more of these molecules. These complex molecules have many oxygen donor sites. I have made these chemical structures available to the public on a research website.
Gluten is poorly digested by many of us. Most people with autoimmune disease and cancer have higher levels of anti-gluten antibodies, meaning they are allergic to gluten. Chronic allergic stress has proven to lower immune system, lower oxygen levels in cells, cause general tissue inflamation in the gut, etc. Heck, any viral infection will get worse if the patient undergoes stressors.
Eliminating gluten is a good thing but understanding why is crucial so we can maximize our regimes. Just remember this. Viruses hate oxygen and our immune systems must keep viruses dormant so any protocol that decreases toxicities and increases Oxygen perfusion will theoretically improve symptoms of autoimmune disease.
Finally, Coq10 is molecule that grabs oxygen from cell cytoplams and pulls it into the mitochondria to make ATP. Burning glucose with oxygen is so important in this regard as anaerobic respiration produces acid and lowers Oxygen levels. Any oxygen therapy can be enhanced by taking this enzyme. After all, what good is high O2 fuel if there is no fuel pump to utilize the fuel?
Always take Coq10 with any alternative protocol.
Hello Bret,
We certainly agree on one thing: "Logical thinking is a good thing".
After reading your discourse on the causes of lupus, I recalled reading that some doctor trying to solve the cause of Gulf War Syndrome, realized that many of the symptoms of GWS were the same as systemic lupus and started looking for causes. Somehow she knew that squalene had been used as a stabilizer in the anthrax vaccine given to the veterans before being deployed to the GW. She then proceeded to pull saved blood specimens from a lot of these vets and testing them, finding that everyone of them had squalene antibodies. So I went looking for facts on the GWS. Mostly what I found is that a lot of experts still aren't in agreement as to what causes it! I did find a statement that the sickest veterans were the ones with the highest levels of squalene antibodies. Logical thinking tells me that squalene must be involved in causing the symptoms of GWS. Common sense, as well as logical thinking, tells me that a lot of other things these veterans were exposed to (gases, pesticides, aspartame in diet colas ( they drank that were probably in plastic bottles and probably overheated in the hot areas of the Gulf War) , depleted uranium, excessive smoke from oil fires, etc. did not contribute to good health or wellness. I am sure that the added stress of being in a war did not add to their feeling of security and contributed greatly to increasing their stress levels - I know it would have mine!
Drinking water from a plastic bottle that has been left in a car all day is now connected to some cancers. Logical thinking tells me that if being left in the drinkers car all day in the sun makes it dangerous to drink, being delivered in a metal-bed truck in the hot sun probably made it too dangerous to drink before they even purchased the bottled water at the store. If you add carbonated beverage, with aspartame sweetener, look how many other detrimental things you have added to the possibilities of interfering with one's health and well-being.
Moving on to your statement: "Most people with autoimmune disease and cancer have higher levels of antigluten antibodies, meaning they are allergic to gluten". When I went on a high protein-low carbohydrate diet, to lose weight, I not only lost weight, but about the second week of eating this diet it suddenly occurred to me that I hadn't had the heartburn, indigestion, and nausea that was usually my constant unwanted companion. Knowing that I did have allelrgies to some things, I realized that it had to be something that I was eating or drinking daily that was creating my gastric problems. The first two things that I thought it might be was milk and bread. After losing 22 pounds in six weeks, I returned to my usual eating except for milk and bread, thinking I was probably allergic to wheat. But then it occurred to me that it might not be the wheat itself. So I went to whole grain bread and had no problems with it. But when I tried bleached flour bread, the heartburn, bloating, flatulence returned big time within l5 minutes after eating it. Aha! Logical thinking is a good thing - I surmised it was not the wheat I was allergic to, but something used in the bleaching process that was causing the problem. I find that is still true some 35 years later. I also found that I could drink my coffee black without problems, add milk to it and I got indigestion - big time!
Years later, researching PUD for a term paper, I learned that PUD first became a problem in the upper socio-economic group, later moving into the middle socio-economic group, and finally on down to the lower socio-economic group. Remembering my own problem with bleached flour products, I researched when they started bleaching flour. I don't remember the exact years now, but adding the two searches together, PUD became a problem ll-15 years after they first started bleaching flour and that it was so expensive that they were the only group who could afford it. It followed (by the same time frame) in the middle group, when it became cheap that they could afford it. When somebody in Minnesota came up with a bleaching process that made it cheap enough for the lower group to afford it, PUD moved into this group following the same time frame.
Now orthodox medicine tells us that PUD is caused by H. campylobacter and treat it with antibiotics that you must see an MD to get. I have never been diagnosed or treated for this organism, but I have never had the ulcer pain that I used to get 3 or 4 times each year, plus I am not bothered by the daily problems I had before the ulcer pain got so bad. Is it caused by H. campylobacter or is it caused by chronic alllergy or intolerance to something in the bleaching process. Since I am rid of the problem, without treatment, it may be that it creates a gastrointestinal condition that harbors the supposed organism and causes the ulcer. I don't really care which it is, because I know that as long as I avoid bleached flour I don't have the problem.
My common sense, and maybe, a little logical thinking tells me that eventually we will all come to realize that many of the additives in our drinking water (sodium fluoride & chlorine)), and in our food & drink(monosodium glutamate and aspartame), and other toxins in our environment, all stress our immune systems, and when our immune systems are busy trying to protect itself and our bodies from harm, some opportunistic organisms, whether molds, viruses, bacteria, sneak in and try to take over.
It is known that systemic lupus can be caused by antibiotics & I think it is still considered a woman's disease because the birth control pills have been blamed for a number of cases. It is very possible that the stressors just create the situation that lets the opportunistic organisms move in and cause distress in the form of disease. Trying to use logical thinking on that is kind of like trying to solve: which came first, the chicken or the egg? I leave that to you solvle - I just appreciate having both the chickens and the eggs they produce.
Dear Bret:
My own experience in dealing with lupus after taking certain supplements, pus reduces within matter of hours, condition is noticeably reduced within a week. However, most of the lupus I encountered were in line mostly with the mycoplasma or fungus like organism as being the prime cause because they more responsive to anti-fungal remedies as opposed to anti-viral remedies.
For instance anti-viral remedies, such as zinc and magnesium wasn't so responsive as the antifungal remedies used in borax, chromium, and alkalization. Both antiviral and antifungal remedies were responsive with alkaline remedy.
This means the best remedies I have found so far that worked the best is baking soda, sodium carbonate, and borax in general, while zinc and magnesium were somewhat less responsive. The remedies I mentioned were laid out in details as mentioned.
As to apple cider vinegar, containing polyphenols, etc. alkalization involves alkalizing both extracellular fluids and intracellular fluids. Therefore, sodium bicarbonate and sodium carbonate will resolve the extracellular fluids and intracellular fluids are potassium bicarbonate. The pH in monitoring lupus help is the urinary pH for extracellular fluids and salivary pH for intracellular fluids.
Therefore the theory on the basis of responsiveness to remedy were more in line with fungus, nanoinsects, and mycoplasma more so than virus. The only viral cause I have found were very much due to Morgellon's disease, chronic fatigue syndrome, astenia, and Epstein Barr Virus.
In which case most virus conditions are more responsive to zinc, magnesium, vitamin B complex, but also to alkalizing.
It's difficult to cover all possible cases for different conditions, but for lupus it appears to be one of mycoplasma and fungus like organism.
(Phoenix, Arizona)
06/12/2008
Whether we disagree with Tulane Medical School or not, whether we think Lupus is a mycobacterium or virus, whether we ignore that retro-viral antibodies are found in almost every Lupus patient tested, we agree on one thing: Diseases that hate oxygen should be treated with higher oxygen. Higher Ph helps achieve this goal,(Warburg/Koch.)
Probiotics in Fermented Food
★★★★★
I have found that a vegan gluten fee diet helps, but what really makes a difference to the kidney involvement is daily consumption of natural probiotics in fermented food. This includes coconut yogurt or kefir (I found out early on that avoiding dairy helped my lupus tremendously), cultured vegetables with live cultures (not to be confused with vinegar preserved veggies) and small amounts of kombucha (tart, not too sweet). If I eat these daily in small amounts the kidney inflammation is non existent. When starting out be gradual and add each slowly to your diet as they are powerful, and can cause a detox reaction. Eat well, eat fresh, avoid sugar and fast foods/drinks.
Good luck!
Russian Herbs
★★★★★
For the treatment of lupus herbs should be taken: nettle leaf, bilberry pine, color, tansy, herb St. John's wort, birch leaves, grass, Knotweed, leaf plantain, mother and stepmother, pine, dandelion root, Oregano grass, clover drug, herb yarrow - equallyTwo tablespoons pre-shredded (in a coffee grinder or grinder) collection pour 0.5 liters of boiling water, drain, along with the grass in a thermos, leave overnight. Take 1/3-1/4 cup 3-4 times a day. The course of 1.5-2 months. After 1 month of treatment interruption herbs can be repeated.
Salt Therapy
This type of treatment has been shown to be beneficial for respiratory problems (asthma, bronchitis, allergies), dermatologic problems (eczema, psoriasis, acne), hypertension, stomach disorders, stress, and some autoimmune diseases, but have not found specific guidelines for Lupus.
Could you let me know of any findings you have that might support this treatment for sufferers of Lupus. Thank you, Neal from Sola
Supplements
★★★★★
Supplements
★★★★★
I am a woman so I feel that hormones play a role in my lupus as well, so I also take DNA 50mg a day in combination with dong quai, damiana, and maca, I use half the dose as directed by the bottle.
For the inflammation I use fish oil, 2,000 mg per day or more sometimes, and for kidney I use kidney support from Tibetan Herbal Balance.
Even though my lupus is still active I don't have to take all the crap from the doctors, hope this helps other people
(Ohio)
01/26/2021
What is DNA you mention? A supplement?
Supplements
★★★★★
One more note on the lupus. I have recently been seeing a new and very good naturopath. Through stool testing for parasites we discovered that I have a very high level of the parasite blastocystis hominis. Also of candida. I knew about the candida and that it was probably part of the lupus causing package but the parasite is a new and interesting development. I will be treating both of these things appropriately with herbs and continued healthy diet (I am completely gluten, caffeine, dairy, soy, alcohol, sugar, nightshade and red meat free; I am a great cook and its really not as hard as it sounds) and will be very curious to see the health benefits of getting rid of these critters. My naturopath feels that they could very likely be a major contributing factor to the jangling of my nervous/immune system that caused the lupus. I will report back with results and would love to hear if anyone else has discovered a parasite/lupus link. If I can help or support anyone else in their healing journey please let me know. Thanks and good health to all.
(San Luis Obispo, Ca)
02/13/2016
I would live to try something homeopathic, but my body us so reactive right now. My Dr.Is not supportive of supplements. This site actually made me more scared. Reading people with Lupus die 10 years after diagnosis? I have never read that. The lists of suppliments and ideas are great but where do you begin? It so overwhelming!
(Oh)
02/13/2016
Hi Chris,
The first thing I would try for Lupus is LDN (low dose naltrexone). It will help moderate your immune system, not kill your immune system like many of the current medical options do. It has been known to be effective for Lupus. It can be taken with any other drug EXCEPT opiate based drugs, because they both compete for the same receptor sites, and LDN will always win, potentially throwing an opiate drug user into a dangerous withdrawal. It is a FDA approved drug at 50mg/day for addicts, but has been found to be very effective for a wide range of autoimmune, and other diseases at 1- 4.5mg/ day by a Harvard educated physician. It is out of patent and very inexpensive. You can read the official LDN site here:
www.ldninfo.org
That site will enable you to sign up for a Yahoo LDN Group with over 12,000 members who use LDN for various reasons, many with MS. They are very helpful and willing to answer any questions you may have. It is a non-toxic, non-addictive, no side effects drug that can be taken any time of day, so if sleep issues are a problem, it can be taken in the morning. I hope you will check it out. I have taken it myself for six years. You can also read about it in Julia Shoepick's best seller, "Honest Medicine." Best wishes.
(Knoxville, Tn)
05/29/2016
Supplements
Any advise is welcomed.
Ineke
(Gainesville, Florida)
05/06/2011
Supplements
Any advise is welcomed.
Ineke
(Ny, Us)
04/24/2011
I caught an infection from trying on pants in a store that someone had before and now I have the disease. I find that if you try homeopathy, there was clearly no other choice after trying traditional medicine. I also find that with homeopathic medicine, nothing happens at first until 6mo-1 yr. later and then it finally works. Problem is with that though, if you don't know what you're doing and you're just testing alternative therapies, you can waste a long time on the wrong alternative medicine.
(Gainesville, Florida)
05/06/2011
★★★★★
My name is Theola, from Gainesville, FL. I have been dx with Lupus for two years, and it has been a real long journey. I have been drinking hot sage tea which helps with my inflamation and joint pain. I hate taking steroids bc it makes me eat like a run away slave and gain weight. I'm starting to take more vitamins, and its really helping. Im thanking god im still here. Bless all!!!
(Houston, Tx)
07/07/2011
Can someone please help me? I have been dealing with a skin burning problem for over 10 years when exposed to UV computer screens, TVs, lighting in stores, regular light, and sun. It's feels like a burn/inflammation. I think it might be connected to lupus as I had the rash 10 years ago. The rash never came back but the burning is relentless. I've tried fish oil, turmeric, acv, eating only veggies, vit e (which helps a little), cinnamon, and so so many other things to no avail. I work at a computer for 8 hours so I can't escape the burn. My whole life revolves around avoiding any kind of light, cooking in the dark, going blind b/c I have to turn down my computer screen so dark so I don't burn. Has anyone heard of this? Is there a cure? I'll try anything!
(Usa)
07/07/2011
you haven't been around any giant hogweed have you? Contact can make your skin still sensitive and burn in light even years later
(Mn)
09/24/2015
(Michigan)
04/17/2017
Vitamin D
★☆☆☆☆
WARNING!
Zinc Oxide and MSM
★★★★★
