Essential Oils
★★★★★
Essential Oils
★★★★★
(New York)
10/16/2013
(Birkdale Australia)
11/18/2014
Be very carefull of using treatments for thrush when you have Lichen Sclerosus. Several Drs just gave it to me and then the specialist said that the antifungal treatments I was given were actualy feeding the LS and making it worse. I believed this because when I used these treatments it felt worse. It took me 2 years of going from dr to dr to be diagnosed properly.
(New Braunfels, Tx)
03/17/2015
LS is an autoimmune issue and not a fungal or yeast issue despite the name (lichen. It just has that appearance when looked at under a scope).
(Australia)
01/28/2021
Words have meaning. Also see Leaky Gut - the true cause of all disease.
(Nevada)
08/04/2016
A major contributor to any autoimmune issue is gut dysbiosis... an imbalance of bad bacteria/yeast (too many) to the beneficial bacteria. Since yeast (candida) is part of the "imbalance", ridding your body of yeast is a great step in mitigating/reversing LS. I take Oregano essential oil internally (3-5 drops in a capsule), 2-5 times/day. Oregano oil is the number one "fungus killer".... got rid of the fungal infection on my husband's feet (thick yellow toe nails are an indication of a fungal infection) when used topically.
Oregano oil is a "hot" oil... it should be diluted 10:1 with a high quality vegetable oil when starting topical use.... see how you tolerate it...everyone is different. If you experience red, itching skin, dilute more or discontinue use if very bad.
I would NEVER put Oregano oil (even diluted) near my vaginal area... it hurts to even think about that... which is why I take it internally.
Again, 100% pure essential oils are mandatory for internal use.
Essiac Tea
★★★★★
Essiac Tea
★★★★★
(Uniontown, Oh)
11/16/2012
Hi Daisy, Can you tel us how long you took the essiac tea tonic and how many times a day did you take it? How many drops? You are the first person who has ever been cured of LS that I have seen. I have Lichen Planus and have been trying to cure it for almost ten years. My doctor and dentist admit they don't understand the disease. Mine is all internal and systemic, no skin outbreaks.
I have been trying Lisa's suggestion for water kefir for about a month and I think it is good for the whole body. I have ordered some essiac tea with high hopes, and passed your tip along to others with LP. I am praying this works for me and others. Thank you so much for posting!
(Ewa Beach, Hi)
11/19/2012
I took the whole bottle, I was cured within a few days of taking it but took the whole bottle of non alcohol formula. I really stress this because the alcohol one tastes God awful. Anyway, read about the benefits on the internet. I bought the liquid kind. 40 drops on an empty stomach in the a. M. And 40 drops on an empty stomach in the pm. I really want someone esle to try to see if it cures them too! I was diagnosised through a doctor and told and prescribed all the same stuff as anyone else. Essaic Tonic Tea purfies the blood, cleans the organs even the lungs and is a parasite killer too! Again, I took this not intentionally trying to cure my LS but I am cured. I haven't had a break out since this year June and no longer use any creams.
(Selma, Oregon)
11/20/2012
Hi Daisy, The only type of Essiac I've seen is in a powder form for making a tea. You said your product is in liquid form. Is this a tincture? How wonderful this has cured you!
(Ewa Beach, Hawaii)
11/22/2012
Joni, it is made from different plants. It is an old native american cure and people are claiming it shrinks tumors. Its so gently you can use it on your animals. Chemotheraphy patients are using it along with thier Chemo. It comes in all forms... Powder... Pills... Liquid... I prefer liquid... I have a hard time swallowing pills. I hope it works for others. It is wonderful not being itchy especially at night. I have some scaring on my wrists but all other scars have healed. If this doesn't cure others... than I have received a miracle from God.
(Reno, Nv)
11/23/2012
(Ewa Beach, Hawaii)
11/23/2012
I buy mine from a [local] health food store. It is also sold online by different people who sell it. Usually health food stores have it and it is in the detox section of the store. I live Hawaii where everything is shipped in so, I purchase it for about $25 a bottle. I plan on taking this 3 times a year. Next year, I will buy a bottle in March, July and then in November.
(Reno, Nv)
11/23/2012
(Ewa Beach, Hawaii)
11/25/2012
I would treat it like a detox and only take it a few times a year. A bottle of drops lasts me about 2 weeks. When taking it I feel great... I even get a zing in my step. But I wouldn't take it every day all year long. Just a few times a year to reclean and purify your body and blood. Again, if you do take it and it works or doesn't work let me know. If it doesn't work, than I know it was a miracle I was healed and I will quit telling people about Essaic. If it does work than we can let everyone know it really works. I have yearly appts. Now with my doctor and she doesn't know I am cured. I can't wait for my appt and bring the bottle of Essaic Tonic Tea with me.
(Uniontown, Oh)
11/25/2012
Hi Daisy, I ordered essiac tea, which I will brew at home, and it should be here this coming week. I hope it will work as well as the tea tonic, which I didn't see on the Internet. If this works, you will have found a very elusive cure and many people will finally find some relief from these miserable autoimmunes. I have tried every lead that seems plausible for ten years and I'm so excited to try this! Thank you, Daisy, for posting your experience on EC. I hope we get a bunch of success stories!
(Selma, Oregon)
11/25/2012
(Reno)
11/28/2012
(Las Vegas, Nv)
01/20/2013
(Florida)
08/19/2013
To Daisy from Ewa Beach: Does the Essiac tonic still works for you? I was going to try it myself and was wondering if your LS ever came back?
(Australia)
05/04/2015
(Belgium)
04/06/2017
Essiac Tea, Homeopathy
★★★★★
(Grabill, Indiana. Usa)
03/02/2013
(Nj)
01/23/2014
★★★★★
My condition was self diagnosed. I have had LS for several years now and non of the doctors could figure out what it was. Finally my condition got worse and started researching the symptoms and couple of months ago I figured what I had. I came across this site to find cure for this and I took Daisy's advice and ordered some Essiac Tea to cure it internally and used Perrin's blend for external use. It's been almost a month and I am feeling much better. The white patches have almost disappeared just 2 small areas to be treated. Also I've heard that this could be due to some emotional trauma and shame so I am sending myself some luv every morning and night. Essentially I am doing three prone healing - internal, external and emotional. I am optimistic that I am getting better and better everyday. I will keep you posted.
(San Francisco, California)
02/03/2015
(Burlington, Ky)
02/04/2015
(Tennessee)
02/04/2015
Dear Jerene,
Personally, I would want to find something else to try first. When I look at cures for LS, I see a number of things I would try before Essiac if I was expecting. I am a huge fan of herbs and use them often. Herbal medicine can be quite powerful. So, I would hesitate to use Essiac in pregnancy. In a cursory search, I was not able to find that the ingredients in Essiac, individually, were contraindicated for pregnancy, I would still err on the side of caution with an herbal blend that is able to cure cancer.
That said, if I had cancer and had to pick between Essiac and chemo, I would pick Essiac.
When I look at Earth Clinic's cure page for LS, I see things like Apple Cider Vinegar, baking soda, dietary changes, eliminating artificial sweeteners, etc. I would be more comfortable with trying those things first.
I hope you find a cure soon! And I hope you have a wonderful pregnancy!
~Mama to Many~
(Alice Springs, Australia)
05/01/2015
Hi Kate. You mentioned a number of homeopathic remedies you used. I am currently using urtica urens based on your advice. It is helping but not complete. How did you use so many remedies? In what order, when and how much? Thank you
(Montgomery, Alabama)
07/15/2015
(Talladega, Alabama)
02/05/2017
(Mi)
07/28/2017
(Los Angeles)
10/01/2017
(Arizona)
08/03/2018
I am newly diagnosed and after reading so much about this disease, I am terrified. I already suffer from fibromyalgia and Rheumatoid arthritis. I really feel that a cleansing diet and natural remedies are the way to go. The high strength steroid cream just made it worse. My Dr. won't listen and insists I keep using it! My body is telling me something different. Going to try all these natural remedies until I find what works for me. Thanks for all the support on this site.
Frankincense Oil
★★★★★
Then I read that this was a precancerous condition and very closely tied to emotional issues. So I immediately started using pure Frankincense oil and within two days could tell it was healing. No pain, no itching and the lesions were disappearing. I used two drops in the am and in the pm for three weeks. Now it is GONE! I'm so thankful for this healing and am staying off sugar and starting to eliminate wheat! I can sit without wincing and walk without that pain! Thank you EC for your awesome website to help us all!
(Minneapolis, Mn)
04/10/2014
I had a question about the frankincense oil, did you use it straight or diluted?
(Toronto Canada)
04/22/2014
(Rancho Cordova, Ca)
05/12/2014
Oil of Frankincense, as well as any other essential oil but Oil of Lavender, should NOT be used neat (undiluted) put the drops in a carrier oil and apply topically. Do NOT take it internally!
(Mariposa, Ca)
06/04/2014
Was the Frankensence oil applied topically?
(Lyme Regis, GB)
11/07/2014
I'm very interested in your post as I have had Lichen Sclerosus for 2 years and been on Steroid cream, which has stopped working. I would love to use a more natural approach, so thought I would try Frankincense oil - do you put it in a carrier oil? And do you apply it directly to the area affected? Thank you so much! I am looking forward to enjoying itch free evenings. Debbie
(Virginia, US)
12/23/2014
(South Africa)
01/05/2015
(Cabarlah. Qld.)
07/17/2015
(Phoenix)
10/19/2015
(Tennessee)
10/20/2015
Dear Lisa,
Frankincense Essential Oil should be used externally.
I have used one or two drops neat (without diluting) unless the area to treat is a sensitive one, in which case, I would mix it one drop with a bit of castor oil or coconut oil and apply to the area one to three times a day.
~Mama to Many~
(Connellsville, Pennsylvania)
01/04/2016
(Arizona)
08/03/2018
★☆☆☆☆
Mama to Many, I tried mixing colloidal silver water with distilled water and coconut oil and drops of frankincense and lavender. It burned so bad! What to do? Lessen oils? even coconut oil with baking soda burns badly. I don't know what to do anymore! It is spreading. I am going to try emu oil or castor oil now.
(Tn)
08/04/2018
Mary,
The bad reaction could be that the oils and water didn't mix well and you got essentials oils straight into your skin.
Baking soda does some as it is too alkaline for sensitive skin.
You might try to keep to a single ingredient to make sure it suits your body. Perhaps just castor oil to start.
~Mama to Many~
Homeopathy
★★★★☆
I used both and the steroid cream did help but I didn't want to be using it on a daily basis. My GP referred me to a homeopathic doctor and I was prescribed a remedy called Acidicum Nitricum (nitric acid ).
I take this remedy daily and also use the emollient on a daily basis .. Since I started using the homeopathic remedy I have only had to use the steroid cream on a handful of occasions. I tend to use Organic Aloe Vera Gel in the first instance. I think the fact that I was diagnosed early ( albeit through my friend ) has helped keep symptoms to a minimum. I was not aware that LS was progressive and have gained knowledge from reading others posts. My friend was mis- diagnosed on several occasions and as a result has many problems associated with LS.
There are many things which can trigger LS flare ups the main factor being stress. Diet can play a big part in alleviating symptoms. Everyone is an individual and if you find something natural that helps you then go for it.
(USA)
05/30/2020
Honey
★★★★★
(Australia)
08/16/2015
★★★★☆
I find strong Manuka honey fantastic for instantly taking away and keeping away the itch and soreness of vulval LS. I apply it topically morning and night. Have also tried paw paw ointment and calendula ointment which help a little but the honey is best. Manuka honey is well known for healing leg ulcers so I'm hoping it might also heal my LS but have only been using it for a week so don't know yet whether it will be a wonder cure.
Lichen Sclerosus Triggers
I have had LS for 20 years and while it mostly stayed calm, lately the itch around my genital area is off the chart so I am delighted to find lots of options on your site to try out. I had a suspicion, which others have validated, that years of wearing sanitary towels is a possible contributor, especially if during the 70's, 80's etc.
Lichen Sclerosus Triggers
My mentor acupuncturist's first comment 15 yrs ago was "this sounds like a boundary issue to me..." Why is the skin tightening, atrophying?? I was in a yucky relationship... keep him out, down there!!
I am currently dealing with boundary issues in my life and hello LS.....I am offering that, for some, straightening out there life and head may be part of the cure. I definitely believe we can cure ourselves of this. I say something you perceive as embarrassing and your skin turns RED!! The mind affecting the body....As part of your healing you may want to be kind to yourself and shift what you can in a positive direction.
I am working on a cream with Chinese herbs for a natural vaginal alternative.
(Colorado)
11/15/2016
Jodi, I think you've got something there. I've had LS for almost 30 years. It started in 1987. I was having sex with my ex-husband 5 years after we were divorced. I think mentally I was trying to stop and that was my defense mechanism. Thank goodness he met someone and stopped needing me. You mentioned Aloe Vera but didn't say if it helped. Please let me know.
(Tas)
09/23/2020
Excellent contribution, I agree whole heartedly. Well said. Our internal world is going to manifest in all kinds of physical symptoms, our bodies work to get us to listen, we need to do that.
(WA)
01/04/2023
My LS history is definitely related to psychological issues. I am an incest survivor. While I look to manage LS symptoms because they can be so disturbing, I am well aware that the root cause lies in my history. Medical people have not a clue about this. They just cut, burn and poison with chems.
Low Oxalates Diet
★★★★★
I switched up the low oxalate diet for a gluten free diet and found that the fatigue and digestive symptoms went away, the LS became gradually less itchy, and the white patches started to disappear. I have not had to use steroid cream for months and I have been able to resume a normal sex life. After a significant improvement I realized that while the dietary change was helping it was not the only answer. I had also noticed that the itching would be the worst when I was lying down or sitting for long periods of time so I started jogging. I started off with 2km and have worked up to 6km 3 times a week. I think that the extra blood flow may be what is helping, because I did do regular excercise before, but it was yoga which was much lower impact and much less demanding to the cardio-vascular system. I would like to mention that I have also not had athsma for months since changing my diet. Trying the low oxalate diet an was the best thing did for my LS.
(London Uk)
10/07/2015
(England)
11/01/2015
★★★★★
I READ YOUR INFO AND WENT ON A GLUTEN AND LOW OXALATE DIET. I was told I had Lichen S.Thank you to everyone that shared their advice about going on a low Oxalate diet and gluten free. It works, I no longer suffer with this condition.
I did use a steroid cream for several weeks. But I am all clear, skin is normal color now, my gp advice is to continue doing what I am doing.
(Burlingame)
03/16/2016
Please, tell me more about the low-oxalate diet. I have not been diagnosed with Licen Sclerosus but I have all the symptoms and they are getting worse. My life has become terrible with my husband, I lost sleep from itching and pain, the obgyns ignore me. Only now I found out what I have.
I need all the help to diminish my agony.
(Corvallis, Or)
03/16/2016
(Wisconsin)
10/18/2016
I have had it for 3 years. For intense itching I use desitin maximum strength, wear white cotton panties with unscented panty liners, and drink organic apple cider vinegar all natural drink, ( found at health food stores and festival food store) 8 ounces 3 times a week. Also when I followed a gluten free diet and no artificial sweeteners my LS was gone. Now I restarted the gluten free diet and no aspartame.
(United Kingdom)
01/09/2017
I have had lichen sclerosis for years, it got so bad I went to a Specialist at a Nuffield hospital, finally I found out the name of it. I'm 79 and 3/4!
I tried the "Emuaid" cream, it came from America and was nearly 68 dollars!!! I found out later that it's on "E-bay" much cheaper, it only lasted me a week but it was so good! So soothing, but I can't afford it!
I'm going to try the "Gluten free and Low Oxalates diet, I have done a lot of research on line, my ls is particularly bad at the moment. Wish me luck!! Margaret.
(Illinois)
04/30/2018
Try 4 tablespoons castor oil....Organic 2 drops essential Lavender oil, 1 drop essential lemongrass oil......that's it. Bought mine from herbal store...supposed to work. anyway they say dont use more drops than what ingredients call for. Just diagnosed....comes and goes...flare ups are horrible...no soap, just rinse warm water....began wearing boxers or mens underwear soft cotton equipo boxers.
Low Oxalates Diet
★★★★★
LS - Hyperthyroid Connection
(Uk)
08/26/2015
★★★★★
Definitely. My sister read anything she could find on LS and our mother had thyroid problems, thyroid removal and in later life developed chronic crohns disease. Poor immune system.
(France)
08/15/2017
My mother had a thyroid operation when I was very young. I think she had it removed and subsequently was told that it was underactive as she gained weight. She developed LS of the vulva in her 50s and now has scleroderma in her fingers. I have never had any health problems but at the age of 43 I developed LS of the vulva. Could be an interesting line of enquiry to see if there is a connection.
LS and Hypothyroidism Connection
I've had LS for at least 7 years now....diagnosed for 5 years.(I am 55) I have tried so many lotions, potions, treatments, etc....I've been reading your posts and will try some of these! I eat organically, eat pasture fed meat and eggs, drink Reverse Osmosis water and exercise.I eat healthy. I am going to try the gluten free diet and see if that helps. I take all kinds of vitamins, etc...a lot of these were mentioned in your posts. I have been using steroid cream....but it has stopped working about 10 months ago....I hated using it anyways......but kept me from going mad. I was using organic, bio-identical progesterone cream..(Natpro).....I didn't think the cream was working, and thought maybe that I didn't use a high enough dosage, but after discontinuing the cream my LS became much worse. I was also under a lot of stress since about that time...so I'm not sure if this is a coincidence or not. I belong to an online support group and some of the women on there say they have had remarkable success using concentrated cannabis oil (topically). Makes one think. I know my doctor would never give me a prescription for it. :( They rarely give people here prescriptions for medical cannabis...let alone the oil. Makes one want to break the law! A lot of the LS treatments are just that.....treating the horrible symptoms that we get....never getting at the cause. It definitely has something to do with hormonal imbalance. Almost everyone that has LS has hypothyroidism...and I think the ones that don't have hypothyroidism just haven't been diagnosed with it yet. It makes me think that maybe we should be finding something that cures hypothyroidism which in turn would cure the LS. I am going to start researching into the thyroid issue. I've been rather down about my LS lately. I hate the horrible itching, the pain, the atrophy.....and especially how it effects my sex life and relationship with my husband. I usually try to be positive and up beat about things......but lately it's been bad.
(Phoenix, AZ)
01/25/2015
I feel like I could have written your posting........ ;(
(Wa State)
02/22/2015
Lynn,
I have had LS for about 15 years. Your post concerns me because you fail to consider that this is a progressive disease.You are in the early or mid stages, and I assure you there is no going backwards. I urge you to arrest the progression before you have irreparable damage. By the symptoms you are reporting, the disease is marching forward. This is not good..
There are stages to the disease that are much worse than you are experiencing now. I urge you to seriously educate yourself on this disease. I know a great resource!!
I belong to a wonderful LS support group, well over 10,000 women and men are members, discussing what is working.. Please get ahold of the LS before it progresses much further.
Here it is:
https://groups.yahoo.com/neo/groups/LichenSclerosis/info
This is REALLY WORTH YOUR TIME.
Sincerely, Cyn
(Cabarlah, Qld. Australia)
04/28/2015
Wendy, have you read Dr Brownstein's book re iodine and followed up with the Iodine protocol as mentioned on Earth Clinic; and, whether this has cured the LS?
(Indianapolis)
10/12/2015
I had hyperparathyroidism, had parathyroid removed, which fixed that, but have lichens acutely. Used clobatasol and premarin cream for years and cannot get rid of it. It even hurts to urinate.
(Vancouver, Bc)
12/16/2015
What group are you on where they talk about using cannabis oil? I'm in Vancouver, Canada and that sort of thing is pretty available, with prescription of course. It's something I'd like to look into so if I can connect with those talking about it, it would be ideal. Thank you.
(Florida)
02/13/2016
I have LS and hypo/hyperthyroidism depending on thyroid med dosage :) It fluctuates all the time. I currently started using Ashwagandah for thyroid and adjust it according to hypo/hyperthyroid symptoms (Now using three a week - Mon, Wed, Fri). Seems to be a good fit for me. Haven't had a blood test since starting it almost a year ago; but according to the symptoms it is working well. It is good for many other medical issues too.
Didn't know LS and thyroid were linked. This is interesting. I use various combos of essential oils in emu oil topically for the LS ... the itching of LS is less with ashwagandah, but the rash and patches are still there.
(California)
08/19/2017
This comment is a little harsh, judgey and might not be true.
It is a very emotional thing, having LS and knowing that stress makes it worse. In fact there is "a going back". There is. I am not there yet, I have just discovered it. But hundreds of women that I have read from in the past week have said that they are experiencing NO symptoms and taking wheat sugar and processed foods out of their diet did the trick. No, I won't say cure- as that would cause an argument. But no symptoms. So there is a "over the rainbow" place for many women. We can't be so harsh online- every single body is different, and some heals faster then others.
LS Connection to Lyme Disease
★★★★★
I am Lyme positive and have systemic Candida. I would think the Lichen Sclerosis if from Candida which most people with Lyme have. I have all three conditions. Yet my symptoms came on after antibiotics for ear infections. A nasal swab has proven they are fungal.
