Understanding ALS: Symptoms, Treatments, and Supportive Care

| Modified on Nov 13, 2024
The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Multiple Remedies
Posted by Abe (Sydney) on 10/22/2024
★★★★★

Abe's Protocol for ALS:

  • Coconut oil (Virgin C.O. is best)(work up to 9 to 12 tablespoons per day, start at 1 tablespoon)(this seems to be very helpful for ppl with MND/ALS)
  • Sunflower lecithin (tip: have a tsp of sunflower lecithin with every spoon of coconut oil. Re-build myelin sheath and improves oil digestion)
  • Zeolites (pink is best)(2 tsp per day)
  • Diatomaceous earth (mix a heaped spoon of D.E. with a litre of water, add 1 drop or two of ACV, drink the water full of silica, leave the mud on the bottom - easier on kidneys)
  • D-mannose (1 Tb / day. A must to rid the candida & fungus and the metals that the candida is holding along with it)
  • Selenium 200 mcg /day
  • B-vitamin complex (plus additional B2)
  • Benfotiamine (B1) take 1 capsule, several times per day.
  • Vit D3 10,000 IU /day
  • Iodine
  • Boron 3 to 9 mg /day
  • Magnesium 400 – 1200 mg /day
  • Melatonin (3 to 50+ mg per night, 1 hour before bed)
  • NAC
  • Butyrate
  • Antioxidants
  • Follow a low carb diet & also avoid gluten. (High fats, eating lots of animal fats & eggs is very good).
  • Saunas are a useful adjunct to safe mercury removal because they induce copious sweating.
  • Increase circulation by exercising 20 minutes, one to three times a day walking or bouncing on a rebounder (mini trampoline).
  • Apply coconut oil and ACV on topically on sore muscles (very helpful).


Magnesium Oil, Coconut Oil
Posted by Brian Lind (Florida ) on 03/22/2024

I have ALS, what's this about?


Apple Seeds and Oil
Posted by Rob (Kentucky) on 02/06/2024

I think he maybe referring to vitamin B-17 found in apple seeds. It is found highest in Bitter apricot seeds.


Apple Seeds and Oil
Posted by john (PA) on 02/06/2024

Apple Seeds and Oil for ALS?

(found in an old health pamphlet Secrets of Youth by Robert Collier from 1941)"Portland, Oreg. Aug.12,1940. Apple seeds are rich in a muscle regulating substance, probably a vitamin, whose discovery was described today at the University of Oregon Medical school."Eating ground apple seeds, or drinking the oil which is pressed from them, both caused remarkable recoveries in animals near death with wasted muscles. The muscular diseases from which the animals suffered were experimental, but were precisely the same as a serious class of human ill, Loou Gehrig's trouble is ONE ... of this kind..........

"The oil was a complete preventative for the muscular paralysis even when all Vitamin E was removed from diet." (copied verbatim from the small booklet 50 pg. from 1941

perhaps the oil relates somehow to the myelin sheath of nerve tissues as was demonstrated many years ago with the use of a Vitamin E fraction called Octocosanol and its protective and healing potential regarding MS).

Ted's Remedies
Posted by Nathan (Columbia, Pennsylvania ) on 02/03/2024

Sorry to hear that. May he Rest In Peace. Is there anyway you can walk me through his protocol for ALS? I'm too confused by what all I've read on here about this. I need help on how to do things correctly.


Ted's Remedies
Posted by Jenny (Saint Clair, MO) on 02/02/2024

Nathan, Ted is no longer here on the earth.


Ted's Remedies
Posted by Nathan (Columbia, Pennsylvania ) on 02/02/2024

Can anyone please help me understand Teds protocol for ALS. I just joined and signed up here and I'm so confused on the protocol and how to do each specific thing correctly. Am I able to talk to Ted somehow so I can fully understand please need dire help.


Ted's Remedies
Posted by Art (California) on 01/14/2024 2326 posts

Hi John,

Here is a single case report of a person with ALS who was given Washed Microbiome Transplantation (WMT), a newer form of Fecal Microbiome Transplantation (FMT), which apparently stopped disease progression and improved some symptoms but did not completely reverse all existing symptoms:

http://www.jbr-pub.org.cn/article/doi/10.7555/JBR.36.20220088

Here is a relevant quote from the case report :

' In conclusion, we for the first time reported the positive clinical outcomes of using WMT for treating ALS. Although the disease condition of the present case was exacerbated by the use of antibiotics, the administered WMTs successfully reversed the worse status of the disease through a long-term follow-up. The current clinical findings would open a new window on the microbiota-based treatment for the life-threatening ALS. '

Okay, so that's the good news, but the bad news is that the chances of getting FMT in the US for anything other than clostridia difficile / C diff. or severe IBS d that have not responded to standard therapy is almost nil. If you notice, this case report is from China, and China seems to be on the cutting edge of FMT/WMT, whereas the US limits its use to the two health issues I mentioned.

Another consideration is the use of high-dose melatonin if you tolerate it, but melatonin can't come close to the results mentioned in the case report above :

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8842494/

Here is a relevant quote from the article :

' Melatonin users had a significantly decreased annualized hazard death rate compared to the non-melatonin users [HR=0.241 (95% CI 0.088 – 0.659), p=0.0056]. The melatonin users also had a slower rate of decline of sALSFRS score (t=2.71, p=0.0069) and change of percentage of predicted FVC score (t=2.94, p=0.0035) compared to the non-melatonin users. '

Potential methods of action of melatonin in ALS is reduction of elevated oxidative stress levels and reduction of inflammation as well as reduced cell apoptosis.

So it seems that WMT/FMT may offer the most potential when compared to melatonin, but in order to get such treatment would likely require having to go to China which would make it next to impossible for the great majority of people with ALS and results are not guaranteed.

On a related note, the following review goes into detail about supplements typically used by ALS patients. Melatonin is on this list also :

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2631353/

Here is a relevant quote from the review :

' The benefit(s) of aggressive nutritional support in affecting disease course and survival are well documented. Enteral nutrition is best thought of as an early adjunctive therapy rather than a late palliative therapy. The patient population has embraced the use of dietary supplements in the form of vitamins, neutraceuticals and functional foods, often despite the absence of documented efficacy. The axiom that the absence of proof does not equate to the proof of absence 100 has fueled speculation among patients that these compounds should be tried even if the benefit is solely theoretical. Our role as practitioners is to provide oversight into potential adverse consequences from especially high doses or drug interactions. The concept of combining compounds or drugs is currently empiric although controlled trials are needed to address this logical treatment approach. The multifactorial pathophysiology of ALS has resulted in hypotheses that there may be subgroups of patients, eventually defined by a specific underlying etiology or clinical presentation, which selectively respond to a particular treatment. Future research endeavors exploring nutritional management and drug therapy will need to address this possibility. '

You will note that many of the discussed supplements are potent antioxidants and or potent radical scavengers.

Art


Ted's Remedies
Posted by John (White Plains, NY) on 01/14/2024

Hello,

I was wondering if any commenters on this thread have any updated news on use of treatments Ted advised or other treatments.

Thank you

John


Melatonin
Posted by Patti (Ohio) on 07/09/2023

I've listened to “Doug Kaufman”podcasts.He gives excellent advice on this subject. (And many others ) He's helped ppl go from 4th stage cancers to Healed.
Most sicknesses start in the gut. “Funguses and parasites“ are the main culprits of most diseases..

Primarily, a changed diet is best. “Eliminate”.. processed foods, anything with yeasts, wheat, oats, etc. sugars and dairy.. Eat clean food.. raw vegetables, fish, some fruits, and meats.
You can start with a cleanse. “STANDARD PROCESS” brand seems to bring quick results.. Also Pure “Frankincense oil”.. Also, brings quick results.

God Bless you and your Mom with Godly Wisdom and quick recovery..


Fecal Microbiome Transplantation (FMT)
Posted by Art (California) on 07/05/2023 2326 posts
★★★★★

Editor's Choice

This recent case report (January, 2023) Involves a woman with Amyotrophic Lateral Sclerosis (ALS) / Lou Gehrig's Disease. It is just one case report, but I wanted to mention it because of the treatment used, Fecal Microbiota Transplantation (FMT) and the results gotten from FMT.

Here is a link to the report :

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9898040/

It is worth mentioning that they used the newest form of FMT, Washed Microbiota Transplantation (WMT) in this woman and the results were fairly impressive compared to just about anything else that might be used for ALS.

The woman suffered an accidental trauma to her scalp after starting WMT, which her doctors treated with antibiotics, unfortunately the antibiotics caused the ALS to deteriorate significantly again. WMTs were deployed again after the antibiotic regimen as a rescue treatment which quickly reduced the worsened symptoms again and stopped the progression of the disease again. She received a new WMT every two to three months and this stopped the progression of the ALS as long as she continued with the regular application of WMT, though they weren't very clear on that point.

During the course of WMT, symptoms would reverse and then plateau in a sequence during the course of WMTs. The report reached the following conclusion based on this single case report :

' The stool and blood samples from the first WMT to the last were collected for dynamic microbial and metabolomic analysis. We observed the microbial and metabolomic changing trend consistent with the disease status. This case report for the first time shows the direct clinical evidence on using WMTs for treating ALS, indicating that WMT may be the novel treatment strategy for controlling this so-called incurable disease. '

I felt that this case study illustrates the potential of FMT/WMT as a viable treatment for ALS and possibly other diseases. Currently, FMT in the US is used almost exclusively for Clostridia Difficile (C-diff) infection that does not respond to standard antibiotic therapy and in such cases, can be fatal, so FMT is more of a last ditch effort.

With this new form of FMT, referred to as WMT, the transplants are filtered and cleaned or washed to make them safer than ever before. It isn't mainstream yet, but with future studies, WMT appears likely to become the new standard for FMT.

There are currently no known treatments that can stop the progression of ALS, but this case report is showing the potential of FMT/WMT to do just that. Given that ALS patients have an average life expectancy of just 3 to 5 years, this is huge and important news for people with ALS, but this case report received little if any news coverage.

My impression from this case report of an ALS patient using WMT as a treatment is that starting treatment immediately after diagnosis is important because while WMT may have stopped the disease progression and significantly improved symptoms, it did not completely reverse symptoms, so starting before there are very significant symptoms may offer the best chance for the best quality of life and outcomes for ALS patients.

Art


Dietary Changes, Supplements
Posted by Charles (CA) on 02/07/2022
★★★★★

I make a liposomal formula at home using bulk supplements, and a powerful sonic cleaner.

I cured my cold using this.

1. Blend

  • 7 teaspoons Vitamin C powder,
  • 2.5 teaspoons zinc gluconate ppwder,
  • 3/4 teaspoon vitamin D3 powder,
  • 12 tablespoons sunflower lecithin powder,
  • 4 cups distilled water.

2. Blend for 4 minute in a high speed blender.

3. Pour mixture into a 1000 ml pyrex beaker

4. Suspend beaker in a sonic cleaner with these specifications which you can buy on Amazon: (I made a wooden jig to suspend the beaker without touching any metal) VEVOR Commercial Ultrasonic Cleaner 6L Professional Ultrasonic Cleaner 40kHz with Digital Timer&Heater 110V Excellent Cleaning Machine for Watch Instruments Industrial Parts Excellent Cleaner Solution

5. Add cold tap water to the sonic cleaner almost all the way up to the top of the beaker and turn on the cleaner.

6. The sonic energy will go from the water into the beaker and from the beaker into the mixture. I buzzed the mixture for a couple of hours, changing the water once to keep the water in the tank cold.

7. I drank one tablespoon of the mixture every hour for four hours. After that, since the cold was much better, I drank one tablspoon full about 4 times per day.

OK, I'm not sure this will work for ALS, but it sure kills the cold virus. This could be one part of a more advanced ALS regimine.


Dietary Changes, Supplements
Posted by roro2527 (Paris) on 01/01/2022

Hi K,

Thank you for your story which gives me a hope, cause doctors only prescribe Riluzole knowing that it doesn't cure the disease but hurting badly the liver.

I hope you feel better now.


Multiple Supplements
Posted by BevilNC (NC) on 12/26/2021

Good Afternoon Jane,

You have to start the path that makes the most sense and move forward from there by listening to your body. Your past exposures and health deficits make a one size fits all solution impossible. Everyone's exposure to halides, pesticides etc are different, everyone can be deficient in different important building blocks such as magnesium, Vitamin D, Iodine etc. Your body is the cure...your job is to remove what's hindering it and give it what it is missing to do the job and that's very individual. The important thing is to KNOW that the body can and will heal itself...you have to start giving it the proper conditions to work in. Try the ideas and advice of one regimen at a time, give the supplements time to build up in your body and work, take note of what's getting better and what's getting worse then research a bit more and add in or take away based on your results. Keeping a notebook where you record your daily intakes and make notes about daily symptoms and improvements helps a lot. It seems overwhelming I know but it really isn't and progress is usually very quick once you begin supplementing the basics and removing the bad stuff. Healing yourself is not about do this one thing and then go on with things as usual, it's a whole body experience and will change your life and the way you think about health. Don't be dissuaded, take small steps and where you start isn't as important as that you start. This community will be invaluable to you. There is a wealth of knowledge and experience here for you to rely on in your personal journey.


Magnesium Oil, Coconut Oil
Posted by Marty (Rye, NY) on 08/25/2014
★★★★★

Butch Machlan talks about solving als, runs in his family, using magnesium chloride, along with coconut oil.

Deanna Protocol
Posted by Sara (Wisconsin) on 06/06/2015
★★☆☆☆

Hi Ted, I'm hoping you can help me out by getting back to me on your regime/treatment you have been on for the past year and how you are doing on that. My mom, who has ALS, has been on Deanna Protocol since Feb and Rilutek since April. Her arms are consistently getting weaker, she has foot drop and walking with a limp now, along with problems projecting her voice. Any input for me would be greatly appreciated.

Thank you, Sara


Coconut Oil, L-Lysine
Posted by William (Texas) on 02/09/2017
★★★☆☆

Mr.Ted, Als, diagnosed 2012. On coconut oil and L-Lysine. Still declining. Sleep with C-Pap ventilato. Please help me. William


Multiple Supplements
Posted by Jane (NC) on 12/26/2021

I have been reading all these posts with ALS suggestions and everyone says a different thing. It is so confusing with everyone saying something different there is no way that I see how anyone can get an accurate path to follow. No one agrees on just about everything the others say so for me it is useless, but hope you benefit from it.


Multiple Supplements
Posted by Dana (USA) on 06/14/2021

IP6 Inositol helps remove metals.


Multiple Supplements
Posted by Paracelsus (Orlando, FL) on 03/03/2021 47 posts

I think most people would benefit from taking transdermal vitamins & minerals. You can buy those as a patch, similar to a nicotine patch given to people who are trying to quit smoking.

The transdermal method of delivery has several advantages over oral delivery. 1. It goes directly into the bloodstream 2. It has better absorption rates (due to not having to go through the gastrointestinal pathway). 3. It is a form of time release since you should wear the patch for at least 8 hours. 4. You don't have to worry about interactions between supplements since that happens during digestion only.


Check for Low Potassium
Posted by Charity (Faithville, Us) on 10/27/2020
★★★★★

I was just watching Eric Berg on youtube teach help for RA and he was talking about how low potassium is behind it and then he said low potassium can cause cortisol issues. So that is interesting. I read years ago on some graph that low potassium was noted in ALS and another crippling disease. It stuck in my brain. Not sure what that site was it was so many years ago, it was a graph of minerals in different diseases. I was circling trying to solve my own health issues, the graph was made from using hair analysis.

This cortisol link with potassium is huge. Most people are cortisol resistant due to too much trauma overload and insulin resistant due to too much sugar but also can be caused by stress and not diet. I read in one site that a diet with no refined sugar but loads of stress made teeth rot out below the gum line from cortisol/

Cortisol production drains the whole body of minerals and hormones and nutrients. I guess that is why the bible says fear is a sin. I hope this opens a window for you for some fresh air.

Blessings, Charity


Melatonin
Posted by Art (California) on 10/21/2020 2326 posts

Hi Sherry,

I see melatonin at 10 mg is on your list, so the following article may interest you.

https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1600-079X.2006.00377.x

As you can see by the abstract, they used 300 mgs of melatonin/day(HDM) for up to 2 years in humans administered as a suppository. In the mouse part of the study melatonin was shown to delay disease progression and extended survival. In the human part of the study, melatonin was able to return oxidative stress levels to redox equilibrium as compared to the healthy control subjects and this is important because oxidative stress is doing much of the damage in ALS patients. Melatonin is available in suppository form otc, but if your doctor will prescribe it, your mother's insurance may cover it.

If not, there is this :

https://www.amazon.com/Zetpil-Melatonin-Sustained-Antioxidant-Suppositories/dp/B00DVMC3X6/ref=sr_1_37?dchild=1&keywords=melatonin+suppositories&qid=1603338241&sr=8-37

and this:

https://www.amazon.com/Zetpil-Melatonin-Sustained-Antioxidant-Suppositories/dp/B00UZ76N04/ref=sr_1_5?dchild=1&keywords=melatonin+suppositories&qid=1603338388&sr=8-5

One of the two drugs prescribed for ALS is Rilizole/Rilotek which is said to extend life expectancy by only a few months on average months. The other drug is called Edaravone /Radicava and is given via intravenous infusion and helps with daily functioning.

So clearly there is not a lot that current medicine has to offer for ALS.

In multiple other studies HDM has shown protective effects toward the mitochondria and neurons which are being destroyed in ALS. There is also bulk powder melatonin which would be less expensive, but this would have to be given orally and you are essentially on your own unless you can get a phone consultation with Dr. Shallenberger who is in Nevada. He gives his stage 4 cancer patients closer to 360 mgs of melatonin/day. He can give you a good idea on a dosing schedule for your mother and how best to use Melatonin in her case. His number is :

(775) 884-3990

Here is a link to his contact form:

https://www.antiagingmedicine.com/contact/

Good luck to you and your mom, Sherry.

Art


Melatonin
Posted by Sherry (TN) on 10/20/2020

Hello, I am gratefull for all the help I have received on this site!!

My Mother was recently diagnosed with ALS. So far she's only lost some use of arms. Now I am needing help in knowing how to proceed. I ordered supplements to begin Ted's basic ALS treatment-Lysine, threonine, glutamine, zinc, lithium carbonate, beta glucan, vitamin C, ascorbic acid, and BCAA. She will also go on sugar and gluten free diet.

I have a list of medications and supplements and am needing to know if any should be discontinued or anything added:

Riluzole 50mg 2x a day

Olmesarton-HCTZ 20/3.75

Progesterone 200mg

Synbiotic 365, Aleve gel, Womans Alive Vitamin, Vit. C, Elderberry, Omega Q10, Glucosamin Condroitin1500/1200, Red yeast rice, Lutein, low dose aspirin, Melatonin 10 mg, and Unisom Sleep

All help appreciated and I would love to hear Ted's recomendations!

Multiple Supplements
Posted by Janet (In) on 03/14/2019

Ted is still unable to answer posts after his stroke. I can give you some info.

We used Teds' spinal virus remedy, I expanded it to ALS remedy. ALS is commonly a virus picked up in a medical setting. So Ted emphasizes topical treatment to get a good kill. This takes some doing, you might need help with the topical. I make a castor oil pack on a folded paper towel. I fold 3 or 4 longwise and fashioned to fit the length of the spine. I add castor oil and pat it in to spread it without drippyness. The some DMSO sprinkled along the length, then sprays of magnesium. Oil. Finally drops of clove oil so it looks wettish. Sit on a towel. Drop onto spine. Sit back on a towel. Do this as often as you can. We did it for 3 days. A few times a day. Can be made on sheet strips. Can be stored in a ziploc. Refreshed 10 to 12 times. If nothing else put some firm lotion, not drippy on the back of a wooden spoon with clove oil mixed in. Or even a yard stick to get it applied. This might sting, test the mix an other skin so you are prepared. Your shopping list for an online retailer. Most powders are not sold in stores. In garden supply, Diamond black Humic Acid, 1 quart. A tablespoon in water a day Aquarium supply Methylene Blue, this must be mixed and mixed again, you might need help Clove Essential oil Castor oil Magnesium oil spray Some glass, dropper bottles and spray bottles, 2 or 4 oz Powdered bulk L lysine L Threonine Sodium Ascorbate InCapsules Zinc chelate is okay, it was what we had Vanadium In Gel caps Vitamin D3 is available now days, back then not so much. Buy one that is in coconut oil To get deep into the body and extremities I have been using vitamin B1 thiamine. Ted recommended Thiamine mononitrate. We use, lipothiamine. It seem to be a more absorbed b1. On Amazon. As is all this. Ted stresses the topical remedy. And the virus killing with humic and the lysine remedy Below is my lysine recipe to make a batch. Amounts can be changed according to remedy. The remedy goes bad after 3 days and must be remade. A great addition is hyaluronic acid. In capsules 3 to 600 mg a day. There are more suggestions within his posts. I thought this info might help. I will post recipe and Teds chapter below, separately. As my phone will not copy paste. Janet


Multiple Supplements
Posted by Janet (In) on 03/14/2019

Ted's Remedies for ALS

Lysine, threonine, methylene blue, The L lysine L threonine Methylene Blue remedies for virus Lysine remedy 4 hourly doses 3 days 3 water bottles pour 1/2 of each in large measuring cup pour 1 inch of each down the drain, for water displacement In the measuring cup 12,000mg l lysine 4,000mg l threonine 1,500 mg of sodium ascorbate 2 droppers methylene blue. Whisk til dissolved pour back in bottles cap them Store in frig these go bad in 3 days. So toss and remake if needed. Mark each bottle with 4 lines equally, each is an hourly dose. 1 bottle each day. Methylene blue Methylene blue from amazon (1 two ounce glass dropper bottle. Amazon) comes as a powder in a bottle. Using distilled water for this one. Work on a glass plate. It stains. Vitamin c water removes the stain. Carefully fill the m.b. bottle to first rim. Cap and agitate. Fill dropper bottle 3/4 full of distilled water. Using dropper add 2 droppers of m.b. solution to dropper bottle. Cap, agitate. You will see dropper only fills 1/2 way. This is good. Urine may be greenish this is harmless and normal. Reserve large bottle to cure virus flu colds.


Multiple Supplements
Posted by B.B. (Dallas, TX ) on 03/13/2019
★★★☆☆

Hello Ted, I am a 53 y/o woman that was diagnosed with ALS in 2018. I have lost use of my hands and have muscle atrophy in both hands and shoulders. My gate is now extremely shuffled. I also suffer from muscular twitching upper and lower body. My speech is slurred and I also have dysphagia when attempting to consume meals. My labs have revealed that my metal toxicity in my blood is extremely high. I have tried an abundant of supplements however nothing appears to be helping my symptoms. Is there anything that you can recommend.

Ted's Remedies
Posted by Janet (In) on 07/08/2017

Nellie,

On an average I use 4 to 5 drops in water with 500 to 1000mg sodium ascorbate. Or ascorbic acid and a pinch of baking soda. The vitamin C keeps the methylene blue from getting a blue tinge in your eye whites. If you are well hydrated it does not happen. Your urine still might be bluish, it does not do anything. But you should always use the 2 together.

4 or 5 drops 2x a day in water with C. When I am killing a virus or cold I often add these together With four doses 500 to 1000mg of l lysine 500mg of C, then 6 drops of methylene blue to knock it out, taking 1 dose of them each hour for 4 hours, usually 3 days in a row. I add it all together in 10oz of water. Dosing as needed.

Methylene Blue should be taken before evening as it is energizing and may keep some people awake if taken too late in the day.

Janet


Ted's Remedies
Posted by Nellie (Virginia) on 07/07/2017

Janet, once you have the methylene blue in the dropper bottle with the water, how much do you use daily?


Dietary Changes, Supplements
Posted by Gigi (California) on 03/07/2017

How is your father doing? When was he diagnosed with Bulbar onset? Did you do the hair toxicology test when he was first diagnosed? I'm caring for someone who was just diagnosed.


Dietary Changes, Supplements
Posted by Karen (Florida ) on 03/07/2017

Hello. I was just checking in your dad's progress and hopeful success?? I have a dear friend recently diagnosed with same type of onset


Ted's Remedies
Posted by Janet (In) on 02/25/2017
★★★★★

ALS.. time and effectiveness are critical in your challenge. Here is Ted's chapter of emails responding to many folks needing help.

We have found Ted's remedies to be spot on with many serious illnesses. Almost every single thing is available on bulk suppliers, google bulk supplements, Amazon or ebay. The critical types of b vitamins for the most effective help I will mention is Swansons Activated b they sell 2 strengths buy the higher strength. Because you need to have the most bioavailable b. This is the only affordable one I have found.

Only buy powders and capsules you will get the best results. No pills.

I make my remedies at once. Usually in the morning for the day. For instance my lysine, threonine aspirin, methylene blue, sodium ascorbate, I put 4 doses in a bottle of fluoride free spring water. They are 10 to 12 oz. I mark 4 doses on the bottle. I pour out some water to make room. Add the ingredients. Shake and take teds recommendations of timing.

Methylene blue comes as a powder in a bottle. You fill that bottle with water, shake. Then you take 1 2oz dropper bottle, Amazon. Droppers usually only fill 1/2 way. Take 2 droppers of your original solution into dropper bottle add water carefully to a little below top you need room to put the dropper back in. Make this on a glass plate as it stains. If it spills, citric acid or lemon juice take it out easily.

Here is Ted's chapter. Janet

https://ted.earthclinic.com/cures/als-natural-treatment-supplements8.html

Medication Combinations Can Mimic ALS Symptoms
Posted by Linda (Carmarthenshire.) on 09/22/2016

My Mother was a strong woman with hardly any sugar or junk. As soon as the G.P. 's put her on Statins, her health went down hill . At age 69, she died when her Mother and Father both lived well and happy into their 80's and 90's ..... my Mum was on both Statins and Avandia and other drugs, which she probably never needed because she never needed Statins in the first place .


Dietary Changes, Supplements
Posted by K (Florida) on 06/03/2016
★★★★★

Editor's Choice

My father was diagnosed with Bulbar Onset ALS.

He has been having great results with a combination of a strict gluten-free diet, no sugar, and supplements.

We did our own hair toxicology test from test country labs. His results showed he had 3 heavy metals in his system and also a deficiency of iodine and potassium. He is now using a feeding tube formula called, 'Liquid Hope' made of organic food. We have been doing green juices, ingesting 8 oz of coconut oil per day, msm powder, vit c water (bought powder form), and added filters to all our water sources.

Please test for heavy metals and test for proper liver function.

One friend has stopped his ALS symptoms by adhering to a strict sugar-free, gluten free diet and detoxing his system. We are seeing results as well.

My father was diagnosed by Mayo who promoted the Deanna Protocol..no significant changes or slowing of the disease. It seemed like a profit maker as anywhere the Deanna Protocol name was, it was followed by a trademark symbol. Our doctor had no clue what half of the supplements were and there was way too much creatine involved. Most of the DP supplements were synthetic.

Some naturopathic drs have been able to provide liver flush type treatments.

Please test for toxicity and liver function. If doctors won't do it, tests are easily purchased on amazon or directly from the website.

We had instructions and did ours at home. Don't wait for these experimental tests...because half of the people are given a placebo. It's such a waste. Diet and exercise. Keep moving and never give up!!!

Surround yourselves with supportive people, not victim-minded ill people who have already given up mentally.

Ted's Remedies
Posted by Marie (Ireland) on 05/25/2016

Hi Angela I hope you are well. How is your father? I hope he continues to improve. You are obviously an amazing daughter. My brother in law was diagnosed with MND two years ago and even though he is holding his own compared to some people with this condition he is now in a wheel chair. He gets bad muscle twitching when he eats high sugar foods. Just wondering can you give any advice? Cheers Marie


Consider Antiviral Remedies
Posted by Bill (San Fernando, Philippines) on 10/06/2015
★★★★★

Hi Roger...Here is Ted from Bangkok's protocol for late stage ALS. ALS, according to Ted, appears to be caused by adenovirus. Here is the remedy that he used:

"There is a lot of things you can do. The most important is the mucus and toxins. N acetyl cysteine 4000 mg 6 times a day and taurine 1000 mg 4 times a day. This will remove toxins. Methylene blue 0.1% 20 drops morning lunch and dinner. Adenovirus can be protected with poly lysine 1000 mg 3 times a day to kill it.

Ted"

The child was in late stage ALS and in coma when he was put on Ted's regimen. When the parents took him out of hospital the doctors gave the boy 24 hrs to live. but the boy came out of coma and improved.

You can read all about his treatment here:

http://ted.earthclinic.com/cures/als-natural-treatment-supplements2.html

So, for adults, Ted's protocol would be thus:

N-Acetyl Cysteine -- 4000 mgs 6 times a day

0.1% Methylene Blue -- 20 drops mixed with 1000 mgs vitamin C in a half glass of water -- take this morning, lunch and dinner.

Taurine and Lysine each at 1000 mgs 4 times a day. Take them together dissolved in or with water.

Other useful remedies from Ted wrt ALS:

Rubbing ACV or vinegar directly on the back of the neck with help to kill the virus in the neck and brain regions.

Use 2% Lugol's Iodine mixed 50%-50% with DMSO. Apply this topically once a day along the whole length of the backbone and neck. DMSO will help the iodine to penetrate the bone to help kill ALS virus hiding in the synovial fluids there. Povidone Iodine is well known to kill adenovirus through research so lugol's iodine will do the same. Povidone Iodine cannot be ingested or used internally -- which is why you must only use the lugols iodine form(which can be ingested or used internally). Colloidal silver + DMSO could also perhaps be used like this with similar beneficial effects.

Rubbing drops of clove oil + aloe vera oil along the whole length of the backbone and neck area will also help to chase out the virus from the synovial fluids in the bone into the blood where the immune system can more easily kill it.

Take Lithium Carbonate 1.5 to 5 mgs per day.

You can buy most of the above nutrients from the health shop or internet vendors. You can purchase Methylene Blue at any aqua-culture shop that deals with fish tanks and fish for display. Methylene Blue is used in aqua-culture to help kill bacteria and fungus on the fish. MB is normally sold at 2.3% strength so you may have to dilute it down to 0.1% strength for use as Ted advises.


Consider Antiviral Remedies
Posted by Roger (Charleston, Wv) on 10/06/2015

My brother was diagnosed with ALS in June. What r some of the treatments that u make and how to use them, ie colloidal Silver and what is DMSO, if any other. I have been told about the coconut oil.. How does that work, do u drink it or put it on your skin. Thank u anything to help him PLEASE

Medication Combinations Can Mimic ALS Symptoms
Posted by Rsw (Oh) on 10/05/2015

Hi Syed,

I am sorry to hear of your probably unreported "adverse reaction" to statin drugs. For up to date information on the newest findings about how statins affect the human body, see Dr. Duane Graveline's Facebook page here:

https://www.facebook.com/Spacedoc-373791966069660/timeline/

There is also a Yahoo "Stopped Our Statin Group" you can join to feel some connectiveness, research data and awareness of the thousands of statin victims out there.

Dr. Graveline is currently doing a study on Dolichols that are blocked along the mevalonate pathway along with CoQ10 and other pathways and functions essential to repairing DNA. Cholesterol is needed by every part of our bodies, especially the heart and brain. It is inflammation that we don't want.

We would like to see the statin drug companies use some of those enormous profits to fund research to help the thousands of people like you, in fact about 25% of people taking statins, to regain functions that were lost, sometimes permanently and progressively even after statins have been discontinued, after short-term/long term statin drug use. You are not alone and every person's experience and thoughts are important in finding a solution. Take care.


Medication Combinations Can Mimic ALS Symptoms
Posted by Syed (Ontario, Canada) on 10/04/2015
★★★★★

ALS -I lost my right hand movements ( called motor skills). I was taking 40mg of Lipitor for quite some time.


Consider Antiviral Remedies
Posted by Dave (Fountaiin Inn, Sc) on 08/25/2015

Hello Musibul,

And you also asked how to apply....a poultice is just the wet cloth laid onto the skin and let absorb for twenty minutes.

Use about two cups with a light white cloth for poultices. Enough to have the cloth very wet without being too drippy.


Consider Antiviral Remedies
Posted by Dave (Fountain Inn, Sc) on 08/25/2015

Hello Musibul,

I hope I spelled your name correctly....

but you ask a few questions on how I apply colloidal silver to myself. If I want to get CS into my spinal area I use a 50/50 mix of CS plus DMSO. The DMSO is a solvent and carrier. So the DMSO will penetrate my skin and spinal column carrying the CS with it.

I also will drink two tablespoons of CS daily to kill infections in the body.


Consider Antiviral Remedies
Posted by Musibul (Maharashtra) on 08/25/2015

Hi Dave,

You mention you have apply white cloth as a poultice to spinal column. Please tell me the quantity for one time and you mention drink cs daily it means Colloidal Silver ?

Can you little elaborate how to apply?


Homeopathy
Posted by Nmx (Midwest) on 06/28/2015

Along with Plumbum or Causticum homeopathic - The Carnicom Institute who is working on Morgellons which I think might be involved in ALS - has found that Vit C and N Acetyl Cysteine (which helps create Glutathione - the chief antioxidant of all) are halting growth of Morgellons in the body - Morgs leaches iron and amino acids - which could cause your muscle weakness.., try these


Ted's Remedies
Posted by Sara (Wisconsin) on 06/06/2015

Hi Angela,

Your posting gives me hope for my mom who has ALS. I have my mom on the Deanna Protocol and she is also on Rilutek. She is getting so much weaker in her arms. She has drop foot and has a hard time getting up. She also coughs alot and has trouble projecting her voice. Could you please tell me what regime worked for your dad? This site has useful information but it seems Ted has recommended slightly different doseages and supplements for everyone with ALS. So Ted if you read this, I would appreciate if you would be able to otherwise recommend a regime for my mom, my best friend.

Thank you very much, Sara

EC: So sorry, Ted had a stroke in 2015 and has not been able to correspond since then.


Dietary Changes, Supplements
Posted by Alon Shomer B.sc. N.d. (Jerusalem, Israel) on 02/02/2015
★★★★★

Editor's Choice

I treated a person that came to me several years ago.

He complained that he is progressively losing control over his legs making it difficult to walk, and that he has lots of muscle twitching in his left shoulder.

Since I believe that most of the CNS diseases are caused by funguses, I treated him for candida:

Mainly - no sweet beverages or drinks of any sort ( including fruit juices) at any time.
Large amount of probiotics. Very little sugars including fruits.

Diet: as much as he wanted vegetable salad with olive oil.
Semi hard yellow cheese or camembert (made with rennet and bacteria). Green drinks (green vegetables with one carrot only). Rice (small portion). Meat that was cooked or grilled for about two hours (moderate amounts). Eggs - two to four a week. Almonds soaked in water over night. Miso soup with wakame. Nuts and seeds

Supplements: (5-6 days a week all supplements) multivitamin and minerals. + zinc picolinate 10 mg + fish oil (3 times more EPA then DHA) 300 to 500 mg + vitamin E 200 mg mix tocopherols +1000 mg lecithin + B12 (4000 microgram a week) + vitamin C 500 mg + probiotics several strains, 2 capsules 4 times a day.

(He was instructed to wear copper bracelet, but today I will replace it by using on top of the one mg of copper in the multi, 3 mg of copper twice a week separated from any other supplement).

Exercises - at least 20 minutes a day, whatever he wanted to do in order to burn up calories, preferably before going to sleep.

In few months all his symptoms disappeared and all functions became normal.

I am unable to say for sure that it was the beginning of ALS but it is definitely worth the try.

Homeopathy
Posted by Nm (Usa) on 10/30/2014
★★★★★

For Neurological diseases, ALS, MS, etc... try Plumbum homeopathic 30 or 200, Causticum is a huge central nervous system remedy, Calcarea Carb, Arsenicum in some cases... Bryonia is another... Main ones to try though are the first two... Search "homeopathy +als or ms and read the descriptions of each remedy and find the one that fits your symptoms... I got great assist from plumbum & causticum... Calc Carb also helped.. Try to be happy because mood can affect these diseases as well.

Iodine
Posted by Medicineman (Harrisburg, PA) on 09/01/2014
★★★★★

Treating ALS:

Coconut oil is fine. What you want is an overall healthy diet of real foods. No processed, no farmed fish. As wholesome and close to the land as possible. It should be a lifestyle.

The biggest contributor to mucus is dairy. Eliminating dairy from the diet would be my first go-to.

Run with this iodine and vitamin C (and take a multi for safe measure).

You need to detox. Iodine will detox heavy metals and help get systems back online. Vitamin C acts as like a shuttle service for the iodine going in as well as the toxins going out.

My father died of ALS years ago and suffice it to say - you'll get nowhere with the standard medical procedure. Rilutek is a joke.

ALS is caused by toxicity, stress, and degradation of the systems. All of which can be brought back to working order, I believe.

Dosage wise take 1-2 grams of vitamin C every 1-2 hours. Maybe stop closer to bed time as it can keep you up at night and rest is important.

Iodine you'll want to aim for around 1000 mcg. Gauge yourself at maybe half that or less. Iodine will produce detox effects that are flu like and depression.

If you're getting heavy detox symtoms just dial it back a while or take a day off.

Iodine is about the long game, it can take a year for it to do its work fully.

I like kelp as a source, because it's in its natural form with other companion nutrients that will help absorbtion. Sea weeds also have addictional detoxifying elements in them ontop of iodine.

But that's the gist of it. Health is a natural, organic process. It doesn't happen overnight and won't come from a pharmaceutical drug.

We come from nature and our road to wellness is a natural one.

Namaste', C


Ted's Remedies
Posted by Tonya (San Diego, Ca) on 07/18/2014

Hi Angela -- Can you tell me what worked and didn't work with the treatment for your "new miracle man" father? :) My mother has been recently diagnosed with ALS. Thanks in advance!


Consider Antiviral Remedies
Posted by Dave (Fountain Inn, Sc) on 03/01/2014

Hello Anupam,

I see you ask Ted about ALS and I'm not Ted nor even close to his expertise but if you will allow me, I'll give you my own approach to ALS.

I believe there is evidence that ALS has at its root a viral infection in the spine, cousins to the Polio virus. The Polio virus is a "specialty" virus and in theory so is ALS. Cadaver studies were performed on ALS corpses and (as I can recall) about 80 percent of those had the virus in the horns of the spinal vertebra.

In theory, then if I suspected a spinal infection, I would use a 50/50 mix of DMSO (see Earth Clinic under Remedies) and Colloidal Silver (see Earth Clinic again under Remedies). I'd apply with a white cloth as a poultice to spinal column for thirty minutes three times a week. After a month if I'd improved at all, I'd continue for six months. I'd also drink CS daily, three tablespoons on empty stomach daily for six months to kill the virus in the rest of the body. The DMSO will carry the Silver atoms into the skin and DMSO is also an anti viral so it too will help.

This combo has worked for me for numerous "below skin" infections and, yes, it will penetrate bone. If the combo is applied to base of skull it will penetrate into the brain. If I thought I had any infection in brain I would try this combination three times a week for at least a month and judge results.

Your father is very far advanced; you said he could not walk or talk; so the approach is a long shot....but if this were me...I'd try anything at this time.


Consider Antiviral Remedies
Posted by Anupam (Poland) on 03/01/2014

Dear Ted, my father is diagnosis ALS. He is 68 lives in India .now he is unable to walk and talk. Doctors says there is no treatment of ALS. Pls help us



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