★★★★★
Here is the new study just in January 2024/ CoQ10
Baking Soda and Borax
DERM rx'd Betamethasone lotion at hairline and Rogaine. Now I have vulvar lp and I'm dealing with that.
It seems my lichen, in general, stays in control by eating AIP plan (Autoimmune Protocol) and borax.
Aloe Vera
Borax
Dietary Changes
Dietary Changes
★★★★★
I am wondering did you give up dairy products like yoghurt as I eat a yoghurt each day. I have completely given up sugar and trying to give up Gluten in Breads and Grains. I find it very hard to give up bread but have 2 slices a day. Well done on helping your illness. All illness of course is from inflammation in the body and cheese is a big one here, also sugar and junk food. wishing you the best
Rosemarie
Dietary Changes
Salt Water Baths
★★★★★
Baking Soda and Borax
Olive Leaf
Would you mind sharing where specifically you order the olive leaf from? I'm looking for a good source. Thank you :)
Light Therapy
Struggled for years had it on skin tongue scalp and genitals. I was misdiagnosed with psoriasis geographic tongue dandruff and jock itch.
Olive leaf extract helps.
Hopefully, they will clear after removing dental amalgam.
Olive Leaf
★★★★★
Dietary Changes
Dietary Changes
LDN
★★★★★
Eliminate Vitamin D
I am very low on Vitamin D and take pills to bring up my levels but I do not have breakouts. I have been on all the creams and steroids and it did not work. I have been on Plaquenil and all types of antibiotics and they did not work.
Now, I am taking Methotrexate and Folic acid and I am seeing great improvements. Why are people responsive to some treatments and not responsive to others? It is a difficult disease!
Dietary Changes
Black Seed Oil
Do you drink the black seed oil and coconut/Vitamin E oil for LP on mucous membranes or do you have it on your external skin and rub it on? Thank you.
Black Seed Oil
I'll look for your updates, good luck!
Art
Hyaluronic Acid
Thank you for the links. I have purchased three 32 oz. bottles of preservative free aloe vera juice (did not but the gel because of the carrageen, but it may adhere better) and will also take the pine bark capsules. Will keep you informed of any progress! Very grateful for your suggestions.
Hyaluronic Acid
Okay, that sounds like it helps noticeably, but is not completely clearing you up from the OLP. Really difficult to be sure with what you have going on and the break from LDN which could potentially exacerbate a health condition.
I was looking at some other studies, which if you have not seen them yet may be worth going over.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5662509/
https://www.ncbi.nlm.nih.gov/pubmed/28029732
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5028429/
https://www.ncbi.nlm.nih.gov/pubmed/24245466
http://www.advances.umed.wroc.pl/pdf/2013/22/6/893.pdf
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4439686/
Judging from those studies, aloe vera appears to be worth consideration and possibly something that can be used in combination with something else.
In answer to your question, the link that I see in those diseases is excess inflammation and oxidative stress, so things you do to reduce those should be helpful to varying degrees depending on how much and how often you take it.
Good luck and keep us posted on your progress!
Art
Hyaluronic Acid
It's difficult for me to say, because I have trouble only doing one thing at a time, which I realize may distort the results. I had tried to take a break from LDN because a researcher I trust had suggested she had done this. This is the second year I have tried this, and both years, after being off the LDN for a month or more (I was shooting for six months), I picked up a nasty virus that lasted weeks and weeks, after never being ill at all in all the years I have taken it. So that has to be factored in. The HA study said to keep it on at least for half an hour which I may have interpreted incorrectly as more is better, even keeping it on overnight a day or two. My teeth seemed to be more sensitive and hopefully I didn't lose any enamel. I'm also not sure if I was able to thoroughly mix and distribute the HA in the Orabase by hand. I went into a LP flare from all this. I was able to reverse it after using a echinacea/goldenseal liquid swished in mouth and swallowed, and surprisingly, a toothpaste with Myrrh extract, Clove oil, folic acid, grapefruit extract, zinc and CoQ10. I thought the clove would be an immediate No-Go, but it worked surprisingly well. I think the zinc may have been the main help. Not totally, and I have had to back off to a lower usage, but enough to become tolerable again. My dentist felt that I had some improvement but still had inflammation in my front gums, which is interesting because the inflammation used to be all in the back gums and seems to have reversed position. It still is improved and my gums are not receeding as much. My most reliable indication of the status of the LP is that when I first wake up in the morning, the first thing I am aware of is my gums are burning, and this has definitely improved.
I am very grateful to you for showing me studies that I wasn't able to find myself, and showing me different possible remedies that may lead to a cure. This is a creepy, awful little autoimmune, like most are, and I continue to hope to find a complete cure one of these days. I don't think I will try a long term break from the LDN again, but take it less often and at a lower dose, which is sometimes advised. I sometimes think it's not doing much until I take a break! It is subtle, like borax. (It's NOT subtle for people with MS, Crohn's and many other diseases which it helps return the user to a normal life if taken regularly). Thank you, Art, for helping so many of us and always thinking outside the box, which is probably how we will discover a cure or complete remission. I keep returning to that list of LP, psoriasis, Sgogren's, etc into a group and how your supplements were listed for these autoimmunes. What is the link?
Hyaluronic Acid
Just wondering how your hyaluronic acid experiment turned out regarding OLP? It's been about another two months, so I thought you would have a better idea now if the HA is helpful for you or not?
Art
Probiotics
I believe I am currently experiencing OLP and it's my first time ever. Thankfully it's not too severe, just had horrible dry mouth and burning. Doctor recommend Nystatin then moved to “Magic Mouthwash”, and they've helped, but I want to take care of this once and for all. Please do you feel like the products you got off of amazon will help.
Hyaluronic Acid
I would say the Orabase is the consistency of something between regular toothpaste, vasoline and icing right before you ice cookies or cake. It is very smooth and soft. After I mixed the powdered HA with the Orabase, it remained soft and spreadable, and I was able to store it in a glass bowl with a lid. It almost immediately dries upon contact with the mouth, and is not easily moved around. However, after being in the mouth saliva for a while, it softens up and starts to slide down onto teeth from the gums, (some sticks on the gums, too) which is why you need to stay inside. You have to use your finger to get it off, or a q-tip, and also brush your teeth. However, the second I added the liquid tumeric extract to the Orabase, it solidified somewhat, was spongy, and was much less spreadable and much harder to put on the gums. It must react with wetness, and changes from soft and speadable to much drier, and this reaction is almost immediate. Very interesting stuff! Hope this is understandable. After the small filling came out, I did have some concern about the effect the HA might be having on the tooth enamel, but my teeth seem fine now with no increased sensitivity. Thanks for posting the study, Art! I will be interested to see if my dentist thinks there is improvement in May. I am going to add myrrh and goldenseal in distilled water with celtic salt as a mouthwash and see how that goes, too. Will post if anything changes. Hope your psorisis is still gone and you continue to feel well. Thanks for all you do to help people find remedies that would otherwise not be apparent to most of us. Your research skills are top notch, and you are very generous with your time.
Hyaluronic Acid
Glad to hear you are getting positive effects using the Hyaluronic Acid topical!
For your 30 gram tube of Orabase, it requires about 60 mg of hyaluronic acid powder to get to .2%, which is hard to measure accurately without a good electronic scale. I just weighed some HA powder and 60 mg is close to 1/16th teaspoon. One problem with hand mixing HA powder is that it is difficult to do and get an even dispersion. Anyone who has tried to mix HA will be aware of that problem. The fact that your red gums are now approaching normal color suggests that you are on the right track! Many topical HA products are set at 1% HA, which would contain about five times more HA than what was used in the study, so that study dose is relatively low and if you do not get it mixed well, it will likely be equivalent to an ever lower dose.
I would be very interested in knowing what consistency the Orabase product is? Can you think of a common product that would have a similar consistency? Is it sticky? Does the consistency change much once the HA is fully mixed in. Does the Orabase dry fast? Once you apply it inside your mouth, does it dry in place or does it stay wet?
Art
Hyaluronic Acid
★★★★☆
I tried the 0.2% HA/Orabase mixture on gums and mouth for 16 days. We estimated that for each 30g. tube of Orabase, adding food grade powdered HA that fit on the tip of a dinner knife would be an approximate 0.2% mixture. Each tube lasted about 8 days. It was applied 3 times/day for a minimum of 30 minutes each time to (a few days)used overnight. Because you cannot go out with this mixture on the mouth, I extended the 14 day trial to 16 days to make up for four missed applications.
This definitely stirred things up. The LP began moving to other areas of the mouth, with quite a bit of burning noticed in the AM. I am not sure if this was due to the HA or the Orabase. I had a very small filling on a bottom tooth (it was decades old from a minimally chipped tooth), which came out when this was left on at night. After that, I discontinued using the mixture overnight. I had a small amount of Orabase left over, so I mixed it with alcohol-free liquid tumeric extract and used that for two days. (The liquid mixed with the Orabase makes the Orabase less able to be spread around). No relief. So I chewed some watercress for a few days, then cilantro for a few days, and left it on my gums to chelate whatever was going on.
I went to the health food store to look for dental products and ran into a woman who had major infected gum problems, and she told me she had read a book that said Goldenseal was needed to cure this. I looked this up when I got home and it seemed to be a good idea for sore gums, and I had liquid, alcohol-free Echinacea/Goldenseal with Burdock Root, Wood Betony and Cayenne Pepper, all recommended (along with Myrr, but I didn't have that). It seemed to help a lot, so I have ordered some more. The Cayenne did not burn, which was surprising.
I am so grateful to have this study posted from Art, because I was about at the end of the line in options. Even though it created some change in the status of the mouth, I think this may be a good thing to alert the body to try and heal itself. It also lead to other options I had not considered. I had a very red mark on my gum for months that is decidedly lessened in color. The results of the NIH study were excellent, so I may have mixed the dosage incorrectly, and I did mix it by hand, so it may not have been totally evenly distributed, although I mixed it for quite a while. I don't want to discourage anyone else from trying this. I have had LP for a long time, and my gums are very sensitive. All in all, I think some progress has been made because my gums looks less inflamed and a more natural color, although some burning remains, especially in the morning. I'm happy! Thank you.
★★★★★
So then I decided to try to swish aloe vera juice in my mouth for the OLP. It burns but my gums turn light pink which is incredible to me since they are pretty much red. I also started swallowing about 1 oz because I have LP in the esophagus as well. It burned at first but now it does't anymore so I think it's working. Will try to take 2 oz now to see if it helps even more!
Borax
Salt Water Baths
Hyaluronic Acid
Ordered the food grade HA in the form of Sodium Hyluronate and was able to get the Orabase from Ireland, although I think they must have distribution centers in the US. I tried to get Pharmaceutical grade HA from a local compounding pharm, but I had to leave a message and they didn't get back to me all day, so I tried my regular pharm and they said they couldn't do compounding (two ingredients! ), so I decided to make my own from Ted's suggestion of Bulk Supplements. I hope that will be OK. If not, I will figure out a way to get the Pharmeceutical grade, although when I looked on of the sites for this, they also supplied Sodium Hyluronate, so maybe OK.
Will definitely keep everyone informed! Can't wait to receive the supplies. Total investment of about $30!
Monolaurin
Hyaluronic Acid
You are very welcome!
Another major point about that study is that they only used the active treatment for 2 weeks......yes, just two weeks and then they stopped treatment and only observed for the last two weeks. In the last two weeks, the treatment group continued to improve! If this were a drug that they used for the study, it would be one big money maker for the drug company considering the results they got! As it is, very few people are even aware of this potentially great treatment for OLP!
Another major point in this study is that they used such a mild dose at just 0.2% HA! Just imagine what the results might have been if they had used a stronger dose, a more frequent dose or had continued the dose beyond two weeks?!?!
Keep us posted on how you do with it, Rsw!
Art
Hyaluronic Acid
I can't thank you enough for posting this study. The amazing thing about the HA is that the LP does not come BACK! Thank you, thank you! This may be it! And I can always add the CS, if necessary. I haven't been this hopeful in a long time. All the research I have looked at, and I never came across that study. Thank you so much. I'll keep you posted on any results!
Hyaluronic Acid
★★★★★
Not that I have tried this for OLP, but I have tried it for something else and found it quite effective for the purpose I used it for in a relatively short period of time. The study suggests that it is helpful for people living with OLP and is non invasive. In any case it seems worth considering and there is the potential to realize other health benefits from HA. Another advantage of HA over something like curcumin is that HA mixed as a gel is clear and colorless which means no yellow teeth or extra teeth scrubbing and that seems like a big plus to me!
Here is a link to the full study that used a relatively low concentration (0.2%) HA topical with impressive results:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4740703/
This seems like a really easy to use remedy for OLP!
I think it would be really interesting to see a study that combined HA with Colloidal silver for OLP. That seems like it would be a fairly easy combo to make!
Art
Baking Soda and Borax
Dietary Changes, UV Light Therapy
★★★★★
He is almost cured after 4 months and his condition was bad. He had many skin bumps, nail and oral form. He does not drink cow milk, only goat milk and joghurt, he is wheat free. I also give him omega oil, curcuma capsules, probiotic and multivitamin. His doctor prescribed corticosteroid creams and a series of UVB phototheraphy treatments ( more than 20 to be exact) and that helped a lot.
Now we are not sure how to improve condition of his nails. Please share.
Aloe Vera
Eliminate Vitamin D
Prior to that I never took any supplements. I see a logic here.
Seema
Dietary Changes
★★★★★
I have been searching for a cure for oral LP for over a decade, and the only study to show what could be termed a "cure" is this one:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3961895/
Best wishes! Thanks for your post!
Colloidal Silver
★★★★☆
For a number of years I have been free of the ulcers. Recently I had a series of cold sores, and then suddenly lichen planus occurred again, so I quickly made a new batch of colloidal silver and healed my mouth. I wondered if the cold sores somehow were connected with causing the lichen planus to revive in my system. Another small cold sore occurred on my lip while using the CS. After a week I stopped using the silver but the mouth ulcer started up again, more persistent and painful than before, so I went back onto CS again and am still using it with my ulcer not quite healed after a week of CS use. I am concerned that irregular use of the colloidal silver has given the lichen planus some resistance to the CS.
Despite regular use of colloidal silver in the past, I have not turned blue. My CS machine provider (at an Adelaide South Australian business) told me that turning blue is impossible. There is some controversy about this and heated debate about colloidal silver in general.
I have at times also used eucalyptus oil and aloe vera gel from pieces of fresh leaves that I grow, but I have not been systematic with these things. Perhaps a number of different remedies will be necessary to keep lichen planus away.I like using aloe vera because it is fresh and very easy to grow.
I also rub aloe vera leaf on a red cancer sore on my nose and other rough sun damaged areas on my face and hands. My raw nose area heals quickly, but regularly returns after being in the sun again. I slice a bit of leaf open and scrape some of the inner gel off with my teeth, holding the pulp in my mouth then swallowing it. Then I rub more inside leaf gel on my face and hands etc. I believe that this gel also helps to get rid of plaque from my teeth. My dentist told me that my teeth were free of plaque and that my brushing technique must have improved. So regular aloe vera gel use, 2 or 3 times a week makes teeth smooth and clean. While aloe vera pulp tastes bitter, I know that it is very alcaline and healing and have accepted the bitter taste as a good thing.
Borax
Sorry to read that you are suffering from LP for pretty long time. Aloe vera is good, you can continue taking it internally and application. Borax is very effective on LP which also should be used internally and for application. For internal use you can mix 1/8th tea spoon of Borax in one litter of filtered water and drink this water whole day, only precaution you have to take is that don't drink this immediately before and after the meal. I prefer that this be stored in a glass bottle.
Also you have to change the life style, meaning you have to avoid stress/strain situations, include some exercise ( you must sweat ) in your daily schedule and most important your diet. Your diet has to be more on the alkaline side, I will even suggest taking enema to clean the colon.
Good Luck
Baldev
Borax
Tumeric has been found to be effective in healing oral Lichen Planus. Not sure what kind you have, but since turmeric is widely available, maybe give it a try, both orally and topically. Best wishes.
Borax
I sugest not go for steroidal treatment for LP event hough it is mostly recommended by dermatologists, as it only relieves it for few months. When you stop your steroidal treatment (especially oral medication) it reverts and the lesions become more aggresive. I am dealing it with for past 7-8 years and this was my observation. Try to go for more natural remedies, such as use applying aloe vera gel and consumption of the juice.
Also, let me know if you have found some home remedy to treat.
Regards,
Siddeswari
Borax
I am suffering from skin LP from past 7-8 years with no luck with steriodal and cartisone creams. On stopping the steriodal medication(oral), I have been hit by LP more badly, so now I am trying out on the natural remedies like aloe vera. Can you please suggest any other home remedies? if you are aware other than the Borax application to the lesion.
TIA
Siddeswari
Baking Soda and Borax
Baking Soda and Borax
Aloe Vera
Aloe Vera
Aloe Vera
Eliminate Vitamin D
Aloe Vera
Aloe Vera
Aloe Vera
Aloe Vera
★★★★★
Sincerely, Claudine G.
Borax
Salt Water Baths
★☆☆☆☆
Borax
Multiple Remedies
★★★★☆
I have had lichen planus for over 14 years now. The dermatologists say I have the worst case they have ever seen. One even wanted a picture for his medical journal! I have lost all 20 nails, have hair loss, and my esophagus and vagina have constricted and I have to do monthly dilations. I have many other conditions so will list them with the solutions that I have found.
First of all, over the years I have found that any treatment given for herpes works for my lichen flare ups. (Yes, I have been tested for herpes and it is negative). My obgyn had stopped my period to avoid eroding of the membranes, baths with lavender and lemon balm help. I have even applied lemon balm directly to the area when not raw. For severe flare ups, she prescribes me herpes medicine (valtrex).
For brushing teeth, I use Tom's natural toothpaste with propolis and myrrh, and a natural mouthwash. Gums never hurt and blisters have gone away. Dentist can't even tell that I have it in my mouth. I drink whole leaf aloe juice everyday, 4 oz. in with my green tea 2x a day. I watch my argenine to l lysine intake. A diet high in l lysine and low in argenine has worked wonders. A list can be found online. I take omega 369. I take isotonix brand vitamins and the ingredients in the opc 3 help the most.
Hope this helps someone with relief thru my years of finding alternatives to taking steroids. This week, I am going to start researching the immune boosting benefits that mushrooms have, thanks to the advice of the local health food stores. Best wishes on your path to healing.
Probiotics
★★★★★
Eliminate Vitamin D
★★★★★
Tanning
★★★★★
I starting going into tanning beds or red light therapy (which is safe by the way) when I was 18 or 19 and just very little in the Spring and I stopped going when I was 31. I never had a single problem with my skin during this time. Before I went tanning ever, in high school I remember a period of time where I had this rash on my face, but then it went away after a few months and trying not wear makeup.
But, now at 34, I have this all over my body... nothing seems to hold it back. So, I decided to go tanning... for small amounts of time 5 to 8 minutes and for a month or two. Also, for only a few times a week. I've gotten through the first week and I have to say I haven't felt itchy even once! I've only gone three times and my sores are healing. All my bumps and new ones trying to form are gone! My skin is smooth. My scars are still there, but they even look better.
I know tanning beds aren't any good for you, but I look at it this way. Small amounts shouldn't hurt me and I'm wearing SPF 50 during the day. Just so I don't get additional exposure from the sun. I feel so much better.
FYI: My dermatologist was absolutely against it! She was not open to hearing this idea of tanning that could help me. My Dr wouldn't hear of it. I'm going to continue to treat my self a few times a week for two months. That should nip it in the bud, at least for the rest of the year. I hope this could be helpful to those out there suffering from this. I know how you feel.
Essential Oils
Baking Soda and Borax
Salt Water Baths
Epsom salt would be the easiest thing to start with. You can buy Dead Sea salt on line. Look for a brand with good reviews.
Salt Water Baths
Essential Oils
★★★★★
Borax
Multiple Remedies
Salt Water Baths
★★★★★
Since my last outbreak on my thigh, I have another outbreak all over. This time around I wasn't able to get to the ocean :( but I have tried several other things. as of late I have been using frankincense and lavender essential oils mixed into a fragrant free all natural lotion. This has helped with the itching dramatically. Also I have incorporated turmeric pills. There was a study done that showed 9/10 people were cured from trumeric. As you all must know turmeric has known to help with inflammatory conditions and also helps with diseases in your digestive tract. As long as your gut is clean the rash will stay away. Try it out!
Multiple Remedies
Borax
It is not that easy to treat this condition by just taking the steroids, but unfortunately that is the line of action in the western medicine.
You will have to follow three prong strategy, control of stress, diet and external application. You have asked about the use of Borax, make a concentrated solution of Borax with water and apply it two to three times a day on the affected area, keep it for an hour or so and then can wash it. Also try to alkalize the body with sodium bi carbonate, apple cider vinegar etc. You will get good results. Good luck
Baldev(09322887066)
Borax
Citronella Oil
★★★★☆
Salt Water Baths
Thanks again, Gale
L-Lysine, B-6
★☆☆☆☆
Haven't seen a bump in 3 years and have used the ointment twice in those 3 years. Only diet I live by is eat whatever you want so don't let people tell you to stop eating and drinking all your favorite stuff. I know I wish someone had said this to me when I was dealing with it. Just go to your Dr and ask for kenalog shot and clobetasol ointment. Done!
Coconut Oil
★★★★☆
I also read about using lavender oil. Has anyone tried this?
Vitamin K, Vitamin D, Baking Soda and Borax
Multiple Remedies
Baking Soda and Borax
Baking Soda and Borax
I know your post is from 2011 but I was wondering if you could update us on the latest status for your son and if you are still following the diet?
I was diagnosed with LP and LPP 9 months back and am struggling with it. I am on cellcept and also following a strict vegetarian diet for the last few weeks. My LPP seems to be better - the patches are lighter pink and I dont see any new patches. MY LP also seems better though I do see very very small bumps or just some rough skin in places and do think it is a very mild form of LP.
If you saw such wonderful results I would seriously consider following the McDougall diet.
Thanks and hoping you will reply.
Alka from Coppell, TX
Sulphur
★★★★☆
Sulphur
Borax
★★★★★
Sulphur
Monolaurin
Thank you for your post. Can you tell us how many mg. per pill you took, and the brand? Did you have LP only on your skin, or did it also occur internally, like your mouth?
Thanks!
