Posted by Lily (Kelowna, BC, Canada) on 01/26/2013
★★★★★
I also went gluten free and after 2 weeks am no longer taking the supplements. Ocassionally in the late evenings there is a bit of tingling but it has only been 2 weeks. I am very strict about reading labels etc. And I eat a lot of fresh fruit and veggies, pumpkin seeds, sunflower seeds and make myself some awesome smoothies. I have dehydrated lots of apple so I have healthy snacks. It is a very healthy diet. Here in Canada I buy 1 loaf of Udi's glutin free bread each week it is good bread.... In the freezer section and I bake some muffin. Good luck to all & good eating. Let's eat healthy & heal our bodies.
Posted by Laura (Erie, Co) on 07/29/2012
★★★★★
For 2 years, I was dealing with the pain, shooting sensations, fatigue, electronic vibrations, etc. When my third neurologist said peripheral neuropathy, I found this site, and immediatly began treatment. Because 35% of people with peripheral neuropathy are gluten intolerant, I decided to give this a shot, since diabetes has been ruled out. I have also gone dairy-free, as I've always been a little sensitive to dairy.
After 3 weeks, I already feel so much better, I have stopped taking gabapentin for the pain! There is still a little pain, but the shooting stabbing sensations are gone, and the feeling of restless leg syndrome is gone too.
Here is my daily regimine, specifically:
- 6:00 am 1000 mg acetyl-L-carnitine
- 6:30 am breakfast (gluten free, dairy free), 100 mg R-lipoic acid, vit D supplement, fish oil supplement.
- 10:00 am 1000 acetyl-L-carnitine, empty stomach
- 12:00 pm 1 fish oil supplement, lunch (gluten free, dairy free)
- 2:00 pm 1000 acetyl-L-carnitine
- 5:00 pm dinner (gluten free, dairy free), 1 fish oil supplement, 1 apple cider vinegar
- 9:30 pm 200 mg R-lipoic acid, 1 B complex supplement.
This is a lot, and I wouldn't do this for more than a few months, but it is amazing how much better I feel in just a few weeks. I will follow up in January 2013, with the final results. I hope with positive news that a complete recovery has been made.
Posted by Zanytranscriber (Port Townsend, Wa, Usa) on 05/25/2012
★★★★★
I found this website when looking for info about neuropathy. My husband has had two back surgeries and has suffered with neuropathy ever since, especially his right leg. Most of the time, it feels like it is waking up from being asleep with things that feel like sparkles ALL THE TIME, but sometimes he gets something like electrical shocks that zip down his leg. We got alpha lipoic acid 100 mg and acetyl L-carnitine 500 mg at a local store. He started first with just the ALA one tablet and felt relief the second day. After a few days with just the ALA, we added the acetyl L-carnitine. He is able to sleep at night, and even if he has been really active and his leg is doing really badly, it doesn't take as long for the shocks to go away. He has been able to stop taking Neurontin, Methocarbamol, Xanax, etc and is much more active. We tell everyone about this combination, even our chiropractor and MD. We also tell them about the website. Thanks so much.
Posted by Carol (Los Angeles, Ca) on 01/12/2012
★★★★★
I was suffering from continual extreme muscle tightness in my thighs and neuropathy in the top of my foot shortly after I began taking Lipitor. I discontinued the Lipitor after 3 weeks, but was unable to exercise without the pain becoming increasingly worse. I stopped taking the Lipitor but had no improvement in my symptoms whatsoever, so after 6 weeks I broke down and decided to try this combination based on Bill's experience. I began taking 500 mgs of Acetyl-L-Carnitine 1x a day and 100 mgs of R Lipoic Acid 2x a day. (I am a small person, so I take a minimal dose. ) I felt relief within 2 days. Five months later, I am happy to report that I am at 98% of where I was before taking the statin with only the slightest bit of tightness and neuropathy when I exercise hard.
You should always check with your doctor and investigate as much as possible before taking a supplement with a prescription drug or other supplements. I believe my original problem with Lipitor was caused by inadvertently combining it with Red Yeast Rice.
Posted by Bill (Staten Island, Ny ) on 07/10/2011
★★★★★
I had stage 3 cancers in colon, rectum, and prostate chemo radiation and had terrible neuropathy after for 3 years trying numerous specialists and pain killers w no results then my brother told me about actyl-l carnitine 1000 mg 2xs a day and alpha-lipoic acid 250 mg 2xs a day - within a few days an absolute miracle happened i can walk pain free and in balance my golf game has gotten much better shooting way under par almost daily - I'm a PGA pro who couldnt finsh 9 holes until now -could play 27 if needed- hope it works 4 u 2.
