LDN
★★★★★
Light Therapy
★★★★★
Best of Wishes, Joe
(Virginia)
02/20/2017
I know this is a old post but I hope you can reply. I have been battling lichens planus for 4 months and like you tried numerous steroid creams and prednisone with no relief. I had to stop working due to my hands and feet becoming so raw and cracked and peeling that I couldn't wear shoes or use my hands. I, too, starting going to the tanning bed last week and it did seem to be getting better but then flared up again. How often and for how long did you go to the tanning bed until you got relief? Do you know what caused yours?
(Maine)
03/08/2022
It's an autoimmune response. Mine was caused by hypersensitivity to mercury.
Struggled for years had it on skin tongue scalp and genitals. I was misdiagnosed with psoriasis geographic tongue dandruff and jock itch.
Olive leaf extract helps.
Hopefully, they will clear after removing dental amalgam.
Monolaurin
★★★★★
(Ohio)
05/25/2015
Anita,
Thank you for your post. Can you tell us how many mg. per pill you took, and the brand? Did you have LP only on your skin, or did it also occur internally, like your mouth?
Thanks!
(Los Angeles)
01/20/2018
How long ago did you have it for? Are you still taking Monolaurin? I started taking it after seeing your post, I have it all over my body, I am afraid to use steroids ointments due to flare ups . Have your LP come back? How long have you been free from LP? Are you atill taking Monolaurin? Please help, thank you
Multiple Remedies
★★★★☆
I have had lichen planus for over 14 years now. The dermatologists say I have the worst case they have ever seen. One even wanted a picture for his medical journal! I have lost all 20 nails, have hair loss, and my esophagus and vagina have constricted and I have to do monthly dilations. I have many other conditions so will list them with the solutions that I have found.
First of all, over the years I have found that any treatment given for herpes works for my lichen flare ups. (Yes, I have been tested for herpes and it is negative). My obgyn had stopped my period to avoid eroding of the membranes, baths with lavender and lemon balm help. I have even applied lemon balm directly to the area when not raw. For severe flare ups, she prescribes me herpes medicine (valtrex).
For brushing teeth, I use Tom's natural toothpaste with propolis and myrrh, and a natural mouthwash. Gums never hurt and blisters have gone away. Dentist can't even tell that I have it in my mouth. I drink whole leaf aloe juice everyday, 4 oz. in with my green tea 2x a day. I watch my argenine to l lysine intake. A diet high in l lysine and low in argenine has worked wonders. A list can be found online. I take omega 369. I take isotonix brand vitamins and the ingredients in the opc 3 help the most.
Hope this helps someone with relief thru my years of finding alternatives to taking steroids. This week, I am going to start researching the immune boosting benefits that mushrooms have, thanks to the advice of the local health food stores. Best wishes on your path to healing.
Multiple Remedies
★★★★☆
Multiple Remedies
Multiple Remedies
★★★★☆
Hi all,
I did read all the posts.And i was surprised to see so many people are facing the same problems like one i am. But feel little better cause i have someone to share the feeling, pain and information of something overtaking our lives called "Lichen Planus"..Some months back i was so sick i could not help myself out of bed i had fever and severe cough by the time i found relief not cure..i lost my father due to heart attack. It was as though something was waiting for the push down the cliff and there i started getting aggravated symptoms of lichen planus...which i thought was bronchitis or sore throat. When i read your information i feel we are so helpless to understand our own bodies with which we live 24x7. Understanding of Lichen Planus in chinese culture is stagnant heat and stagnant blood.. Anything stagnant starts causing to decaying effect. Cleansing becomes highly essential..Similarly yoga says it is cleaning of wind that moves through your body..which needs to be done via the appropriate breathing excersie and some hand gestures..
Please read this link and look for this moo-draa (this is how it is pronounced "mudra" or hand gesture saying " Varun Mudra " read it carefully and understand the same..it is natural body mosituriser...it helps relieve the lack of moisturein oral lichen planus. Also check "Prithvi mudra" for mental relaxation which is a must in this growing anxiety of growing lichen planus.Please try to take Vitamin C dosage i am currently taking aamalika (indian gooseberry capsules 2x a day)and neem capsules 2x a day (leaves which are blood purifiers and relieve the itch effect to decent extent...not too promising, yet helpful as of now...do take vitamin C in the afternoon as late evening will cause disturbed sleep.
I alternate bedtime routine with 1. Oil rinse ( i have infused olive oil with garlic and rinse just front portion of mouth with this 1 tsp oil) (do not follow this instructions if you have Olive oil or garlic allergies) and next day an tumeric poweder 1/2tsp in lukewarm water (if sores are bad reduce the water heat from lukewarm to little more manageable levels)and rinse in the front of the mouth and spit it out but do not wash your mouth, let the tumeric particles remain(do not follow this instructions if you have tumeric allergies)...try not to take it closer to throat...not harmful cause it is just spice but may leave unpleasant taste..but i sure did get quick relief from open sores and they are sealed all the time and do not oooze bloody taste in the mouth.
Check this website for some yoga techniques to cool off your internal self as i mentioned earlier...body is captured heat that does not convert into energy and flow out..instead stagnant and causes ailments...
http://www.yogsandesh.org/articles/33/1/Pranayama-Techniques-of-Swami-Ramdev/Page1.html
2nd Posture is one which unwinds and cools off the body...but read the instructions carefully and consult a yoga practitioner for good results...slowly take this situation under control...but wisely..in haste we may do more harm then good..We should not bombard ourselves with tons of medications..
Do read these techniques : http://www.naturalworldhealing.com/thefetalcure.htm
Once you try them once a day chalkout the techniques that made you see the happy and soothing results (much needed now)...Put them in front of you or place you visit the most (for me it is the kitchen) paste it and write on the heading "If it is to be it is upto me" do check with your doctors everytime...period of 5days/10days/15days
These are just over and above your regular medicines...hope this helps...atleast ithelps me to know we are helping stranger who bought us togather for a cause..treat this group as your study group...and work...we will see reults and hope for any future cases..I hope doctors read these case studies...
(Mumbai)
07/29/2017
Multiple Remedies
★★★★☆
(Romulus)
02/25/2016
I am so appreciative of all this information. Especially yours, as I also have lichen planus in my mouth. I cannot eat anything even a little spicy. My gums hurt to the nerve if I do. My gums bleed just about everyday. My dentist diagnosed me with this problem upon a series of painful tests. Please post more information as I will follow your posts. Need help, Marie
Multiple Remedies
★★★★★
Olive Leaf
★★★★★
(Uniontown, Oh)
04/04/2013
Could you please elaborate on the dose and kind of olive leaf you are suggesting? I have tried olive leaf capsules and didn't notice any improvement in LP. I only took a small dose and would be interested in hearing how much, how often and what kind of olive leaf you used. Are you completely cured or is it temporary relief? Thanks!
(Idaho)
03/09/2022
(Calgary)
01/07/2014
(New York)
01/08/2014
Hi, I use olive leaf for about two months now and the salesman in the healthfood store said that olive leaf shouldn't be used for more than a few months at a time..He said since it's an herb it can take out good bacteria in the gut.. I also use probiotics.. Is this true? I use it to help lower my blood pressure. I also use a few other things.. Thank You
(Maine)
03/08/2022
★★★★★
Olive leaf actually helps your gut. It is Prebiotic and does not adversely affect your probiotics. I buy ground olive leaf in bulk 1 lbs bag from California. A teaspoon or 2 a day in Juice or under the tongue and sip liquid or salivate and swish cleared after a month.
(Denver)
01/08/2014
Marie: The longest lived animal in the world spends all day every day eating marine phytoplankton. Scientists asked centenarians in China what they ate and they said they drank several cups of jiaogulan every day. Indians living on an island in the Caribbean drink 6 cups of cocoa every day. A 54 year old Tarahumara had the best time in a 100 mile race at an elevation of 10,000ft. A year later some runners, including a man who won a 125 mile race in death valley during the summer, went to the copper canyons of northern Mexico. They raced 50 miles over rough terrain. The indian won. Every day all his life he ate corn and beans. A master herbalist in Arizona takes he sho wu, hu zhang, and jiaogulan every day. He is 70 years old. When he is not working in his herbal business he is working on his ranch with his beloved wife. I am not sure because many herbalists say cells develop tolerance and that they should be cycled, food too.
Oral Lichen Planus Treatment
My name is Atira from Indonesia. I've been diagnosed for Oral Lichen planus for 4 years now. My OM Doctor prescibes me to use Klorderma and Solcoceryl (ointment). I use Klorderma twice a day and the next day I will use Solcoceryl twice a day also. I would like to ask you whether there are any treatment for this OLP using baking soda or other herbs. My tongue condition now is red at the side of my tongue and it's very painful if touched to the teeth or food. Right now I only use my left side of the mouth to eat. Last April, I had my 2nd biopsy and Thank God everything is clear, only the red and soreness left. Thank you so much for your help. I hope that you could help me with my problems.
(Uniontown, Oh)
10/20/2013
I have oral LP, also, and after trying many things for over 5 years, I have found something that has cleared the part of my mouth that I had biopsied to confirm the LP. This has been confirmed by my dentist. I take one of these after I have brushed and flossed before bed. Don't drink any water for at least half an hour or more after dissolving it in your mouth.
This is the only thing that has worked for me to heal my gum. My mouth still burns some in the morning, but no more lesions. Best wishes!
(Toronto)
10/23/2013
This is a question for Rsw from Uniontown, Oh, or anyone else who may know.
You posted the other day and said that you had tried many things for OLP. I'm curious to know if you've ever tried purslane. I saw some studies that indicate it may help, but it's rather pricey to order. I'm hoping for some feedback before spending that much money.
I'd really like to try those lozenges that you mentioned, but I can't find a source for them here in Canada. I guess I'll have to keep looking.
(Uniontown, Oh)
10/23/2013
Hi Rosanne,
Yes, I have tried purslane. I bought it in dried powder form. I took it for a short time without any change, then read that it is very high in oxalates which is not recommended for LP, so I stopped taking it in favor of a low oxalate diet. Although some have benefited by this diet, I found no noticable change after many months. The oral probiotics with the BLIS ingredients worked for my mouth, and another man who also has LP tried it and it worked for him in his mouth, also. Systemically, we are both still trying to figure this out. Currently taking LDN ( this is not effective but I believe it is so good for the immune system that I continue taking it), enhanced absorption curcumin, a special CoQ 10 since I believe this may have been statin induced, yoga, low dose benedryl (just started this today) and a high anti-oxident cream. If you find anything effective, please post. I continue to read and research every day. Best wishes.
(Toronto)
10/24/2013
I'm so glad I asked for feedback on the purslane before buying it. Thanks!
I've had a patch of OLP on my gums for many years, which never caused me any trouble. In fact, I wouldn't even have known it was there, except every time I went to the dentist, they asked if it was bothering me.
But in the last few months it has slowly crept up on me. About two weeks ago, it got really awful all of a sudden. My lips/gums/cheeks/lips were burning and tingling, and a white patch under my tongue was downright painful. I happened to have had a dental cleaning scheduled then, and they confirmed it was OLP.
Of course, they could not offer me much in the way of treatment, but they did give me a sample of "moisturizing" toothpaste and mouthwash. (brand name starts with B) I also bought some toothpaste that does not contain sodium lauryl sulphate, and I quit oil pulling (EVCO) since my mouth was just so irritated.
A week later, I am considerably better. Of course, there is no way of knowing which, if any, of the things I changed had any impact upon the state of my mouth. And the white patches are still there, of course. And...I have issues with LP on other parts of my body as well, so I'm most interested in this as a systemic issue. Might this be related to the Perioral Dermatitis that I battled at this time last year? I have to think that's a possiblity.
Thanks for your information.
pH Regulation
★★★★★
I started noticing this because I would get something like water blisters in my mouth around meal time. If figured that my pH would be lower around meals. I also noticed that the blisters would pop easily if my pH was up, and would be harder to pop if the pH was low.
I think that lichens planus might be a reaction to acidic sweat.
I have used baking soda to raise my pH
(Faridabad, India)
07/14/2012
(New York, Ny)
07/16/2012
(Canada)
07/09/2013
(Uniontown, Oh)
07/09/2013
Ali, I have been diagnosed with oral LP by a biopsy. After trying many things over a ten year period, I found J----oral probiotic lozenges with BLIS K12 and BLIS M18, an inexpensive supplement with 8 lozenges per pack. To my amazement, my gum has healed and my dentist confirms that! I use one at night, after brushing and flossing before I go to sleep, and it takes at least 30 days to colonize. I am so happy and it may help you, too. However, oral LP usually means systemic LP, and the other mucous membranes are not changed. But I'm grateful that my mouth has healed. Best wishes!
Probiotics
★★★★★
(United States)
04/04/2018
Could you please post a link to the product you purchased off of amazon.
I believe I am currently experiencing OLP and it's my first time ever. Thankfully it's not too severe, just had horrible dry mouth and burning. Doctor recommend Nystatin then moved to “Magic Mouthwash”, and they've helped, but I want to take care of this once and for all. Please do you feel like the products you got off of amazon will help.
Purslane
★★★★★
Personally I have been looking for this plant and will find it.
grown in wild is better than domesticated
Purslane may be a common plant, but it is uncommonly good for you. It tops the list of plants high in vitamin E and an essential omega-3 fatty acid called alpha-linolenic acid (ALA). Purslane provides six times more vitamin E than spinach and seven times more beta carotene than carrots. It's also rich in vitamin C, magnesium, riboflavin, potassium and phosphorus.
Omega-3s are a class of polyunsaturated essential fatty acids. Your body cannot manufacture essential fatty acids, so you must get them from food. Unfortunately, the typical American diet contains too few omega-3s, a shortage that is linked to a barrage of illnesses including heart disease, cancer and Alzheimer's disease.
Salt Water Baths
I've had lichen planus for the last 4 years now. It started in 2010 when I was 25 years of age and got worse and worse. I trusted doctors a lot at the time, untill they told me they dont' know much about this condition. Put me on antihystamine pills and cortisone creams which made my condition a gazillion times worse.
This is when I realized I need to take things into my own hands, the first thing that really helped me was I stopped drinking milk. This helped, not a lot but a little. Then I started eating a ton of honey, which is a natural antibiotic. I did this because honey is mentioned in the Quran and it has healed a lot of people. This helped a lot. The last thing that completely got rid of my lichen planus was a swim in the oceans of Hawaii. After my Hawaii trip, my lichen planus really died down. I realized the salt water worked wonders on my skin.
Since then I have not broken out into lichen planus. In the recent few months 2 new lesions have appeared on my thigh which I have not treated with any chemicals except for extreme salt water baths which flatten the lesions immediately. I also take vitamins that enhance the immune system. (More zinc and vitamin C)
I hope this helps someone out. Try not to make things too complicated and definitely try the salt water baths
Sophie
(Az)
04/16/2015
★★★★★
Sophie, thank you! We went to Mexico and while there my intuition told me to get in the ocean water for my lichen planus, which was all over my back and various other places. I did that, and it got lighter, and within a few weeks it disappeared!! Wooohooo!! :-) I heartily recommend getting your body in the ocean as a remedy for lichen planus!! :-)
(Nb, Canada)
12/09/2015
Sophie, thanks. I am going to try this. I too have this "lovely condition" and believe you heal from within. ( I refuse to use steroids) It is nice to hear I am not alone. Sad we have it, but comforting to be able to share with others. I am using TCM (Traditional Chinese Medicine) herbs and am a reflexologist, vitamins and lots of water daily . I am menopausal and working on that :)
Thanks again, Gale
(Edmonton, Canada)
02/28/2016
★★★★★
Hey, just wanted to update everyone with my lichen planus remedies.
Since my last outbreak on my thigh, I have another outbreak all over. This time around I wasn't able to get to the ocean :( but I have tried several other things. as of late I have been using frankincense and lavender essential oils mixed into a fragrant free all natural lotion. This has helped with the itching dramatically. Also I have incorporated turmeric pills. There was a study done that showed 9/10 people were cured from trumeric. As you all must know turmeric has known to help with inflammatory conditions and also helps with diseases in your digestive tract. As long as your gut is clean the rash will stay away. Try it out!
(Maryland)
04/24/2016
I have had lichen planus for over 4 yrs. I have gone to 3 different dermatologists, biopsies have been taken to confirm, steroid creams given, etc., & to no avail NO CURE. What types of salt water baths? Should I use Epsom salt or can you inform me what kind of salt. The honey would not be good for me because I have diabetes..Pls any suggestion to help would be much appreciated..Thank You!!
(Marshall)
04/28/2016
(Florida)
01/05/2017
★☆☆☆☆
(Los Ãngeles)
01/28/2018
I have been recently diagnose with Lichen Planus and I am very sad. I am using aloe Vera gel on body, taking Monolaurin supplements, taking Dead Sea salt bath, using Triamcinolone and Tacrolimus ointment ( not too often though, mayb once a day ) . The dr recommended PUVA light, and I am have not done it but I would like to get a feedback. I don't know what to do, the scars are very ugly . It started on the sole of my foot and it has been spreading on my body. I am very scared and pray to the Lord to heal me. I will appreciate any advise. I purchased Dead Sea Mud and I hope it can help. I just ordered it.
(Cedar Rapids IA)
06/08/2022
★★★★★
Sophie, I also discovered my own treatment for lichen planus. I started getting it on my lower legs and arms in my 30s, and it would appear mid-winter and disappear in the summer. This cycle repeated annually from my 30s into my 50s, but not every year. Then one year it didn't go away in the summer. I mentioned it to my doctor (an internist) who inspected it, looked it up on her version of webmd, and agreed with my self-diagnosis. She referred me to a dermatologist, who took a biopsy, prescribed a steroid cream and said come back in two weeks. Two weeks later, he seemed surprised that my legs looked so good so quickly after using the cream. I told him I had a free afternoon after business meetings in Ft Walton Beach FL so waded in the gulf for about a mile in each direction, and my legs looked better. He smiled knowingly and said “saltwater, and particularly sea water, is very therapeutic for people with skin conditions”. Five days in Playa del Carmen cleared it up completely and I've managed to get to the ocean once a year since then. With covid travel restrictions it has been more difficult to get to the beach but I've been taking regular Epsom salt baths and that seems to keep it at bay. Last year it showed up again on my gums so maybe it's time to return to the ocean.
