The comments below reflect the personal experiences and opinions of readers and do not represent medical advice or the views of this website. The information shared has not been evaluated by the FDA and is not intended to diagnose, treat, or prevent any disease or health condition. Always consult a qualified healthcare professional for medical concerns.
Melatonin
Posted by Art (California) on 03/11/2024 2325 posts
★★★★★
In primary Sjogren's Syndrome (pSS), two of the most common symptoms are dry eyes and dry mouth. pSS damages the salivary glands (SGs), leading to dry mouth and melatonin helps protect the salivary glands from this damage, as discussed in this new March 2024 study :
https://pubmed.ncbi.nlm.nih.gov/38460474/
Here is a relevant quote from the study :
Melatonin had the potential to mitigate inflammation, oxidative stress, and apoptosis in SGs of pSS by inhibiting the IL-6/STAT3 pathway through receptor-dependent mechanisms. This intervention effectively prevented glandular damage and preserved functional integrity.
Art
Castor Oil
Posted by Mary (Utica NY) on 08/09/2023
★★★★★
That won't work… the oil will be absorbed into the fabric. If you're in serious pain, and your eyes could be damaged…. You will do this for sure. It's the lessor of the two evils.
Sjogren's Syndrome
Posted by Diamond (Ma., US) on 11/22/2014
★★★★★
Black Cohosh for Sjogren's
I have used a natural remedy for over twenty years-called black cohosh, it has been a God send for all these years. As for dry eyes, it's just the greatest, it also supports the whole system. Black Cohosh can be bought in almost any drug store and some of the leading stores. I thought I would add an extra alternative for many others to use. Good Luck...
Dietary Changes
Posted by Rachel (Lewes DE) on 04/17/2023
★★★★★
I am 55, white, female. I had whooping cough which left me with Sjorgrens which was largely asymptomatic until it wasn't. Two years after diagnosis I had extreme fatigue, weird rashes and pimply type things on my scalp, very red eyes. I tried anything and everything including the Auto Immune Protocol. It's no joke and it's a big commitment but after a few months it made a huge difference and I was able to start exercising and commuting by bike. AIP has a lot of supplements and it is worth getting one of the main books about them for that. Headlines: No gluten, dairy, alcohol, nightshades, sugar. Only grass fed meat. If you eat meat you eat nose to tail - so liver, skin, marrow. Lots of probiotics in diet. I sometimes cheat (cheese) these days but I have mostly kept it up for four years. I had a flare up while getting over Covid but mostly I have been healthy and highly functional. I think the AIP was a part of it, but I also tried low dose naltraxone, transcendental meditation (wow that helps with everything) Iyengar yoga (alignment and twists benefits internal organs). I also work on a kneeling chair or cross legged on the floor. Who knows which of the things really help - one person once told me they all do. I wish you all well on your quest to manage this condition and live in harmony with the body that you have.
Fish Oil
Posted by Kathleen (Orange County, ca) on 12/20/2022
Are you still taking cod liver oil. How do u take it? Teaspoon, etc? There are many remedies but confusing because no one discusses how they take it, how much, etc. I want to try the least expensive easy option. Please advise
Castor Oil
Posted by Stephanie (Pittsburgh, PA) on 09/06/2022
Thank you. I'm starting year 4 of this and doctors do nothing to help me. Now I have a rash on my neck for 2 years in addition to the pain and swelling. It is now on both sides of my neck. Gonna try this since the medical field does nothing except watch me suffer and act like they can't see the swollen glands.
Dietary Changes
Posted by Rachel (Delaware ) on 08/10/2022
Hi Danielle -
Anyone reading up on Sjorgren's might want to consider the AIP diet - especially if their symptoms are overwhelming. If you're not ready for that much change, I was surprised not to see (and I could have missed it) the old wives' tale of giving up Nightshades. (Potato, tomato, peppers, eggplant). I was diagnosed with Sjorgrens after I had whooping cough in 2016. I sort of ignored it because the treatments were annoying and the symptoms were manageable. But by November 2018 I realised I was in fact overwhelmed with symptoms and that something had to change. I followed the AIP diet and started taking supplements - probiotics, fish oil - just everything. I got my hair tested and found that I had a chronic shortage of molydenum and started taking supplements. I got as much sugar out of my life that I could. I learned to meditate. I gave up alcohol for six months and then only went back to an occasional glass of wine.
Coconut Oil
Posted by Angela (Englewood, Kansas ) on 07/31/2022
★★★★★
Coconut Oil for Sjogren's Syndrome
I agree with the post from 2015 about using coconut oil. I brush my teeth with toothpaste maybe once a week, all other times I just brush with water to clean them well. Then I brush them with coconut oil, and leave it on them. I've noticed a better tooth condition, more moisture in mouth, and healthier looking gums.
Fish Oil
Posted by Angela (Englewood, Kansas) on 07/31/2022
Post says they had blood transfusions and fluid around heart. What were the blood transfusions used in response too? How did they see fluid around the heart?
Fish Oil
Posted by Angela (Englewood, Kansas ) on 07/31/2022
The dry eyes, I use Systane. My eye Dr recommended it and it's amazing. Great for lubrication, not aggressive like those script eye drops.
Coconut Oil
Posted by Kalola (Ottawa Canada) on 04/28/2022
★★★★★
I agree- Coconut oil pulling for up to 30 minutes, then spit out in garbage- it clogs drains! Take a 1/4 to 1/2 tsp to swallow, several times a day to moisturize the mouth.
Fish Oil
Posted by Brooke (CO) on 04/18/2022
Have you tried Manuka honey? My lips get so dry, they crack and bleed and swell and nothing topically helped until I tried the honey. It is a miracle and helped the dryness go away in two days they looked almost normal again. It's 100% stronger than regular raw honey, made from bees in New Zealand from the tea tree. Look online and see all the benefits. Find some at your local health food store.
Dietary Changes
Posted by Uncertain (LA) on 01/16/2022
How are you doing? Are you still Sjogrens free?
Coconut Oil
Posted by Kristina (Rio Vista, CA) on 12/14/2021
Please advise as to how to use Evening Primrose Oil & Borage oil. Thanks
Coconut Oil
Posted by B (new orleans ) on 07/23/2021
She's doing the right thing by spitting it out after holding it in her mouth. It's called oil pulling and it's to get rid of the toxins. Eating coconut oil is fine, but not after it's dirty.
Fish Oil
Posted by Nancy (Los Angeles) on 06/21/2021
Hi Art:
Sorry, I just saw this. I think you are spot-on. Vitamin D has been hard for me to budge, but I've started taking cod liver oil, so we'll see. Zinc is actually more interesting to me because the last 3 times I had a migraine coming on, I've taken zinc and it resolved w/in an hour. (I can't take NSAIDs due to fluoroquinolone toxicity and was scratching my head for alternatives, when something in me told me to try zinc... it worked! ) And as zinc is so important to the absorption of so many other vitamins, I suspect it could be a game changer for me. Thanks for your reply!
Fish Oil
Posted by Art (California) on 05/26/2021 2325 posts
Nancy,
If you haven't already, you might look into vitamin D and an absorbable form of zinc such as zinc picolinate or zinc gluconate.
Art
Fish Oil
Posted by Nancy (Los Angeles) on 05/25/2021
Just an update... I tried the sea buckthorn oil and, maybe it was a coincidence, but my tongue swelled pretty suddenly (not hugely, just enough to be painful pressing against my teeth) and my lips went all tingly. It was weird and scary, so I don't plan to take any more sea buckthorn oil. Which is a bummer because I thought it might really help. Anyway, just wanted to put that out there in case anyone else had a similar experience. Again, it could be coincidence... if the swelling and tingling isn't gone in a few days, then I'll look for other culprits (like Sjogren's itself), but for now, it seems sea buckthorn oil is not my friend. (This was the Seabuck Wonders brand, btw... the one with both seed and fruit oils.)
Also, I discovered that the fish oil is not something to take high doses of (i.e., 3 tsp/day) for any significant duration either... unless you're able to regularly test your levels of omega-3 vs. 6, AA vs. DHA, etc.. Apparently, when omega-3 levels get too high relative to omega-6, they can cause many of the problems I'm trying to eliminate. I feel like I need to get a whole battery of test$ to see where I am before I take one more supplement. This is becoming one long game of whack-a-mole. I'm going back to basics for now, only supplementing things that (a) I know, based on lab tests, that I'm deficient in, or (b) that I know have no undesirable effects when used in excess of necessary amounts. Good luck everyone... I know the answer is out there! (It just probably looks different for each of us.)
Fish Oil
Posted by Nancy (Los Angeles, CA) on 05/22/2021
★★★★★
Gwen, Thank you for sharing your experience and protocol... so helpful! As some others suggested, I ordered the sea buckthorn oil, but while waiting for it to arrive, I tried just upping my consumption of cod liver oil (I had been taking 1g/day)... lo and behold, the day after I upped it to 3g/day, my eyes were no longer dry and my mouth had improved by about 50%. And today, 2 days later, my salivary glands are 98% back in action! (Weirdly, I had a dream last night that I couldn't stop drooling. ; P)
I still plan to try the sea buckthorn oil, mainly to see if I get any of the skin benefits, but it's good to know how powerful something as simple as cod liver oil can be (good for vit D, too, which I'm borderline low in). Cheers!
Castor Oil
Posted by Kjeanne (San Jose, Ca) on 03/10/2021
Plastic directly over skin that has castor oil on it may not be a good idea, according to all the Edgar Cayce castor oil sites. Usually the castor oil is just either rubbed into the skin, or on a castor oil pack made of wool or cotton flannel, as plastic can leach poison. (Though plastic can be laid ON TOP of the flannel or wool castor oil pack).
Sea Buckthorn Oil
Posted by Shabana (TX) on 03/09/2021
★★★★★
Sea Buckthorn oil:
In clinical study on Sjogren's and Sea Buckthorn, twenty-three female patients with typical symptoms of dryness, pain and itching in the genital tract mucosa took Sea Buckthorn oil for three months. Conditions of the genital mucosa were evaluated using a visual analogue scale method before and after each treatment period. It was found that the use of Sea Buckthorn oil resulted in a higher rate of improvement in all symptoms of the twenty-three patients. In another study, researchers recruited 100 adults with symptoms of dry eye syndrome.
For three months, participants took two grams of sea buckthorn oil or a placebo each day. By the study's end, those who'd taken sea buckthorn oil showed a reduction in several dry eye symptoms (including redness and burning). These results suggest that Sea Buckthorn Oil may present a promising alternative for improving the condition of the mucosa of Sjogren's Syndrome patients.
Dietary Changes
Posted by Peggy (Saskatchewan) on 02/07/2020
★★★★☆
I found that eating wheat caused my saliva glands to dry up. When I don't eat wheat I have almost normal saliva. Perhaps it would work for others with Sjogrens.
Sjogren's Disease and FUT2
Posted by Peggy (Saskatchewan) on 02/16/2020
Rebounding helps the lymphatic system to work properly.
Sjogren's Disease and FUT2
Posted by Bill J. (United States) on 06/05/2019
I'm grateful for these posts where people can look at possible solutions. The Auto-Immune disorders don't have to be a Life Sentence! I am being tested for Sjogren's. I have minimal dry eye, dry mouth only at night, but I am a mouth breather due to congested nose.
The thing that made me consider all the moisture issues is that I almost have never sweated except for peri-menopause that was severe sweating most of day/night and lasted for about 5-7 years ending in 2004. Could some people just not be "Sweaters" or are "Low Secreters" due to a single FUT 2 defect and don't have Sjogren's? One with 2 defects would be a total "Non-Secreter" and have serious lack of mucous if the gene expressed. Could they be connected? Or FUT2 may be the cause for someone without Sjogrens who still has moisture issues. Regarding Detoxing. If one can't open up the channels of the Lymphatic System, it seems dangerous to attempt detox. Maybe Liver or Colon Cleanses might be safe, but some other Detoxing seems risky.
Any thoughts? Is there a connection of Mercury to lack of sweating? If it gets released and doesn't exit, it can really wreck havoc.
Fish Oil
Posted by Sandy A. (Albuquerque NM, USA) on 01/20/2021
Please have further testing done. My sister was told she had too much iron in her blood but when her husband insisted on more testing, they found she had cirrhosis of the liver. It was nearly too late and she almost died.
Castor Oil
Posted by Mary (Utica, New York) on 12/03/2020
★★★★★
I've used Castor oil in my eyes for years. At night I place Castor oil all around my eyes. I then with a dropper place the organic castor oil in my eyes. Then I place plastic wrap over my eyes. My eyes stay moist all night. The wrap stays on my face because of the oil on my face.
If your eyes feel bad enough you will do this, and be happy you did. 👍Trust me I've tried EVERYTHING, I know this works.
Castor Oil
Posted by Nora (Stockholm) on 11/18/2018
★★★★★
Yes castor oil helps me too - dry eye sufferer.
Mineral Water for Fatigue
Posted by Yvone (Auckland, New Zealand) on 10/25/2018
As I follow Ayurvedic principles I am aware that any bottled water, be it in glass or plastic is dead water. Very easily fixed. Buy blue bottles, dark blue or cyan blue, from the Warehouse. $2 each. Buy some corks. DO NOT USE METAL CAPS. Fill your bottle with tap or filtered water and leave outside for a few hours. It does not have to be in direct sunlight, just where the rays reach. This restructures the water. Very simple to do and the water tastes completely different. Normally I cannot tolerate water, but have no problem drinking 6-8 glasses of restructured water a day. AND BEST OF ALL IT DOES NOT COST A FORTUNE. Add one cupful to your kettle, cooking water, any other water. I splash it on my dry eyes as well while holding a mouthful of water. Very helpful. I use it in my espresso machine. Coffee tastes completely different. I know, I know, but I only drink one cappucino a day. I brought back from Germany mineral salts called Meinebase and add a cupful to the footspa. These salts regulate the pH balance of my body and much better than bicarb of soda. This help a lot. It will take one year but I will rebalance my immune system and wave goodbye to Sjogrens. Best of luck everyone, hope this helps.
Fish Oil
Posted by Brandy (Alberta ) on 07/18/2018
I did the same thing too. And ended up with fluid around my heart, not being able to breathe and had to have two blood transfusions. A healthy mix of both natural and science is behind more of an intelligent choice.
Liver Flushes
Posted by Vanessa (Az) on 05/25/2018
Will the liver flush help with lupus and Sjogren syndrome?
Castor Oil
Posted by Charity (Faithville , Us) on 05/08/2018
Not sure what your weight is but I believe it's an ounce of water for every pound divided by two and then add a good mineral salt(salt holds water in place) as the water would flush out your minerals . 150 pound person would consume 75 ounces of water, including what you consume in soups, ect and add a bit more if they drink coffee or diuretics. Always increase water and mineral salt a bit a day until desired levels to prevent swelling . Watercure by Dr. Batmanghelidj helped a lot of sick people regain their health. Also hot tubs pools baths pull water out of the body and the skin on fingers shrivels. I learned it the hard way.
Histamine is a dehydration signal from the body to alert us there is an imbalance . Most drugs have anti histamine in them and most people who go to hospital get a saline IV and it greatly improves their health.
Blessings, Charity
Castor Oil
Posted by Frances (Cabarlah, Qld.) on 05/08/2018
Holly, I was diagnosed with RA over 50 years ago and am not disfigured but have had all the joint pains, etc. Only recently whilst at hospital for another problem I was told I didn't have RA but Sjogren's disease. This would explain the dry eyes, nose, mouth, vagina, etc.
Castor Oil
Posted by Holly (New Hampshire ) on 05/06/2018
★★★★★
I have RA with painfully gritty dry eyes and mouth. I use castor oil for my eyes with great effect. Use a good grade caster oil cold pressed 100% solvent free, no hexane & paraben free. Before sleep apply thickly to upper & lower eyelids & rub into eye lashes. (The oil may blur your vision, but it will not harm your eyes) the thickness may take some time to get used to just keep it on all night. Apply a thin coat in the morning and whenever eyes are irritated.
I have used this for about 2 months or so and it relieves the dryness and lately have noticed a huge improvement in a lessening of grit which is more easily remover without scratching or tearing to my lower lids. I'm still working on the dry mouth I'm increasing my fluids to 12-14 cups daily, small amounts of coconut oil for dryness as needed and xylimelts. I'm just starting borage oil, as directed on bottle.
Mineral Water for Fatigue
Posted by Janet L. (Dublin ) on 03/28/2018
Thank you for the information.
Borage Oil
Posted by Jen (Green Bay, Wi) on 02/26/2018
Does it matter what kind of tea bag? Do you put it in dry or steep it first?
Fish Oil
Posted by Karen (New Jersey) on 11/06/2017
Hi,
I've got auto immune disorders--Sjogren's, RA, Hypothyroidism. My current problem is extreme skin dryness/burning pain with cracks/splits in my skin above my mouth. I'm looking for a Rheumatologist in the NY/NJ area.
This condition is both painful and unsightly.
Anyone else have this condition? I've tried so many moisturizers, oils, they help a little. I watch my diet-organic, free range, no dairy, supplements and lots of water.
Any other suggestions? Much appreciated
Dietary Changes
Posted by Charlie (Wyoming) on 09/11/2017
Soy however, is not good to eat for long periods of time. Little is better. Check it out on the web.
Liver Flushes
Posted by Steve (Nv) on 05/10/2017
I use the Hulda Clark liver flush recipe but instead of epsom salts I use magnesium citrate powder as it's easier on the kidneys.
Liver Flushes
Posted by Luly Salazar (Denver City Tx) on 05/10/2017
How do you do your liver flushes?
Mineral Water for Fatigue
Posted by Diane (California) on 04/22/2017
I'm sorry this took so long. I had no way to know people were asking a question. Yes, I am still getting the mineral water delivered in 2.5 gallon glass bottles. I buy Mountain Valley Spring water. Whole Foods also has a brand of Italian Still Mineral water that is also in glass and much cheaper, and that was the first one I used so I know it's just as good as Mountain Valley in alkalinizing my body. Been on it for over 2 years now and it's been such a Godsend.
Liver Flushes
Posted by Ruhi (Qatar ) on 04/04/2017
How can I do liver flushes. I have RA and sjogren.
Liver Flushes
Posted by Christine (Az) on 03/13/2017
HI Ericka ~ So great to hear your better now!
Will you please share your experience on the LIVER CLEANSE .... what kind of preparation before the actual cleanse and what to expect during the process.
Thank YOU!
Liver Flushes
Posted by Christine (Az) on 03/13/2017
Hi ~ good to hear you made yourself better. What kind of things did you do to make your self better? Flushes, foods, water, vitamins?
Thank YOu
Ted's Remedies
Posted by Candyk (Rural, Oh) on 03/10/2017
Update, I wanted to add to my 2013 post. I use ACV for inflammation at least 1x a day now. I take and squeeze 1 lemon and add 1/4 to 1/2 t of baking soda to the juice. (Best to use organic lemons or limes) Let it bubble and fizz. When its completely flat add to 1 cup of water and drink. This helps to alkalize the body. I have sjogrens, Sclero, raynauds, . This seems to help with all. I also follow a supplemental regimen If anyone with AI is interested. : Vit. A, B's. K2, D3, Boron, E, fish oil, turmeric (product called curamin) and I make my own kefir from raw milk (this has trillions of probiotics to help heal the digestive tract). I also just added a product that combines, aloe, glutamine, and DGL. This helps with the digestive tract also. I like Colostrum for healing also. Can do a lot for the body.
When we are nutrient deficient the body cannot heal. Its important to follow a healthy diet and try to get the best quality of food we can obtain. I don't need to tell everyone that most of our food is dead. It contributes little. We are eating more and getting less basically. Of course growing your own it s the best source but when you can't find that buy local from farmers who sell produce and eggs. Free range eggs are the best. (the most nutritional eggs have an orange/dk yellow yolk.) Organic mean is also recommended for anyone who has AI. I know that a vegan diet is good however, the stomach lining needs "threonine" to regenerate every 3 days. So a good protein source is really important whether it be from animal or vegetable. I always tell people start out with minimal supplementation and work your way up in case something doesn't agree with the body bc we are all different and effected in a variety of ways. The body IS made to heal itself if you give it the right fuel and nutrients.
Multiple Remedies
Posted by Mario (Dallas, Texas) on 01/12/2017
For dry eyes, I am using Castor oil under the eye lashes before bed for years, very good results
Multiple Remedies
Posted by Kag (San Francisco) on 01/10/2017
For dry eyes, an ophthalmologist can insert eye duct plugs to prevent tears from draining, and it's painless. You can also get an RX for Lacriserts. They retail for about $300/month, but is covered under insurance. I cut the little things in half so I get twice as many and since I rarely need the full ones. They are tiny, little foil-wrap clear sticks that expand in your lower lid to produce tears for HOURS! Thought I was going to have to give up snow skiing, cycling, motorcycle/scooter riding, scuba diving until doc told me about these! These will CHANGE YOUR LIFE! Still trying to deal with the dry mouth, though. Physical therapy has taken away my joint pain, so I'm almost cured!
Multiple Remedies
Posted by Eileen (Pa) on 12/08/2016
Nightshade is also a toxic weed (has small lavender flowers) that grows on fence lines throughout many states and in cities. It will even kill cattle (except cattle are smart enough that they won't go near it unless there is no other food source). Nightshade is so toxic that it can be absorbed through the skin. When I moved to Columbus, OH, I pulled this climbing weed along my chainlink fence and acquired an "unidentifiable" conjuntivitis that also caused my pupils to fully dialate. Even OSU medical hospital didn't know what caused my conjunctivitis. I read everything and discovered the truth about all plants in the nightshade family.
In Italy, nightshade tea was given to young girls to cause "Bella Donna" or large pupils that were considered a beauty attribute. In addition to the general toxicity of nightshade, enlarged pupils can lead to the destruction of vision. I had to wear sunglasses inside to protect my eyes. I believe that my encounter with the nightshade may have triggered my Sjogren's primary (I had the lip biopsy) and perhaps triggered all of my mixed connective tissue disease and many autoimmune diseases, including my MS (because my first signs of MS began a couple of years after my encounter with nightshade).
Don't every touch or consume a plant or its fruit without knowing what side effects are associated with it.
Mineral Water for Fatigue
Posted by Diane (Ca) on 11/07/2016
I"m sorry it took me so long to find the questions on the mineral water. I'm able to get mine delivered in glass 2.5 gallon containers which I put in a water crock. The brand I buy is Mountain Valley Spring -- from a spring in Arkansas. But I found that any good mineral water does the same, and they have some in Trader Joe's now. And Whole Foods has some.
Fish Oil
Posted by Dorothy (Mass) on 10/28/2016
I am finding all of this interesting. Just found out I have Sjogren's. Had my cataracts out in Fed 2016 and my eyes are so dry. Told my eye doctor and he tested for Sjogren's was positive. Its not to bad my mouth gets dry at nite. My eyes forget it. I am useing Restates.twice a day. It helps a little. But! I am going to dry all of these things. I am 75 young healthy can't believe this is happen. I also have a thyroid condition. Goiter. On pills and off. Thank's.
Liver Flushes
Posted by Steve (Nv) on 10/23/2016
Google Hulda Clark liver flush and you will find tons of good info there.
Liver Flushes
Posted by Jan (Bahrain) on 10/20/2016
Can you kindly provide your liver flush programme as there are different ones online? I'd hugely appreciate it since no one else says anything worked for this syndrome.
Liver Flushes
Posted by Robert Henry (Ten Mile, Tn) on 10/14/2016
HI U JANET,,,,,,,,, ERICA's method is not original with the Andreus Moritz video. This procedure we got from Dr Hulda Clark's book many years ago. She says the procedure has been done for thousands of years. We do this yearly and now only get what is called gravel. What the video adds is to drink many glasses of apple juice a day for a week.
This protocol will also work for kidney stones, but the apple juice is far more important .
Let me tell you a story that just happened to a church friend of ours. She had a very large kidney stone and used the standard allopathic procedure of busting up the stone. The fragments went all through out her body and they were full of toxins. She was on life support and unconscious for about 4 days. The decision was to remove the life support and see what God had in store for her. She had turned totally black, but awoke a day or so later. Her left arm had to be removed and her left foot. Our little country church prayed long and hard for her during this time. She is at peace to lose her arm and foot.
We visited her a few days ago and could not believe her attitude. She was totally positive and thanking God for sparing her. The doctors said she was a miracle . I told her that she would have more stones if she did not supplement with magnesium and if this occurred again, then to do Dr Hulda Clarks procedure instead of what she just went through.
I also posted on this thread about coffee enema's that will flush toxins from your liver. We also do this procedure. As all know my admission to posters is to read and study until they are worn out and then do more. Knowledge is what will solve your health problems. Pity..... that most want a quick fix, which will not happen.
OUT OF SPIT. =======ORH======
Liver Flushes
Posted by Janet (Madison, Wi) on 10/12/2016
Erica, this is amazing! Thank you for sharing. I have had sjogren's symptoms for several years I now realize, gradually getting worse. Recent skin problems including rashes, cracks, and spontaneous hives, now around my eyes, have no explanation, and no apparent medical treatment besides steroids. I also have Hashimoto's hypothyroidism for which I take T4 and T3 supplements, and have eliminated most gluten with much improvement in TPO & anti-thyroid antibodies. Izabella Wentz' book Hashimoto's Thyroiditis, Finding and Treating the Root Cause has inspired me to believe that I can eventually be my healthy self and body again. I'll be having new antibody tests for Sjogren's soon. Do you know which tests you had? I am now planning to do the liver and gall bladder flush recommended by Andreas Moritz, I have ordered his book. Your story is energizing and full of promise. It was a year ago, how are you feeling now? Any other suggestions you may have are welcome. Thank you again ...
Mineral Water for Fatigue
Posted by Robert Henry (Ten Mile , Tn) on 08/27/2016
HI U Timh,,,,,,,,,,, you a better man than I. You went around the May Pole to tell folks that distilled water has no value. It does not have any value what so ever, except it does not contain any garbage.
Folks are told to drink spring water because it contains lots of minerals. Distilled water has none. Distilled water has an affinity for calcium so it will remove that from your bones. Drink it long enough and you will end up with osteoporosis.
Won't say what I want to tell the advocates of distilled water except they have never studied chemistry.
========ORH===========
Mineral Water for Fatigue
Posted by Timh (Ky) on 08/27/2016 2048 posts
Distilled Water is simply purified water and yes, no benefits for consumption. It is recommended to add a sprinkle of powdered or a few drops of Ionic Major & Trace Minerals to correct this problem. Maybe not as good an option but a sprinkle of Sea Salt or Himalayan Pink Salk would suffice.
For yrs I carbon filtered my tap water and found it insufficient as my metabolism seemed affected by fluoride. And sure enough this was the case because I started Ozonating 1 gal filtered water for 15-30 secs and my energy, as well as my kitties, went up.
I get my minerals elsewhere but I do add a few drops of Iodine to a gal of drinking water.
Mineral Water for Fatigue
Posted by Ben (Kansas) on 08/26/2016
Distilled water is the cleanest and best testing water there is. If you are worried about minerals just add a few drops of trace minerals to it.
Mineral Water for Fatigue
Posted by Carolyn (Hamilton, On Canada) on 08/25/2016
No one should drink distilled water it has no minerals in it, it is "dead" water and very acidic. I drank it for several years and got very tired, naturopath told me Alkaline water is the best, it has the minerals still in it. Our body needs minerals.
Borage Oil
Posted by Nic (Golden, Co) on 08/07/2016
Can you please tell me the brand of the Borage oil and the dosage you take? My eyes are so painful. Thank you
Liver Flushes
Posted by Amy (Sarasota, Florida) on 07/27/2016
Hello and thank you for your post on this site. Can you tell me something more about the liver flush that helped you please. Did you use a clinic or buy a formula? I would appreciate the details. Perhaps it can be a help. Has this been a permanent help to you? I am having a great deal of difficulty and need a solution. Many thanks. Amy
Fish Oil
Posted by Joyce (Oceanside, Ca. ) on 07/27/2016
A temporary ‘assist' with dry mouth....believe it or not....chew gum!
I also have Sjogren's and am happy to read the relief which can cure it. Cod liver oil is horrid...rather than pills, are any other oils helpful? It gags me...but I could increase my take of Olive Oil...any comments? I also use coconut oil, but would have a tough time taking it as a spoonful. I get especially dry after a pain pill.
Liver Flushes
Posted by Joycealaina (Oceanside, Ca. ) on 07/27/2016
I am from Northern California where we are quite serious about using everything natural. So was I when autoimmune diseases began...unfortunately they got out of control and I had excruciating pain. I did not get it under control...a doctor did when I moved to southern California. Pain pills I hadn't taken helped...if they work...take them. I was also put on methotrexate...and it worked for a while. All I know is the medicines helped in my darkest hours, days, years when I suffered so trying to do it myself.
Now that I am better, not cured, but much better...I can look for natural ways of healing.
With dry mouth my throat gets so crackled I cannot be understood...I chew gum. It gets my juices going again rather quickly.
A few thoughts from one use has the gamitte and keeps on trying....but doesn't refuse medical assistance.
Oil Pulling
Posted by Kristen (Pa) on 07/23/2016
Please do NOT swallow any oil that you've had in your mouth. It will be filled with bacteria, you want to spit it out, and rinse your mouth out. Just to clarify. Also, I tried oil pulling and it was very effective but my crown came loose, just fyi.
Fish Oil
Posted by Rsw (Oh) on 05/24/2016
Hi Judy,
I got severe Hep A in the 80's, most likely from eating contaminated food at a restaurant. Which one, I don't know for sure because it took about six weeks to show up. I will never be able to donate blood or organs because of this. High iron can lead to sticky blood and also damage organs, so if it gets too high, my doctor writes a prescription for a phlebotomy and I can give blood at a donation center, and it is is disposed. Some doctors think high iron is implicated in heart attacks so I try to watch my levels.
Fish Oil
Posted by Judy (Maryland) on 05/24/2016
I was wondering why you can't donate blood and how you know your blood is sticking together??
Dietary Changes
Posted by Edith (Texas) on 05/04/2016
So, I've been drinking soy milk for about 2 years and first it was mouth, so dry that my mouth would stick together, and then about 8 months later my eyes are doing the same same thing?
Mineral Water for Fatigue
Posted by Honey (Columbia, Sc) on 03/31/2016 3 posts
Are you still drinking the mineral water you have delivered?
Liver Flushes
Posted by Christian (Mt. Juliet, Tn) on 01/08/2016
Hello. I am very encouraged by your post re: liver flushes and Sjogrens. Did you only do the flushes in 2008 and not again until 2015? How did you determine how many to do? Thank you for your help!
Oil Pulling
Posted by Grace (Portland) on 12/16/2015
★★★★★
Sjogren's Syndrome:
Oil pulling helped me. Oil pulling is where you swish an oil ( I use sesame oil or coconut oil) in your mouth for 15 minutes, then spit it out, and brush your teeth. I do it once a day.
Also, my salivary gland was enlarged may be clogged, and putting a tea bag between cheek, and gum for few hours, seems to unclog it.
Liver Flushes
Posted by Robert Henry (Ten Mile, Tn.) on 12/03/2015
HI U HINA, , , , , , , ,
For your liver flush, google coffee enema and follow the directions.
Wish you well. =====ORH======
Liver Flushes
Posted by Hina (Houston Taxes ) on 12/02/2015
How you did liver flush? Can you tell me the method I am having miserable life because of Sjogren's and rheumatoid arthritis. Please help me. May God bless you.
Mineral Water for Fatigue
Posted by Karen (Sydney) on 11/22/2015
You should use distilled water for your son....Go on you tube and post distilled water and you will get all the information you need...I've never felt better in my life since drinking it and I was pretty sick and run down...All the best to you and your son...I believe you can buy distilled water from the supermarkets etc where you are.
Coconut Oil
Posted by Anna (Norwood, Pa) on 11/01/2015
★★★★★
Swallow the coconut oil. It is a healthy fat source especially if you are a low fat diet. To combat dryness (eyes, mouth, vagina, skin), I have started drinking Goji juice (one ounce) twice a day. I am going to get Evening Primrose Oil and Borage Oil.
Fish Oil
Posted by Candy (Clarkston, Wa) on 10/26/2015
We found these natural supplements very helpful. You can find them on E-bay or Google where to get them. 1) CoQ10 (get the Ubiquinol form). 100 mg 2-3 times per day. Helps with dryness and heart palpatations. 2) Xylimelts (little mints that help your body create saliva). Put one on the roof of your mouth at bedtime. Flat side on the roof of your mouth and let dissolve. 3)Sugar-Free lemon drops. Helps moisten your mouth. 4) Krill Oil (it's not stinky like fish oil and does the same thing). Whatever amount you take divide the dose to 4 times per day.
Mineral Water for Fatigue
Posted by Jayashrii (Nelson, New Zealand) on 09/22/2015
★★★★★
Great news. I bought a distiller & put my water through that. Fatigue has vastly improved but I hadn't connected the two. Thank you.
Liver Flushes
Posted by Erica (Benton, Ky) on 09/13/2015
★★★★★
I was diagnosed in 2008 with sjogrens. After 9 liver flushes (Andrea Moritz style) I did 6 in 08 and 3 here in 2015.) I had blood redrawn last month and my blood work came back NEGATIVE. The DR said he "could not medically explain this". I tried to explain the liver flushes... but just got a blank stare.
Fyi, I was also able to go off of my meds for hashimotos and am hoping one day to also rid my body of scleraderma morphea. I do not do any speacial diet or supplements, I go gluten free temporaraly if it starts bothering my stomach. But no other restrictions.
I have also done a parasite detox through hummaworm.
I HOPE THIS FINDS YOU WELL AND BRINGS YOU HOPE. SJOGRENS IS CURABLE!
Multiple Remedies
Posted by Erica (Benton, Ky) on 09/13/2015
I have cured my sjogrens after doing a series of liver flushes (Andrea Moritz style). In 2008 I was diagnosed with sjogrens and a month ago I asked for the tests to be retaken. All results came back negative. Dr said he "can't medically explain it".
I hope this finds you well and brings you hope. sjogrens IS CURABLE! ( I have no other dietary restrictions or supplements )
See my post under Liver Flushes.
Coconut Oil
Posted by Judy (Tampa, Fl) on 09/02/2015
★★★★★
I use coconut oil, about a tablespoon just to hold in my mouth after brushing at night. I leave it in the length of taking my shower & then spit it out into the toilet. I started this months ago for general health of my mouth instead of chemical mouthwashes & the dentist says its doing well for my gums & I don't seem to be bothered by dry mouth much. Hope that helps.
Dietary Changes
Posted by Mohan Kumar Nair (Navi, Mumbai) on 08/31/2015
Can you please suggest us the treatment for this, as my wife diagnoses with this and under depression, your kind advise on better treatment and dietary are appreciable.
Dietary Changes
Posted by Danielle (Oceanside, Ca) on 08/07/2015
I was hoping for a more detailed description of diet changes. I am trying to help my mom with this.
Multiple Remedies
Posted by Karen (Sydney) on 08/01/2015
You can buy distilled drinking water online and magnesium and bicarb water online ...Look on ebay too or google for a supplier near your area...Only use distilled drinking water..You can buy an inexpensive distiller on ebay and make your own...Both these waters will change your life and repair most ailments.
Multiple Remedies
Posted by Steenie (Florida) on 06/21/2015
Eyebright is an herb that can be bought bulk or in tea bags, I buy it bulk and am back to using the tea in my eyes (don't recommend for some time after eye surgery) and it helps w/ my uveitis triggered by Sjogren's, specifically the posterior kind, it took this to relieve my body of the burden of the corticosteroids (it's anti inflammatory, the eyebright, nothing else I'd tried did this).
Nightshades are highly advised against w/ all arthritis/autoimmune diseases and you can test by removing and then adding them back in to see the difference (huge difference for me, even once Sjogren's was better, I still couldn't do nightshades): tomatoes, peppers, eggplant, potatoes (don't bother me as much, the others I can't eat at all), and a number of herbs. In fact, eyebright is, funny that I can't take it internally but I'm able to tolerate it w/o uveitis in my eyes.
In order to clean my liver and then the Sjogren's was knocked out which leads me to believe that medicine, in and of itself can prevent the healing of the Sjogren's as well as the uveitis (depends on the cause of the uveitis, but best to go as natural as possible).
Fish Oil
Posted by Rsw (Uniontown, Oh) on 04/26/2015
Hi PJ,
I was recently diagnosed with Sjogren's Syndrome, but because of the dry eyes and mouth from previous Sicca diagnosis, had been taking many of the same oils you mention. I don't think they were helping me. Then, as I was looking at some of Ted's comments (which I can't seem to find right now), he said the body can't handle all these oils, and even fish oil should be taken about twice a week only. He only uses coconut oil. I have stopped using the oils but remain confused by all this. Does anyone have a better understanding from Ted of what oils may not be good to take, which may be all of them except coconut oil? I think he advises Borax for Sjogren's. I also have high iron and had hoped the oil would stop my blood from sticking together. (Had Hep A, can't donate blood, and doc will only authorize phlebotomy if iron exceeds 100) Thanks everyone.
Fish Oil
Posted by Pj (Tennessee) on 04/26/2015
Is the fish oil, etc.. still helping your Sjogren's symptoms? I've been taking fish oil, evening primrose oil, alternating vitamin E and Flaxseed Oil, Ginger and tumeric for 4 weeks now. Some improvement but still significant dry mouth, mucus in throat and dry eyes (but eyes not as bad). How long did it take before you reversed the Sjogren's? Also been on a gluten free diet for 3 weeks still no reversal. Impatient I suspect. Desperate people do desperate things and there is so much out there about Diet, Immune System, etc.. Paleo is so restrictive and I'm losing too much weight as it is already. Just wanted an update on how your Sjogren's dryness symptoms were responding to your supplement regiment .
Mineral Water for Fatigue
Posted by Mary (Los Angeles) on 03/11/2015
Where do I buy this mineral water? Got a brand name? I have a very sick child that needs this. Thank you.
Multiple Remedies
Posted by Claudia (Conifer, Co) on 02/10/2015
★★★★☆
Hello Everyone! Thank you all for your comments, they are helpful and encouraging. I am a 61 YY female, and was diagnosed with Sjogrens last year after many years of suffering from fatigue and dryness in the eyes and mouth. But with this diagnoses I was at least pleased to know that these symptoms are related, and REAL (and not something in my head to be demised by doctors).
Anyway, I would like to share some of the things that I am doing that have given me some relief. I have been taking (daily) fish oil, potassium, and vitamins C and D.
I have also been drinking organic unfiltered apple cider vinegar mixed with raw unfiltered local honey (about a tablespoon of each mixed with 12 oz of water). I have noticed a difference in my energy level, as well as some relief from my dry mouth. (And, I am no longer on high blood pressure medication. But that's for another post.)
For the past 2 months I have used something that my ophthalmologist recommended: serum tears. These have been a real blessing. I had started off using OTC replacement tears, with dismal results - no relief. Nothing seemed to provide lubrication in my eyes, and each time I applied the artificial tears, my eyes were left burned and painful; I tried every brand on the shelves; nothing helped. (On a scale of 1-10, my tear production was tested to be a "1", so... hmm, my eyes are very dry).
Anyway, serum tears could be a natural alternative for someone with severe dry eyes. They are made from your own blood, so they are unique to each person. Several units of your blood are drawn, and the red blood cells are separated out, and then the clear (white) cells are mixed with a saline solution, and put into small eye droppers. The solution must be kept frozen until ready to use, and then when thawed it lasts only 30 days under refrigeration. But, I can honestly say, these have given me my life back. I still have dry eyes, but the serum tears give soothing relief, where nothing else did. The serum puts back MY OWN cells in to my eyes, where they are needed. Serum tears are not offered by every eye doctor... you may have to check around. They can be expensive - and they are not always covered by insurance (mine aren't). The science behind these drops is a couple decades old, but it may help some of you who have severe dry eyes as I do.
At night, I am use a simple, pure, organic coconut oil. This has been far better for me than any chemical gel or ointment for night relief. I scoop (with a sterile knife) a small amount of solid oil, and put it in to an empty dropper. Before bed, I run the base of the dropper under hot water for a minute, and then put a couple drops of the barely warmed oil directly into my eyes. Bliss. Coconut oil is naturally antibacterial and anti fungal, which seems more safe than some synthetic chemical based gels or ointments.
Blessing to you all - I hope that that my experience helps someone. There is hope out there.
Borage Oil
Posted by Margaret (Utah) on 02/07/2015
Ally, how is that regimen helping?
