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09/26/2008: Angela from Broomfield, CO: "A couple times a year I have a painful swelling of one of the parotid glands (main salivary gland) on either side of my face due to Sjogren`s syndrome. I have had this many times before and have never been able to stop the pain and swelling which usually lasts for 2 weeks...until now. I tried the castor oil heat pack the first night, leaving it on over night and woke up with no pain! The gland is still sore to the touch, but I have never experience such relief without the use of corticosteroids. I will continue to use this method from now on. I am a believer!"
Warm pack of castor oil for relief is good to know. I also suffered from inflamation of the salvary and parrotid glands. These glands become sore and enlarged because they do not have the right nutrients to manufacture saliva. Because they are depleted and still trying to work they become larger and painful. It is important to relieve these glands.
In 1985 when I first had the symptoms of Sjogrens with a vengence and found only topical drops for tears, saliva etc, it was apparent to me I needed to find out what was causing this in my body (female, 43 yrs). By luck I found a report serendititously offered at a symposeum by a doctor who reported that while he was not looking for relief for dry eyes among the fishing population which were his test subjects, that was their unamous report to him. He had been giving them an oil extracted from borage. I found borage oil at a small speciality store for vitamins and supplements. Within a few weeks of taking the oil pretty liberally my painfully eyes were relieved and the glands in my face became soft and pain free.
If is the gamma linoleic acid in the tasteless oil which my body needed. Its clear that while the precursors may be in my body, I did not have the ability to convert them into gamma linoleic acid. Once this was supplied the endocrine glands which secrete saliva and tears as well as many other glands such as the liver and pancreas, sweat and mucus in the lining of the reproductive tract, as well as the mamary glands functioned well. One terrific happy result was that the painful fibrous tissue in the breast became soft and pain free.
That been my experience and if it can help someone else be pain free that would give me great pleasure.
Mary
★★★★★
Fyi, I was also able to go off of my meds for hashimotos and am hoping one day to also rid my body of scleraderma morphea. I do not do any speacial diet or supplements, I go gluten free temporaraly if it starts bothering my stomach. But no other restrictions.
I have also done a parasite detox through hummaworm.
I HOPE THIS FINDS YOU WELL AND BRINGS YOU HOPE. SJOGRENS IS CURABLE!
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capsules I now have saliva in my mouth! My eyes and vagina are improving with moisture too. And yes my Neck pain has practically dissappeared. Hope someone else might find this cure works for them too!!
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My Sjorgens Syndrome was cured from some combination of these.
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For fatigue, mine went almost completely away when I switched to drinking ONLY mineral water (not the sparkling kind). I get it delivered now. It's expensive, but I no longer have the horrible fatigue where I couldn't even stand to wash dishes or make it up the hill to where I park my car. After only 2 days of drinking only mineral water, it was all gone. My hip, shoulder, and foot pain also have no reappeared. it's been over 7 months now.
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If your eyes feel bad enough you will do this, and be happy you did. 👍Trust me I've tried EVERYTHING, I know this works.
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Fish Oil
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I'm a very active, lean, 56-year-old who was experiencing several Sjogren's symptoms for months and they were significantly debilitating -- dry mouth, dry eyes, lung soreness plus heart palpitations. I refuse to seek out the help of traditional doctors because of their reliance on chemical cures. I did, however, engage a Sports Nutritionist that came highly recommended by an active, lean colleague of mine, who is 57 years old. I'm mentioning my age and my colleague's age so women who are of the same "vintage" realize that there is post menopause hope as one's body changes. When I shared my symptoms with the Sports Nutritionalist he said "Have you been tested for Sjogren's?" He also said, "At a minimum, you should be consuming 3000 mg of high grade fish oil per day." I was consuming 1000 mg per day. Interesting.
I next went online, read your comments, and did the following: increased my fish oil soft gels consumption to 3000 mg per day (Carlson Norwegian Salmon Oil), started taking 2 Solgar Flaxseed Oil 1250 mg soft gels per day and started taking 2 Solgar Super GLA Borage Oil 300 mg soft gels per day. The next day, my dry eyes and dry mouth significantly improved! The day after, my eyes and mouth felt normal again. I am still experiencing lung soreness plus heart palpitations, but I have noticed slight improvement there as well. My thought is that it may take longer for the rest of my body to get "fully lubricated" once again. I truly believe that I'm on the right path, so I wanted to share my experiences in case it may help others. As a side note, my Sports Nutritionalist also told me to switch multi-vitamins -- moving from a tablet to soft gels because they are absorbed into your system whereas tablets can pass right through you. One of his clients was being x-rayed for some type of condition, and the doctor saw the multi-vitamin in the gentlemen's intestinal tract, e.g., it hadn't been absorbed into his system. I am going to make this change as well.
I would recommend that if you increase your oil intake, you make sure that you're not over-doing it by eating fatty foods. Too much fat could cause other problems. Eat healthy!
★★★★☆
Anyway, I would like to share some of the things that I am doing that have given me some relief. I have been taking (daily) fish oil, potassium, and vitamins C and D.
I have also been drinking organic unfiltered apple cider vinegar mixed with raw unfiltered local honey (about a tablespoon of each mixed with 12 oz of water). I have noticed a difference in my energy level, as well as some relief from my dry mouth. (And, I am no longer on high blood pressure medication. But that's for another post.)
For the past 2 months I have used something that my ophthalmologist recommended: serum tears. These have been a real blessing. I had started off using OTC replacement tears, with dismal results - no relief. Nothing seemed to provide lubrication in my eyes, and each time I applied the artificial tears, my eyes were left burned and painful; I tried every brand on the shelves; nothing helped. (On a scale of 1-10, my tear production was tested to be a "1", so... hmm, my eyes are very dry).
Anyway, serum tears could be a natural alternative for someone with severe dry eyes. They are made from your own blood, so they are unique to each person. Several units of your blood are drawn, and the red blood cells are separated out, and then the clear (white) cells are mixed with a saline solution, and put into small eye droppers. The solution must be kept frozen until ready to use, and then when thawed it lasts only 30 days under refrigeration. But, I can honestly say, these have given me my life back. I still have dry eyes, but the serum tears give soothing relief, where nothing else did. The serum puts back MY OWN cells in to my eyes, where they are needed. Serum tears are not offered by every eye doctor... you may have to check around. They can be expensive - and they are not always covered by insurance (mine aren't). The science behind these drops is a couple decades old, but it may help some of you who have severe dry eyes as I do.
At night, I am use a simple, pure, organic coconut oil. This has been far better for me than any chemical gel or ointment for night relief. I scoop (with a sterile knife) a small amount of solid oil, and put it in to an empty dropper. Before bed, I run the base of the dropper under hot water for a minute, and then put a couple drops of the barely warmed oil directly into my eyes. Bliss. Coconut oil is naturally antibacterial and anti fungal, which seems more safe than some synthetic chemical based gels or ointments.
Blessing to you all - I hope that that my experience helps someone. There is hope out there.
When we are nutrient deficient the body cannot heal. Its important to follow a healthy diet and try to get the best quality of food we can obtain. I don't need to tell everyone that most of our food is dead. It contributes little. We are eating more and getting less basically. Of course growing your own it s the best source but when you can't find that buy local from farmers who sell produce and eggs. Free range eggs are the best. (the most nutritional eggs have an orange/dk yellow yolk.) Organic mean is also recommended for anyone who has AI. I know that a vegan diet is good however, the stomach lining needs "threonine" to regenerate every 3 days. So a good protein source is really important whether it be from animal or vegetable. I always tell people start out with minimal supplementation and work your way up in case something doesn't agree with the body bc we are all different and effected in a variety of ways. The body IS made to heal itself if you give it the right fuel and nutrients.
Castor Oil
Castor Oil
Coconut Oil
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Castor Oil
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I have used this for about 2 months or so and it relieves the dryness and lately have noticed a huge improvement in a lessening of grit which is more easily remover without scratching or tearing to my lower lids. I'm still working on the dry mouth I'm increasing my fluids to 12-14 cups daily, small amounts of coconut oil for dryness as needed and xylimelts. I'm just starting borage oil, as directed on bottle.
Histamine is a dehydration signal from the body to alert us there is an imbalance . Most drugs have anti histamine in them and most people who go to hospital get a saline IV and it greatly improves their health.
Blessings, Charity
Evening Primrose Oil
★★★★★
Another source of GLA, Evening Primrose Oil, I hapsed upon it as it said something about 'menstrual help', and I seriously got a regular pharmacy brand, and I began to notice my dry eyes going back to normal (I wasn't sure if I was nuts or it was true, so I stopped... )... I'm about to restart, I empty out these gel caps (couldn't find a veg formula at my store)...
There's actually a pub med study, look up pub med sjogren's and evening primrose oil (EPO)...
Fish Oil
Sorry, I just saw this. I think you are spot-on. Vitamin D has been hard for me to budge, but I've started taking cod liver oil, so we'll see. Zinc is actually more interesting to me because the last 3 times I had a migraine coming on, I've taken zinc and it resolved w/in an hour. (I can't take NSAIDs due to fluoroquinolone toxicity and was scratching my head for alternatives, when something in me told me to try zinc... it worked! ) And as zinc is so important to the absorption of so many other vitamins, I suspect it could be a game changer for me. Thanks for your reply!
Dietary Changes
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