Lyme Disease Connection
★★★★★
(Minnesota)
09/27/2017
(Cabarlah, Qld.)
05/19/2018
If you do a search for Borrelia and Lichen Sclerosus, you will find articles making the connection.
Manuka Honey
★★★★☆
I have for 3 days been using manuka honey and am trying 10+ umf on one side of my chest and 18+ on the other side to see if one works better. LS is now 95 percent flat and nearly all the white is gone. I am keeping my fingers crossed that this finally does the trick. None of the doctors have been particularly useful over the years in finding a useful remedy (but at least they could diagnose it) not even those at the best Boston hospitals... Does it seem that they have far more interest in Lyme disease than helping us women with this sometimes embarrassing ailment?
MMS
★★★★★
MMS (Miracle Mineral Supplement) - I started with one drop for a couple of days and moved up to 2 drops. With the sitz bath I used 5 drops MMS and soaked for 20 minutes in hot water. By the eight day I wasn't using and witch hazel for the itching and calendula ointment.
(Tx)
06/15/2020
(Dallas)
02/23/2021
I will be having biopsy tomorrow but Dr said all my symptoms point to Lichen sclerosus, I have taken MMS in the past, but this pain has caught me off guard, it's like my inmune system has gone haywire, so I will start doing dlsitz baths with MMS, the new version protocol is CDS or Chlorine Dioxide, protocol on how to make it is on YouTube, Dr Andreas kalcker shows step by step how to make it in its purest form. There's also a spray protocol to dilute and use on skin like bacterial vaginitis, so I did do a sitz bath to nite with baking soda, warm water, helped a lot, the creams I'm still researching which to use, organic coconut oil is my go to cream, but needed one like a barrier to help while sitting, I tried Vaseline with Shea butter and it works pretty good, the only thing is gotta reapply after each pee, washing thoroughly, but I'm hopeful that MMS will cure it completely, it got rid of my pollen allergies a while back and helped me with the covid virus back last March.
(Geneva)
04/13/2024
L.S. Rita's feedback on her use of MMS for lichen sclerosis is most interesting. As for the internal use for eight days, gradually increasing the doses, does this mean 8 daily intakes of 125 ml? I did that last year without having knowledge of MMS benefits for lichen sclerosis and found it quite awkward with the 10 minutes abstention before and after food intake. Is there a less constraining alternative for internal use? Can some drops of essential oils be added to the MMS sit bath mixture? Can I use the aquarium MMS for the sit- bath? And for drinking water for human consumption? Does MMS neutralize and eliminate heavy metals? If yes, can this substitute Zéolith? Thank you in advance for your kind reply.
Monolaurin
Neem Oil, Green Tea Extract
★★★★☆
The others brought relief from the itching and bleeding which is a blessing but I want it to heal and not continue to split.
Niacin with Aspirin
★★★★★
Niacin caused burning so the pharmacy told me to take it with aspirin to remove the burning and it worked 100%.
Oregano + Coconut Oils
★★★★★
(Georgia)
10/29/2019
★★★★☆
(Israel)
05/30/2023
Ozonated Olive Oil
★★★★★
(AZ)
12/05/2023
Ozonated Olive Oil
★★★★★
I bought a small jar from a British Columbia company and when you receive it, keep it stored in the fridge. It's okay to ship via unrefrigerated mail though. It looks like solid vaseline. Reasonably priced.
There are many topical uses for this product, from acne to cuts and bruises.
Platelet Rich Plasma Injection Therapy
★★★★★
The 3 treatments with an out of pocket expense of $800 each have completely cleared all of my itching, Burning and white patches. Upon my follow up exam, my doctor stated she could not tell I had lichens! I do not have a reversal in vaginal tissue elasticity, but I believe my peri menopause contributes to that condition. My 3 outpatient treatments were completed in less than 2 hours each, and were non invasive. The process begins with your own blood draw that is put in a centrifuge for about 15 minutes. The platelet the rich plasma is drawn into a syringe and injected in the affected areas (with a large needle to protect the platelets) OUCH!, but the local helps a lot.
This 3 round treatment over 6 months completely cleared my lichens. No creams, steroids or prayers could do that. I was told to come back every 6 months, and that I may require more treatments. After a year I am still clear. This doctor was the first of 3 gynecologists to actually do a biopsy to confirm lichens sclerosis, I am forever grateful to her for taking the bold steps to help me.
FYI PRP is also known as the O shot and the Vampire Facelift, and is thought to restore healthy tissue and blood flow. Read up on it to see if this is an option for you. I know I would pay almost anything to rid myself of the agony of Lichens Sclerosis.
(San Francisco, Ca)
08/25/2016
(Capitola)
05/16/2017
(Nashville, Tn)
07/15/2017
(London)
04/15/2018
Hello Ocean51, how is your LS doing atm? This post is from 2 years ago but I hope you will read my message. I have recently been diagnosed with LS and I am looking to try PRP. Your feedback will be extremely helpful. Did you need to do another PRP treatment of several sessions? If yes, in how many months after the first one? Was the effect as strong as the first time? Are you using any steroid creams atm?
Warm regards,
Lana
(Maui)
09/08/2021
(London)
02/28/2022
(New Jersey)
01/18/2024
★★★★★
Stem cell PRP is the only thing out there that comes close to a cure for LS. Dr. Nathan Newman in Beverly Hills California has performed this technique on over 200 LS patients all 100% show improvement or go into complete remission for years. See his Yelp. People confuse the two techniques:
PRP: platelet rich plasma: They also call it the O-shot or Vampire shot. The technique is, they draw your blood, spin it down and extract the plasma which rich with platelets. Then they inject the plasma into the affected areas. The platelets release multiple growth factors that stimulate the regeneration of health tissue in the genital area. It last for about 6 months to a year, however some patients go into complete remission with just PRP alone.
Stem and PRP therapy: is combo of PRP and stem cells. They first inject the PRP into the LS areas, then do a small liposuction removing fat from one area of the body (e.g. tummy) and inject it into the LS areas. The fat contains stems cells that can turn into the surrounding tissue. These stem cells also release anti-inflammatory chemicals prevent further inflammation. Also the PRP stimulates the stem cells to grow, and they continue to grow and take over the whole area bringing the genital tissue back to normal. The immune system does not recognize these new cells and therefore stop attacking the area rendering the patient ASYMPOTOMATIC! IT WORKS!
Prescription Meds for LS
★★★★☆
Shea Butter
★★★★★
Sitz Baths
★★★★☆
Skin Cream
Urine Therapy
★★★★☆
(USA)
02/01/2020
I just apply the urine topically when I pee and let it dry naturally if I have the time or pat excess off with toilet paper. A probiotic and/or anti-candida enzymes before bed also help w/ night-time itching. I learned about the urine tx from a traditional healer who did not charge me for the advice. Needless to say, this remedy is free and readily available. It's the most effective thing I've used in many years of dealing with LS.
(Agoura Hills)
10/09/2013
My daughter has been suffering with LS she is 12 and has had it for some time. I didn't use the steroid creams but now I am as fear it has progressed. It is very itchy and lots of discomfort. We had tried holistic treatments and herbs and acupuncture as well. I am very interested in the light therapy where do you go to get that? Where do they use the light exactly? Please help. Thank you
(New York)
10/10/2013
Carol... Not sure exactly what you have tried or if you read thru the other posts on the site. I can only suggest what I has worked for one of my clients who had it. I had her use infused oregano oil 3 to 4 drops under the tongue, twice daily. I also suggested making a vaginal douche consisting of 50% apple cider vinegar, 50% distilled water with a healthy tablespoon of plain yogurt mixed in. This will be very soothing as well as help the tissues to heal. Diet is also a concern as I'm sure you know and I'm sure you've talked with her about diet, but it is important - getting her to stay away from sugar may be a challenge, but it is necessary.
With her diet, if she can get a lot of probiotics into her from yogurt, kefir, sauerkraut (it's got to be fresh - not canned, bottled - pasturized), also kombucha is a good source. Hope she finds relief soon! Katy
