Holistic Therapy: Lupus (Systemic Lupus Erythematosus)

The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Jacquelyn's Lupus Remedies
Posted by Jacquelyn (Ocala, Florida) on 03/01/2009
★★★★☆

Just in response to Ted's info on Lupus (Ted if you're reading this I hope you'll add any new info you have) I am in serious stages of Systemic Lupus (most all organs involved) along with Gulf War Illness. I work hard to use as many natural things as I can to help my condition and have used some of Ted's suggestions. Here's my two-cents worth: (1)-in reference to SUGARS-definitely stay away from as much as possible. People with Lupus are very Sugar sensitive and I think it damages Lupus sufferers greatly. GO ORGANIC WITH AS MUCH AS POSSIBLE IN ALL AREAS of your food because chemicals, hormones, pesticides...are deadly for us. With SUGARs-go with "BROWN RICE SYRUP or XYLITOL or fructose or glycerin" in SMALL, tiny amounts only once a day or less...but NOT WHITE SUGAR or sadly even honey and all natural jams and syrups cause great problems too. NO CHEMICAL SWEETNERS either (2)-GRAINS--GO ORGANIC and yes stay away from the high GLUTEN grains. I do best with MILLET which is a protein and not a grain. STAY AWAY FROM YEAST AS MUCH AS POSSIBLE---go with yeast free breads (try Millet Zuchini Bread from the Deland Bakery in Deland Florida--they ship to alot of Health Food stores--most of their breads are yeast free and Millet. (3) THYROID--I found with myself and others that Lupus sufferers have very inflammed Thyroids and terribly malfunctioning ADRENAL glands. For my Thyroid I take Armour Thyroid a natural Thyroid gland extract (presciption) and IODINE drops--I take about 7 drops of Iodine a day in a glass of water. For my Adrenal glands I have yet to find anything that helps except SALT--use SEA SALT WHEN YOU FEEL WEAK---also LOTS OF SLEEP and NO STRESS...that is the only thing that helps so far...I hope for a better answer but NO STEROIDS especially if you are in more advanced stages like myself and have bone and muscle wasting from the Raynauds--dont take steroids it will worsen. I do take 7-Keto DHEA but it only helps a little. Many Lupus sufferers have been through alot of abuse--like family or spousal abuse---GET AWAY FROM IT ALL if you have to. If the people around you dont understand and help you to lead a stress-free life, you have to get away from them to save your life (Sad to say but so true and necessary--find supportive friends or counselors that will let you talk--People with Lupus tend to be the ones to help everyone else and hold their problems inside. You cant live that way and value your life enough to find good, stable-minded friends) (4)In reference to ORGANIC FOODS--I find concerning DAIRY and MEATS that if I go ORGANIC it solves the problem. Regular foods are so high in pesticides and hormones and chemicals--that is what is causing the problem NOT THE FOOD ITSELF. I eat ORGANIC DAIRY like organic milk, cheese, goat cheese, plain yogurt and butter. The PROTEINS AND CALCIUM are CRUCIAL for helping Lupus. YOU NEED PROTEIN AND CALCIUM. Same with your MEATS--go ORGANIC--you NEED THE PROTEIN and healthy FATS--they are all CRUCIAL. I know Organic is more expensive but the prices are getting better all the time...your body is worth it. At many Health Food Markets they have many items you can buy in BULK and the SAVINGS there will offset the higher costs of dairy, meats and produce (fruits and veg). BUT I do recommend LESSENING the GRAINS--I stay mostly with Millet and a little Brown Rice and Spelt is OK--you just have to try them and see what works best for you...but go with no/low gluten and yeast free and organic if possible. (5) I've tried balancing my PH like Ted recommends and it is hard to stay with that to get results but I do think it is important I just havent figured out the best way to stay with it (6) And YES--go through a TOXIC METAL cleanse--I've tried many including I.V. EDTA and it only helped a little. I'm presently doing "METAL SHIELD" sold by SWANSON vitamins and am hopeing for good results there but dont know yet. (7) Find a doctor or naturopath that can work with BALANCING YOUR HORMONE LEVELS and can get a Hair Follicle test done to see embalances---then look for natural ways to balance (8) My only other suggestion is to GO THROUGH LIFE VERY SLOWLY !! DONT RUSH AT ANYTHING YOU DO and if others dont understand it, they will have to learn to. The Immune System revs up with fast movement and your Immune System is already attacking you own body--FAST MOVEMENT like working, walking, speaking, and exercising fast make you worse and it attacks the body worse and raises your fever. Yes have some movement through out your day but go through it slowly like kind of slow motion...even allow yourself to THINK slowly. People with Lupus have probably gone through life at a very FAST PACE and always used to accomplishing ALOT in life...your body is worn out--let it rest and move slowly --YOU MUST GET RECUPERATIVE SLEEP AND REST>. (9) TMJ and neck and back problems can be an issue. If you have a TMJ problem-find a dentist to make you what is called an "ANTERIOR ORTHOTIC SPLINT" where at night when you sleep, you only touch the anterior teeth to balance your jaw like a FULCRUM. That is all with that --I wouldnt do anything else they suggest because these dentist can make the problem worse !! LASTLY -- the only medicines I recommend are to help you sleep better, natural Thyroid medicine and maybe Lasix for body swelling although there are natural diuretics too. Nothing else has helped me. If you sleep fine without an aid then go without those, but sleep is important. GOD BLESS and I hope this helps someone--jacquelyn (Hi to Ted if you're out there)"


03/01/2009: Jacquelyn from Ocala, Florida writes, "Also for Lupus sufferers, I forgot to mention--IF YOU SUFFER WITH YOUR "BOWELS" NOT WORKING...try a little teaspoon of PSYLLIUM and 1/2 MAGNESIUM CITRITE tablet of 200mg in the morning with fruit in a blender...then at your evening take 1/2 to whole MAGNESIUM tablet with your evening MEAL. NOTHING else has ever worked for me. It's important to keep your bowels moving daily. If the magnesium makes your bowels to liquid then just cut back a little on dose but dont stop taking or increase if not moving well. Also dont be hesitant about using suppositories and saline enemas--do what is necessary to keep your bowels moving. God bless, Jacquelyn"


03/01/2009: Jacquelyn from Ocala, Florida writes, "More on Lupus---(I keep thinking of things to suggest) Eat alot of RAW ORGANIC VEGETABLES especially anthing Green EXCEPT Lettuces and Green Peppers or difficult to digest vegetables. RAW ASPARAGUSS and RAW CELERY help to rid the body of excess fluids. I just put them in the blender with water and drink it down no matter how it tastes. Green LEAFY vegetables have lots of digestive enzymes...like Spinach, Dandelion, Or mixed Baby Greens...I also throw in Zucchini...anything GREEN except the lettuces and I've read where Kale inhibits Iodine from absorbing into your Thyroid so I dont generally use that one. BUT RAW and ORGANIC IS SO IMPORTANT to get daily. Not too much of the Starchy ones like potatoes and carrots or beats--just limit them. VERY VERY VERY IMPORTANT__STAY AWAY FROM COOKED TOMATOES AND TOMATO SAUCES especially combined with white flour pastas...and no raw onions, no raw peppers...The body just cant digest well. Cooked Tomatoes and white pasta are LETHAL --I dont know why, they just are...can cause lots of joint swelling and inflammation. No alfalfa sprouts either. Hope this helps--Jacquelyn

Baking Soda, Borax
Posted by Ted (Bangkok, Thailand) on 12/29/2008 392 posts
★★★★★

Dear Kellie:

The best remedy that I am aware against the lupus after a lot of trial and error is the simple baking soda and borax remedy. That's the major starting point. A baking soda remedy assuming a teen of 15 years old, for example is still 1/2 tablespoon twice a day or sometimes they take 1 tablespoon of baking soda dissolved in a glass of water. The alkalization is the primary approach in reducing the reactivity of the body's immune system. A significant improvement is also seen with the supplements of borax, the dose is still 1/4 teaspoon per liter of water for a male, but a smaller dose of 1/8 for a female. For some reason woman requires half the dose of men. It's taken usually for baking soda, 5 or 6 days out of a week and for borax it's taken 4 or 5 days out of a week. These two I found significant improvement, but not all will go away. As a result, certain bacterial colonies, and perhaps fungus still exists and an addition of both xylitol and a more interesting erythritol supplements is taken to reduce the lupus. This is also significant too. Certain leptin rich foods seems to worsen the lupus and hence, lentils, and beans are reduced. The most significant factor in causing the lupus is the beef, steaks, meats and oily products. Increasing vegetarian diets helps. In most cases I have seen, medications are reduced to a fraction of what they were originally taken such as 1/8 or 1/16 of the original dose. But the reason why they didn't completely discontinue was the lack of availablity of xylitol, erythritol or mannose in that certain location, thus limiting the cure. What the erythritol and xylitol and other polyol sugar does (provided that the body is already properly alkalized FIRST for a couple of weeks 2 or 3 weeks-, along with borax), then the dose for xylitol might be 1/2 teaspoon 3 or 4 times a day. The downside of xylitol is its limited ability to get into the bloodstream, however, I have seen improvement of the body's vital organs (such as kidneys in lupus) through observing the reduction of swelling,from the use of erythritol, but a much more limited extent the xylitol in reduction of lupus. The benefits of erythritol is it prevents mycoplasma from attachment to healthy cells that cause a so called antibody response from attacking the body's own organs. The erythritol has a major benefit over other polyol sugar because of it's ability to go into the bloodstream much more and it's high bioavailability, while most polyol sugar has limited absorption. Hence it makes erythritol more effective approach in lupus, provided that the body is already properly alkalized and some borax remedy has already been applied.

The reason why I am keeping it as simple as possible is to reduce the rheumatic pain, and pain is a big issue in lupus and hence borax, baking soda, and erythritol is the updated version of remedy as being the most important ones to start in the use against lupus. I am sure other things also help reduce this that is worth trying, in particular is the magnesium supplements 250-500 mg./day in form of magnesium citrate, WITHOUT calcium. The other thing is vitamin B complex, that can be taken twice or three times a week. Zinc is used, but very limited extent, such as once or twice a month, which increases the body's immune system, along with some ocassional iodine from kelp.

One other MAJOR approach besides borax, baking soda and erythritol that many people with lupus seems to have problems is the heavy metals. Therefore the fourth element to add after those three were instituted for 4 weeks is the chlorella and spirulina supplements. Most people with heavy metal exposure is one other thing that seems to cause lupus.

I am sure I haven't quite completely cured the lupus, but people who did use the remedy were already happy that just taking that seems to give them a normal life. There are others that may help but those mentioned here should resolve most of the problems, including the bone pain. As a final note, the Global Cooling of 2008 and 2009 is likely to cause worsening of lupus because of lack of sun exposure. Sometimes an ocassional 20,000 i.u. vitamin D3 or vitamin D2 also helps increase the body's immune system also, but I believe it's taken together with magnesium and boron (borax) to maintain a balance of magnesium/calcium. Vitamin D tends to increase blood calcium and hence, magnesium is also taken to help maintain the balance of magnesium/calcium.

Ted"


12/29/2008: Ted writes again, "Dear Kellie: Erythritol dose may be taken at a larger dose then xylitol since it doesn't have a laxative effect. Hence 1/2 - 2 teaspoon dissolve in a 1/2 glass of water taken a couple of times a day is also possible and may reduce pain. I tend to always start on the low end before going onto the larger dose and 1/2 teaspoon is taken a couple of times a day is a good starting dose for most people whose body weight is between 100-120 pounds. So an initial dose may also decided too. I believe a larger dose will significantly reduce the bone pain because of its effect in preventing a mycoplasma from attaching to the bones that eats the bones away, causing a pain.

The other fungus, that generates mycotoxin, that may cause other symptoms such as aflatoxin, is lessened or neutralized with a BHT 1500 mg supplement for adult dose, so a younger person half the weight may take between 500-750 mg based on weight.

I hope this information helps. Lupus is a rarity in Thailand, but those who do have it, dies pretty quick because of poor understanding of lupus, at least where I live anyway.

Ted


Multiple Remedies
Posted by Joyce (Joelton, Tn) 490 posts

Hello Bret,

We certainly agree on one thing: "Logical thinking is a good thing".

After reading your discourse on the causes of lupus, I recalled reading that some doctor trying to solve the cause of Gulf War Syndrome, realized that many of the symptoms of GWS were the same as systemic lupus and started looking for causes. Somehow she knew that squalene had been used as a stabilizer in the anthrax vaccine given to the veterans before being deployed to the GW. She then proceeded to pull saved blood specimens from a lot of these vets and testing them, finding that everyone of them had squalene antibodies. So I went looking for facts on the GWS. Mostly what I found is that a lot of experts still aren't in agreement as to what causes it! I did find a statement that the sickest veterans were the ones with the highest levels of squalene antibodies. Logical thinking tells me that squalene must be involved in causing the symptoms of GWS. Common sense, as well as logical thinking, tells me that a lot of other things these veterans were exposed to (gases, pesticides, aspartame in diet colas ( they drank that were probably in plastic bottles and probably overheated in the hot areas of the Gulf War) , depleted uranium, excessive smoke from oil fires, etc. did not contribute to good health or wellness. I am sure that the added stress of being in a war did not add to their feeling of security and contributed greatly to increasing their stress levels - I know it would have mine!

Drinking water from a plastic bottle that has been left in a car all day is now connected to some cancers. Logical thinking tells me that if being left in the drinkers car all day in the sun makes it dangerous to drink, being delivered in a metal-bed truck in the hot sun probably made it too dangerous to drink before they even purchased the bottled water at the store. If you add carbonated beverage, with aspartame sweetener, look how many other detrimental things you have added to the possibilities of interfering with one's health and well-being.

Moving on to your statement: "Most people with autoimmune disease and cancer have higher levels of antigluten antibodies, meaning they are allergic to gluten". When I went on a high protein-low carbohydrate diet, to lose weight, I not only lost weight, but about the second week of eating this diet it suddenly occurred to me that I hadn't had the heartburn, indigestion, and nausea that was usually my constant unwanted companion. Knowing that I did have allelrgies to some things, I realized that it had to be something that I was eating or drinking daily that was creating my gastric problems. The first two things that I thought it might be was milk and bread. After losing 22 pounds in six weeks, I returned to my usual eating except for milk and bread, thinking I was probably allergic to wheat. But then it occurred to me that it might not be the wheat itself. So I went to whole grain bread and had no problems with it. But when I tried bleached flour bread, the heartburn, bloating, flatulence returned big time within l5 minutes after eating it. Aha! Logical thinking is a good thing - I surmised it was not the wheat I was allergic to, but something used in the bleaching process that was causing the problem. I find that is still true some 35 years later. I also found that I could drink my coffee black without problems, add milk to it and I got indigestion - big time!

Years later, researching PUD for a term paper, I learned that PUD first became a problem in the upper socio-economic group, later moving into the middle socio-economic group, and finally on down to the lower socio-economic group. Remembering my own problem with bleached flour products, I researched when they started bleaching flour. I don't remember the exact years now, but adding the two searches together, PUD became a problem ll-15 years after they first started bleaching flour and that it was so expensive that they were the only group who could afford it. It followed (by the same time frame) in the middle group, when it became cheap that they could afford it. When somebody in Minnesota came up with a bleaching process that made it cheap enough for the lower group to afford it, PUD moved into this group following the same time frame.

Now orthodox medicine tells us that PUD is caused by H. campylobacter and treat it with antibiotics that you must see an MD to get. I have never been diagnosed or treated for this organism, but I have never had the ulcer pain that I used to get 3 or 4 times each year, plus I am not bothered by the daily problems I had before the ulcer pain got so bad. Is it caused by H. campylobacter or is it caused by chronic alllergy or intolerance to something in the bleaching process. Since I am rid of the problem, without treatment, it may be that it creates a gastrointestinal condition that harbors the supposed organism and causes the ulcer. I don't really care which it is, because I know that as long as I avoid bleached flour I don't have the problem.

My common sense, and maybe, a little logical thinking tells me that eventually we will all come to realize that many of the additives in our drinking water (sodium fluoride & chlorine)), and in our food & drink(monosodium glutamate and aspartame), and other toxins in our environment, all stress our immune systems, and when our immune systems are busy trying to protect itself and our bodies from harm, some opportunistic organisms, whether molds, viruses, bacteria, sneak in and try to take over.

It is known that systemic lupus can be caused by antibiotics & I think it is still considered a woman's disease because the birth control pills have been blamed for a number of cases. It is very possible that the stressors just create the situation that lets the opportunistic organisms move in and cause distress in the form of disease. Trying to use logical thinking on that is kind of like trying to solve: which came first, the chicken or the egg? I leave that to you solvle - I just appreciate having both the chickens and the eggs they produce.


B3, Gluten, Blackstrap Molasses
Posted by rhonda nelson2 (tallahassee, fl, usa) on 07/31/2007
★★★★★

I was just browsing through some of the information posted and wanted to add my "5 cents".

I should mention, if you do use blackstrap molasses to "blacken your hair," be careful that you do not develop a vitamin B3 deficiency, WHICH IS known as pellagra, which apparently is important for the diet for those with Lupus.

For the man who treated Lupus on a gluten free diet...take heed, that this goes right back to a probable involvement of strep as this is the main bacteria that feeds on B-vitamins, as it is essential for them to live. This is especially true if you eat corn poducts because corn alone can induce pellagra if the corn has not been fortified(i.e.canned corn or corn on the cob, corn chips, or unfortunately for all its good intentions..organic corn producers that do not fortify their processed foods. If you have Lupus and you're going luten free and eating unfortified corn, you're inching closer to pellagra.This one instance where eating a wholesome food (corn) will give you disease (pellagra) if eaten in large quantities and it is not fortified.

Ted's Remedies
Posted by Michael (Lakewood, NJ) on 06/30/2007
★★★★★

Borax treatment for Lupus: I am on day 5 of my 1/4 tsp borax & 1/2 tsp baking soda w/ acv treatment for my Lupus & it is Working!! I have severe skin problems, butterfly rash, redness on farhead, etc., it is really getting less noticeable each day.

Still have alittle brain fog & head pains, some joint pain but all lesser, I did camphor 10% alcohol rub (couldnt find powder), with eucilyptus, and it did help. Im wondering if after 2-3 wks all symptoms are gone if they come back again??

Ted's Remedies
Posted by Rhonda (Charleston, SC, USA) on 03/31/2007

Before I forget to mention, Shara from Philadelphia..if you are still reading this post, I highly recommend you get tested for Pompe's Disease...otherwise, something you are taking is causing the rapid muscle breakdown and brown urine, which is called rhabdomyolysis, ..high fluoride in teas and other sources such as drugs can do the same thing.

Ted, you have some good information posted on this site and I will like to add to it...after developing an autoimmune disease myself, I researched extensively on the issue. In the end, I decided that the majority of all autoimmune appear to be linked to a retrovirus, gluten, mycobacteria, silica, or all of them together. Retroviruses can be kept in check with vitamin E and selenium, and killed with fresh coconut meat. The gluten issue is related to strep and staph. Strep bacteria are used in mice to induce autoimmune disease. You can do what is called a BlAST search on pubmed...for a protein/protein interaction, and you will find that the gluten protein resembles the protein coat of strep and staph bacteria...that can trigger disease....be aware that most yogurt has a harmless strep added..but this is not good for autoimmune sufferers...that is why dairy is an issue...along with the fact that strep and staph bacteria are present in milk and yogurt. These bacteria loves low body temperature...so in a hypothyroid situation, (such as that caused by fluoride or triclosan in your antibacterial soap) they run rampant. Be aware that the reason most autoimmune sufferes have B-vitamin deficiencies is when strep/staph are involved, that is because that is WHAT THEY EAT, in combination with chromium(strep and staph need B vitamins and chromium to survive)...So if you cook on stainless steel and take high doses of B-vitmains..you are feeding strep like crazy..try eating a banana and see if your symptoms worsen..haha .Next comes the silica...this is the one that you probably have never heard of...fluoride is added to water in the form of a fluorosilicate..the fluoride reduces white blood cells, but at the same time, the silicate reduces the ability of a person with autoimmune to fight off mycobacteria. Mycobacteria thrive on silica..and some foods are high in silicon...that is how they form the scar tissue...haven't you heard of the breast plant issue with silicon and autoimmune? Anything ground up (such as seasonings), many medicines in capsules, etc..and even table salt, which also has silica added to it to make things "pour" will be a problem with autoimmune sufferers..and you will form scar tissue. The mycobacteria uses the silica in this way in a destructive manner, especially in the presence of fluoride...to make scar tissue. Studies show that TB patients cannot fight off tuberculosis (which is also caused by a mycobacterial infection) if silica is being consumed. You can research this if you want to. I have read that mycobacteria are vulnerable to citrate, tetracycline, monocycline (which, unlike tetracycline, penetrates tissues),and copper. So what does all of this add up to??? I wanted to see if I can make my symptoms completely disappear WITHOUT ANY SUPPLEMENTS...yes you heard me right. It happened...but the problem is, it is a very restrictive (but simple) diet: Elimate all sources that feed mycobacteria, retroviruses, and strep/staph. This boils down no fluoride, silica, and gluten, and foods with B-vitamins added. No fluoride is hard...spring water low in fluoride, do not cook on non-stick cookware in any form, and avoiding high fluoride foods such as chicken, soy, and canned meats. Reduce silica means avoiding seasonings that pour or that you sprinkle on food, and high silicon foods...(i.e.use fresh herbs only for seasoning). Low/No HCL in the stomach is generally caused by fluoride toxicity...you end up with HF instead of HCL inthe stomach, which sets up hypothyroidism, and that will now allow strep/staph, and retroviruses to thrive...also the problem with red meat is this..the stomach is lined with a sodium layer..when you ingest red meat, it pulls the sodium from the lining stomach, and creates a inflammatory condition...because of lack of sodium...mycobacteria thrives on sodium, making the problem worse...but you need sodium to digest your food. And finally, the gluten issue: by avoiding gluten, your body does not launch an autoimmune response to type IV collagen...gluten once again, looks like the protein coat that covers strep and staph..but also that makes up type IV collagen, which is present throughout your body, including your kidneys...and this collagen gets attacked. This is a very general and short version of what i could say, but I hope many find this information useful. Feel free to email for more info. and clarification.

Supplements
Posted by Journey5000 (USA) on 12/31/2023
★★★★★

I understand that a lot of people with lupus, suffer from a lot of inflammation. I suggest omega-3 Fish Oil and Irish sea moss for inflammation as well. Zinc and Selenium to prevent inflammation. A GOOD multivitamin to boost immunity (add A, E & C vitamins). To calm down pain Lavender and Carrageenan.


Hydroxychloroquine
Posted by Dolly (Los Angeles, Ca) on 08/03/2020
★★★★★

I take Hydroxycloroquine once a day. It has stopped my Lupus from worsening. I also use Tylenol Arthritis as needed for pain.


Multiple Remedies
Posted by Janet (In) on 10/30/2017

Shell I have not had experience with these issues. For our family we use Teds information as he has been spot on through the years.

Here is his extensive information from Earth Clinic. The first email is his most recent re lupus. Janet

https://ted.earthclinic.com/cures/lupus3.html


Intravenous Immunoglobulin (IVIg)
Posted by Susan (Ca) on 11/25/2015
★★★★★

I've had SLE since I was 18 but at that time there wasn't much information and it was still in the beginning stages researching symptoms, I know now but didn't know at the time, LUPUS can have a false positive syphilis test and I was treated for it at that time. I was going to HARBOR GENERAL UCLA IN CARSON CALIF.

I had the butterfly patch, I also had hair falling out where my hair was parted, a patch on the back of my arm round that looked like my butterfly a cross my nose and under my eyes and another one on the back of my calf that was the same size as the one on my arm.

I also had severe pain in my joints and getting out of bed was extremely difficult as my day progress movement became easier.. I was spilling protein in my urine around +2'.

My doctor told me I wouldn't be able to take birth control any more so 2 months after taking me off of them I became pregnant 2 months later. While I was pregnant, my doctor explained to me that having my baby was very risky, I felt wonderful pregnant and if I had it my way I wanted to be pregnant forever... I had complications during my 6th month and was in the hospital for a week. I had my baby 2 days before my due date and she and I were healthy.

Right after giving birth the put me on prednisone and several other medications. I've been in and out of the hospital several times. I also was on dialysis for 6 1/2 yrs then I received a kidney from my sister. During the work up, they cross match you with the donor, then after they're done working up the smoothest cross match both of you again and I didn't match. They asked if I would like to be in a study called IVIg STUDY (Intravenous Immunoglobulin). I agreed. YOU get 4 treatments and you know after the first one if it's working,

I was blessed and it worked. The last treatment is done when the transplant itself is being performed. It's been 15 yrs, 4/11/00 and my kidney, function is still working and my labs are well as expected.

I have developed other problems through the years, DVT GERD, COPD, HYPERTENSION, CHRONIC PAIN IN MY LOWER EXTREMITIES. There are more pills I take, just more then I want to explain.

If you would like to ask questions feel free to ask. I did clot almost every other treatment on dialysis. I take roughly 30 pills a day now.

Ted's Remedies
Posted by Altaf (Mumbai, India) on 08/17/2013

Ted: my sister aged 32 yrs was diagnosed of systemic lupus erythromatosis (SLE) in 2007 and has been on med: steroid (Prednisolone), non-steroid (methotrexate and hydroxychloroquine), warfarin (Acitrome), metaxcel (for endocarditis) and much more with some improvement in the past 6 years. Recently I came across this website with natural remedies which I got interested to try for my sister. I have recently (13/08/2013) started her with baking soda (Na-bi-carbonate) (1/2 tea spoon in half glass of filtered water) in the morning on empty stomach and before bedtime (at least 2hrs after dinner). Today (17/08/2013) morning (it was baking soda off day) when she took 2 teaspoons of sea salt with one glass of water on empty stomach (as suggested by you in one of your article on 'want to know top 10 lupus supplements') which I thought worth trying. But she could hold this in her stomach for an hour before she vomitted and soon followed by diarrhoea. Is this expected and okay? I plan to start her on borax (1/8th tea spoon in one liter of water throughout the day) from next week (26/08/2013) so that she can have enough pH buffering from baking soda. I would appreciate your comment on the sea salt issue and any suggestions or changes to help us implement these remedies correctly and efficiently. Thanks. God bless!

Ted's Remedies
Posted by Rsw (Uniontown, Oh) on 08/17/2013

Altaf, Here is a database for users of Low Dose Naltrexone and Lupus: http://www.ldndatabase.com/Lupus.html

If you google LDN and lupus you will see other experiences of people with lupus successfully using FDA approved, low cost, no side effects LDN. And the best part, for you, is that it can be bought without a prescription at any pharmacy in India. (Trade names Revia, Naltima, etc.) If you get 50 mg. Tablets, simply dissolve one tablet in 50 ml. distilled water. Buy a children's syringe and withdraw from 3 to 4 ml of the solution and take it once every 24 hours, usually before bed. (No more often than this.) So easy. Store the rest of the solution in the refrigerator. Best wishes for improved health for your sister. For others reading this, look at www.ldninfo.org to see how it successfully treats a host of autoimmune diseases, including MS, Crohn's disease, UC, and many more. Published clinical trial are shown for Crohn's, AIDS and ongoing for MS and Fibro.


Salt Therapy
Posted by Neal (Asheville, North Carolina Usa) on 02/20/2013

Hello Ted, I was wondering if you had any information about using salt therapy in the treatment of Lupus? By salt therapy I am referring to a manufactured salt micro climate similar to what is found in a salt mine. I have 'built' a micro climate of Himalayan and Polish salt from approximately 20 tons of salt mined from approximately 1-2 miles underground from salt that is about 200 million years old. This 'cave' is a controlled environment kept at between 67-72 degrees fahrenheit and 50-60% humidity. This mimics the conditions in a salt mine.

This type of treatment has been shown to be beneficial for respiratory problems (asthma, bronchitis, allergies), dermatologic problems (eczema, psoriasis, acne), hypertension, stomach disorders, stress, and some autoimmune diseases, but have not found specific guidelines for Lupus.

Could you let me know of any findings you have that might support this treatment for sufferers of Lupus. Thank you, Neal from Sola

Lupus Nephritis
Posted by Angel (Quezon City, Philippines) on 01/09/2013

Good day! We read about the posts, comments, and questions about SLE.

My daughter was hospitalized and shown symptoms of SLE like hair loss since her elemenatry days and continous at present at her age 21. And the doctor test the ANA and the result shown positive. Her face have a a butterfly rash together her shoulder and her back. I'm very worried about her because I don't have any idea what kind of disease is this. I just want to ask help on how we can cure her. Hope that you can give suggestions of medicines that she need to take. Thank you and hope that you response as soon as possible. Were still in the hospital right now. Thank you and God Bless


Lupus Nephritis
Posted by Art (Tustin, Ca. Usa) on 01/09/2013

In reply to Angel from Quezon City, Philippines: The following new abstract shows that supplementing with 2000 iu of vitamin D a day can reduce symptoms and inflammatory markers of SLE:

http://www.ncbi.nlm.nih.gov/pubmed/23204220

That is important, but what is more important than the dose of vitamin D is taking enough vitamin D to get your vitamin D serum level (25 OH D serum level) well into the reference range of 30ng/ml to 100 ng/ml. Some people require more vitamin D than others to achieve a specific 25 OH D level, or to say that a little differently some people simply require more vitamin d than others so it is the actual serum levels that are more important than just saying to take a specific amount of vitamin D.

This next abstract tested vitamin D at large weekly and monthly doses. The test started out at 100, 000 iu of vitamin D per week for 4 weeks and then was followed up with 100, 000 iu of vitamin D each month for 6 months. So roughly 1, 000, 000 iu of vitamin d was given over a 7 month period if I understood it correctly or roughly about , 4, 600iu per day over the 7 month period. Again, a reduction in inflammatory cytokines and markers of SLE were found and improvement seen, adding some confirmation to the finding of the first study above. One significant difference with this second study at the higher dosing than the 2, 000 iu per day in the first study, was that there were no observed SLE flares during the 6 month follow up period and that seems pretty significant to me!

http://www.ncbi.nlm.nih.gov/pubmed/23075451

Man normally makes vitamin D from full sun exposure on a daily basis when your shadow is shorter than you are tall and could never naturally produce 100, 000 iu of vitamin d in one day, so this is not a natural amount for the body to handle in such a short period of time. Mainly this kind of dosing is used in these studies to help with study medication adherence and possibly to speed the buildup of 25 OH D in the serum which can generally take about 2 months. I think daily supplementing or daily full sun exposure is more natural to the human body and is possibly easier for the body to handle.

Best wishes!

Art


Supplements
Posted by Ineke Leer (Walker, MN) on 04/10/2009

Hi: My name is Ineke, I found out I had Lupus 4 weeks ago. I am on predisone and hydroxychoroquine. What a combo.....The predisone only works if taken in doses of 30 mg a day or higher. Its not the drug for me to be on. Can't sleep through the night and it makes me very edgy. Anyway I started taking Olive Leaf extract 2 capsules twice daily, msm 2000 mg twice daily, probiotic enzyme two tablets a day, purce bovine colostrum from first milking, and I had adjusted my diet, I do notice that sugar.....bad......refined carbs, bad.....so far it hasn't made a difference, buts its only been 5 days since I started the natural supplements,, but, I am hopeful for results.

Any advise is welcomed.
Ineke

Supplements
Posted by Theola Williams (Gainesville, Florida) on 05/06/2011
★★★★★

My name is Theola, from Gainesville, FL. I have been dx with Lupus for two years, and it has been a real long journey. I have been drinking hot sage tea which helps with my inflamation and joint pain. I hate taking steroids bc it makes me eat like a run away slave and gain weight. I'm starting to take more vitamins, and its really helping. Im thanking god im still here. Bless all!!!


Lupus Theories
Posted by Tom (Seneca, Sc) on 12/21/2012

The National Institute of Arthritis and Musculoskeletal and Skin Diseases published a paper in 2005 asserting a likely link with the Epstein-Barr Virus in triggering Lupus. Molecular Mimicry resulted from the anti bodies produced by the immune system with some people (predisposed?) to create the antibody and in the creation of the antibody which was to kill the EB Virus, the antibody attacked a protein in the body instead: hence molecular mimicry. The article is on line and can be accessed by googling the National Institute above with search words "virus" and "lupus."

The first course of treatment then would recommend ridding the body of the virus to make the anitbodies stop their search and destroy mission... Accidentally shooting their own. Get rid of the trigger. Get rid of the virus. The article did not comment on how to treat. This is my own consideration.

So consider the colloidal silver solution consumed twice daily at a tablespoon each dose. Do this for a two month treatment and closely monitor to determine a change in symptoms. If better, keep up the protocol for up to a year. Yes a year. I take CS every day for the past 10 years. If one takes a properly diluted liquid no argyria results. Again the NIAMS only discussed the viral trigger. It did not suggest a treatment. The treatment suggestion is mine, not the Institute.


Multiple Remedies
Posted by Bret (Phoenix, Arizona) on 06/12/2008

Whether we disagree with Tulane Medical School or not, whether we think Lupus is a mycobacterium or virus, whether we ignore that retro-viral antibodies are found in almost every Lupus patient tested, we agree on one thing: Diseases that hate oxygen should be treated with higher oxygen. Higher Ph helps achieve this goal,(Warburg/Koch.)


Ted's Remedies
Posted by Florence (Olathe, CO) on 11/27/2007
★★★★☆

I have been using the vinegar and baking soda for lupus, also seasalt and borax. Since I have been using it I have had a cold and cough. I have had it for over a month now and feel better from the symtoms I had from Lupus, but the cold and cough won't go away am wondering if it is part of the detox. Also what is the maintenance once you have taken the vinegar and baking soda and borax.


B3, Gluten, Blackstrap Molasses
Posted by Joylie (Solana Beach, Ca) on 02/16/2011

I just Wikied "Pelegra, " and briefly read the beginning of the history section and this is what it said:

The traditional food preparation method of corn (maize), nixtamalization, by native New Worldcultivators who had domesticated corn required treatment of the grain with lime, an alkali. It has now been shown that the lime treatment makes niacin nutritionally available and reduces the chance of developing pellagra. [4] When corn cultivation was adopted worldwide, this preparation method was not accepted because the benefit was not understood. The original cultivators, often heavily dependent on corn, did not suffer from pellagra. Pellagra became common only when corn became a staple that was eaten without the traditional treatment.


Lupus Caused by Medication
Posted by Ted (Bangkok, Thailand) 392 posts

Yes lupus can also be caused by all the dangerous medication we take. I agree, I nearly died because of it.

If medication is the cause, detoxification will work for you. One extra bit of information about detoxification is that my list of detox medicine I use is short, but effective. Here is my own list of things that if I would detox I would take:

Detoxification of harmful chemicals, I would use: MSM (allow removal of toxic chemical out of cells), disodium EDTA (removes heavy metal), sodium thiosulfate (detox chlorine), indole 3 carbinol (detoxes Dioxin TCDD and pseudoestrogen), borax (removes fluoride), citric acid+baking soda (removes free radical metals and reduce inflammation, while maintains stable pH), and creatine monohydrate (removes formaldehyde). Intestinal detoxification, no need to mention here, other websites has good info. Usually a simple way to induce a major loose stool is baking soda + sea salt at one half teaspoon each. Do not go anywhere for the next 3 hours! If dose is too low, just double it. To restore liver function, just tumeric or curcumin and milk thristle. To restore immune function & support, just try seaweed, kelp as a good iodine source, and take echinacea to increase body immune system. Taking some secretogens to increase human growth hormones such as L-glutamine (2 grams) or possibly niacin + aspirin (taken 30 minutes before to prevent flushing) and L-glycine will help restore and rebuild cellular functions. And since most of people who has been sick for a long time, adrenal exhaustion is quite common. Taking licorice extract and DHEA, all components of adrenal glands will really help. Just my own short list of supplements that will detoxify. You mentioned the use of Hempseed oil, Pumpkinseed oil and Hemp Tea. Those you mentioned are good, but in some countries, hemp is illegal. I would like to get it myself, but it is illegal here also.


Borax
Posted by Sonya (AZ) on 10/14/2024

Aren't these side effects, Hercheimer effect? I believe they will go away after a while, lasts different for everyone but I've heard it will go away, supposedly it's the parasites being affected and they are not happy, until they are gone then this should go away.


Supplements
Posted by Truself (Ohio) on 01/26/2021

What is DNA you mention? A supplement?


Intravenous Immunoglobulin (IVIg)
Posted by Anna (Burbank, Ca) on 01/08/2016

I was diagnosed with Graves disease 18 years ago. My thyroid was removed with radioactive iodine treatment. I was put on synthroid and have been on it since. Was never 100 per cent healthy again. Recently started getting sick. I was diagnosed with Lupus yesterday. After spending hours reading on this wonderful site, I feel I have hope. Thank you to everyone!


Ted's Remedies
Posted by Timh (KY) on 07/22/2014 2048 posts

Noma: Parasite infestations almost always cause both digestive & immune disorders as a consequence. Here is a link to the E.C. page for this condition. https://www.earthclinic.com/cures/parasites.html

Roundworm & Tapeworms are the worst, although the Flukes can kill the host over time. Try all the herbal wormers first and if you're not feeling any better after a few weeks or couple of months, you will need pharmaceutical grade meds to eradicate the devils. CureZone has extensive post on this condition.


Hydrogen Peroxide
Posted by Ellen (White Plains, Ny) on 07/13/2015

Hello...I tried the HP 35% food grade once and after the 2nd day...(only 3 drops) I was light headed and dizzy. I would like to try this again. Would you be so kind and advise where you bought your HP 35% FG, as I am sure it is a reputable site.

Thank you and Best of health to you!


Holistic Approach
Posted by Debra (Middletown, Usa) on 04/24/2013

Instead of Plaquenil, what did she do?


Supplements
Posted by Rsw (Oh) on 02/13/2016

Hi Chris,

The first thing I would try for Lupus is LDN (low dose naltrexone). It will help moderate your immune system, not kill your immune system like many of the current medical options do. It has been known to be effective for Lupus. It can be taken with any other drug EXCEPT opiate based drugs, because they both compete for the same receptor sites, and LDN will always win, potentially throwing an opiate drug user into a dangerous withdrawal. It is a FDA approved drug at 50mg/day for addicts, but has been found to be very effective for a wide range of autoimmune, and other diseases at 1- 4.5mg/ day by a Harvard educated physician. It is out of patent and very inexpensive. You can read the official LDN site here:

www.ldninfo.org

That site will enable you to sign up for a Yahoo LDN Group with over 12,000 members who use LDN for various reasons, many with MS. They are very helpful and willing to answer any questions you may have. It is a non-toxic, non-addictive, no side effects drug that can be taken any time of day, so if sleep issues are a problem, it can be taken in the morning. I hope you will check it out. I have taken it myself for six years. You can also read about it in Julia Shoepick's best seller, "Honest Medicine." Best wishes.


Lupus Nephritis
Posted by Jeremy (Maavern, Ohio) on 09/01/2011

I was diagnosed in 2007 with severe Lupus Nephritis which was causing renal failure. I was put on cytoxin treatment and everthing was going great until my recent flare here in march. I'm back on prednizone which helps but my kidney function is starting to go again. Any advice would help greatly. I'm kind of afraid of taking too many things different because I have so many filter in my kidneys completely scarred over. Please post some thought on this subject. Or someone who has this type of Lupus.

Lupus Nephritis
Posted by Rsw (Uniontown, Oh) on 01/10/2013

Low dose naltrexone is effective for systemic lupus. A doctor cited in the book "Honest Medicine" asked his two aunts who had lupus if they would like to try LDN. They did and in a month they were both much better. LDN is not a cure but will moderate the immune system so that many autoimmune diseases can become a non-issue as long as the LDN is taken at very low doses daily. MS will not progress in most cases, Parkinson's can be helped, Crohn's has over a 67% remission rate, many bowel and cystitis problems improve. It has No side effects. Please see www.ldninfo.org for more information. It is also very inexpensive! It can also be beneficial for cancer, along with other treatment strategies. (It is not a stand alone treatment for cancer) It can be taken with any other drugs except opiate based medicines.


Ted's Remedies
Posted by Jennifer (Owensboro, Kentucky) on 12/10/2012

I don't know if anyone has replied to you question. I have just now found this site and information. It is entirely health to continue the baking soda every day if you want. Personally I have not been using it because I use lemon or apple cider vinegar, but may add the baking soda as well. Baking soda is NOT the same as baking powder!


MMS
Posted by Bobbie (Jamestown, Pa) on 01/20/2011

Ted, I recently read an post on here answering a question about Miracle Mineral Supplement, & as I have thought of trying it to help get rid of my candida, I read it. I noticed you mentioned it has been used to treat malaria, as my Plaquenils also are. I have been on Plaquenil for a few years to treat the lupus I have.

Is there a danger if I take the MMS while I am on Plaquenil?

I am trying to remedy my Lupus by being on a candida diet, (since I have found this site) & I am doing the Borax thing along with the baking soda also. I have bought some probiotics, liquid, from the health food store, but noticed there is sugar in it, I am holding off on taking it.

MMS
Posted by Tom (Regina, Sk) on 01/21/2011

Bobbie:

Have you looked on Jim Humble's site yet for things?:

http://jimhumble.biz/

He now calls MMS "Master Mineral Solution" to try to answer his critics and detractors who say, among other things, that he is peddling snake oil!

Some links on his site are not active, but the 1000, 2000, & 3000 protocols even have videos up on You-tube.

An excellent search site for videos is www.zapom.com, which will find vids from every site on the net including the main ones like GoogleVid, Youtube, etc. Here is the example search for MMS:

http://zapom.com/mms mineral miracle supplement

There are many books on lupus, this one from 2004 with all high reviews, a rarity:

http://www.amazon.com/Lupus-Underground-Long-Ignored-Non-Patentable-Counter-Intuitive/dp/0976342804/ref=sr_1_23?s=books&ie=UTF8&qid=1295589281&sr=1-23

Also, there are many articles in a good search that show studies even within NIH that show a correlation of very low Vitamin D levels and lupus.


Detoxing
Posted by Ibu_works (Canberra, A.c.t.) on 10/08/2010
★★★★☆

G'day! I have in past week been slowly detoxing using baking soda, chlorella, magnesium and tissue salts as well as apple cider vinegar. I am blown away by increased energy and a new found optimism, which has made dull headaches and twinges of joint pain easy to bear. Have ordered food grade h202 to begin serious work. Please, any advice or extra feedback would be great__thanks

Detoxing
Posted by Photosensitive (Houston, Texas) on 10/10/2010

Hello - thanks for this thread on lupus, what a find. This is a little off topic of SLE but you all seem so informed maybe you can help a suspected DLE victim. I developed round lesions years back followed by sudden weight and hair loss and increased photosensitivity to both outdoor and indoor light - mostly indoor uv. I was tested for lupus but came back negative. Mostly my battle is extreme fatigue and photosensitivity right now so much so that I can hardly work on my computer at work without my face feeling like it's in an oven. If I turn the monitor down to almost black and use a uv protection screen it's ok but God help me if I have to attend an hour long meeting under full blown florecents - my skin goes crazy. On top of that my vision is starting to go as well. Just a few months ago I started getting leg pains for no reasonable explanation. If I dont' have lupus I don't know what else it could be. I seem to fit all the symptoms of at least some form of lupus. Like I said mosly it's the extreme photosensitivity that bothers me the most, which I can usually tame for about a 1/2 hour with vitamin e or b-12 sublingual. But just found out my b-12 has sucralose - which may explain why the remedy is only short lived and the photosensitivity comes back a 1/2 hour later.

My question is this (sorry so long winded). Will this ACV, baking soda, borax treatment work on photosensivity or should I try something else to cure that. Unfortunately sunscreens do not work and I have tried them all they actually tend to burn my skin worse. P. S. - to help in the diagnosis I did have bready implants the silicon type for four years but removed them years ago. Please help!!


Detoxing
Posted by Better But Not Cured Yet (Canberra A.c.t., Australia) on 10/14/2010

I also was extremely photosensitive, hives and all. Its spring in oz now I am able to garden(with hat ) maybe its the baking soda? I also bath with it and use to clean. No soap. It actually brought up my lupus rash like a road map after using bs as face scrub. Of course I think that selenium and chlorella no caffeine(much) also helping and bio mag.


Detoxing
Posted by Wendy (Arizona) on 06/28/2020

Check out EMFs. Caused from WiFi, cell phones etc. check out the DNRS system.



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