The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Intravenous Immunoglobulin (IVIg)
Posted by Susan (Ca) on 11/25/2015
★★★★★
I've had SLE since I was 18 but at that time there wasn't much information and it was still in the beginning stages researching symptoms, I know now but didn't know at the time, LUPUS can have a false positive syphilis test and I was treated for it at that time. I was going to HARBOR GENERAL UCLA IN CARSON CALIF.
I had the butterfly patch, I also had hair falling out where my hair was parted, a patch on the back of my arm round that looked like my butterfly a cross my nose and under my eyes and another one on the back of my calf that was the same size as the one on my arm.
I also had severe pain in my joints and getting out of bed was extremely difficult as my day progress movement became easier.. I was spilling protein in my urine around +2'.
My doctor told me I wouldn't be able to take birth control any more so 2 months after taking me off of them I became pregnant 2 months later. While I was pregnant, my doctor explained to me that having my baby was very risky, I felt wonderful pregnant and if I had it my way I wanted to be pregnant forever... I had complications during my 6th month and was in the hospital for a week. I had my baby 2 days before my due date and she and I were healthy.
Right after giving birth the put me on prednisone and several other medications. I've been in and out of the hospital several times. I also was on dialysis for 6 1/2 yrs then I received a kidney from my sister. During the work up, they cross match you with the donor, then after they're done working up the smoothest cross match both of you again and I didn't match. They asked if I would like to be in a study called IVIg STUDY (Intravenous Immunoglobulin). I agreed. YOU get 4 treatments and you know after the first one if it's working,
I was blessed and it worked. The last treatment is done when the transplant itself is being performed. It's been 15 yrs, 4/11/00 and my kidney, function is still working and my labs are well as expected.
I have developed other problems through the years, DVT GERD, COPD, HYPERTENSION, CHRONIC PAIN IN MY LOWER EXTREMITIES. There are more pills I take, just more then I want to explain.
If you would like to ask questions feel free to ask. I did clot almost every other treatment on dialysis. I take roughly 30 pills a day now.
Salt Therapy
Posted by Neal (Asheville, North Carolina Usa) on 02/20/2013
Hello Ted, I was wondering if you had any information about using salt therapy in the treatment of Lupus? By salt therapy I am referring to a manufactured salt micro climate similar to what is found in a salt mine. I have 'built' a micro climate of Himalayan and Polish salt from approximately 20 tons of salt mined from approximately 1-2 miles underground from salt that is about 200 million years old. This 'cave' is a controlled environment kept at between 67-72 degrees fahrenheit and 50-60% humidity. This mimics the conditions in a salt mine.
This type of treatment has been shown to be beneficial for respiratory problems (asthma, bronchitis, allergies), dermatologic problems (eczema, psoriasis, acne), hypertension, stomach disorders, stress, and some autoimmune diseases, but have not found specific guidelines for Lupus.
Could you let me know of any findings you have that might support this treatment for sufferers of Lupus. Thank you, Neal from Sola
Supplements
Posted by Rsw (Oh) on 02/13/2016
Hi Chris,
The first thing I would try for Lupus is LDN (low dose naltrexone). It will help moderate your immune system, not kill your immune system like many of the current medical options do. It has been known to be effective for Lupus. It can be taken with any other drug EXCEPT opiate based drugs, because they both compete for the same receptor sites, and LDN will always win, potentially throwing an opiate drug user into a dangerous withdrawal. It is a FDA approved drug at 50mg/day for addicts, but has been found to be very effective for a wide range of autoimmune, and other diseases at 1- 4.5mg/ day by a Harvard educated physician. It is out of patent and very inexpensive. You can read the official LDN site here:
www.ldninfo.org
That site will enable you to sign up for a Yahoo LDN Group with over 12,000 members who use LDN for various reasons, many with MS. They are very helpful and willing to answer any questions you may have. It is a non-toxic, non-addictive, no side effects drug that can be taken any time of day, so if sleep issues are a problem, it can be taken in the morning. I hope you will check it out. I have taken it myself for six years. You can also read about it in Julia Shoepick's best seller, "Honest Medicine." Best wishes.
Lupus Nephritis
Posted by Angel (Quezon City, Philippines) on 01/09/2013
Good day! We read about the posts, comments, and questions about SLE.
My daughter was hospitalized and shown symptoms of SLE like hair loss since her elemenatry days and continous at present at her age 21. And the doctor test the ANA and the result shown positive. Her face have a a butterfly rash together her shoulder and her back. I'm very worried about her because I don't have any idea what kind of disease is this. I just want to ask help on how we can cure her. Hope that you can give suggestions of medicines that she need to take. Thank you and hope that you response as soon as possible. Were still in the hospital right now. Thank you and God Bless
Lupus Nephritis
Posted by Art (Tustin, Ca. Usa) on 01/09/2013
In reply to Angel from Quezon City, Philippines: The following new abstract shows that supplementing with 2000 iu of vitamin D a day can reduce symptoms and inflammatory markers of SLE:
http://www.ncbi.nlm.nih.gov/pubmed/23204220
That is important, but what is more important than the dose of vitamin D is taking enough vitamin D to get your vitamin D serum level (25 OH D serum level) well into the reference range of 30ng/ml to 100 ng/ml. Some people require more vitamin D than others to achieve a specific 25 OH D level, or to say that a little differently some people simply require more vitamin d than others so it is the actual serum levels that are more important than just saying to take a specific amount of vitamin D.
This next abstract tested vitamin D at large weekly and monthly doses. The test started out at 100, 000 iu of vitamin D per week for 4 weeks and then was followed up with 100, 000 iu of vitamin D each month for 6 months. So roughly 1, 000, 000 iu of vitamin d was given over a 7 month period if I understood it correctly or roughly about , 4, 600iu per day over the 7 month period. Again, a reduction in inflammatory cytokines and markers of SLE were found and improvement seen, adding some confirmation to the finding of the first study above. One significant difference with this second study at the higher dosing than the 2, 000 iu per day in the first study, was that there were no observed SLE flares during the 6 month follow up period and that seems pretty significant to me!
http://www.ncbi.nlm.nih.gov/pubmed/23075451
Man normally makes vitamin D from full sun exposure on a daily basis when your shadow is shorter than you are tall and could never naturally produce 100, 000 iu of vitamin d in one day, so this is not a natural amount for the body to handle in such a short period of time. Mainly this kind of dosing is used in these studies to help with study medication adherence and possibly to speed the buildup of 25 OH D in the serum which can generally take about 2 months. I think daily supplementing or daily full sun exposure is more natural to the human body and is possibly easier for the body to handle.
Best wishes!
Art
Detoxing
Posted by Photosensitive (Houston, Texas) on 10/10/2010
Hello - thanks for this thread on lupus, what a find. This is a little off topic of SLE but you all seem so informed maybe you can help a suspected DLE victim. I developed round lesions years back followed by sudden weight and hair loss and increased photosensitivity to both outdoor and indoor light - mostly indoor uv. I was tested for lupus but came back negative. Mostly my battle is extreme fatigue and photosensitivity right now so much so that I can hardly work on my computer at work without my face feeling like it's in an oven. If I turn the monitor down to almost black and use a uv protection screen it's ok but God help me if I have to attend an hour long meeting under full blown florecents - my skin goes crazy. On top of that my vision is starting to go as well. Just a few months ago I started getting leg pains for no reasonable explanation. If I dont' have lupus I don't know what else it could be. I seem to fit all the symptoms of at least some form of lupus. Like I said mosly it's the extreme photosensitivity that bothers me the most, which I can usually tame for about a 1/2 hour with vitamin e or b-12 sublingual. But just found out my b-12 has sucralose - which may explain why the remedy is only short lived and the photosensitivity comes back a 1/2 hour later.
My question is this (sorry so long winded). Will this ACV, baking soda, borax treatment work on photosensivity or should I try something else to cure that. Unfortunately sunscreens do not work and I have tried them all they actually tend to burn my skin worse. P. S. - to help in the diagnosis I did have bready implants the silicon type for four years but removed them years ago. Please help!!
Supplements
Posted by Ineke Leer (Walker, MN) on 04/10/2009
Hi: My name is Ineke, I found out I had Lupus 4 weeks ago. I am on predisone and hydroxychoroquine. What a combo.....The predisone only works if taken in doses of 30 mg a day or higher. Its not the drug for me to be on. Can't sleep through the night and it makes me very edgy. Anyway I started taking Olive Leaf extract 2 capsules twice daily, msm 2000 mg twice daily, probiotic enzyme two tablets a day, purce bovine colostrum from first milking, and I had adjusted my diet, I do notice that sugar.....bad......refined carbs, bad.....so far it hasn't made a difference, buts its only been 5 days since I started the natural supplements,, but, I am hopeful for results.
Any advise is welcomed.
Ineke
Lupus Theories
Posted by Rich (Boca Raton, Fl) on 01/24/2009
Lupus Theories
Posted by Tom (Seneca, Sc) on 12/21/2012
The National Institute of Arthritis and Musculoskeletal and Skin Diseases published a paper in 2005 asserting a likely link with the Epstein-Barr Virus in triggering Lupus. Molecular Mimicry resulted from the anti bodies produced by the immune system with some people (predisposed?) to create the antibody and in the creation of the antibody which was to kill the EB Virus, the antibody attacked a protein in the body instead: hence molecular mimicry. The article is on line and can be accessed by googling the National Institute above with search words "virus" and "lupus."
The first course of treatment then would recommend ridding the body of the virus to make the anitbodies stop their search and destroy mission... Accidentally shooting their own. Get rid of the trigger. Get rid of the virus. The article did not comment on how to treat. This is my own consideration.
So consider the colloidal silver solution consumed twice daily at a tablespoon each dose. Do this for a two month treatment and closely monitor to determine a change in symptoms. If better, keep up the protocol for up to a year. Yes a year. I take CS every day for the past 10 years. If one takes a properly diluted liquid no argyria results. Again the NIAMS only discussed the viral trigger. It did not suggest a treatment. The treatment suggestion is mine, not the Institute.
Multiple Remedies
Posted by Bret (Phoenix, Arizona) on 06/12/2008
Whether we disagree with Tulane Medical School or not, whether we think Lupus is a mycobacterium or virus, whether we ignore that retro-viral antibodies are found in almost every Lupus patient tested, we agree on one thing: Diseases that hate oxygen should be treated with higher oxygen. Higher Ph helps achieve this goal,(Warburg/Koch.)
B3, Gluten, Blackstrap Molasses
Posted by Joylie (Solana Beach, Ca) on 02/16/2011
I just Wikied "
Pelegra, " and briefly read the beginning of the history section and this is what it said:
The traditional food preparation method of corn (maize), nixtamalization, by native New Worldcultivators who had domesticated corn required treatment of the grain with lime, an alkali. It has now been shown that the lime treatment makes niacin nutritionally available and reduces the chance of developing pellagra. [4] When corn cultivation was adopted worldwide, this preparation method was not accepted because the benefit was not understood. The original cultivators, often heavily dependent on corn, did not suffer from pellagra. Pellagra became common only when corn became a staple that was eaten without the traditional treatment.
Lupus Caused by Medication
Posted by Ted (Bangkok, Thailand) 392 posts
Yes lupus can also be caused by all the dangerous medication we take. I agree, I nearly died because of it.
If medication is the cause, detoxification will work for you. One extra bit of information about detoxification is that my list of detox medicine I use is short, but effective. Here is my own list of things that if I would detox I would take:
Detoxification of harmful chemicals, I would use: MSM (allow removal of toxic chemical out of cells), disodium EDTA (removes heavy metal), sodium thiosulfate (detox chlorine), indole 3 carbinol (detoxes Dioxin TCDD and pseudoestrogen), borax (removes fluoride), citric acid+baking soda (removes free radical metals and reduce inflammation, while maintains stable pH), and creatine monohydrate (removes formaldehyde). Intestinal detoxification, no need to mention here, other websites has good info. Usually a simple way to induce a major loose stool is baking soda + sea salt at one half teaspoon each. Do not go anywhere for the next 3 hours! If dose is too low, just double it. To restore liver function, just tumeric or curcumin and milk thristle. To restore immune function & support, just try seaweed, kelp as a good iodine source, and take echinacea to increase body immune system. Taking some secretogens to increase human growth hormones such as L-glutamine (2 grams) or possibly niacin + aspirin (taken 30 minutes before to prevent flushing) and L-glycine will help restore and rebuild cellular functions. And since most of people who has been sick for a long time, adrenal exhaustion is quite common. Taking licorice extract and DHEA, all components of adrenal glands will really help. Just my own short list of supplements that will detoxify. You mentioned the use of Hempseed oil, Pumpkinseed oil and Hemp Tea. Those you mentioned are good, but in some countries, hemp is illegal. I would like to get it myself, but it is illegal here also.
Borax
Posted by Sonya (AZ) on 10/14/2024
Aren't these side effects, Hercheimer effect? I believe they will go away after a while, lasts different for everyone but I've heard it will go away, supposedly it's the parasites being affected and they are not happy, until they are gone then this should go away.
Supplements
Posted by Truself (Ohio) on 01/26/2021
What is DNA you mention? A supplement?
Intravenous Immunoglobulin (IVIg)
Posted by Anna (Burbank, Ca) on 01/08/2016
I was diagnosed with Graves disease 18 years ago. My thyroid was removed with radioactive iodine treatment. I was put on synthroid and have been on it since. Was never 100 per cent healthy again. Recently started getting sick. I was diagnosed with Lupus yesterday. After spending hours reading on this wonderful site, I feel I have hope. Thank you to everyone!
Hydrogen Peroxide
Posted by Ellen (White Plains, Ny) on 07/13/2015
Hello...I tried the HP 35% food grade once and after the 2nd day...(only 3 drops) I was light headed and dizzy. I would like to try this again. Would you be so kind and advise where you bought your HP 35% FG, as I am sure it is a reputable site.
Thank you and Best of health to you!
Holistic Approach
Posted by Debra (Middletown, Usa) on 04/24/2013
Instead of Plaquenil, what did she do?
Lupus Nephritis
Posted by Jeremy (Maavern, Ohio) on 09/01/2011
I was diagnosed in 2007 with severe Lupus Nephritis which was causing renal failure. I was put on cytoxin treatment and everthing was going great until my recent flare here in march. I'm back on prednizone which helps but my kidney function is starting to go again. Any advice would help greatly. I'm kind of afraid of taking too many things different because I have so many filter in my kidneys completely scarred over. Please post some thought on this subject. Or someone who has this type of Lupus.
Lupus Nephritis
Posted by Rsw (Uniontown, Oh) on 01/10/2013
Low dose naltrexone is effective for systemic lupus. A doctor cited in the book "Honest Medicine" asked his two aunts who had lupus if they would like to try LDN. They did and in a month they were both much better. LDN is not a cure but will moderate the immune system so that many autoimmune diseases can become a non-issue as long as the LDN is taken at very low doses daily. MS will not progress in most cases, Parkinson's can be helped, Crohn's has over a 67% remission rate, many bowel and cystitis problems improve. It has No side effects. Please see www.ldninfo.org for more information. It is also very inexpensive! It can also be beneficial for cancer, along with other treatment strategies. (It is not a stand alone treatment for cancer) It can be taken with any other drugs except opiate based medicines.
MMS
Posted by Bobbie (Jamestown, Pa) on 01/20/2011
Ted, I recently read an post on here answering a question about Miracle Mineral Supplement, & as I have thought of trying it to help get rid of my candida, I read it. I noticed you mentioned it has been used to treat malaria, as my Plaquenils also are. I have been on Plaquenil for a few years to treat the lupus I have.
Is there a danger if I take the MMS while I am on Plaquenil?
I am trying to remedy my Lupus by being on a candida diet, (since I have found this site) & I am doing the Borax thing along with the baking soda also. I have bought some probiotics, liquid, from the health food store, but noticed there is sugar in it, I am holding off on taking it.
MMS
Posted by Tom (Regina, Sk) on 01/21/2011
Bobbie:
Have you looked on Jim Humble's site yet for things?:
http://jimhumble.biz/
He now calls MMS "Master Mineral Solution" to try to answer his critics and detractors who say, among other things, that he is peddling snake oil!
Some links on his site are not active, but the 1000, 2000, & 3000 protocols even have videos up on You-tube.
An excellent search site for videos is www.zapom.com, which will find vids from every site on the net including the main ones like GoogleVid, Youtube, etc. Here is the example search for MMS:
http://zapom.com/mms mineral miracle supplement
There are many books on lupus, this one from 2004 with all high reviews, a rarity:
http://www.amazon.com/Lupus-Underground-Long-Ignored-Non-Patentable-Counter-Intuitive/dp/0976342804/ref=sr_1_23?s=books&ie=UTF8&qid=1295589281&sr=1-23
Also, there are many articles in a good search that show studies even within NIH that show a correlation of very low Vitamin D levels and lupus.
Detoxing
Posted by Ibu_works (Canberra, A.c.t.) on 10/08/2010
★★★★☆
G'day! I have in past week been slowly detoxing using baking soda, chlorella, magnesium and tissue salts as well as apple cider vinegar. I am blown away by increased energy and a new found optimism, which has made dull headaches and twinges of joint pain easy to bear. Have ordered food grade h202 to begin serious work. Please, any advice or extra feedback would be great__thanks
Detoxing
Posted by Better But Not Cured Yet (Canberra A.c.t., Australia) on 10/14/2010
I also was extremely photosensitive, hives and all. Its spring in oz now I am able to garden(with hat ) maybe its the baking soda? I also bath with it and use to clean. No soap. It actually brought up my lupus rash like a road map after using bs as face scrub. Of course I think that selenium and chlorella no caffeine(much) also helping and bio mag.
Detoxing
Posted by Wendy (Arizona) on 06/28/2020
Check out EMFs. Caused from WiFi, cell phones etc. check out the DNRS system.
MSM
Posted by Mara (Canada) on 01/15/2016
Do you take the 3 tablespoons of MSM just once a day? Can it be divided into more frequent doses?
Supplements
Posted by Marie (Houston, Tx) on 07/07/2011
Can someone please help me? I have been dealing with a skin burning problem for over 10 years when exposed to UV computer screens, TVs, lighting in stores, regular light, and sun. It's feels like a burn/inflammation. I think it might be connected to lupus as I had the rash 10 years ago. The rash never came back but the burning is relentless. I've tried fish oil, turmeric, acv, eating only veggies, vit e (which helps a little), cinnamon, and so so many other things to no avail. I work at a computer for 8 hours so I can't escape the burn. My whole life revolves around avoiding any kind of light, cooking in the dark, going blind b/c I have to turn down my computer screen so dark so I don't burn. Has anyone heard of this? Is there a cure? I'll try anything!
Margaret's Lupus Remedies
Posted by Joanne (Toronto, On) on 08/09/2011
Hi Margaret. I am responding to a posting you submitted to Earth Clinic regarding lupus remedies.
Can you tell me how long it took before your lupus disappeared? For the stress tabs -what brand and what dosage mgs per day? Also, what made you take these supplements.
Electromagnetic Frequencies, Cold Weather
Posted by rhonda (tallahassee, usa) on 07/31/2007
... Also, for Lupus people, they tend to be sensitive to electromagnetic frequencies. I have personally found that simply not putting a cell phone or a cordless telephone up to my head greatly improved my autoimmune symptoms than just with diet alone. It turns out, that electromagnetic frequencies also block melatonin synthesis.
Finally, if you have lupus and Raynaud's and live somewhere where it is cold, Raynaud's is closely linked to low thyroid function on exposure to cold weather. Raynaud's has been successfully managed by treating the thyroid. City tapwater has caused most of the lupus symptoms for me...its the pipes and the water that flows through them.
Electromagnetic Frequencies, Cold Weather
Posted by Steve (Lowell, Ma.) on 01/10/2012
The floride used to kill bacteria is actually harming you. Good Luck
Biochemic Tissue Salts, Sea Salt, Epsom Salt, Clay
Posted by Ted (Bangkok, Thailand) 392 posts
I have complete sets of Schuessler's salts. They don't work well or don't work at all as I would wish. It is also quite difficult to apply them in specific conditions due to different brands, formulas, and other things. If the conditions is one of skin's lupus, a simple sea salt should do also. However, it turns out sodium perborate monohydrate (or sodium perborate for short) works a lot better hands down. This is actually the same medication I used for
dog mange. I also have doubts about using sodium fluoride as part of a Schuessler salts due to its toxicitiy.
Borax
Posted by Ashley (Watertown, NY) on 05/02/2021
★★★★☆BETTER BUT WITH SIDE EFFECTS
Hi. I have been suffering from lupus for the last five years. I started the taking 1/8 teaspoon of 20 mule borax with 1 liter of water yesterday.... I also have a phobia of vomiting and I have been experiencing nausea and diarrhea. This is increasing my panic attacks but I do have less pain today and more energy. Does the stomach upset last or does it get better after getting used to the borax? This is safe right? I found it on YouTube and I've been researching it but I'm still nervous...
Borax
Posted by Nina (Edmond OK 73013) on 12/24/2022
I have had Lupus for years & just recently been diagnosed with ITP, another immune disorder. Would there be any benefits of the borax and if so, what would you recommend for me? Thanks, Nina.
Artemisinin
Posted by Abdelhakim (Algeria) on 07/20/2022
Hello, What brand are you using please?, a lupus nephritis patient I know is starting Artemisinin supplement with a lower dose like 200 mg daily, because I read higher dose put a strain on the liver and depletes sodium from body.
Artemisinin
Posted by Karilee (Campbell River, BC Canada) on 06/01/2023
I have lupus, any suggestions for help would be greatly appreciated.
Aloe Vera Juice and Probiotics
Posted by Meg Tsiamis (Tennessee ) on 02/02/2025
Hi Sue, can you tell me where you get the aloe juice? I would like to try this. Thanks.
Bentonite Clay, Ted's Remedies
Posted by Frances (Cabarlah, Qld.) on 05/04/2023
Those little black dots size of pin head sound like a symptom of Morgellons.
Salt Therapy
Posted by Keri (West Virginia) on 12/07/2016
Did the salt cave therapy ever help?
Multiple Remedies
Posted by Rsw (Uniontown, Oh) on 09/19/2012
Dr. Gluck (a Harvard educated expert on LDN) had two aunts with lupus. He asked them if they wanted to try Low dose naltrexone. They did, and in a month they were both doing well. Lupus is an autoimmune disease that responds very well to LDN, a harmless, no side effect FDA approved drug. See www.ldninfo.org or read Julia Schopick's best seller, "Honest Medicine. ". Be well.
Supplements
Posted by Chris (San Luis Obispo, Ca) on 02/13/2016
I would live to try something homeopathic, but my body us so reactive right now. My Dr.Is not supportive of supplements. This site actually made me more scared. Reading people with Lupus die 10 years after diagnosis? I have never read that. The lists of suppliments and ideas are great but where do you begin? It so overwhelming!
Supplements
Posted by Margie (Harrison, Arkansas ) on 03/14/2016
Wondering how the parasite results went?
Supplements
Posted by Desma (Knoxville, Tn) on 05/29/2016
Hi Deborah,
Curious to see how the blastocystis hominis treatment worked for you. I am also trying this.
Lupus Nephritis
Posted by Katherine (Australia) on 03/12/2014
Hi Jeremy, is there a new update on your condition? I just be diagnosed with class 4 lupus nephritis and is about to go through the same treatment. I am very keen to know how you are doing ? Is your 2nd flare up in 2011 under control? Thanks
MMS
Posted by Bobbie (Jamestown, Pa) on 01/31/2011
Tom, are you saying you think it is safe to take both my plaquenils & this mms stuff? The reason I asking is because they are both supposedly used to kill malaria, & I want to make sure they are safe to take together. I cannot find anything on Mr. Humble's site addressing this issue.
Detoxing
Posted by Wenjoy (Winter Springs, Florida) on 04/22/2013
Apple Cider Vinegar
Posted by Sue (Arlington Hts., Il) on 06/15/2010
★★★★☆
I have found the ACV has stopped the reflux side effects I was getting from Plaquenil my MD put me on for the SLE.
Supplements
Posted by Theola Williams (Gainesville, Florida) on 05/06/2011
Stay Motivated and try not to stress!!! MESSAGE TO ALL!!!
Supplements
Posted by Ineke Leer (Walker, MN) on 04/10/2009
Hi: My name is Ineke, I found out I had Lupus 4 weeks ago. I am on predisone and hydroxychoroquine. What a combo.....The predisone only works if taken in doses of 30 mg a day or higher. Its not the drug for me to be on. Can't sleep through the night and it makes me very edgy. Anyway I started taking Olive Leaf extract 2 capsules twice daily, msm 2000 mg twice daily, probiotic enzyme two tablets a day, purce bovine colostrum from first milking, and I had adjusted my diet, I do notice that sugar.....bad......refined carbs, bad.....so far it hasn't made a difference, buts its only been 5 days since I started the natural supplements,, but, I am hopeful for results.
Any advise is welcomed.
Ineke
Supplements
Posted by Mona (Ny, Us) on 04/24/2011
I caught an infection from trying on pants in a store that someone had before and now I have the disease. I find that if you try homeopathy, there was clearly no other choice after trying traditional medicine. I also find that with homeopathic medicine, nothing happens at first until 6mo-1 yr. later and then it finally works. Problem is with that though, if you don't know what you're doing and you're just testing alternative therapies, you can waste a long time on the wrong alternative medicine.
Supplements
Posted by Rush (Usa) on 07/07/2011
Supplements
Posted by Mmsg (Somewhere, Europe) on 07/08/2011
have you tried evo (coconut oil)?
Supplements
Posted by William (Mn) on 09/24/2015
If it were me, I would try tomato paste mixed with olive oil. Google that and see what you think.
Supplements
Posted by Constance (Michigan) on 04/17/2017
Look into Electromagnetic Frequency poisoning.....happens with smart meters on your house and other electronics......computer routers, smart cell phones, digital home phones, etc.
Supplements
Posted by Brian (Usa) on 04/24/2017
Sounds like porphyria.
Margaret's Lupus Remedies
Posted by Kelle (Lafayette, In) on 11/19/2011
Hi Sherry from Ft. Wayne. I just read your post. Any suggestions on an integrated doctor. I live in Indiana also. Thank you.
Margaret's Lupus Remedies
Posted by Lillian (Vass, North Carolina) on 04/10/2012
Thank you, Margaret. Your thread made me feel like there is definite hope. I had no idea lupus could be caused by all these other elements. I'm very grateful for Ted's assistance. He's a gem!
Vitamin D
Posted by rhonda (tallahassee, fl, usa) on 07/31/2007
★☆☆☆☆WARNING!
Concerning taking Vitamin D, one must be careful when taking it. It is important that it is balanced with Vitamin F. Some doctors will diagnose people with lupus when they actually have sarcoidosis, and diagnose them with sarcoidosis when they actually have lupus. The 2 are not the same, although they are both thought to have a type of mycobaterium involved, but not the same mycobacterium. Vitamin D would be very helpful for lupus but detrimental for sarc. The difference appears to be due to whether or not the mycobacteria has infected your macrophages. If this is the case, your active vitamin D levels will actually be high, even in the presence of low stored vitamin D. A good rule of thumb may be to have both the stored and active levels measured. If taken vitamin D causes you dizziness, this can also be a clue that you active levels may already be high. In this case, it needs to be balanced with Vitamin F.
