★★★★★
SO...drink about 4-8 cups of cornsilk tea each day as well as plenty of water each day. Do NOT drink juices, sodas, coffee, or milk except very rarely and in very small doses. Let your liquids simply be cornsilk tea and water.
Eat lots of vegetables. Avoid sugars and any processed foods. Eat organically. Get lots of exercise and sleep.
Black Cohosh
Cayenne
Thank you.
Enzymes
★★★★★
Black Cohosh
I looked more seriously at the foods I was eating, trying to change to a more alkaline diet as well as cutting out all coffee, soda, alcohol. Then I started taking the baking soda and hydrogen peroxide each morning. I also began taking turmeric. I took warm baths with epsom salts before bed. But the thing that has seemed to help me the most was the Extra Virgin Coconut Oil. I rubbed it in externally over the bladder area for a couple of nights before going to sleep, and I am now also taking it with each meal.
I do believe our bodies want to heal themselves and I am trying to help with what I know and have read from others. I also know the Good Lord answered my prayers as I have been pain free now for a couple of days and I am so thankful.
Blessings to all--
Baking Soda
★★★★★
-Sunny
Black Cohosh
How do you take this Black Cohosh? Pills, softgels, tea, tincture?? How much/how many? With/without food, aDid you do anything else different?? You say you have not had to take any since.. Do you think you're cured?
Thank you in advance for your reply.
Pass love forward - Sunny
Black Cohosh
★★★★★
Following up on my previous post...good news! I took the Black Cohosh for 4 days, one in the morning and one in the afternoon, and have not had to take any since! I am back to normal and that is a wonderful feeling. We are all unique and what works for one may not work for another, but this has been my Godsend. Blessings to all of you as you search for what works for you!
Black Cohosh
★★★★★
Nothing helped until I tried Black Cohosh. Bought it at a health food store. It also has Isoflavones. I got it at work on my lunch hour and figured I had nothing to lose. So I took one after my lunch, about 1pm, to see how it would react. The urgency was gone within 30 minutes. Then again about 4pm I took another one. I had a night of relief from this terrible feeling for the first time in three weeks. In retrospect I would not take any after noon going forward as I do believe it kept me up taking one so late in the day. Today I will take one in the morning and one at lunch. I don't know if this is my answer, but I do know that I felt normal for the first time yesterday afternoon. Will keep you posted.
★★★★☆
Cayenne
About IC, I scanned the posts on IC under Ailments (Earth Clinic) and didn't find DMSO discussed as a remedy.
DMSO is the only approved use officially given for it by the FDA. Doctors will topically apply weekly for six to eight weeks. DMSO is remarkable and ignored by the regular medical community although used by Vets all the time. And for IC, as I say, the FDA says "yes" to DMSO.
Could one self apply? Well it absorbs into skin and the whole body so one could simply apply topically to gain the same, or near some effect as applied by Doctor via urethra to surface of bladder.
Google "youtube DMSO Dr Jacobs" for a great 3 part study of DMSO.
Many Alternative Doctors who administer IV nutritional treatments finish the treatment with 25 cc of DMSO to make the nutrients fully infuse into the body. And as my Doctor told me, the DMSO carries the nutrients in such IVs past the blood brain barrier into the brain. My point here is that DMSO can go direct via IV (or orally) and is safe to use even straight into the system. If used orally, you'd want to use Dr Jacobs brand and dilute with purified water. Use a tablespoon of DMSO to ten tablespoons of purified water. I'd use distilled water.
So for those suffering with IC, consider DMSO. You can google, "interstitial cystitis dmso" and you'll find a Mayo Clinic site that discusses DMSO use by MDs.
Cayenne
Cayenne
MSM
★★★★☆
DMSO
★★★★★
I taked pre relief if I'm going to eat something that could be irritating. I still get flare ups. Some people can eat things, that others can't.
The dmso is put into the bladder via catheter.
Coconut Oil
★★★★★
★★★★☆
I think it's obvious on the things that u have to change forever more for this condition and overall health. I drink mostly water and natural coconut juice. Sometimes! 100% juice. Nothing else. Too many fake stuff and bad toxins. I try to eat very well not so easy but at least try to make the best choices! I do not really eat red meat. And fast food. I try nt to get stressed (killer/ acid forming). Exercise (walk, stretch, yoga) (I know for some of u u have to wait to get better to work out)
Why I am writing this. Well IC is horrible to the point were I felt subhuman and did not want to live anymore. I hope this helps another person. If it does help you I want you to pass this forward. Also, to promise to be a better /more compassinate person. Having been thru ic if you are not a better person you have learned nothing!!! Western Medicine gave me no hope and just told me to live with it. I decided to start by trying the cheapest, safest, most natural means one by one. I have tried other things and they did not help( marshmallow root pills, alovera pills, activated charcoal, etc. But I could not give up, I research and researched , and research, and research and reseached! And try! Try! Try! Tyr!!!!! I only cared about finding something!! I also want you to not give up what works for one might not work for another, but do not give up and share you findings. Love to you AND LET'S START THIS FOOD REVOLUTION, !!! Email you companies and tell them hey do not add fake color , artificial ingridients, persevatives, perservative, corn suryp. you have ic , other people have other illnesses that are horrible too! ( cron's disease, cancer, asma, )and guess what they all stem from the stuff they put in our food we have common ground here ppl! we need to join and say hey enough is enough! stop posoning our food/things!!!!!!!!! . and if you do not change we will not buy your things!!!!!!! ( purchasing power) support those that do!! health food stores etc. let's change our world by changing with in our choices ( ex. food we serve at a party). nature! nature! nature our only and true source.
thank you you ec for this site that i always utilice and try to contribute too.
ted you are inspirational and one day i would love to meet you, (i kind of want to be like you) help you. keep up your beautiful purpose <3
Cornsilk Tea
★★★★★
The corn silk that I purchased in the herb shop, I just further grind it in the vita mix. It lasts longer that way. I have also used the tea.
Coconut Oil, Coconut Water
Potassium Iodide, DMSO Douche
★★★★★
Lyme Disease Caused IC
Anti-Candida Treatment, Cabbage
★★★★★
Because candida is a small plant its roots reach through the bowel wall into places like the bladder, cruising the blood stream, creating itchy nose, ears, rear area, skin problems, general havoc. The more antibiotics they fill us with, the more the candida yeast is happy and grows. I've been free now for more than 20 years after being told by a lady doctor that it's something that many women get and have for life. I have it and I'd better get used to it! A couple of other things to note - it's best to stay away from oranges, mandarins, peaches, nectarines, apricots and pineapple until the whole inflamed system is healed because they can be an irritant. After some 3-5 years of living on lots of fresh vegetable juices, raw fruit, vegetables, nuts and dried fruits I found I could eat any fruit or vegetable I liked with no affect. My husband and I still live this way today having raised our family on the above diet. Juicing and a raw food diet will help to heal any health problem without fail. We're all basically suffering from malnutrition and toxic chemical overload. I wish you good health.
Dietary Changes
★★★★★
ACI-JEL
Coconut Oil
★★★★★
I just recently eliminated acidic foods from my diet, since I'm trying to treat the IC, and I noticed the vaginal itching and burning has been gone completely since.
When I first started having vaginal pain, I did notice that certain foods, like chocolate would trigger almost immediate burning. This was before I developed IC symptoms.
Now, I notice the only time I've had burning or itching has been during or right before and/or after my period. I started taking coconut oil regularly (1 tsp in the morning and 1 at night) and I haven't had any burning or discomfort this cycle expect for the one day that I didn't take the coconut oil!
Everyone's body is different, and perhaps this isn't a solution for everyone... but for those of us that have really sensitive bodies (prone to IBS/vulvodynia etc) like me, I have a feeling that diet plays a really important role.
I wonder if trying to eliminate acidic foods for a while would help relieve the symptoms for other vulvodynia sufferers? I would recommend starting with the IC diet and then adding in foods little by little to find the real culprits... I was surprised when I realized I could eat dairy, which I thought was a big no no, but not oranges!
I guess what I realized was that food was playing a huge role in my suffering, maybe for some it has nothing to do with acid at all, but the burning is a symptom of another food sensitivity that could easily be eliminated.
I hope this is helpful to someone!
Multiple Remedies
★★★★★
Diet, Turmeric, Exercise
★★★★☆
However, diet and tumeric are crucial to this matter. I'm surprised, however, a lot of you are disabled, yes, but, we all are well aware that exercise couldn't be more important. In order to strengthen the linings, we must strengthen the muscles... So, do your best! I find leg lifts reduce my pains, as well as running, more than any other exercise... Simply because running is generally beneficial cardio and leg lifts target the pelvic muscles.
I also did some research based on my past experiences and cranberry juice can very well make IC matters worsen, as well as D-Mannose. D-Mannose and cranberry juice are for milder urinary tract issues, but for severe matters, they can cause severe damage. If the case is severe, D-Mannose is known to stick to the bacterias, yes, but it can stick to the walls of our organs, obstructing practically every option of ridding/treating IC. Regardless, stay away from acidic and fatty foods, equally.
As for the flares, I have it right now as I'm typing, but walking truly does help, as working out reproduces healthy cells and bacteria. ALSO... VERY IMPORTANT. If you have a lot of stress, be sure to see the doctor. Anxiety is a major cause of my increased symptom pains, and if you are unaware of your psychology stability, it could very well be the underlying reason for your IC and many other illnesses. If you meditate with faith that your body is healing, then it will do just that, and the pain will reduce immediately. I have severe anxiety, so it'll work on anyone if you try and do it right. Just breathe and do your best to keep the symptoms down... Never stop researching... never stop believing and always remember it could be much, much worse! Much love and best regards to you all.
Cayenne
However, its nerve wracking trying to prevent another UTI, as nothing, not even probiotics seem to work for me anymore.
Ive come to the conclusion I had some kind of fluke staph, or MRSA infection that was antibiotic resistant. The doctor and I discussed the further concerning problem of antibiotic resistance. , it seems antibiotics hardly work for anything really serious anymore.
Colostrum
★★★★★
Lyme Disease Caused IC
Pumpkin Seed Oil
★★★★★
My husband did some research and started me on a two week regimen of Cornsilk extract (20 drops in 1/4 cup water 2-3 times per day) followed by 2x daily dosing of Pumpkin Seed oil everyday. I have maintained the oil at 1 tablespoon in am and 1 tablespoon in pm, preferrably with food or drink, for about 2 years now. It has made all the difference in the world. If I maintain this dosage I have no symptoms except for mild ones during ovulation and the first two days of my period. I up my dose by another tablespoon sometime in the middle of the day during these times. If I run out of oil, pumpkin seeds (in any form, roasted, raw etc. ) will suffice until I can restock but they add a lot fiber to my diet since I need to eat almost 3/4 cup of them per day to achieve the desired effect. I also stay away from Tannic Acid whenever possible and have greatly reduced the gluten in my diet. I am otherwise a healthy 38 year old mother of five. I don't get back here very often at all so I may not be available to answer any questions but I truly hope that this helps as many people here as possible!
Multiple Remedies
Estrogens: Love, Love, Love no more hot flashes, no bacterial vaginitis, and urethra is working!! Read in "Stay Young and Sexy that UTIs go down 1000% (yes! 1000 percent!!! ) w/vaginal estroil. I have had approx 5 of those, but none since starting the vaginal estroil. I will be on bioidentical hormones until I die.
HGH: I can fall asleep each night after I pee. This is the BEST thing that HGH does for me. Since I have a history of Fibro and IBS, I just want to say the HGH totally took away the fibro after 9 months!!! Just slowely went away!! (see studys on the internet on that) Also HGH homeopathic removed some under the eye wrinkles!! Energy is better too. I will be on HGH until the day I die! Love the stuff!!! But it hasn't fixed my IC. It does heal wounds though and I definatly have a wound there, so I will keep taking it in hopes that it will still work in my bladder eventually (maybe Fibro had to heal first?)
IBS is less due to no Gluten.
Am still in pain at night (and pee 6-10x per night) so got on instillations of heprin/ladocane and saline to heal faster one month ago. (Dr says it takes 6-9 months to START to notice a difference, but can be a permanent cure, for 80% of people (after 2 yrs) so what the heck, I've tried EVERYTHING else at this website). I will update again later.
Coconut Oil, Coconut Water
Long term antibiotic therapy was the cure for me and my interstitial cystitus. The key is, you need to stay on a high enough dose, for a long enough time to get rid of the infection, and you have to get the right antibiotic for it, as antibiotic resistance is becoming an increasing problem. I was on Macrobid for almost a month (about three weeks, at 100mg, every six hours, (about 3 times a day) thats high, but normal, and prescribed to cure a persistant and severe infection which is what I had. I was rendered completely disabled by this bladder pain, I considered my life over, as I was told there is no cure. The problem is. Doctors are becoming incresingly reluctant to prescribe antibiotics nowadays. But in the old days, they understood, (as Ive talked to older people, my moms age, baby boomers) that sometimes, infections require antibiotic treatment, for longer than a week or two. These days, if you cant cure an infection in 14 days, at the lowest possible dose, your screwed, and there is "no cure".
Period.
I cant tell you how many times Ive taken my daughter to the emergency room, with 103 degree fevers, throwing up, sick as a dog, and they made me walk out of there empty handed, and told she had a viral infection, therefore doesnt require antibitoics. I now use homeopathic remedies (for kids) and thats helping her now.
Interstitial cystitus, (in my case) required hardcore antibiotics to eradicate the infection.
I tried EVERY, I mean every natural remedy known to man to try to fix the problem, and they didnt even touch it. What kills me, as I had to fight my doctors, and tell them what was wrong with me, cuz they didnt care, and they just do things by the book. I kept saying"how could this not ba a UTI", and "How can there be no cure??" They just put me on one or two rounds of antibiotics for a few weeks and when BACTERIA DIDNT SHOW UP IN THE URINE TEST, and I was still complaining of extreme pain and frequency, they dianosed me with interstitial cystitus. It didnt even occur to them to try me on different antibiotics and maybe for longer or higher, I had to FIGHT for that, and I became such a pain in the ass, they just wanted me out of the office.
Lyme Disease Caused IC
★★★★★
I hope that other IC patients can read this post and find their health back again like I did. Evelyn
Cayenne
Heres what I did. A month and a half of Doxicycline, first 3 weeks, 100mg morning and evening. Still was in alot of pain, still had symptoms. She upped my dose to 200mg morning and evening. 400mg a day... 2 weeks of that. Tested for Ureaplasma. Long gone!
But I still had symptoms. Altho I was much better, able to eat what I wanted (including tea, and acidic foods) and was able to walk around, and function with my life somewhat... Still wasnt testing positive for bacteria in the Urine. Technically I did not have a UTI.
One night, I got desperate. Was thinking I was having a "flare", it became unbearable, went to the emergency room. Tears pouring down my face, lying down, couldnt even get up when the doctor came in the room, wouldnt let them put anything in my urethra, cuz I was in so much pain. Gave me a script for Macrobid, (10 day supply, 100mg every six hours)
10 days later it was gone.
Ive been reading alot lately about UTI resistant antibiotics, and the link to supermarket/storebought chicken. They say, its becoming more and more of a problem. I think thats what was wrong with me, even tho I dont know why, the bacteria wasnt showing in my urine. So, 2 rounds of Cipro, 10 days of augmentin, 3 Z packs, and a months worth of Lyme disease dosage doxi, and macrobid finally cured me.
A not about the Doxi:: at 400mg a day, ti was very harsh on my body. I threw it up half the time, cuz it was so hard on my stomach. I got a SEVERE sunburn on my feet, (cuz it made me extremely photosensitive) I was tired all the time, sleeping all the time, and I was very hungry, and I had to eat alot of food just to keep it down, so I gained 25lbs. Its been Hell. But Ive learned to never to take my health for granted again. Im not sure what just happened to me, but im aware now about antibiotic resistance becoming an increasing problem. and I hardly ever take antibiotics, I always try the natural route first.
What Im plan to do now, to make sure this never, ever, happens to me again. I plan on taking my womens probiotic every single day, and add D Mannose to the regime as well. At least 2 teaspoons a day. (moring and evening) prevents bacteria from clinging to bladder wall. Especially when Im sexually active. Its expensive. But nothing can be more life ruining than interstitial cystitus.
To not be able to eat like a normal person again. (read several cases of people being able to cure their pain, by living on a diet, exclusively, of vegetables, brown rice, and nut butters, no salt, no sugar, no fruits (acidic) and claiming remision after a few years. Some women gradually being able to add in small amounts the old foods again, they used to eat again. "cheating" by eating Cheescake and Curry and to never be able to have sex again?? How sad is that? What kind of life is that?? and Im young women. Horrible. Id rather have gotten Cancer, or Genital Herpes any day of the week.
Im gonna give full credit to God, and Jesus Christ for my remision. There were prayer circles at my Church, and friends were praying for me. I prayed every morning to be healed. Plus I was on the prayer line, my life, my very life hung on the balance.
In the past Ive been promiscuous.. And I know Im not perfect, and I pray to God to guide me on this issue. I just know to be much more careful now, next time. Its worth it to stay in a monogomous relationship.