Lou Gehrig's Disease - Editor's Choice

Here is a link to the report :

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9898040/

It is worth mentioning that they used the newest form of FMT, Washed Microbiota Transplantation (WMT) in this woman and the results were fairly impressive compared to just about anything else that might be used for ALS.

The woman suffered an accidental trauma to her scalp after starting WMT, which her doctors treated with antibiotics, unfortunately the antibiotics caused the ALS to deteriorate significantly again. WMTs were deployed again after the antibiotic regimen as a rescue treatment which quickly reduced the worsened symptoms again and stopped the progression of the disease again. She received a new WMT every two to three months and this stopped the progression of the ALS as long as she continued with the regular application of WMT, though they weren't very clear on that point.

During the course of WMT, symptoms would reverse and then plateau in a sequence during the course of WMTs. The report reached the following conclusion based on this single case report :

' The stool and blood samples from the first WMT to the last were collected for dynamic microbial and metabolomic analysis. We observed the microbial and metabolomic changing trend consistent with the disease status. This case report for the first time shows the direct clinical evidence on using WMTs for treating ALS, indicating that WMT may be the novel treatment strategy for controlling this so-called incurable disease. '

I felt that this case study illustrates the potential of FMT/WMT as a viable treatment for ALS and possibly other diseases. Currently, FMT in the US is used almost exclusively for Clostridia Difficile (C-diff) infection that does not respond to standard antibiotic therapy and in such cases, can be fatal, so FMT is more of a last ditch effort.

With this new form of FMT, referred to as WMT, the transplants are filtered and cleaned or washed to make them safer than ever before. It isn't mainstream yet, but with future studies, WMT appears likely to become the new standard for FMT.

There are currently no known treatments that can stop the progression of ALS, but this case report is showing the potential of FMT/WMT to do just that. Given that ALS patients have an average life expectancy of just 3 to 5 years, this is huge and important news for people with ALS, but this case report received little if any news coverage.

My impression from this case report of an ALS patient using WMT as a treatment is that starting treatment immediately after diagnosis is important because while WMT may have stopped the disease progression and significantly improved symptoms, it did not completely reverse symptoms, so starting before there are very significant symptoms may offer the best chance for the best quality of life and outcomes for ALS patients.

Art

He has been having great results with a combination of a strict gluten-free diet, no sugar, and supplements.

We did our own hair toxicology test from test country labs. His results showed he had 3 heavy metals in his system and also a deficiency of iodine and potassium. He is now using a feeding tube formula called, 'Liquid Hope' made of organic food. We have been doing green juices, ingesting 8 oz of coconut oil per day, msm powder, vit c water (bought powder form), and added filters to all our water sources.

Please test for heavy metals and test for proper liver function.

One friend has stopped his ALS symptoms by adhering to a strict sugar-free, gluten free diet and detoxing his system. We are seeing results as well.

My father was diagnosed by Mayo who promoted the Deanna Protocol..no significant changes or slowing of the disease. It seemed like a profit maker as anywhere the Deanna Protocol name was, it was followed by a trademark symbol. Our doctor had no clue what half of the supplements were and there was way too much creatine involved. Most of the DP supplements were synthetic.

Some naturopathic drs have been able to provide liver flush type treatments.

Please test for toxicity and liver function. If doctors won't do it, tests are easily purchased on amazon or directly from the website.

We had instructions and did ours at home. Don't wait for these experimental tests...because half of the people are given a placebo. It's such a waste. Diet and exercise. Keep moving and never give up!!!

Surround yourselves with supportive people, not victim-minded ill people who have already given up mentally.

He complained that he is progressively losing control over his legs making it difficult to walk, and that he has lots of muscle twitching in his left shoulder.

Since I believe that most of the CNS diseases are caused by funguses, I treated him for candida:

Mainly - no sweet beverages or drinks of any sort ( including fruit juices) at any time.
Large amount of probiotics. Very little sugars including fruits.

Diet: as much as he wanted vegetable salad with olive oil.
Semi hard yellow cheese or camembert (made with rennet and bacteria). Green drinks (green vegetables with one carrot only). Rice (small portion). Meat that was cooked or grilled for about two hours (moderate amounts). Eggs - two to four a week. Almonds soaked in water over night. Miso soup with wakame. Nuts and seeds

Supplements: (5-6 days a week all supplements) multivitamin and minerals. + zinc picolinate 10 mg + fish oil (3 times more EPA then DHA) 300 to 500 mg + vitamin E 200 mg mix tocopherols +1000 mg lecithin + B12 (4000 microgram a week) + vitamin C 500 mg + probiotics several strains, 2 capsules 4 times a day.

(He was instructed to wear copper bracelet, but today I will replace it by using on top of the one mg of copper in the multi, 3 mg of copper twice a week separated from any other supplement).

Exercises - at least 20 minutes a day, whatever he wanted to do in order to burn up calories, preferably before going to sleep.

In few months all his symptoms disappeared and all functions became normal.

I am unable to say for sure that it was the beginning of ALS but it is definitely worth the try.

I know of at least 5 women in my town who have been mis-diagnosed by their doctors. One had gotten to the point of all her muscles collapsing and her lungs and heart were stopping working. Luckily, a new young surgeon at the hospital's emerg. department realized what was happening and took her off the cholesterol medication. She went from almost comatose to up in a wheelchair in 3 days, and walking by day 5. Apparently diabetic medications or cholesterol medications by themselves are fine, it's the combination that's terrible.