Dietary Changes for Hidradenitis Suppurativa

I am also suffering from HS. It runs in my family, and some of my siblings also have it. I have been on the paleo diet for about two years now, and it has helped me enormously with this problem. I haven't had any breakout for about a year and a half now, and my acne has decreased a lot! I started eating regular white potato about two weeks ago (because I need more calories), and now I have a huge irritated boil... I wonder if I'm sensitive to potato.

Anyway, I really recommend everyone to try Paleo diet! That means, dump all dairy products, grains, additives, sugar, cooking oils and processed foods. Also avoid chemicals such as pesticides and additives (choose organic). The foods I mentioned are inflammatory and makes your body prone to things like HS. Instead, eat clean whole foods like veggies(above ground), meat, fish, nuts and seeds. I also recommend drinking applecider vinegar, lemon water and eating fermented foods. These foods removes bad acidity from the body.

Do this, you will not regret it!

/Tove

But after trying everything by the book -- antibiotics, topicals, washing with a specific soap, trying to de- stress my life. Losing weight - and I lost 50 pounds. And finally the most invasive of all, surgical removal of tissue - I was no closer to a cure than when I started.

It was time for me to do the research. Articles, I read everything I could get my hands on. I read blog after blog and came up with some amazing information. In essence our bodies are screaming at us through the HS lesions. We have and are consuming a food group whether it be gluten or nightshades or dairy or eggs that are making our bodies attack themselves. Simple. Find out what the offending food is and remove it. Either by going to see a Naturopath for an IgE and an IeE food sensitivity tests. Or if you financially aren't able to do that, then simply put yourself on a diet of protein, simple salads and green vegetables. Once you have done that, introduce one food group at a time and wait to see if you flare. No flare. Wonderful, now try another and another until you isolate the group that causes you to flare. Be vigilant at looking at labels. Because I was sensitive to nightshades, I had to look out for paprika and it is in so many different foods. Vigilance.

If you are like me, you have lived with the fear of this disease on a day to day basis. You have kept yourself isolated for fear that someone might find out. The pain is so intolerable as is the stigma of this disease. But you can take your life back. You can be happy again. It is a process and it will take time and diligence. You deserve a chance at living a normal life. God be with you.

Our next step is to add foods back in to find, hopefully, the trigger food, but we are too scared to do this quickly as these past weeks have been a godsend to the whole family.

Then a couple of months ago, a new boil popped up along my bikini line. It grew really quickly into a golf sized ball (a couple of days). It was super, super painful which made it hard to walk or sit normally. I started taking warm baths in tea tree oil and epsom salts, twice per day, and I began taking the turmeric capsules again along with upping my daily water intake. This didn't appear to help much if any at this point. And I was super discouraged, tired and weepy at nothing. Hidradentis suppurativa is just awful.

Then I began to look at my diet. I already ate a pretty clean diet - no artificial chemicals, no gluten, lots of fresh veggies and fruits - but I was in so much pain that I decided to take things a step further, believing that food can heal. I started eating Paleo - no grains at all (including white potatoes and corn), no dairy, no sugar, nothing processed. Basically, meat (grass-fed when I can afford it), veggies and fruits along with coconut and olive oils. Within a few days of eating this way, my boil popped and began to ever-so-slowly leak puss mixed with blood. I still soaked in the tub twice per day with tea tree oil and that helped to loosen things up, which I think has been important in the healing process. Then about a week later, the blood and pus changed to a white liquid that came out of the boil when I pressed on it very gently.

Anyhow, it sucks to have to give up pasta, cheese and my beloved chocolate... But it's totally worth it to be pain and boil free! I really believe that hidradentis suppurativa is an autoimmune disease of somesort. I also have pcos and endometriosis along with keloid scarring, which I also believe have an autoimmune connection. My hope is that by eating this way my body will continue to heal itself.

I have had HS for 16 years. I have had medical doctors ignore my pleas for help and only prescribe antibiotics - which incindentally, made the issue worse.

I have tried apple cider vinegar, coconut oil, antibacterial soaps, no soap... I can't even remember all of the things I've tried. Nothing worked. For years, I had no hope. The breakouts had gotten worse and the scars kept me in sleeves even in the summertime.

Then I found that HS is an autoimmune condition... Just like my Hypothyroidism, back and joint pain, etc. The puzzle pieces started coming together.

The best/easiest/cheapest treatment I've found is to change your diet to a paleo diet: meats, seafood, lots of veggies, fruit, nuts, seeds and quality fats. Since starting the paleo diet over a year ago I have not only lost 30 pounds effortlessly and kept it off, but I rarely get an HS breakout. If I do, it's generally very minimal and Turmeric, 2-3 times a day, in pill form usually clears it up in a day or two! Gluten tends to be the biggest trigger for a breakout, so I try to make sure my diet is completely gluten-free.

I honestly never thought I would be HS free! I thought I would live with this forever. But now, after just one year, my scars are starting to fade and I even have a couple of sleeveless tops that I like to wear!

There are so many people who have nearly erradicated their breakouts (including myself) by eliminating all grains, sugar, legumes and dairy from their diets - only to find other health benefits as well.

I'm so happy to be able to share this information with you all as I know what it's like to have lost hope for a treatment, let alone a cure! I urge you to do the research and give the diet/lifestyle a try for just 1 month and if you don't feel any better or notice a change (I bet you will, tho) then you've lost nothing.

It's feels so wonderful and amazing to have made it to the other side of this painful and embarrassing condition! Good luck to you all.

I thought I'd share my story in hopes that my experience will help others.

I've been suffering from this horrible condition since I was 18 - I am 36. I went through the vicious cycle of antibiotics (many different kinds) and lancings with little success. My aliens were all in the groin area. At first, this process did help with flare ups. I would go for several months and somtimes over a year without serious flare-ups - the condition was manageable, minimal discomfort and pain that would heal quickly. it stopped being manageable about 8 years ago.

During this period I was partying often (drinking, smoking, etc. ), not sleeping much, eating very poorly (I have never been overweight, a bit underweight... just eating a lot of fast and processed foods) and not exercising much if at all.

Several years back it got really bad (constant pain and discomfort, it was painful getting out of bed). I had sores that constantly drained, never healing. I did some serious googling on remedies and ran into this site among other sites that provided information that I was looking for.

I tried remedies looking for a quick fix still maintaining the lifestyle drinking, smoking, poor sleep, bad food, etc. without any improvement. Acv, turmeric, vitamins, tea tree oil, epsom salt baths, etc were all in the mix. I was pretty down as there was minimal improvement. I did this for a few months.

I then read posts about detoxing with raw organic foods. So I gave it a try. I went 100% raw for about a week and continued at about 90% for a month - I also added probiotics to the regimen and ate some cooked foods, but removed processed foods almost completely. I was also continued the other remedies. I was still smoking but drinking much less with my sleep slightly improving. I don't exactly remember the progress or when everything clicked, but I remember waking up one morning and noticed the pain and the draining coming to a complete stop. Everything flattened out! I continued the strict diet for a few more months with zero flare-ups. I then began adding bad foods back into the diet and increasing the partying forgetting how horrible things were. The aliens did reappear but would go away quickly, nothing like it used to be. Zero medication during this period.

Thinking I was in the clear, I discontinued the strict diet completely. I was eating poorly , but still taking the probitics and other remedies mentioned. At this point I quit smoking but continued to drink. I was good for about a year. flare-ups did occur but they healed quickly with minimal discomfort - more like zits instead of cysts.

About 2 months ago an angry alien came to visit and has not left. It is in a new area and has been very painful. It grew and continued to drain. I've been back on the strict diet (95% raw, daily green juices, no processed foods, etc) for about a week now as I've been rudely reminded of this horrible condition I have and will likely always have. I've also quit smoking and have limited the drinking. I'm also trying to rest as much as possible. The alien has, today, stopped hurting and is flattening out with minimal drainage. From previous experience, I'm confident the sore will heal as long as I continue the lifestyle change.

Your body does a good job of telling you when something is wrong and I believe, from experience, what we ingest plays the biggest role is HS. All the processed foods we ingest, I believe, act like poisons to our system. From my research, medical conditions have increased dramatically since processed foods were introduced. These foods do not have any nutrients and not having the balance by consuming nutrient rich, raw, living foods results in our bodies breaking down. if you really think about it, it makes sense and I suggest all of you to do your own research.

A dramatic change in food required a huge lifestyle change for me and I think it will be for most of you, but it's so worth it. As I've found and as many of you already know, there isn't a cure or a simple fix for HS, but I believe there is a long term solution that will keep me symptom free. This is my experiece for those suffering. I tried most everything and I feel that I've found what works for me and I hope this helps with many of you suffering.

No more caffeine for me.

I am trying the tumeric remedy now for the current boil as I detox from caffeine again.

Also, laser hair removal in areas like the armpits has been advised, the theory being eliminate the hair follicle, reduce the likelihood of a boil from an ingrown hair. I will be trying this.

I have suffered with HS for a long time and had to have an operation on my armpit 8 years ago but was not actually diagnosed until much later. Once I knew what I was dealing with I started to use tea tree oil and echinacea. But to be honest, particularly when I was stressed, the painful sores would still emerge. Finally a dear friend read on the net that coffee can have a massive effect on sufferers. So I gave up coffee (was on 3 or 4 large expresso's a day). And it worked. I'd occasionally get the odd little murmur of an outbreak but was able to control it with a dab or Tea Tree and up until this weekend, I'd been clear of any real offending sores.

Unfortunately I realise that I've been gradually reintroducing coffee into my diet over the last year (hubby got a coffee machine for Christmas) and I am now suffering for it. Safe to say, I'm off coffee again and will try the Turmeric and the other suggestions to deal with my current and extremely uncomfortable sore. I've also changed my deodorant and now use crystal spray which has been great. What a wonderful site. Thank you all for sharing and making me feel less of an outsider.