Posted by Journey5000 (USA) on 12/31/2023
★★★★★
I understand that a lot of people with lupus, suffer from a lot of inflammation. I suggest omega-3 Fish Oil and Irish sea moss for inflammation as well. Zinc and Selenium to prevent inflammation. A GOOD multivitamin to boost immunity (add A, E & C vitamins). To calm down pain Lavender and Carrageenan.
Posted by Gricel (Dallas, Tx) on 01/11/2016
★★★★★
I have lupus, with kidney related problems, I was on dialysis for 6 months and taking steroids before I started my road to recovery with natural remedies, my DNA us still positive but overall I feel good most of the time, I have taken many products over the years, but the ones that have worked the most are a multi vitamin with minerals.
I am a woman so I feel that hormones play a role in my lupus as well, so I also take DNA 50mg a day in combination with dong quai, damiana, and maca, I use half the dose as directed by the bottle.
For the inflammation I use fish oil, 2,000 mg per day or more sometimes, and for kidney I use kidney support from Tibetan Herbal Balance.
Even though my lupus is still active I don't have to take all the crap from the doctors, hope this helps other people
Posted by Deborah (New York, NY) on 04/01/2012
★★★★★
Last year I was diagnosed with cutaneous lupus. I have two large skin patches one on my arm and one on my left butt cheek. These are itchy and feel bruised and have also atrophied to leave a concave indentation in my flesh. I am told that this is because the inflammation is in my subcutanaeous fat. I'd like to say I have found a cure for these but I have not - yet. HOWEVER. I began to have accompanying joint pain - terrible nipping pains and feeling constantly like I had been in a car accident - an all over feeling off stiffness and bad bruising. It was debilitating and depressing. Through exhaustive research, trial and error I have found two supplements that are working for me and have decreased the pain SIGNIFICANTLY. One is CM - cetyl myristoleate. I would advise Googling it and doing your own research but I could find no down side. The other is Perna - green lipped mussel extract - a fairly high dose. I began taking these two things together and initially my symptoms worsened but suddenly and quite dramatically the pain lifted. I do think these are worth a try for anyone suffering from chronic joint pain. They certainly changed my life.
One more note on the lupus. I have recently been seeing a new and very good naturopath. Through stool testing for parasites we discovered that I have a very high level of the parasite blastocystis hominis. Also of candida. I knew about the candida and that it was probably part of the lupus causing package but the parasite is a new and interesting development. I will be treating both of these things appropriately with herbs and continued healthy diet (I am completely gluten, caffeine, dairy, soy, alcohol, sugar, nightshade and red meat free; I am a great cook and its really not as hard as it sounds) and will be very curious to see the health benefits of getting rid of these critters. My naturopath feels that they could very likely be a major contributing factor to the jangling of my nervous/immune system that caused the lupus. I will report back with results and would love to hear if anyone else has discovered a parasite/lupus link. If I can help or support anyone else in their healing journey please let me know. Thanks and good health to all.
Posted by Theola Williams (Gainesville, Florida) on 05/06/2011
★★★★★
My name is Theola, from Gainesville, FL. I have been dx with Lupus for two years, and it has been a real long journey. I have been drinking hot sage tea which helps with my inflamation and joint pain. I hate taking steroids bc it makes me eat like a run away slave and gain weight. I'm starting to take more vitamins, and its really helping. Im thanking god im still here. Bless all!!!
