The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Osteopath
Posted by Elvira (Barrie, Canada) on 09/08/2011
I MUST recommend to everyone to visit an OSTEOPATH instead of the chiropractor. Osteopath works with the entire body: bones, muscles as well as internal organs. I am not saying that chiropractors are bad, but this is much, much better. It did miracles for me and practicaly everybody that I recommended it too.
Riboflavin, Folic Acid
Posted by Greg Lagsdin (San Mateo, Ca 94402) on 04/19/2011
MCH 24.7, RDW 18, NEUTROPHIL 45, EOSINOPHIL 18 AND ABS EOSINOPHIL 1. 2. The traditonal metheods of treating Eosinophilic esophagitis with pills and a proton pump inhibitor never worked for me I still had swalloing issues if eosinophilia is the result of defective protein marker in the body. Wouldnt it be necessary to jump start the protein system? Riboflavin is the one vitamin thats the building block for all others in the human body. Taking 100 mg of riboflavin daily ive stabalized the erratic bloodwork a leading sign of active eosinophilia. Then adding 400 to 800 mcg of folic acid to the mix to help the rna in the body. Could you have a cure for eosinophilia? GL
Riboflavin, Folic Acid
Posted by Ben (Auckland, New Zealand) on 11/06/2011
Hi Greg, and how is this 'Riboflavin, folic acid' remedy working out for you? I'm the same - proton pump inhibitors don't work for me, and I'm keen to try anything to get rid of my ee.
Riboflavin, Folic Acid
Posted by Barbara (Colorado Springs, Co) on 12/01/2011
I am also wondering how the riboflavin is working out? We want to avoid medications for my son and are curious if this is still working for you. Thanks
NAET
Posted by Sherri In Bc (Surrey, Bc, Canada) on 12/09/2010
Our son is 14 1/2 years old and has been dealing with EE for over 4 years. The only thing that has completely stopped the reflux was the elimination diet. He could only eat 9 or 10 food items but at least he could go off his 40mg of Nexium. Unfortunately it wasn't enough nutrient to get him through puberty and baseball so we started the meds again and let him eat what he wants. Currently we have been working with a naturopath who said she could cure him. She actually said those words. I was not happy but it gave our son hope. After the Vega Testing she put him on a strict diet to bring down his candida numbers. After 4.5 weeks we retested. His number for candida went from 9 to 4 and it showed that we could reintroduce many of the foods that he had been denying himself. Unfortunately, if he missed his Nexium pill, even for a couple of hours in the morning, he had reflux. The goal was to get him off the pills and if the beginning stages of the diet didn't help what was the point of reintroducing foods?
She has also sent us to a 'chiropractor' that does visceral manipulation. She 'listen's' to my son's stomach (hands on stomach, eyes closed) and does cranial adjustments to put him 'back in sync'. She has recommended that we see a Constitutional Therapist. At this point we've spent several hundreds, if not a few thousand, searching for a cure for EE. I'm not interested in putting out more money because someone thinks my son has a 'sulphuric' constitution and therefore needs some Essence of Sulphur. So.... He has chosen to stop the diet, go back on the Nexium and live his life. Hopefully the Nexium will continue to work and he will continue to eat most of what he wants. (He cannot eat potatoes! )
We are discouraged and I was hoping that this discussion might be able to direct us to a legitimate 'natural' cure for EE. Sherri
NAET
Posted by Brooke (Montgomery, Tx, Usa) on 12/10/2010
Did he have an infection right before he started having these symptoms? If so, then the infection may have rested in his spleen or pancreas or his liver, causing an "over acid" condition throughout his body that manifests when he eats foods, or breathes in pollen, etc.. Is his stomach refusing to digest food?
He needs to clean out his stomach with distilled water, and Elm water.
Elm water is made by taking a pinch of powdered Elm and putting it into distilled water, with an ice cube in it -let it steep for 3 minutes and then drink it. This will help his acidity. Saffron tea also will coat the stomach - take yellow or American saffron - the non-expensive kind - and boil water - to 16oz of water put 3tsp of saffron - let that steep for 30-45 minutes and have him take this before every meal. Milk of Magnesia - one tsp after every meal would be great also. This is to cleanse and quiet the stomach. To cleanse his colon - there is nothing better than Fletcher's Castoria - look around and find the cheapest place. And for your son, I would suggest using your own intuition. From 1 tsp a day - to the whole bottle taking 1/2 tsp every half hour! This will come from within. I would start him on Castor Oil packs also, 4 days on and 3 days off, every week, until he feels better. After that just do them for maintenance.
When he sees his Chiropractor - ask him about concentrating on his C3, D1 - D9, D11 & D12, Sacral and Coccyx, also ask your chiropractor if there is anything pressing on his Facial cranial nerve. If so, then do what your Chiropractor says to do about that. In the evenings it would be great to massage his area with a mixture of oils - Olive oil (2 ounces), Lanolin (1/2 ounce), Pine Needle Oil (1/2 ounce) - all along his spine - especially D1-D9. Also massage his abdomen area with pure olive oil - very gently and rub in a clock wise motion to get his stomach and intestines moving and to stimulate his lacteal ducts. Let me know if you decide to try this, what your results are!
Elimination Diet
Posted by Suzanne (Maryland) on 06/06/2016
Do you think there is a reason you were more hungry when you were eating foods you were allergic to? I am curious because I have experienced the same thing.
Elimination Diet
Posted by Nydad (Deer Park, New York) on 12/10/2010
Hi Lavoras.. My son has been diagnosed with EE as well less than a year ago and we are using prevacid and going through alternative route for a while now. We did not see much improvment but still searching for the right option. Can you share your experience with Chinese medicine as we are trying to go that route ourselves. Thank you.
Elimination Diet
Posted by Lavoras (Chicago, Il) on 06/10/2011
Hi Nydad so sorry for not getting back to you sooner. I fired the chinese doctor he made him worse and all I kept hearing was that he was cured. In fact he became worse vomiting 10-15 times a day. So back on the elimination diet, and did not follow it rigidly. Well today we had the endoscopy and results were not good. So I am going back to the very restictive 6 food elimation diet and he will be reviewed in 6 weeks.
Elimination Diet
Posted by Dean (Chicago, Il, Us) on 12/14/2011
Lavoras,
We are also in Chicago and our daughter was just diagnosed with EE. We would love to speak with you about your experience. Feel free to email us at info(at)carsinpedia.com
thanks
Elimination Diet
Posted by Elena (Pa) on 03/29/2014
Hi, my son is 7 he has been struggling all his life with stomach problems as a baby he didn't gain weight and he rejected a lot of foods. He has a scope and other tests. Finally a blood test showed this is what he has. The Dr is gonna another scope to do biopsys. My son was tested for allergies and he has several, cinnamon, turkey, carrots, cantalope. Oranges and orange juice really hurt him. I! Trying to find receipts for him. And other medicines. He won't touch the ginger tea at all. I'm starting to eliminate foods. Any suggestions that may bring to his Dr and see what he says. By the way his Dr is not one to just put him on meds. Any websites you may have to help, or any advice. Thank you
Elimination Diet
Posted by Mike62 (Denver, CO) on 03/29/2014
Elena: Colostrum 21oz jar is best.
Elimination Diet
Posted by Dave (Fountain Inn, Sc) on 03/29/2014
Hello Elena,
Re son with digestive problems:
Test Papaya. Just a quarter teaspoon on end of spoon to start with. Papaya is magic for digestive problems.
Elimination Diet
Posted by Mama To Many (Tennessee, Usa) on 03/29/2014
Dear Elena,
I am sorry your little one is suffering this way!
The first thing that comes to my mind is slippery elm bark. It is nutritious and healing to the digestive tract. If he can swallow capsules, you can give it to him that way. I mix a teaspoon with some water or mix it in oatmeal and sweeten it. My children think this is awful, though. (But they will admit that it helps. :) )
Activated charcoal is also helpful to the digestive tract. It is anti-inflammatory and will draw out toxins, bacteria, etc. He could try tablets (swallow or chew) or put 1/4 teaspoon in some water and drink it. Do not take within 2 hours of medication. One tablet or 1/4 teaspoon once a day. It will make the stool dark.
Kefir would also be good for healing in his gut.
Some kind of detoxifying bath would be good. You could do epsom salt or baking soda bath a few times a week. (1 cup of either in a warm bath for 20 minutes.)
If he would drink some fresh lemon juice in his water, that may be helpful. (You could add a bit of natural sweetener, also, to make it more palatable.) This would be helpful for the ph of the body. You might even check his ph with ph test strips and see if he is acidic. There is a lot of information on this site about that.
Avacados are nutritious and pretty gentle. Also, extra virgin coconut oil would be good in his diet. Some find bananas helpful. (If he doesn't like bananas, you could put them in a kefir smoothie.)
Is gut flora imbalance a possibility? (from antibiotic use.) Are parasites a possibility?
Please keep us posted.
~Mama to Many~
Elimination Diet
Posted by Hillary (Az) on 04/07/2017
Hello! Since this thread is several years old I would like to ask for any updates you might all have. My son is 22 months and has had trouble with solids since we introduced them. He rarely eats and when he does he vomits whatever it is up very easily as if he can't get it down. I would love to get him on any supplements but he won't eat or drink much of anything (that isn't breastmilk from the source). They of course want to scope him and I would like to try anything and everything natural before that. Thank you in advance.
Elimination Diet
Posted by Nydad (Deer Park, New York) on 01/29/2011
Hi Lavoras,
Can you please let me know how your son is doing with Chinese medicine so far? This is the route we want to take for my son who is 5 years old and was diagnosed 1 year ago.
Elimination Diet
Posted by Noelle (Waterford, Mi) on 09/16/2011
Hi Marie from Houston.
So nice to hear that all your hard work is starting to pay off for your son. I am just beginning this journey.What is the type of probiotics and amounts that you have been giving your son? I have read The Probiotic Revolution and noticed that different probiotics help different ailments.
Thanks so much. And please keep us posted on your future success.
Elimination Diet
Posted by Nicole (Staten Island, Ny) on 09/21/2011
Marie from Houston, Tx - I readed what you wrote about your son. I feel the same way. One out of 2 of my drs feel that it could of been the antibiotics. I would love to talk more. Please email me
Ngerardi11(at)gmail.com
Elimination Diet
Posted by Meg (Cedar Rapids, Iowa) on 08/16/2012
★★★★★
please email me I have tons of questions thanks meghan blndmelon(at)hotmail.com
Elimination Diet
Posted by Rosy (Anglesey, Uk) on 01/07/2013
I am about to begin the GAPS Protocol from Dr. Campbell-McBride. I suggest you look very seriously into this. The chances are you will find the answer to your problems.
Elimination Diet
Posted by Juanita (Orlando, Fl) on 06/02/2013
Marie from Houston TX..... I know it's been over 2 years since you've posted about EE/EG issues and because you've been so thorough with your info.... I'm almost embarrassed to even have a question.... But here goes!
My 3 year old grand-son seems to be suffering with EE and again your information is priceless..... but I wanted to know what the immunotherapy drops were?
Also... this is a bit off topic but I wanted to know if you are at all familiar with a wholefood Co-Op in Houston know as (I think) Rawfully Organic.... I follow them and the young lady that runs it Kristina and it seems they are doing wondrous things with fresh organic fruits and veggies..... So please if you have not heard of them.... Check them out!
Elimination Diet
Posted by Laura (Virginia) on 05/22/2014
Please update us if you son is still doing well?
Elimination Diet
Posted by Parry (Austin, Texas) on 12/19/2015
Hi Marie, Houston,
Can you update how is it is going now? How is your son doing? I am in same situation and you can help.. Please...
Thanks
Elimination Diet
Posted by Amy (Geneseo, Illinois) on 04/24/2017
Could you please email me the name and location of your naturopathic doctor? Our son has EoE and treatments are failing. He is currently only able to tolerate EO28 Splash elemental formula. Please help. Thank, Amy
NAET
Posted by Krissi M (Washington, Pa) on 05/21/2010
My son's been diagnosed with this condition after about a year of throwing up and gagging. He does appear to have acid reflux because I observe him closely right before an "episode". We still have no idea what causes it in him, aside from the reflux. They've put him on Pulmicort which is a steriod he swallows. I sure do not like this and want something natural as well. Unfortunately, the common cures for acid reflux are things like cayenne pepper and ACV, and he's not quite old enough to take capsules. I'm afraid also that the course of treatment makes one worse before making them better. My son is three so I feel I cannot do this. Hoping someone else has found something.
NAET
Posted by T (Maryland, Usa) on 05/22/2010
Hi Krissi, Sorry to hear your little one is going through all that. Has he been tested for food sensitivities? Have you tried an elimination diet?
Reading here:
http://allergies.about.com/od/foodallergies/a/ee.htm
...tells me:
"How is EE Diagnosed?
The diagnosis of EE is generally made by performing a biopsy of the esophagus, with evidence of eosinophils infiltrating the esophageal tissue. A biopsy is performed via endoscopy (a camera inserted into the esophagus), usually by a gastroenterologist. There are many other diseases that can cause eosinophils in the tissue of the esophagus, including gastroesopheal reflux disease (GERD), parasitic infections, fungal infections, inflammatory bowel disease, certain cancers, recurrent vomiting, and others. These diseases need to be ruled out before EE can be diagnosed."
Did he have that biopsy done? Was he tested for the things noted above?
NAET
Posted by Anelec (Indianapolis, In) on 08/17/2010
Hi, I have a 1.5 year old son who has been struggling with food allergies, vomiting, etc. for the last year. We went to the allergy specialist today and he is pretty certain he has EE. I just wanted to make a note to Krissi above. Read the book Guts and Psychology Syndrome by Natasha Campbell-McBride. My son was developing more and more allergies to food. Basically anything he ate on a regular basis he would develop an allergy to it and start throwing it up every time I tried to give it to him. We were down to about literally 3-4 foods he could eat and I knew it was only a matter of time before he would start reacting to those foods also. Then I found this book and it has been such a blessing to us! We have been following the intro diet (find it on her website) and added the suggested supplements and have seen great progress. His allergies are still very prevalent but so far he has not thrown up in just over a month and I've been able to add some more foods back into his diet. I've read a lot of books and articles on allergies, candida, leaky gut, etc. over the last year and Dr. McBrides has been the most informational and helpful. I do recommend an allergy screening to help you to know what foods to avoid and that could be causing the inflammation. We also tried the NAET route with someone who I felt was a very gifted and qualified practitioner. We did the treatments for about 7 months. However NAET will not take care of the leaky gut and in my son's case he was developing new allergies as we treated the previous ones and then would be okay for a while with a food he was treated for and then start reacting to it all over again. The whole focus of the GAPS diet is healing of the digestive system. It has been the only thing that has helped us in the last year. Also to Kloe above, what were you able to do about your chemical sensitivities? I want to learn more about this as my son also has has MCS. Thanks for all the advice and info!
NAET
Posted by Jennifer (Chicago, Il) on 05/15/2015
Hi Kacy, Just wondering if you had any luck in searching how to heal EoE with essential oils. I've been looking into it and haven't found much.
Thanks! Jen
Bananas
Posted by Carla (Ut) on 04/29/2017
I was just recently diagnosed with this problem and I am allergic to bananas...is there anything else that will bring relief?
Bananas
Posted by beverly (Texas) on 08/27/2022
try eating celery
Dietary Changes, Supplements
Posted by Fm (Crystal Lake, Il) on 12/14/2011
I have had a persistent cough for years. Years before that I was diagnosed with leaky gut and then I reduced my Candida problem with Greys formula. I have a degree in human biology and for the cough tried many vitamins and minerals. None helped except a spleen polypeptide product that no longer is made. I did find that Thymuril by integrative therapeutics works too. Spleen or thymus polypeptides are the key. The cough can be very powerful and unrelenting if I do not take the Thymuril. For those who understand embryology the bronchials are getting the referred irritation from my esophagus. Like the gallbladder refers pain to the shoulder. The heart refers pain to the left arm etc. Later I had an endoscopy done to deal with a esophageal ring that had formed. The doctor also diagnosed EE. The only thing that keeps the cough well under control is the Thymuril. Other spleen and thymus extracts do nothing. I do not think it cures but controls so the real problem is with allergies and whatever is still causing that. Perhaps leaky gut is still around. I believe that elimination is fine for quick relief but for some people the list of foods grows and it would be better to find out what is causing the problem so the list can be cut down. I fear that cutting out foods will cause other deficiencies in time.
NAET
Posted by Tara (Liverpool Ny) on 06/12/2014
Wow, reading your post is so encouraging! My daughter is 6 and was dx with EE about 10months ago, she is on the top 6 elimination diet. I have found she is deff allergic to soy. I have been researching the GAP diet in hopes of help. Now I think I'll be looking for a chiropractor! Thank you.
NAET
Posted by Andy (Sask, Can) on 12/05/2014
What is this? Can I get more info?
