CoQ10
★★★★★
Here is the new study just in January 2024/ CoQ10
Hi janjamz,
They made the CoQ10 mucoadhesive tablets specifically for this study, so they are not available for purchase from suppliers. Too bad, because the results were similar to the topical steroid, which to me is very impressive. Here is a relevant quote from the study:
CoQ10 mucoadhesive tablet preparation
' The tablets were prepared using 120 mg coQ10 powder (in reduced form which is the antioxidant form) [41], mixed with mucoadhesive polymer 120 mg carbapol [42], and 60 mg anhydrous lactose [21], using a bench scale powder mixer continuously for 10 min. The components of each tablet were fed manually into a 13 mm die and compressed using a constant compression force to produce tablets (40% coQ10 concentration) with a 13 mm surface area and hardness of 10 kgf (Fig. 2).
Art
Dietary Changes
★★★★★
(England)
12/01/2018
(Dublin)
12/27/2022
★★★★★
I gave up milk too. I got it very badly after Dental work and know it is an allergy to the metal put in to my mouth that I can't take out.
I am wondering did you give up dairy products like yoghurt as I eat a yoghurt each day. I have completely given up sugar and trying to give up Gluten in Breads and Grains. I find it very hard to give up bread but have 2 slices a day. Well done on helping your illness. All illness of course is from inflammation in the body and cheese is a big one here, also sugar and junk food. wishing you the best
Rosemarie
(England)
12/27/2022
Try making spelt bread rather than wheat, much better for you.
Dietary Changes
★★★★☆
However I have been dealing with a naturopath in Qld, Mermaid beach, this wonderful lady does hair analysis, and has helped me enormously, she found I had a multitude of problems that stressed the immune system.
But Lichan Planus lives off sugars and yeast, so the first thing is to give up both these things in the diet, and I did if for nearly a year, I make my own sourdough, that was easy. What was really hard was sugar, the sugar in tea and coffee was a breeze, but the alcohol was not, not that I am a drinker but I do enjoy an occassional beer or wine or whisky, they were to me like treats, not daily and never a hangover even but just something nice at the end of the week.
And no chocolate, or desserts, no vegemite etc
But the Lichan Planus was gone for some months, but sneaking a bit of sweet stuff from time to time, and now stressful times with business being busy and Christmas coming I have tender gums again, so back to hard core diet, it's shit full, but if anyone out there has any better input that would be helpful, that would good great.
regards, JennyKK
(Mansfield. Vic. Australia)
10/31/2013
Report of my progress with Lichan Planus:- 2 years ago I had blistering and sore red gums, yes Lichan planus is nasty.
I was working with a naturopath, western medicine to me is sometimes toxic, my body is drug sensitive. I couldnt tolerate the treatment of rinsing out the mouth with predisonole 4 times a day.
In the recent dental journal in Australia, Lichan planus has been linked to amalgums, so I had all 13 fillings removed, and feel so much better for it, my immune system was struggling.
Some medical professionals say these fillings don't do anything, but if you grind your teeth at night, then yes they do cause problems.
The problem does not have a permanant cure, so keep off yeasts in all forms, especially beer, and sugars, and you will feel healthier, and the soreness of your gums will improve, and only use a herbal toothpaste, as a lot of toothpastes agravate the problem. good luck, Jennykk
Dietary Changes
★★★★★
I'd love to know if others experience same. I hope this helps some others. I will try to stick to better diet. It's tough though. To remove my lichen planus completely I have to drastically reduce carbs, then I can have sugary desserts, pasta, etc. 2-3 times a week without recurrence of lichen planus. What's tough for me is falling off wagon and getting into bad cycle of too much sugar too often - if I don't break pattern my lichen planus remains and can worsen. But the good news for all is it CAN be done. I recall many times where I broken pattern, fixed my lichen planus, and ate well for MONTHS at a time without issue. The real trick is this: when you see even the smallest hint of lichen planus returning, you've been eating too many carbs and need to ease off.
(Danforth, Maine)
01/23/2010
★★★★☆
I've had oral Lichen Planus for years now, some days are better than others.. I have notice that the summers are better and I agree with the Low carb diet. My exercising and eat are so much better in the summer than the winter. I also take B-complex which helps but doesn't clear it altogether. I do use a prescription mouthwash in the winter time that I get from my doctor. I am not sure of the ingredients. I am looking foreward to seeing some of the other peoples exact amounts of ingredients that they are using, like the vitamin k, vitamin d, borax, baking soda, salt solution, iodine ,Peroxide, grapfruit seed axtract. the numbers will really help. I also notice people with Lichen Planus also have other systoms of another type of fungus like nail fungus, ringworm, Maybe there is a simularity . Does anyone know what there blood type is? Mine is A positive. Very interesting study.
(Mo)
09/30/2020
I am A+ as well. It IS interesting-the blood type Theory. I get tick bites very easily and my husband gets none. We live in the woods. My sister told me of a study that states the ticks prefer A+ blood. It's a mystery at this point. Thanks for the info.
(South Dakota)
01/04/2014
It is the end of the holiday season, and lichen planus has broken out on my trunk. I hadn't been bothered with it lately anywhere except my gums... Until eating extra carbs throughout the holidays. I didn't think about the connection until reading these posts. I am so glad that I found EarthClinic!
(Az)
04/16/2015
Thank you, Julie! This is the information for which I have been looking! You have given me hope! Blessings!!! :-)
(India)
05/05/2015
Can u plz send me the diet chart for oral lichen planus..my mother is suffering from this disease for last 5 year
(india, bhubaneswar)
08/12/2022
Dietary Changes, Sage, Aloe
Banish all sugar and yeast and living as close to nature as possible worked a miracle! Zero confidence left in the medical profession and pharmaceutical remedies. My best friend now suffers with lichen planus and has been prescribed all kinds of steroids and ointments that don't work and are too painful to apply anyway. So she turned to me, her 'witch doctor' friend and is now on the mend.
The immediate remedy for lichen planus in the mouth is sage, either chewing the fresh leaves or if this is too painful, brewing tea from it. (Fresh) Bayleaf may be added to soothe the throat. Rosemary is less potent than sage but also works and has the added advantage of being a breath freshener. Lichen planus on the skin is best treated, depending on the severity of the skin lesions, with 99% aloe vera gel (skin mildly afflicted) or honey poultices (put cold-pressed organic honey on a gauze and attach to the skin with hypo-allergenic plaster). Honey naturally is antifungal and antibacterial. These are symptomatic treatments, however.
Systemic treatment means banning all fungi (mushrooms, cheese, beer and wine - good quality brandy will be 'manageable' - bread, peanuts, unwashed vegetables etc. ) as well as processed sugar (i. e. Refined, including all sugar derivatives) though honey and fructose may be tolerated. Plus complementing one's diet with beneficial bacteria to restore balance to the gut flora, e.g. Acidophilus (present in bio yoghurt) and bifidus. Once the immune system is functioning adequately again, foodstuffs such as bread may slowly be added to the diet again so that the body's response may be monitored.
Please someone try this and let me know whether this is beneficial to you, too?
(Kuala Lumpur, Malaysia)
10/10/2012
Dietary Changes, UV Light Therapy
★★★★★
He is almost cured after 4 months and his condition was bad. He had many skin bumps, nail and oral form. He does not drink cow milk, only goat milk and joghurt, he is wheat free. I also give him omega oil, curcuma capsules, probiotic and multivitamin. His doctor prescribed corticosteroid creams and a series of UVB phototheraphy treatments ( more than 20 to be exact) and that helped a lot.
Now we are not sure how to improve condition of his nails. Please share.
Eliminate Vitamin D
★★★★★
(Ontario, Canada)
06/15/2009
Is it possible the problem may not be just Vitamin D, but the inability of the liver/ kidney to metabolise the pro-vitamin (as ingested) into vitamin D2 and D that gets released into the blood stream? Have you tried taking liver supplements (such as Milk Thistle) that will promote detox and better liver enzyme function?
(Los Angeles, Ca)
03/11/2010
This is the strangest logic I've heard yet... You have no idea what is causing your malady, why would you toy with your calcium homeostasis? Has it occured to you that the waxing and waning of your disease is just that... Part of the natural course of your disease?
Just because prednisone can alter your level of vitamin D doesn't mean it did in your case and it certainly doesn't mean that the prednisone had no effect on your disease. In fact, Vitamin D is a critical component in dampening the immune response to your mucocutaneous lesions(lichen planus).
Stick with your doc, he knows best.
(Las Vegas, Nv)
03/28/2012
The one thing I've learned through my 50 plus years is never trust your doctor. Ask all the questions you can and get as many different opinions as you need! No two people react to the same remedies in the same way, so find out what works for you and stick with it! How many times have you been to the Doctor and he has said, try this and if it doesn't work come back and see me. It's your body and money, spend both of them wisely, you only get 1!
(Emmaus Pa)
08/10/2016
★★★★★
I agree with her 100% My daughter has had LS from the age of 2. We did everything her Dr. said nothing worked for years. Her LS had gotten so bad I had to take her out of school and started homeschooling. I would be up day and night reading on LS looking for anything to help her out calling LS Doctors sending out emails. One day I he had received a phone call from a Dr. in L.A. He had just finished reading my email. He told me change her diet cut out milk he said to try coconut, almond milk not milk from a cow or any animal. More white meat less red meat lots of green veggies. To buy gluten free foods. My daughter has had no LS problems for 5 years now. But this summer she was at her grandparents house. She came home in pain crying that she had burning again I took a look and her skin was right back. The only thing different my parent did was the milk they drink regular milk. My daughter loves regular milk but I never buy it, so when she was at my mom's she went overboard my mom said she had to buy milk everyday. Now that she is home her pain is less and less I too believe the milk has a lot to do with. Everyone is different but I believe changing her diet and giving her coconut milk or almond milk has helped her alot.
(Vic)
05/24/2017
(Va)
10/02/2017
Very interesting. A year back I was diagnosed with low vitamin d and I added vitamin d supplements to my diet. A year later, I have oral lichen Planus.
Prior to that I never took any supplements. I see a logic here.
Seema
(Chester, Sc)
07/03/2020
I have 4 children and with each pregnancy, I took prenatal vitamins and my LP would go completely away. At my house, we drink a lot of milk and eat a lot of cereal and it does not cause me to break out. I think it is individual to each person.
I am very low on Vitamin D and take pills to bring up my levels but I do not have breakouts. I have been on all the creams and steroids and it did not work. I have been on Plaquenil and all types of antibiotics and they did not work.
Now, I am taking Methotrexate and Folic acid and I am seeing great improvements. Why are people responsive to some treatments and not responsive to others? It is a difficult disease!
Essential Oils
Essential Oils
★★★★★
Hyaluronic Acid
★★★★☆
I tried the 0.2% HA/Orabase mixture on gums and mouth for 16 days. We estimated that for each 30g. tube of Orabase, adding food grade powdered HA that fit on the tip of a dinner knife would be an approximate 0.2% mixture. Each tube lasted about 8 days. It was applied 3 times/day for a minimum of 30 minutes each time to (a few days)used overnight. Because you cannot go out with this mixture on the mouth, I extended the 14 day trial to 16 days to make up for four missed applications.
This definitely stirred things up. The LP began moving to other areas of the mouth, with quite a bit of burning noticed in the AM. I am not sure if this was due to the HA or the Orabase. I had a very small filling on a bottom tooth (it was decades old from a minimally chipped tooth), which came out when this was left on at night. After that, I discontinued using the mixture overnight. I had a small amount of Orabase left over, so I mixed it with alcohol-free liquid tumeric extract and used that for two days. (The liquid mixed with the Orabase makes the Orabase less able to be spread around). No relief. So I chewed some watercress for a few days, then cilantro for a few days, and left it on my gums to chelate whatever was going on.
I went to the health food store to look for dental products and ran into a woman who had major infected gum problems, and she told me she had read a book that said Goldenseal was needed to cure this. I looked this up when I got home and it seemed to be a good idea for sore gums, and I had liquid, alcohol-free Echinacea/Goldenseal with Burdock Root, Wood Betony and Cayenne Pepper, all recommended (along with Myrr, but I didn't have that). It seemed to help a lot, so I have ordered some more. The Cayenne did not burn, which was surprising.
I am so grateful to have this study posted from Art, because I was about at the end of the line in options. Even though it created some change in the status of the mouth, I think this may be a good thing to alert the body to try and heal itself. It also lead to other options I had not considered. I had a very red mark on my gum for months that is decidedly lessened in color. The results of the NIH study were excellent, so I may have mixed the dosage incorrectly, and I did mix it by hand, so it may not have been totally evenly distributed, although I mixed it for quite a while. I don't want to discourage anyone else from trying this. I have had LP for a long time, and my gums are very sensitive. All in all, I think some progress has been made because my gums looks less inflamed and a more natural color, although some burning remains, especially in the morning. I'm happy! Thank you.
Rsw,
Glad to hear you are getting positive effects using the Hyaluronic Acid topical!
For your 30 gram tube of Orabase, it requires about 60 mg of hyaluronic acid powder to get to .2%, which is hard to measure accurately without a good electronic scale. I just weighed some HA powder and 60 mg is close to 1/16th teaspoon. One problem with hand mixing HA powder is that it is difficult to do and get an even dispersion. Anyone who has tried to mix HA will be aware of that problem. The fact that your red gums are now approaching normal color suggests that you are on the right track! Many topical HA products are set at 1% HA, which would contain about five times more HA than what was used in the study, so that study dose is relatively low and if you do not get it mixed well, it will likely be equivalent to an ever lower dose.
I would be very interested in knowing what consistency the Orabase product is? Can you think of a common product that would have a similar consistency? Is it sticky? Does the consistency change much once the HA is fully mixed in. Does the Orabase dry fast? Once you apply it inside your mouth, does it dry in place or does it stay wet?
Art
(Oh)
03/03/2018
Hi Art,
I would say the Orabase is the consistency of something between regular toothpaste, vasoline and icing right before you ice cookies or cake. It is very smooth and soft. After I mixed the powdered HA with the Orabase, it remained soft and spreadable, and I was able to store it in a glass bowl with a lid. It almost immediately dries upon contact with the mouth, and is not easily moved around. However, after being in the mouth saliva for a while, it softens up and starts to slide down onto teeth from the gums, (some sticks on the gums, too) which is why you need to stay inside. You have to use your finger to get it off, or a q-tip, and also brush your teeth. However, the second I added the liquid tumeric extract to the Orabase, it solidified somewhat, was spongy, and was much less spreadable and much harder to put on the gums. It must react with wetness, and changes from soft and speadable to much drier, and this reaction is almost immediate. Very interesting stuff! Hope this is understandable. After the small filling came out, I did have some concern about the effect the HA might be having on the tooth enamel, but my teeth seem fine now with no increased sensitivity. Thanks for posting the study, Art! I will be interested to see if my dentist thinks there is improvement in May. I am going to add myrrh and goldenseal in distilled water with celtic salt as a mouthwash and see how that goes, too. Will post if anything changes. Hope your psorisis is still gone and you continue to feel well. Thanks for all you do to help people find remedies that would otherwise not be apparent to most of us. Your research skills are top notch, and you are very generous with your time.
Hi RSW,
Just wondering how your hyaluronic acid experiment turned out regarding OLP? It's been about another two months, so I thought you would have a better idea now if the HA is helpful for you or not?
Art
(Oh)
05/09/2018
Hi Art,
It's difficult for me to say, because I have trouble only doing one thing at a time, which I realize may distort the results. I had tried to take a break from LDN because a researcher I trust had suggested she had done this. This is the second year I have tried this, and both years, after being off the LDN for a month or more (I was shooting for six months), I picked up a nasty virus that lasted weeks and weeks, after never being ill at all in all the years I have taken it. So that has to be factored in. The HA study said to keep it on at least for half an hour which I may have interpreted incorrectly as more is better, even keeping it on overnight a day or two. My teeth seemed to be more sensitive and hopefully I didn't lose any enamel. I'm also not sure if I was able to thoroughly mix and distribute the HA in the Orabase by hand. I went into a LP flare from all this. I was able to reverse it after using a echinacea/goldenseal liquid swished in mouth and swallowed, and surprisingly, a toothpaste with Myrrh extract, Clove oil, folic acid, grapefruit extract, zinc and CoQ10. I thought the clove would be an immediate No-Go, but it worked surprisingly well. I think the zinc may have been the main help. Not totally, and I have had to back off to a lower usage, but enough to become tolerable again. My dentist felt that I had some improvement but still had inflammation in my front gums, which is interesting because the inflammation used to be all in the back gums and seems to have reversed position. It still is improved and my gums are not receeding as much. My most reliable indication of the status of the LP is that when I first wake up in the morning, the first thing I am aware of is my gums are burning, and this has definitely improved.
I am very grateful to you for showing me studies that I wasn't able to find myself, and showing me different possible remedies that may lead to a cure. This is a creepy, awful little autoimmune, like most are, and I continue to hope to find a complete cure one of these days. I don't think I will try a long term break from the LDN again, but take it less often and at a lower dose, which is sometimes advised. I sometimes think it's not doing much until I take a break! It is subtle, like borax. (It's NOT subtle for people with MS, Crohn's and many other diseases which it helps return the user to a normal life if taken regularly). Thank you, Art, for helping so many of us and always thinking outside the box, which is probably how we will discover a cure or complete remission. I keep returning to that list of LP, psoriasis, Sgogren's, etc into a group and how your supplements were listed for these autoimmunes. What is the link?
Rsw,
Okay, that sounds like it helps noticeably, but is not completely clearing you up from the OLP. Really difficult to be sure with what you have going on and the break from LDN which could potentially exacerbate a health condition.
I was looking at some other studies, which if you have not seen them yet may be worth going over.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5662509/
https://www.ncbi.nlm.nih.gov/pubmed/28029732
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5028429/
https://www.ncbi.nlm.nih.gov/pubmed/24245466
http://www.advances.umed.wroc.pl/pdf/2013/22/6/893.pdf
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4439686/
Judging from those studies, aloe vera appears to be worth consideration and possibly something that can be used in combination with something else.
In answer to your question, the link that I see in those diseases is excess inflammation and oxidative stress, so things you do to reduce those should be helpful to varying degrees depending on how much and how often you take it.
Good luck and keep us posted on your progress!
Art
(Oh)
05/13/2018
Hi Art,
Thank you for the links. I have purchased three 32 oz. bottles of preservative free aloe vera juice (did not but the gel because of the carrageen, but it may adhere better) and will also take the pine bark capsules. Will keep you informed of any progress! Very grateful for your suggestions.
Hyaluronic Acid
★★★★★
Not that I have tried this for OLP, but I have tried it for something else and found it quite effective for the purpose I used it for in a relatively short period of time. The study suggests that it is helpful for people living with OLP and is non invasive. In any case it seems worth considering and there is the potential to realize other health benefits from HA. Another advantage of HA over something like curcumin is that HA mixed as a gel is clear and colorless which means no yellow teeth or extra teeth scrubbing and that seems like a big plus to me!
Here is a link to the full study that used a relatively low concentration (0.2%) HA topical with impressive results:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4740703/
This seems like a really easy to use remedy for OLP!
I think it would be really interesting to see a study that combined HA with Colloidal silver for OLP. That seems like it would be a fairly easy combo to make!
Art
(Ohp)
01/18/2018
Art,
I can't thank you enough for posting this study. The amazing thing about the HA is that the LP does not come BACK! Thank you, thank you! This may be it! And I can always add the CS, if necessary. I haven't been this hopeful in a long time. All the research I have looked at, and I never came across that study. Thank you so much. I'll keep you posted on any results!
Rsw,
You are very welcome!
Another major point about that study is that they only used the active treatment for 2 weeks......yes, just two weeks and then they stopped treatment and only observed for the last two weeks. In the last two weeks, the treatment group continued to improve! If this were a drug that they used for the study, it would be one big money maker for the drug company considering the results they got! As it is, very few people are even aware of this potentially great treatment for OLP!
Another major point in this study is that they used such a mild dose at just 0.2% HA! Just imagine what the results might have been if they had used a stronger dose, a more frequent dose or had continued the dose beyond two weeks?!?!
Keep us posted on how you do with it, Rsw!
Art
(Oh)
01/21/2018
Hi Art,
Ordered the food grade HA in the form of Sodium Hyluronate and was able to get the Orabase from Ireland, although I think they must have distribution centers in the US. I tried to get Pharmaceutical grade HA from a local compounding pharm, but I had to leave a message and they didn't get back to me all day, so I tried my regular pharm and they said they couldn't do compounding (two ingredients! ), so I decided to make my own from Ted's suggestion of Bulk Supplements. I hope that will be OK. If not, I will figure out a way to get the Pharmeceutical grade, although when I looked on of the sites for this, they also supplied Sodium Hyluronate, so maybe OK.
Will definitely keep everyone informed! Can't wait to receive the supplies. Total investment of about $30!
Hydrogen Peroxide
I have Lichen Planus both in my mouth and on my skin and am using a dexamethason solution which I rinse my mouth with twice a day for the oral Lichen Planus. This seems to help the condition, but if I quit using the solution, it comes back with a vengeance. The doctor wants to put me on some sort of steroid treatment for the skin LP but I am very leery of this because of the possible side effects, which include weight gain and osteoporosis.
A friend sent me an email which talked about the benefits of using a 35% food grade peroxide for Lupis, which is also an autoimmune condition, so I am thinking of trying that. It is inexpensive and looks to be a beneficial way to treat Lichen Planus as well as other conditions. We have our own well water and my husband raised the question of whether or not there may be bacteria in our water that could be either causing or worsening my Lichen Planus. So I am now drinking only bottled water, which to my concern, I am reading now on the internet, may be too acidic for me. Woe is me! Maybe I am reading too much on the internet! Any feedback would be appreciated. Thanks, Marilyn
(Nobleton, Florida)
04/18/2012
I have been fighting sores mostly on my arms for 3 months now. The inside of my mouth and tongue are very sensitive. After this long, I decided to research the condition because it just wasn't going away. I finally come to the conclusion that it has to be lichen platus. I remembered when I was a child, doctors used to recommend sulpher tablets for various issues affecting the skin, such as impitigo. I just went on the net and ordered some. I will let you guys know how it works. I have confidence.
Iodine
★★★★☆
The FDA approved perscription drug for Gum disease is Chlorhexadine, which as I said, kills ringworm as well, and is antifungal. If this iodine solution doesn't work perhaps I'll try that, but I have good preliminary indications that this will work.
(Arnhem, The Netherlands)
08/05/2012
The post is so old, but I wondered what the result was of iodine mouthwash for Lichen Planus?
Kefir
★★★★★
Hi, I am suffering from LP. It's all over my body, scalp and now oral, can u please suggest me how to use sulphur for oral lichen planus? I am so desperate by this LP. Please do inform me if there is any other remedy available easily in village side
I have Lichen Planus but not severe, I have an LP sore on my leg which has been there for about 5 years.
I have just started 1 week ago drinking Kefir made with cow's milk and also I have been rubbing a small amount into the sore. The change in a week is amazing. The underlying bumps have gone down and the redness is getting less. I am hoping this is a good cure. I have heard that kefir has cured eczema and crohn's disease, that is what gave me the idea to try kefir. Give it a go.
Best wishes, Neil
L-Lysine, B-6
★★★★★
(Illinois)
12/07/2015
★☆☆☆☆
Yikes because the Dr. as well as me and my wife have narrowed it down to the lichen planus being caused by a high lysine dose...especially after you stop taking them...mine was 6 months after I stopped the lysine and my LP lasted close to a year after. Get .05% clobetasol ointment for the skin and a kenalog shot for the instant relief.
Haven't seen a bump in 3 years and have used the ointment twice in those 3 years. Only diet I live by is eat whatever you want so don't let people tell you to stop eating and drinking all your favorite stuff. I know I wish someone had said this to me when I was dealing with it. Just go to your Dr and ask for kenalog shot and clobetasol ointment. Done!
