★★★★★
The problem with all of these therapies is that Lupus, all by itself, can go into remission. In fact it almost always has dormancy phases. How do we know in our hearts that our alternative regime is why "our Lupus got better." Time, in this instance, will be our friend. Over time we will see for sure if our alternative protocols are effectively battling this bizarre disease.
One thing that is for certain. Lupus is not a case of our bodies attacking ourselves and then suddenly stopping. Besides being inconsistent with all laws of biology, independant laboratory studies have confirmed that in more than one autoimmune disease, the immune markers and antibodies that are over produced are exactly identicle to those found in severe viral infection. Beta Interferon, antibody proteins, other cytokines are no different in severe viral infections as autoimmune. Ok! Why? Why should we overlook the obvious link here?
Then, when seeing that Tulane has in fact isolated a Type A retrovirus in several autoimmune diseases we should should really move past this now outdated notion that our bodies are committing suicide. This leads us back to the anaerobic disease model. Viruses hate oxygen! Almost every alternative protocol in this forum actually boosts the immune system and exploits the respiratory mechanism of anaerbic organisms.
Sarcoidosis, is not a virus, was/is called autoimmune and has been proven to be cause by a rare bacterium. (Anaerobic). Ask yourself why an infection can be mistaken for an autoimmune? Answer,...Autoimmunes are infections.
Black strap molasses is very high in potassium. Potassium readily will enter cells and alter the Ph. Higher ph is in fact anti viral. Black strap Molasses also contains iron, improving our hemoglobin production, increasing oxygen delivery. Apple cider vinegar contains very concentrated and potent polyphenols. Apple skin extract itself is high in these compounds but the fermentation process actually produces even more of these molecules. These complex molecules have many oxygen donor sites. I have made these chemical structures available to the public on a research website.
Gluten is poorly digested by many of us. Most people with autoimmune disease and cancer have higher levels of anti-gluten antibodies, meaning they are allergic to gluten. Chronic allergic stress has proven to lower immune system, lower oxygen levels in cells, cause general tissue inflamation in the gut, etc. Heck, any viral infection will get worse if the patient undergoes stressors.
Eliminating gluten is a good thing but understanding why is crucial so we can maximize our regimes. Just remember this. Viruses hate oxygen and our immune systems must keep viruses dormant so any protocol that decreases toxicities and increases Oxygen perfusion will theoretically improve symptoms of autoimmune disease.
Finally, Coq10 is molecule that grabs oxygen from cell cytoplams and pulls it into the mitochondria to make ATP. Burning glucose with oxygen is so important in this regard as anaerobic respiration produces acid and lowers Oxygen levels. Any oxygen therapy can be enhanced by taking this enzyme. After all, what good is high O2 fuel if there is no fuel pump to utilize the fuel?
Always take Coq10 with any alternative protocol.
★★★★★
Biochemic Tissue Salts, Sea Salt, Epsom Salt, Clay
★★★★★
She was to take one drop per 8 or 10 oz. glass of water or of any watery solution, such as tea or juice. Within an hour of taking two drops in a bottle of spring water the swelling and soreness in her wrist was healed and the soreness in her shoulder was also healed. As the pain and discomfort would apparently come back to her in about 24 hours or more and sometimes in different areas of her body, she therefore went to see a doctor earlier today. I first searched some of my books and the best answer seemed to be in Dr. H. R. Clark's "Cure for All Diseases" She found that Lupus is apparently a Fluke or Flatworm disease that can be cured with a parasite and liver cleansing formulas plus with her electronic zapping machines which shake the Fluke worms or their eggs to death.
Margaret's Lupus Remedies
★★★★★
Lupus Theories
★★★★★
Artemisinin
★★★★★
The following study suggests that melatonin and vitamin D may be helpful for SLE:
Here is a relevant quote :
' Low levels of melatonin and 25-hydroxyvitamin D3 may be a factor in the unbalanced immune system of SLE. • Supplementation of melatonin and 25-hydroxyvitamin D3 may be recommended for women patients with SLE.'
The following study goes a step further in showing that the vitamin D receptor is down regulated in SLE :
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9894746/
A basic way to increase vitamin D receptor is to take vitamin D as discussed here:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4008591/
Here is a relevant quote :
' We found that activated CD4+ T cells have the capacity to convert the inactive 25(OH)D3 to the active 1, 25(OH)2D3 that subsequently up-regulates VDR protein expression approximately 2-fold. '
Given this method of action of vitamin D to increase VDR, results will take a while as your vitamin D level increases with supplementation.
The following review suggests that Artemisinin may also be beneficial for SLE :
Here is a relevant quote from the review :
' Both clinical and animal studies suggest that artemisinins have potential beneficial effects for SLE. The beneficial effects associated with artemisinin treatment include improving symptoms, reducing level of antibodies and proteinuria, ameliorating renal damage, and diminishing the dosage of prednisone use. Animal studies suggest that mechanisms of action of artemisinins may include regulating T cell subsets, inhibiting activation of B cells and production of inflammatory cytokines, as well as blocking the NF-κB signal transduction pathway, thus playing a role in anti-inflammation and immunomodulation. '
Art
Probiotics in Fermented Food
★★★★★
I have found that a vegan gluten fee diet helps, but what really makes a difference to the kidney involvement is daily consumption of natural probiotics in fermented food. This includes coconut yogurt or kefir (I found out early on that avoiding dairy helped my lupus tremendously), cultured vegetables with live cultures (not to be confused with vinegar preserved veggies) and small amounts of kombucha (tart, not too sweet). If I eat these daily in small amounts the kidney inflammation is non existent. When starting out be gradual and add each slowly to your diet as they are powerful, and can cause a detox reaction. Eat well, eat fresh, avoid sugar and fast foods/drinks.
Good luck!
Multiple Remedies
My prayers are with you and hope your daughter gets well really soon. I know it must be really difficult for your daughter and your family and as a parent you are doing your best.
My 11 year old daughter has been diagnosed with Lupus/Crohns last year. Doctors cannot pinpoint whether it is crohns or lupus since she had all the symptoms related to crohns and lupus both.
We started her on SCD (Specific Carbohydrate Diet) this year since Feb 2018. She has weaned off all her medication since Feb 2018 except proguanil which is given to Malaria patients. However this medication has shown good benefits with Lupus also.
Since Mar 2018 we are doing her blood test every 2 months and she is 100 % normal. All her results are coming as normal. I think the major benefit is because of SCD diet. You can google this to know more about SCD. I'm not sure whether it will help your daughter or please look into that.
Hope your daughter get well soon. Take care.
Multiple Remedies
I am so sorry - I am sure it is hard to sleep when you see your daughter suffer so much.
The thing that come to mind as I read your post that I would be considering if this were my daughter would be charcoal poultices over the kidney area at night.
Here is an interesting study about the use of charcoal in kidney disease and its ability to decrease creatinine levels. Now, the specific kidney disease, age of patient and way of administering charcoal are different in this study, but it does make me thing that charcoal would be something to consider. Especially since external poultices should not come with interactions with any medications.
And here is a story about a child with vasculitis on the brain with suspected lupus that was healed with charcoal. (Look about 1/5 of the way down the page.)
Some other things to consider would be nettle tea as a blood purifier; we have seen it do some wonderful things for children in our house. But I would make sure with the doctor that that was okay.
Please do keep us posted. I am praying for her!
~Mama to Many~
Multiple Remedies
I found the closest, most trusted homeopath I could get to - now disabled & in a wheelchair due to pain. She was my first angel & I started on the road less traveled. I still don't believe that if anyone else had heard this prognosis they wouldn't have looked elsewhere for help. My journey began with alkalinizing & purifying all water, a liver detox and immune support. This truly was the only time I had feelings of what I used to be. I was capable of so little, I'm not sure how I got through with so little home support. Now, friends & family jumped on the "crazy" bandwagon. As they kept themselves busy, I improved. With the support of a pain interventionist, I can now walk 50 feet with a cane, food shop holding on to the cart & cook 5 nights/wk, the decent food my family needs too.
This year I found a second angel to build on the routine, I wanted to feel better & knew I could with support. Then I found you, found the first true hope & healing in all these years.... Now, if I can organize this plan, I will be very busy. I continue ph Balance, through clean, ionized water mixed with baking soda & ACV, candida support, dairy free probiotics & enzymes with meals, immune modulation with colostrum & peptides, neurological support with B vitamins & Antioxidants & free radical scavengers. I continue liver support & use DMSO for pain & inflammation. I have seen a glimpse of how good I will feel, as I have also had to move slowly due to Herxheimer reaction. I read as much as I can & see that many recommend following a celiac diet & new suggestions for vitamins & amino acids for energy & acupuncture for ongoing pain. I really needed to thank all of you for taking the time to post & care. I have never felt this level of hope. I know I have a long way to go, positivity seems to make all the difference. I only hope as I improve I can inspire someone as you all did for me & continue to pay it Forward... Thanks again~~~~~~~
Detoxing
Supplements
★★★★★
Margaret's Lupus Remedies
B3, Gluten, Blackstrap Molasses
Supplements
★★★★★
Hydroxychloroquine
★★★★★
Multiple Remedies
★★★☆☆
We are using a natural path where she is on many protocols such as magnesium, Galactose, mannose, Vitamin D, Mineral waters etc. we were hoping with the help of natural path and regular treatment we will be able to save her not to flare up. But it seems not happening. Her blood test results haven't shown any lupus or ANCA yet but we could she because it happened same when she was diagnosed and hospitalized. My husband and I can't sleep and very worried about her. However, very sure that there must be some solution for her kidneys and disease. Looking for ways to revive it and keep her safe from dialysis as much as possible.re
Dr is asking to give her IV steroid that might help her stopping the flare up and in kidneys as well.
Any Help or similar situations anyone have deal and were able to solve will be appreciated.
Basically there is a major toxicity issue going on here, which is why she is responding so poorly to conventional and alternative treatments. To help detox her body, in addition to her current ND regimen, add a very high quality multivitamin/mineral with added nutrients like green foods, digestive enzymes, etc. To eradicate infection in the gut, Oil of Oregano softgels plus Milled Flax Seed 2x daily with meals. Eat lots of Pineapple (ether fresh whole or canned) to help digestion and reduce inflammation) To help the Kidneys particularly, in addition to the Mannose, take a minimal dose of Dr Christopher's herbal "Kidney/Bladder" formula, and slowly increase to recommended dose for children or adults. Before retiring, take either Bentonite Clay or Activated Charcoal to remove toxins from the body.
Clean up the diet as much as possible. Very little or no processed sugars or food additives, and add healthy fats like Fish, Evening Primrose, and Borage Oil will help. Clean up house of organic or inorganic material. All chemical fragrances, perfumes, etc, must go. Replace air filter with something of high quality like a permanent washable filter or HEPA filter, or purchase a whole house indoor Air Purifier; also purify all water. Organic only household & body products can be found at most health-food stores, one online store I highly recommend is Mike Adam's (The Health Ranger) Natural News & Foods. Find healthy here . Hemp/CBD Oil will improve most any disease condition.
Apple Cider Vinegar
★★★★★
Black Seed Oil
LDN absolutely has side effects. I couldn't tolerate staying on it. It gave me horrific nightmares and insomnia.
Coconut Oil
MSM
★★★★☆
★★★★★
The best remedy that I am aware against the lupus after a lot of trial and error is the simple baking soda and borax remedy. That's the major starting point. A baking soda remedy assuming a teen of 15 years old, for example is still 1/2 tablespoon twice a day or sometimes they take 1 tablespoon of baking soda dissolved in a glass of water. The alkalization is the primary approach in reducing the reactivity of the body's immune system. A significant improvement is also seen with the supplements of borax, the dose is still 1/4 teaspoon per liter of water for a male, but a smaller dose of 1/8 for a female. For some reason woman requires half the dose of men. It's taken usually for baking soda, 5 or 6 days out of a week and for borax it's taken 4 or 5 days out of a week. These two I found significant improvement, but not all will go away. As a result, certain bacterial colonies, and perhaps fungus still exists and an addition of both xylitol and a more interesting erythritol supplements is taken to reduce the lupus. This is also significant too. Certain leptin rich foods seems to worsen the lupus and hence, lentils, and beans are reduced. The most significant factor in causing the lupus is the beef, steaks, meats and oily products. Increasing vegetarian diets helps. In most cases I have seen, medications are reduced to a fraction of what they were originally taken such as 1/8 or 1/16 of the original dose. But the reason why they didn't completely discontinue was the lack of availablity of xylitol, erythritol or mannose in that certain location, thus limiting the cure. What the erythritol and xylitol and other polyol sugar does (provided that the body is already properly alkalized FIRST for a couple of weeks 2 or 3 weeks-, along with borax), then the dose for xylitol might be 1/2 teaspoon 3 or 4 times a day. The downside of xylitol is its limited ability to get into the bloodstream, however, I have seen improvement of the body's vital organs (such as kidneys in lupus) through observing the reduction of swelling,from the use of erythritol, but a much more limited extent the xylitol in reduction of lupus. The benefits of erythritol is it prevents mycoplasma from attachment to healthy cells that cause a so called antibody response from attacking the body's own organs. The erythritol has a major benefit over other polyol sugar because of it's ability to go into the bloodstream much more and it's high bioavailability, while most polyol sugar has limited absorption. Hence it makes erythritol more effective approach in lupus, provided that the body is already properly alkalized and some borax remedy has already been applied.
The reason why I am keeping it as simple as possible is to reduce the rheumatic pain, and pain is a big issue in lupus and hence borax, baking soda, and erythritol is the updated version of remedy as being the most important ones to start in the use against lupus. I am sure other things also help reduce this that is worth trying, in particular is the magnesium supplements 250-500 mg./day in form of magnesium citrate, WITHOUT calcium. The other thing is vitamin B complex, that can be taken twice or three times a week. Zinc is used, but very limited extent, such as once or twice a month, which increases the body's immune system, along with some ocassional iodine from kelp.
One other MAJOR approach besides borax, baking soda and erythritol that many people with lupus seems to have problems is the heavy metals. Therefore the fourth element to add after those three were instituted for 4 weeks is the chlorella and spirulina supplements. Most people with heavy metal exposure is one other thing that seems to cause lupus.
I am sure I haven't quite completely cured the lupus, but people who did use the remedy were already happy that just taking that seems to give them a normal life. There are others that may help but those mentioned here should resolve most of the problems, including the bone pain. As a final note, the Global Cooling of 2008 and 2009 is likely to cause worsening of lupus because of lack of sun exposure. Sometimes an ocassional 20,000 i.u. vitamin D3 or vitamin D2 also helps increase the body's immune system also, but I believe it's taken together with magnesium and boron (borax) to maintain a balance of magnesium/calcium. Vitamin D tends to increase blood calcium and hence, magnesium is also taken to help maintain the balance of magnesium/calcium.
Ted"
12/29/2008: Ted writes again, "Dear Kellie: Erythritol dose may be taken at a larger dose then xylitol since it doesn't have a laxative effect. Hence 1/2 - 2 teaspoon dissolve in a 1/2 glass of water taken a couple of times a day is also possible and may reduce pain. I tend to always start on the low end before going onto the larger dose and 1/2 teaspoon is taken a couple of times a day is a good starting dose for most people whose body weight is between 100-120 pounds. So an initial dose may also decided too. I believe a larger dose will significantly reduce the bone pain because of its effect in preventing a mycoplasma from attaching to the bones that eats the bones away, causing a pain.
The other fungus, that generates mycotoxin, that may cause other symptoms such as aflatoxin, is lessened or neutralized with a BHT 1500 mg supplement for adult dose, so a younger person half the weight may take between 500-750 mg based on weight.
I hope this information helps. Lupus is a rarity in Thailand, but those who do have it, dies pretty quick because of poor understanding of lupus, at least where I live anyway.
Ted
Multiple Remedies
We certainly agree on one thing: "Logical thinking is a good thing".
After reading your discourse on the causes of lupus, I recalled reading that some doctor trying to solve the cause of Gulf War Syndrome, realized that many of the symptoms of GWS were the same as systemic lupus and started looking for causes. Somehow she knew that squalene had been used as a stabilizer in the anthrax vaccine given to the veterans before being deployed to the GW. She then proceeded to pull saved blood specimens from a lot of these vets and testing them, finding that everyone of them had squalene antibodies. So I went looking for facts on the GWS. Mostly what I found is that a lot of experts still aren't in agreement as to what causes it! I did find a statement that the sickest veterans were the ones with the highest levels of squalene antibodies. Logical thinking tells me that squalene must be involved in causing the symptoms of GWS. Common sense, as well as logical thinking, tells me that a lot of other things these veterans were exposed to (gases, pesticides, aspartame in diet colas ( they drank that were probably in plastic bottles and probably overheated in the hot areas of the Gulf War) , depleted uranium, excessive smoke from oil fires, etc. did not contribute to good health or wellness. I am sure that the added stress of being in a war did not add to their feeling of security and contributed greatly to increasing their stress levels - I know it would have mine!
Drinking water from a plastic bottle that has been left in a car all day is now connected to some cancers. Logical thinking tells me that if being left in the drinkers car all day in the sun makes it dangerous to drink, being delivered in a metal-bed truck in the hot sun probably made it too dangerous to drink before they even purchased the bottled water at the store. If you add carbonated beverage, with aspartame sweetener, look how many other detrimental things you have added to the possibilities of interfering with one's health and well-being.
Moving on to your statement: "Most people with autoimmune disease and cancer have higher levels of antigluten antibodies, meaning they are allergic to gluten". When I went on a high protein-low carbohydrate diet, to lose weight, I not only lost weight, but about the second week of eating this diet it suddenly occurred to me that I hadn't had the heartburn, indigestion, and nausea that was usually my constant unwanted companion. Knowing that I did have allelrgies to some things, I realized that it had to be something that I was eating or drinking daily that was creating my gastric problems. The first two things that I thought it might be was milk and bread. After losing 22 pounds in six weeks, I returned to my usual eating except for milk and bread, thinking I was probably allergic to wheat. But then it occurred to me that it might not be the wheat itself. So I went to whole grain bread and had no problems with it. But when I tried bleached flour bread, the heartburn, bloating, flatulence returned big time within l5 minutes after eating it. Aha! Logical thinking is a good thing - I surmised it was not the wheat I was allergic to, but something used in the bleaching process that was causing the problem. I find that is still true some 35 years later. I also found that I could drink my coffee black without problems, add milk to it and I got indigestion - big time!
Years later, researching PUD for a term paper, I learned that PUD first became a problem in the upper socio-economic group, later moving into the middle socio-economic group, and finally on down to the lower socio-economic group. Remembering my own problem with bleached flour products, I researched when they started bleaching flour. I don't remember the exact years now, but adding the two searches together, PUD became a problem ll-15 years after they first started bleaching flour and that it was so expensive that they were the only group who could afford it. It followed (by the same time frame) in the middle group, when it became cheap that they could afford it. When somebody in Minnesota came up with a bleaching process that made it cheap enough for the lower group to afford it, PUD moved into this group following the same time frame.
Now orthodox medicine tells us that PUD is caused by H. campylobacter and treat it with antibiotics that you must see an MD to get. I have never been diagnosed or treated for this organism, but I have never had the ulcer pain that I used to get 3 or 4 times each year, plus I am not bothered by the daily problems I had before the ulcer pain got so bad. Is it caused by H. campylobacter or is it caused by chronic alllergy or intolerance to something in the bleaching process. Since I am rid of the problem, without treatment, it may be that it creates a gastrointestinal condition that harbors the supposed organism and causes the ulcer. I don't really care which it is, because I know that as long as I avoid bleached flour I don't have the problem.
My common sense, and maybe, a little logical thinking tells me that eventually we will all come to realize that many of the additives in our drinking water (sodium fluoride & chlorine)), and in our food & drink(monosodium glutamate and aspartame), and other toxins in our environment, all stress our immune systems, and when our immune systems are busy trying to protect itself and our bodies from harm, some opportunistic organisms, whether molds, viruses, bacteria, sneak in and try to take over.
It is known that systemic lupus can be caused by antibiotics & I think it is still considered a woman's disease because the birth control pills have been blamed for a number of cases. It is very possible that the stressors just create the situation that lets the opportunistic organisms move in and cause distress in the form of disease. Trying to use logical thinking on that is kind of like trying to solve: which came first, the chicken or the egg? I leave that to you solvle - I just appreciate having both the chickens and the eggs they produce.
B3, Gluten, Blackstrap Molasses
★★★★★
I should mention, if you do use blackstrap molasses to "blacken your hair," be careful that you do not develop a vitamin B3 deficiency, WHICH IS known as pellagra, which apparently is important for the diet for those with Lupus.
For the man who treated Lupus on a gluten free diet...take heed, that this goes right back to a probable involvement of strep as this is the main bacteria that feeds on B-vitamins, as it is essential for them to live. This is especially true if you eat corn poducts because corn alone can induce pellagra if the corn has not been fortified(i.e.canned corn or corn on the cob, corn chips, or unfortunately for all its good intentions..organic corn producers that do not fortify their processed foods. If you have Lupus and you're going luten free and eating unfortified corn, you're inching closer to pellagra.This one instance where eating a wholesome food (corn) will give you disease (pellagra) if eaten in large quantities and it is not fortified.
Here is his extensive information from Earth Clinic. The first email is his most recent re lupus. Janet