★★★★★
Hi there! I had a very severe case. Unfortunately, doctors are not helpful by not informing us that changing our diet is extremely effective. What we have to avoid are foods that have a medium to high content of oxalate. Unfortunately, I didn't know, and I was having spinach and soy milk often. After changing my diet, I rarely have itching.
MMS
Dietary Changes
Dietary Changes
Dietary Changes
If you start out making 100 mistakes and you take away 50 of those mistakes your results will improve in the short term. That doesn't mean you are doing something right, it's just means you are doing less wrong.
Keto and Carnivore are both highly restrictive diets which utilize fasting and calorie restriction, essentially people lose weight because they are starving themselves in the short term. This is why so many people fall off the diet. You can only starve yourself for so long before your body screams for sugar and since most people on these diets don't understand their natural diet they don't feed on fruits when the body cries for sugar, instead they go for cake and cookies. The other reason that people appear to lose weight is extreme dehydration. The dark circles and sunken face are another sign of the dehydration, as are the veins bulging from the skin. If you hit a certain point of dehydration your body can no longer create life saving edema so they lose water weight. Since most people on a SAD diet eat salt their bodies are full of edema water weight which sheds when they dehydrate their body on a high protein diet. As soon as they fall off the diet the weight comes back quickly because the body starts to hydrate again and needs to dilute all those acids. Usually they put even more weight back on then before they started the diet because they have put even more acids into the system that require even more dilution. You see this with every high protein diet. The person calorie restricts and dehydrates leading to short term weight loss, then they binge because you can't starve that long, then they regain all the weight plus some. The body has no choice but to respond this way because it was never designed to handle high protein.
You can look at the marketing or you can look at the science and how your cells function. Keto and carnivore diets have good marketing. The carnivore diet even takes testimonials of raw vegans from their own websites and posts them on the carnivore diet site as if these people ate meat to recover their health.
Looking at the science and you see the mortality rates for Keto, 54% increase in mortality in just one year on the diet with a pre existing condition and 25% increase in mortality for "healthy" population. Meaning better than half the people with chronic disease who try keto die within one year on the diet and one quarter of people without a chronic disease diagnosis also die. Those are not statistics I would want to play around with.
It's important we understand the difference between marketing/advertising and science.
As for the carnivore diet, I would not wish that on my worst enemy. I cannot even put into words adequately the pain that people suffer on that diet. I hear from people every day trying to recover their health and with the carnivore diet it's always the same, I felt great for the first 1-3 years, (usually 1 year) and then I felt like I was dying. The pain was everywhere in my body. You can see the disease in their swollen faces before the pain hits too. First they get the sunken face with dark under eyes, then they get the swollen face like Shaun Baker has now. That swelling is edema. The body uses edema to dilute acids. Acids damage the bodies cells so the body floods the area with water as a protective mechanism to deal with the excessive quantities of acids surrounding the cells. Some people get away with it longer than others because of their bodies ability to create more edema to dilute the acids. Others hit the pain very quickly. It depends how bad of shape their body was in to get started. This is why Carnivore heavily targets the very young with their marketing. They know that a young body can go much longer and create more edema then an older body.
As for why people “feel good” on keto and carnivore and why they have short term success you have two primary reasons.
1. Meat is a stimulant drug, so people eating meat are literally getting high, with the same damaging effects on the body as taking cocaine or any other drug which stimulates and damages the body.
2. Most people who fall for the keto or carnivore marketing are coming from eating a SAD diet which includes Meat, Dairy, Eggs, cooked foods, salt, refined sugar, processed foods, alcohol, food coloring and many other poisons. If you start out doing 100 things wrong and then you remove 50 of those wrong things your performance is going to improve in the short term. Disease is all about burden. The more you burden your cells the more disease conditions are created in your body. So if you are making a lot of mistakes and you cut down some of those mistakes you will see some short term improvement. But ultimately if you are not providing your body with the necessities of nutrition which your physiology demands (fruits and tender leafy greens) then ultimately your system will shut down.
Improved obesity- not got to ideal weight - any time you calorie restrict and starve the body some weight will come off. Any time you dehydrate the body you lose water weight.
Improve hypertension - lose some weight and some burden is lifted. Improved is not healed, it's just a better number where the disease still exists but the score is lower. That's not healing.
Improved diabetes - this one is so ridiculous. If you are not eating sugar in the moment you will not have blood sugar spikes. But diabetes is a fat issue, it's never been a sugar issue. Fat blocks the absorption of sugar into the cell. When the body has excess fat coating the cells the cells are unable to push sugar into the cells so the sugar remains in the bloodstream. If you eat a keto or carnivore diet you are putting more fat in and making the situation far worse long term but you are hiding the damage being done short term because you are not putting in the warning indicator, the sugar. As soon as a person comes off the unsustainable carnivore diet and binges on sugar their diabetes shows that it was never gone in the first place.
Improved gastro symptoms- most gastro symptoms are a result of mixing foods which constipate and digest very slowly with natural foods which digest at normal speeds. If you put fruit into a system that is constipated from cooked foods and proteins then the sugars will ferment. If you remove the constipating and dehydrating substances from the diet then fruits digest as designed and there is no fermentation. If you put in only meat the body becomes highly constipated, hence the reason keto and carnivore diet followers poison their body with coffee, because coffee creates diarrhea as the body tries to rapidly flush out the poison, further dehydrating the body.
Improved psychiatric symptoms- most mental health issues are digestive issues. See above. Less digestive distress leads to less mental symptoms due to not combining foods which digest at different speeds. Lauren Whiteman
Change Fabrics
★★★★☆
★★★★★
PRP: platelet rich plasma: They also call it the O-shot or Vampire shot. The technique is, they draw your blood, spin it down and extract the plasma which rich with platelets. Then they inject the plasma into the affected areas. The platelets release multiple growth factors that stimulate the regeneration of health tissue in the genital area. It last for about 6 months to a year, however some patients go into complete remission with just PRP alone.
Stem and PRP therapy: is combo of PRP and stem cells. They first inject the PRP into the LS areas, then do a small liposuction removing fat from one area of the body (e.g. tummy) and inject it into the LS areas. The fat contains stems cells that can turn into the surrounding tissue. These stem cells also release anti-inflammatory chemicals prevent further inflammation. Also the PRP stimulates the stem cells to grow, and they continue to grow and take over the whole area bringing the genital tissue back to normal. The immune system does not recognize these new cells and therefore stop attacking the area rendering the patient ASYMPOTOMATIC! IT WORKS!
Ozonated Olive Oil
DMSO
Dietary Changes
Dietary Changes
Cyclosporine
Given the known side effects of cyclosporine :
https://www.drugs.com/mtm/cyclosporine.html#side-effects
It might be worth viewing ECs page on LS here and decide what you think would be most appropriate for you:
https://www.earthclinic.com/cures/lichen-sclerosus.html
Art
Cyclosporine
My primary care doctor wrote me a prescription for 100 mg of Cyclosporine to try and clear up my LS. It's fairly expensive so I haven't gotten it yet. Thought I see if anyone has tried or heard of this treatment.
Dietary Changes
Colloidal Silver
Dietary Changes
hoping you still have access to this thread. I wondered about your progress, if it was healed ect. also you mentioned the white patches are all gone. did you mean they re- pigmented. Tanks Cat
Dietary Changes
Dietary Changes
Dietary Changes
Dietary Changes
Dietary Changes
★★★★★
Colloidal Silver
★★★★★
DMSO
DMSO was initially effective mixed with aloe vera but it didn't have lasting symptom management.
Next I mixed it with my DIY Tallow Balm and so far this compound is having better results. The DMSO is 99%. The Tallow Balm contains Castor Oil, Tallow and Comfrey Infused Avocado Oil. It's available on Etsy if you don't want to make your own.
Lichen Sclerosus Triggers
DMSO
★★★★☆
2000 - 23 yrs ago, first symptoms were itching across lower belly and groin. No diagnosis, was prescribed steroid gel which controlled itching. Symptoms went away after 3-4 years.
Life was very stressful. I had given up my home, furnishings and everything that didn't fit into 10 boxes, to live with my sister on Maui. After 6 weeks, we fought and she dumped me and I was challenged with finding a home and work and knowing only one person.
2005 - New symptoms begin, vaginal itching and burning just like a yeast infection. NP gave me an antibiotic cream and a steroid gel. No diagnosis. The gel controlled the mild itching.
Life Stress Bad as I was in a very toxic relationship that lasted 7 yrs.
2012 - Symptoms escalate. Doc diagnoses as LS and gives me instructions to use a steroid cream, heavily, briefly mentions skin thinning as side affect and warns against any straining during bowel movements.
2020 - I find Earth Clinic and begin experimenting with natural remedies and diet as I am determined not to continue using the poisonous steroid cream (which works well to control my symptoms). Symptoms are the worst ever and disturb my sleep. COVID stress times.
Natural Remedies I've tried:
- ACV - no help
- Aloe Vera Gel 99% - soothing, best symptom control, but far from perfect.
- Baking Soda and Borax - no help.
- Comfrey calendula healing salve (DIY) - soothing, minimal symptom control.
- Castor Oil - soothing and better symptom control
- Tallow Balm (DIY) - soothing, minimal symptom control.
- Diet - no sugar, less wheat, minimal dairy. My efforts were hit and miss, no affect on symptoms.
DMSO
Day 1, this almost eliminates symptoms after 4 applications and sleep was good at last.
Application:
Put 1/2 tsp aloe Vera in palm of CLEAN hand with 3 or 4 drops of DMSO. Mix with fingers and feel it warming, then apply liberally on CLEAN affected area working it in gently. Let the area dry thoroughly before coming in contact with anything. About 10 - 15 minutes. DMSO is transdermal and will carry anything it touches into your body; toxins from soap or laundry detergent, fabric softeners, dryer sheet toxins, etc. If you are confident you have a toxic free home and laundry, you could put on clean panties after a few minutes and get dressed.
I will continue mixing the DMSO with aloe Vera but eventually, I will mix it with tallow because of tallow's healing qualities for our skin. I render my own tallow from 100% grass fed beef. Tallow balms are sold on Etsy.
References:
https://herbalmana.com › collections › dmso
https://www.truemedicineuniversity.com/healing-with-dmso
★★★★★
Within 4 weeks my LS had cleared up by 95%! I was ecstatic it definitely has to do with diet because I know as I fall off my diet and eat the wrong things again that are high and yeast and high in oxalates it comes right back my doctor said I should do it for about 6 months the protocol and I possibly could get rid of it completely for good. Hope this helps you.
Vitamin D3
Witch Hazel
Vitamin E and Quercetin Cream
★★★★★
After years of steroid use and skin being worse. I recently tried a compound of 3% vitamin E with 1% Quercetin cream and it's worked beautifully. My skin was in such poor shape and painful and has been healing great. I've also used Vaseline with the fissures, but the quercetin has been healing my skin up and helps with inflammation
Essential Oils
★★★★★
TRY THIS RECIPE:
Coconut oil (best one they sell in Walmart)
All Organic Essential Oils: Lavender, Frankensence, Rosemary, Tea Tree Oil.
1 TBL SPOON COCO OIL 3 DROPS ESSENTIAL OILS. SO YOU WILL NEED 4 TABLESPOONS SO YOU CAN PUT 3 DROPS OF EACH OIL.
If you have Vitamin E capsules pierce 2 and add that too. Store in Fridge.
Put it on before you go out but wear a pad cuz it's messy. After evening shower put it again. It feels so soothed immediately. You will feel the difference by the next day. So moisturized and wonderful. It's amazing. I promise you. My condition is so bad I no longer have Labia Minora. The skin stretched it away. My vaginal opening is so small and tight and too painful for sex. It's been about 4 years.
TRY IT PLEASE!!! You can also use those same 5 ingredients in your hair/scalp for hair thinning. But you should use MCT/Fractionated coconut oil in hair and Organic Sweet Almond Oil. Use on freshly washed DRY hair. Leave in for 2-3 hours with a plastic cap if you can leave in overnight and then wash gently and condition hair in cold water from middle to ends not scalp. Try to air Dry but if you must blow dry use cold setting.
PLEASE I BEG YOU TO TRY MY DIY REMEDIES. YOU WONT BE DISAPPOINTED.
Dietary Changes
Wat een verhaal, Mijn ayurvedische kunsten. Heeft me verteld. Na 15 jaar LS-problemen, witte westerse kunstmedicatie en gels DR. medication and gels Nu suiker, Geen industrieel voedsel It goes better, but dificult to follow this diet.
Hi,
What a story. My ayurvedic arts. Told me. After 15 years of LS problems, western art meds and gels DR. medication and gels Now sugar, No industrial food. It goes better, but dificult to follow this diet.
Dietary Changes
Can you tell me about this meat-free diet, because I have been ill with lichen sclerosus for 4 years, and thank you.
Platelet Rich Plasma Injection Therapy
Would you mind sharing the details of where we could find this dr please
EC: A number of doctors now perform Platelet Rich Plasma Therapy. You can search Google using those search terms for a local doctor in your area.
Vitamin E, Lavender Oil
Clobetasol
Essential Oils
★★★★★
Platelet Rich Plasma Injection Therapy
Vitamin E, Lavender Oil
★★★★★
Clobetasol
★★★★★
I have mine under control using a protocol found on a white paper from a doc in CA. It is:
20 min. hot bath every night for 6 weeks, immediately after, rub pea-size amount of clobetasol in for 90 sec. No less. Then 20 min Hot bath every other night for 6 weeks, immediately after rub cream in for 90 sec. Then 2x a week for life.
This has worked for me but I want it gone. On the relations part, idk cause I'm too worried to try.
I'm going to try some things I found today on here but wanted to post this for the lady who is having a hard time & can't get it under control.
The doc had a video showing how getting the thicker type skin down there hot via a 20min bath softens the layers then rubbing the cream in for 90 sec helps the cream Penetrate multiple layers. I have no itch. It's amazing & I'm very happy but I would really like to find a way to not have to use the cream at all.
Good Luck Ladies & I hope this helps someone.
M-
Vitamin E
★★★★★
MMS
Ozonated Olive Oil
★★★★★
The Carnivore Code written by Dr. Paul Saladino has all the science/know how you could ask for. He also has a website with loads of info. Watch some of Strong.sistas youtube videos. Here is a link to one that describes what they eat in a day on the carnivore diet, https://www.youtube.com/watch?v=k9C2O7F1UA4 .
They are a lot of fun to watch. They have been eating this way lots longer than myself. I'm so new and feel uncomfortable as I am such a beginner. The important thing here is, my crotch is normal now except for the scarring. It feels normal and behaves normal in every way. There are also lots of facebook pages on the carnivore diet; Women Carnivore Tribe, Carnivore for Beginners. I just found Strong.sistas and have learned a lot from them but you can get direct answers to your questions on the facebook pages. Finding out about all the toxins in plants to protect themselves from being preyed upon was an eye opener.
I've been organic and very healthy eating for years, not vegan tho but mostly salads with chicken or some sort of protein and a carb like sweet potato. You'll read a lot of healing stores from people who quit plants and went carnivore. It may not be for everyone but my LS took a quick nose dive and has not returned. My eczema is nearly all gone, just discolered skin. Lots of other subtle healings going on and I intend to stick to this diet, at first, for 3 months to see but the improvements are just great so am sticking to this diet for at least a year.
Good Luck on your journey and if you have LS, I pray you manage to get rid of it!
Dietary Changes
Dietary Changes
★★★★★
I had LS for more than 10 maybe 15 years. Saw my gynecologist (no idea of what it was); saw my skin doctor who did help and I can't remember what the ointment was but could only use it for a short amount of time, 2-3 times per week for a limited amount of time. This did take the itching away but the ointment was not healthy to take every. single. day. Which is what I needed to eliminate the itching.
Sooooo, I quit using it and suffered, for years. I tried all the diets, no sugar for more than 5 years, no gluten which I'm still off both these. Sometimes, no sugar/gluten would help but then it would flare up and no help again. I had the paper slits on both sides of my labia, one side was always worse than the other. The itching was INTENSE! Then the pain from the slits or the itching too much would be intense...AARGH.
Ok, so fast forward to today, errr well, 2 months ago. I read about the carnivore diet many years ago and this was one I had never tried. 2 months ago, I tried it...100%. Amazed me. 3 days after starting the carnivore diet, 100%, the itching stopped and has never returned. I still have the paper slits scars but there is no, opps repeat here, NO itching! None, zero, ziltch! And, it's been over 2 months with me being on the carnivore diet with only one minor cheat (hot herbal tea, 2 cups, with 2 hours inbetween) terrible reaction but still...NO itching. The diet is easy but greasy. No food craving...none.
The itching has never returned. My eczema rashes are nearly gone, just discolored skin. They have flared up during this 2 months but I associate that with loss of fat. I've lost 22 #'s and feel great. NO ITCHING! Heaven. I truly hope this helps someone.
Homeopathy
★★★★☆
I used both and the steroid cream did help but I didn't want to be using it on a daily basis. My GP referred me to a homeopathic doctor and I was prescribed a remedy called Acidicum Nitricum (nitric acid ).
I take this remedy daily and also use the emollient on a daily basis .. Since I started using the homeopathic remedy I have only had to use the steroid cream on a handful of occasions. I tend to use Organic Aloe Vera Gel in the first instance. I think the fact that I was diagnosed early ( albeit through my friend ) has helped keep symptoms to a minimum. I was not aware that LS was progressive and have gained knowledge from reading others posts. My friend was mis- diagnosed on several occasions and as a result has many problems associated with LS.
There are many things which can trigger LS flare ups the main factor being stress. Diet can play a big part in alleviating symptoms. Everyone is an individual and if you find something natural that helps you then go for it.
I was diagnosed a little over a year ago, and like many women, I've tried a variety of steroids, creams, potions, lotions, and salves etc.. with little to no relief. After having a severe flare 3.5 weeks ago, I was desperate and refused to go back to my 3rd gyno, who was no help at all. I researched and googled in desperation, and found several forums and Pinterest articles, where patients have treated it as a leaky gut/ and fungal overgrowth.
The remedies were all similar so I tried them! • I started to drink 1-2 tablespoons of Organic apple Cider vinegar with the mother every morning with 12 oz of hot water on empty stomach. • Purchased raw organics vaginal probiotic taken by mouth. • cut out sugars, gluten & diary • increased my vitamin D3 to 4000 ius daily as I was low confirmed by my Gp . • took vitamin K2 with D3 as it helps absorb the D3. • bought Nordics omega 3 supplement • raw juiced mid morning • purchased black African body wash • increased my b12 • drank a non dairy probiotic drink everyday • took 1 500 mg dmannose with cranberry daily. Helps with die off effects of fungus/yeast • applied over the counter clortimazole nightly on the white patches and labia • only used a little Cándula salve on labias and clit for moisture. • started taking collegen powder. • started taking plant digestive enzymes • drank lots of clean purified water After 5 days I got the relief I desired. The white patches are all gone, and the atrophy is much better and my tissue all around looks healthy and pink! I had no idea in my case that yeast/fungus was a factor. Who knew? I was even tested for it in the beginning.
It came back negative! I don't trust doctors. I don't think they are knowledgeable at all about this. I'm so thankful for forums like this.
Dietary Changes
Dietary Changes
★★★★★
Urine Therapy
★★★★☆
Chlorine-Free Toilet Paper