Interstitial Cystitis
Natural Remedies

Top Natural Remedies for Interstitial Cystitis Relief

The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Multiple Remedies
Posted by Kara (Northern, Wi) on 08/27/2012
★★★★★

We'll if it exists I will try it! So far all special teas and probiotics and herbs and wonder drugs do nothing.

FRESH pressed lemon in water helps! Distilled water helps but is not good for you long term. Try to drink a gallon of non florinated water a day, it works but not instantly.

No alcohol or coffee :(.

Sweating out toxins in a sauna helps! As long as you drink a Lot of water and replenish with fresh pressed vegetable juice.

Everyone should have a VEGETABLE JUICER. Juice fast for a week for dramatic healing, but NO FRUIT in the juicer, spiking insulin will negate healing.

Get VITAMIN D LEVELS OVER 50, tan or take 10,000 iu of d3 a day, but get tested, and don't accept 30 as normal, it's not! Read about it w the vitamin D council.

For relief get a vaginal suppository with BORIC ACID. Its cheap, look online and read about it. Stay away from chemicals down there, boric is natural.

Stretching, either Pilates or something thorough really helps reduce the inflammation and allow the fluids kin your body release.

I just came across a FREE Ebook about treating IC naturally. It's a book by Diana Brady. It talked about the combination of Bromelain and Quercetin to treat IC. New to me, will keep you posted if anyone wants to know. Just curious. Would like to get coffee back someday!

Folks get your vitamin D tested. The vitamin D council spells it out online why its so IMPORTANT and how it correlates to health problems like this. Theres no instant cure, but get that D up and do the other things. Stay off sugars! For good and it will heal! :)


Reader Feedback
Posted by Ducklucky (Monroe, Maine, Usa) on 07/24/2012

Diet is essential. My hub has severe IC with hunners ulcers and the whole shmear. Over the past 3 years we have tried EVERYTHING and finally gave in to pain meds, which he hates. Last month he became so frustrated we had to do something drastic. Even tho we followed the IC diet, we went to an elimination diet, basically starting from scratch like you would a baby. There is much info on the web. We are following the strictest. Voila!!! Pain has decreased from 8-10 to 1-3. It has been a journey. Found he had a definite sensitivity to bananas of all things! Just starting to add one thing at a time, our garden is filling with green beans, so we will give that a try next. This diet has worked for him, and he has lost 15 pounds in a month, which he desperately needed to do. Just puttin' this out there, it is pretty healthy. And as for the no dairy aspect, he was drinking a gallon of low fat milk a day, boocoo calories! And the diet is no dairy, so we switched to unsweetened almond milk. There is so little ICers can drink and he is always thirsty. Also marshmallow root tea brewed w/wo a cinnamon stick and honey sweetened, hot or iced works well. Pure seltzer with some allowable juices and a little honey scratches the soda itch. It is time consuming and involves some research, but anyone can do this. He can have brown rice, so found web recipes for brown rice flour breads, muffins and pancakes with no yeast (diet is NO gluten). Have seen a lot of ICers are gluten intolerant, so that is worth a try for anyone. It's real basic, no wheat, gluten, dairy, red meat other than lamb, turkey, fish/shellfish, nothing "white"... We hope this continues to work, even if it doesn't "cure" him, to keep his pain level way down and keep that bladder happy. Good luck everyone!


Baking Soda
Posted by Ducklucky (Monroe, Maine, Usa) on 07/24/2012

You have to be careful if you have any other conditions. My hub has severe IC, but also has history of pulmonary embolism and deep vein thrombosis, and he retains fluid, so has to take blood thinners and water pills. Too much sodium swells him right up and can lead to CHF. So just a warning to others who may have any of these conditions to take it easy or avoid the baking soda.


Baking Soda
Posted by Plumhappy (Eugene, Oregon) on 07/23/2012

Am curious with that much pain, are you following the diet precribed for IC, ie. Avoiding high acid foods, etc. I have IC and as long as I leave the offending foods alone and take MSM, I experience no pain, occassional "sensation" for lack of better term.


Baking Soda
Posted by Aunt Jan (Verdigre, Ne.) on 07/21/2012
★★★★★

I have had severe bladder problems for well over 5 years now and just recently been DX. With Interstitial Cystitis. My problems kept getting worse and worse and even though my doctor started me on Elmiron most of you know that it only works in 30% of patients and takes about 4 months just to see if it will work. I got on the internet and began reading and one day I ran accross the 1/8 tsp of baking soda and I told my husband the next time the pain starts I'm going to try it.

I didn't have to wait long and I tried the baking soda and within one hour the pain and frequency were gone. I have now used that on several occasions and for me it stopped the pain within the hour a simple miracle. CHEAP 1/8tsp in a very warm glass of water. Not particularly taste so now I put the 1/8 tsp in a gelatin capsule and I take it with the larage glass of warm water and golly gee, pain free within the hour. I know that everyone is different, thats for sure but this has to be a first try for everyone suffering like I was and like most things we take RX's they are costly and have all kinds of side effects, this is easy, cheap and it works great if not what have you lost. I encourage each of you to give it a try. Thanks for allowing me to tell my story, I hope it helps just one IC patient.


Cayenne
Posted by Shampoo (Los Angeles, California) on 07/03/2012

Update::::: By now, I feel pretty foolish with all Ive gone thru these last 4 months with this horrible IC with natural remedies that didnt work for me, when all I had to do was take antibiotics, and Id be cured.

However, I had already tried 2 rounds of Cipro, and macrobid, and then started testing negative on all urine cultures, and being sent home empty handed, in horrible, horrible, horrible, crippling pain, feeling like I still have a bladder infection.

After finishing the z pack, I was almost all better, But 2 days later, symptoms returned full force and the nitemare was starting all over again for me. However, I knew the symptoms would return, and I couldnt get an appointment with my urologist, (which was 2 and a half hours away by the way, and I dont have a car) for another month. She wouldnt precscribe me another z pack, unless I retested again for the Ureaplasma. I would have to wait a month. Get retested, and wait an additional 4 days, then get more antibiotics, and hopefully be cured, but I knew it was impossible to wait the long, and it seemed horribly cruel, when I felt so close to a cure. Id have to start all over.

From the research Ive done on Ureaplasma, you almost always have to take more than one round of strong antibiotics to cure it, and some people take low dose long term antibiotics, from months to years to eradicate it. I saw a long painful road ahead, and I decided, getting Genital Herpes would have been a better fate for me than this, as at least with herpes u get periods of respite and you can SOMETIMES have sex, if your not having an outbreak. I was ready to Die.

I got the numbers of several Urologists closer to my area, about four. NONE of them tested for Ureaplasma, or even heard of it. I asked if they would do a test, they said no. You see. Many Urologist do not believe or even acknowledge the role Ureaplasma plays in IC, since 70% of the population carries this in their genital, bladder tracts without any problems. The community is split on the issue.

Ive been doing alot of research on this little bug, Ureaplasma. Its getting more and more attention, as more and more people are having problems with vulvodynia, and IC. Like I said, its considered sexually transmitted (but not), as we arent born with it, we get it thru sex.

A good gynecologist will also test for ureaplasma if you are having problems becoming pregnant, or have a history of miscarriages, or early deliveries. There's alot of talk about it on infertility boards on the net. The test is expensive. And the cure requires the use of long term antibiotics. Many doctors are hesitant to do that, these days.

As there is more and more hype about the overuse of antibiotics. Especially long term.

So I panicked, and I took matters in my own hands. I knew I needed more antibiotics. I had a reoccuring sinus infection for months. I made an appointment with my family doctor, and explained the situation, plus I made great emphasis on my sinus infection, (which had actually gotten better) but I wanted to make myself sound really sick (hammed it up), and she gave me Augmentin. A 10 day, supply and guess what. It is the third day, and I feel 95% awesomeness.

I then made a few more calls, and found out, I can get my doctor (the one that actually believes in Ureaplasma) to fax over an order to my family doctor or lab of my choice to do the test and everything will be gravy. So Im gonna test again for it, a week after I finish the Augmentin. Its also interesting to note that after researching IC, unrelentingly, for the last 4 months, and visiting, every IC website, and healthboard on the planet, and hearing people talk, Augmentin is considered one of the successful antibiotics for IC.

Thers only 3 that work against IC, only three.

Zinthromax (z Pack)

Doxicycline

Augmentin.

From what I read, its hard, hard, hard to cure. Harder than any STD. But its not incurable. It usually takes months to eradicate it.

many women just live with the pain, and take steroids, pain killers, and ANTIDEPRESSANTS. Isnt that sad?? Thats part of the protocol for IC patients. They give you an antidressant too, to cope with your life being over!!

I know on a gut level, this was some kind of elusive, hidden bacteria, embedded deep inside my bladder. Most people develop IC after a bad bladder infection. The pain lasts for years, YEARS. and its almost impossible to get a Urologist to help or even hear you.

I prayed to God to help me.

Its a miracle, and I will never doubt his presense and his ability to heal me again. Its a miracle the first Urologist I saw helped me, and was cutting edge enough to do this test.


Multiple Remedies
Posted by Lisadeb (Edina, Mn) on 07/01/2012

Update: 4 weeks ago I upped the vaginal estriol to 2mg per ml of cream. Still taking Bi-Est drops (4 drops 2x/day since Jan) Urethra is working again!! Very little "straining or sitting and waiting to go". This was an EXTREME problem. Sometimes it took 2 hrs to go!! The pain was still the same at night, but way less during the day (from a level 10 to a level 3 during the day).

I was frustrated wanting faster healing, so I stopped the Bio-identical progesterone as they were making me extremely hot at night, creating horrible insomnia. I had been struggling to take progesterone pills since January (rarely taking them), but my Dr kept saying I needed to take them or I would not be allowed to take the estrogen, by her. I looked up progesterone allergy on google and saw: http://www.onlineallergycenter.com/blogpage.htm and called Dr. Roby who said I was allergic to progesterone as I had assumed. (I remembered that I started a progesterone cream when all this IC started years ago!!! Could there be a connection??) He said to stop the progesterone, as I am obviously allergic to it and ordered the progesterone allergy drops.

On day 2 of the drops I woke up w/NO pain (2 days before my period!! ). Same w/day 3 (1 day before my period!!! ). Then I got my period (Ouch each night (up 6-8x to pee w/pain) and then 3 days later, restarted vaginal estriol, (I continued the Tri-est drops, and Dr. Roby's progesterone allergy drops through my period). Now NO pain during the day if diet is good) and pain at 1 at night if perfect diet during the day. (actually 5 total days of 0 "awaking in the AM pain). I am at 2 weeks on the progesterone allergy drops. I am at 6 months of the Bi-est and estriol vaginal cream. I recently asked my bio-identical Dr for body cream instead of Bi-est drops as I read it's better for you. And Dr. Roby's progesterone allergy drops cost me 57 bucks for 3 month's worth of drops, and a book on how they work. He called me 5 times to see how I was doing. Such a caring man!!!

Will update again soon.


Cayenne
Posted by Shampoo (Los Angeles, California) on 06/28/2012

I also want to add that, its been 4 days on the zinthromax, or erythmycin, and I feel great, but I still have some pain, and I will be returning to my urologist in a week to get retested and hopefully get on long term antibiotics, as I've read thats what most people end up having to do with IC. So, now I KNOW this is an infection from a Bacteria, since I wasn't sure whether I had a damaged bladder or what?? A few more things about essential oil. Ive stopped that, as I wasnt getting over the hump, and it seemed to be very harsh on my body, but I was reading alot about BIOFILMS. Ureaplasma is considered a biofilm infection, by the way. Please learn and google this guys. In a research study, they tested 15 different essential oils, in breaking down Biofilms. Of the 15 only 4 broke the biofilms, of stubborn bacteria, and that is Tea tree, Eucalyptus, Palmarosa, and Rosemary.

Also, Ureaplasma is linked to miscarriage, and infertilty, which would explain my failure to conceive over the last 3 years. Like 50% of couples failing to conceive, looking for in vitro fertilization tested positive for this bacteria. But then AGAIN. Many people have this. Its just some people seem to have real problems with it, as it is SO LINKED to IC. Maybe some people's bodies dont like it, as one girl I read on a forum said. Ive also added coconut water to my regime. As I read some people cured bladder infections with it. It also makes your skin glow :))


Cayenne
Posted by Shampoo (Los Angeles, California) on 06/28/2012

UPDATE OMG!!! Breakthru, breakthru, breakthru!! Two words. Ureaplasma. Just got diagnosed with this by my urologist, OMG!!!!!

Ok. Parsley, essential oils, colostrum, cayenne... needless to say, did not really work to eradicate this infection.

I made an appointment with a Urologist. Breakthru!!!! She immediately tested me in my vaginal culture for everything, including a test for a microbe called Ureaplasma. I have never heard of this. Now, Ive been tested numerous times over the years, and everything always came out negative, but I get a call about 4 days ago from her saying I tested positive for this. She put me on zinthromax and I am taking it now. She tells me this is not an STD, but a sexually transmitted disease??? present in 70% of the human populations normal flora, (rectal, genital, and bladder tracts), but it is transmitted sexually, meaning, we are not born with this, we get it thruout the course of our sexually active lives. , and usually it does not cause problems for people, however.... There is now a compelling link between IC and this bacteria, or mycoplasma. I guess the test is expensive. Which is why most doctors will blow you off, and try to not test you , or REFUSE you and tell you tat since this is considered common flora for most people it wouldnt be considered a factor in causing, your IC. Cleveland Ohio is rated second best in the country for urology, with sum of the best urologists in the country studying and researching, IC. The first test they perform is for Ureaplasma. They say they get a 50% cure rate right there for people, once they treat it with antibiotics. However, my symptoms have improved vastly, I must go back again, and get retested. I was reading just now, online, that many people end up going back and still testing positive, and then after a three week course of doxycycline, get a complete cure. Googling it, I can hardly find any imformation at all about this, I cant believe how ignorant and reticent physicians are about testing for this, its awful, and scary. I was just reading about a gal, who had to fight to get tested and then fight to get treated for it, she saw 8 different doctors, and urologists... So be prepared to fight. There is compelling link here guys google it. I was really doomed. It scary, how a little microbe can jeopardize your whole future and life.


Homeopathy
Posted by Cindy (Las Vegas, Nv.) on 06/21/2012
★★★★★

This is my first time on EC. Same story, Bladder infections... Antibiotic regements, result IC. Have never been oficially diagnosed, but symptoms the same only less severe than most. I am 68 yrs young, in good health except for this. My urgency is only once through the night and for my age that's not bad. My main issue is the pressure and burning after urinating. I started taking SEPIA (Homeopathic) which helped considerably. I now added a Cell Salt #1 (calc. Fluor. 6x), also Homeopathic, more cost effective 500 pellets for around $12.00 at Whole Foods. When I have the burning or pressure I take 4 pellets under my tongue, within 15 min. the discomfort has passed. I don't know why, but it does help. Cinnimon is also on my regimen, about 4 to 6 a day. I can only hope this may help someone. Thank you all for adding your voice to this wonderful website.


IC Caused By Bladder Stone
Posted by Diana (Horseheads, New York) on 06/19/2012
★★★★★

I was diagnosed with IC a little over a year ago after going through pain for three years and several urologists and obgyns that didn't know squat... Give out a script and see ya! I finally got rippin mad and told them to recommend someone out of town that knows whats going on. I had to travel an hour from home to get better information. I was treated for the IC in a couple of ways and symptoms came back again and we tried another avenue... I had day surgery to explore my bladder and they discovered a stone... Just had this removed a month ago at a well known facility in the other direction two hours away... Relief is wonderful... No more pain (and previous pelvic mesh was part of my problem)... Please do not just accept one person's opinion or diagnosis... Go for more - IT IS WORTH THE TRIP!


Essential Oils
Posted by Shampoo (Los Angeles, California) on 06/10/2012
★★★★☆

ok guys, I am updating my interstitial cystitus game plan here as Ive drawn a few more conclusions over the last few days.

Im getting better. I feel great today, but I did have pain return with a vengeance 3 days ago, to the point where Ive made an appointment with a urologist, and I was looking up worst case scenerios stories on the net about having my bladder removed! :(( $%#@!!

Ive come to conclusion that this is a bacterial issue and not a physical or ulcerated bladder problem. How do I know this??

Ive upped my dosage of essential oils.

I did some research about curing stubborn bladder problems with alternative medicine, and I found out about a product sold in canada and eastern europe called nano drops. I found one random company in eastern europe that sells it. Its $80. There is also a youtube video under "nano drops" cure UTI. I wondered if it was a scam, and anywho, I dont have the money. However, Credited naturopaths had seen it clear incurable serious, interstitial cystitus cases, etc, etc, I found alot of different posts about it so I figured it was for real.

I looked up the ingredients. Juniper essential oil, Lavender, Eucalyptus and Pine needle oil. Thats all. $80. And thats it. In the directions it said, put 10 to 20 drops in a glass of water 3 times a day for up to a month until symptoms dissappear.

So, I increased my lavender and juniper oil intake signifigantly. I then ordered more juniper, and lavender, cuz I knew Id go thru the bottles in no time flat. I also ordered Cinnamon and Lemon oil cuz along with Clove, those are the main ingredients to the "thieves Oil" which is really helping me.

I take about 5-10 drops of juniper and 4 drops lavender in a capsule 4-5 times a day, no joke along with random gelcaps of 1 or 2 drops rosemary(cuz rosemary can be toxic) and more lavender 1 or 2 drops 2 drops peppermint, 1 or 2 drops sandlewood oil, or 1 drop clove here and there. Its been sporadic, Im just trying to get this fixed. Whenever I feel pain , I pop a gelcap with a few drops of random oils, being cautios about the more toxic ones (rosemary, clove) Everyday I push the envelope a little more. My bladder is healing. I can feel it. I cant believe it. It is awesome. I also have been dosing myself with cayenne, and turmeric basically, Ive been stuck at home, with the burning, flaming rocket runs :))) But its worth it. Drinking lots and lots of water, cuz I noticed symptoms started really returning when I slacked off on the water intake. Ive been at home, not going anywhere, focused, on trying to beat this thing.

I do not want biopsies, dont want to have them fill my bladder with potassium iodide or whatever, dont want these horribly invasive tests and procedures. Dont want this to ruin my life. I dont want the nitemare, and now that this has happened to me, its made me aware of this awful disease, I didnt even really know existed.

Ill sometimes do a random capsule of thieves, when I get hit with real pain, usually after I go to the bathroom. About 10 drops. Its pretty safe. I experiment with myself. Sometimes I get racing heart, or strange sensations when I do clove, or too many oils at once, I get paranoid, drink milk, and monitor myself. Its fine. And then I do more. Ive researched younglivingessential oils, and this is fairly safe, as there are recipes on the net calling for quit a few drops of oils, that I thought might be volatile, or unsafe to take. Just be careful.

Do your research guys. I have. Im determined. Im scared and determined. Im 32 years old, and Im not ready to throw the rest of my life away on this disease.


Turmeric
Posted by Shampoo (Los Angeles, Ca) on 06/07/2012
★★★★★

IC Symptoms and Turmeric:

Turmeric is awesome for me. I cap my own and I take about 3 capsules, three times a day, and MSM powder as well, I take about 2 capsules three times a day.


D-Mannose
Posted by Shampoo (Los Angeles, California) on 06/07/2012
★★★★★

UPDATE::: Ok guys, the vitamin C cure DID not work, as the cream of tarter in a few inches of water, DID NOT WORK EITHER. Baking soda didnt work, and I got sick and could have possibly poisoned myself, (i just read about the dangers of taking too much baking soda online) UGH.... I was beginning to despair, so NOW, Im feeling great, and for the last week or so Ive been taking massive doses of Echinacea, (4 4oomg pills 4 times thruout the day) but altho I was feeling better, it wasnt really nipping my problem in the bud, as I was beginning to have excrutiating pain at night, and by now I starting to feel fully convinced I have the dread, interstitial cystitus!!!

Guys, D MANNOSE!!! I have tried D mannose TWICE before in the past and it seemed to do nothing for me. It was like drinking sugar water, it seemed to be the most rediculous cure ever!!!!! However, after tireless internet google research, all these women were swearing by it, (even saying things like, 9 out of 10 women are cured by D mannose, and I have interstitial incurable bladder disease and this cured me) so I decided to give it another go.

I tried a really cheap brand of D mannose before, and some women claimed that it DOES make a difference to go with a high quality more expensive brand, and that not all d mannose are created equal, I guess, so I spent about $25. 00 for a little jar.

It says on the jar to take a teaspoon every 4 hours, (like 4 times a day) and double for a raging case, (like mine) I took a teaspoon and a half every 2 hours like SEVERAL times a day, and by the third day, I really almost feel normal again, I feel great. I ordered another jar, I really think its working!! Its pricey but worth it.

I suppose the d mannose receptors attract e coli to them and then they attach off the wall and get flushed out of the bladder. Ive also read the d mannose can do this to sperm! So be careful ladies, if your trying to conceive, I read d mannose might interfere with pregnancy. They are even trying to patten a contraceptive using d mannose, lol! I was thinking of using d mannose as a preventative, as many women have had success doing that, but since I want to have a baby... I'll have to try something else when I dont have an infection. Im gonna try a brand of herbal cranberry supplement sold on amazon. One women claims after intercourse she takes 2 pills and a full glass of water and she hasnt had an infection in 10 years.

Im going to continue the d mannose for another week after my symptoms have fully gone. A teaspoon three times a day. Good luck ladies, and I will report back with my progress!!


Cayenne
Posted by Shampoo (Los Angeles, California) on 06/05/2012

Ok guys, Im back! And so far, so good!! I had hardly nothing, no pain today, awesome!!!! :))))))))))))

You guys, I was SURE, I had intersticial cystitus. Unexplainable bladder pain, getting up 8 times a night to pee, etc. Nothing was even touching it. My protocol is healing this, and in this journey, I have discovered the wonders of essential oil therapy. When antibiotics dont work, essential oils. Its a freakin miracal. O thought I had a prolapsed bladder or some physical problem, not bacterial. Unbelievable. Ive been taking the thieves and juniper along with the other oil recipes. I take about 3-5 drops theives, 1-2 drops juniper in a gelcap, couple times a day along with the others

Im researching Lemongrass, Thieves, Dragontime, Juniper, Pine, ravansara, Tyme, Oregano oil.

I actually found a page, listing essential oil recipes, and it was very interesting, as far most of my life I didnt think you can safely take essential oils, etc. I also started on the colostrum today, and it tastes very pleasant, and I feel great, Im excited about it :)


Reader Feedback
Posted by Leota (Stl Cloud, Mn) on 06/05/2012

You sound exactly like me. Human Growth Hormone Homeopathic Spray helps me get back to sleep faster and dream more. I spray it in my mouth at night after I pee. I used to stay awake almost all night!


Cayenne
Posted by Shampoo (Sandusky, Ohio) on 06/02/2012
★★★★★

ok guys. I know how debilitating this can be so Im putting my post on here.

About 3 months ago, I got a UTI. What else is new, I get them all the time, but this was an especially bad one. I normally take probiotics everyday and it prevents them for me, so I hadnt got one in like 6 months, it was all gravy. But I missed about 3 days of my probiotics and BAM!! I got like, the worst UTI of my life, I was on the toilet weeping. Anywho, went to the doc, got a script for cipro, took it, didnt go away, got another script, took it, STILL didnt go away.

Now, antibiotics normally NEVER work for me. This is why Im very into alternative medicine, but I was desperate this time. and ofcourse, didnt work.

All the usual things I do for a UTI, didnt work at all, I tried every herb known to man, baking soda, 40 pills of vitain c in one day with gallons of water, apple cider vinegar, olive leaf extract, uva ursi, echinacia, even d mannose, (3 jars) didnt get rid of it. I was in EXTREME PAIN, and I was terrified.

Id been reading alot on the net, about overactive bladder, and a condition called interstitial cystitus on the net HOPING TO GOD, I didnt have it. Alot of women said it started with a bad UTI and ended with YEARS of chronic daily debilatating pain. I guess the theory is, the bladder lining somehow gets damaged, or ulcerated, or mayne you have a bacteria or virus that is hiding, or embedded somehow deep in the bladder walls, where antibiotics or anything else cant get to it. We are talking YEARS of this pain, even, to the point where these women cannot work, cant sleep, cant have sex, cant even function, cant ride rollercoasters, run or exercise. I already have so many problems with my female region as it is, I have struggled so long with other health problems, screw that! They even compare interstitial cystitus on the pain level scales to CANCER. Thats how awful it is. And there is no cure. And I was getting all the symptoms, and it didnt feel like these antibiotics or anything else I was doing was helping this pain. They prescibe Methadone to these folks.

I did some serious, serious research, and I came up with a game plan that is beating this interstitial cystitis.

In the morning I take:

a gel cap filled with one drop each clove oil, rosemary essential oil, lavender, sandlewood, and peppermint oils. Followed by 2 full glasses of water and 1-2 pills cayenne AFRICAN RED PEPPER(xtra hot) has a bright orange red color. 1 pill MSM, and 3-4 gelcaps of Turmeric powder, and 1-2 Dong Quai. I cap these herbs myself. Then I take:: 2 milk thistle, 2 echinacea. I bought those ones at the store.

2-3 hours later. I fill another del cap 2 drops each peppermint oil, and rosemary oil. 2-3 hurs after that, 1 pill filled with; one drop each, lavender, rosemary, peppermint, and sandlewood, followed by 1 MSM, 1 cayenne, 2-3 turmeric, 1 dong quai. 2-3 hours later, 1 gelcap, 1 drop each peppermint, rosemary, or lavender )optional) I do this according to my pain levels. If the pain is especially bad, I will add more cayenne, or turmeric, as it is not dangerous to OD on those herbs. You cannot OD on cayenne or turmeric, unless you have a bad, sensitive stomach. Im only 30 years old, and I seem to have a cast Iron stomach, lol! LOTS and LOTS of water. Then before bed, 1 cayenne, 2-3 turmeric, 1 dong quai, 2 echinacia, 1 MSM. you can reduce herbs in the days following as you get better.

The essential oils: I used to be afraid to take essential oils, as I thought they might be extremely toxic. They are in large amounts, you just have to be careful. I never exceed 2 drops usually of anything. Clove, and lavender oil, can be pretty dangerous, especially clove, as only 6 drops can be toxic. Remember to get pure essential oils, not perfumes.

I went hardcore, and I didn't care if I got kidney failure, or liver damage from the herbs I was taking. This painful bladder condition has ruined lives, and I wasn't about to let that happen to me, after everything else Ive been thru. Of course, I'm fine. and I did not poison myself, and I am 95% pain free today, and It gets better every single day..so..

It's scary when you feel helpless and hopeless, and no doctors can help you.

I did alot of research on cayenne pepper actually healing bladder tissue.

Some people have cured themselves in less that a week using cayenne. They say you should build up to 3 in the morning, 3 in the eveneing, but I am already seeing at 2 a day, results so. Turmeric also heals mucas membrabe tissue, and MSM, is a sulpher based herb, and is excellent for pain. Alot of people are also talking about colostrum. and Ive already ordered that, its coming in the mail.

Baking Soda
Posted by Shampoo (Los Angeles, California) on 05/28/2012
★☆☆☆☆

Doesnt work. I did a half teaspoon every 2 hours with a ton of water for two days and it did NOTHING for me except made me sick. Absolutely nothing, and baking soda can be dangerous in large amounts.


Aloe Vera
Posted by Shampoo (Los Angeles, California) on 05/28/2012

Ok, Ive read Aloe Vera doesnt really work per se, but you need the concentrated freeze dried Aloe Vera from Desert Lily or something, I forget the name. Its expensive, but worth it, I guess, Ive heard of women being able to return to work, by taking 3 to 4 pills a day. Also, Colostrum, along with other herbal supplements(marshmallow root, quercitine, etc) has put some people in remission. One lady I read, buys MSM powder every month, and takes quit a bit thru out the day, and it takes care of the pain 75%. You can either put it in empty Gel caps, or take it in water or juice. Also, Turmeric is supposed to be very helpful. Several caps a day.

Ok, I thought I had Interstitial Cystitus, and since Im very prone to UTI's and I get them all the time, I finally did some kind of damage to my bladder from all the infections, or the cures, cuz I take vitamin c and drink apple cidar vinegar like its my job, and I figured I burnt my bladder lining or something, anywhoo....

My conclusion is that this maybe, perhaps, most probably, in many cases (not all), interstitial cystitus is an infection of some kind, that wont go away for whatever reason. The ecoli, has embedded itself in your bladder lining or something. Cuz I started taking essential oils, and it got 85% better.

Try Thieves oil, 3 drops a day, every day for a month. Its expensive, but im planning on buying it next month, since Ive used other oils with success, and Ive read great things online about it.


Reader Feedback
Posted by Teri (Tacoma, Wa) on 05/19/2012

To all who are facing the challenge;

I was diagnosed with IC in 2002. I was scared and devastated because I soon realized that IC has no cure. I had the most respected urologist in the area as my doctor and great health insurance, yet the treatment plan he offered me was useless. I was facing a future of misery. My doctor wanted me on 5 different medications and wanted to schedule a surgery for my incontinence. I left his office and never returned. I realized that I was going to have to do my own research if I was going to have any hope at a normal life.

First I changed my diet, just with this careful analysis I drastically reduced my symptoms. In time all of my symptoms went away. I was symptom free for years. My incontinence resolved as well.

Now over the past 2 years I've had two flare ups. In the last flare up I went to urgent care and was treated for a UTI. Upon examining my urine they confirmed that most definitely I had a UTI, however my lab results were negative.

So again, my quest for treatment has resumed. I have been enjoying all the info on this site. I plan to try most of what I'm seeing here because it's less intrusive to the body than what my Dr offered. And because it seems to work better. If it works, it works.

One thing I have found to bring instant relief from the burning pain around the urethra and surrounding tissue is lavender oil. The real essential oil. I mix this with vitamins E and rub it liberally and gently where it hurts. The pain stop instantly. It is replace by a sort of menthol cooling sensation. I have a couple recipes for this blend. You can add Bergamont eo and a tiny bit of oregano oil. But I think the main relief comes from the lavender. This doesn't surprise me because lavender is great for burns. It takes the sting out.

Lavender 30 drops

Vitamine E. 1 tbls

Oregano 1 drop

Bergamont 5 drops

I carry this with me at all times.

Regards. Teri


Goldenseal
Posted by Gwyn (Denham Springs, La) on 05/07/2012
★★★★★

Dear Friends Who Suffer from IC- What a disease this is, with lots of pain, urgency and most of all not knowing what to do; that can make you think you are crazy!

I have had IC since I was a child but never knew, until my daughter was diagnosed with it at the age of 12 years. I had to live through her pain and anguish for years, and I'm not only living through her pain now; but mine too.

I have tried herbal remedies, and diet and I find one herbal remedy that will help calm that pain down within seconds, and that is Goldenseal! Try it!

I was told by a massage therapist I visited to try Cayenne peppers for ulcers; and I was desperate to try anything to calm this pain down... and do you know that within a few days, I feel great! It has not only helped my pain, but it has also given me energy and helped the muscles and lower back pain I have with IC.

I have also tried over the counter vaginal cream and that helps the burning you get with IC; it does the trick. I have never used medicines doctors have prescribed because of side effects, so I try the natural way always and lots of prayer!

There is another herbal product that will help with the goldenseal already in it and that is Kidney/Bladder by Natures Way, this product really helps and just follow the instructions on how much to take and carry it in your purse with you; and take it with each meal.

A candida diet helps too and stay away fron sodas, it will do you in!

I do hope some of this helps you, because it has helped me and I help my daughter with herbs!

May God Bless you all! Gwyn


Aloe Vera
Posted by Gianna (Costa Mesa, Ca) on 04/20/2012
★☆☆☆☆

I started using freeze dried aloe vera capsules for my mild IC, which I have had for 10 years now and can't seem to find a remedy :( Anyhow, I took 2 capsules 3x a day and I really didn't see any signs of improvement.


ACI-JEL
Posted by Ali (Brisbane, Qld Australia) on 04/19/2012
★★★★★

I had recurrent cystitus for 30 years. Got to the point where I could not have sex without getting it. I would also get it if I got too dehydrated. Doctors advice did not prevent the attacks. I had to help myself, I cured myself by using a mild antibacterial cream instead of KY jelly before sex for six months. I have not had an attack since and that was 5 years ago. Sounds simple, but it worked. If you are into more natural methods you could try ACI-JEL which is just vinegar in a cream. You can also try 1/4 tsp of bicarb with water twice a day to keep you alkaline, as the problem thrives in an acid conditions. Good luck to all you long sufferers, my heart goes out to you.

DMSO
Posted by Britt (Harrisburg, Pa) on 04/06/2012
★★★★★

Hello, I'm 22 year old female suffering with a bad flare up of IC. For the past 2 years I've been getting DSMO treatments every 6 months (once a week for about 6 weeks). I've found these to be amazingly helpful. It's been about 8 months since my last treatments and that is why I think I have a bad flare up now.

I am able to drink coffee (sometimes) and basically anything I want for up for 6 months after the treatments and feel fine!

During this current bad flare up (the worst it's ever been) I've tried cinnamon pills, baking soda, and colliaded silver. So far cinnamon pills and baking soda may have helped a little and just took the silver so I'm not sure how that will work.

I would HIGHLY advise to get DSMO. The first treatment or 2 can be pretty painful in itself, but after that the results are so worth it.

Good luck everyone :)

Multiple Remedies
Posted by Lisadeb (Edina, Mn) on 02/05/2012

Update: Feb 5th: HGH: Bacterial Vaginitus is gone. This was a problem for the last 2 yrs. Daily hair falling out is less on my hairbrush. Skin looks better. Pores are getting smaller. When tried Gotu Kola and Querciten products they still cause too much insomnia due to Gotu-stomach ache and Querciten-Hot at night, so I am off them again. Must wait until I get stronger. I can eat garlic and onion now w/out bad breath. Normally spouse says it's a 24 hr problem. Now it's not even a 2 hr problem. Teeth don't feel dirty at 6PM. Less need to brush them during the day. Feel hopeful and can smile and joke again. I saw on internet that 55% of people saw renewed healing of old injuries" in people who used HGH for 15 days to 2 yrs. I need to heal adrenals and bladder. Bladder bad since 2005. Will text again if more changes.


Couch Grass
Posted by Natalie (Pittsburg, Ks) on 01/31/2012

I have a question about the couch grass, did you still have to adjust your diet?

Natalie


Multiple Remedies
Posted by Lisadeb (Edina, Mn) on 01/28/2012

1/28/212: Female age 48 IC 6 yrs, CFS 20yrs (less w/no sugar, all gone w/no gluten last yr), IBS 20yrs (gluten free last yr pretty much stopped this), Fibro 12yrs (3/4 less since off gluten) Now also on IC diet. Must be strict. Claritin helps. Fem-Dophilis (vaginally helps). Researched HGH 20 yrs ago and amino acids caused Gastro Issues, so could not take. No $ for Real HGH.

Jan 3 2012: I started HGH homeopathic "Vital HGH" and bioidentical estrogen and progesterone for my IC and other health problems. (2 squirts 3Xday of HGH)... So far the only changes are sleeping deeper and lots of dream recall, and able to fall back to sleep after peeing 4-6 times/night (I was in bed 9.5 hrs/night due to insomnia, now down to 9) . My fibro is much less. Feel less "hopeless" now because I can now take Cysta-Q (trying 2/day) when before I got really HOT at night taking it and had a stomachache, so quit (Same w/just Querctin and CystaProtec. ). Estrogen is helping the HOT at night problem also. Been on Cysta-Q for 2 wks. No real change yet. Energy is higher during the day, and can exercise more often. I feel this is a dramatic change. Lost 2 lbs of belly fat w/out trying. (I am 126 lbs now, 5'4") I will try to update again if anything changes. If it doesn't, I will not. :-)


Multiple Remedies
Posted by Mag (Philadelphia, Pa) on 01/24/2012

I have had IC for 3 years now - it started with a UTI and an acute onset of endometriosis and pelvic floor dysfunction. At first, I had a small amount of pain when I ate sugar and fruit - not huge, just a little. I went on antibiotics for 9 months and I was better while on them (I no longer had to get up during the night at all to use the restroom), but I think I further aggrevated my candida problem, which I think is at the root of all of this. I now have no more endometriosis and my PFD has also resolved (anticandida diet and active release technique helped that). I believe I have had candida for a very long time, possibly since I was a young child, and that set me up for a series of 4 or 5 UTIs which brought all of this on. I have been detoxing for a year and a half and have tried numerous herbs, diets (Macrobiotic for 6 months) and I am now trying bladder insulflations of Ozone, which have shown some promise. I was also trying oral Hydrogen Peroxide therapy, but that caused me a huge flare - and I don't really get big flares, just minor irritation. I am thinking of quieting my bladder lining a bit and then doing IV Hyrdrogen Peroxide along with the Ozone to chase out these bad bugs. I am on a strict anticandida diet and I eat lots of good fat (as called for in Bee's healing diet). I am hopeful that I will finally find the holy grail and get rid of this stuff for good. I have had candida in my stomach (gastritis), intestines (IBS), sinuses, on my face and on my scalp and getting rid of it in the bladder has been the hardest. Good luck to everyone with this horrific illness.

Apple Cider Vinegar and Hydrogen Peroxide Douche
Posted by Natalie (Pittsburg, Ks) on 01/24/2012

Hi RABM, I am going to try the douche, hoping it works but I was wondering, what do you use to douche? Do you buy a douche at Walmart or where would you get the supplies to douche. Sorry I have never done this before but REALLY want to get relief without the extreme diet and pills. Thanks so much. Natalie


Acidophilus
Posted by Chevygirl (Tuakau, Franklin, New Zealand, New Zealand) on 01/21/2012
★★★★★

Hi Chrissie, I was told to take acidophilus tablets for IC pain and I must admit, I was pretty skeptical about them working, but I can tell you, they worked within an hour!! I was blown away!

The weird thing was however, I bought them from right where you are at a drug store in Anaheim. The bottle is labeled 'Henry's', freeze dried acidophilus. When they had run out I bought more from our local health shop (in New Zealand) and to my disdain, they didn't work!

I have no explanation for this, so I will have to get my brother, who lives in Anaheim, to send me some more, as those ones definitely did without fail!!

Good luck with this, keep us posted!

Chevygirl, NZ


Cinnamon
Posted by Ichater (Northern, California Usa) on 01/19/2012
★☆☆☆☆

Prior to the worst flare up in my life, I had already been taking cinnamon capsules daily for a year prior... So I don't think that cinnamon works for everyone. I was taking 1000 mg a day and I still had a flare up. :/


Baking Soda
Posted by Mary (Tucson, Az, United States) on 01/06/2012
★★★★★

I have had IC for 30 years. My main pain triggers are vinegar, lemon, citric acid, acidic foods, vitamin C, some of the B vitamins. I am unable to take any products with citrates, orotates, asporotates. The perfect remedy for me is 1/8 tsp. Baking soda (I use nonaluminum product from health store) mixed into very warm water. Usually pain subsides within the hour. If not, I take another 1/8 tsp. It is important to read labels carefully because many products contain triggers. My flare will occur within hours of eating a substance so I have learned that even small amounts of vinegar in mayonaise and salad dressing can be a problem. Before I reached menopause, hormones (I believe estrogen) were a trigger as well. That occurred at onset of menstrual cycle. An over the counter product for vaginal burning was very helpful to me at that time. It contained Benzocaine for numbing. I would only use for extreme pain though because it contains parabans, etc.

I learned these are common causes of flares at the IC website: Vitamin C, some B vitamins, the hormone Estrogen, acidic foods. Unfortunately, I suffered many years before I found what was helpful for my flares. Now I forget that I even have IC because I can treat it so easily. I'm hoping this will be helpful to someone.

Reader Feedback
Posted by Catherine (Halifax, Nova Scotia) on 12/15/2011

I had bladder surgery (cysto) and that is how my IC was diagnosed. I have had it for approx 15 years. I recently had another bladder stretching and now am getting an implant to help control the spasms. I am a Grade 3 and have tried everything to control or maintain the pain from IC.


Reader Feedback
Posted by Mary (Edina, Mn) on 12/02/2011

If you have tried everything, and you can't get relief, try what I have tried: It's a acidophilis product found online or in large health food stores. It contains:

Lactobacillus rhamnosus GR-1

Google these for the product. If you look under amazon for it, there are hundreds of Vaginial Bactriorosis stories, but also some on IC. So hey I bought a bottle and WOW was it helpful. Pain gone. Like fast. Except I still can't cheat on the diet. But I can sleep, and go in the car on long rides, etc. For anyone with pain: Here is the fastest route to use this product: Day 1 eat 2 in AM, and 2 in vaginal tract. Just push the capsules up there. They will disintegrate. Within one hour, the pain will go to about zero. Then eat 2 b4 bed, and 2 more vaginally, After that, eat 2-3 per day, and 2-3 vaginally (especially 2 b4 bedtime). Stools may get looser. Maintain at 1 to 2 per day per oriface. Must be refrigerated. Buy the 60 capsule bottle as it 's almost the same price as the 30 capsules. Not a cure, but insanely helpful. I've been on this stuff for 3 weeks. I was about to go crazy. I had tried everything over 5 yrs. Side effect: at 3 capsules/day vaginally, the vaginal fluid smells acidic. Almost like stale pee. But hey it was just a few days. After 3 weeks I still can't try new foods, as when I do, I must do a vanignal capsule to calm down my bladder, but I am not in pain after about 1 hr. Blessings, Mary


Chondroitin, Glucosamine, MSM
Posted by Mary (Hastings, Mn) on 11/23/2011

Update on this Glucosomine & Chondroitin: I found that when I take it, the Quercetin makes me VERY hot only at night. I tested this by just taking Quercetin. Same result. The heat radiates from my vagina! I am 48 yrs old, and having night flashes, but this is ridiculous. I had to quit the product. I had tried it for a few months and I wasn't gettting much sleep. I just got hotter and hotter. I hear it helps alot of other people though as stated by their testimonials on-line. I called the company, and they said that they had not had this complaint before. Maybe I will need to try another brand.


Gelatin
Posted by Lynne (Titusville, Pa) on 11/03/2011

Mel,

I was wondering if you noticed any stool discoloration with taking the gelatin, because I have noticed reddish coloring when going to restroom since starting the gelatin about 3 days ago.



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