The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Holistic Approach
Posted by Gloria (Spart., S.c.) on 10/09/2012
Natural medicine for lupus. I have a friend who was diagnosed with lupus 36 yrs ago developed kidney cancer and given 6 months to live. He went to natural, herbal medicine and here 36 yrs later still dealing w/ certain symtoms but still at 73 working and living faily normal life cancer gone. I do believe in holistic medicine. I know of more cases of lupus w/ same result.
Multiple Remedies
Posted by Rsw (Uniontown, Oh) on 09/19/2012
Dr. Gluck (a Harvard educated expert on LDN) had two aunts with lupus. He asked them if they wanted to try Low dose naltrexone. They did, and in a month they were both doing well. Lupus is an autoimmune disease that responds very well to LDN, a harmless, no side effect FDA approved drug. See www.ldninfo.org or read Julia Schopick's best seller, "Honest Medicine. ". Be well.
Multiple Remedies
Posted by Peggy (Cresskill, NJ) on 09/19/2012
Hello all~~~ First let me say, I am glad to have stumbled on you all. Other patients, contributors, I have never soaked up so much information in all my life. Even with a strong medical background, instant connections were swirling around so quickly - I didn't know what I wanted to do first! The last twelve years has been a struggle living with SLE. My lungs & bones are affected, chronic pain due to bone degeneration, herniations, and compression fractures has left me but a sliver of the person I used to be. At 38, with three small children, my life seemed to be so far away. I knew the treatment was killing me. Treatment for my complications always involved high dose steroids, then chemotherapy, then supposedly a Lifetime of Immunosuppressive drugs..... If for nothing else, don't tell me I can't do something, or there isn't anything else you can do for me. Funny, that's exactly when Professionals start to blame symptoms on depression!
I found the closest, most trusted homeopath I could get to - now disabled & in a wheelchair due to pain. She was my first angel & I started on the road less traveled. I still don't believe that if anyone else had heard this prognosis they wouldn't have looked elsewhere for help. My journey began with alkalinizing & purifying all water, a liver detox and immune support. This truly was the only time I had feelings of what I used to be. I was capable of so little, I'm not sure how I got through with so little home support. Now, friends & family jumped on the "crazy" bandwagon. As they kept themselves busy, I improved. With the support of a pain interventionist, I can now walk 50 feet with a cane, food shop holding on to the cart & cook 5 nights/wk, the decent food my family needs too.
This year I found a second angel to build on the routine, I wanted to feel better & knew I could with support. Then I found you, found the first true hope & healing in all these years.... Now, if I can organize this plan, I will be very busy. I continue ph Balance, through clean, ionized water mixed with baking soda & ACV, candida support, dairy free probiotics & enzymes with meals, immune modulation with colostrum & peptides, neurological support with B vitamins & Antioxidants & free radical scavengers. I continue liver support & use DMSO for pain & inflammation. I have seen a glimpse of how good I will feel, as I have also had to move slowly due to Herxheimer reaction. I read as much as I can & see that many recommend following a celiac diet & new suggestions for vitamins & amino acids for energy & acupuncture for ongoing pain. I really needed to thank all of you for taking the time to post & care. I have never felt this level of hope. I know I have a long way to go, positivity seems to make all the difference. I only hope as I improve I can inspire someone as you all did for me & continue to pay it Forward... Thanks again~~~~~~~
Russian Herbs
Posted by Sam (Portland, Oregon) on 07/03/2012
★★★★★
I am Russian, and we, as the rest of the world, rely on herbs as a first choice of treatment for chronic and acute diseases. Here is a translation from Russian wikipedia about treatment of lupus. Phytotherapy in the treatment of lupus erythematosus: a good supplement to traditional methods of treating lupus will phytotherapy. It will gradually reduce the dosage of drugs, reduce their side effects. For this purpose, use herbal teas, relieving symptoms of inflammation and improve blood circulation. Properly chosen herbal remedies relieve symptoms of an allergic reaction, can help the body to recuperate faster. As preventive measures to avoid the impact of ultraviolet radiation and other treatments, while staying in the open air should be applied on the skin sunscreen. Despite the fact that the disease is chronic, many patients with poorly marked form, are able to maintain their way of life. If this is the main importance is the depth and nature of the lesions of internal organs, especially the dangerous of which is severe and irreversible renal failure leading to death. Modern medicine has a wide range of drugs that help slow the pathological processes that greatly facilitate the negative symptoms, and thus extend the life of man.
For the treatment of lupus herbs should be taken: nettle leaf, bilberry pine, color, tansy, herb St. John's wort, birch leaves, grass, Knotweed, leaf plantain, mother and stepmother, pine, dandelion root, Oregano grass, clover drug, herb yarrow - equallyTwo tablespoons pre-shredded (in a coffee grinder or grinder) collection pour 0.5 liters of boiling water, drain, along with the grass in a thermos, leave overnight. Take 1/3-1/4 cup 3-4 times a day. The course of 1.5-2 months. After 1 month of treatment interruption herbs can be repeated.
Black Seed Oil
Posted by Jamie (Indianapolis, In ) on 06/26/2012
Black seed oil for lupus. would it be safe to take? if so how much? 3 teaspoons a day for 6 months. can it be taken with acv, or honey? i see on other sites, that it works best when taken with something else. please help.
Discoid Lupus
Posted by Chantelle (London, London, London) on 04/11/2012
★★★★★
Hi, Although I haven't personally corresponded with Ted, I would like to share with others the amazing results after 1 week of taking bicarbonate Soda 1/2 teaspoon in half a glass of water 3 times a day, 1/4 of Borax in 1 liter of bottle water, Lysine 1000mg 2 a day with 1000 Vitamin C powder 2 a day, Beta Glucan 1000mg 2 a day, Zinc 15mg with Copper 0.75mg.
At first I put the Bentonite Clay all over my body fanned it dry & washed it off, three times. A few days later, I applied the clay only on the affected areas. I also have been applying Virgin Coconut Oil on my lesions.
Bless Ted, I have suffered significantly over the years and for the first time I believe that my lesions will heal. Prior to taking Ted suggestions from different post the lesion on my cheek felt hard and inflamed, the inflammation on the lesion on my nose is reducing and changing in colour.
I went to Holland & Barratt today, the sales assistant recognized me from my last visit, when I share my experiences with her, she admitted that she was surprised as the last time she saw me the lesion was looking much pinker.
I am in the process of purchasing Potassium Bicarbonate to add to alkalizing and DMSO for old scar.
Will keep you posted on my success, Chantelle
Margaret's Lupus Remedies
Posted by Lillian (Vass, North Carolina) on 04/10/2012
Thank you, Margaret. Your thread made me feel like there is definite hope. I had no idea lupus could be caused by all these other elements. I'm very grateful for Ted's assistance. He's a gem!
Supplements
Posted by Deborah (New York, NY) on 04/01/2012
★★★★★
Last year I was diagnosed with cutaneous lupus. I have two large skin patches one on my arm and one on my left butt cheek. These are itchy and feel bruised and have also atrophied to leave a concave indentation in my flesh. I am told that this is because the inflammation is in my subcutanaeous fat. I'd like to say I have found a cure for these but I have not - yet. HOWEVER. I began to have accompanying joint pain - terrible nipping pains and feeling constantly like I had been in a car accident - an all over feeling off stiffness and bad bruising. It was debilitating and depressing. Through exhaustive research, trial and error I have found two supplements that are working for me and have decreased the pain SIGNIFICANTLY. One is CM - cetyl myristoleate. I would advise Googling it and doing your own research but I could find no down side. The other is Perna - green lipped mussel extract - a fairly high dose. I began taking these two things together and initially my symptoms worsened but suddenly and quite dramatically the pain lifted. I do think these are worth a try for anyone suffering from chronic joint pain. They certainly changed my life.
One more note on the lupus. I have recently been seeing a new and very good naturopath. Through stool testing for parasites we discovered that I have a very high level of the parasite blastocystis hominis. Also of candida. I knew about the candida and that it was probably part of the lupus causing package but the parasite is a new and interesting development. I will be treating both of these things appropriately with herbs and continued healthy diet (I am completely gluten, caffeine, dairy, soy, alcohol, sugar, nightshade and red meat free; I am a great cook and its really not as hard as it sounds) and will be very curious to see the health benefits of getting rid of these critters. My naturopath feels that they could very likely be a major contributing factor to the jangling of my nervous/immune system that caused the lupus. I will report back with results and would love to hear if anyone else has discovered a parasite/lupus link. If I can help or support anyone else in their healing journey please let me know. Thanks and good health to all.
Electromagnetic Frequencies, Cold Weather
Posted by Steve (Lowell, Ma.) on 01/10/2012
The floride used to kill bacteria is actually harming you. Good Luck
Margaret's Lupus Remedies
Posted by Kelle (Lafayette, In) on 11/19/2011
Hi Sherry from Ft. Wayne. I just read your post. Any suggestions on an integrated doctor. I live in Indiana also. Thank you.
Lupus Nephritis
Posted by Jeremy (Maavern, Ohio) on 09/01/2011
I was diagnosed in 2007 with severe Lupus Nephritis which was causing renal failure. I was put on cytoxin treatment and everthing was going great until my recent flare here in march. I'm back on prednizone which helps but my kidney function is starting to go again. Any advice would help greatly. I'm kind of afraid of taking too many things different because I have so many filter in my kidneys completely scarred over. Please post some thought on this subject. Or someone who has this type of Lupus.
Margaret's Lupus Remedies
Posted by Sherry (Fort Wayne, Indiana) on 08/13/2011
★★★★★
Just wanted to share my story on lupus. In Dec of 2010 I went to see a intergrated doctor. Found my gluten numbers really high along with antibodies for lupus. Went gluten free and in only 2 months my lupus antibodies were gone! Just had a follow up visit and my antibodies are still gone. I say go gluten free. I also had my Vit D checked along with b12 and iron. If you live near a intergrated doctor I would recommend going. Good luck to all out there, Sherry
Margaret's Lupus Remedies
Posted by Joanne (Toronto, On) on 08/09/2011
Hi Margaret. I am responding to a posting you submitted to Earth Clinic regarding lupus remedies.
Can you tell me how long it took before your lupus disappeared? For the stress tabs -what brand and what dosage mgs per day? Also, what made you take these supplements.
Supplements
Posted by Mmsg (Somewhere, Europe) on 07/08/2011
have you tried evo (coconut oil)?
Supplements
Posted by Rush (Usa) on 07/07/2011
Supplements
Posted by Marie (Houston, Tx) on 07/07/2011
Can someone please help me? I have been dealing with a skin burning problem for over 10 years when exposed to UV computer screens, TVs, lighting in stores, regular light, and sun. It's feels like a burn/inflammation. I think it might be connected to lupus as I had the rash 10 years ago. The rash never came back but the burning is relentless. I've tried fish oil, turmeric, acv, eating only veggies, vit e (which helps a little), cinnamon, and so so many other things to no avail. I work at a computer for 8 hours so I can't escape the burn. My whole life revolves around avoiding any kind of light, cooking in the dark, going blind b/c I have to turn down my computer screen so dark so I don't burn. Has anyone heard of this? Is there a cure? I'll try anything!
Supplements
Posted by Theola Williams (Gainesville, Florida) on 05/06/2011
Stay Motivated and try not to stress!!! MESSAGE TO ALL!!!
Supplements
Posted by Theola Williams (Gainesville, Florida) on 05/06/2011
★★★★★
My name is Theola, from Gainesville, FL. I have been dx with Lupus for two years, and it has been a real long journey. I have been drinking hot sage tea which helps with my inflamation and joint pain. I hate taking steroids bc it makes me eat like a run away slave and gain weight. I'm starting to take more vitamins, and its really helping. Im thanking god im still here. Bless all!!!
Supplements
Posted by Mona (Ny, Us) on 04/24/2011
I caught an infection from trying on pants in a store that someone had before and now I have the disease. I find that if you try homeopathy, there was clearly no other choice after trying traditional medicine. I also find that with homeopathic medicine, nothing happens at first until 6mo-1 yr. later and then it finally works. Problem is with that though, if you don't know what you're doing and you're just testing alternative therapies, you can waste a long time on the wrong alternative medicine.
B3, Gluten, Blackstrap Molasses
Posted by Joylie (Solana Beach, Ca) on 02/16/2011
I just Wikied "
Pelegra, " and briefly read the beginning of the history section and this is what it said:
The traditional food preparation method of corn (maize), nixtamalization, by native New Worldcultivators who had domesticated corn required treatment of the grain with lime, an alkali. It has now been shown that the lime treatment makes niacin nutritionally available and reduces the chance of developing pellagra. [4] When corn cultivation was adopted worldwide, this preparation method was not accepted because the benefit was not understood. The original cultivators, often heavily dependent on corn, did not suffer from pellagra. Pellagra became common only when corn became a staple that was eaten without the traditional treatment.
MMS
Posted by Bobbie (Jamestown, Pa) on 01/31/2011
Tom, are you saying you think it is safe to take both my plaquenils & this mms stuff? The reason I asking is because they are both supposedly used to kill malaria, & I want to make sure they are safe to take together. I cannot find anything on Mr. Humble's site addressing this issue.
MMS
Posted by Tom (Regina, Sk) on 01/21/2011
Bobbie:
Have you looked on Jim Humble's site yet for things?:
http://jimhumble.biz/
He now calls MMS "Master Mineral Solution" to try to answer his critics and detractors who say, among other things, that he is peddling snake oil!
Some links on his site are not active, but the 1000, 2000, & 3000 protocols even have videos up on You-tube.
An excellent search site for videos is www.zapom.com, which will find vids from every site on the net including the main ones like GoogleVid, Youtube, etc. Here is the example search for MMS:
http://zapom.com/mms mineral miracle supplement
There are many books on lupus, this one from 2004 with all high reviews, a rarity:
http://www.amazon.com/Lupus-Underground-Long-Ignored-Non-Patentable-Counter-Intuitive/dp/0976342804/ref=sr_1_23?s=books&ie=UTF8&qid=1295589281&sr=1-23
Also, there are many articles in a good search that show studies even within NIH that show a correlation of very low Vitamin D levels and lupus.
MMS
Posted by Bobbie (Jamestown, Pa) on 01/20/2011
Ted, I recently read an post on here answering a question about Miracle Mineral Supplement, & as I have thought of trying it to help get rid of my candida, I read it. I noticed you mentioned it has been used to treat malaria, as my Plaquenils also are. I have been on Plaquenil for a few years to treat the lupus I have.
Is there a danger if I take the MMS while I am on Plaquenil?
I am trying to remedy my Lupus by being on a candida diet, (since I have found this site) & I am doing the Borax thing along with the baking soda also. I have bought some probiotics, liquid, from the health food store, but noticed there is sugar in it, I am holding off on taking it.
Detoxing
Posted by Better But Not Cured Yet (Canberra A.c.t., Australia) on 10/14/2010
I also was extremely photosensitive, hives and all. Its spring in oz now I am able to garden(with hat ) maybe its the baking soda? I also bath with it and use to clean. No soap. It actually brought up my lupus rash like a road map after using bs as face scrub. Of course I think that selenium and chlorella no caffeine(much) also helping and bio mag.
Detoxing
Posted by Photosensitive (Houston, Texas) on 10/10/2010
Hello - thanks for this thread on lupus, what a find. This is a little off topic of SLE but you all seem so informed maybe you can help a suspected DLE victim. I developed round lesions years back followed by sudden weight and hair loss and increased photosensitivity to both outdoor and indoor light - mostly indoor uv. I was tested for lupus but came back negative. Mostly my battle is extreme fatigue and photosensitivity right now so much so that I can hardly work on my computer at work without my face feeling like it's in an oven. If I turn the monitor down to almost black and use a uv protection screen it's ok but God help me if I have to attend an hour long meeting under full blown florecents - my skin goes crazy. On top of that my vision is starting to go as well. Just a few months ago I started getting leg pains for no reasonable explanation. If I dont' have lupus I don't know what else it could be. I seem to fit all the symptoms of at least some form of lupus. Like I said mosly it's the extreme photosensitivity that bothers me the most, which I can usually tame for about a 1/2 hour with vitamin e or b-12 sublingual. But just found out my b-12 has sucralose - which may explain why the remedy is only short lived and the photosensitivity comes back a 1/2 hour later.
My question is this (sorry so long winded). Will this ACV, baking soda, borax treatment work on photosensivity or should I try something else to cure that. Unfortunately sunscreens do not work and I have tried them all they actually tend to burn my skin worse. P. S. - to help in the diagnosis I did have bready implants the silicon type for four years but removed them years ago. Please help!!
Detoxing
Posted by Ibu_works (Canberra, A.c.t.) on 10/08/2010
★★★★☆
G'day! I have in past week been slowly detoxing using baking soda, chlorella, magnesium and tissue salts as well as apple cider vinegar. I am blown away by increased energy and a new found optimism, which has made dull headaches and twinges of joint pain easy to bear. Have ordered food grade h202 to begin serious work. Please, any advice or extra feedback would be great__thanks
Apple Cider Vinegar
Posted by Sue (Arlington Hts., Il) on 06/15/2010
★★★★☆
I have found the ACV has stopped the reflux side effects I was getting from Plaquenil my MD put me on for the SLE.
Coconut Oil
Posted by Ted (Bangkok, Thailand) on 11/01/2009 392 posts
A lupus may be helped in addition to coconut oil, is the borax remedy which reduces inflammation, such as 1/8 teaspoon per liter of drinking water. 4 or 5 drops of bloodroot tincture in a cup of warm water three times a day. In addition, lugol's solutions is added to the drinking up, at 3 drops, plus SSKI at 3 drops, twice a day. Vitamin C 1000 mg a day so that the body can utilize the iodine is needed. Those are some extra things I believe will help, especially the borax, alkalization (1/4 teaspoon of baking soda plus 1/4 teaspoon of potassium bicarbonate twice a day empty stomach in cup of warm water), and the iodine, which reduces autoimmunity. I am currently looking into the use of humic acid to reduce autoimmunity. The dose is to use humic acid powder (known commonly as sodium humate) at 1/8 teaspoon a day taken at least twice a day. One final push that I found helpful was taking plenty of tumeric powder or curcumin. There's no upper limit on taking that, so I may start with a teaspoon twice or three times a day.
Coconut Oil
Posted by Bibi (Nashville, Tn Usa) on 10/27/2009
★★★★☆
I read Ted's posting dated 04/02/2007 under "Lupus" as an ailment. At the end of his posting, he stated that lupus was still rare where he lives (Thailand). My understanding is, there is a large consumption of coconut products in Thailand. I have been using coconut oil (daily), and occasionally consuming coconut milk, coconut juice and other coconut products. As coconut is reportedly antifungal, antibacterial, antiviral, and antimicrobial, I am wondering if this is a potential cure for lupus.
I was diagnosed in March of 2008 as having lupus (SLE). I took myself off the toxic meds I had been put on in Sept of 2008. Since taking coconut oil and other coconut products, my swelling has subsided and I am doing much better. Of course, it may be just a remission, but I truly believe in the power of coconut. That's my two cents...
Baking Soda
Posted by Michelle (Ojai, CA) on 07/14/2009
★★★★☆
I have been taking 1/2 tsp baking soda in an 8 ounce glass of water on an empty stomach as part of Ted's Remedies for Lupus. My question is: How long after drinking the mixture may I eat? PS: So far the remedy I found here has HELPED my LUPUS symptoms tremendously! Still on the mend, but after one full week, I have more energy during the day. I am hopeful that the other symptoms will abate as well. Thanks to Ted & everyone who wrote in with their feedback... very helpful.
MSM
Posted by Ingrid (Lawndale, California, USA) on 05/04/2009
★★★★☆
I suffer SLE & DLE Fibromyalgia and have a congested heart (regurgitating valves) for 6 years I am also Hispanic, NOT from Mexico, in my family there is no history what so ever of any immune diseases, the food we ate as children and the nutritional value was very high and healthy. I have taken all medicine there is or will be out to treat the decease, compounds, combined, cocktails nothing worked, I felt like a guinea pig, was 111 Lbs.when I started taking the meds, gained 70 Lbs. in less than 3 months with the steroids, which put more than I could handle anl along with the pain, was horrible. I was told about Organic Sulfer (Pure MSM) not combined with anything else in pill form but I had to take to many it was 45 pills a day, and still did not have relief, then someone else told me to take it in powder form, to take it untill the pain was gone, to start with one teaspoon, and increase the dosage untill my stomack felt warm and I felt as if I was going to get the runs, but not quite get them. So I did, got the powder form MSM (organic sulfer) not to be confused with "Sulfa" very diferent one from the other; I take 3 tablespoons in 2 ounces of warm water (to disolve faster) it's bitter, and I mean it, but when you have experienced the type of pain associated with Lupus you are willing to take almost anything, then I chase it with fresh squeezed orange juice vitamin "C" helps your body absorb it better and helps get read of the bitterness in your mouth after ingestion; my goodness that was the PANACEA of all inflamation in and out of my body. Doctors do not recomend it and will sometimes tell you that it does not work because they make no profit from it. Simple fact. This powder is totaly organic, no additives, no drugs of any kind I am not adverticing MSM, I don't sell it, I am just passing the information along; I doi the same way it was passed on to me, I can only tell you what it has done for me and the people I have shared it with. I even tell them not to buy it, I give them the powder to try, if they see the effect they need, then they can buy it, it's not expensive (compared to the meds Dr.s prescribe) I can move again, I am not cured, this powder makes my life livable and bearable, not simptom free, or decease free, but it allows me to leave and enjoy a bit of a better quality of life.
Supplements
Posted by Ineke Leer (Walker, MN) on 04/10/2009
Hi: My name is Ineke, I found out I had Lupus 4 weeks ago. I am on predisone and hydroxychoroquine. What a combo.....The predisone only works if taken in doses of 30 mg a day or higher. Its not the drug for me to be on. Can't sleep through the night and it makes me very edgy. Anyway I started taking Olive Leaf extract 2 capsules twice daily, msm 2000 mg twice daily, probiotic enzyme two tablets a day, purce bovine colostrum from first milking, and I had adjusted my diet, I do notice that sugar.....bad......refined carbs, bad.....so far it hasn't made a difference, buts its only been 5 days since I started the natural supplements,, but, I am hopeful for results.
Any advise is welcomed.
Ineke
Supplements
Posted by Ineke Leer (Walker, MN) on 04/10/2009
Hi: My name is Ineke, I found out I had Lupus 4 weeks ago. I am on predisone and hydroxychoroquine. What a combo.....The predisone only works if taken in doses of 30 mg a day or higher. Its not the drug for me to be on. Can't sleep through the night and it makes me very edgy. Anyway I started taking Olive Leaf extract 2 capsules twice daily, msm 2000 mg twice daily, probiotic enzyme two tablets a day, purce bovine colostrum from first milking, and I had adjusted my diet, I do notice that sugar.....bad......refined carbs, bad.....so far it hasn't made a difference, buts its only been 5 days since I started the natural supplements,, but, I am hopeful for results.
Any advise is welcomed.
Ineke
