Posted by Susan (Tacoma, wa) on 08/08/2024
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Lichen Sclerosis
Hi there! I had a very severe case. Unfortunately, doctors are not helpful by not informing us that changing our diet is extremely effective. What we have to avoid are foods that have a medium to high content of oxalate. Unfortunately, I didn't know, and I was having spinach and soy milk often. After changing my diet, I rarely have itching.
Posted by Pyper (FL) on 04/01/2023
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Robin, I've also been eating Carnivore and I can attest 100% that it does work. IF I go off though (like I did 3 days ago and had 2 glasses of dry red wine - I had an almost immediate terrible reaction, and became inflamed, in pain, and horrible itching. Many people with various autoimmune problems have tried Carnivore and had a lot of success. Basically, you are eating whole, one ingredient foods with none of the garbage that is put into processed foods. There are lots of support/community groups for those who wish to eat Carnivore - there are also three main types of Carnivore. 1) Carnivore where people try to eat as close to zero total carbs per day. 2) Ketovore - this is kind of a combination of the ketogenic diet with Carnivore (keeping carbs under 10 total carbs per day and eating whole foods) - it's more lenient than Carnivore. 3) The Lion Diet (also zero carb) but more strict. Lion Diet is nothing but water, and ruminant meats such as Beef, Bison, Lamb, Goat. I follow Carnivore. I DO allow spices (unless they have sugar/gluton/corn/rice in them) I make my own spice mixes whenever I can if I can't find what I want pre-made. I also discovered from my last flare up - I can NEVER have wine, peanut butter (even sugar-free organic) - and whey protein powder is still in question. Also, after my last flare up- in an effort to quickly calm things down, I fasted for 24 hrs (water only) I would like to incorporate longer fasts into this way of eating too - as occasional fasting can bring a lot of healing according to the research I've done. If anyone wants to try this food protocol - I would suggest using a food diary so that you can list any reactions if you have them.
Posted by Susie (Mi) on 12/24/2022
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I have suffered from LS for many many years and like all of you tried so many different things somehow, some didn't but what I have found is a definitely boils down to diet when I went to my doctor she said my oxalates were high and she wondered why so she tested my candida it was high and high candida will make high oxalates so needless to say I do a low candida low oxalate diet and I do biocidin!
Within 4 weeks my LS had cleared up by 95%! I was ecstatic it definitely has to do with diet because I know as I fall off my diet and eat the wrong things again that are high and yeast and high in oxalates it comes right back my doctor said I should do it for about 6 months the protocol and I possibly could get rid of it completely for good. Hope this helps you.
Posted by Robin (United States) on 05/05/2020
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Hi All, want to share my story so others may benefit from my struggles.
I had LS for more than 10 maybe 15 years. Saw my gynecologist (no idea of what it was); saw my skin doctor who did help and I can't remember what the ointment was but could only use it for a short amount of time, 2-3 times per week for a limited amount of time. This did take the itching away but the ointment was not healthy to take every. single. day. Which is what I needed to eliminate the itching.
Sooooo, I quit using it and suffered, for years. I tried all the diets, no sugar for more than 5 years, no gluten which I'm still off both these. Sometimes, no sugar/gluten would help but then it would flare up and no help again. I had the paper slits on both sides of my labia, one side was always worse than the other. The itching was INTENSE! Then the pain from the slits or the itching too much would be intense...AARGH.
Ok, so fast forward to today, errr well, 2 months ago. I read about the carnivore diet many years ago and this was one I had never tried. 2 months ago, I tried it...100%. Amazed me. 3 days after starting the carnivore diet, 100%, the itching stopped and has never returned. I still have the paper slits scars but there is no, opps repeat here, NO itching! None, zero, ziltch! And, it's been over 2 months with me being on the carnivore diet with only one minor cheat (hot herbal tea, 2 cups, with 2 hours inbetween) terrible reaction but still...NO itching. The diet is easy but greasy. No food craving...none.
The itching has never returned. My eczema rashes are nearly gone, just discolored skin. They have flared up during this 2 months but I associate that with loss of fat. I've lost 22 #'s and feel great. NO ITCHING! Heaven. I truly hope this helps someone.
Posted by Carol (Canada) on 02/06/2020
★★★★★
I have found diet extremely important for lichens healing. I eat a vegan diet with salmon, no sugar, alcohol or night shade vegetables, I also use apple cider vinegar and water sprayed on after urinating. I bath in baking soda every second night and I use only natural products for cleaning. Don't scratch. I am healing more everyday and have no itch.
Posted by Theresa (Kentucky) on 06/21/2018
★★★★★
Lichen Sclerosus is a terrible disease but it is manageable. I have zero pain or itching anymore. I would get rid of all processed foods and soft drinks. Take probiotics and drink kombucha tea. I have learned in my case that nightshade vegetables set me on fire. Take a natural hormone. Another thing get some DR Bonners organic peppermint soap. Only use that. I use the liquid. Also dr Bonners peppermint lotion is the biggest relief ever during an eruption. Take colloidal silver too.
Posted by Emily (Los Angeles, Ca) on 10/08/2014
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All of my Lichen Sclerosus symptoms disappeared within about a week of starting the raw food diet + supplement. I had horrible LS symptoms for 2.5 years and was 12 doctors before being diagnosed. I also have contact dermatitis (skin allergies) and was prone to yeast infections, both of which made it even more inflamed. Anyway, after trying tons of home remedies and not wanting to be on steroids long term I decided to focus on my immune system.
So, I started taking Culturelle and eating a 90% raw food diet (MOSTLY vegetables and SOME fruits). I like to blend them up so the sweetness of the fruit makes it more enjoyable to eat a lot of greens. I recommend watching documentaries like "Fat, Sick & Nearly Dead" and "Food Matters" to kick start your new diet. Supplements I take are liquid B Complex, Zinc, Fish Oil, and a did a 2 week Essiac tonic detox which is easy and inexpensive. YOUR BODY IS ABLE TO CURE ANY DISEASE OR ILLNESS IF YOU PROVIDE IT WITH THE RIGHT FOODS. You should avoid sugar and minimize animal products (milk, eggs, meat). Less than 6% of Doctors get any nutritional education in school so don't listen to them if they tell you you don't need to make dietary changes like they told me.
