The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Salt Therapy
Posted by Neal (Asheville, North Carolina Usa) on 02/20/2013
Hello Ted, I was wondering if you had any information about using salt therapy in the treatment of Lupus? By salt therapy I am referring to a manufactured salt micro climate similar to what is found in a salt mine. I have 'built' a micro climate of Himalayan and Polish salt from approximately 20 tons of salt mined from approximately 1-2 miles underground from salt that is about 200 million years old. This 'cave' is a controlled environment kept at between 67-72 degrees fahrenheit and 50-60% humidity. This mimics the conditions in a salt mine.
This type of treatment has been shown to be beneficial for respiratory problems (asthma, bronchitis, allergies), dermatologic problems (eczema, psoriasis, acne), hypertension, stomach disorders, stress, and some autoimmune diseases, but have not found specific guidelines for Lupus.
Could you let me know of any findings you have that might support this treatment for sufferers of Lupus. Thank you, Neal from Sola
Lupus Nephritis
Posted by Rsw (Uniontown, Oh) on 01/10/2013
Low dose naltrexone is effective for systemic lupus. A doctor cited in the book "Honest Medicine" asked his two aunts who had lupus if they would like to try LDN. They did and in a month they were both much better. LDN is not a cure but will moderate the immune system so that many autoimmune diseases can become a non-issue as long as the LDN is taken at very low doses daily. MS will not progress in most cases, Parkinson's can be helped, Crohn's has over a 67% remission rate, many bowel and cystitis problems improve. It has No side effects. Please see www.ldninfo.org for more information. It is also very inexpensive! It can also be beneficial for cancer, along with other treatment strategies. (It is not a stand alone treatment for cancer) It can be taken with any other drugs except opiate based medicines.
Lupus Nephritis
Posted by Art (Tustin, Ca. Usa) on 01/09/2013
In reply to Angel from Quezon City, Philippines: The following new abstract shows that supplementing with 2000 iu of vitamin D a day can reduce symptoms and inflammatory markers of SLE:
http://www.ncbi.nlm.nih.gov/pubmed/23204220
That is important, but what is more important than the dose of vitamin D is taking enough vitamin D to get your vitamin D serum level (25 OH D serum level) well into the reference range of 30ng/ml to 100 ng/ml. Some people require more vitamin D than others to achieve a specific 25 OH D level, or to say that a little differently some people simply require more vitamin d than others so it is the actual serum levels that are more important than just saying to take a specific amount of vitamin D.
This next abstract tested vitamin D at large weekly and monthly doses. The test started out at 100, 000 iu of vitamin D per week for 4 weeks and then was followed up with 100, 000 iu of vitamin D each month for 6 months. So roughly 1, 000, 000 iu of vitamin d was given over a 7 month period if I understood it correctly or roughly about , 4, 600iu per day over the 7 month period. Again, a reduction in inflammatory cytokines and markers of SLE were found and improvement seen, adding some confirmation to the finding of the first study above. One significant difference with this second study at the higher dosing than the 2, 000 iu per day in the first study, was that there were no observed SLE flares during the 6 month follow up period and that seems pretty significant to me!
http://www.ncbi.nlm.nih.gov/pubmed/23075451
Man normally makes vitamin D from full sun exposure on a daily basis when your shadow is shorter than you are tall and could never naturally produce 100, 000 iu of vitamin d in one day, so this is not a natural amount for the body to handle in such a short period of time. Mainly this kind of dosing is used in these studies to help with study medication adherence and possibly to speed the buildup of 25 OH D in the serum which can generally take about 2 months. I think daily supplementing or daily full sun exposure is more natural to the human body and is possibly easier for the body to handle.
Best wishes!
Art
Lupus Nephritis
Posted by Angel (Quezon City, Philippines) on 01/09/2013
Good day! We read about the posts, comments, and questions about SLE.
My daughter was hospitalized and shown symptoms of SLE like hair loss since her elemenatry days and continous at present at her age 21. And the doctor test the ANA and the result shown positive. Her face have a a butterfly rash together her shoulder and her back. I'm very worried about her because I don't have any idea what kind of disease is this. I just want to ask help on how we can cure her. Hope that you can give suggestions of medicines that she need to take. Thank you and hope that you response as soon as possible. Were still in the hospital right now. Thank you and God Bless
Lupus Theories
Posted by Tom (Seneca, Sc) on 12/21/2012
The National Institute of Arthritis and Musculoskeletal and Skin Diseases published a paper in 2005 asserting a likely link with the Epstein-Barr Virus in triggering Lupus. Molecular Mimicry resulted from the anti bodies produced by the immune system with some people (predisposed?) to create the antibody and in the creation of the antibody which was to kill the EB Virus, the antibody attacked a protein in the body instead: hence molecular mimicry. The article is on line and can be accessed by googling the National Institute above with search words "virus" and "lupus."
The first course of treatment then would recommend ridding the body of the virus to make the anitbodies stop their search and destroy mission... Accidentally shooting their own. Get rid of the trigger. Get rid of the virus. The article did not comment on how to treat. This is my own consideration.
So consider the colloidal silver solution consumed twice daily at a tablespoon each dose. Do this for a two month treatment and closely monitor to determine a change in symptoms. If better, keep up the protocol for up to a year. Yes a year. I take CS every day for the past 10 years. If one takes a properly diluted liquid no argyria results. Again the NIAMS only discussed the viral trigger. It did not suggest a treatment. The treatment suggestion is mine, not the Institute.
Ted's Remedies
Posted by Jennifer (Owensboro, Kentucky) on 12/10/2012
I don't know if anyone has replied to you question. I have just now found this site and information. It is entirely health to continue the baking soda every day if you want. Personally I have not been using it because I use lemon or apple cider vinegar, but may add the baking soda as well. Baking soda is NOT the same as baking powder!
Margaret's Lupus Remedies
Posted by David (Las Vegas, Nv Usa) on 11/29/2012
to margaret: my wife has lupus and it's in her brain. Our doctor told us in 2005 that he had 2 other patients that had lupus in their brain and they both died within 2 years of diagnosis. I read a book by a Dr.Strand from colorado, and he had a list of vitamins and supplements to take. My wife takes a multi-vitamin, vitamins e and b complex, and c. She also takes grape seed extract, co-q10, fish oil, and l_glutathione. This may (2013) will be 8 years since she was diagnosed with lupus. also and the big thing for us is, as we are both christians, there have been a lot of friends and family praying for us. david
Holistic Approach
Posted by Gloria (Spart., S.c.) on 10/09/2012
Natural medicine for lupus. I have a friend who was diagnosed with lupus 36 yrs ago developed kidney cancer and given 6 months to live. He went to natural, herbal medicine and here 36 yrs later still dealing w/ certain symtoms but still at 73 working and living faily normal life cancer gone. I do believe in holistic medicine. I know of more cases of lupus w/ same result.
Multiple Remedies
Posted by Rsw (Uniontown, Oh) on 09/19/2012
Dr. Gluck (a Harvard educated expert on LDN) had two aunts with lupus. He asked them if they wanted to try Low dose naltrexone. They did, and in a month they were both doing well. Lupus is an autoimmune disease that responds very well to LDN, a harmless, no side effect FDA approved drug. See www.ldninfo.org or read Julia Schopick's best seller, "Honest Medicine. ". Be well.
Multiple Remedies
Posted by Peggy (Cresskill, NJ) on 09/19/2012
Hello all~~~ First let me say, I am glad to have stumbled on you all. Other patients, contributors, I have never soaked up so much information in all my life. Even with a strong medical background, instant connections were swirling around so quickly - I didn't know what I wanted to do first! The last twelve years has been a struggle living with SLE. My lungs & bones are affected, chronic pain due to bone degeneration, herniations, and compression fractures has left me but a sliver of the person I used to be. At 38, with three small children, my life seemed to be so far away. I knew the treatment was killing me. Treatment for my complications always involved high dose steroids, then chemotherapy, then supposedly a Lifetime of Immunosuppressive drugs..... If for nothing else, don't tell me I can't do something, or there isn't anything else you can do for me. Funny, that's exactly when Professionals start to blame symptoms on depression!
I found the closest, most trusted homeopath I could get to - now disabled & in a wheelchair due to pain. She was my first angel & I started on the road less traveled. I still don't believe that if anyone else had heard this prognosis they wouldn't have looked elsewhere for help. My journey began with alkalinizing & purifying all water, a liver detox and immune support. This truly was the only time I had feelings of what I used to be. I was capable of so little, I'm not sure how I got through with so little home support. Now, friends & family jumped on the "crazy" bandwagon. As they kept themselves busy, I improved. With the support of a pain interventionist, I can now walk 50 feet with a cane, food shop holding on to the cart & cook 5 nights/wk, the decent food my family needs too.
This year I found a second angel to build on the routine, I wanted to feel better & knew I could with support. Then I found you, found the first true hope & healing in all these years.... Now, if I can organize this plan, I will be very busy. I continue ph Balance, through clean, ionized water mixed with baking soda & ACV, candida support, dairy free probiotics & enzymes with meals, immune modulation with colostrum & peptides, neurological support with B vitamins & Antioxidants & free radical scavengers. I continue liver support & use DMSO for pain & inflammation. I have seen a glimpse of how good I will feel, as I have also had to move slowly due to Herxheimer reaction. I read as much as I can & see that many recommend following a celiac diet & new suggestions for vitamins & amino acids for energy & acupuncture for ongoing pain. I really needed to thank all of you for taking the time to post & care. I have never felt this level of hope. I know I have a long way to go, positivity seems to make all the difference. I only hope as I improve I can inspire someone as you all did for me & continue to pay it Forward... Thanks again~~~~~~~
Russian Herbs
Posted by Sam (Portland, Oregon) on 07/03/2012
★★★★★
I am Russian, and we, as the rest of the world, rely on herbs as a first choice of treatment for chronic and acute diseases. Here is a translation from Russian wikipedia about treatment of lupus. Phytotherapy in the treatment of lupus erythematosus: a good supplement to traditional methods of treating lupus will phytotherapy. It will gradually reduce the dosage of drugs, reduce their side effects. For this purpose, use herbal teas, relieving symptoms of inflammation and improve blood circulation. Properly chosen herbal remedies relieve symptoms of an allergic reaction, can help the body to recuperate faster. As preventive measures to avoid the impact of ultraviolet radiation and other treatments, while staying in the open air should be applied on the skin sunscreen. Despite the fact that the disease is chronic, many patients with poorly marked form, are able to maintain their way of life. If this is the main importance is the depth and nature of the lesions of internal organs, especially the dangerous of which is severe and irreversible renal failure leading to death. Modern medicine has a wide range of drugs that help slow the pathological processes that greatly facilitate the negative symptoms, and thus extend the life of man.
For the treatment of lupus herbs should be taken: nettle leaf, bilberry pine, color, tansy, herb St. John's wort, birch leaves, grass, Knotweed, leaf plantain, mother and stepmother, pine, dandelion root, Oregano grass, clover drug, herb yarrow - equallyTwo tablespoons pre-shredded (in a coffee grinder or grinder) collection pour 0.5 liters of boiling water, drain, along with the grass in a thermos, leave overnight. Take 1/3-1/4 cup 3-4 times a day. The course of 1.5-2 months. After 1 month of treatment interruption herbs can be repeated.
Black Seed Oil
Posted by Jamie (Indianapolis, In ) on 06/26/2012
Black seed oil for lupus. would it be safe to take? if so how much? 3 teaspoons a day for 6 months. can it be taken with acv, or honey? i see on other sites, that it works best when taken with something else. please help.
Discoid Lupus
Posted by Chantelle (London, London, London) on 04/11/2012
★★★★★
Hi, Although I haven't personally corresponded with Ted, I would like to share with others the amazing results after 1 week of taking bicarbonate Soda 1/2 teaspoon in half a glass of water 3 times a day, 1/4 of Borax in 1 liter of bottle water, Lysine 1000mg 2 a day with 1000 Vitamin C powder 2 a day, Beta Glucan 1000mg 2 a day, Zinc 15mg with Copper 0.75mg.
At first I put the Bentonite Clay all over my body fanned it dry & washed it off, three times. A few days later, I applied the clay only on the affected areas. I also have been applying Virgin Coconut Oil on my lesions.
Bless Ted, I have suffered significantly over the years and for the first time I believe that my lesions will heal. Prior to taking Ted suggestions from different post the lesion on my cheek felt hard and inflamed, the inflammation on the lesion on my nose is reducing and changing in colour.
I went to Holland & Barratt today, the sales assistant recognized me from my last visit, when I share my experiences with her, she admitted that she was surprised as the last time she saw me the lesion was looking much pinker.
I am in the process of purchasing Potassium Bicarbonate to add to alkalizing and DMSO for old scar.
Will keep you posted on my success, Chantelle
Margaret's Lupus Remedies
Posted by Lillian (Vass, North Carolina) on 04/10/2012
Thank you, Margaret. Your thread made me feel like there is definite hope. I had no idea lupus could be caused by all these other elements. I'm very grateful for Ted's assistance. He's a gem!
Supplements
Posted by Deborah (New York, NY) on 04/01/2012
★★★★★
Last year I was diagnosed with cutaneous lupus. I have two large skin patches one on my arm and one on my left butt cheek. These are itchy and feel bruised and have also atrophied to leave a concave indentation in my flesh. I am told that this is because the inflammation is in my subcutanaeous fat. I'd like to say I have found a cure for these but I have not - yet. HOWEVER. I began to have accompanying joint pain - terrible nipping pains and feeling constantly like I had been in a car accident - an all over feeling off stiffness and bad bruising. It was debilitating and depressing. Through exhaustive research, trial and error I have found two supplements that are working for me and have decreased the pain SIGNIFICANTLY. One is CM - cetyl myristoleate. I would advise Googling it and doing your own research but I could find no down side. The other is Perna - green lipped mussel extract - a fairly high dose. I began taking these two things together and initially my symptoms worsened but suddenly and quite dramatically the pain lifted. I do think these are worth a try for anyone suffering from chronic joint pain. They certainly changed my life.
One more note on the lupus. I have recently been seeing a new and very good naturopath. Through stool testing for parasites we discovered that I have a very high level of the parasite blastocystis hominis. Also of candida. I knew about the candida and that it was probably part of the lupus causing package but the parasite is a new and interesting development. I will be treating both of these things appropriately with herbs and continued healthy diet (I am completely gluten, caffeine, dairy, soy, alcohol, sugar, nightshade and red meat free; I am a great cook and its really not as hard as it sounds) and will be very curious to see the health benefits of getting rid of these critters. My naturopath feels that they could very likely be a major contributing factor to the jangling of my nervous/immune system that caused the lupus. I will report back with results and would love to hear if anyone else has discovered a parasite/lupus link. If I can help or support anyone else in their healing journey please let me know. Thanks and good health to all.
Electromagnetic Frequencies, Cold Weather
Posted by Steve (Lowell, Ma.) on 01/10/2012
The floride used to kill bacteria is actually harming you. Good Luck
Ted's Remedies
Posted by [email protected] (Temecula, California) on 11/28/2011
THANK YOU TED FOR SUCH WONDERFUL REMEDIES, BUT MY QUESTION TO YOU- FOR HOW LONG DO I KEEP TAKING BAKING SODA I HAVE BEEN TAKING IT FOR ABOUT A WEEK. DO I STILL CONTINUE IT EVERY DAY LIKE I HAVE? OR ONCE A WEEK? IS BAKING SODA AND BAKING POWDER THE SAME?
Margaret's Lupus Remedies
Posted by Kelle (Lafayette, In) on 11/19/2011
Hi Sherry from Ft. Wayne. I just read your post. Any suggestions on an integrated doctor. I live in Indiana also. Thank you.
Lupus Nephritis
Posted by Jeremy (Maavern, Ohio) on 09/01/2011
I was diagnosed in 2007 with severe Lupus Nephritis which was causing renal failure. I was put on cytoxin treatment and everthing was going great until my recent flare here in march. I'm back on prednizone which helps but my kidney function is starting to go again. Any advice would help greatly. I'm kind of afraid of taking too many things different because I have so many filter in my kidneys completely scarred over. Please post some thought on this subject. Or someone who has this type of Lupus.
Margaret's Lupus Remedies
Posted by Sherry (Fort Wayne, Indiana) on 08/13/2011
★★★★★
Just wanted to share my story on lupus. In Dec of 2010 I went to see a intergrated doctor. Found my gluten numbers really high along with antibodies for lupus. Went gluten free and in only 2 months my lupus antibodies were gone! Just had a follow up visit and my antibodies are still gone. I say go gluten free. I also had my Vit D checked along with b12 and iron. If you live near a intergrated doctor I would recommend going. Good luck to all out there, Sherry
Margaret's Lupus Remedies
Posted by Joanne (Toronto, On) on 08/09/2011
Hi Margaret. I am responding to a posting you submitted to Earth Clinic regarding lupus remedies.
Can you tell me how long it took before your lupus disappeared? For the stress tabs -what brand and what dosage mgs per day? Also, what made you take these supplements.
Supplements
Posted by Mmsg (Somewhere, Europe) on 07/08/2011
have you tried evo (coconut oil)?
Supplements
Posted by Rush (Usa) on 07/07/2011
Supplements
Posted by Marie (Houston, Tx) on 07/07/2011
Can someone please help me? I have been dealing with a skin burning problem for over 10 years when exposed to UV computer screens, TVs, lighting in stores, regular light, and sun. It's feels like a burn/inflammation. I think it might be connected to lupus as I had the rash 10 years ago. The rash never came back but the burning is relentless. I've tried fish oil, turmeric, acv, eating only veggies, vit e (which helps a little), cinnamon, and so so many other things to no avail. I work at a computer for 8 hours so I can't escape the burn. My whole life revolves around avoiding any kind of light, cooking in the dark, going blind b/c I have to turn down my computer screen so dark so I don't burn. Has anyone heard of this? Is there a cure? I'll try anything!
Ted's Remedies
Posted by Wormgirl1 (Lowell, Ma Usa) on 07/04/2011
I read this post with interest and noticed that although it has received a lot of positive comments, only one person has given a "case report" of efficacy. That's too bad. I wish people would follow through and post their follow-up.
Ted, I also notice you commented on a low incidence of lupus in your native Thailand. I believe this might be because people in S.E. Asia are colonized with helminthic parasites, which are showing a lot of promise as therapies for several autoimmune problems in the developed world, including asthma, allergies, MS, and inflammatory bowel diseases. Parasites get a bad rap, but they may "train" the immune system not to overreact to harmless substances. Antibiotics kill off "good" bacteria, but we also lack parasites, which in low numbers may have a role in keeping us well.
I think you are dead on in altering pH as a method of degrading gut biofilms, which I believe create conditons for autoimmunity, but healthy gut flora are also important.
Supplements
Posted by Theola Williams (Gainesville, Florida) on 05/06/2011
Stay Motivated and try not to stress!!! MESSAGE TO ALL!!!
Supplements
Posted by Theola Williams (Gainesville, Florida) on 05/06/2011
★★★★★
My name is Theola, from Gainesville, FL. I have been dx with Lupus for two years, and it has been a real long journey. I have been drinking hot sage tea which helps with my inflamation and joint pain. I hate taking steroids bc it makes me eat like a run away slave and gain weight. I'm starting to take more vitamins, and its really helping. Im thanking god im still here. Bless all!!!
Supplements
Posted by Mona (Ny, Us) on 04/24/2011
I caught an infection from trying on pants in a store that someone had before and now I have the disease. I find that if you try homeopathy, there was clearly no other choice after trying traditional medicine. I also find that with homeopathic medicine, nothing happens at first until 6mo-1 yr. later and then it finally works. Problem is with that though, if you don't know what you're doing and you're just testing alternative therapies, you can waste a long time on the wrong alternative medicine.
B3, Gluten, Blackstrap Molasses
Posted by Joylie (Solana Beach, Ca) on 02/16/2011
I just Wikied "
Pelegra, " and briefly read the beginning of the history section and this is what it said:
The traditional food preparation method of corn (maize), nixtamalization, by native New Worldcultivators who had domesticated corn required treatment of the grain with lime, an alkali. It has now been shown that the lime treatment makes niacin nutritionally available and reduces the chance of developing pellagra. [4] When corn cultivation was adopted worldwide, this preparation method was not accepted because the benefit was not understood. The original cultivators, often heavily dependent on corn, did not suffer from pellagra. Pellagra became common only when corn became a staple that was eaten without the traditional treatment.
MMS
Posted by Bobbie (Jamestown, Pa) on 01/31/2011
Tom, are you saying you think it is safe to take both my plaquenils & this mms stuff? The reason I asking is because they are both supposedly used to kill malaria, & I want to make sure they are safe to take together. I cannot find anything on Mr. Humble's site addressing this issue.
MMS
Posted by Tom (Regina, Sk) on 01/21/2011
Bobbie:
Have you looked on Jim Humble's site yet for things?:
http://jimhumble.biz/
He now calls MMS "Master Mineral Solution" to try to answer his critics and detractors who say, among other things, that he is peddling snake oil!
Some links on his site are not active, but the 1000, 2000, & 3000 protocols even have videos up on You-tube.
An excellent search site for videos is www.zapom.com, which will find vids from every site on the net including the main ones like GoogleVid, Youtube, etc. Here is the example search for MMS:
http://zapom.com/mms mineral miracle supplement
There are many books on lupus, this one from 2004 with all high reviews, a rarity:
http://www.amazon.com/Lupus-Underground-Long-Ignored-Non-Patentable-Counter-Intuitive/dp/0976342804/ref=sr_1_23?s=books&ie=UTF8&qid=1295589281&sr=1-23
Also, there are many articles in a good search that show studies even within NIH that show a correlation of very low Vitamin D levels and lupus.
MMS
Posted by Bobbie (Jamestown, Pa) on 01/20/2011
Ted, I recently read an post on here answering a question about Miracle Mineral Supplement, & as I have thought of trying it to help get rid of my candida, I read it. I noticed you mentioned it has been used to treat malaria, as my Plaquenils also are. I have been on Plaquenil for a few years to treat the lupus I have.
Is there a danger if I take the MMS while I am on Plaquenil?
I am trying to remedy my Lupus by being on a candida diet, (since I have found this site) & I am doing the Borax thing along with the baking soda also. I have bought some probiotics, liquid, from the health food store, but noticed there is sugar in it, I am holding off on taking it.
Detoxing
Posted by Better But Not Cured Yet (Canberra A.c.t., Australia) on 10/14/2010
I also was extremely photosensitive, hives and all. Its spring in oz now I am able to garden(with hat ) maybe its the baking soda? I also bath with it and use to clean. No soap. It actually brought up my lupus rash like a road map after using bs as face scrub. Of course I think that selenium and chlorella no caffeine(much) also helping and bio mag.
Detoxing
Posted by Photosensitive (Houston, Texas) on 10/10/2010
Hello - thanks for this thread on lupus, what a find. This is a little off topic of SLE but you all seem so informed maybe you can help a suspected DLE victim. I developed round lesions years back followed by sudden weight and hair loss and increased photosensitivity to both outdoor and indoor light - mostly indoor uv. I was tested for lupus but came back negative. Mostly my battle is extreme fatigue and photosensitivity right now so much so that I can hardly work on my computer at work without my face feeling like it's in an oven. If I turn the monitor down to almost black and use a uv protection screen it's ok but God help me if I have to attend an hour long meeting under full blown florecents - my skin goes crazy. On top of that my vision is starting to go as well. Just a few months ago I started getting leg pains for no reasonable explanation. If I dont' have lupus I don't know what else it could be. I seem to fit all the symptoms of at least some form of lupus. Like I said mosly it's the extreme photosensitivity that bothers me the most, which I can usually tame for about a 1/2 hour with vitamin e or b-12 sublingual. But just found out my b-12 has sucralose - which may explain why the remedy is only short lived and the photosensitivity comes back a 1/2 hour later.
My question is this (sorry so long winded). Will this ACV, baking soda, borax treatment work on photosensivity or should I try something else to cure that. Unfortunately sunscreens do not work and I have tried them all they actually tend to burn my skin worse. P. S. - to help in the diagnosis I did have bready implants the silicon type for four years but removed them years ago. Please help!!
Detoxing
Posted by Ibu_works (Canberra, A.c.t.) on 10/08/2010
★★★★☆
G'day! I have in past week been slowly detoxing using baking soda, chlorella, magnesium and tissue salts as well as apple cider vinegar. I am blown away by increased energy and a new found optimism, which has made dull headaches and twinges of joint pain easy to bear. Have ordered food grade h202 to begin serious work. Please, any advice or extra feedback would be great__thanks
Apple Cider Vinegar
Posted by Sue (Arlington Hts., Il) on 06/15/2010
★★★★☆
I have found the ACV has stopped the reflux side effects I was getting from Plaquenil my MD put me on for the SLE.
Ted's Remedies
Posted by Jen (R) on 04/12/2010
Ok ted and ec readers.
i am a person who has hyperthyroid. i have written a few posts on here about this and i was reading again teds lupus remedies and something struck me and i dont know why it hasnt before because i have read this post a hundred times. Rhonda from Charleston SC wrote about autoimmunity being connected to strep and staph bacteria. Thats when it hit me that 2 and a half years ago i was diagnosed with Group B strep while i was pregnant. (and i must say that it is not a very pleasant test) Any ways i was told that it was no big deal and that they would give me antibiotics when i was in labor so the baby wouldnt get it. And i never thought anymore about it... until now and i cant find much info about it on the www. other than its part of the strep bacteria family. So my question to ted and others is, What is this Group B strep? Could this be a reason as to why i have a Hyperthyroid? and How in the world do i get rid of it? I dont want it and i dont want to be a carrier of this disease. Or any other for that matter. if anyone knows about group B strep i would love any info. Please, even if it dosent pertain to anything i have asked.
also they say Group B strep is not very common, well of the 4 others who were pregnant at the same time 3 off us had it and were told the same thing.
Thanks so much in adavance
Peace love and life
Jen
Ted's Remedies
Posted by Christmas (Dallas, Tx, USA) on 12/24/2009
OMG! I am so happy to find this site and especially your comments. Thank God someone decided to be so descriptive about what is going on with stools, menstration, etc. At this point, Doctors are talking by the watercooler about me and even before I step into a new doctor's office, they are talking about me in the hall before they walk through the door. I can hear them, they should at least walk down the hall a little. I just visited an infectious disease doctor for the second time since I have lost 25 pounds since this has begun and he plainly states to me, "you seriously need to see a psychiatrist, there is nothing wrong with you except self inflicted wounds!". To make things worse, I got a secondary staph infection which infected my whole family including dogs and killed one of my gerbels. If that didn't confuse everything, I don't know what else!
Anyway, that is beside the point. I wanted to ask you how you picked out your Rheumatologist and what test results helped you get your diagnosis? I have been diagnosed with Fibromayalgia, Ankylosing Spondylitis, now asthma since i am having trouble exhaling, and anxiety issues and depression.
Good grief. I wouldn't be depressed if people would stop saying that I am harming myself (which I am not, these greasy, sticky, waxy lesions just won't heal) Anyway, my symptoms are the same including what you are calling the nanoinsects (need more info., I am new to all of this and this stuff is everywhere in the house) and it seems to respond to fungal treatment oral and topical. That is why I ended up at the infectious disease doctor 2x. However, when I stop the treatment, it reoccurs.
I am sitting here on Christmas Eve while my family is on vacation without me because I waited to be insulted by the infectious disease doctor, thanking God that I found this site.
Any information that anyone can give me regarding how I approach a new set of doctors along with my previous records. I am now hopeful! And by the way, somehow after reading all of this, I feel enlightened and happy. Imagine how a little bit of validation helps!
OOOOX
Christmas
Coconut Oil
Posted by Ted (Bangkok, Thailand) on 11/01/2009 392 posts
A lupus may be helped in addition to coconut oil, is the borax remedy which reduces inflammation, such as 1/8 teaspoon per liter of drinking water. 4 or 5 drops of bloodroot tincture in a cup of warm water three times a day. In addition, lugol's solutions is added to the drinking up, at 3 drops, plus SSKI at 3 drops, twice a day. Vitamin C 1000 mg a day so that the body can utilize the iodine is needed. Those are some extra things I believe will help, especially the borax, alkalization (1/4 teaspoon of baking soda plus 1/4 teaspoon of potassium bicarbonate twice a day empty stomach in cup of warm water), and the iodine, which reduces autoimmunity. I am currently looking into the use of humic acid to reduce autoimmunity. The dose is to use humic acid powder (known commonly as sodium humate) at 1/8 teaspoon a day taken at least twice a day. One final push that I found helpful was taking plenty of tumeric powder or curcumin. There's no upper limit on taking that, so I may start with a teaspoon twice or three times a day.
Coconut Oil
Posted by Bibi (Nashville, Tn Usa) on 10/27/2009
★★★★☆
I read Ted's posting dated 04/02/2007 under "Lupus" as an ailment. At the end of his posting, he stated that lupus was still rare where he lives (Thailand). My understanding is, there is a large consumption of coconut products in Thailand. I have been using coconut oil (daily), and occasionally consuming coconut milk, coconut juice and other coconut products. As coconut is reportedly antifungal, antibacterial, antiviral, and antimicrobial, I am wondering if this is a potential cure for lupus.
I was diagnosed in March of 2008 as having lupus (SLE). I took myself off the toxic meds I had been put on in Sept of 2008. Since taking coconut oil and other coconut products, my swelling has subsided and I am doing much better. Of course, it may be just a remission, but I truly believe in the power of coconut. That's my two cents...
Ted's Remedies
Posted by Crystalbailey076 (Salyersville, Kentucky) on 08/17/2009
I have systemic lupus and I have being using the borax and baking soda. I have read conflicting info on the amount of mixture to use. Some state 1 liter divided into 5 equal doses (one dose per day for 5 days), but then others state 1 liter of mixture per day for five days, which would be 5 liters in five days. So which should I be doing? and I would also like to add the sea salt and the acv but can I add it with the borax and baking soda??
Please respond because I really need some relief. One liter a day is alot different that 1/5 of a liter per day and I would not be getting the maximum results. thanks
Baking Soda
Posted by Michelle (Ojai, CA) on 07/14/2009
★★★★☆
I have been taking 1/2 tsp baking soda in an 8 ounce glass of water on an empty stomach as part of Ted's Remedies for Lupus. My question is: How long after drinking the mixture may I eat? PS: So far the remedy I found here has HELPED my LUPUS symptoms tremendously! Still on the mend, but after one full week, I have more energy during the day. I am hopeful that the other symptoms will abate as well. Thanks to Ted & everyone who wrote in with their feedback... very helpful.
