Understanding ALS: Symptoms, Treatments, and Supportive Care

Posted by Mr Don (Gold Coast Australia) on 01/14/2014: My 70 year old wife has ALS for at least 8 months she is finding it hard to talk now and has trouble eating and sometimes breathing She is also losing strength in her arms She has herpes virus for many years. What can you suggest as a treatment I have been told that rhinacanthus root powder can reduce the amount of glutamate your body produces. Is this correct? Where can I purchase this product? It is widely used in the Bangkok uni. Regards Mr Don

If you google search "ALS herpes simplex" you'll find a number of articles on the possible connection. "Pub Med" has one such article. That article has connect with a specific type of ALS. You said that your wife did indeed have the virus long prior to the ALS onset.

The point is, if I were suffering from ALS I'd consider the possibility of a virus as either a trigger or the underlying cause of the ALS and would at least try to rid the body of the infection. I use a number of anti viruses, my favorite being Colloidal Silver; also Echinacea, tea tree oil... lots of "go to virus killers."

On the CS, I'd take orally three tablespoons daily for three months. I'd also do the CS as a nasal irrigation.

I know your wife must be very frightened. Encourage her never, never to lose hope. Same for you, "Mr Don." This is a terrifying disease to combat and I'll be praying for you to have wisdom and strength through it all.

Your friend here in America,

Dave

Posted by Sarah (Carlyle, Illinois ) on 04/10/2013: My father-n-law has recently been diagnosed with ALS. We are having a really hard time to figure out what to do to help him. His progression is coming way to fast he is really having a tough time sleeping, problems with saliva, constipation and he is also very depressed. He has doctor appointment this Friday at the ALS clinic in St Louis. Ted, I need your help.

Sarah: I'm not Ted and cannot offer any specific recommendations, BUT I just watched an ihealthtube video of Professor Garth Nicholson of the Institute of Molecular Medicine speaking of his successes treating degenerative and chronic diseases with Lipid Replacement Therapy (LRT). He mentioned only recently using LRT in degenerative neurological diseases with success.

It's been a while since I posted, I have been busy with the care of my dad who is healing from als. He is being called the 'new' miracle man. Ted has been of major and effective assistance in this arena and my family and I continue to be grateful for his contributions. I wanted to ask Ted if he knew of any side effects of branch chained amino acids for someone like my dad who is not on any medications - except for acid reflux and constipation which are both PRN. He breathes room air (never been on oxygen) and continues to seek natural ways to help his muscles repair and rebuld themselves. What is your opinion on BCAA's positive and not-so positive?

Also from all information, you put on your pages in regard to the colitis ulcerous, please be informed I treated 4 cases with 100% success without any recidive. Thank a lot to you.

Waiting yours comments,

Jacques from Canada

The cause of AlS is contradictory and in another article in the same time frame Ravits argues that the virus may be hard to detect especially when looking at frozen spinal fluids and other methods for detection which might not yield the evidence for the existence of the virus that causes ALS, if indeed a virus is the cause.

The undisputed fact says Ravits is that the disease is progressive. I think that fact alone tells us ALS is likely viral. If I read his analysis correctly, he says the "movement" is like polio except the supposed ALS enterovirus is "acute slow motion. " I hope I am not misrepresenting the Ravits papers. Ravits is not affirming the cause but hypothesing why the ALS virus has not been clearly identified like the polio virus.

But let us suppose it is viral. What can be done and in the posts on the Earth Clinic web site some anti viral methods are used. I'll propose consideration of another method for killing the supposed virus.

To be clear, Dr Ravits does not discuss cure at all. He only discussed causation. So what follows is only my own suggestion for possible experimentation:

I believe, and have much anacdotal evidence to support my belief, that colloidal silver will kill virus and bacterial infection... Fungal infection also. But if I were to take the solution of water, containing atoms of silver, and add DMSO, a carrier, solvent and penetrant and saturate the combination of the colloidal silver with 5% DMSO into a white cloth or white paper towel and apply the very wet cloth/paper towel to the spine and let the cloth soak slowly into the skin... Then in theory the silver will be taken into the spine. If there is a virus there the CS will kill it.

I would suggest that the CS be orally consumed as well... A tablespoon daily. That amount for a few months. And if I found a diminishing of my symptoms I would continue the protocol for at least a year. The "poultice" application should be continued for at least two months, every day for two weeks and then every other day for six weeks. If nerves have not been destroyed then one might see an improvement within a month. To help the cells repair, Calcium AEP should be considered also. Dr Robert Adkins in his book, Vita Nutrients gave Ca AEP by IV to his MS patients as the most important part of the MS protocol achieving wonderful results at his Long Island clinic.

I would apply the CS/DMSO solution to the entire spine... base of skull to tail bone.

She has a relative that is a massage therapist and has been using clove oil, as suggested, in working it into the back of her neck and spine. It is helping her be a lot more comfortable, whether its the massage, the oil or both, we don't know, but she has been free of the cramping, spasms and pain she previously struggled with.

"Amyotrophic lateral sclerosis (Lou Gehrig's disease): There is some concern that threonine might decrease lung function in patients with ALS. In one study, ALS patients taking 4 grams of threonine per day had significantly reduced lung function compared to patients who did not receive threonine..."

And this is exactly what we saw. With all the symptoms of ALS she showed, the reduced lung function has not yet been one of them. But the introduction of Threonine directly coincided with a dramatic effect on her breathing. She said it felt like an elephant sitting on her chest.

On the positive, she previously had a clenched feeling in her throat that was pinching and really wearing her down. Since taking the Threonine, this has noticably relaxed and made it much easier to bear. But the thick mucous increase and belabored breathing is a bit scary, especially since many ALS sufferers die from this aspect. We are stopping the Threonine in hopes that her breathing will return to normal. If it doesn't I may counteract it with arginine, but I know this supports the possible viral function that we are attacking with Lysine. So I want to be careful and take it one day at a time.

I just felt it important to share this experience in case it is of help to anyone else out there.

I know of at least 5 women in my town who have been mis-diagnosed by their doctors. One had gotten to the point of all her muscles collapsing and her lungs and heart were stopping working. Luckily, a new young surgeon at the hospital's emerg. department realized what was happening and took her off the cholesterol medication. She went from almost comatose to up in a wheelchair in 3 days, and walking by day 5. Apparently diabetic medications or cholesterol medications by themselves are fine, it's the combination that's terrible.

Iodine tablets have improved my energy levels, lifted body temperature which runs low, helped my tired eyes and overall well being. I would add it to the list of 'musts' for ALS since I have been diagnosed with that 3.5 years ago. Also, Iodine is great for a natural heavy metal cleanse which goes hand in hand with so many health issues including candida, cancer.

The biggest thing with ALS is to stay away from medications like Baclofen. No medication will help ALS but rather will cause quicker deterioration of physical, mental, and financial health!

Baking soda taken as prescribed on the box is excellent for skin issues that won't heal and are cancerous looking. Research electrolytes and you will see what essentials are needed for our body to function.

I am 54 and going strong!