Eosinophilic Esophagitis Treatment: Alternative Health

I suffered with Acid Reflux, hiatal hernia, gastritis, etc. for years, which in the past year turned into esophagatis. Many years of prilosec, nexium, prevacid, etc. Apple cider vinegar did nothing for me. I read your post on banana's and tried them, after dinner, and I have not felt so good in years. I have tried numerous natural remedies, including plantains, and cabbage juicing. The bananas are a great help, although I'm not saying they are the "cure" , they have definitely helped a lot. To the point where I can have a sip of coffee, in between green tea, kefir and yogurt. Daily doses of plain yogurt, not the sugared up stuff, have helped alot also. I could go on, but will cease for now.

I was just recently diagnosed with this problem and I am allergic to bananas...is there anything else that will bring relief?

I was cured of Fibromyalgia by alternative MD. Liver function test showed phase 1 to be extremely functional and phase 2 to be almost completely dysfunctional. I was put on a diet replacement to heal liver function and the FM went away! All the chemicals released by phase 1 were not being carried out of my system by phase 2 so it got stored in interstitial sites between cells! Thus caused chronic nerve aggravation and pain. I used far infrared sauna to help eliminate the poisons in those miriad microscopic sties. It took a year to recover completelty. My liver function had been compromised from being under anesthesia for several hours of an operation.

Hi Jean, if you could please share more about the protocol you followed to overcome the Fibromyalgia that would be very helpful to others. Can you please share the name of the Alternative MD as well? Thank you!

Stinging nettle helps with allergies. Calamus root helps with the digestive system. Swedish bitter is also helping with the digestion. Calendula, Sage are anti-inflammatory. Manuka honey and garlic are natural antibiotics.

@Renna: First try and get some kill on the infection by sipping Colloidal Silver water. A few hrs away from C.S. use Zinc Lozenges, and before retiring place a 10,000 iu Vit-A softgel in mouth and burst between teeth; Swallow gently so as to let the vit-a coat the lining of the esophagus.

For esophagus health in general, explore the possibility of gallstones and Primary Bilary Cirrhosis. Herbs to use immediately to improve digestion are Fennel and Ginger.

Hello Renna, I second Timh from Ky, Usa recommendations. That is the best approach. Colloidal silver to kill pathogens, zinc to increase immunity, vitamin A to heal. In addition, you can take 1 tsp of Licorice Root Powder mixed with 1 tsp unpasteurized honey. Licorice root powder increases the juices secretion of mucus membranes from the mouth through the rectum. Good Health.

My husband has eosinophilic gastroenteritis which is much less studied that EoE, however we are using budesonide. He is on an elimination diet but keeps having reactions without adding foods. We are trying some essential oils now. Research essential oils for allergic reactions and inflammation. I don't know how you would the budesonide or oils for esophagitis but it may be worth looking into. The oils we are currently taking by mouth are lemon, peppermint, lavender, frankinsense, and thieves. He is also taking a probiotic and Ninxia Red.

Has he tried taking Claritin? I was very sick two years ago with many of the same things, and to my surprise, a Dr suggested taking Claritin every day for a few months. I never heard that Claritin could help with allergies to food, but it made all the difference! Also stay away from acid-producing foods, tomatoes, caffeine, onions, garlic, gluten (inflammatory) Eat MALANGA (like a potatoe- but very digestive) boil as you would prepare mash potatoes, save some of the water boiled to soften the whip, and make sure it has salt. Very creamy and healing! Drink Bone broth, also very good for healing the tummy. Papaya too. God bless and bring you back your health.

Renna. Not sure if you will see this since your post is over 3 years old, but I wanted to let you know about the 6-food elimination diet. You can read about it online. It has worked really well for me. I've had no issues for over a year. I eliminated dairy, wheat/gluten, eggs, peanuts and tree nuts, soy, fish and shellfish. So I eat all veggies, fruits, seeds like pumpkin and sunflower, chicken, turkey, beef, pork, etc. Also, I always drink plenty of water AFTER I eat to cleanse my esophagus (since it seems to be a contact allergy and I have other contact allergies like to nickel ). Hope this helps!

I don't mean to be rude, but your husband is doing the exact opposite of what he's doing. He's going to die of the disease if you keep going like that.

Why would he be eating all the foods you can't when you have EOE. You aren't supposed to eat wheat, gluten, nuts or dairy.

Those are the worst foods possible.

they are also the some of the 7 most allergic foods that are known.

he need to be on the 7 food elmination diet and get on steroids B4 he gets esophagus cancer.

Renna, I read online what you said about your husband having EOE.I was also diagnosed with EOE about a yr. ago, and my gastroenterologist wanted me to use an inhaler called Flovent, which I didn't t get because it is expensive and it can cause a yeast infection in your throat and I don't t need that..

I did see online that you can use slippery elm capsules or powder or marshmallow root capsules or powder. I have been using the slippery elm, and I do not drink dairy or eat any dairy products. It said online to avoid wheat, soy dairy, nuts, seeds shellfish or (any fish). I hope this helps in some way and I will pray for your husband, and hope he feels better soon. Please pray for me, I do appreciate it.

I have had a persistent cough for years. Years before that I was diagnosed with leaky gut and then I reduced my Candida problem with Greys formula. I have a degree in human biology and for the cough tried many vitamins and minerals. None helped except a spleen polypeptide product that no longer is made. I did find that Thymuril by integrative therapeutics works too. Spleen or thymus polypeptides are the key. The cough can be very powerful and unrelenting if I do not take the Thymuril. For those who understand embryology the bronchials are getting the referred irritation from my esophagus. Like the gallbladder refers pain to the shoulder. The heart refers pain to the left arm etc. Later I had an endoscopy done to deal with a esophageal ring that had formed. The doctor also diagnosed EE. The only thing that keeps the cough well under control is the Thymuril. Other spleen and thymus extracts do nothing. I do not think it cures but controls so the real problem is with allergies and whatever is still causing that. Perhaps leaky gut is still around. I believe that elimination is fine for quick relief but for some people the list of foods grows and it would be better to find out what is causing the problem so the list can be cut down. I fear that cutting out foods will cause other deficiencies in time.

Hi Khloe, I know I am responding to an old post, but hoping to get a response from you. I also developed many food allergies after taking several doses of antibiotics. My gallbladder and apendix were also removed a few years before developing these allergies. My son was also diagnosed with Eosinophilic Esophagitis and as you can tell we are dealing with many food allergies. He is allergic to milk, eggs, peanuts, tree nuts, seafood. Its been difficult helping him since so many things have these items. Me on the other hand have a horrible corn allergy and at the same time developed allergy to almonds, soy, wheat, carrots. It has been a night mare for the family. Can you tell me what probiotics you took and dosage for zinc, I glutamine. What is NAC? I am usually the guinea pig before I give things to my son. How are you feeling now? Its been 6 years since your post. Your response would be greatly appreciated.

Do you think there is a reason you were more hungry when you were eating foods you were allergic to? I am curious because I have experienced the same thing.

Hi Lavoras.. My son has been diagnosed with EE as well less than a year ago and we are using prevacid and going through alternative route for a while now. We did not see much improvment but still searching for the right option. Can you share your experience with Chinese medicine as we are trying to go that route ourselves. Thank you.

Hi Nydad so sorry for not getting back to you sooner. I fired the chinese doctor he made him worse and all I kept hearing was that he was cured. In fact he became worse vomiting 10-15 times a day. So back on the elimination diet, and did not follow it rigidly. Well today we had the endoscopy and results were not good. So I am going back to the very restictive 6 food elimation diet and he will be reviewed in 6 weeks.

Lavoras,

We are also in Chicago and our daughter was just diagnosed with EE. We would love to speak with you about your experience. Feel free to email us at info(at)carsinpedia.com

thanks

Hi, my son is 7 he has been struggling all his life with stomach problems as a baby he didn't gain weight and he rejected a lot of foods. He has a scope and other tests. Finally a blood test showed this is what he has. The Dr is gonna another scope to do biopsys. My son was tested for allergies and he has several, cinnamon, turkey, carrots, cantalope. Oranges and orange juice really hurt him. I! Trying to find receipts for him. And other medicines. He won't touch the ginger tea at all. I'm starting to eliminate foods. Any suggestions that may bring to his Dr and see what he says. By the way his Dr is not one to just put him on meds. Any websites you may have to help, or any advice. Thank you

Elena: Colostrum 21oz jar is best.

Hello Elena,

Re son with digestive problems:

Test Papaya. Just a quarter teaspoon on end of spoon to start with. Papaya is magic for digestive problems.

Dear Elena,

I am sorry your little one is suffering this way!

The first thing that comes to my mind is slippery elm bark. It is nutritious and healing to the digestive tract. If he can swallow capsules, you can give it to him that way. I mix a teaspoon with some water or mix it in oatmeal and sweeten it. My children think this is awful, though. (But they will admit that it helps. :) )

Activated charcoal is also helpful to the digestive tract. It is anti-inflammatory and will draw out toxins, bacteria, etc. He could try tablets (swallow or chew) or put 1/4 teaspoon in some water and drink it. Do not take within 2 hours of medication. One tablet or 1/4 teaspoon once a day. It will make the stool dark.

Kefir would also be good for healing in his gut.

Some kind of detoxifying bath would be good. You could do epsom salt or baking soda bath a few times a week. (1 cup of either in a warm bath for 20 minutes.)

If he would drink some fresh lemon juice in his water, that may be helpful. (You could add a bit of natural sweetener, also, to make it more palatable.) This would be helpful for the ph of the body. You might even check his ph with ph test strips and see if he is acidic. There is a lot of information on this site about that.

Avacados are nutritious and pretty gentle. Also, extra virgin coconut oil would be good in his diet. Some find bananas helpful. (If he doesn't like bananas, you could put them in a kefir smoothie.)

Is gut flora imbalance a possibility? (from antibiotic use.) Are parasites a possibility?

Please keep us posted.

~Mama to Many~

Hi Elena...I think that your son has candida and possibly other pathogenic infections in his intestinal tract. Esophigitis, stomach problems and allergy symptoms are well known to be associated with candida as the cause. If your son has a white tongue(instead of a healthy pink tongue) this is another positive indication for candida.

To check your son for candida you can also do this simple questionnaire:

Online Candida Questionnaire

Unfortunately, doctor's tests are not very accurate at diagnosing candida imbalance or dominance from just stool or urine tests.

There is an effective child's protocol for candida that Walter Last recommends for getting rid of parasites as well as candida -- here is the link to the protocol:

Walter Last's Child Candida Protocol

Also, I would avoid giving your son any antibiotics whatsoever. Antibiotics will make the candida condition much more virulent and your son's condition will just get worse and spread. See this link.

For more explanations concerning Walter Last's approach on how to get rid of candida/parasites -- see this link.

I have been working with a private autism group of parents and they have been using Walter Last's Protocol(including turpentine) on their children with serious ASD disorders with some remarkable physical and mental improvements. Children with autism are always usually heavily infected with parasites, candida and other associated bacteria. It is the waste toxins from these pathogens -- particularly from candida -- that cause these mental and physical problems.

Hello! Since this thread is several years old I would like to ask for any updates you might all have. My son is 22 months and has had trouble with solids since we introduced them. He rarely eats and when he does he vomits whatever it is up very easily as if he can't get it down. I would love to get him on any supplements but he won't eat or drink much of anything (that isn't breastmilk from the source). They of course want to scope him and I would like to try anything and everything natural before that. Thank you in advance.

Hi Hillary. Have you guys tried only introducing brown rice, sweet potatoes, turkey, you know real bland dairy free, gluten free foods? I have had a host of issues with my stomach and esophagus since medicines made me ill in 2008. I used a bland diet to heal. Then my daughter who was born in 2013, began having lots of digestive issues and we did a massively strict diet and have her on some homeopathy to help clear her viral load and cleanse her system since it is clogged and having reactions. We did brown rice, sweet potatoes, white potatoes, chicken, turkey, asparagus, carrots, papaya/banana/wild blueberry shakes with coconut milk every day, olive oil, sea salt, coconut oil and everything steamed and introduce these and then if they do well, slowly introduce more....she is still gluten dairy, egg, chocolate, etc. free but she is doing sooooo well!! And they wanted to see her up at a city hospital when she first had issues but my husband and I knew right away *we both have GI issues ourselves) to try her diet and reach out to a good naturopath/alternative healthcare practitioner. So much love and healing to your little one. I am currently coping with the amount of stress we just went through for so long. So happy to see her not in pain now and doing better, no blood in stools, etc.

Hi,
Sounds like one of my grandchildren. Come to find out that he was a celiac as was his mother and her dad. All went on a gluten free diet. No one has anymore digestive problems.

I am glad that you are doing so much better. I have found that I am more healthy also by cooking all my on food, bread and not eating any thing made/processed in the store. I do not eat sugar, white flour, white potatoes, no dairy, no animal products. My diet consists of vegetables frozen or fresh cooked, some raw, brown rice, whole flour(nonbromated, non-enriched), chickpea flour, rice flour, flax seed, sea salt, coconut oil, a little olive oil, lots of fruit(not real sweet) Since I am eating healthy I do not take 40 units of insulin every day, maybe 5 units 4 times a week. I do take some vitamins and minerals every day, and I have taken some probiotics for my digestive system. I drink kefir sometimes, and I make my own now. I have made kombucha tea, and have drank some of it also. I feel like a new person now. God is good and full of mercy.

Hi Lavoras,

Can you please let me know how your son is doing with Chinese medicine so far? This is the route we want to take for my son who is 5 years old and was diagnosed 1 year ago.

Hi Nydad:

My son who is 12, was diagnosed with Eoseonophilic gastroenteritis via endoscopy in 2010, which eventually also manifested into esophagitis as well. It began after he was placed on a heavy round of antibiotics last February for an upper respiratory. My guess from what I have learned through research is this: the antibiotics caused an overgrowth of candida, which perforated the intestine walls, and caused small holes through which food and environmental allergens were passing through.

I believe many children diagnosed with EE or EG, probably all have some sort of fungal issue from past antibiotic use or processed foods-you can check this through a spit ph test or simply look at the tongue for a white coating. By March, he had lost 15 pounds, was anemic, vomited everyday, was only able to eat approximately 5 or 6 different types of food, had a constant body pain, and slept for hours throughout the day, his body had become extremely toxic and seemed to be shutting down-this disease was taking over our lives. He missed all of the Spring school semester, so we eventually withdrew him and began home schooling while searching for a doctor with a cure. We spent countless hours and thousands of dollars on different specialists, doctors, naturopaths, and even an acupuncturist to try and understand how to function day to day. I never was told specifically what caused the sudden eosoniphil increase, but I wanted to give you some insight as to what I discovered worked (and what did not work) for us and how my son has improved over the course of a year. (We too were quickly reaching the point of feeding tube and I was desperate to help him get his life back).

Because his food and environmental allergies grew increasingly worse every single day, we guessed each day as to what foods he could and could not eat. The things the others are saying is true, your child probably has leaky gut syndrome-there are many causes besides just antibiotics-the most prevalent being processed/fast food and high sugary foods. I changed my sons diet to whole organic foods-primarily leafy greens which helped tremendously regulate his digestive system-and in moderate amounts allowed *some* dairy because he is a child and this was very difficult to balance to keep him from being stressed. I completely eliminated bread for several weeks and then when I reintroduced it, I used all gluten free products or made the bread at home, being cautious about the ingredients I used. I also added in 1 cup of Kefir a day-this completely eliminated the constipation issue associated with EG. I then began researching drastically on rebuilding the immune system. He started taking the following supplements: Colostrum (3 per day), Vit. D3, Flax seed oil (2 tbls. Mixed with a 1/2 cup of organic cottage cheese), Zinc, potassium, Selenium, Probiotics (over 10 billion per pill) and a whole food liquid. I gave him digestive enzymes during meals.

Over the course of the year, he very very slowly began improving-very slowly. We continued on this routine faithfully over the course of the year - then in about December began experiencing problems again. We visited with an allergist this time to specifically identify his food allergens-in December, skin testing revealed he was allergic to approximately 64 different food and environmental allergies, while a food allergy test from a Naturopath identified his primary food allergies were milk and eggs. We finally decided on a steroid anti inflammatory in January. He received a prednisone injection which significantly helped, and began taking Singular (but not without either causing side effects), as well as began sublingual immunotherapy aka SLIT. The injection in January helped significantly, however if you read up on the side effects of steroids, they are pretty horrific, however I did find a clinical study from the Mayo clinic showing there was an 86% cure rate from a steroid injection for people with EE and EG. We continued on with the Singular which appeared to be hiding symptoms, but not curing-at this point the disease prevented him from swallowing in the morning. The allergist informed me to give him a salty drink or to have him eat a salty food first thing in the morning and it will reduce the swelling-a nifty little trick that works well. The allergist also surprisingly prescribed Vit. D3, fish oil, probiotics, and pomegranate fruit juice along with his SLIT therapy (the same old vitamin supplementation we had already been doing over the past year)-he said if you keep going, you will see a 90% recovery by the end of the year.

I then found earth clinic by just looking for information on how to help him as it seemed we were not doing enough and was not happy that we were back to Rx's again. I discovered the apple cidar vinegar cure and began drinking it myself first. I then incorporated it into my son's diet for two weeks and all of a sudden his allergies and asthma were diminshing. I would not say he is 100% cured, but it is getting better and better each day. I believe it is working because it is killing off the underlying root of the problem-the candida. We continue to take the supplements mentioned above, especially the colostrum and kefir as they both rebuild the intestinal lining and drink the ACV everyday and he is continuing on his immunotherapy drops. For him, I use 1 tsp. of ACV in 12 oz. of spring water with a small amount of honey. We also oil pull with Extra Virgin Coconut Oil in the mornings and have seen improvement from that as well (he has had a skin rash appearing-a common detox reaction as the candida leaves the body-I just rub coconut oil on the skin where the rash shows up until it goes away). Since the oil pulling and ACV, he has no longer had to take any prescriptions-this is the first time all year, and is actually eating what is considered "normal" food again-the bad stuff, but is not having any adverse effects and has even ate a few nuts the past few days without any problems (I normally carry an epi pen for just in case situations). Because of the supplements, probitiotics, and whole food vitamins, he has not been sick in over a year-not even a low fever or sore throat. I believe his immune system is on its way to being rebuilt.

I believe we are finally on our way-it was a very very long road, there were many days of frustration, but I wanted to encourage you to not give up and keep searching-you are on the right track. I also purchased two books that helped me understand the whole body tremendously- one is written by a very popular nutrionist, Doug Kaufman, called the *Fungus Link* which deals with systemic candida and inflammation and the second one is by Gary Huffngale, Ph. D. Entitled *Probiotics Revolution*. Both will help tremendously. I believe what worked for us was a combination of many things-diet change to all organic, heavy vit. , mineral, and probiotic supplements, the immunotherapy along with traditional medicine under an allergy specialist.

I hope this helps and my heart reaches out to you, this is a terrible terrible disease, but I can assure you if we can bounce back from where we were last year-everyone can. Use every resource you have to throw at it, attack the symptoms with scripts until you can find the root cause, then start identifying the nutritional deficiencies, along with any pathogenic organisms that may be lingering around.

Hi Marie from Houston.

So nice to hear that all your hard work is starting to pay off for your son. I am just beginning this journey.What is the type of probiotics and amounts that you have been giving your son? I have read The Probiotic Revolution and noticed that different probiotics help different ailments.

Thanks so much. And please keep us posted on your future success.

Marie from Houston, Tx - I readed what you wrote about your son. I feel the same way. One out of 2 of my drs feel that it could of been the antibiotics. I would love to talk more. Please email me Ngerardi11(at)gmail.com

I have three children with eoe. They have been on Flovent for several yrs. Over the past 9 months they have been on the 6 food elimination diet at their Dr's suggestion. Two of the kids were clear on the last scope and are adding egg back into their diet. My youngest has been on the 6 food elim. Diet and taking flovent. If he is not clear on his next scope Dr. is suggesting ng tube. I need some advice quick. The ng tube for 6 weeks would help determine if his eoe is food driven, but I hesitate to go to that extreme. Our chiropractor had my son take a stool analysis test which showed the following:

4Candida albicans

Commensal/Bacterial Overgrowth Detected:

Klebsiella/Enterobacter/Serratia Group - moderate

Alpha Hemolytic Streptococcus - Moderate

Klebsiella pneumoniae - moderate

Chiropractor is suggesting 3-6 months to get my son's gut working properly instead of the ng tube. I am very confused and would like some advice.

Thanks

I would go with what the chiropractor is saying. Go to youtube and watch Dr. Natasha McBride's videos on the GAP diet. It is all about healing the gut. Also on youtube some good videos by Donna Gates on the Body Ecology diet which is similar. Many people have had great success with both of these protocols.

please email me I have tons of questions thanks meghan blndmelon(at)hotmail.com

I am about to begin the GAPS Protocol from Dr. Campbell-McBride. I suggest you look very seriously into this. The chances are you will find the answer to your problems.

Marie from Houston TX..... I know it's been over 2 years since you've posted about EE/EG issues and because you've been so thorough with your info.... I'm almost embarrassed to even have a question.... But here goes!

My 3 year old grand-son seems to be suffering with EE and again your information is priceless..... but I wanted to know what the immunotherapy drops were?

Also... this is a bit off topic but I wanted to know if you are at all familiar with a wholefood Co-Op in Houston know as (I think) Rawfully Organic.... I follow them and the young lady that runs it Kristina and it seems they are doing wondrous things with fresh organic fruits and veggies..... So please if you have not heard of them.... Check them out!

Please update us if you son is still doing well?

Hi Marie, Houston,

Can you update how is it is going now? How is your son doing? I am in same situation and you can help.. Please...

Thanks

Could you please email me the name and location of your naturopathic doctor? Our son has EoE and treatments are failing. He is currently only able to tolerate EO28 Splash elemental formula. Please help. Thank, Amy

J_stone: I've read that once your gut heals, you can tolerate more stuff you were allergic to. This has happened to me. I've been pretty strict (not too strict tho) with eating mostly natural stuff, and I must say, I can now tolerate many more foods IN MODERATION. If I go overboard, I feel it.

So you can try a natural diet, but you should know it's not a life sentence: it's a healing stage.

When I was allergic to corn, cans all had a corn liner to take the taste of the metal away, I'm not allergic anymore.

J_stone--please be aware that dairy cows could be fed corn in the winter to produce more milk. This would affect the cheese and butter too. Mmsg is right-on with moderation because of what is happening to our food supply. Genetically modified grasses and grains (GMO's) have tainted our food in one way or another.

If food is being engineered to last longer it seems to me the creatures in the food are surviving and when we use anti-bacterial soaps and hand sanitizers we could be killing off the defenses. I JUST DON'T KNOW... But there has to be a reason so many people keep getting sick. The hospitals are no longer safe. People are going in to get fixed and are coming down with worse ailments than they went in with if they don't die. This has been on the news more than once.

Hi J_stone from Indy: I agree with Mmsg from Europe.

In the book, Digestive Wellness (Lipski), they found that one-third of children with eosinophilic esophagitis also had asthma (in fact, EE is being called "asthma of the esophagus"). Allergic reactions to foods, mold, dust and pollen appear to play a big role. Even people on medication need to restrict/eliminate allergy-inducing foods or they won't improve, regardless of what drugs they take.

Here is what they recommend:

• Go on an elimination-provocation diet
• Quercetin: This will diminish, relieve and prevent allergy symptoms and protect esophageal tissue. Quercetin is very effective when combined with grape seed extract or pycnogenol.
• Probiotics: This will balance gut ecology and immune system function.
• Digestive enzymes
• DGL licorice: soothes inflammation and stimulates repair.
• Folic acid: Protects mucous membranes.

Can you work with a naturopathic doctor? That way the ND could tailor any supplements to your child's weight and severity of symptoms.

I would highly recommend borrowing Digestive Wellness from your library (or buy it, but if funds are tight, borrowing is a good option). It has instructions on the elimination diet and the various types and dosages of probiotics. Good luck! Bess

J, sorry for the short reply but short on time, please refer to my post on my son's leaky gut. It has been hard but similar protocol may help your son. Just use the search box or look up under ailments.

Diagnosed with EE and H. Pylori

An endoscopy has diagnosed my 13 year old son with EE and the H. Pylori bacteria. As an infant his pediatrician assured me that his condition was due to the fact that he was a "happy spitter." An upper GI was done when he was 5 however results were negative. At 13 he 5' 8" and weighs 138 lbs but he vomits easily and uses the restroom almost immediately after eating.

His Dr. has recommended an elimination diet (no milk, milk-products, wheat, soy, nuts, fish and eggs), Flovent and Protonix for the EE diagnosis. For the H. Pylori bacteria he will be on antibiotics and Doxycyline for 2-weeks.

Thank you for all the posts because we are just starting on this journey and it is helpful to read what others have gone through. I will definitely look up Dr. McBride's youtube and book along with the Osteopath treatment. I will keep you posted.

Hi, try keeping all grains, seed's and nuts out of his diet, and use slippery elm powder. People have had wonderful results for Eosinophilic Esophagitis using this.

And keep sugar out as well as candida can be the cause of it in some people. Also, mold, fungus, and viruses. As a virus will hide in your system for years go quiet and then repeatedly attack you at different times. And the dysphagia, swallowing problems may be caused by many things, but I had it from medications. Love Andrea C xxxx

Yes, I have been through this for over 3 years. I have switched to gluten and sugar free diet and once a day I drink 1 teaspoon of ACV in a glass of water. I have found a connection with the lymph nodes at the top of my spine and difficulty swallowing. When times are bad it feels like swelling from ear to ear at the bottom of my skull. The ACV has helped this. I am also starting on lymphatic massages. I hope this information helps, it has been a long struggle for me and at last I feel like I have some kind of control.

I am 39 y.o., and also have zero food allergies according to the skin prick test.

I started having daily choking, severe pain, and laryngitis at age 35... which resolved only at age 39 when I went onto an elimination (no alcohol, milk, soy, wheat, egg, nuts, fish, shellfish) diet.

I went from eosinophil count over 100 (eye-popping) to "undetectable" within 2 months. Apparently 5% of EOE sufferers are like me, and don't show allergies on the blood test. If I take 1 sip of alcohol, or 1 bite of sushi & soy sauce, I'm back to severe pain and choking within 12 hours later. Swallowed budesonide really tames the EOE down again... nothing else including fluticasone seems to even touch it.

Hope this helps.

Same exact symptoms as him and same treatment for last several years. Need annual esophageal dilations to widen passageway and ease eating. Now looking to utilize more homeopathic remedy and lessen reliance on meds.

Mala, My five year old son was diagnosed with Eosinophilic Esophagitis two years ago. He also has a mountain of allergies. I had to take him off of the steroids a year ago due to severe behavior issues. Can you please tell me what kind of ginger and turmeric pills you gave your son?

Hi Margaret,

I got them from online at Puritan Pride. I have him on 800mg of turmeric and 550 mg ginger once a day.

Mala, My cousin's 2 yr old son has a very severe case of Eosinophilic Esophagitis. Neither acid reflux nor diet nor steroids is working. The boy is in the hospital every other week. Drs are suggesting removing most of his esophagus!! I am familiar with natural medicine but he is not. How did you manage (timeline, pace, etc) the transition from western to natural medicine?

Dear Sarah,

I am not Mala. Hopefully she will see this post and be able to share advice with you.

I am assuming you have read over the posts on this website about EE. I thought Ed, Timh, and Mt all had good ideas. We have used nettles and turmeric for small children with good success.

I don't think I have seen on the EE page anything about kefir, but I would encourage that if possible. Milk kefir is really amazing and healing. If dairy is not tolerated, there is always coconut milk kefir or water kefir.

I am hopeful that your cousin will be able to find a solution for her child. Having to remove the esophagus would be absolutely dreadful.

Please keep us posted.

~Mama to Many~

Oops - sorry about that! I did read those. I also forwarded the blog to my cousin so he can familiarize himself with naturopathic medicine and hear/see what people who are using it to contend with EE are experiencing and suggesting.

Simultaneously, I reached out to an ayurvedic practitioner, who suggested contacting KH Khalsa, a master healer in naturopath modalities (in either Oregon or Washington state) for treatment since the case is so severe. Khalsa does on location and also tele-treatment. He has many years experience and credentials are strong. Anyone familiar?

How did you get your 18 month old son to take ginger & turmeric pills my 20 month old son can't swallow pills. What kind of dosage did you give your 18 month old? Thanks.

Dear Jen,

I have given toddlers turmeric without giving them capsules. If I need to get a little one to take turmeric, I mix it with some honey (not for children under a year), yogurt, or apple sauce. I don't mix the dose into a large amount of anything in case they don't like it. If it doesn't taste the best, at least it is over with in one spoonful and then they can chase it with something else. You may find it works differently for your child and that is fine.

A capsule of something is about 1/5 of a teaspoon. For my toddlers I would give 1/16th teaspoon each of ginger and turmeric mixed with something, yogurt or whatever, for a dose. If that didn't accomplish what I wanted, I would try 1/8 teaspoon of each as a dose.

With turmeric, always make sure child stays hydrated and is still having normal bowel movements. Some find it to be constipating.

~Mama to Many~

Do you think it would help if I applied it topically?

My daughter is 17 and had Eosinophilic Esophogitis. She was diagnosed at 1.5 yrs. She has had a Mickey g-tube since 1.5 rs old. She's also been on canned medical food for yrs. I recently started blending her fresh foods for her via g-tube. I'm using a homemade vegetable broth that consists of carrots, celery, onion, garlic & ginger. I use a crock pot for about 7 hrs.

I have also looked into Ayurveda. There are 3 spices that they recommend for dietary issues. There are cumin, coriander, fennel, cardamom & ginger. I added 1/4 tsp of each spice, except for ginger which I used fresh. Once the broth is done I use it as a base for her homemade smoothie supplements. In those I use raw & unfiltered honey, hemp powder, ground quinoa, ground flaxseed, ground lentils, super greens powder & hemp milk. She seems to be doing very well but we are due for another upper endoscopy soon. We'll see!

I have a 5 year old daughter that is looking at being diagnosed with eosinophilic esophogitis. They are wanting to "try" PPI's and another endoscopy to officially diagnose her, but I am trying to stay away from that. Based on her last endoscopy her doctor is willing to try Budesonide to try and bring her some relief, but I of course would prefer to avoid that if possible too. I would love to hear any update on how things have continued for other kids after trying alternatives to the medications!

5 year old with EE and multiple allergies. Diagnosed at 18 months. We do steroids for 4-6 months and then stop it for next 18 months, and start again for few months as inflammation slowly comes back. This way we try to minimize steroids intake. We do turmeric honey as well, but not sure if it is actually working or not. Turmeric for sure not fully fixing it as inflammation comes back. But possibly delaying the comeback, as Endoscopy images after 18 months of no steroids dont look bad, but EE count is +ve, needing steroids again for few months. This way I don't blindly rely on natural stuff and also don't blindly give him steroids. Just balancing act, I guess.

Can you tell me what pills exactly you used? Searching for alternatives for my 4 year old.

Barbara Our daughter had a lifetime of tests, medications, you name it we tried it.

We contacted Tony Pantellaresco on youtube as an effort to solve her undiagnosed unresolved health problems.

He told her to blend every bit of food she ate. We used a 20 dollar oster blender. To help it work we added bone broth or mct oil or butter or coconut milk.

She made our version of bulletproof coffee. 1 cup of coffee in a blender 1 tsp mct oil a heaping teaspoon of kerrygold 1 scoop of collagen. Blend 10 to 15 seconds. Drink

All the different meds and supplements never did a thing. This worked and she went to work for the first time in 5 years.

She can now be normal. You might find this to be the answer to the mystery. Simple and safe. Janet

I have been suffering with eosinophilic esophogitis for over 30 years now. I was originally diagnosed with a shotzki's ring, then acid reflux, and now “ee”. After years of struggle and well over 20 throat dialations a doctor finally recommended I go get tested for food allergies. After I did, I was amazed by how much I'm actually allergic to! The list is long but the biggest problem foods for me are the following: Soy, Beef, peanuts, eggs, almonds, lobster, yeast, etc. All of these foods I have been eating for years with no “visible” symptoms.... it wasn't until I stopped eating all these allergens that I noticed a change in my ability to eat. The problem is that these foods would very slowly affect my swallowing. For years I blamed chicken, French fries, and other foods for my dysphasia but then later realized that chicken wasn't he problem it was the breading on the chicken. French fries weren't the problem either but the oils it was cooked in.

Out is all the foods I'm allergic to SOY has to be the worst. It is in absolutely Everything! It's in ice cream, chocolate, crackers, oils for bread at sandwich fast food places, the entire menu at steak-n-shake, almost all gum, etc. This poison has no real nutritional value and is used as a binding agent and/or filler for many products. You must read the ingredients in Everything!

So I hope this helps somebody out there that is struggling with the same problems I have experienced. I'm hoping to avoid ever having another throat dialation by simply avoid the problem foods. I used to drink “ensures” and other protein drinks to supplement my poor ability to eat only to find out years later that the ensures contain soy and other ingredients that were part of the problem.

By the way, if you love chocolate and can't find any that doesn't contain soy lecithin, Kroger sells a brand called “Green & Blacks” dark chocolate that is soy free!

Also, a teaspoon of baking soda and a glass of water works better than the antacid medication they prescribe you and is better for you. (Although I'm not a doctor just a guy of whom has had real-life experiences with these problems for years and am winning the battle! )

Good luck to all!

Did he have an infection right before he started having these symptoms? If so, then the infection may have rested in his spleen or pancreas or his liver, causing an "over acid" condition throughout his body that manifests when he eats foods, or breathes in pollen, etc.. Is his stomach refusing to digest food?

He needs to clean out his stomach with distilled water, and Elm water.

Elm water is made by taking a pinch of powdered Elm and putting it into distilled water, with an ice cube in it -let it steep for 3 minutes and then drink it. This will help his acidity. Saffron tea also will coat the stomach - take yellow or American saffron - the non-expensive kind - and boil water - to 16oz of water put 3tsp of saffron - let that steep for 30-45 minutes and have him take this before every meal. Milk of Magnesia - one tsp after every meal would be great also. This is to cleanse and quiet the stomach. To cleanse his colon - there is nothing better than Fletcher's Castoria - look around and find the cheapest place. And for your son, I would suggest using your own intuition. From 1 tsp a day - to the whole bottle taking 1/2 tsp every half hour! This will come from within. I would start him on Castor Oil packs also, 4 days on and 3 days off, every week, until he feels better. After that just do them for maintenance.

When he sees his Chiropractor - ask him about concentrating on his C3, D1 - D9, D11 & D12, Sacral and Coccyx, also ask your chiropractor if there is anything pressing on his Facial cranial nerve. If so, then do what your Chiropractor says to do about that. In the evenings it would be great to massage his area with a mixture of oils - Olive oil (2 ounces), Lanolin (1/2 ounce), Pine Needle Oil (1/2 ounce) - all along his spine - especially D1-D9. Also massage his abdomen area with pure olive oil - very gently and rub in a clock wise motion to get his stomach and intestines moving and to stimulate his lacteal ducts. Let me know if you decide to try this, what your results are!