Understanding ALS: Symptoms, Treatments, and Supportive Care

The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Coconut Oil, L-Lysine
Posted by William (Texas) on 02/09/2017
★★★☆☆

Mr.Ted, Als, diagnosed 2012. On coconut oil and L-Lysine. Still declining. Sleep with C-Pap ventilato. Please help me. William


Dietary Changes, Supplements
Posted by Charles (CA) on 02/07/2022
★★★★★

I make a liposomal formula at home using bulk supplements, and a powerful sonic cleaner.

I cured my cold using this.

1. Blend

  • 7 teaspoons Vitamin C powder,
  • 2.5 teaspoons zinc gluconate ppwder,
  • 3/4 teaspoon vitamin D3 powder,
  • 12 tablespoons sunflower lecithin powder,
  • 4 cups distilled water.

2. Blend for 4 minute in a high speed blender.

3. Pour mixture into a 1000 ml pyrex beaker

4. Suspend beaker in a sonic cleaner with these specifications which you can buy on Amazon: (I made a wooden jig to suspend the beaker without touching any metal) VEVOR Commercial Ultrasonic Cleaner 6L Professional Ultrasonic Cleaner 40kHz with Digital Timer&Heater 110V Excellent Cleaning Machine for Watch Instruments Industrial Parts Excellent Cleaner Solution

5. Add cold tap water to the sonic cleaner almost all the way up to the top of the beaker and turn on the cleaner.

6. The sonic energy will go from the water into the beaker and from the beaker into the mixture. I buzzed the mixture for a couple of hours, changing the water once to keep the water in the tank cold.

7. I drank one tablespoon of the mixture every hour for four hours. After that, since the cold was much better, I drank one tablspoon full about 4 times per day.

OK, I'm not sure this will work for ALS, but it sure kills the cold virus. This could be one part of a more advanced ALS regimine.


Consider Antiviral Remedies
Posted by Roger (Charleston, Wv) on 10/06/2015

My brother was diagnosed with ALS in June. What r some of the treatments that u make and how to use them, ie colloidal Silver and what is DMSO, if any other. I have been told about the coconut oil.. How does that work, do u drink it or put it on your skin. Thank u anything to help him PLEASE

Homeopathy
Posted by Nmx (Midwest) on 06/28/2015

Along with Plumbum or Causticum homeopathic - The Carnicom Institute who is working on Morgellons which I think might be involved in ALS - has found that Vit C and N Acetyl Cysteine (which helps create Glutathione - the chief antioxidant of all) are halting growth of Morgellons in the body - Morgs leaches iron and amino acids - which could cause your muscle weakness.., try these


Coconut Oil
Posted by Free Of All (Edmonton, Alberta) on 10/13/2013

For ALS has anyone considered raising their pH to a Alkaline state using Baking Soda and mixing it with Coconut oil as Coconut oil has the ability to pass the blood Brain Barrier (Brain Food)


Medication Combinations Can Mimic ALS Symptoms
Posted by Meghan (Brooklyn, Ny) on 12/02/2009
★★★★★

My father was recently diagnosed with ALS. I still have that hope that it might not be true. He takes both diabetic medicines and cholesterol meds. Can you by any chance find out what her medications were that she was taking? And how they figured out that the combo of meds were doing it to her body?


Multiple Remedies
Posted by Abe (Sydney) on 10/22/2024
★★★★★

Abe's Protocol for ALS:

  • Coconut oil (Virgin C.O. is best)(work up to 9 to 12 tablespoons per day, start at 1 tablespoon)(this seems to be very helpful for ppl with MND/ALS)
  • Sunflower lecithin (tip: have a tsp of sunflower lecithin with every spoon of coconut oil. Re-build myelin sheath and improves oil digestion)
  • Zeolites (pink is best)(2 tsp per day)
  • Diatomaceous earth (mix a heaped spoon of D.E. with a litre of water, add 1 drop or two of ACV, drink the water full of silica, leave the mud on the bottom - easier on kidneys)
  • D-mannose (1 Tb / day. A must to rid the candida & fungus and the metals that the candida is holding along with it)
  • Selenium 200 mcg /day
  • B-vitamin complex (plus additional B2)
  • Benfotiamine (B1) take 1 capsule, several times per day.
  • Vit D3 10,000 IU /day
  • Iodine
  • Boron 3 to 9 mg /day
  • Magnesium 400 – 1200 mg /day
  • Melatonin (3 to 50+ mg per night, 1 hour before bed)
  • NAC
  • Butyrate
  • Antioxidants
  • Follow a low carb diet & also avoid gluten. (High fats, eating lots of animal fats & eggs is very good).
  • Saunas are a useful adjunct to safe mercury removal because they induce copious sweating.
  • Increase circulation by exercising 20 minutes, one to three times a day walking or bouncing on a rebounder (mini trampoline).
  • Apply coconut oil and ACV on topically on sore muscles (very helpful).


Apple Seeds and Oil
Posted by Rob (Kentucky) on 02/06/2024

I think he maybe referring to vitamin B-17 found in apple seeds. It is found highest in Bitter apricot seeds.


Multiple Supplements
Posted by Janet (In) on 03/14/2019

Ted is still unable to answer posts after his stroke. I can give you some info.

We used Teds' spinal virus remedy, I expanded it to ALS remedy. ALS is commonly a virus picked up in a medical setting. So Ted emphasizes topical treatment to get a good kill. This takes some doing, you might need help with the topical. I make a castor oil pack on a folded paper towel. I fold 3 or 4 longwise and fashioned to fit the length of the spine. I add castor oil and pat it in to spread it without drippyness. The some DMSO sprinkled along the length, then sprays of magnesium. Oil. Finally drops of clove oil so it looks wettish. Sit on a towel. Drop onto spine. Sit back on a towel. Do this as often as you can. We did it for 3 days. A few times a day. Can be made on sheet strips. Can be stored in a ziploc. Refreshed 10 to 12 times. If nothing else put some firm lotion, not drippy on the back of a wooden spoon with clove oil mixed in. Or even a yard stick to get it applied. This might sting, test the mix an other skin so you are prepared. Your shopping list for an online retailer. Most powders are not sold in stores. In garden supply, Diamond black Humic Acid, 1 quart. A tablespoon in water a day Aquarium supply Methylene Blue, this must be mixed and mixed again, you might need help Clove Essential oil Castor oil Magnesium oil spray Some glass, dropper bottles and spray bottles, 2 or 4 oz Powdered bulk L lysine L Threonine Sodium Ascorbate InCapsules Zinc chelate is okay, it was what we had Vanadium In Gel caps Vitamin D3 is available now days, back then not so much. Buy one that is in coconut oil To get deep into the body and extremities I have been using vitamin B1 thiamine. Ted recommended Thiamine mononitrate. We use, lipothiamine. It seem to be a more absorbed b1. On Amazon. As is all this. Ted stresses the topical remedy. And the virus killing with humic and the lysine remedy Below is my lysine recipe to make a batch. Amounts can be changed according to remedy. The remedy goes bad after 3 days and must be remade. A great addition is hyaluronic acid. In capsules 3 to 600 mg a day. There are more suggestions within his posts. I thought this info might help. I will post recipe and Teds chapter below, separately. As my phone will not copy paste. Janet


Multiple Supplements
Posted by Dana (USA) on 06/14/2021

IP6 Inositol helps remove metals.


Ted's Remedies
Posted by Nellie (Virginia) on 07/07/2017

Janet, once you have the methylene blue in the dropper bottle with the water, how much do you use daily?


Consider Antiviral Remedies
Posted by Anupam (Poland) on 03/01/2014

Dear Ted, my father is diagnosis ALS. He is 68 lives in India .now he is unable to walk and talk. Doctors says there is no treatment of ALS. Pls help us


Lipid Replacement Therapy
Posted by Timh (Louisville, Ky, USA) on 04/11/2013 2048 posts
★★★★★

In reply to:

Posted by Sarah (Carlyle, Illinois ) on 04/10/2013: My father-n-law has recently been diagnosed with ALS. We are having a really hard time to figure out what to do to help him. His progression is coming way to fast he is really having a tough time sleeping, problems with saliva, constipation and he is also very depressed. He has doctor appointment this Friday at the ALS clinic in St Louis. Ted, I need your help.

Sarah: I'm not Ted and cannot offer any specific recommendations, BUT I just watched an ihealthtube video of Professor Garth Nicholson of the Institute of Molecular Medicine speaking of his successes treating degenerative and chronic diseases with Lipid Replacement Therapy (LRT). He mentioned only recently using LRT in degenerative neurological diseases with success.


Ted's Remedies
Posted by Janice H (Eastaboga, Alabama, Usa) on 10/10/2012

Ted, I followed your guidelines on the mixture of enzymes for my brother-in-law who was recently diagnosed with ALS after a process of elimination for other causes of MND. He said his kidneys seem to be overactive and after 5 days of treatment he was exhausted from sleep deprivation due to trips to the bathroom all night and day. He was drinking fluids yet still feels dehydrated. Is this normal when starting enzyme-treatment? Other concerns: He was water skiing (on one/two ski) this time last year, and rode his bicycle 500 miles in Jan (2012) when he had lower back pain & knee pain; his doctor recommended a regimine of 3 epidurals beginning in Feb (2012). Immediately after the first epidural he had severe muscle cramps and pain; his doctor recommended potassium and continued with the other 2 epidurals. Soon after he began to stumble and fall; loose strength and use of his hands. He continues to have pain in limbs, and recently fell injuring his shoulder; so he doesn't have paralysis; he just can't control his limbs. He has no problems eating or talking. His doctor refused to connect the epidurals with his sudden loss of control of his limbs. Recently there has been a recall of medication used in epidurals for back pain due to contamination resulting in "fungal miningitis epidemic" in the USA. NO DOCTOR WILL ADDRESS THIS ISSUE WITH MY BROTHER-IN-LAW; he has always felt this sudden onset of MND is related to the epidurals. What would you suggest his next approach in this matter? Thanks so much, I read all you material! Janice H


Deanna Protocol
Posted by Sara (Wisconsin) on 06/06/2015
★★☆☆☆

Hi Ted, I'm hoping you can help me out by getting back to me on your regime/treatment you have been on for the past year and how you are doing on that. My mom, who has ALS, has been on Deanna Protocol since Feb and Rilutek since April. Her arms are consistently getting weaker, she has foot drop and walking with a limp now, along with problems projecting her voice. Any input for me would be greatly appreciated.

Thank you, Sara


ALS Research
Posted by Lloyd (Charlotte, Nc) on 12/20/2012

Dr John Ravits who is a research scientist has written a number of fascinating articles, one of which is Sporadic ALS, A Hypothesis of Persistent Enterovirus Infection which was published in 2005.

The cause of AlS is contradictory and in another article in the same time frame Ravits argues that the virus may be hard to detect especially when looking at frozen spinal fluids and other methods for detection which might not yield the evidence for the existence of the virus that causes ALS, if indeed a virus is the cause.

The undisputed fact says Ravits is that the disease is progressive. I think that fact alone tells us ALS is likely viral. If I read his analysis correctly, he says the "movement" is like polio except the supposed ALS enterovirus is "acute slow motion. " I hope I am not misrepresenting the Ravits papers. Ravits is not affirming the cause but hypothesing why the ALS virus has not been clearly identified like the polio virus.

But let us suppose it is viral. What can be done and in the posts on the Earth Clinic web site some anti viral methods are used. I'll propose consideration of another method for killing the supposed virus.

To be clear, Dr Ravits does not discuss cure at all. He only discussed causation. So what follows is only my own suggestion for possible experimentation:

I believe, and have much anacdotal evidence to support my belief, that colloidal silver will kill virus and bacterial infection... Fungal infection also. But if I were to take the solution of water, containing atoms of silver, and add DMSO, a carrier, solvent and penetrant and saturate the combination of the colloidal silver with 5% DMSO into a white cloth or white paper towel and apply the very wet cloth/paper towel to the spine and let the cloth soak slowly into the skin... Then in theory the silver will be taken into the spine. If there is a virus there the CS will kill it.

I would suggest that the CS be orally consumed as well... A tablespoon daily. That amount for a few months. And if I found a diminishing of my symptoms I would continue the protocol for at least a year. The "poultice" application should be continued for at least two months, every day for two weeks and then every other day for six weeks. If nerves have not been destroyed then one might see an improvement within a month. To help the cells repair, Calcium AEP should be considered also. Dr Robert Adkins in his book, Vita Nutrients gave Ca AEP by IV to his MS patients as the most important part of the MS protocol achieving wonderful results at his Long Island clinic.

I would apply the CS/DMSO solution to the entire spine... base of skull to tail bone.


Medication Combinations Can Mimic ALS Symptoms
Posted by Syed (Ontario, Canada) on 10/04/2015
★★★★★

ALS -I lost my right hand movements ( called motor skills). I was taking 40mg of Lipitor for quite some time.


Medication Combinations Can Mimic ALS Symptoms
Posted by Linda (Carmarthenshire.) on 09/22/2016

My Mother was a strong woman with hardly any sugar or junk. As soon as the G.P. 's put her on Statins, her health went down hill . At age 69, she died when her Mother and Father both lived well and happy into their 80's and 90's ..... my Mum was on both Statins and Avandia and other drugs, which she probably never needed because she never needed Statins in the first place .


Melatonin
Posted by Sherry (TN) on 10/20/2020

Hello, I am gratefull for all the help I have received on this site!!

My Mother was recently diagnosed with ALS. So far she's only lost some use of arms. Now I am needing help in knowing how to proceed. I ordered supplements to begin Ted's basic ALS treatment-Lysine, threonine, glutamine, zinc, lithium carbonate, beta glucan, vitamin C, ascorbic acid, and BCAA. She will also go on sugar and gluten free diet.

I have a list of medications and supplements and am needing to know if any should be discontinued or anything added:

Riluzole 50mg 2x a day

Olmesarton-HCTZ 20/3.75

Progesterone 200mg

Synbiotic 365, Aleve gel, Womans Alive Vitamin, Vit. C, Elderberry, Omega Q10, Glucosamin Condroitin1500/1200, Red yeast rice, Lutein, low dose aspirin, Melatonin 10 mg, and Unisom Sleep

All help appreciated and I would love to hear Ted's recomendations!

Multiple Supplements
Posted by B.B. (Dallas, TX ) on 03/13/2019
★★★☆☆

Hello Ted, I am a 53 y/o woman that was diagnosed with ALS in 2018. I have lost use of my hands and have muscle atrophy in both hands and shoulders. My gate is now extremely shuffled. I also suffer from muscular twitching upper and lower body. My speech is slurred and I also have dysphagia when attempting to consume meals. My labs have revealed that my metal toxicity in my blood is extremely high. I have tried an abundant of supplements however nothing appears to be helping my symptoms. Is there anything that you can recommend.

Ted's Remedies
Posted by John (White Plains, NY) on 01/14/2024

Hello,

I was wondering if any commenters on this thread have any updated news on use of treatments Ted advised or other treatments.

Thank you

John


Ted's Remedies
Posted by Nathan (Columbia, Pennsylvania ) on 02/02/2024

Can anyone please help me understand Teds protocol for ALS. I just joined and signed up here and I'm so confused on the protocol and how to do each specific thing correctly. Am I able to talk to Ted somehow so I can fully understand please need dire help.


Ted's Remedies
Posted by Jenny (Saint Clair, MO) on 02/02/2024

Nathan, Ted is no longer here on the earth.


Ted's Remedies
Posted by Nathan (Columbia, Pennsylvania ) on 02/03/2024

Sorry to hear that. May he Rest In Peace. Is there anyway you can walk me through his protocol for ALS? I'm too confused by what all I've read on here about this. I need help on how to do things correctly.


Dietary Changes, Supplements
Posted by Gigi (California) on 03/07/2017

How is your father doing? When was he diagnosed with Bulbar onset? Did you do the hair toxicology test when he was first diagnosed? I'm caring for someone who was just diagnosed.


Dietary Changes, Supplements
Posted by roro2527 (Paris) on 01/01/2022

Hi K,

Thank you for your story which gives me a hope, cause doctors only prescribe Riluzole knowing that it doesn't cure the disease but hurting badly the liver.

I hope you feel better now.


Dietary Changes, Supplements
Posted by Karen (Florida ) on 03/07/2017

Hello. I was just checking in your dad's progress and hopeful success?? I have a dear friend recently diagnosed with same type of onset


Magnesium Oil, Coconut Oil
Posted by Brian Lind (Florida ) on 03/22/2024

I have ALS, what's this about?


Consider Antiviral Remedies
Posted by Musibul (Maharashtra) on 08/25/2015

Hi Dave,

You mention you have apply white cloth as a poultice to spinal column. Please tell me the quantity for one time and you mention drink cs daily it means Colloidal Silver ?

Can you little elaborate how to apply?


Consider Antiviral Remedies
Posted by Dave (Fountaiin Inn, Sc) on 08/25/2015

Hello Musibul,

And you also asked how to apply....a poultice is just the wet cloth laid onto the skin and let absorb for twenty minutes.

Use about two cups with a light white cloth for poultices. Enough to have the cloth very wet without being too drippy.


Ted's Remedies
Posted by Tonya (San Diego, Ca) on 07/18/2014

Hi Angela -- Can you tell me what worked and didn't work with the treatment for your "new miracle man" father? :) My mother has been recently diagnosed with ALS. Thanks in advance!


Ted's Remedies
Posted by Sara (Wisconsin) on 06/06/2015

Hi Angela,

Your posting gives me hope for my mom who has ALS. I have my mom on the Deanna Protocol and she is also on Rilutek. She is getting so much weaker in her arms. She has drop foot and has a hard time getting up. She also coughs alot and has trouble projecting her voice. Could you please tell me what regime worked for your dad? This site has useful information but it seems Ted has recommended slightly different doseages and supplements for everyone with ALS. So Ted if you read this, I would appreciate if you would be able to otherwise recommend a regime for my mom, my best friend.

Thank you very much, Sara

EC: So sorry, Ted had a stroke in 2015 and has not been able to correspond since then.


Ted's Remedies
Posted by Marie (Ireland) on 05/25/2016

Hi Angela I hope you are well. How is your father? I hope he continues to improve. You are obviously an amazing daughter. My brother in law was diagnosed with MND two years ago and even though he is holding his own compared to some people with this condition he is now in a wheel chair. He gets bad muscle twitching when he eats high sugar foods. Just wondering can you give any advice? Cheers Marie



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